journal
MENU ▼
Read by QxMD icon Read
search

Patient

journal
https://www.readbyqxmd.com/read/28005235/examination-of-the-applicability-of-the-disabilities-of-the-arm-shoulder-and-hand-dash-questionnaire-to-patients-with-hand-injuries-and-diseases-using-rasch-analysis
#1
Kathrin Braitmayer, Caroline Dereskewitz, Cornelia Oberhauser, Klaus-Dieter Rudolf, Michaela Coenen
BACKGROUND: The Disabilities of the Arm, Shoulder and Hand (DASH) Questionnaire is the most commonly applied patient-reported outcome measure used to assess disability and functioning in clinical research and practice for patients with injuries and diseases of the upper extremities. The objective of this study was to assess whether the DASH is a valid and reliable questionnaire to measure disability and functioning in patients with hand injuries and diseases using Rasch analysis. METHODS: We performed a psychometric study using data derived from two multicentre studies carried out to develop the International Classification of Functioning, Disability and Health (ICF) Core Sets for Hand Conditions...
December 22, 2016: Patient
https://www.readbyqxmd.com/read/28004275/perceived-benefits-and-factors-that-influence-the-ability-to-establish-and-maintain-patient-support-groups-in-rare-diseases-a-scoping-review
#2
REVIEW
Vanessa C Delisle, Stephanie T Gumuchian, Danielle B Rice, Alexander W Levis, Lorie A Kloda, Annett Körner, Brett D Thombs
BACKGROUND: Support groups are an important resource for many people living with rare diseases. The perceived benefits of participating in support groups for people with rare diseases and factors that may influence the ability to successfully establish and maintain these groups are not well understood. Thus, the objective of this scoping review was to provide a mapping of the available evidence on the (1) benefits or perceived benefits of participating in rare disease support groups and (2) barriers and facilitators of establishing and maintaining these groups...
December 21, 2016: Patient
https://www.readbyqxmd.com/read/27981439/development-and-content-validity-of-the-statin-experience-assessment-questionnaire-seaq-%C3%A2
#3
Terry A Jacobson, Steven V Edelman, Nina Galipeau, Alan L Shields, Usha G Mallya, Andrew Koren, Michael H Davidson
INTRODUCTION: The National Lipid Association Statin Intolerance (SI) Panel recognized the need for better understanding of the patient SI experience. OBJECTIVE: The objective of this research was to develop a patient-reported outcome (PRO) questionnaire to assess a patient's experience with SI. METHODS: Questionnaire development was informed via a series of research activities: literature review, concept elicitation, item generation, and content evaluation...
December 15, 2016: Patient
https://www.readbyqxmd.com/read/27905072/communicating-uncertainty-in-benefits-and-harms-a-review-of-patient-decision-support-interventions
#4
Nick Bansback, Madelaine Bell, Luke Spooner, Alysa Pompeo, Paul K J Han, Mark Harrison
BACKGROUND: Interventions designed to help people deliberate and participate in their healthcare choices frequently describe uncertainty in potential benefits and harms. This uncertainty can be generalized to aleatory, or first-order uncertainty, represented by risk estimates, and epistemic, or second-order uncertainty, represented by imprecision in the risk estimates. OBJECTIVES: The aim of this short communication was to review how patient decision support interventions (PDSIs) describe aleatory and epistemic uncertainty...
November 30, 2016: Patient
https://www.readbyqxmd.com/read/27882509/what-s-important-to-the-patient-informational-needs-of-patients-making-decisions-about-hepatitis-c-treatment
#5
Donna M Evon, Carol E Golin, Teodora Stoica, Rachel E Jones, Sarah J Willis, Joseph Galanko, Michael W Fried
BACKGROUND AND OBJECTIVES: Multiple treatment options with direct-acting antivirals are now available for hepatitis C virus (HCV). Study aims were to understand (1) the informational topics patients want to have to make informed treatment decisions; (2) the importance patients place on each topic; and (3) the topics patients prioritize as most important. METHODS: We used a mixed-methods study of two samples recruited from an academic liver center. Participants were not currently on treatment...
November 23, 2016: Patient
https://www.readbyqxmd.com/read/27866323/measuring-compassion-in-healthcare-a-comprehensive-and-critical-review
#6
REVIEW
Shane Sinclair, Lara B Russell, Thomas F Hack, Jane Kondejewski, Richard Sawatzky
BACKGROUND: There is international concern about the lack of compassion in healthcare systems. A valid and reliable tool for measuring compassion in healthcare systems and educational institutions is required. This comprehensive and critical narrative synthesis identified and compared existing measures of compassionate care in clinical settings. METHODS: PubMed, MEDLINE, CINAHL and PsycINFO databases and grey literature were searched to identify studies that report information on instruments that measure compassion or compassionate care in clinicians, nurses, healthcare students and patients...
