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Journal of Adolescent and Young Adult Oncology

Doralina L Anghelescu, Andy Guo, Kyle J Morgan, Michael Frett, Hasmukh Prajapati, Robert Gold, Sara M Federico
PURPOSE: The use of celiac plexus block (CPB) for abdominal pain has been extensively reported in adults. However, pediatric literature is limited to three single case reports and a series of three cases. This study evaluated the effectiveness of CPB in children and young adults (aged 8-20 years) with abdominal malignancies. METHODS: Pain outcomes after CPB were evaluated in four children and young adults with cancer. Mean daily pain score (PS, 0-10) and morphine consumption (intravenous morphine equivalent daily [MED], mg/kg/day) before and after CPB were used to assess effectiveness...
August 16, 2018: Journal of Adolescent and Young Adult Oncology
Marlaine Figueroa Gray, Evette J Ludman, Tara Beatty, Abby R Rosenberg, Karen J Wernli
PURPOSE: Previous studies have called for further research to explore adolescent and young adult (AYA) decision-making in the context of advanced cancer to understand the perspectives of this understudied population. We conducted a qualitative study with patients and providers to better understand the decision-making experience of AYA patients with advanced stages of cancer. METHODS: Semistructured qualitative telephone interviews were conducted from April 2016 to October 2016...
August 10, 2018: Journal of Adolescent and Young Adult Oncology
Jaqueline C Avila, J Andrew Livingston, Ana M Rodriguez, Anne C Kirchhoff, Yong-Fang Kuo, Sapna Kaul
PURPOSE: Examine disparities in survival for adolescents and young adults (AYAs) diagnosed with bone and soft tissue sarcomas in Texas compared with national estimates. METHODS: AYAs with sarcomas diagnosed between 1995 and 2012 at ages 15-39 years were identified from the Texas Cancer Registry (TCR) and Surveillance, Epidemiology, and End Results (SEER) program. Patient demographic, treatment, and clinical characteristics were compared between TCR and SEER using chi-squared tests...
August 10, 2018: Journal of Adolescent and Young Adult Oncology
Lesley Smith, Simon Pini, Andrea Ferrari, Daniel Yeomanson, Rachael Hough, Pia Riis Olsen, Leila Gofti-Laroche, Thomas Fleming, Martin Elliott, Richard Feltbower, Gabriella Kertesz, Dan Stark
PURPOSE: The diagnosis of cancer is often prolonged in teenagers and young adults (TYA). There may be lessons in improving this from international comparisons. However, international studies are complex and so we conducted a pilot study to examine the key barriers to large-scale research in this field. METHODS: We provided translated questionnaires covering key aspects of presentation and clinical management within 60 days of a confirmed cancer diagnosis, to patients 13-29 years of age inclusive, to their primary care physicians and to the cancer specialists managing their cancer...
July 23, 2018: Journal of Adolescent and Young Adult Oncology
Ryan H Collins, Erin L McGowan
PURPOSE: To explore sedentary behavior, physical activity (PA), and quality of life (QoL) in young adult cancer survivors (YACS), a population that is underrepresented in the literature. METHODS: YACS 18-44 years of age, recruited through social media and cancer support group websites (e.g., Young Adult Cancer Canada), completed an online survey, which assessed sedentary behavior, PA, and QoL using validated measures (i.e., The SIT-Q, Leisure Score Index [LSI], Short Form-36 Health Survey [SF-36], and Functional Assessment of Cancer Therapy: General [FACT-G])...
July 23, 2018: Journal of Adolescent and Young Adult Oncology
Holly Spraker-Perlman, Rochelle R Smits-Seeman, Hongyan Li, Anne C Kirchhoff
Cancer therapy is selected by individual oncology providers. For adolescent and young adults (AYAs), the type of provider, adult or pediatric, and medical facility type, non- or academic, influence regimens offered. We evaluated the proportions of 15-29-year-old cancer patients in Utah seen at pediatric and adult academic centers between 1994 and 2013 and examined factors that influence treatment location. Of all AYA patients, 31.6% were treated in academic centers and those with sarcomas, central nervous system tumors, and leukemias were more likely to be treated at academic centers...
July 23, 2018: Journal of Adolescent and Young Adult Oncology
Rowan Forbes Shepherd, Alexandra Lewis, Louise A Keogh, Allison Werner-Lin, Martin B Delatycki, Laura E Forrest
PURPOSE: Li-Fraumeni syndrome (LFS), a multiorgan cancer predisposition caused by germline TP53 mutations, confers significant cancer risks for young people (15-39 years). Yet evidence of how individuals experience this condition and the psychosocial implications are lacking. Therefore, this systematic review assessed the psychosocial implications of living with, or at risk of, an autosomal dominant condition as a young person, to draw evidence that may be analogous for young people with LFS...
