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Journal of Adolescent and Young Adult Oncology

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https://www.readbyqxmd.com/read/29211576/development-of-a-web-based-psychosocial-intervention-for-adolescent-and-young-adult-survivors-of-pediatric-brain-tumor
#1
Stacey P Raj, Megan E Narad, Ralph Salloum, Amber Platt, Aimee Thompson, Katherine T Baum, Shari L Wade
PURPOSE: To develop A Survivor's Journey, a web-based psychosocial intervention for adolescent and young adult (AYA) survivors of pediatric brain tumors (PBTs). METHODS: Stages of development included focus groups with five AYA survivors (ages 16-23 years) and six parents to identify needs and challenges, as well as surveys and interviews with clinical care providers at a survivorship clinic. RESULTS: Concerns reported by AYA survivors, parents, and providers were similar to those reported in the literature, including fatigue, memory deficits, poor mood, health concerns, and challenging peer relationships...
December 6, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29206555/a-connectedness-primer-for-healthcare-providers-adolescents-young-adult-cancer-survivors-perspectives-on-behaviors-that-foster-connectedness-during-cancer-treatment-and-the-resulting-positive-outcomes
#2
Celeste R Phillips, Joan E Haase
PURPOSE: Many healthcare providers (HCPs) struggle to communicate and connect with adolescents and young adults (AYA) with cancer that hinders their ability to adequately assess and address the psychosocial needs of AYA. The purpose of this article is to describe the key behaviors of HCPs AYA perceive as essential to fostering connectedness with them and the outcomes AYA experience from such connectedness. METHODS: The sample for this empirical phenomenological study was nine AYA cancer survivors (aged 20-23 years) who were diagnosed in adolescence...
December 5, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29190179/patient-reported-health-related-quality-of-life-assessment-at-the-point-of-care-with-adolescents-and-young-adults-with-cancer
#3
Joseph R Henderson, Elizabeth Kiernan, Jennifer L McNeer, Angie Mae Rodday, Katherine Spencer, Tara O Henderson, Susan K Parsons
PURPOSE: Advances in health-related quality-of-life (HRQL) measurement enable point-of-care assessments. We incorporated the Patient-Reported Outcomes Measurement Information System (PROMIS®) Global Health Scale in routine outpatient evaluations of adolescent and young adult (AYA) oncology patients and survivors at two geographically distinct U.S. institutions. METHODS: AYAs (18-39 years old) completed the 10-question PROMIS Global. Summary subscale scores for Global Physical Health (GPH) and Global Mental Health (GMH) were produced using established scoring algorithms (standardized mean = 50, standard deviation = 10)...
November 30, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29131705/early-education-and-employment-outcomes-after-cancer-in-adolescents-and-young-adults
#4
Silja Kosola, Maria C McCarthy, Robyn McNeil, Lisa M Orme, Sarah Drew, Susan M Sawyer
PURPOSE: This study describes the early educational and vocational outcomes of Australian adolescents and young adults (AYAs) after cancer diagnosis and examines factors associated with these outcomes. METHODS: Within this cross-sectional national Australian study, 196 AYAs aged 15-25 years at cancer diagnosis and within 6-24 months of diagnosis were recruited from 18 sites. Participants completed a survey that included questions about school and work outcomes, support received regarding necessary changes to education and vocation, and validated measures of anxiety, depression, and post-traumatic stress...
November 13, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29125906/narrative-review-of-the-educational-vocational-and-financial-needs-of-adolescents-and-young-adults-with-cancer-recommendations-for-support-and-research
#5
Joanna E Fardell, Claire E Wakefield, Pandora Patterson, Alistair Lum, Richard J Cohn, Simon A Pini, Ursula M Sansom Daly
Adolescents and young adults (AYAs) with cancer have unique needs around education and vocation during and after treatment. This narrative review series aims at documenting the unique needs of AYAs from the current literature and at providing recommendations to inform an update of the Australian National Service Delivery Framework for AYAs with Cancer. AYAs with cancer may experience impairments to cognitive, physical, and psychological functioning and health, which can adversely affect their academic grades, peer relationships, and likelihood of entering the workforce...
November 10, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29106316/applying-social-network-analysis-to-identify-the-social-support-needs-of-adolescent-and-young-adult-cancer-patients-and-survivors
#6
Kolina Koltai, Casey Walsh, Barbara Jones, Brenda L Berkelaar
PURPOSE: This article examines how theoretical and clinical applications of social network analysis (SNA) can inform opportunities for innovation and advancement of social support programming for adolescent and young adult (AYA) cancer patients and survivors. APPLICATIONS: SNA can help address potential barriers and challenges to initiating and sustaining AYA peer support by helping to identify the diverse psychosocial needs among individuals in the AYA age range; find strategic ways to support and connect AYAs at different phases of the cancer trajectory with resources and services; and increase awareness of psychosocial resources and referrals from healthcare providers...
