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Patient Preference and Adherence

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https://www.readbyqxmd.com/read/28053511/the-state-of-multiple-sclerosis-current-insight-into-the-patient-health-care-provider-relationship-treatment-challenges-and-satisfaction
#1
Mar Tintoré, Maggie Alexander, Kathleen Costello, Martin Duddy, David E Jones, Nancy Law, Gilmore O'Neill, Antonio Uccelli, Robert Weissert, Sibyl Wray
BACKGROUND: Managing multiple sclerosis (MS) treatment presents challenges for both patients and health care professionals. Effective communication between patients with MS and their neurologist is important for improving clinical outcomes and quality of life. METHODS: A closed-ended online market research survey was used to assess the current state of MS care from the perspective of both patients with MS (≥18 years of age) and neurologists who treat MS from Europe and the US and to gain insight into perceptions of treatment expectations/goals, treatment decisions, treatment challenges, communication, and satisfaction with care, based on current clinical practice...
2017: Patient Preference and Adherence
https://www.readbyqxmd.com/read/28053510/over-reaching-beyond-disease-activity-the-influence-of-anxiety-and-medical-economic-burden-on-health-related-quality-of-life-in-patients-with-inflammatory-bowel-disease
#2
Xia-Peng Luo, Ren Mao, Bai-Li Chen, Yun Qiu, Sheng-Hong Zhang, Yao He, Jie Chen, Zhi-Rong Zeng, Shomron Ben-Horin, Min-Hu Chen
PURPOSE: Many patients with inflammatory bowel disease (IBD) have impaired health-related quality of life (HRQOL). The influence of psychological and economic factors on HRQOL has not been fully elucidated in IBD. Therefore, we aimed to identify the predictors of HRQOL in an IBD cohort. PATIENTS AND METHODS: This was a cross-sectional cohort study of patients presenting to our tertiary IBD center. HRQOL was measured using the 36-item Short Form Health Survey (SF-36) and the Inflammatory Bowel Disease Questionnaire (IBDQ)...
2017: Patient Preference and Adherence
https://www.readbyqxmd.com/read/28053509/involvement-of-the-end-user-exploration-of-older-people-s-needs-and-preferences-for-a-wearable-fall-detection-device-a-qualitative-descriptive-study
#3
Friederike Js Thilo, Selina Bilger, Ruud Jg Halfens, Jos Mga Schols, Sabine Hahn
PURPOSE: To explore the needs and preferences of community-dwelling older people, by involving them in the device design and mock-up development stage of a fall detection device, consisting of a body-worn sensor linked to a smartphone application. PATIENTS AND METHODS: A total of 22 community-dwelling persons 75 years of age and older were involved in the development of a fall detection device. Three semistructured focus group interviews were conducted. The interview data were analyzed using qualitative descriptive analysis with deductive coding...
2017: Patient Preference and Adherence
https://www.readbyqxmd.com/read/28031703/evaluation-of-individual-quality-of-life-among-hemodialysis-patients-nominated-themes-using-seiqol-adapted
#4
Hossein Matlabi, Sharareh Ahmadzadeh
BACKGROUND: Quality of life (QoL) has become an important issue for patients with chronic renal failure diseases who are permanently undergoing hemodialysis. In this study, an adapted schedule for the evaluation of individual quality of life (SEIQoL-adapted) was used to evaluate QoL among hemodialysis patients, to explore their views about the most important aspects of life satisfaction. METHODS AND RESULTS: A multiple approach design and convenience sampling were applied to recruit 53 patients from a hemodialysis unit in Iran...
2017: Patient Preference and Adherence
https://www.readbyqxmd.com/read/28008238/communication-practices-and-awareness-of-resources-for-acromegaly-patients-among-endocrinologists
#5
Susan Polanco-Briceno, Daniel Glass, Cindy Plunkett
PURPOSE: This study was designed to assess the awareness and utilization of resources to improve patients' treatment experiences among endocrinologists who currently treat patients with acromegaly. METHODS: A total of 4,280 US endocrinologists were randomly selected from the CMS National Plan and Provider Enumeration System and were invited by mail to participate in a 20-minute online survey. In order to qualify, respondents had to be the primary physician making treatment decisions for at least one patient for their acromegaly...