July 13, 2018: Journal of Adolescent and Young Adult Oncology
Michael C G Stevens, Paul Beynon, Alison Cameron, Jamie Cargill, Jennifer Cheshire, Sue Dolby
PURPOSE: A systematic attempt to identify and address unmet needs among patients in a large regional teenagers and young adults (TYA) cancer service in the United Kingdom, including perspectives obtained from patients themselves, their families/supporters, and professionals. METHODS: Questionnaires, focus groups, and interviews were undertaken with the following: patients (diagnosed ≥16 years, and aged 16-24 years at the time of study)-participation was 42 for questionnaire, 7 for focus group, and 6 for interview; family members/others in patients' lives ("networkers") (participation: 28, 0, and 4); and professionals (participation: 54, 0, and 97)...
July 10, 2018: Journal of Adolescent and Young Adult Oncology
Laura Mitchell, Seline Tam, Jeremy Lewin, Amirrtha Srikanthan, Carol Heck, David Hodgson, Branavan Vakeesan, Hao-Wen Sim, Abha Gupta
PURPOSE: We aimed to evaluate the effectiveness of an adult-based adolescent and young adult (AYA) cancer program by assessing patient satisfaction and whether programming offers added incremental benefit beyond primary oncology providers (POP) to address their needs. METHODS: A modified validated survey was used to ask two questions: (1) rate on a 10-point Likert scale their level of satisfaction with the information provided to them by their POP and (2) did the AYA consult provide added value on top of their POP...
July 9, 2018: Journal of Adolescent and Young Adult Oncology
Abbey Elsbernd, Kaspar Jessen Pedersen, Kirsten Arntz Boisen, Julie Midtgaard, Hanne Bækgaard Larsen
PURPOSE: As a consequence of cancer treatment, many adolescents and young adults (AYA) patients are required to take leave or face setbacks from their education. While most AYA cancer survivors and survivors of childhood cancer are capable of successfully returning to the educational system, unsuccessful returns place AYA at an increased risk of social isolation, stigmatization, and financial burden. The perspective of AYA cancer survivors who have returned to education is valuable to understand the challenges faced and resources available throughout this transition...
July 9, 2018: Journal of Adolescent and Young Adult Oncology
Erin M Mobley, Kristin J Foster, William W Terry
PURPOSE: In an effort to counteract the differences in improvement in survival rates of adolescents and young adults (AYA), compared to other age groups with cancer, the University of Iowa Hospitals and Clinics established an AYA cancer program. This study was conducted to gather feedback from AYAs in an effort to generate actionable data for program development. METHODS: The target population included patients aged 13-31 treated for malignancy in one of the following disease sites: central nervous system, leukemia, lymphoma, neuroendocrine, sarcoma, and thyroid...
June 20, 2018: Journal of Adolescent and Young Adult Oncology
Ilana R Yurkiewicz, Pamela Simon, Michaela Liedtke, Gary Dahl, Tamara Dunn
PURPOSE: Adolescent and young adult (AYA) patients with cancer face significant challenges with regard to fatigue, reduced physical activity, and social isolation, which may negatively impact quality of life. This study investigated whether the use of digital wearable technology (Fitbits, along with synced iPads) can affect health-related quality of life (HRQOL) in AYA aged patients with cancer. MATERIALS AND METHODS: This was a prospective cohort study that offered Fitbits and iPads to all AYA patients aged 15 to 29 at an academic medical center at the time of cancer diagnosis...
June 20, 2018: Journal of Adolescent and Young Adult Oncology
Katharina Roser, Julia Baenziger, Luzius Mader, Salome Christen, Silvia Dehler, Gisela Michel
PURPOSE: The aim was to study follow-up care attendance in adolescent and young adult (AYA) cancer survivors to investigate: (1) correlates of the intention to attend follow-up care and (2) whether the intention is associated with the actual attendance, applying the theory of planned behavior (TPB). METHODS: We conducted a questionnaire survey in AYA cancer survivors diagnosed 1990-2005 at age 16-25 years, registered in the Cancer Registry Zurich and Zug, Switzerland, who had survived at least 5 years...
June 20, 2018: Journal of Adolescent and Young Adult Oncology
Sapna Kaul, Heidi Russell, John A Livingston, Anne C Kirchhoff, Daniel Jupiter
PURPOSE: Limited information exists on emergency department (ED) visits for adolescent and young adult (AYA) patients with cancer. We examined the clinical reasons for ED visits, and outcomes, for AYAs with cancer compared to pediatric cancer patients. METHODS: The 2013 Nationwide Emergency Department Sample data were used to identify 53,274 AYA (ages 15-39) and 6952 pediatric (ages 0-14) cancer ED visits. We evaluated patient (i.e., demographic and diagnosis) and hospital characteristics, and the ED event outcome (admitted to the same hospital or treated/released)...
