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Journals Journal of Adolescent and Youn...

Journal of Adolescent and Young Adult Oncology

https://read.qxmd.com/read/38064519/risk-factors-for-treatment-related-amenorrhea-in-female-survivors-of-childhood-and-adolescent-cancer-10-year-experiences-at-oncofertility-clinic-in-korean-tertiary-center
#21
JOURNAL ARTICLE
Soo Jin Park, Jung Yoon Choi, Hyoung Jin Kang, Yun Jeong Lee, Young Ah Lee, Ji Yeon Han, Sung Woo Kim, Hoon Kim, Seung-Yup Ku
Purpose: This study investigates the impact of gonadotoxic cancer treatment on treatment-related amenorrhea (TRA) and hormonal status in pediatric and adolescent females who underwent fertility preservation (FP) consultation. Methods: A retrospective review was conducted on 143 females under 21 with cancer referred to the FP clinic at Seoul National University Hospital between 2011 and 2022. We analyzed variables, including age, menarche status, cancer type, and treatment. Subsequently, subjects were evaluated to identify clinical factors affecting TRA at 1-year intervals following the completion of treatment...
December 8, 2023: Journal of Adolescent and Young Adult Oncology
https://read.qxmd.com/read/38064493/preference-of-young-adult-cancer-survivors-for-in-person-versus-telemedicine-cancer-survivorship-visits
#22
JOURNAL ARTICLE
Lauren Boehm, Tracy Jalbuena, Amy Haskins, Christina Holt, Susan Ashley Speckhart
Young adult (YA) cancer survivors face barriers to follow-up care, which can be exacerbated by living in a rural location. Telemedicine may mitigate these barriers, but little is known about the preferences of YA survivors for telemedicine or in-person survivorship visits. We surveyed 57 YA cancer survivors in a rural state to assess their preference for survivorship visits. Forty-six percent of respondents preferred an in-person visit while 16% preferred telemedicine. The remaining 39% reported "it depends" or were undecided...
December 8, 2023: Journal of Adolescent and Young Adult Oncology
https://read.qxmd.com/read/37092992/extramedullary-relapse-of-b-cell-acute-lymphoblastic-leukemia-in-bilateral-breasts-treated-with-whole-breast-radiotherapy
#23
JOURNAL ARTICLE
Vivek Ghosh, Swarnaditya Roy, Ekta Dhamija, Ruchi Rathore, Lalit Kumar, Ahitagni Biswas
Isolated extramedullary relapse of acute lymphoblastic leukemia (ALL) in the breast is extremely rare. We herein report a case of a 38-year-old female with B cell ALL, who had isolated extramedullary relapse initially in the left breast and subsequently in the right breast, 3 and 4 years, respectively, after hematopoietic allogenic stem cell transplantation. She was successfully salvaged with bilateral whole breast radiotherapy, 24 Gy/12 fractions/2.5 weeks. This brief report highlights the importance of awareness of extramedullary leukemic relapse in the breast as one of the differential diagnoses of breast masses in the context of ALL...
December 2023: Journal of Adolescent and Young Adult Oncology
https://read.qxmd.com/read/38019159/-absolutely-no-one-else-other-than-yourself-experiences-of-adolescents-and-young-adults-with-cancer-during-the-covid-19-pandemic
#24
JOURNAL ARTICLE
Ayesha Holderness, Cameron Magrath, Helen Hatcher, Deborah Critoph
Introduction: The COVID-19 pandemic caused widespread disruption to the provision of health care in the United Kingdom. It posed two risks to AYACs: disruption of care and long-term adverse consequences compounding late effects. This study sought to better understand the experiences of AYACs receiving care during the pandemic and identify areas where greater support is needed. Methods: In-depth semistructured interviews with AYACs ( n  = 6), 16-22 years at diagnosis. Interviews were transcribed verbatim and analyzed using the principles of Giorgi's phenomenological analysis...
November 29, 2023: Journal of Adolescent and Young Adult Oncology
https://read.qxmd.com/read/38016156/reel-resilience-unveiling-the-potential-role-of-entertainment-media-narratives-in-improving-psychological-well-being-among-adolescent-and-young-adult-cancer-survivors
#25
JOURNAL ARTICLE
Meredith K Reffner Collins
No abstract text is available yet for this article.