November 6, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29099664/acquisition-of-social-support-and-linguistic-characteristics-of-social-media-posts-about-young-adult-cancer
#7
Echo L Warner, Lee Ellington, Anne C Kirchhoff, Kristin G Cloyes
PURPOSE: Social media (SM) is a burgeoning source of social support for young adults (YAs). We explored the language used to communicate about YA cancer on Instagram and for indicators of social support (i.e., number of likes and comments). METHODS: Instagram posts using #youngadultcancer were randomly selected (N = 50). Text and hashtags were collected, and posts were coded for gender (female and male), treatment status (active treatment and survivorship), type of user (individual and organization), and caregiver status (yes and no)...
November 3, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29099645/re-the-effect-of-atorvastatin-on-vascular-function-and-structure-in-young-adult-survivors-of-childhood-cancer-a-randomized-placebo-controlled-pilot-clinical-trial-by-marlatt-et-al-j-adolesc-young-adult-oncol-2017-epub-ahead-of-print-doi-10-1089-jayao-2017-0075
#8
https://www.readbyqxmd.com/read/29099640/religious-spiritual-struggle-in-young-adult-hematopoietic-cell-transplant-survivors
#9
Stephen D W King, George Fitchett, Patricia E Murphy, Geila Rajaee, Kenneth I Pargament, Elizabeth Trice Loggers, David A Harrison, Rebecca H Johnson
PURPOSE: This study describes the prevalence of religious and/or spiritual (R/S) struggle in long-term young adult (YA) survivors following hematopoietic cell transplantation (HCT) as well as existential concerns (EC), social support, and demographic, medical, and emotional correlates of R/S struggle. METHODS: Data were collected as part of an annual survey of survivors of HCT aged 18-39 years at survey completion; age at HCT was 1-39 years. Study measures included measures of R/S struggle (defined as any non-zero response on the negative religious coping subscale from Brief RCOPE), quality of life (QOL), and depression...
November 3, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29099634/pilot-study-evaluating-physical-activity-and-fatigue-in-adolescent-oncology-patients-and-survivors-during-summer-camp
#10
Janice S Withycombe, Min Joo Baek, Dorothy H Jordan, Nimmy J Thomas, Sally Hale
Summer camps for adolescent cancer patients and survivors are popular. Little is known about the impact of camp attendance on physical activity (PA) and fatigue. This pilot study was conducted in 24 adolescents, 13-17 years of age, to measure objective PA (steps/day) along with self-reported PA and fatigue during camp. Findings demonstrate adolescents are willing to complete a PA research study during camp. On average, campers demonstrated 18,198 steps/day. Self-reported PA significantly increased with no significant change in self-reported fatigue...
November 3, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29058500/recall-of-fertility-discussion-by-adolescent-female-cancer-patients-a-survey-based-pilot-study
#11
Sara Zarnegar, Yasmin Gosiengfiao, Alfred Rademaker, Robert Casey, Karen H Albritton
Many adolescent female cancer patients will survive into their reproductive years. Pediatric oncologists are advised to discuss oncofertility during treatment planning. In this pilot study, 19 adolescent females completed a retrospective survey assessing recall of a fertility discussion, satisfaction with fertility knowledge, and multiple factors that may influence recall, including parental involvement in decision-making. Eleven respondents (58%) remembered a discussion about infertility risk and 9 (47%) about fertility preservation...
October 23, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29022839/the-audacity-of-engagement-hearing-directly-from-young-adults-with-cancer-on-their-attitudes-and-perceptions-of-cancer-survivorship-and-cancer-survivorship-research
#12
Catherine Benedict, David Victorson, Brad Love, Dave Fuehrer, Allison Lazard, Adam J Saffer, Thea Linscott, Matthew Zachary
BACKGROUND: Young adult (YA) cancer survivors have been historically under-represented in cancer survivorship research, which has contributed to more disparate health outcomes compared with young and older cancer survivors. Using qualitative methods, this study explored YAs' perceptions of cancer survivorship and identified YA-specific barriers and preferences for participation in cancer survivorship research. METHODS: Individual interviews and focus groups were conducted with YA cancer survivors (N = 19) attending a patient-focused oncology conference...
October 12, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29022770/exploring-adolescents-cancer-journey-through-photovoice-a-narrative-synthesis
#13
Mark Niepage, Georgi Georgievski, Wendy Shama, Sonia Lucchetta
PURPOSE: Photovoice is a novel and promising intervention for working with youth in healthcare settings. Despite this, few studies have examined the efficacy of photovoice as a clinical tool for working with teenagers who are on their cancer journey. To better understand the needs of teenagers with cancer and the ways that photovoice can be utilized to address these needs, a systematic review of the literature was undertaken. METHODS: Keyword searches of six databases were completed, including MEDLINE, EMBASE, PsycINFO, Social Work Abstracts, Sociological Abstracts, and Health and Psychosocial Instruments...
October 12, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29022752/nutritional-characteristics-of-the-diets-of-child-and-adolescent-cancer-survivors
#14
Julia Ferrari Carneiro Teixeira, Priscila Dos Santos Maia-Lemos, Luciana Pellegrini Pisani
PURPOSE: Diseases associated with prior treatment, such as obesity, have been described in cancer survivors. Recent studies have shown that current estimates of overweight do not differ from that in the general population, suggesting the influence of environmental factors, such as dietary intake. In this context, there is increasing interest in the examination of health behaviors that may modify and reduce the risk of overweight and obesity. This study aimed to evaluate the characteristics of dietary intake among child cancer survivors living in a developing country...
