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Journal of Adolescent and Young Adult Oncology

Vicky Lehmann, Mariët Hagedoorn, Cynthia A Gerhardt, Madelaine C Keim, Lory Guthrie, Robbert Sanderman, Marrit A Tuinman
PURPOSE: Childhood cancer is stressful for the entire family. Preoccupation and anxiety surrounding the child's illness may result in parents of children with cancer being overprotective or less emotionally responsive toward their children. Such parenting in response to a negative life event like childhood cancer may cause survivors to be more insecurely attached than healthy peers, which could have downstream effects on survivors' romantic relationships later in life. Therefore, we examined survivors' perspectives on parent behaviors, adult attachment, and marital status among adult survivors of childhood cancer relative to controls...
October 21, 2016: Journal of Adolescent and Young Adult Oncology
Sapna Kaul, Rochelle R Smits-Seemann, Eduardo R Zamora, Holly Spraker-Perlman, Kevin J Boyle, Anne C Kirchhoff
PURPOSE: Examine whether survivors of adolescent and young adult (AYA) cancer value recommended post-treatment care using focus groups and a willingness to pay (WTP) survey. WTP, a measure of value, indicates the dollar amount individuals are willing to pay to use a service. METHODS: Participants were recruited through the Utah Cancer Registry. N = 28 survivors diagnosed with cancer at ages 15-39 and currently aged ≥18 participated in focus groups, and N = 4 in phone interviews (participation rate = 50%)...
October 21, 2016: Journal of Adolescent and Young Adult Oncology
Yuki Ito, Eriko Shiraishi, Atsuko Kato, Takayuki Haino, Kouhei Sugimoto, Aikou Okamoto, Nao Suzuki
PURPOSE: To identify the utility and issues associated with the use of decision trees in oncofertility patient care in Japan. METHODS: A total of 35 women who had been diagnosed with cancer, but had not begun anticancer treatment, were enrolled. We applied the oncofertility decision tree for women published by Gardino et al. to counsel a consecutive series of women on fertility preservation (FP) options following cancer diagnosis. Percentage of women who decided to undergo oocyte retrieval for embryo cryopreservation and the expected live-birth rate for these patients were calculated using the following equation: expected live-birth rate = pregnancy rate at each age per embryo transfer × (1 - miscarriage rate) × No...
October 20, 2016: Journal of Adolescent and Young Adult Oncology
Deirdre A Caplin, Ken R Smith, Kirsten K Ness, Heidi A Hanson, Stephanie M Smith, Paul C Nathan, Melissa M Hudson, Wendy M Leisenring, Leslie L Robison, Kevin C Oeffinger
PURPOSE: To determine the independent contribution of population socioeconomic and health system factors on childhood cancer survivors' medical care and screening. METHODS: 7899 childhood cancer survivors in the United States and Canada enrolled in the Childhood Cancer Survivor Study (CCSS). Population-level factors were derived from U.S. Area Health Resource File or 201 Canadian Census. Health service utilization and individual-level factors were self-reported...
October 18, 2016: Journal of Adolescent and Young Adult Oncology
Merry Lin, Ursula M Sansom-Daly, M Psychol, Claire E Wakefield, Brittany C McGill, M Psychol, Richard J Cohn
PURPOSE: Health literacy is a critical determinant of health and an emerging public health concern. Little is known about the health literacy of adolescents and young adults (AYAs) or about the ability of young patients to communicate health needs and critically evaluate information. We used qualitative methods to investigate the three aspects of health literacy (functional, communicative, and critical) in Australian AYA cancer survivors. METHODS: Forty Australian AYA cancer survivors, aged 15-29 either at diagnosis or recruitment, participated in semistructured interviews...
September 22, 2016: Journal of Adolescent and Young Adult Oncology
Cecilie Dyg Sperling, Gitte Stentebjerg Petersen, Bibi Hølge-Hazelton, Christian Graugaard, Jeanette Falck Winther, Thorgerdur Gudmundsdottir, Jette Ahrensberg, Kjeld Schmiegelow, Kirsten A Boisen, Pia Riis Olsen, Anne Christine I Stender Heerdegen, Emilie Sofia Sonnenschein, Janne Lehmann Knudsen
PURPOSE: Cancer is the leading cause of nonaccidental deaths among adolescents and young adults (AYAs). In Denmark, there are substantial gaps in knowledge concerning how AYAs with cancer perceive their diagnostic and therapeutic trajectory and report health-related outcomes. The aim of this study is to describe the development of a questionnaire targeting AYAs with cancer aiming to evaluate treatment and survivorship from the perspective of the patients. METHODS: Identification of themes and development of items included in the questionnaire were based on a synthesis of literature and qualitative interviews with AYAs in an iterative process involving both a professional advisory panel and a youth panel...