November 29, 2023: Journal of Adolescent and Young Adult Oncology
https://read.qxmd.com/read/37930835/the-future-of-adolescent-and-young-adult-supportive-care-looking-beyond-the-covid-19-pandemic
#26
JOURNAL ARTICLE
Marlie Smith, Chana Korenblum, Pamela J Mosher, Abha A Gupta, Jonathan Avery
No abstract text is available yet for this article.
November 7, 2023: Journal of Adolescent and Young Adult Oncology
https://read.qxmd.com/read/37922448/the-development-and-implementation-of-adolescent-and-young-adult-oncology-programs-teen-cancer-america-s-strategy
#27
JOURNAL ARTICLE
Emily R Haines, Hilary Gan, Alec Kupelian, Betty Roggenkamp, Lauren Lux, Bindu Kumar, Simon Davies
Reflecting a growing recognition that adolescents and young adults (AYAs) with cancer have unique needs that demand novel approaches to care delivery, AYA-specific cancer programs are emerging across the United States to better serve this population. However, the limited availability of health system funding to support such efforts, in combination with the dearth of guidance that exists to guide AYA program development and implementation, has hampered the effective development and implementation of AYA oncology programs...
November 6, 2023: Journal of Adolescent and Young Adult Oncology
https://read.qxmd.com/read/37902972/an-examination-of-the-association-between-psychosocial-aspects-of-fertility-issues-and-demographic-characteristics-of-unmarried-adolescent-and-young-adult-cancer-survivors
#28
JOURNAL ARTICLE
Kanako Yoshida, Yutaka Matsui
Purpose: The purpose of this study was to examine the association between fertility issues and demographic characteristics of unmarried adolescent and young adult cancer survivors. Methods: We conducted a survey among cancer survivors who were 15-39 years old and unmarried at the time of cancer diagnosis and 20-45 years old at the time of the survey. Views on fertility issues, originally developed based on the results of a qualitative study conducted with the same inclusion criteria, were used to assess thoughts and feelings regarding fertility issues...
October 30, 2023: Journal of Adolescent and Young Adult Oncology
https://read.qxmd.com/read/37902970/patient-reported-fatigue-among-adolescent-and-young-adult-cancer-patients-compared-to-non-cancer-patients-a-systematic-review-and-meta-analysis
#29
JOURNAL ARTICLE
Cheryl Forbes, Sarah Tanner, Teyl Engstrom, Wen Ray Lee, Dhaval Patel, Rick Walker, Natalie Bradford, Jason D Pole
Adolescent and young adult (AYA) cancer patients and survivors are a growing population due to more frequent diagnoses and improved survival. Fatigue is a common symptom experienced by cancer patients and it is often missed by health care professionals. Patient reported outcome measures (PROMs) can assist in evaluating patient reported fatigue. This systematic review aims to determine if AYA cancer patients report more fatigue than AYAs who have not been diagnosed with cancer. We used a subset of articles from a larger review that searched PubMed, EMBASE, CINAHL, and PsycINFO to determine which PROMs and domains are currently being used to evaluate AYA cancer...
October 30, 2023: Journal of Adolescent and Young Adult Oncology
https://read.qxmd.com/read/37890085/health-care-provider-perceptions-of-using-social-media-to-improve-sexual-health-for-adolescent-and-young-adult-cancer-survivors
#30
JOURNAL ARTICLE
Julia H Drizin, Jenna M Kahn, Daniel Faltesek, Jessica R Gorman
This study explored (1) health care provider (HCP) perceived barriers and facilitators to social media communication about sexual health with adolescent and young adult survivors, and (2) strategies that can help HCPs navigate social media use for this purpose. Thematic analysis of 11 semistructured HCP interviews resulted in four themes and suggests that social media platforms offer a promising avenue to foster sexual health communication but that resources and training are needed to improve HCP capacity to use this approach ethically and effectively...
October 27, 2023: Journal of Adolescent and Young Adult Oncology
https://read.qxmd.com/read/37889616/recommendations-from-the-professional-advisory-committee-on-nursing-practice-when-caring-for-adolescents-and-young-adults-with-cancer-in-israel
#31
JOURNAL ARTICLE
Irit Schwartz-Attias, Tova David, Tatiyana Amromin, Michal Bar-Yosef, Yael Bartov, Orna Ben Yaakov, Levana Bernstein, Marcela Broitman, Amira Cohen, Osnat Cohen, Limor Eisenberg, Nurit Eshel, Nati Gindi Amsalem, Natan Gorelik, Shimrit Gerbi, Haya Raz, Nahla Naamneh, Svetlana Nemtsov, Dalit Pintel, Keren Sztrigler, Shoshy Goldberg, Semyon Melnikov
No abstract text is available yet for this article.
