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Journal of Adolescent and Young Adult Oncology

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https://www.readbyqxmd.com/read/29924681/identifying-and-understanding-the-gaps-in-care-experienced-by-adolescent-and-young-adult-cancer-patients-at-the-university-of-iowa-hospitals-and-clinics
#1
Erin M Mobley, Kristin J Foster, William W Terry
PURPOSE: In an effort to counteract the differences in improvement in survival rates of adolescents and young adults (AYA), compared to other age groups with cancer, the University of Iowa Hospitals and Clinics established an AYA cancer program. This study was conducted to gather feedback from AYAs in an effort to generate actionable data for program development. METHODS: The target population included patients aged 13-31 treated for malignancy in one of the following disease sites: central nervous system, leukemia, lymphoma, neuroendocrine, sarcoma, and thyroid...
June 20, 2018: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29924668/effect-of-fitbit-and-ipad-wearable-technology-in-health-related-quality-of-life-in-adolescent-and-young-adult-cancer-patients
#2
Ilana R Yurkiewicz, Pamela Simon, Michaela Liedtke, Gary Dahl, Tamara Dunn
PURPOSE: Adolescent and young adult (AYA) patients with cancer face significant challenges with regard to fatigue, reduced physical activity, and social isolation, which may negatively impact quality of life. This study investigated whether the use of digital wearable technology (Fitbits, along with synced iPads) can affect health-related quality of life (HRQOL) in AYA aged patients with cancer. MATERIALS AND METHODS: This was a prospective cohort study that offered Fitbits and iPads to all AYA patients aged 15 to 29 at an academic medical center at the time of cancer diagnosis...
June 20, 2018: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29924664/attendance-to-follow-up-care-in-survivors-of-adolescent-and-young-adult-cancer-application-of-the-theory-of-planned-behavior
#3
Katharina Roser, Julia Baenziger, Luzius Mader, Salome Christen, Silvia Dehler, Gisela Michel
PURPOSE: The aim was to study follow-up care attendance in adolescent and young adult (AYA) cancer survivors to investigate: (1) correlates of the intention to attend follow-up care and (2) whether the intention is associated with the actual attendance, applying the theory of planned behavior (TPB). METHODS: We conducted a questionnaire survey in AYA cancer survivors diagnosed 1990-2005 at age 16-25 years, registered in the Cancer Registry Zurich and Zug, Switzerland, who had survived at least 5 years...
June 20, 2018: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29924663/emergency-department-visits-by-adolescent-and-young-adult-cancer-patients-compared-with-pediatric-cancer-patients-in-the-united-states
#4
Sapna Kaul, Heidi Russell, John A Livingston, Anne C Kirchhoff, Daniel Jupiter
PURPOSE: Limited information exists on emergency department (ED) visits for adolescent and young adult (AYA) patients with cancer. We examined the clinical reasons for ED visits, and outcomes, for AYAs with cancer compared to pediatric cancer patients. METHODS: The 2013 Nationwide Emergency Department Sample data were used to identify 53,274 AYA (ages 15-39) and 6952 pediatric (ages 0-14) cancer ED visits. We evaluated patient (i.e., demographic and diagnosis) and hospital characteristics, and the ED event outcome (admitted to the same hospital or treated/released)...
June 20, 2018: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29851372/fecundity-and-quality-of-life-of-women-treated-for-solid-childhood-tumors-between-1948-and-1992-in-france
#5
Sandrine Thouvenin-Doulet, Claire Berger, Léonie Casagranda, Odile Oberlin, Perrine Marec-Berard, Hélène Pacquement, Catherine Guibout, Claire Freycon, Tan Dat N'Guyen, Pierre-Yves Bondiau, Anne Laprie, Delphine Berchery, Chiraz El-Fayech, Béatrice Trombert-Paviot, Florent de Vathaire
PURPOSE: To describe fecundity in female survivors of childhood cancer and consider the correlation with quality of life (QOL). MATERIALS AND METHODS: Of 1744 women treated for childhood cancer before the age of 15 years at one of eight French cancer treatment centers between 1948 and 1992, 1187 who were alive in 2005 were sent a self-administered questionnaire, including questions about health status, QOL (MOS SF-36), and fecundity. A standardized fecundity ratio (SFR) was calculated (SFR: observed/expected number of children) for each individual based on a national reference...
May 31, 2018: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29851370/talking-about-cancer-among-adolescent-and-young-adult-cancer-patients-and-survivors-a-systematic-review
#6
Madeleine Marie Hortense Janin, Sarah Jane Ellis, Claire Elizabeth Wakefield, Joanna Elizabeth Fardell
Communication plays an essential role in social relationships. Yet it is unclear how young cancer patients and survivors communicate with peers, and whether this contributes to increased rates of social difficulties. We aimed to analyze how childhood cancer patients and survivors communicate about their cancer with family and peers. We systematically searched Medline, Embase and PsycINFO for peer-reviewed studies on cancer-related communication among patients and survivors (any cancer, <25 years at diagnosis)...
