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Journal of Adolescent and Young Adult Oncology

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https://www.readbyqxmd.com/read/29022839/the-audacity-of-engagement-hearing-directly-from-young-adults-with-cancer-on-their-attitudes-and-perceptions-of-cancer-survivorship-and-cancer-survivorship-research
#1
Catherine Benedict, David Victorson, Brad Love, Dave Fuehrer, Allison Lazard, Adam J Saffer, Thea Linscott, Matthew Zachary
BACKGROUND: Young adult (YA) cancer survivors have been historically under-represented in cancer survivorship research, which has contributed to more disparate health outcomes compared with young and older cancer survivors. Using qualitative methods, this study explored YAs' perceptions of cancer survivorship and identified YA-specific barriers and preferences for participation in cancer survivorship research. METHODS: Individual interviews and focus groups were conducted with YA cancer survivors (N = 19) attending a patient-focused oncology conference...
October 12, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29022770/exploring-adolescents-cancer-journey-through-photovoice-a-narrative-synthesis
#2
Mark Niepage, Georgi Georgievski, Wendy Shama, Sonia Lucchetta
PURPOSE: Photovoice is a novel and promising intervention for working with youth in healthcare settings. Despite this, few studies have examined the efficacy of photovoice as a clinical tool for working with teenagers who are on their cancer journey. To better understand the needs of teenagers with cancer and the ways that photovoice can be utilized to address these needs, a systematic review of the literature was undertaken. METHODS: Keyword searches of six databases were completed, including MEDLINE, EMBASE, PsycINFO, Social Work Abstracts, Sociological Abstracts, and Health and Psychosocial Instruments...
October 12, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29022752/nutritional-characteristics-of-the-diets-of-child-and-adolescent-cancer-survivors
#3
Julia Ferrari Carneiro Teixeira, Priscila Dos Santos Maia-Lemos, Luciana Pellegrini Pisani
PURPOSE: Diseases associated with prior treatment, such as obesity, have been described in cancer survivors. Recent studies have shown that current estimates of overweight do not differ from that in the general population, suggesting the influence of environmental factors, such as dietary intake. In this context, there is increasing interest in the examination of health behaviors that may modify and reduce the risk of overweight and obesity. This study aimed to evaluate the characteristics of dietary intake among child cancer survivors living in a developing country...
October 12, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28953420/-learning-education-awareness-prevention-l-e-a-p-young-adult-cancer-an-education-and-outreach-program
#4
Anthony N Audino, Nicholas D Yeager
Delayed diagnosis due to lack of education may contribute to lack of improvement in adolescent and young adult (AYA) cancer survival. This program sought to educate trainees and AYAs in the community. The "Learning, Education, Awareness, Prevention (L.E.A.P) Young Adult Cancer" outreach program was developed to teach the most common AYA cancers, signs and symptoms associated with them, and prevention. A total of 150 trainees were educated and presented to 1000 high school students in Columbus. Pre- and post-testing demonstrated increases in AYA cancer knowledge of both groups...
September 27, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28934554/improvements-in-clinical-practice-for-fertility-preservation-among-young-cancer-patients-results-from-bundled-interventions
#5
Natalie K Bradford, Roderick Walker, Roslyn Henney, Po Inglis, Raymond J Chan
AIMS: The consequences of cancer and treatment on fertility can be a continuing source of distress for adolescents and young adults. The study aims were to assess the effects of bundled interventions on clinical practice concerning fertility in young people aged 14-25 years with cancer. METHODS: Bundled interventions, including development of quality indicators, resources, and targeted education, were introduced during 2015 across five cancer centers. Data before interventions (2012-2014) were compared with data prospectively collected during 2015-2016...