October 12, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28953420/-learning-education-awareness-prevention-l-e-a-p-young-adult-cancer-an-education-and-outreach-program
#15
Anthony N Audino, Nicholas D Yeager
Delayed diagnosis due to lack of education may contribute to lack of improvement in adolescent and young adult (AYA) cancer survival. This program sought to educate trainees and AYAs in the community. The "Learning, Education, Awareness, Prevention (L.E.A.P) Young Adult Cancer" outreach program was developed to teach the most common AYA cancers, signs and symptoms associated with them, and prevention. A total of 150 trainees were educated and presented to 1000 high school students in Columbus. Pre- and post-testing demonstrated increases in AYA cancer knowledge of both groups...
September 27, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28934554/improvements-in-clinical-practice-for-fertility-preservation-among-young-cancer-patients-results-from-bundled-interventions
#16
Natalie K Bradford, Roderick Walker, Roslyn Henney, Po Inglis, Raymond J Chan
AIMS: The consequences of cancer and treatment on fertility can be a continuing source of distress for adolescents and young adults. The study aims were to assess the effects of bundled interventions on clinical practice concerning fertility in young people aged 14-25 years with cancer. METHODS: Bundled interventions, including development of quality indicators, resources, and targeted education, were introduced during 2015 across five cancer centers. Data before interventions (2012-2014) were compared with data prospectively collected during 2015-2016...
September 21, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28933979/geographic-access-to-cancer-care-and-mortality-among-adolescents
#17
Eric Tai, Elaine Hallisey, Lucy A Peipins, Barry Flanagan, Natasha Buchanan Lunsford, Grete Wilt, Shannon Graham
PURPOSE: Adolescents with cancer have had less improvement in survival than other populations in the United States. This may be due, in part, to adolescents not receiving treatment at Children's Oncology Group (COG) institutions, which have been shown to increase survival for some cancers. The objective of this ecologic study was to examine geographic distance to COG institutions and adolescent cancer mortality. METHODS: We calculated cancer mortality among adolescents and sociodemographic and healthcare access factors in four geographic zones at selected distances surrounding COG facilities: Zone A (area within 10 miles of any COG institution), Zones B and C (concentric rings with distances from a COG institution of >10-25 miles and >25-50 miles, respectively), and Zone D (area outside of 50 miles)...
September 21, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28910174/family-and-peer-group-substance-abuse-as-a-risk-factor-for-opioid-misuse-behaviors-for-a-young-adult-with-cancer-related-pain-a-case-study
#18
Kelly R Peck, Jennifer L Harman, Doralina L Anghelescu
The purpose of this report is to illustrate the importance of assessing for family, peer, and personal substance abuse risk factors in the case of a young adult with cancer-related pain and behaviors potentially indicative of opioid misuse (OM). A thorough clinical interview and an OM screening measure revealed important information about the patient's family and social environment. Based on this information, the treatment team acted quickly to prevent additional aberrant opioid-associated behaviors (AOBs)...
September 14, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28885875/post-traumatic-growth-and-resilience-in-adolescent-and-young-adult-cancer-patients-an-overview
#19
Suzanne R Greup, Suzanne E J Kaal, Rosemarie Jansen, Eveliene Manten-Horst, Melissa S Y Thong, Winette T A van der Graaf, Judith B Prins, Olga Husson
The aim of this study was to provide an overview of the literature on post-traumatic growth (PTG) and resilience among adolescent and young adult (AYA) cancer patients. A literature search in Embase, PsychInfo, PubMed, Web of Science, Cochrane Library, and Cinahl was carried out. Thirteen articles met the pre-defined inclusion criteria. Qualitative interview studies showed that AYA cancer patients report PTG and resilience: PTG is described by AYA cancer patients in terms of benefit finding, including changing view of life and feeling stronger and more confident, whereas resilience is described as a balance of several factors, including stress and coping, goals, optimism, finding meaning, connection, and belonging...
September 8, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28837384/adverse-health-outcomes-and-associations-with-self-reported-general-health-in-childhood-lymphoma-survivors
#20
Inga M R Johannsdottir, Hanne Hamre, Sophie D Fosså, Jon Håvard Loge, Liv Drolsum, May Brit Lund, Lars Nordsletten, Cecilie Kiserud
BACKGROUND: The increased incidence of physical and psychosocial adverse health outcomes (AHOs) in childhood lymphoma survivors (CLSs) is well known, but these AHOs' association with self-reported general health is rarely described. AIM: We explored this association among long-term CLSs. METHODS: In 124 CLSs (Hodgkin: 81; non-Hodgkin: 43; median age: 33 years), physical AHOs were graded based on slightly modified common toxicity criteria for adverse effects (CTCAE)-4 recommendations (Grade 0-3)...
September 2017: Journal of Adolescent and Young Adult Oncology
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