May 31, 2018: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29781754/taking-a-snapshot-evaluation-of-a-conversation-aid-for-identifying-psychosocial-needs-in-young-adults-with-cancer
#7
Hanneke Poort, Phoebe M Souza, Paige K Malinowski, Katelyn M MacDougall, Constance M Barysauskas, Teresa Lau Greenberg, James A Tulsky, Karen M Fasciano
PURPOSE: Young adults (YAs) aged 18-35 years with cancer often experience unmet psychosocial needs. We aimed to evaluate a conversation aid ("Snapshot") that offered a framework for discussing YA-specific psychosocial concerns between patients and clinicians. METHODS: We developed and implemented Snapshot between 2014 and 2016 as part of a quality improvement initiative at Dana-Farber Cancer Institute. We extracted pre- and postimplementation data from chart documentation of psychosocial concerns...
May 21, 2018: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29768076/depressive-symptoms-and-quality-of-life-among-adolescent-and-young-adult-cancer-survivors-impact-of-gender-and-latino-culture
#8
Anamara Ritt-Olson, Kimberly Miller, Lourdes Baezconde-Garbanati, David Freyer, Cynthia Ramirez, Ann Hamilton, Joel Milam
Ethnic and sex variations in depressive symptoms and quality of life (QOL) among adolescent and young adult (AYA) childhood cancer survivors were explored among a sample of Latino and non-Latino childhood cancer survivors (CCSs) (n = 194) treated at hospitals in Los Angeles County. Latinos scored higher in depressive symptoms and lower in QOL when compared with non-Latinos. Males had higher depressive symptoms. Among Latinos, higher levels of acculturation were associated with depression and a poorer QOL, and we found that more acculturated Latino males were more likely to have meaningful levels of depression than less acculturated males or females...
May 16, 2018: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29746187/queensland-youth-cancer-service-a-partnership-model-to-facilitate-access-to-quality-care-for-young-people-diagnosed-with-cancer
#9
Natalie K Bradford, Roslyn Henney, Rick Walker, Euan Walpole, Glen Kennedy, Wayne Nicholls, Ross Pinkerton
Global recognition of the need to improve outcomes for adolescents and young adults (AYA) with cancer has led to the development of specific oncology programs and services. In Australia, Youth Cancer Services (YCS) are now established across the country. While each service has been shaped by nationally agreed principles, program development has been influenced by local policy and geographic differences. Queensland is a vast state with a widely dispersed population; coordination of cancer services for young people across this landscape presents unique challenges...
May 10, 2018: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29746178/head-and-neck-squamous-cell-carcinoma-in-adolescents-and-young-adults-survivorship-patterns-and-disparities
#10
Sai D Challapalli, Matthew C Simpson, Eric Adjei Boakye, Jay S Pannu, Dary J Costa, Nosayaba Osazuwa-Peters
PURPOSE: Adolescent and young adult (AYA) head and neck cancer (HNC) patients require longer term follow-ups as they age; yet, little is known about factors associated with survivorship in this population. We aimed to describe nonclinical factors associated with HNC survivorship among AYAs. METHODS: In this retrospective cohort study, the Surveillance, Epidemiology and End Results 18 database from 2007 to 2014 was queried. Eligible cases were 15-39-year-old primary HNC patients with known cause of death (n = 1777)...
May 10, 2018: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29742008/sex-body-image-and-relationships-a-brightlight-workshop-on-information-and-support-needs-of-adolescents-and-young-adults
#11
Ana Martins, Rachel M Taylor, Brian Lobel, Beth McCann, Louise Soanes, Jeremy S Whelan, Lorna A Fern
PURPOSE: Discovering sexuality and romantic relationships are important development milestones in adolescence and young adulthood. A cancer diagnosis imposes obstacles for young people such as changes in their sexual function due to the disease and/or side effects of treatment, body image concerns, and interpersonal relationship difficulties. This can cause psychological distress and can impact on quality of life. We aimed to explore sexual health information and support needs of adolescents and young adults with cancer...
May 9, 2018: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29733237/a-clinical-decision-support-system-to-assist-pediatric-oncofertility-a-short-report
#12
Meredith Hand, Matthew A Kemertzis, Michelle Peate, Lynn Gillam, Maria McCarthy, Lisa Orme, Yves Heloury, Michael Sullivan, Margaret Zacharin, Yasmin Jayasinghe
PURPOSE: Fertility preservation discussions with pediatric and adolescent cancer patients can be difficult for clinicians. This study describes the acceptability of a fertility clinician decision support system (CDSS). METHODS: A cross-sectional study of clinicians at The Royal Children's Hospital, Melbourne. Participants were trained on CDSS purpose, contents, and use. A survey captured the perceived benefits and weaknesses of the CDSS. RESULTS: Thirty-nine clinicians participated...
May 7, 2018: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29723084/patient-navigation-preferences-for-adolescent-and-young-adult-cancer-services-by-distance-to-treatment-location
#13
Echo L Warner, Brynn Fowler, Samantha T Pannier, Sara K Salmon, Douglas Fair, Holly Spraker-Perlman, Jeffrey Yancey, R Lor Randall, Anne C Kirchhoff
PURPOSE: To describe how distance to treatment location influences patient navigation preferences for adolescent and young adult (AYA) cancer patients and survivors. METHODS: This study is part of a statewide needs assessment to inform the development of an AYA cancer patient and survivor navigation program. Participants were recruited from outpatient oncology clinics in Utah. Eligible participants had been diagnosed with cancer between ages 15-39 and had completed at least 1 month of treatment...
