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Journal of Adolescent and Young Adult Oncology

Alix G Sleight, Cynthia N Ramirez, Kimberly A Miller, Joel E Milam
Cancer-related knowledge among childhood cancer survivors (CCSs) has been underexplored. In particular, little is known about factors impacting knowledge of the need for lifelong follow-up care in CCSs. This secondary analysis of data examined acculturation, cancer-related knowledge, demographics, and clinical factors in 193 ethnically and culturally diverse CCSs (age at study 19.9 ± 2.8 years). Cancer-related knowledge gaps were found across all participants. Univariate and multivariable logistic regression analyses indicated that Hispanic CCSs with greater Hispanic orientation were significantly more likely to be aware of a need for lifelong follow-up care...
December 13, 2018: Journal of Adolescent and Young Adult Oncology
Aliza A Panjwani, Amanda Mía Marín-Chollom, Ian Z Pervil, Joel Erblich, Lisa R Rubin, Michael W Schuster, Tracey A Revenson
PURPOSE: Young adulthood is a period of building autonomy, relationships, and careers. Experiencing cancer as a young adult (YA) is an "off-time" event in the normative adult life cycle and may interrupt age-specific goals. The majority of prior research on illness uncertainty centers on medical concerns about recurrence or mortality. The current study identifies how YA survivors of hematologic cancers, an understudied group, experience illness uncertainties related to the developmental tasks of young adulthood...
November 29, 2018: Journal of Adolescent and Young Adult Oncology
Colleen A McLaughlin, Kristi Gordon, Jennifer Hoag, Lori Ranney, Nancy B Terwilliger, Tonya Ureda, Cheryl Rodgers
The purpose of this systematic review is to (1) synthesize evidence facilitators and barriers affecting adolescent willingness to communicate symptoms to health care providers (HCPs) and (2) create practice recommendations. The PICOT (Population, Intervention, Comparison, Outcome, Time) question guiding the review was, among adolescents with cancer, what factors affect their willingness to communicate symptoms to HCPs? Three databases, PubMed, CINAHL, and PsychINFO, were searched using keywords from the PICOT question...
November 29, 2018: Journal of Adolescent and Young Adult Oncology
Sylvie Aubin, Zeev Rosberger, Nada Hafez, Michael R Noory, Samara Perez, Sonja Lehmann, Gerald Batist, Petr Kavan
PURPOSE: Young adult oncology has gained momentum in recognizing the unique medical and psychosocial needs of the population of adolescents and young adults with cancer (AYAC). However, many of their psychosocial needs remain unmet and we are yet to identify how clinical or research programs can be tailored to meet these needs. The aim of the study was to evaluate the impact of a cognitive-behavioral intervention adapted to meet the psychosocial needs and issues of AYAC and delivered either through Skype or face-to-face sessions against a control condition...
November 28, 2018: Journal of Adolescent and Young Adult Oncology
Brigitte Gerstl, Elizabeth Sullivan, Serena Chong, Debbie Chia, Handan Wand, Antoinette Anazodo
Improvements in cancer therapy for childhood and adolescent and young adult (AYA) survivors have increased in excess of 80% among pediatric patients and in excess of 85% among AYA cancer patients. Our research group explored the late effects consequences of cancer treatment on pregnancy and birth outcomes subsequent to a childhood (0-14 years) or AYA (15-25 years) diagnosis of cancer in female cancer survivors. Embase and Medline databases were searched. There were 17 review (n = 10 matched and n = 7 unmatched) studies that met the inclusion criteria...
November 16, 2018: Journal of Adolescent and Young Adult Oncology
Anna E Coughtrey, Roz Shafran, Merina T Su, Hannah Allcott-Watson, Deborah Christie, Rachael Hough
PURPOSE: Young people with cancer are at increased risk of depression, yet evidence-based psychological interventions that are tailored to the specific needs of young people with cancer are scarce, and depression in this group may be particularly challenging to recognize and treat. The aims of this study were to (1) explore the views of health professionals in recognizing and treating low mood in young people with cancer and (2) identify the key components of an effective online treatment package for depression in this population...
November 10, 2018: Journal of Adolescent and Young Adult Oncology
Timiya S Nolan, Nataliya Ivankova, Tiffany L Carson, Amelia Spaulding, Susan Davies, Comfort Enah, Karen Meneses
PURPOSE: African American (AA) women ages 20-44 develop breast cancer at higher rates compared with Caucasian women. These young survivors (<45 years) also have disparate quality of life (QOL). Little is known about survivorship information needs of young AA survivors. The purpose of this study was to explore young AA survivors' perceptions of an existing QOL intervention for breast cancer survivors, identifying information needs to address using a targeted intervention. METHODS: Two semistructured interviews were conducted with each of 15 young AA survivors who had completed breast cancer treatment...
