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American Journal on Intellectual and Developmental Disabilities

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https://www.readbyqxmd.com/read/28452584/outcome-measures-for-clinical-trials-in-down-syndrome
#1
Anna J Esbensen, Stephen R Hooper, Deborah Fidler, Sigan L Hartley, Jamie Edgin, Xavier Liogier d'Ardhuy, George Capone, Frances A Conners, Carolyn B Mervis, Leonard Abbeduto, Michael Rafii, Sharon J Krinsky-McHale, Tiina Urv, Outcome Measures Working Group
Increasingly individuals with intellectual and developmental disabilities, including Down syndrome, are being targeted for clinical trials. However, a challenge exists in effectively evaluating the outcomes of these new pharmacological interventions. Few empirically evaluated, psychometrically sound outcome measures appropriate for use in clinical trials with individuals with Down syndrome have been identified. To address this challenge, the National Institutes of Health (NIH) assembled leading clinicians and scientists to review existing measures and identify those that currently are appropriate for trials; those that may be appropriate after expansion of age range addition of easier items, and/or downward extension of psychometric norms; and areas where new measures need to be developed...
May 2017: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/28452583/associations-of-child-and-adolescent-mastery-motivation-and-self-regulation-with-adult-outcomes-a-longitudinal-study-of-individuals-with-down-syndrome
#2
Linda Gilmore, Monica Cuskelly
This 20-year prospective longitudinal study focuses on the contribution of mastery motivation and self-regulation to adult outcomes for individuals with Down syndrome. In earlier phases of the research, 25 participants completed measures of cognitive ability, mastery motivation and self-regulation in childhood (4 to 6 years) and adolescence (11 to 15 years). In the adult phase reported here, self-determination and adaptive behavior were assessed in 21 of the original participants at age 23 to 26 years. Mastery motivation and self-regulation made unique contributions to adult outcomes, over and above the effects of cognitive ability...
May 2017: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/28452582/introduction-to-the-special-issue-on-the-development-of-people-with-down-syndrome-throughout-the-lifespan-part-1
#3
Anna J Esbensen
No abstract text is available yet for this article.
May 2017: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/28452581/the-arizona-cognitive-test-battery-for-down-syndrome-test-retest-reliability-and-practice-effects
#4
Jamie O Edgin, Payal Anand, Tracie Rosser, Elizabeth I Pierpont, Carlos Figueroa, Debra Hamilton, Lillie Huddleston, Gina Mason, Goffredina Spanò, Lisa Toole, Mina Nguyen-Driver, George Capone, Leonard Abbeduto, Cheryl Maslen, Roger H Reeves, Stephanie Sherman
A multisite study investigated the test-retest reliability and practice effects of a battery of assessments to measure neurocognitive function in individuals with Down syndrome (DS). The study aimed to establish the appropriateness of these measures as potential endpoints for clinical trials. Neurocognitive tasks and parent report measures comprising the Arizona Cognitive Test Battery (ACTB) were administered to 54 young participants with DS (7-20 years of age) with mild to moderate levels of intellectual disability in an initial baseline evaluation and a follow-up assessment 3 months later...
May 2017: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/28452580/r%C3%A3-sum%C3%A3-s-en-fran%C3%A3-ais
#5
(no author information available yet)
No abstract text is available yet for this article.
May 2017: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/28452579/res%C3%A3%C2%BAmenes-al-espa%C3%A3-ol
#6
(no author information available yet)
No abstract text is available yet for this article.
May 2017: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/28257246/impact-of-attention-training-on-academic-achievement-executive-functioning-and-behavior-a-randomized-controlled-trial
#7
Hannah Kirk, Kylie Gray, Kirsten Ellis, John Taffe, Kim Cornish
Children with intellectual and developmental disabilities (IDD) experience significant difficulties in attention, learning, executive functions, and behavioral regulation. Emerging evidence suggests that computerized cognitive training may remediate these impairments. In a double blind controlled trial, 76 children with IDD (4-11 years) were randomized to either an attention training (n = 38) or control program (n = 38). Both programs were completed at home over a 5-week period. Outcome measures assessed literacy, numeracy, executive functioning, and behavioral/emotional problems, and were conducted at baseline, post-training, and 3-month follow-up...