September 21, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28933979/geographic-access-to-cancer-care-and-mortality-among-adolescents
#6
Eric Tai, Elaine Hallisey, Lucy A Peipins, Barry Flanagan, Natasha Buchanan Lunsford, Grete Wilt, Shannon Graham
PURPOSE: Adolescents with cancer have had less improvement in survival than other populations in the United States. This may be due, in part, to adolescents not receiving treatment at Children's Oncology Group (COG) institutions, which have been shown to increase survival for some cancers. The objective of this ecologic study was to examine geographic distance to COG institutions and adolescent cancer mortality. METHODS: We calculated cancer mortality among adolescents and sociodemographic and healthcare access factors in four geographic zones at selected distances surrounding COG facilities: Zone A (area within 10 miles of any COG institution), Zones B and C (concentric rings with distances from a COG institution of >10-25 miles and >25-50 miles, respectively), and Zone D (area outside of 50 miles)...
September 21, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28910174/family-and-peer-group-substance-abuse-as-a-risk-factor-for-opioid-misuse-behaviors-for-a-young-adult-with-cancer-related-pain-a-case-study
#7
Kelly R Peck, Jennifer L Harman, Doralina L Anghelescu
The purpose of this report is to illustrate the importance of assessing for family, peer, and personal substance abuse risk factors in the case of a young adult with cancer-related pain and behaviors potentially indicative of opioid misuse (OM). A thorough clinical interview and an OM screening measure revealed important information about the patient's family and social environment. Based on this information, the treatment team acted quickly to prevent additional aberrant opioid-associated behaviors (AOBs)...
September 14, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28885875/post-traumatic-growth-and-resilience-in-adolescent-and-young-adult-cancer-patients-an-overview
#8
Suzanne R Greup, Suzanne E J Kaal, Rosemarie Jansen, Eveliene Manten-Horst, Melissa S Y Thong, Winette T A van der Graaf, Judith B Prins, Olga Husson
The aim of this study was to provide an overview of the literature on post-traumatic growth (PTG) and resilience among adolescent and young adult (AYA) cancer patients. A literature search in Embase, PsychInfo, PubMed, Web of Science, Cochrane Library, and Cinahl was carried out. Thirteen articles met the pre-defined inclusion criteria. Qualitative interview studies showed that AYA cancer patients report PTG and resilience: PTG is described by AYA cancer patients in terms of benefit finding, including changing view of life and feeling stronger and more confident, whereas resilience is described as a balance of several factors, including stress and coping, goals, optimism, finding meaning, connection, and belonging...
September 8, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28853979/the-effect-of-atorvastatin-on-vascular-function-and-structure-in-young-adult-survivors-of-childhood-cancer-a-randomized-placebo-controlled-pilot-clinical-trial
#9
Kara L Marlatt, Julia Steinberger, Kyle D Rudser, Donald R Dengel, Karim T Sadak, Jill L Lee, Anne H Blaes, Daniel A Duprez, Joanna L Perkins, Julie A Ross, Aaron S Kelly
PURPOSE: Many adult survivors of childhood cancer are at high-risk of developing cardiovascular disease. Cancer therapy may cause damage to the vascular endothelium, thereby initiating atherosclerosis. Atorvastatin has been shown to improve endothelial function independent of reducing cholesterol, as well as reduce/slow arterial stiffness and thickening, yet has never been studied in childhood cancer survivors (CCS). METHODS: Twenty-seven young adult (age 26.8 ± 6...
August 30, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28846463/determination-of-follicular-localization-in-human-ovarian-cortex-for-vitrification
#10
Takayuki Haino, Wataru Tarumi, Kazuhiro Kawamura, Tohru Harada, Kouhei Sugimoto, Aikou Okamoto, Masahiro Ikegami, Nao Suzuki
PURPOSE: To determine the optimal follicle localization for ovarian vitrification in adolescent and young adult (AYA)-aged (between 15 and 39 years of age) patients with cancer or primary ovarian insufficiency (POI). METHODS: In total, ovaries from 24 women were included in our study. These include women who received ovariectomy for fertility preservation before gonadotoxic treatments for cancer (n = 4), or for the treatment of POI by the in vitro activation method (n = 8), and other women and infants (0-3 years of age) whose ovaries were autopsied (n = 12)...
