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Journal of Adolescent and Young Adult Oncology

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https://www.readbyqxmd.com/read/28795857/unmet-needs-of-adult-survivors-of-childhood-cancers-associations-with-developmental-stage-at-diagnosis-cognitive-impairment-and-time-from-diagnosis
#1
Joanne L Park, Yvonne Brandelli, K Brooke Russell, Kathleen Reynolds, Yong Li, Dean Ruether, Janine Giese-Davis
PURPOSE: Adult survivors of childhood cancers (ASCCs) are a unique and growing population. Because these individuals were diagnosed in childhood, their developmental stage at diagnosis may influence medical sequelae and perception of their cancer diagnosis and potentially result in long-term complications and challenges. Our aim was to determine how developmental stage, time since diagnosis, and cognitive impairment relate to Canadian ASCC distress and unmet needs. METHODS: Canadian ASCCs aged 19-77 years (N = 115) diagnosed between ages 0 and 5 (n = 25), 6 and 12 (n = 22), or 13 and 18 (n = 68) completed demographic, neurocognitive self-report, depression, and anxiety and unmet needs questionnaires...
August 10, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28783480/cognitive-and-occupational-function-in-survivors-of-adolescent-cancer
#2
Bethany D Nugent, Catherine M Bender, Susan M Sereika, Jean M Tersak, Margaret Rosenzweig
PURPOSE: Adolescents with cancer have unique developmental considerations. These include brain development, particularly in the frontal lobe, and a focus on completing education and entering the workforce. Cancer and treatment at this stage may prove to uniquely affect survivors' experience of cognitive and occupational function. METHODS: An exploratory, cross-sectional, descriptive comparative study was employed to describe cognitive and occupational function in adult survivors of adolescent cancer (diagnosed between the ages of 15 and 21 years) and explore differences in age- and gender-matched controls...
August 7, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28783412/am-i-a-6-or-a-10-mate-value-among-young-adult-survivors-of-childhood-cancer-and-healthy-peers
#3
Vicky Lehmann, Marrit A Tuinman, Madelaine C Keim, Mariët Hagedoorn, Cynthia A Gerhardt
PURPOSE: This study focused on self-perceived mate value of young adult survivors of childhood cancer relative to healthy peers. Qualitative studies indicate potential problems surrounding romantic relationships among survivors, but systematic studies are missing. METHODS: One-hundred forty-nine childhood cancer survivors and 149 matched controls completed online questionnaires about their mate value, social comparison strategies (i.e., upward/downward identifying/contrasting strategies), and marital status...
August 7, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28777007/sink-or-collaborate-how-the-immersive-model-has-helped-address-typical-adolescent-and-young-adult-barriers-at-a-single-institution-and-kept-the-adolescent-and-young-adult-program-afloat
#4
Damon R Reed, Benjamin Oshrine, Christie Pratt, Olivia Fridgen, Cathy Elstner, Leila Wilson, Hatem Soliman, Marie C Lee, Howard L McLeod, Bijal Shah, Kristine A Donovan, Smitha Pabbathi, Mary Turney, Odion Binitie, Christine Healy, Michael Nieder, Peter H Shaw, Andrew Galligan, G Douglas Letson, Marilyn Stern, Gwendolyn P Quinn, Simon Davies
No abstract text is available yet for this article.
August 4, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28767296/advance-care-planning-discussions-with-adolescent-and-young-adult-cancer-patients-admitted-to-a-community-palliative-care-service-a-retrospective-case-note-audit
#5
Sophie Fletcher, Rachel Hughes, Sarah Pickstock, Kirsten Auret
PURPOSE: Adolescents and young adults (AYA) with cancer are a cohort requiring specialized healthcare models to address unique cognitive and physical challenges. Advance care planning (ACP) discussions likely warrant age-appropriate adaptation, yet, there is little Australian research data available to inform best practice for this group. The goal of this work is to inform future models of ACP discussions for AYA. METHODS: Retrospective medical record audit of AYA patients and an adult comparison group, diagnosed with a malignancy and referred to a community hospice service, in Western Australia, in the period between January 1, 2012 and December 1, 2015...