March 2017: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/28257245/behavioral-profiles-of-children-with-williams-syndrome-from-spain-and-the-united-states-cross-cultural-similarities-and-differences
#8
Débora Pérez-García, Carme Brun-Gasca, Luis A Pérez-Jurado, Carolyn B Mervis
To identify similarities and differences in the behavioral profile of children with Williams syndrome from Spain (n = 53) and the United States (n = 145), we asked parents of 6- to 14-year-olds with Williams syndrome to complete the Child Behavior Checklist 6-18. The distribution of raw scores was significantly higher for the Spanish sample than the American sample for all of the higher-order factors and half of both the empirically based and Diagnostic and Statistical Manual of Mental Disorders (DSM)-oriented scales...
March 2017: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/28257244/emotion-recognition-in-children-with-down-syndrome-influence-of-emotion-label-and-expression-intensity
#9
Katie R Cebula, Jennifer G Wishart, Diane S Willis, Tom K Pitcairn
Some children with Down syndrome may experience difficulties in recognizing facial emotions, particularly fear, but it is not clear why, nor how such skills can best be facilitated. Using a photo-matching task, emotion recognition was tested in children with Down syndrome, children with nonspecific intellectual disability and cognitively matched, typically developing children (all groups N = 21) under four conditions: veridical vs. exaggerated emotions and emotion-labelling vs. generic task instructions. In all groups, exaggerating emotions facilitated recognition accuracy and speed, with emotion labelling facilitating recognition accuracy...
March 2017: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/28257243/r%C3%A3-sum%C3%A3-s-en-fran%C3%A3-ais
#10
(no author information available yet)
No abstract text is available yet for this article.
March 2017: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/28257242/efficacy-and-social-validity-of-peer-network-interventions-for-high-school-students-with-severe-disabilities
#11
Jennifer M Asmus, Erik W Carter, Colleen K Moss, Elizabeth E Biggs, Daniel M Bolt, Tiffany L Born, Kristen Bottema-Beutel, Matthew E Brock, Gillian N Cattey, Molly Cooney, Ethan S Fesperman, Julia M Hochman, Heartley B Huber, Jenna L Lequia, Gregory L Lyons, Lori B Vincent, Katie Weir
This randomized controlled trial examined the efficacy of peer network interventions to improve the social connections of 47 high school students with severe disabilities. School staff invited, trained, and supported 192 peers without disabilities to participate in individualized social groups that met throughout one semester. Compared to adolescents in the "business-as-usual" control group (n = 48), students receiving peer networks gained significantly more new social contacts and friendships. Although many peer relationships maintained one and two semesters later, their spill over beyond the school day was limited...
March 2017: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/28257241/the-intellectual-disability-mortality-disadvantage-diminishing-with-age
#12
Scott D Landes
On average, adults with intellectual disability (ID) have higher mortality risk than their peers in the general population. However, the effect of age on this mortality disadvantage has received minimal attention. Using data from the 1986-2011 National Health Interview Survey-Linked Mortality Files (NHIS-LMF), discrete time hazard models were used to compare mortality risk for adults with and without ID by age and gender. Increased mortality risk was present for all adults with ID, but was most pronounced among younger age females...
March 2017: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/28257240/the-impact-of-medical-behavioral-support-needs-on-the-supports-needed-by-adolescents-with-intellectual-disability-to-participate-in-community-life
#13
Hyojeong Seo, Karrie A Shogren, Michael L Wehmeyer, Todd D Little, Susan B Palmer
As adolescents with intellectual disability (ID) transition to adulthood, there is a need to plan for effective community-based supports that address the post-school life. There is also a need to plan for the impact of factors (e.g., medical/behavioral support needs) on supports needed for community participation. Data from the Supports Intensity Scale-Adult Version (SIS-A) was used to examine relations between medical/behavior support needs and support needs assessed in the standardized portion of the SIS-A...
