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American Journal on Intellectual and Developmental Disabilities

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https://www.readbyqxmd.com/read/29671639/lifelong-parenting-of-adults-with-developmental-disabilities-growth-trends-over-20-years-in-midlife-and-later-life
#1
Eun Ha Namkung, Jan S Greenberg, Marsha R Mailick, Frank J Floyd
This research examined how parenting adults with developmental disabilities affects parental well-being beyond midlife and into old age. Parents of adults with developmental disabilities ( n = 249) and parents of adults without disabilities ( n = 9,016), studied in their early 50s and mid-60s, were longitudinally tracked into their early 70s. Compared to parents of adults without disabilities, parents of adults with disabilities showed a pattern of normative functioning in their 50s, followed by poorer well-being in their mid-60s, and further declines in health and well-being into the early 70s...
May 2018: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/29671638/gait-characteristics-of-adults-with-intellectual-disability
#2
Alyt Oppewal, Dederieke A M Festen, Thessa I M Hilgenkamp
Gait is a relevant and complex aspect of motor functioning. Disturbances are related to negative health outcomes. Gait characteristics of 31 adults with intellectual disability (ID) without Down syndrome (DS) (42.77±16.70 years) were investigated, and associations with age, sex, body mass index (BMI), and level of ID were assessed. Sex and BMI were significantly associated with some of the gait parameters, while age and level of ID were not. Gait characteristics of adults with ID seem to be comparable to those of the general population of older adults (average 20 years older), except that adults with ID seem to spend less time in stance and double support phase and walk more variable and with a broader base of support...
May 2018: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/29671637/reading-in-children-with-fragile-x-syndrome-phonological-awareness-and-feasibility-of-intervention
#3
Suzanne M Adlof, Jessica Klusek, Anne Hoffmann, Kerrie L Chitwood, Allison Brazendale, Karen Riley, Leonard J Abbeduto, Jane E Roberts
Individuals with fragile X syndrome (FXS) present with significant deficits in reading skills, but scant research exists to understand the characteristics of the reading delays or best practices for reading instruction with this population. Study 1 examined the relationship between phonological awareness and reading skills in individuals with FXS. Study 2 evaluated the feasibility of a web-based reading intervention, which incorporated phonological awareness and phonics instruction but was originally developed for mainstream students, for children with FXS...
May 2018: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/29671636/behavioral-interventions-for-inappropriate-sexual-behavior-in-individuals-with-developmental-disabilities-and-acquired-brain-injury-a-review
#4
Casey J Clay, Sarah E Bloom, Joseph M Lambert
Inappropriate sexual behavior (ISB) is a common, but understudied, issue for individuals diagnosed with developmental disabilities (DD), intellectual disability (ID), and/or acquired brain injuries (ABI). We conducted a systematic review to identify, analyze, and synthesize published behavior-analytic approaches to intervention for ISB in DD, ID, or ABI populations. Twenty-three studies employing single-subject research methodology were identified and evaluated using quality indicators described by Horner et al...
May 2018: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/29671635/mental-health-and-well-being-in-mothers-of-children-with-rare-genetic-syndromes-showing-chronic-challenging-behavior-a-cross-sectional-and-longitudinal-study
#5
Dawn Adams, Samantha Clarke, Gemma Griffith, Pat Howlin, Jo Moss, Jane Petty, Penny Tunnicliffe, Chris Oliver
It is well documented that mothers of children with challenging behavior (CB) experience elevated levels of stress and that this persists over time, but less is known about the experience of mothers of children with rare genetic syndromes. This article describes 2 studies, 1 cross-sectional and 1 longitudinal, comparing well-being in mothers of children with Angelman, Cornelia de Lange and Cri du Chat syndrome who have either shown chronic CB ( n = 18) or low/no CB ( n = 26) in the preceding 7 years. The presence of chronic, long-term CB increased maternal stress but not depression or anxiety, and did not influence positive well-being...
May 2018: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/29671634/res%C3%A3%C2%BAmenes-al-espa%C3%A3-ol
#6
(no author information available yet)
No abstract text is available yet for this article.