November 8, 2018: Journal of Adolescent and Young Adult Oncology
Abbey Elsbernd, Kirsten Arntz Boisen, Maiken Hjerming, Carsten Utoft Niemann, Gitte Petersen, Helle Pappot, Lisa Lyngsie Hjalgrim
In 2015, a support initiative for adolescents and young adults with cancer, Kræftværket, was created at Rigshospitalet, Copenhagen University Hospital in Denmark. The primary objective of Kræftværket is to provide youth-friendly support, care, and treatment practices. As Kræftværket provides services to both pediatric and adult departments, a network between patients who would otherwise not interact has been created. The initiative is managed by a Youth Coordinator, and specifically trained health professional Youth Ambassadors...
November 3, 2018: Journal of Adolescent and Young Adult Oncology
Uday Yanamandra, Kamal Kant Sahu, Parathan Karunakaran, Deeksha Katoch, Nidhi Jain, Alka Khadwal, Gaurav Prakash, Deepesh Lad, Shano Naseem, Neelam Varma, Subhash Varma, Pankaj Malhotra
The data on Adolescent and Young Adult Chronic Myeloid Leukemia (AYA-CML) from the Indian subcontinent are scarce. We studied characteristics of AYA-CML through a retrospective analysis of 1950 CML patients registered to a tertiary care hospital in Northern India. AYA-CML represented 22.1% of all CML patients, with cumulative overall survival (OS) of 84%, and 1 and 8 years OS of 94.2% and 74.2%, respectively. Of all cases, 8.91% patients had advanced disease at the time of diagnosis, and 13.95% had myelofibrosis in the diagnostic marrow, 79...
November 1, 2018: Journal of Adolescent and Young Adult Oncology
Jennifer M Snaman, Lindsay Blazin, Rachel L Holder, Joanne Wolfe, Justin N Baker
Compared with younger children and older adults, adolescent and young adult (AYA) patients with cancer receive more intensive end-of-life (EOL) care. We hypothesize that enhanced understanding of AYA preferences, increased engagement of these patients in decision-making, and improved communication of their preferences with family members and the medical team will lead to increased provision of goal-concordant care and decreased intensity of EOL care. In this study, we describe the development of a novel tool that quantifies the relative importance of numerous factors considered by AYA patients with cancer, their parents, and health care providers when choosing between treatment options...
October 25, 2018: Journal of Adolescent and Young Adult Oncology
Jeanne M Erickson, Suzanne Ameringer, Lauri Linder, Catherine Fiona Macpherson, R K Elswick, Jeneile M Luebke, Kristin Stegenga
PURPOSE: Adolescents and young adults (AYAs) with cancer need self-management strategies to cope with multiple symptoms. Self-efficacy, self-regulation, and negotiated collaboration are key theoretical components of the self-management process and have not been fully explored with AYAs with cancer. This study examined the effects of a heuristic symptom assessment tool on AYAs' self-efficacy for symptom management, AYAs' self-regulation abilities related to their symptoms, and communication with their providers about symptoms...
October 24, 2018: Journal of Adolescent and Young Adult Oncology
Kelly R Peck, Jennifer L Harman, Doralina L Anghelescu
Pain and emotional distress are relevant risk factors as clinicians assess for aberrant opioid-associated behavior and provide adequate and responsible pain relief to patients who engage in behaviors that may be interpreted as drug seeking in nature. The present case illustrates how undertreated pain and treatment-related anxiety affected the opioid use of a young adult with cancer. Because these risk factors were identified during the initial consult, the treatment team was able to implement a multimodal and multidisciplinary treatment approach that provided the patient with better analgesia and coping skills for anxiety...
October 18, 2018: Journal of Adolescent and Young Adult Oncology
Lauren Nicholls, Jana Montez, Luz Pelayo-Katsanis, Emmanuel Katsanis
Hepatic late effects are not commonly reported in survivors of childhood leukemia. Four young male patients with acute lymphoblastic leukemia (ALL) were diagnosed with bleeding esophageal varices (EVs) during or shortly after completion of maintenance chemotherapy. EVs were identified from 0 to 60 months after completion of leukemia therapy. All four patients were men between 20 to 24 years old. Hematemesis was the most common presenting symptom. Associated features included splenomegaly, cytopenias, azole therapy, alcohol use, and hepatic iron overload...