October 27, 2023: Journal of Adolescent and Young Adult Oncology
https://read.qxmd.com/read/37878304/neck-circumference-for-identification-of-excess-adiposity-in-adolescents-with-cancer-a-better-parameter-for-use-in-clinical-practice
#32
JOURNAL ARTICLE
Roberta de Lucena Ferretti, Priscila Dos Santos Maia-Lemos, Karen Jaloretto Teixeira Guedes, Eliana Maria Monteiro Caran
Purpose: Excess weight in adolescents with cancer during treatment does affect cancer outcomes. Neck circumference (NC), an easygoing anthropometric measure, may present greater metabolic risk, and is associated with excess adiposity. The aim of this study was to identify the prevalence of elevated NC in adolescents with cancer and associated factors. Methods: Cross-sectional study with adolescents aged 10-19 years, under antineoplastic treatment, evaluated from 2015 to 2017, at a Pediatric Oncology Institute's outpatient clinic...
October 25, 2023: Journal of Adolescent and Young Adult Oncology
https://read.qxmd.com/read/37878271/improving-supportive-and-palliative-care-integration-in-adolescent-and-young-adult-cancer
#33
JOURNAL ARTICLE
Ruwanthie Amanda Fernando
Purpose: Timely supportive and palliative care (SPC) integration in adolescent and young adult (AYA) cancer management is recommended in curative and palliative settings. However, multiple barriers exist to implementing this goal. Liverpool Cancer Therapy Center (LCTC) serviced a growing AYA (15-39 years) population without AYA-dedicated services and the vast majority receiving no SPC engagement. Concerned this was placing AYA patients' wellbeing at risk, we determined a cultural change was required and that the newly established AYA Supportive and Palliative Care (AYASPC) Service could facilitate this...
October 25, 2023: Journal of Adolescent and Young Adult Oncology
https://read.qxmd.com/read/37870751/the-development-of-a-bereavement-support-group-curriculum-for-bereaved-parents-of-young-adult-children-bridging-the-gap
#34
JOURNAL ARTICLE
Sue E Morris, Annelise K Ryan, Paige Malinowski, Cristina Pozo-Kaderman, Karen M Fasciano
Purpose: There is limited research addressing the bereavement needs of parents whose young adult (YA) children have died from cancer. Research within oncology about the impact of child loss has tended to focus on parents of pediatric aged children. We adapted a general bereavement support group curriculum used with adults to address the unique needs of bereaved parents of YAs. Methods: Using a quality improvement framework, 25 bereaved parents of YA children participated in one of three 6-session bereavement support group programs during 2020 and 2021...
October 23, 2023: Journal of Adolescent and Young Adult Oncology
https://read.qxmd.com/read/37852001/establishing-reliability-and-validity-of-the-face-q-craniofacial-module-for-pediatric-head-and-neck-cancer
#35
JOURNAL ARTICLE
Yi Wang, Charlene Rae, Elena Tsangaris, Paul C Nathan, Eric Bouffet, David Dix, Karen Wong Riff, Anne Klassen
Purpose: We aimed to establish content validity and assess the psychometric properties of the FACE-Q Craniofacial Module, a patient-reported outcome measure, for use in pediatric and adolescent patients with head and neck cancer (HNC). Methods: To establish content validity (Part 1), between June 2017 and August 2019, cognitive interviews were conducted with survivors of pediatric HNC ( n  = 15), and input was obtained from clinical experts ( n  = 21). To examine item and scale performance (Part 2), Rasch Measurement Theory (RMT) analysis was performed using data from two international studies ( n  = 121)...
