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Public Health Genomics

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https://www.readbyqxmd.com/read/30227419/controversies-among-cancer-registry-participants-genomic-researchers-and-institutional-review-boards-about-returning-participants-genomic-results
#1
Karen L Edwards, Deborah Goodman, Catherine O Johnson, Lari Wenzel, Celeste Condit, Deborah Bowen
OBJECTIVES: Genomic information will increasingly be used to aid in the prevention, diagnosis, and treatment of disease. Several national initiatives are paving the way for this new reality, while also promoting new models of participant-engaged research. We compare the opinions of research participants in a cancer registry, human genetic researchers, and institutional review board (IRB) professionals about the return of individual-level genetic results (ROR). METHODS: Online surveys were administered to participants in a cancer registry (n = 450) and overlapping questions were compared to our previous online national surveys of human genetic researchers (n = 351) and IRB professionals (n = 208)...
September 18, 2018: Public Health Genomics
https://www.readbyqxmd.com/read/30223261/ethical-legal-and-regulatory-issues-for-the-implementation-of-omics-based-risk-prediction-of-women-s-cancer-points-to-consider
#2
Emmanuelle Lévesque, Emily Kirby, Ineke Bolt, Bartha Maria Knoppers, Inez de Beaufort, Nora Pashayan, Martin Widschwendter
BACKGROUND AND OBJECTIVE: Advances in omics open new opportunities for cancer risk prediction and risk-based screening interventions. However, implementation of risk prediction in clinical practice may impact the ethical, legal, and regulatory aspects of current cancer screening programs. In order to support decision-making, we analyzed the ethical, legal, and regulatory issues and developed a set of Points to Consider to support management of these issues. METHODS: We analyzed the legal and policy frameworks applicable to breast and cervical cancer screening programs in 7 European countries...
September 17, 2018: Public Health Genomics
https://www.readbyqxmd.com/read/30199881/recall-and-retention-of-consent-procedure-contents-and-decisions-results-of-a-randomized-controlled-trial
#3
Susanne Rebers, Eric Vermeulen, Alexander P Brandenburg, Neil K Aaronson, Marjanka K Schmidt
BACKGROUND: Residual tissue samples, i.e., samples excised for diagnosis or during treatment, are commonly used for medical research. In the Netherlands, they can be used provided the patient did not opt out of this use. Previous research has shown that recall of the informed consent procedure for tissue use is poor. Here, we investigate recall of three consent procedures: informed consent, opt-out, and opt-out plus (an opt-out procedure with an information procedure similar to that of informed consent)...
September 10, 2018: Public Health Genomics
https://www.readbyqxmd.com/read/30145589/optimising-sme-potential-in-modern-healthcare-systems-challenges-opportunities-and-policy-recommendations
#4
Denis Horgan, Henk J van Kranen, Servaas A Morré
The expansion of European small and medium-sized enterprises (SMEs) into the healthcare innovation arena suggests that this should be an important EU policy priority that can significantly benefit the economy, society and citizens, including patients. Deepening and widening of Europe's SMEs' growth and activities is part of the EU objectives as set out by the European Commission in its Communications "Small Business Act" for Europe [<xref ref-type="bibr" rid="ref1">1</xref>] and "Small Business, Big World" [<xref ref-type="bibr" rid="ref2">2</xref>]...
August 24, 2018: Public Health Genomics
https://www.readbyqxmd.com/read/30219809/submitted-abstracts-from-summer-school-participants
#5
(no author information available yet)
No abstract text is available yet for this article.
2018: Public Health Genomics
https://www.readbyqxmd.com/read/30219808/abstracts-from-plenary-and-keynote-speakers
#6
(no author information available yet)
No abstract text is available yet for this article.
2018: Public Health Genomics
https://www.readbyqxmd.com/read/30086550/examining-the-cascade-of-participant-attrition-in-a-genomic-medicine-research-study-barriers-and-facilitators-to-achieving-diversity
#7
Elizabeth G Moore, Myra Roche, Christine Rini, Edward W Corty, Zahra Girnary, Julianne M O'Daniel, Feng-Chang Lin, Giselle Corbie-Smith, James P Evans, Gail E Henderson, Jonathan S Berg
BACKGROUND/AIMS: Recent genomic medicine initiatives underscore the importance of including diverse participants in research. Considerable literature has identified barriers to and facilitators of increasing diversity, yet disparities in recruiting and retaining adequate numbers of participants from diverse groups continue to limit the generalizability of clinical genomic research. METHODS: The North Carolina Clinical Genomic Evaluation by Next-gen Exome Sequencing study employed evidence-based strategies to enhance the participation of under-represented minority patients...