May 3, 2018: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29672191/knowledge-and-beliefs-about-oncofertility-and-associations-with-quality-of-life-among-adolescent-and-young-adult-survivors-of-pediatric-cancer
#14
Andrea C Johnson, Darren Mays, Kathryn Rehberg, Aziza Shad, Kenneth P Tercyak
PURPOSE: Adolescent and young adult (AYA) cancer survivors experience fertility and childrearing challenges in adulthood, but there is limited evidence on awareness, beliefs, and concerns about oncofertility in this population, needs for supportive resources, and associations with quality of life (QoL). METHODS: Participants were 69 AYAs aged 12-25 who were diagnosed with cancer at age 18 years or younger and ≥1 year cancer free, recruited from childhood cancer clinical records and support organizations...
April 19, 2018: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29634427/sleep-quality-fatigue-and-quality-of-life-among-teenage-and-young-adult-cancer-survivors
#15
Judith Fortmann, Abigail Fisher, Rachael Hough, Alice Gregory, Gemma Pugh
PURPOSE: Teenage and young adult (TYA) cancer survivors experience a range of health-related problems during and beyond the active treatment period. This study examined associations between fatigue, sleep quality, and health-related quality of life (HRQOL) among TYA survivors. METHODS: Self-reported data on sleep quality (Pittsburgh Sleep Quality Index), fatigue (Functional Assessment of Chronic Illness Therapy Fatigue), and HRQOL (EuroQoL-5) were gathered from United Kingdom TYA survivors between 13 and 24 years of age...
April 10, 2018: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29634391/collaborating-with-adolescents-and-young-adults-with-cancer-as-advisors
#16
Meghan E McGrady, Robin E Norris, Ahna L H Pai
There is a growing interest by both pediatric and medical oncologists to develop adolescent and young adult (AYA)-specific cancer programs. Input from AYA patients is critical to the successful design of these programs and to ensuring that patient needs are met. As traditional in-person advisory groups may not be the most appropriate means for engaging AYAs, this article describes the creation and implementation of a novel, developmentally appropriate, and efficient Young Adult Advisory Program. Reach, uptake, and participant demographic and clinical characteristics are presented alongside lessons learned...
April 10, 2018: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29583076/how-do-adolescents-affected-by-cancer-experience-a-hospital-environment
#17
Kimberly Peeters, Pleuntje Jellema, Margo Annemans, Ann Heylighen
PURPOSE: Adolescence is a transition period involving complex development processes. A life-threatening disease like cancer jeopardizes this development and often exposes adolescents to hospital environments that are unadjusted to them. Despite growing research on how the physical environment affects the well-being of the (child as) patient, adolescents are often overlooked. We investigated how adolescents experience a hospital stay and how the physical environment influences that experience...
March 27, 2018: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29303620/patient-reported-outcomes-in-psychological-treatment-for-an-adolescent-oncology-patient-a-case-report
#18
Nicole M Racine, Lucie Lafay-Cousin, Fiona Schulte
This case study describes the use of patient-reported outcome (PRO) in conjunction with psychosocial treatment for an adolescent oncology patient presenting with comorbid mental health difficulties. A nine-session evidence-based cognitive-behavioral treatment was implemented and PROs were used to document progress. Results demonstrated an overall pattern of increase in health-related quality of life and decrease in mood and anxiety symptoms as treatment progressed, with increases occurring after disease recurrence...
June 2018: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29298112/antineoplastic-agents-and-in-fertility-informing-patients-to-improve-decisions
#19
Cristina Silva, Ana Teresa Almeida-Santos, Cláudia Melo, Ana Cristina Ribeiro Rama
PURPOSE: Infertility is a potential adverse effect of cancer treatment, and future fertility is an important issue for cancer patients. In Portugal, the Centre for Fertility Preservation of CHUC, EPE, conducted a project to develop and disseminate oncofertility information resources. In this study, we report the results of the specific component of this program, which intended to produce information resources that promote patients' awareness of the subject and to support decisions concerning fertility preservation...
June 2018: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29634431/cancer-incidence-in-adolescents-and-young-adults-in-24-selected-populations-of-latin-america
#20
Patrícia Ferreira Nomellini, Maria Paula Curado, Max Moura de Oliveira
OBJECTIVE: Describe incidence rates for the most common cancers in Latin American adolescents and young adults (AYA). METHODS: Incidence data were extracted from the Cancer Incidence in Five Continents series, available online (IARC). Age-standardized incidence rates and trend analysis were calculated. Trends were calculated by joinpoint regression analysis to obtain average annual percentage change values. RESULTS: There were 22,990 invasive incident cancer cases in AYA between 1998 and 2007, obtained from 24 population-based cancer registries...
April 2018: Journal of Adolescent and Young Adult Oncology
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