June 20, 2018: Journal of Adolescent and Young Adult Oncology
Sandrine Thouvenin-Doulet, Claire Berger, Léonie Casagranda, Odile Oberlin, Perrine Marec-Berard, Hélène Pacquement, Catherine Guibout, Claire Freycon, Tan Dat N'Guyen, Pierre-Yves Bondiau, Anne Laprie, Delphine Berchery, Chiraz El-Fayech, Béatrice Trombert-Paviot, Florent de Vathaire
PURPOSE: To describe fecundity in female survivors of childhood cancer and consider the correlation with quality of life (QOL). MATERIALS AND METHODS: Of 1744 women treated for childhood cancer before the age of 15 years at one of eight French cancer treatment centers between 1948 and 1992, 1187 who were alive in 2005 were sent a self-administered questionnaire, including questions about health status, QOL (MOS SF-36), and fecundity. A standardized fecundity ratio (SFR) was calculated (SFR: observed/expected number of children) for each individual based on a national reference...
May 31, 2018: Journal of Adolescent and Young Adult Oncology
Madeleine Marie Hortense Janin, Sarah Jane Ellis, Claire Elizabeth Wakefield, Joanna Elizabeth Fardell
Communication plays an essential role in social relationships. Yet it is unclear how young cancer patients and survivors communicate with peers, and whether this contributes to increased rates of social difficulties. We aimed to analyze how childhood cancer patients and survivors communicate about their cancer with family and peers. We systematically searched Medline, Embase and PsycINFO for peer-reviewed studies on cancer-related communication among patients and survivors (any cancer, <25 years at diagnosis)...
May 31, 2018: Journal of Adolescent and Young Adult Oncology
Hanneke Poort, Phoebe M Souza, Paige K Malinowski, Katelyn M MacDougall, Constance M Barysauskas, Teresa Lau Greenberg, James A Tulsky, Karen M Fasciano
PURPOSE: Young adults (YAs) aged 18-35 years with cancer often experience unmet psychosocial needs. We aimed to evaluate a conversation aid ("Snapshot") that offered a framework for discussing YA-specific psychosocial concerns between patients and clinicians. METHODS: We developed and implemented Snapshot between 2014 and 2016 as part of a quality improvement initiative at Dana-Farber Cancer Institute. We extracted pre- and postimplementation data from chart documentation of psychosocial concerns...
May 21, 2018: Journal of Adolescent and Young Adult Oncology
Tomoe Koizumi, Kazuko Nara, Tomoko Hashimoto, Satoru Takamizawa, Kouhei Sugimoto, Nao Suzuki, Yoshiharu Morimoto
This report examines how negative emotional expressions (NEE) influence the consequences of shared decision making (SDM) in oncofertility treatment among 32 young female cancer patients and 19 family members. Using a cross-sectional observational study, results showed that NEE influence the outcome consequences of SDM related to patients' decisions about desired treatment(s) and that the absence of negative emotional reactions to information from doctors was related to willingness to receive the desired treatment...
August 2018: Journal of Adolescent and Young Adult Oncology
Anamara Ritt-Olson, Kimberly Miller, Lourdes Baezconde-Garbanati, David Freyer, Cynthia Ramirez, Ann Hamilton, Joel Milam
Ethnic and sex variations in depressive symptoms and quality of life (QOL) among adolescent and young adult (AYA) childhood cancer survivors were explored among a sample of Latino and non-Latino childhood cancer survivors (CCSs) (n = 194) treated at hospitals in Los Angeles County. Latinos scored higher in depressive symptoms and lower in QOL when compared with non-Latinos. Males had higher depressive symptoms. Among Latinos, higher levels of acculturation were associated with depression and a poorer QOL, and we found that more acculturated Latino males were more likely to have meaningful levels of depression than less acculturated males or females...
June 2018: Journal of Adolescent and Young Adult Oncology
Natalie K Bradford, Roslyn Henney, Rick Walker, Euan Walpole, Glen Kennedy, Wayne Nicholls, Ross Pinkerton
Global recognition of the need to improve outcomes for adolescents and young adults (AYA) with cancer has led to the development of specific oncology programs and services. In Australia, Youth Cancer Services (YCS) are now established across the country. While each service has been shaped by nationally agreed principles, program development has been influenced by local policy and geographic differences. Queensland is a vast state with a widely dispersed population; coordination of cancer services for young people across this landscape presents unique challenges...
June 2018: Journal of Adolescent and Young Adult Oncology
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