August 2, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28759303/fertility-preservation-in-young-female-cancer-patients-development-and-pilot-testing-of-an-online-decision-aid
#6
Verena Ehrbar, Corinne Urech, Christoph Rochlitz, Rosanna Zanetti Dällenbach, Rebecca Moffat, Ruth Stiller, Monika Fäh, Michael von Wolff, Frank Nawroth, Astrid Dangel, Ariane Germeyer, Sebastian Findeklee, Sibil Tschudin
PURPOSE: Impairment of fertility is a common sequela of successful cancer treatment. Therefore, fertility preservation (FP) should be discussed with all young cancer patients. Decisions about FP are challenging. Patients wish more specific support and the first results concerning the helpfulness of decision aids (DA) were promising. Aside from describing the process of development and the content of an online DA in German, the objective of this study was to pilot test users' satisfaction with the DA and its effect on knowledge about FP and decisional conflict (DC)...
July 31, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28759301/a-rare-case-struma-ovarii-in-a-14-year-old-girl
#7
Elif Iltar, Isin Ureyen, Tayfun Toptas, Melike Savas, Sema Çekiç, Aysel Uysal
Ovarian tumors presented with ovarian mass in childhood and adolescence, these are uncommon but an important part of gynecological cases. Struma ovarii is one of the rare cystic benign ovarian tumors that is observed predominantly in women who are between the ages of 40 and 60 years old. It is extremely rare in adolescents. Herein, we present a 14-year-old adolescent girl with struma ovarii who presented to the emergency room with abdominal pain.
July 31, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28737997/adolescent-and-young-adult-cancer-survivors-experiences-of-the-healthcare-system-a-qualitative-study
#8
Elizabeth A May, Brittany C McGill, Eden G Robertson, Antoinette Anazodo, Claire E Wakefield, Ursula M Sansom-Daly
PURPOSE: To qualitatively examine the experiences of diagnosis and treatment, and attitudes toward ongoing healthcare of adolescent and young adult (AYA) survivors of AYA cancer, to determine barriers to healthcare engagement in the early survivorship period. METHODS: Forty-two participants aged between 15 and 25 years were recruited between February 2013 and October 2015 as part of a larger Australia-wide study. This study analyzed data collected through a semistructured telephone interview...
July 24, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28731789/age-and-cancer-treatment-are-related-to-receiving-treatment-summaries-and-survivorship-care-plans-in-female-young-adult-cancer-survivors
#9
Ksenya Shliakhtsitsava, Sally A D Romero, Brian W Whitcomb, Jessica R Gorman, Samantha Roberts, H Irene Su
The study determined factors associated with patient-reported receipt of survivorship care plans and/or treatment summaries (SCP/TS). Two hundred forty female young adult cancer survivors ages 18-44 completed a web-based survey that included self-report on receiving SCP/TS. Mean age was 32.8 (standard deviation 5.8) years; 20% were diagnosed with cancer at age <21. Only 47% reported receipt of SCP/TS. Age <21 at diagnosis (odds ratio [OR] 2.0, 95% confidence interval [CI] 1.0-3.9), chemotherapy (OR 2...
July 21, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28723263/incidence-trends-of-cervical-cancer-in-adolescents-and-young-adults-brazilian-population-based-data
#10
Lucian da Silva Viana, Nathalie Vieira Balmant, Neimar de Paula Silva, Marceli de Oliveira Santos, Luiz Claudio Santos Thuler, Rejane de Souza Reis, Beatriz de Camargo
PURPOSE: High incidence rates for cervical cancer in adolescents and young adults (AYAs: 15-29 years) make this the most common carcinoma in Brazil. Our aim was to analyze the incidence trends for cervical cancer (CC) and in situ neoplasia (IsN) among this age group. METHODS: Incidence data were extracted from 21 Brazilian population-based cancer registries (PBCRs). Tumors with behavior code/3 (malignant) were classified as CC. Tumors with behavior code/2 were classified as IsN...