September 21, 2016: Journal of Adolescent and Young Adult Oncology
Olga Husson, Bradley J Zebrack
PURPOSE: To develop and evaluate a new instrument that measures unique aspects of long-term survivorship for people diagnosed with cancer as Adolescent and Young Adult (AYA), not measured by existing tools. METHODS: A new candidate instrument-the Impact of Cancer for Adolescent and Young Adult (IOC-AYA) cancer survivors-was developed and administered to AYA cancer survivors aged 18-35 years who were 15-29 years old when diagnosed with cancer. Psychometric properties of newly derived scales were assessed...
September 21, 2016: Journal of Adolescent and Young Adult Oncology
Victoria White, Corinne Daly, Antoinette Anazodo, Helen Bibby, Lisa M Orme, Ross Pinkerton, Jason D Pole, Kate Thompson, Paul C Nathan, Nancy N Baxter, Sumit Gupta
No abstract text is available yet for this article.
August 26, 2016: Journal of Adolescent and Young Adult Oncology
Denise A Rokitka, Colleen Curtin, Jennifer E Heffler, Michael A Zevon, Kris Attwood, Martin C Mahoney
PURPOSE: Surveillance for long-term complications related to previous cancer therapy can help diagnose/manage chronic health conditions in childhood cancer survivors and improve survivor quality of life. However, a challenge to delivering long-term care to childhood cancer survivors is loss to follow-up; many patients discontinue care at specialized survivor care centers. The purpose of this study was to examine patterns of loss to follow-up among a cohort of childhood cancer survivors...
August 16, 2016: Journal of Adolescent and Young Adult Oncology
Dina M Flink, Jeanelle Sheeder, Laxmi A Kondapalli
PURPOSE: The American Society of Clinical Oncology issued practice guidelines in 2006 to provide critical information about fertility impact to adolescents and young adults (AYA) at the time of cancer diagnosis. Survivors continue to express concerns about their long-term reproductive health after cancer therapy even as treatment options for fertility preservation evolve. An underutilization of fertility preservation methods by cancer patients continues to persist. A review of the literature cites barriers and challenges that limit fertility information and preservation options for AYA cancer patients...
August 16, 2016: Journal of Adolescent and Young Adult Oncology
Sara Giordano, Elizabeth Garrett-Mayer, Navdha Mittal, Kristin Smith, Lee Shulman, Carolyn Passaglia, William Gradishar, Mary Ellen Pavone
PURPOSE: Mutations in the BRCA1/2 genes are associated with breast and ovarian cancer susceptibility. Recent studies have suggested that the BRCA mutation might be associated with occult primary ovarian insufficiency. To evaluate fertility, several studies have validated anti-Mullerian hormone (AMH) as a direct biomarker for ovarian aging and it is considered a quantitative marker of ovarian reserve. We hypothesize that BRCA1 gene mutations will be negatively associated with AMH levels...
August 11, 2016: Journal of Adolescent and Young Adult Oncology
Emma Walker, Ana Martins, Susie Aldiss, Faith Gibson, Rachel M Taylor
Adolescents and young adults (AYA) face individual and social challenges different to other age groups that shape their experience of cancer and the associated psychological distress. This critical review examined the availability of AYA-specific psychosocial interventions to assess the impact they have and identify elements that make them successful. Five literature databases were searched for psychosocial intervention studies involving AYAs with cancer, on and off treatment, aged 10-30 years, published between 1980 and 2016...
August 3, 2016: Journal of Adolescent and Young Adult Oncology
Mary S Mouw, Eleanor A Wertman, Clare Barrington, Jo Anne L Earp
PURPOSE: Most adolescent and young adult (AYA)-aged childhood cancer survivors develop physical and/or psychosocial sequelae; however, many do not receive long-term follow-up (LTF) critical for screening, prevention, and treatment of late effects. To develop a health services research agenda to optimize care models, we conducted qualitative research with LTF providers examining existing models, and successes and challenges in maintaining survivors' connections to care across their transition to adulthood...