May 2018: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/29671633/behavioral-problems-and-psychosocial-strengths-unique-factors-contributing-to-the-behavioral-profile-of-youth-with-down-syndrome
#7
Lisa M Dieleman, Sarah S W De Pauw, Bart Soenens, Geert Van Hove, Peter Prinzie
This study aimed to describe problem behaviors and psychosocial strengths, examine the problem-strength interrelations, and evaluate profiles of problems and strengths in youth with Down syndrome (DS). The community-based sample consisted of 67 parents of children with DS aged between 4 and 19 years. Parents reported about the developmental age (Vineland screener), behavioral problems (Child Behavior Checklist), and psychosocial strengths (Behavioral and Emotional Rating Scale) of their child. Results indicate that attention, social, and thought problems were most prevalent, whereas family involvement and receiving/expressing affection were identified as strengths...
May 2018: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/29671632/r%C3%A3-sum%C3%A3-s-en-fran%C3%A3-ais
#8
(no author information available yet)
No abstract text is available yet for this article.
May 2018: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/29480779/res%C3%A3%C2%BAmenes-al-espa%C3%A3-ol
#9
(no author information available yet)
No abstract text is available yet for this article.
March 2018: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/29480778/using-structural-analysis-to-inform-peer-support-arrangements-for-high-school-students-with-severe-disabilities
#10
Heartley B Huber, Erik W Carter, Sarah E Lopano, Kristen C Stankiewicz
We examined the effects of peer support arrangements as an alternative to exclusive direct support from paraprofessionals for three high school students with severe disabilities in general education classrooms. We also explored the use of structural analysis as a data-based approach for further refining the interventions to enhance their impact in particular classrooms. Peer support arrangements were associated with substantial increases in social outcomes; academic engagement maintained or improved modestly for all participants...
March 2018: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/29480777/physical-activity-research-in-intellectual-disability-a-scoping-review-using-the-behavioral-epidemiological-framework
#11
E Andrew Pitchford, Alicia Dixon-Ibarra, Janet L Hauck
Through a scoping review, the current state of physical activity research in people with intellectual disability was examined. A search of publications between 2000 and 2014 retrieved 362 articles that met inclusion criteria. Eligible studies were coded according to the Behavioral Epidemiological Framework. Of the articles identified, 48% examined associations between physical activity and health outcomes, 9% developed or tested methodology to measure physical activity, 34% examined factors that influence physical activity, 8% evaluated interventions to change physical activity, and 1% examined the dissemination of physical activity/health promotion programming...
March 2018: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/29480776/individual-and-contextual-correlates-of-frequently-involved-special-olympics-athletes
#12
Suzanne Robinson, Jessica L Fraser-Thomas, Robert Balogh, Yona Lunsky, Jonathan A Weiss
It is important to understand factors associated with sport participation for youth with intellectual and developmental disabilities (IDD). With a sample of 414 Special Olympics (SO) athletes, this study examined how frequently involved athletes differ from other youth who are less involved in SO. Results showed that frequently involved athletes are older, have more sport-specific parental support, stronger athlete-coach relationships, and more positive SO experiences than other athletes. These factors were predictive of SO involvement, even after controlling for athlete characteristics, including behavior problems and adaptive behavior...
March 2018: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/29480775/child-maltreatment-among-children-with-intellectual-disability-in-the-canadian-incidence-study
#13
Jacinthe Dion, Geneviève Paquette, Karine-N Tremblay, Delphine Collin-Vézina, Martin Chabot
This study aims to compare, among a representative sample of substantiated child maltreatment cases, the characteristics of those with intellectual disability (ID) from those without ID. Using the 2008 Canadian Incidence Study of Reported Child Abuse and Neglect, 5,797 cases of substantiated maltreatment that involved children aged between 0 and 14 years were analyzed. One in 10 children (11.3%) was identified with ID. Results revealed functional problems to be higher among children with ID and their parents...