July 19, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28714766/cancer-related-fatigue-in-adolescents-and-young-adults-after-cancer-treatment-persistent-and-poorly-managed
#11
Anna Spathis, Helen Hatcher, Sara Booth, Faith Gibson, Paddy Stone, Laura Abbas, Matt Barclay, James Brimicombe, Pia Thiemann, Martin G McCabe, Rachel Campsey, Louise Hooker, Wendy Moss, Jane Robson, Stephen Barclay
Cancer-related fatigue is the most prevalent and distressing symptom experienced by adolescents and young adults (AYAs). An electronic survey was undertaken to ascertain current fatigue management and perceptions of its effectiveness. Eighty-five percent of responders (68/80) experienced fatigue, and it was worse more than 1 year after cancer treatment ended, compared to <1 year (p = 0.007). Forty-one percent received no fatigue management. Although advice to exercise was the most frequent intervention, the greatest impact of fatigue was on the ability to exercise and most did not find exercise advice helpful...
July 17, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28686476/oncology-physicians-perspectives-on-practices-and-barriers-to-fertility-preservation-and-the-feasibility-of-a-prospective-study-of-pregnancy-after-breast-cancer
#12
Shoshana M Rosenberg, Shari Gelber, Richard D Gelber, Ethan Krop, Larissa A Korde, Olivia Pagani, Ann H Partridge
PURPOSE: POSITIVE (Pregnancy Outcome and Safety of Interrupting Therapy for women with endocrine responsIVE breast cancer) is a prospective clinical trial assessing safety and pregnancy outcomes in premenopausal hormone receptor-positive breast cancer survivors (age ≤42) who interrupt endocrine therapy (ET) to attempt pregnancy. We sought to assess interest in this study and perspectives on fertility preservation (FP) among United States medical oncologists who had previously enrolled women at their institutions on select premenopausal endocrine studies...
July 7, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28678005/management-of-febrile-neutropenias-in-adolescents-and-young-adults-a-cost-minimization-analysis-between-adult-versus-pediatric-units
#13
Mathilde Penel-Page, Perrine Marec-Bérard, Magali Morelle, Amandine Bertrand, Christèle Riberon, Helen Boyle, Lionel Perrier
PURPOSE: Management of adolescents and young adults (AYAs) differs between adult and pediatric units, especially regarding febrile neutropenia (FN). In our previous study, we found that AYAs treated in adult units were significantly less hospitalized for FN than in pediatric units, without difference in morbimortality. The objective of this work was to assess the economic impact of these practices. METHODS: This study retrospectively collected data from the medical records of AYAs treated at the Comprehensive Cancer Center Léon Bérard, Lyon, France, in the Euro-E-W-I-N-G99 protocol between September 1, 2000 and May 31, 2013...
July 5, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28665754/challenges-in-the-treatment-of-sarcomas-of-adolescents-and-young-adults
#14
Seth J Rotz, Rajaram Nagarajan, Joel I Sorger, Joseph G Pressey
Adolescent and young adult (AYA) sarcoma patients do not fare as well as their younger counterparts. A variety of factors theorized to underlie such disparate outcomes have been identified including distinct tumor and host biology. Compared to younger patients, AYA patients often develop genetically distinct tumors and are more likely to suffer characteristic therapy-related toxicities. Compounding factors faced by AYA patients include education, finances, employment, and obstacles to treatment adherence. Lack of clinical trial participation among AYA patients has slowed the establishment of optimized age-specific treatment protocols and hindered the collection of biospecimens for scientific investigation...