2017: Public Health Genomics
https://www.readbyqxmd.com/read/29936514/potentials-and-challenges-of-the-health-data-cooperative-model
#8
Ilse van Roessel, Matthias Reumann, Angela Brand
INTRODUCTION: Currently, abundances of highly relevant health data are locked up in data silos due to decentralized storage and data protection laws. The health data cooperative (HDC) model is established to make this valuable data available for societal purposes. The aim of this study is to analyse the HDC model and its potentials and challenges. RESULTS: An HDC is a health data bank. The HDC model has as core principles a cooperative approach, citizen-centredness, not-for-profit structure, data enquiry procedure, worldwide accessibility, cloud computing data storage, open source, and transparency about governance policy...
2017: Public Health Genomics
https://www.readbyqxmd.com/read/29852491/assessing-genetic-literacy-awareness-and-knowledge-gaps-in-the-us-population-results-from-the-health-information-national-trends-survey
#9
Melinda Krakow, Chelsea L Ratcliff, Bradford W Hesse, Alexandra J Greenberg-Worisek
BACKGROUND/AIMS: Public understanding of the role of genetics in disease risk is key to appropriate disease prevention and detection. This study assessed the current extent of awareness and use of genetic testing in the US population. Additionally, the study identified characteristics of subgroups more likely to be at risk for low genetic literacy. METHODS: The study used data from the National Cancer Institute's 2017 Health Information National Trends Survey, including measures of genetic testing awareness, genetic testing applications and genetic testing usage...
2017: Public Health Genomics
https://www.readbyqxmd.com/read/29723853/data-technology-and-public-health
#10
Bettina Borisch, Chukwuemeka A Iloegbu, Nadya Wells
No abstract text is available yet for this article.
2017: Public Health Genomics
https://www.readbyqxmd.com/read/29689554/erratum
#11
(no author information available yet)
No abstract text is available yet for this article.
2017: Public Health Genomics
https://www.readbyqxmd.com/read/29689544/erratum
#12
(no author information available yet)
No abstract text is available yet for this article.
2017: Public Health Genomics
https://www.readbyqxmd.com/read/29617688/big-data-for-public-health-policy-making-policy-empowerment
#13
Laura Mählmann, Matthias Reumann, Nikolaos Evangelatos, Angela Brand
Digitization is considered to radically transform healthcare. As such, with seemingly unlimited opportunities to collect data, it will play an important role in the public health policy-making process. In this context, health data cooperatives (HDC) are a key component and core element for public health policy-making and for exploiting the potential of all the existing and rapidly emerging data sources. Being able to leverage all the data requires overcoming the computational, algorithmic, and technological challenges that characterize today's highly heterogeneous data landscape, as well as a host of diverse regulatory, normative, governance, and policy constraints...
2017: Public Health Genomics
https://www.readbyqxmd.com/read/29439273/effects-of-diet-on-telomere-length-systematic-review-and-meta-analysis
#14
Lisiane Marçal Pérez, Marina Azambuja Amaral, Eduardo Mundstock, Florencia M Barbé-Tuana, Fátima Teresinha Costa Rodrigues Guma, Marcus H Jones, Denise Cantarelli Machado, Edgar E Sarria, Maximiniano Marques E Marques, Luiza Tweedie Preto, Matias Epifanio, João Guilherme Meinem Garbin, Rita Mattiello
BACKGROUND: The goal of this systematic review and meta-analysis is to determine the effect of diet on telomere length. METHODS: We searched the following databases: MEDLINE, Embase, LILACS, CINAHL, ISI Web of Science, and Scopus, as well as the Cochrane Central Register of Controlled Trials and the National Institutes of Health, from inception to December 2016. Articles that assessed effects of diet on telomere length were included. RESULTS: A total of 2,128 studies were identified, 30 were read in full, and 7 were systematically reviewed...