August 28, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28829925/aya-myeloma-real-world-single-center-experience-over-last-5-years
#11
Uday Yanamandra, Neha Saini, Pooja Chauhan, Tanya Sharma, Alka Khadwal, Gaurav Prakash, Neelam Varma, Deepesh Lad, Subhash Varma, Pankaj Malhotra
INTRODUCTION: Multiple myeloma (MM) is considered as a disease of the old with the reported median age of 60-70 years. The disease occurred a decade earlier in the Indian subcontinent. The literature on MM in adolescents and young adult (AYA) is limited. We studied the disease characteristics and outcomes of the AYA-MM in the real-world setting. PATIENTS AND METHODS: It is a retrospective single-center study conducted at a tertiary care center from North India. Records of all consecutive patients with AYA-MM (15-39 years of age) who were managed from January 1, 2010, to December 30, 2015, were reviewed...
August 22, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28795857/unmet-needs-of-adult-survivors-of-childhood-cancers-associations-with-developmental-stage-at-diagnosis-cognitive-impairment-and-time-from-diagnosis
#12
Joanne L Park, Yvonne Brandelli, K Brooke Russell, Kathleen Reynolds, Yong Li, Dean Ruether, Janine Giese-Davis
PURPOSE: Adult survivors of childhood cancers (ASCCs) are a unique and growing population. Because these individuals were diagnosed in childhood, their developmental stage at diagnosis may influence medical sequelae and perception of their cancer diagnosis and potentially result in long-term complications and challenges. Our aim was to determine how developmental stage, time since diagnosis, and cognitive impairment relate to Canadian ASCC distress and unmet needs. METHODS: Canadian ASCCs aged 19-77 years (N = 115) diagnosed between ages 0 and 5 (n = 25), 6 and 12 (n = 22), or 13 and 18 (n = 68) completed demographic, neurocognitive self-report, depression, and anxiety and unmet needs questionnaires...
August 10, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28783480/cognitive-and-occupational-function-in-survivors-of-adolescent-cancer
#13
Bethany D Nugent, Catherine M Bender, Susan M Sereika, Jean M Tersak, Margaret Rosenzweig
PURPOSE: Adolescents with cancer have unique developmental considerations. These include brain development, particularly in the frontal lobe, and a focus on completing education and entering the workforce. Cancer and treatment at this stage may prove to uniquely affect survivors' experience of cognitive and occupational function. METHODS: An exploratory, cross-sectional, descriptive comparative study was employed to describe cognitive and occupational function in adult survivors of adolescent cancer (diagnosed between the ages of 15 and 21 years) and explore differences in age- and gender-matched controls...
August 7, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28783412/am-i-a-6-or-a-10-mate-value-among-young-adult-survivors-of-childhood-cancer-and-healthy-peers
#14
Vicky Lehmann, Marrit A Tuinman, Madelaine C Keim, Mariët Hagedoorn, Cynthia A Gerhardt
PURPOSE: This study focused on self-perceived mate value of young adult survivors of childhood cancer relative to healthy peers. Qualitative studies indicate potential problems surrounding romantic relationships among survivors, but systematic studies are missing. METHODS: One-hundred forty-nine childhood cancer survivors and 149 matched controls completed online questionnaires about their mate value, social comparison strategies (i.e., upward/downward identifying/contrasting strategies), and marital status...
August 7, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28777007/sink-or-collaborate-how-the-immersive-model-has-helped-address-typical-adolescent-and-young-adult-barriers-at-a-single-institution-and-kept-the-adolescent-and-young-adult-program-afloat
#15
Damon R Reed, Benjamin Oshrine, Christie Pratt, Olivia Fridgen, Cathy Elstner, Leila Wilson, Hatem Soliman, Marie C Lee, Howard L McLeod, Bijal Shah, Kristine A Donovan, Smitha Pabbathi, Mary Turney, Odion Binitie, Christine Healy, Michael Nieder, Peter H Shaw, Andrew Galligan, G Douglas Letson, Marilyn Stern, Gwendolyn P Quinn, Simon Davies
No abstract text is available yet for this article.