October 18, 2018: Journal of Adolescent and Young Adult Oncology
Ke Ju, Megan Kopp, Yuqing Wang, Gehui Yuan, Weiwei Zheng, Lauren M Ataman, Teresa K Woodruff, Qionghua Chen, Shuo Xiao
PURPOSE: Oncofertility is a newly developed medical field dedicated to preserving adolescent and young adult-aged cancer patients' fertility. For female cancer patients who desire to have children, fertility preservation has become an important concern before the cancer therapy. This study for the first time aimed to investigate attitude and knowledge regarding female fertility preservation among reproductive health professionals in China. METHODS: An online questionnaire assessing participants' demographics, experience, attitude, and basic knowledge regarding oncofertility was designed and distributed to reproductive health professionals in Fujian, one of the major regions for cancer and reproductive care in southeast China...
October 12, 2018: Journal of Adolescent and Young Adult Oncology
Casey Walsh, Jennifer Currin-McCulloch, Pamela Simon, Brad Zebrack, Barbara Jones
PURPOSE: This study was designed to identify and explore the social support needs and preferences of young adult cancer patients during the transition process from active treatment to survivorship care. METHODS: Semi-structured qualitative interviews were conducted with study participants (n = 13, ages 17-25 at the time of cancer diagnosis) within ∼6 months of completion of active treatment and again 3 months later. Participants completed a sociodemographic questionnaire at the first study visit...
October 12, 2018: Journal of Adolescent and Young Adult Oncology
Lauri A Linder, Yelena P Wu, Catherine Fiona Macpherson, Brynn Fowler, Andrew Wilson, Yeonjung Jo, Se-Hee Jung, Bridget Parsons, Rebecca Johnson
PURPOSE: This study evaluated oral medication adherence among adolescents and young adults (AYAs) with cancer during a trial of a smartphone-based medication reminder application (app). METHODS: Twenty-three AYAs receiving at least one prescribed, scheduled oral medication related to their outpatient cancer treatment participated in this 12-week single-group interrupted time series longitudinal design study. Baseline oral medication adherence was monitored using electronic monitoring caps for 4 weeks...
October 10, 2018: Journal of Adolescent and Young Adult Oncology
A Fuchsia Howard, Jordan Tran, Analuisa Aparicio, Andrea Lo, Avril Ullett, Michael McKenzie, Amirrtha Srikanthan, Karen Goddard
PURPOSE: To assess the documentation of late-effects (LE) risks and screening recommendations in medical records of adolescent and young adult central nervous system (CNS), soft tissue, and bone tumor survivors. METHODS: The medical records of all patients diagnosed with a CNS neoplasm, an arteriovenous malformation, a soft tissue, and bone tumor, at ages 15-39 years, treated between 1985 and 2010 with radiation therapy in the province of British Columbia, Canada, surviving >5 years, alive, and discharged to the community were assessed...
October 9, 2018: Journal of Adolescent and Young Adult Oncology
Simon Pini, Peter Gardner, Siobhan Hugh-Jones
BACKGROUND: Being diagnosed with cancer during the teenage years can be significant given that young people are at a key developmental, educational, and future-planning stage. Little is known about young people's attitude toward and engagement with school postdiagnosis, nor how this changes over time. We adopted a novel qualitative approach to examine accounts over time of young people recently diagnosed with cancer. METHODS: Twelve teenagers (13-16 years), recently diagnosed with cancer, participated in photo-elicitation interviews at three time points (∼2, 6, and 9 months postdiagnosis), generating 30 interviews in total...
October 6, 2018: Journal of Adolescent and Young Adult Oncology
Sobenna A George, Rebecca Williamson Lewis, David A Schirmer, Karen E Effinger, Jessica B Spencer, Ann C Mertens, Lillian R Meacham
PURPOSE: Current guidelines recommend screening at-risk childhood cancer survivors for ovarian dysfunction using follicle-stimulating hormone (FSH). However, FSH identifies diminished ovarian reserve (DOR), a component of ovarian dysfunction, in the later stages when fertility preservation is less likely to succeed. This analysis evaluates the utility of anti-Mullerian hormone (AMH) for the assessment of DOR in adolescent and young adult (AYA)-aged survivors of childhood cancer. METHODS: A retrospective chart review of 13- to 21-year-old female survivors who received gonadotoxic therapy and were ≥2 years off therapy was performed...
October 3, 2018: Journal of Adolescent and Young Adult Oncology
Amanda C Ferrante, Cynthia A Gerhardt, Nicholas D Yeager, Joseph R Rausch, Vicky Lehmann, Sarah O'Brien, Gwendolyn P Quinn, Leena Nahata
PURPOSE: As many as two-thirds of male childhood cancer survivors are at risk for fertility impairment as a consequence of treatment. Despite this, survivorship guidelines lack concrete recommendations as to when fertility status conversations should happen between patients and providers and what should be discussed. Thus, conversations may be inconsistent, or do not occur at all in survivorship. To inform recommendations for fertility-related conversations in survivorship, this pilot study aimed to better understand background (e...
September 27, 2018: Journal of Adolescent and Young Adult Oncology
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