2016: Patient Preference and Adherence
https://www.readbyqxmd.com/read/28008237/improving-doctor-patient-communication-content-validity-examination-of-a-novel-urinary-system-simulating-physical-model
#6
WenGang Hu, YaJun Song, Xiao Zhong, JiaYu Feng, PingXian Wang, ChiBing Huang
Effective doctor-patient communication is essential for establishing a successful doctor-patient relationship and implementing high-quality health care. In this study, a novel urinary system-simulating physical model was designed and fabricated, and its content validity for improving doctor-patient communication was examined by conducting a randomized controlled trial in which this system was compared with photographs. A total of 240 inpatients were randomly selected and assigned to six doctors for treatment...
2016: Patient Preference and Adherence
https://www.readbyqxmd.com/read/28008236/communicating-laboratory-test-results-for-rheumatoid-factor-what-do-patients-and-physicians-want
#7
Ariella Kelman, Caroline O Robinson, Elisenda Cochin, Nina J Ahluwalia, Julia Braverman, Emil Chiauzzi, Kristina Simacek
OBJECTIVE: This study aimed to explore patient and physician perspectives on current laboratory test reporting practices and to elicit ideas for improvement. METHODS: Two independent studies were conducted. The first solicited members of an online physician community for opinions on current laboratory test reporting practices and possible improvements. The second addressed the same topic, but solicited patient feedback, and included an evaluation of a mock laboratory test report for the rheumatoid factor blood test...
2016: Patient Preference and Adherence
https://www.readbyqxmd.com/read/28008235/importance-of-hemodialysis-related-outcomes-comparison-of-ratings-by-a-self-help-group-clinicians-and-health-technology-assessment-authors-with-those-by-a-large-reference-group-of-patients
#8
Inger M Janssen, Fueloep Scheibler, Ansgar Gerhardus
BACKGROUND: The selection of important outcomes is a crucial decision for clinical research and health technology assessment (HTA), and there is ongoing debate about which stakeholders should be involved. Hemodialysis is a complex treatment for chronic kidney disease (CKD) and affects many outcomes. Apart from obvious outcomes, such as mortality, morbidity and health-related quality of life (HRQoL), others such as, concerning daily living or health care provision, may also be important...
2016: Patient Preference and Adherence
https://www.readbyqxmd.com/read/28008234/the-australasian-hepatology-association-consensus-guidelines-for-the-provision-of-adherence-support-to-patients-with-hepatitis-c-on-direct-acting-antivirals
#9
Jacqueline A Richmond, Suzanne Sheppard-Law, Susan Mason, Sherryne L Warner
BACKGROUND: Hepatitis C is a blood-borne virus primarily spread through sharing of drug-injecting equipment. Approximately 150 million people worldwide and 230,000 Australians are living with chronic hepatitis C infection. In March 2016, the Australian government began subsidizing direct acting antivirals (DAAs) for the treatment of hepatitis C, which are highly effective (95% cure rate) and have few side effects. However, there is limited evidence to inform the provision of adherence support to people with hepatitis C on DAAs including the level of medication adherence required to achieve a cure...
2016: Patient Preference and Adherence
https://www.readbyqxmd.com/read/28003741/factors-influencing-the-quality-of-life-perception-in-patients-with-type-2-diabetes-mellitus
#10
Romulus Timar, Iulian Velea, Bogdan Timar, Diana Lungeanu, Cristian Oancea, Deiana Roman, Octavian Mazilu
PURPOSE: To evaluate the impact of several factors on the patient's perception on quality of life in a group of patients with type 2 diabetes mellitus (T2DM). PATIENTS AND METHODS: In this cross-sectional study, 198 patients with T2DM were enrolled according to a consecutive-case population-based study design. In all participants, the perception on the quality of life was measured using the quality of life index - diabetes version III proposed by Ferrans and Powers...