March 2017: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/28257239/res%C3%A3%C2%BAmenes-al-espa%C3%A3-ol
#14
(no author information available yet)
No abstract text is available yet for this article.
March 2017: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/28095060/executive-functioning-mediates-the-effect-of-behavioral-problems-on-depression-in-mothers-of-children-with-developmental-disabilities
#15
Wai Chan, Leann E Smith, Jan S Greenberg, Jinkuk Hong, Marsha R Mailick
The present investigation explored long-term relationships of behavioral symptoms of adolescents and adults with developmental disabilities with the mental health of their mothers. Fragile X premutation carrier mothers of an adolescent or adult child with fragile X syndrome (n = 95), and mothers of a grown child with autism (n = 213) were included. Behavioral symptoms at Time 1 were hypothesized to predict maternal depressive symptoms at Time 3 via maternal executive dysfunction at Time 2. Results provided support for the mediating pathway of executive dysfunction...
January 2017: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/28095059/what-s-the-harm-harms-in-research-with-adults-with-intellectual-disability
#16
Katherine E McDonald, Nicole E Conroy, Robert S Olick, The Project Ethics Expert Panel
Scientific advances can improve the lives of adults with intellectual disability, yet concerns that research participation may impose harm impede scientific progress. What counts as harmful can be subjective and perceptions of harm may vary among stakeholders. We studied perspectives on the harmfulness of research events among adults with intellectual disability, family members and friends, disability service providers, researchers, and Institutional Review Board members. We found considerable variance. For example, adults with intellectual disability see exclusion from research as more harmful, but most psychosocial harms as less significant than others...
January 2017: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/28095058/efficacy-of-peer-support-arrangements-to-increase-peer-interaction-and-aac-use
#17
Elizabeth E Biggs, Erik W Carter, Jenny Gustafson
Supporting interaction in inclusive settings between students with complex communication needs (CCN) and their peers requires careful planning and support. We used a multiple-probe-across-participants design to investigate the efficacy of collaborative planning and peer support arrangements to increase peer interaction in inclusive classrooms. Participants were four middle school students with CCN who had an intellectual disability and used an iPad with Proloquo2Go as augmentative and alternative communication (AAC)...
January 2017: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/28095057/age-of-parental-concern-diagnosis-and-service-initiation-among-children-with-autism-spectrum-disorder
#18
Benjamin Zablotsky, Lisa J Colpe, Beverly A Pringle, Michael D Kogan, Catherine Rice, Stephen J Blumberg
Children with autism spectrum disorder (ASD) require substantial support to address the core symptoms of ASD and co-occurring behavioral/developmental conditions. This study explores the early diagnostic experiences of school-aged children with ASD using survey data from a large probability-based national sample. Multivariate linear regressions were used to examine age when parent reported developmental concern to doctor, received ASD diagnosis, and first obtained services. Children whose parents had concerns about their child's verbal communication reported earlier ages for all outcomes when compared to children of parents who did not have verbal communication concerns...
January 2017: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/28095056/correlates-of-adaptive-functioning-in-minimally-verbal-children-with-autism-spectrum-disorder
#19
Kyle M Frost, Natalie Hong, Catherine Lord
Individuals with autism spectrum disorder (ASD) tend to have significant delays in adaptive functioning. In this study, the relationship between adaptive behavior and ASD symptomatology was investigated in minimally verbal, school-aged children with ASD (n = 333). Both the social affect (SA) and restricted and repetitive behavior (RRB) domains from the Autism Diagnostic Observation Schedule (ADOS) were analyzed in relation to adaptive skills. ADOS SA scores contributed unique variance to scores in each Vineland domain, though cognitive ability and age accounted for considerably more variance across domains...
January 2017: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/28095055/r%C3%A3-sum%C3%A3-s-en-fran%C3%A3-ais
#20
(no author information available yet)
No abstract text is available yet for this article.
January 2017: American Journal on Intellectual and Developmental Disabilities
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