August 3, 2016: Journal of Adolescent and Young Adult Oncology
Antoinette Anazodo, Jennifer Levine, Leonard S Sender
No abstract text is available yet for this article.
September 2016: Journal of Adolescent and Young Adult Oncology
Nicole Shirazee, Angela Ives, Joanne Collins, Marianne Phillips, David Preen
PURPOSE: Support services provision and clinical trial enrollment were examined for a cohort of adolescent and young adults (AYAs) diagnosed with having cancer and treated at adult hospitals in Western Australia (WA). METHODS: The sample was 383 AYAs aged 15-24 years diagnosed from 2000 to 2004, with follow-up until 2007. Sociodemographic, clinical trial participation, and health service data were obtained from Statewide administrative health data collections and patient medical records at hospitals in WA...
September 2016: Journal of Adolescent and Young Adult Oncology
Nina P Bobowski, Laurence H Baker
The Children's Cancer Survivorship Study reports more chronic illnesses in sarcoma survivors than other pediatric cancers. Chemotherapy and radiation put survivors at risk for developing chronic illnesses, including heart disease, diabetes, hypertension, and kidney failure. Sarcoma survivors may have a reduced life expectancy and signs of heart disease in their 30s and 40s. Since these medical problems occur much later in the general population, they often go undetected or misdiagnosed in sarcoma survivors, creating delays in intervention and treatment...
September 2016: Journal of Adolescent and Young Adult Oncology
Zahra Sabeti Rad, Britt Friberg, Emir Henic, Lars Rylander, Olof Ståhl, Bengt Källén, Göran Lingman
PURPOSE: Survival after cancer has increased, and the question of risks in later pregnancies has become important. A previous malignancy may affect pregnancy outcome. METHODS: Comparison of women with malignant disease before pregnancy with all other women giving birth during 1994-2011. Data were obtained by linkage between Swedish national health registers. Subfertility, evaluated as time to pregnancy, and in vitro fertilization (IVF) before the relevant delivery were studied...
September 2016: Journal of Adolescent and Young Adult Oncology
Tami D John, Leonard S Sender, Daniela A Bota
INTRODUCTION: The development of complex cognitive functions including executive functions occurs during adolescence and early young adulthood. Survivors of cancers diagnosed during adolescence and young adulthood (AYA) may be at specific risk for chemotherapy-associated cognitive impairment; however, little data are available that specifically examine long-term cognitive outcomes in the AYA-onset cancer survivor population. METHODS: A literature search was conducted between January 1991 to December 2015 using a variety of search terms pertaining to the AYA-onset cancer population and cognitive outcomes...
September 2016: Journal of Adolescent and Young Adult Oncology
Maria C Swartz, Karen M Basen-Engquist, Christine Markham, Elizabeth J Lyons, Matthew Cox, Joya Chandra, Joann L Ater, Martha A Askins, Michael E Scheurer, Philip J Lupo, Rachel Hill, Jeffrey Murray, Wenyaw Chan, Paul R Swank
PURPOSE: Adolescent and young adult (AYA)-aged central nervous system (CNS) tumor survivors are an understudied population that is at risk of developing adverse health outcomes, such as obesity. Long-term follow-up guidelines recommend monitoring those at risk of obesity, thus motivating the need for an eating behavior questionnaire. An abbreviated online version of the Three-Factor Eating Questionnaire (TFEQ-R18v2) has been developed, but its applicability to this population is not yet known...
September 2016: Journal of Adolescent and Young Adult Oncology
Mehmet Ali Narin, Alper Karalok, Derman Basaran, Osman Turkmen, Taner Turan, Gokhan Tulunay
PURPOSE: Cervical rhabdomyosarcoma (RMS) is an extremely rare disease, and there is no precise criteria related to its treatment. Our aim was to describe the clinical and pathological features of cervical RMS. METHODS: Clinicopathological data of cases with cervical RMS were retrieved from the computerized database of Etlik Zubeyde Hanim Women's Health and Research Hospital. Five patients with the diagnosis of cervical RMS who underwent surgical treatment and had adjuvant chemotherapy between 2003 and 2015 were included in the study...
September 2016: Journal of Adolescent and Young Adult Oncology
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