June 30, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28657411/recommendations-of-the-fertility-preservation-working-group-in-oncological-hematological-and-other-patients-treated-with-gonadotoxic-therapies-oncofertility-grof-of-the-polish-society-of-oncological-gynecology
#15
Robert Jach, Wojciech Pabian, Robert Spaczyński, Jacek Szamatowicz, Tomasz Zbroch, Paweł Knapp, Roman Smolarczyk, Wojciech Kolawa, Lubomir Bodnar, Rafał Kurzawa, Daria Zawirska, Maciej Krzakowski, Stanisław Radowicki, Jacek Fijuth, Mirosław Wielgoś, Piotr Wysocki, Katarzyna Kozioł, Kamil Zalewski, Krzysztof Warzocha, Kazimierz Hałaburda, Michał Rdwan, Paweł Radwan, Marcin Jacek Jabłoński, Zbigniew Kojs, Sławomir Wołczyński, Leszek Pawelczyk, Tomasz Kluz
No abstract text is available yet for this article.
June 28, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28657408/shared-care-of-childhood-cancer-survivors-a-telemedicine-feasibility-study
#16
Aimee G Costello, Bethany D Nugent, Noelle Conover, Amanda Moore, Kathleen Dempsey, Jean M Tersak
PURPOSE: With an increasing number of childhood cancer survivors (CCSs), determining the best model of survivorship transition care is becoming a growing priority. Shared care between pediatric oncology and adult primary care is often necessary, making survivorship a time of transition, but effective standard models are lacking. We sought to provide a more integrated approach to transition using telemedicine. METHODS: Recruited primary care provider/CCS dyads were instructed to log-in to a password-protected virtual meeting room using telemedicine equipment at the time or a regularly scheduled office visit...
June 28, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28628351/sleep-in-adolescents-and-young-adults-in-the-year-after-cancer-treatment
#17
Lauren C Daniel, Richa Aggarwal, Lisa A Schwartz
PURPOSE: Adolescents and young adults (AYA) with cancer are a vulnerable group facing more intense treatments, higher symptom burden, and poorer treatment outcomes relative to younger children. Sleep disruption is common during cancer treatment and sleep problems persist into adulthood for some survivors of AYA cancer. The developmental period of adolescence/emerging adulthood confers greater biological and behavioral risk for insufficient sleep relative to older or younger ages. Thus, understanding AYA sleep disturbances shortly after completing treatment can inform interventions to manage cancer-related symptoms and improve quality of life...
June 19, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28605222/supporting-adolescents-and-young-adults-with-cancer-oncology-provider-perceptions-of-adolescent-and-young-adult-unmet-needs
#18
Anne C Kirchhoff, Brynn Fowler, Echo L Warner, Samantha T Pannier, Douglas Fair, Holly Spraker-Perlman, Jeff Yancey, Brad Bott, Carolyn Reynolds, R Lor Randall
Few studies have assessed oncology providers' perceptions of adolescent and young adult (AYA) cancer patients' unmet needs. In this statewide survey (N = 91), we found that most providers recognize the financial, insurance, and late effects needs of their AYA cancer patients. However, employment, education, behavioral health, sexuality, and social and family issues were endorsed by less than half of providers as areas where AYAs needed assistance. Few providers felt that their AYA cancer patients had unmet needs for these same concerns...
June 12, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28595023/human-papillomavirus-vaccine-is-crucial-for-adolescent-and-young-adult-cancer-survivors
#19
Brooke Cherven, Wendy Landier
No abstract text is available yet for this article.
June 8, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28594579/-from-snail-mode-to-rocket-ship-mode-adolescents-and-young-adults-experiences-of-returning-to-work-and-school-after-hematopoietic-cell-transplantation
#20
Eden R Brauer, Huibrie C Pieters, Patricia A Ganz, Wendy Landier, Carol Pavlish, MarySue V Heilemann
PURPOSE: Resuming normal activities, such as work and school, is an important dimension of psychosocial recovery in cancer survivorship. Minimal data exist regarding adolescents or young adults' experiences of returning to school or work after cancer. The purpose of this study was to explore the processes of resuming work and school among adolescents and young adults after hematopoietic cell transplantation (HCT). METHODS: In-depth interviews were conducted with 18 adolescents and young adults, who were 15-29 years when they underwent HCT and 6-60 months post-transplant at study enrollment...
June 8, 2017: Journal of Adolescent and Young Adult Oncology
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