August 4, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28767296/advance-care-planning-discussions-with-adolescent-and-young-adult-cancer-patients-admitted-to-a-community-palliative-care-service-a-retrospective-case-note-audit
#16
Sophie Fletcher, Rachel Hughes, Sarah Pickstock, Kirsten Auret
PURPOSE: Adolescents and young adults (AYA) with cancer are a cohort requiring specialized healthcare models to address unique cognitive and physical challenges. Advance care planning (ACP) discussions likely warrant age-appropriate adaptation, yet, there is little Australian research data available to inform best practice for this group. The goal of this work is to inform future models of ACP discussions for AYA. METHODS: Retrospective medical record audit of AYA patients and an adult comparison group, diagnosed with a malignancy and referred to a community hospice service, in Western Australia, in the period between January 1, 2012 and December 1, 2015...
August 2, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28759303/fertility-preservation-in-young-female-cancer-patients-development-and-pilot-testing-of-an-online-decision-aid
#17
Verena Ehrbar, Corinne Urech, Christoph Rochlitz, Rosanna Zanetti Dällenbach, Rebecca Moffat, Ruth Stiller, Monika Fäh, Michael von Wolff, Frank Nawroth, Astrid Dangel, Ariane Germeyer, Sebastian Findeklee, Sibil Tschudin
PURPOSE: Impairment of fertility is a common sequela of successful cancer treatment. Therefore, fertility preservation (FP) should be discussed with all young cancer patients. Decisions about FP are challenging. Patients wish more specific support and the first results concerning the helpfulness of decision aids (DA) were promising. Aside from describing the process of development and the content of an online DA in German, the objective of this study was to pilot test users' satisfaction with the DA and its effect on knowledge about FP and decisional conflict (DC)...
July 31, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28759301/a-rare-case-struma-ovarii-in-a-14-year-old-girl
#18
Elif Iltar, Isin Ureyen, Tayfun Toptas, Melike Savas, Sema Çekiç, Aysel Uysal
Ovarian tumors presented with ovarian mass in childhood and adolescence, these are uncommon but an important part of gynecological cases. Struma ovarii is one of the rare cystic benign ovarian tumors that is observed predominantly in women who are between the ages of 40 and 60 years old. It is extremely rare in adolescents. Herein, we present a 14-year-old adolescent girl with struma ovarii who presented to the emergency room with abdominal pain.
July 31, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28837384/adverse-health-outcomes-and-associations-with-self-reported-general-health-in-childhood-lymphoma-survivors
#19
Inga M R Johannsdottir, Hanne Hamre, Sophie D Fosså, Jon Håvard Loge, Liv Drolsum, May Brit Lund, Lars Nordsletten, Cecilie Kiserud
BACKGROUND: The increased incidence of physical and psychosocial adverse health outcomes (AHOs) in childhood lymphoma survivors (CLSs) is well known, but these AHOs' association with self-reported general health is rarely described. AIM: We explored this association among long-term CLSs. METHODS: In 124 CLSs (Hodgkin: 81; non-Hodgkin: 43; median age: 33 years), physical AHOs were graded based on slightly modified common toxicity criteria for adverse effects (CTCAE)-4 recommendations (Grade 0-3)...
September 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28714766/cancer-related-fatigue-in-adolescents-and-young-adults-after-cancer-treatment-persistent-and-poorly-managed
#20
Anna Spathis, Helen Hatcher, Sara Booth, Faith Gibson, Paddy Stone, Laura Abbas, Matt Barclay, James Brimicombe, Pia Thiemann, Martin G McCabe, Rachel Campsey, Louise Hooker, Wendy Moss, Jane Robson, Stephen Barclay
Cancer-related fatigue is the most prevalent and distressing symptom experienced by adolescents and young adults (AYAs). An electronic survey was undertaken to ascertain current fatigue management and perceptions of its effectiveness. Eighty-five percent of responders (68/80) experienced fatigue, and it was worse more than 1 year after cancer treatment ended, compared to <1 year (p = 0.007). Forty-one percent received no fatigue management. Although advice to exercise was the most frequent intervention, the greatest impact of fatigue was on the ability to exercise and most did not find exercise advice helpful...
September 2017: Journal of Adolescent and Young Adult Oncology
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