2016: Patient Preference and Adherence
https://www.readbyqxmd.com/read/27994443/relationship-between-patients-knowledge-and-medication-adherence-among-patients-with-hypertension
#11
Beata Jankowska-Polańska, Izabella Uchmanowicz, Krzysztof Dudek, Grzegorz Mazur
OBJECTIVE: The purpose of this study was to investigate the relationship between knowledge on arterial hypertension (AH) and its management, and adherence to pharmaceutical treatment. METHODS: The study included 233 patients diagnosed with AH and treated with hypotensive drugs for at least 1 year. The 8-item © Morisky Medication Adherence Scale (MMAS-8) and the Hypertension Knowledge-Level Scale (HK-LS) were used. RESULTS: Sixty-three percent of the patients had a low level of knowledge on AH, with the smallest proportion of correct answers provided for items related to non-pharmaceutical treatment, diet, hypertension definition, and drug adherence...
2016: Patient Preference and Adherence
https://www.readbyqxmd.com/read/27980396/the-employee-s-productivity-in-the-health-care-sector-in-poland-and-their-impact-on-the-treatment-process-of-patients-undergoing-elective-laparoscopic-cholecystectomy
#12
Anna Rosiek, Aleksandra Rosiek-Kryszewska, Łukasz Leksowski, Tomasz Kornatowski, Krzysztof Leksowski
BACKGROUND: Increasing the engagement of employees in the treatment process of patients may benefit a hospital and employee productivity and may result in better patient care and satisfaction with medical services. Given this, the first step in improving the quality of patient care is better availability of doctors for patients in a hospital ward. METHODS: The research for this paper was conducted in six health care units in the Kuyavian-Pomeranian province in Poland...
2016: Patient Preference and Adherence
https://www.readbyqxmd.com/read/27980395/utility-of-the-morisky-medication-adherence-scale-in-gout-a-prospective-study
#13
Csl Tan, G G Teng, K J Chong, P P Cheung, Ayn Lim, H L Wee, A Santosa
BACKGROUND: The outcomes of any chronic illness often depend on patients' adherence with their treatment. A tool is lacking to assess adherence in gout that is standardized, allows real-time feedback, and is easy to understand. OBJECTIVE: We set out to evaluate the utility of the 8-item Morisky Medication Adherence Scale (MMAS-8) in monitoring medication adherence in a multiethnic Asian gout cohort on urate-lowering therapy (ULT). METHODS: This cohort study recruited patients with gout where baseline and 6-monthly clinical data, self-report of adherence, and health status by Gout Impact Scale (GIS) and EuroQoL-5 dimension 3 levels were collected...
2016: Patient Preference and Adherence
https://www.readbyqxmd.com/read/27980394/ethical-considerations-in-adherence-research
#14
Nupur U Patel, Blake A Moore, Rebekah F Craver, Steven R Feldman
Poor adherence to treatment is a common cause of medical treatment failure. Studying adherence is complicated by the potential for the study environment to impact adherence behavior. Studies performed without informing patients about adherence monitoring must balance the risks of deception against the potential benefits of the knowledge to be gained. Ethically monitoring a patient's adherence to a treatment plan without full disclosure of the monitoring plan requires protecting the patient's rights and upholding the fiduciary obligations of the investigator...
2016: Patient Preference and Adherence
https://www.readbyqxmd.com/read/27942205/the-design-rationale-and-baseline-characteristics-of-a-nationwide-cohort-registry-in-china-blood-pressure-and-clinical-outcome-in-tia-or-ischemic-stroke
#15
Jie Xu, Yi Liu, Yongli Tao, Xuewei Xie, Hongqiu Gu, Yuesong Pan, Xingquan Zhao, Yongjun Wang, Aoshuang Yan, Yilong Wang
BACKGROUND: The relationship between poststroke blood pressure (BP) and clinical outcomes in ischemic stroke (IS) is still controversial. However, there is no large BP database for IS or transient ischemic attack (TIA) in China. This study aims to describe the rationale, study design, and baseline characteristics of a nationwide BP database in IS or TIA patients in China. MATERIALS AND METHODS: The BOSS (blood pressure and clinical outcome in TIA or ischemic stroke) study was a hospital-based, prospective cohort study aiming to assess BP parameters and clinical outcome in IS/TIA patients...