October 18, 2023: Journal of Adolescent and Young Adult Oncology
https://read.qxmd.com/read/37852000/using-real-world-data-to-explore-the-impact-of-one-time-financial-grants-among-young-adult-cancer-survivors
#36
JOURNAL ARTICLE
Bridgette Thom, Neha Arora, Catherine Benedict, Emeline M Aviki, Fumiko Chino, Danielle N Friedman, Samantha E Watson, Michelle S Zeitler
Young adult (YA) cancer survivors experience worse financial outcomes than older survivors. This analysis used data from Expect Miracles Foundation to explore the impact of one-time financial grants on financial well-being and access to health care. Among 300 respondents, the average grant was $1526 (standard deviation = $587; range $300-$3000). Respondents reported improved ability to pay expenses ( t  = 4.45, p  < 0.001), increased financial decision-making power ( t  = 2...
October 18, 2023: Journal of Adolescent and Young Adult Oncology
https://read.qxmd.com/read/37843922/real-world-outcomes-of-adolescents-and-young-adults-with-diffuse-large-b-cell-lymphoma-a-multicenter-retrospective-cohort-study
#37
JOURNAL ARTICLE
Denisse Castro-Uriol, Ligia Rios, Daniel Enriquez-Vera, Jacqueline Montoya, Thanya Runciman, Sandra Alarcón, Arturo Zapata, Eddy Hernández, Esmeralda León, Luis Malpica, Bryan Valcarcel
Purpose: Patients with diffuse large B-cell lymphoma (DLBCL) are typically treated with rituximab, cyclophosphamide, doxorubicin, vincristine, and prednisone (R-CHOP). However, a standard of care for managing adolescents and young adults (AYAs) with DLBCL is lacking. We examine treatment approaches and outcomes of this population. Methods: We included 90 AYAs (15-39 years) diagnosed with DLBCL between 2008 and 2018 in three tertiary centers in Peru. Overall response rates (ORR) were available for all patients...
October 16, 2023: Journal of Adolescent and Young Adult Oncology
https://read.qxmd.com/read/37870570/delayed-solid-tumor-presentations-in-adolescent-and-young-adults-patients-in-the-bronx
#38
JOURNAL ARTICLE
Rachel Offenbacher, Sarah Norris, David M Loeb, Adam Levy
Adolescent and young adults (AYAs) require support from their parents and caregivers. While there are formal programs available for patients with complex medical problems, <20% of pediatric practices are performing transition readiness processes in patients aged 12-17 years to effective transition. Although cancer is the most common cause of disease-related death in AYAs in high-income countries, AYA oncology patients have not attained the same clinical improvements as pediatric patients, and their outcomes remain poorer...
October 9, 2023: Journal of Adolescent and Young Adult Oncology
https://read.qxmd.com/read/37815633/aya-unite-lessons-learned-on-intervention-development-promoting-social-and-physical-health-of-adolescent-young-adult-cancer-survivors
#39
JOURNAL ARTICLE
Pooja Rao, Anne E Kazak, Shawna E Doerksen, Laura M Koehly, Ashton M Verdery, Jared Heitzenrater, Brennen A Harding, Courtney L Byrnes, Heather J Costigan, Liza S Rovniak, Christopher N Sciamanna, Lauren J Van Scoy, Kathryn H Schmitz
Adolescent/young adult cancer survivors (AYACS) struggle with poor psychosocial health related to social disruptions due to cancer diagnosis, impacting long-term goal achievement and overall health. In particular, social health promotion is overlooked in AYACS' care. AYA-UNITE, a sociobehavioral exercise intervention pilot for AYACS 15-21 years of age at cancer diagnosis, was designed to foster AYACS' social and physical health. AYA-UNITE was a 12-week group-based virtual exercise program incorporating strength training and aerobic activity...
October 9, 2023: Journal of Adolescent and Young Adult Oncology
https://read.qxmd.com/read/37797223/the-psychosocial-impact-of-the-covid-19-pandemic-on-adolescent-and-young-adult-cancer-survivors-in-the-united-states-an-integrative-review
#40
JOURNAL ARTICLE
Kelsey R Wolfe, Ashley Martinez, Joyce E Dains
Adolescent and young adult cancer survivors (AYAs) are uniquely challenged with navigating health care systems during an important developmental phase of life. During the Coronavirus disease 2019 (COVID-19) pandemic, many people experienced social isolation, mental health symptoms, and schooling and employment changes, which may have affected vulnerable AYA cancer survivors. The purpose of this integrative review is to explore the psychosocial impact of the COVID-19 pandemic on AYA cancer survivors in the United States...
October 5, 2023: Journal of Adolescent and Young Adult Oncology
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