March 2018: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/29480774/the-emergence-of-effortful-control-in-young-boys-with-fragile-x-syndrome
#14
Marissa Robinson, Jessica Klusek, Michele D Poe, Deborah D Hatton, Jane E Roberts
Effortful control, or the ability to suppress a dominant response to perform a subdominant response, is an early-emerging temperament trait that is linked with positive social-emotional development. Fragile X syndrome (FXS) is a single-gene disorder characterized by hallmark regulatory impairments, suggesting diminished effortful control. This study compared the development of effortful control in preschool boys with FXS ( n = 97) and typical development ( n = 32). Unlike their typical peers, the boys with FXS did not exhibit growth in effortful control over time, which could not be accounted for by adaptive impairments, FMR1 molecular measures, or autism symptoms...
March 2018: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/29480773/r%C3%A3-sum%C3%A3-s-en-fran%C3%A3-ais
#15
(no author information available yet)
No abstract text is available yet for this article.
March 2018: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/29480772/growth-and-decline-in-language-and-phonological-memory-over-two-years-among-adolescents-with-down-syndrome
#16
Frances A Conners, Andrew S Tungate, Leonard Abbeduto, Edward C Merrill, Gayle G Faught
Forty-two adolescents with Down syndrome (DS) ages 10 to 21 years completed a battery of language and phonological memory measures twice, 2 years apart. Individual differences were highly stable across two years. Receptive vocabulary scores improved, there was no change in receptive or expressive grammar scores, and nonword repetition scores declined. Digit memory and expressive vocabulary scores improved among younger adolescents, but generally held steady among older adolescents. These patterns may reveal key points in development at which interventions may be best applied...
March 2018: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/29281325/res%C3%A3%C2%BAmenes-al-espa%C3%A3-ol
#17
(no author information available yet)
No abstract text is available yet for this article.
January 2018: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/29281324/multimorbidity-and-polypharmacy-are-independently-associated-with-mortality-in-older-people-with-intellectual-disabilities-a-5-year-follow-up-from-the-ha-id-study
#18
Josje D Schoufour, Alyt Oppewal, Hanne J K van der Maarl, Heidi Hermans, Heleen M Evenhuis, Thessa I M Hilgenkamp, Dederieke A Festen
We studied the association between multimorbidity, polypharmacy, and mortality in 1,050 older adults (50+) with intellectual disability (ID). Multimorbidity (presence of ≥ 4 chronic health conditions) and polypharmacy (presence ≥ 5 chronic medication prescriptions) were collected at baseline. Multimorbidity included a wide range of disorders, including hearing impairment, thyroid dysfunction, autism, and cancer. Mortality data were collected during a 5-year follow-up period. Cox proportional hazards models were used to determine the independent association between multimorbidity and polypharmacy with survival...
January 2018: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/29281323/later-life-impacts-of-social-participation-on-parents-of-adult-offspring-with-and-without-intellectual-and-developmental-disabilities
#19
Darren L Olsen
Social participation is an important resource for parents in old age, and may be particularly important for parents living with adult offspring with intellectual and developmental disabilities. To evaluate whether socializing with friends and family and participating in social organizations protects against depression in old age, this study examined parents of adult offspring with disabilities ( n = 164) and without disabilities ( n = 820). As expected, more socializing with friends and more participating in organizations were associated with fewer depressive symptoms for all parents...
January 2018: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/29281322/causes-of-mortality-in-older-people-with-intellectual-disability-results-from-the-ha-id-study
#20
Alyt Oppewal, Josje D Schoufour, Hanne J K van der Maarl, Heleen M Evenhuis, Thessa I M Hilgenkamp, Dederieke A Festen
We aim to provide insight into the cause-specific mortality of older adults with intellectual disability (ID), with and without Down syndrome (DS), and compare this to the general population. Immediate and primary cause of death were collected through medical files of 1,050 older adults with ID, 5 years after the start of the Healthy Ageing and Intellectual Disabilities (HA-ID) study. During the follow-up period, 207 (19.7%) participants died, of whom 54 (26.1%) had DS. Respiratory failure was the most common immediate cause of death (43...
January 2018: American Journal on Intellectual and Developmental Disabilities
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