2016: Patient Preference and Adherence
https://www.readbyqxmd.com/read/27920507/men-s-preferences-for-the-treatment-of-lower-urinary-tract-symptoms-associated-with-benign-prostatic-hyperplasia-a-discrete-choice-experiment
#16
Colette Mankowski, Divine Ikenwilo, Sebastian Heidenreich, Mandy Ryan, Jameel Nazir, Cathy Newman, Verity Watson
OBJECTIVE: To explore and quantify men's preferences and willingness to pay (WTP) for attributes of medications for lower urinary tract symptoms associated with benign prostatic hyperplasia using a discrete choice experiment. SUBJECTS AND METHODS: Men in the UK aged ≥45 years with moderate-to-severe lower urinary tract symptoms/benign prostatic hyperplasia (based on self-reported International Prostate Symptom Score ≥8) were recruited. An online discrete choice experiment survey was administered...
2016: Patient Preference and Adherence
https://www.readbyqxmd.com/read/27920506/polifeprosan-20-3-85-carmustine-slow-release-wafer-in-malignant-glioma-patient-selection-and-perspectives-on-a-low-burden-therapy
#17
REVIEW
Lawrence Kleinberg
Polifeprosan 20 with carmustine (GLIADEL(®)) polymer implant wafer is a biodegradable compound containing 3.85% carmustine (BCNU, bischloroethylnitrosourea) implanted in the brain at the time of planned tumor surgery, which then slowly degrades to release the BCNU chemotherapy directly into the brain thereby bypassing the blood-brain barrier. Carmustine implant wafers were demonstrated to improve survival in randomized placebo-controlled trials in patients undergoing a near total resection of newly diagnosed or recurrent malignant glioma...
2016: Patient Preference and Adherence
https://www.readbyqxmd.com/read/27920505/illness-perceptions-and-stress-mediators-between-disease-severity-and-psychological-well-being-and-quality-of-life-among-patients-with-crohn-s-disease
#18
Maochen Zhang, Liwen Hong, Tianyu Zhang, Yun Lin, Sichang Zheng, Xiaolin Zhou, Rong Fan, Zhengting Wang, Chenli Zhang, Jie Zhong
BACKGROUND: Disease severity, illness perceptions, coping strategies, stress, psychological well-being, and quality of life were reported to have close relationships. According to the Common Sense Model, illness perceptions and coping strategies could mediate the relationship between illness stimuli and illness outcomes such as psychological health and quality of life. Stress was also associated with the individual's disease severity, anxiety, depression, and quality of life. OBJECTIVES: The study aimed to explore the influencing factors of illness outcomes, and to what extent illness perceptions, coping strategies, and stress mediate the relationship between disease severity and anxiety, and depression and quality of life...
2016: Patient Preference and Adherence
https://www.readbyqxmd.com/read/27920504/gender-and-age-related-treatment-compliance-in-patients-with-osteoporosis-in-germany
#19
Peyman Hadji, Louis Jacob, Karel Kostev
AIM: The purpose of this study was to analyze treatment compliance in osteoporotic patients treated with osteoporosis medications in Germany. METHODS: Patients included in the analysis had been diagnosed with osteoporosis with or without fractures and started anti-osteoporotic therapy (bisphosphonates, denosumab, or strontium ranelate) between 2011 and 2014 in a general (GP) or orthopedic practice (OP) setting in Germany. Data pertaining to 6,221 individuals followed in GP and 4,044 individuals followed in OP were analyzed retrospectively...
2016: Patient Preference and Adherence
https://www.readbyqxmd.com/read/27920503/adverse-events-and-patients-perceived-health-related-quality-of-life-at-the-end-of-multidrug-resistant-tuberculosis-treatment-in-namibia
#20
Evans L Sagwa, Nunurai Ruswa, Farai Mavhunga, Timothy Rennie, Hubert Gm Leufkens, Aukje K Mantel-Teeuwisse
PURPOSE: The health-related quality of life (HRQoL) of patients completing multidrug-resistant tuberculosis (MDR-TB) treatment in Namibia and whether the occurrence of adverse events influenced patients' rating of their HRQoL was evaluated. PATIENTS AND METHODS: A cross-sectional analytic survey of patients completing or who recently completed MDR-TB treatment was conducted. The patients rated their HRQoL using the simplified Short Form-™ (SF-8) questionnaire consisting of eight Likert-type questions...
2016: Patient Preference and Adherence
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