2017: Public Health Genomics
https://www.readbyqxmd.com/read/29414817/attitudes-towards-personal-genomics-and-sharing-of-genetic-data-among-older-swiss-adults-a-qualitative-study
#15
Laura Mählmann, Sebastian Schee Gen Halfmann, Agnes von Wyl, Angela Brand
OBJECTIVE: To assess the willingness of older Swiss adults to share genetic data for research purposes and to investigate factors that might impact their willingness to share data. METHODS: Semi-structured interviews were conducted among 40 participants (19 male and 21 female) aged between 67 and 92 years, between December 2013 and April 2014 attending the Seniorenuniversität Zürich, Switzerland. All interviews were audio-recorded, transcribed verbatim, and anonymized...
2017: Public Health Genomics
https://www.readbyqxmd.com/read/29353273/metabolomics-in-sepsis-and-its-impact-on-public-health
#16
Nikolaos Evangelatos, Pia Bauer, Matthias Reumann, Kapaettu Satyamoorthy, Hans Lehrach, Angela Brand
Sepsis, with its often devastating consequences for patients and their families, remains a major public health concern that poses an increasing financial burden. Early resuscitation together with the elucidation of the biological pathways and pathophysiological mechanisms with the use of "-omics" technologies have started changing the clinical and research landscape in sepsis. Metabolomics (i.e., the study of the metabolome), an "-omics" technology further down in the "-omics" cascade between the genome and the phenome, could be particularly fruitful in sepsis research with the potential to alter the clinical practice...
2017: Public Health Genomics
https://www.readbyqxmd.com/read/29241213/antibiotics-induced-obesity-a-mitochondrial-perspective
#17
Melisa J Andrade, Chinchu Jayaprakash, Smitha Bhat, Nikolaos Evangelatos, Angela Brand, Kapaettu Satyamoorthy
Antibiotics are the first line of treatment against infections and have contributed immensely to reduce the morbidity and mortality rates. Recently, extensive use of antibiotics has led to alterations of the gut microbiome, predisposition to various diseases and most importantly, increase in the emergence of antibiotic-resistant bacteria, which poses a major threat to global public health. Another major issue faced worldwide due to unregulated use of antibiotics in children as well as in adults is the influence of metabolism and body weight homeostasis, leading to obesity...
2017: Public Health Genomics
https://www.readbyqxmd.com/read/29069661/genetics-and-insurance-in-australia-concerns-around-a-self-regulated-industry
#18
Ainsley J Newson, Jane Tiller, Louise A Keogh, Margaret Otlowski, Paul Lacaze
BACKGROUND: Regulating the use of genetic information in insurance is an issue of ongoing international debate. In Australia, providers of life and other mutually rated insurance products can request applicants to disclose all results from any genetic test. Insurers can then use this information to adjust premiums and make policy decisions. The Australian Financial Services Council (FSC; an industry body) developed and maintains the relevant industry standard, which was updated in late 2016...
2017: Public Health Genomics
https://www.readbyqxmd.com/read/29069655/online-education-and-e-consent-for-genescreen-a-preventive-genomic-screening-study
#19
R Jean Cadigan, Rita Butterfield, Christine Rini, Margaret Waltz, Kristine J Kuczynski, Kristin Muessig, Katrina A B Goddard, Gail E Henderson
BACKGROUND: Online study recruitment is increasingly popular, but we know little about the decision making that goes into joining studies in this manner. In GeneScreen, a genomic screening study that utilized online education and consent, we investigated participants' perceived ease when deciding to join and their understanding of key study features. METHODS: Individuals were recruited via mailings that directed them to a website where they could learn more about GeneScreen, consent to participate, and complete a survey...
2017: Public Health Genomics
https://www.readbyqxmd.com/read/29050032/providing-personalised-nutrition-consumers-trust-and-preferences-regarding-sources-of-information-service-providers-and-regulators-and-communication-channels
#20
Rui Poínhos, Bruno M P M Oliveira, Ivo A van der Lans, Arnout R H Fischer, Aleksandra Berezowska, Audrey Rankin, Sharron Kuznesof, Barbara Stewart-Knox, Lynn J Frewer, Maria D V de Almeida
BACKGROUND/AIMS: Personalised nutrition has potential to revolutionise dietary health promotion if accepted by the general public. We studied trust and preferences regarding personalised nutrition services, how they influence intention to adopt these services, and cultural and social differences therein. METHODS: A total of 9,381 participants were quota-sampled to be representative of each of 9 EU countries (Germany, Greece, Ireland, Poland, Portugal, Spain, the Netherlands, the UK, and Norway) and surveyed by a questionnaire assessing their intention to adopt personalised nutrition, trust in service regulators and information sources, and preferences for service providers and information channels...
2017: Public Health Genomics
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