November 19, 2016: Patient
https://www.readbyqxmd.com/read/27830457/patient-and-public-involvement-in-the-development-of-healthcare-guidance-an-overview-of-current-methods-and-future-challenges
#7
Ahmed Rashid, Victoria Thomas, Toni Shaw, Gillian Leng
Clinical guidelines and health technology assessments are valuable instruments to improve the quality of healthcare delivery and aim to integrate the best available evidence with real-world, expert context. The role of patient and public involvement in their development has grown in recent decades, and this article considers the international literature exploring aspects of this participation, including the integration of experiential and scientific knowledge, recruitment strategies, models of involvement, stages of involvement, and methods of evaluation...
November 9, 2016: Patient
https://www.readbyqxmd.com/read/27826812/acknowledgement-to-referees
#8
(no author information available yet)
No abstract text is available yet for this article.
November 8, 2016: Patient
https://www.readbyqxmd.com/read/27817182/is-financial-literacy-a-determinant-of-health
#9
Melanie Meyer
Changes in economic conditions and healthcare delivery models have shifted more healthcare costs to patients, resulting in greater patient financial responsibilities. As a result, it is important to understand the potential impact of financial literacy on patients' healthcare behavior. With the focus on delivering better health outcomes at lower costs, factors that influence patient behavior are important considerations for healthcare providers. Although researchers have proposed a variety of conceptual models that identify influential factors, those models do not fully address financial literacy and its potential impact patients' healthcare decisions...
November 5, 2016: Patient
https://www.readbyqxmd.com/read/27798816/a-systematic-review-of-financial-toxicity-among-cancer-survivors-we-can-t-pay-the-co-pay
#10
REVIEW
Louisa G Gordon, Katharina M D Merollini, Anthony Lowe, Raymond J Chan
OBJECTIVE: To determine the extent of financial toxicity (FT) among cancer survivors, identify the determinants and how FT is measured. METHODS: A systematic review was performed in MEDLINE, CINAHL and PsycINFO, using relevant terminology and included articles published from 1 January, 2013 to 30 June, 2016. We included observational studies where the primary outcomes included FT and study samples were greater than 200. The Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines were followed...
October 31, 2016: Patient
https://www.readbyqxmd.com/read/27798815/the-voice-of-the-patient-methodology-a-novel-mixed-methods-approach-to-identifying-treatment-goals-for-men-with-prostate-cancer
#11
Christopher S Saigal, Sylvia I Lambrechts, V Seenu Srinivasan, Ely Dahan
BACKGROUND: Many guidelines advocate the use of shared decision making for men with newly diagnosed prostate cancer. Decision aids can facilitate the process of shared decision making. Implicit in this approach is the idea that physicians understand which elements of treatment matter to patients. Little formal work exists to guide physicians or developers of decision aids in identifying these attributes. We use a mixed-methods technique adapted from marketing science, the 'Voice of the Patient', to describe and identify treatment elements of value for men with localized prostate cancer...
October 31, 2016: Patient
https://www.readbyqxmd.com/read/27798814/a-latent-class-analysis-to-identify-variation-in-caregivers-preferences-for-their-child-s-attention-deficit-hyperactivity-disorder-treatment-do-stated-preferences-match-current-treatment
#12
Xinyi Ng, John F P Bridges, Melissa M Ross, Emily Frosch, Gloria Reeves, Charles E Cunningham, Susan dosReis
OBJECTIVES: To investigate variation in caregiver preferences for their child's attention-deficit/hyperactivity disorder (ADHD) care and to determine if their stated preferences align with current care management. METHODS: Caregivers of a child aged 4-14 years and in care for ADHD were recruited from pediatric outpatient clinics and advocacy groups across the state of Maryland. Participants completed a survey collecting demographics, the child's treatment, and caregiver preferences-elicited using a best-worst scaling experiment (case 2)...
October 31, 2016: Patient
https://www.readbyqxmd.com/read/27167076/translating-evidence-to-facilitate-shared-decision-making-development-and-usability-of-a-consult-decision-aid-prototype
#13
Dawn Stacey, France Légaré, Anne Lyddiatt, Anik M C Giguere, Manosila Yoganathan, Anton Saarimaki, Jordi Pardo Pardo, Tamara Rader, Peter Tugwell
AIM: The purpose of this study was to translate evidence from Cochrane Reviews into a format that can be used to facilitate shared decision making during the consultation, namely patient decision aids. METHODS: A systematic development process (a) established a stakeholder committee; (b) developed a prototype according to the International Patient Decision Aid Standards; (c) applied the prototype to a Cochrane Review and used an interview-guided survey to evaluate acceptability/usability; (d) created 12 consult decision aids; and (e) used a Delphi process to reach consensus on considerations for creating a consult decision aid...
December 2016: Patient
https://www.readbyqxmd.com/read/27167075/patients-preferences-for-genomic-diagnostic-testing-in-chronic-lymphocytic-leukaemia-a-discrete-choice-experiment
#14
James Buchanan, Sarah Wordsworth, Anna Schuh
BACKGROUND: Genomic information could help to reduce the morbidity effects of inappropriate treatment decisions in many disease areas, in particular cancer. However, evidence of the benefits that patients derive from genomic testing is limited. This study evaluated patient preferences for genomic testing in the context of chronic lymphocytic leukaemia (CLL). METHODS: We used a discrete choice experiment (DCE) survey to assess the preferences of CLL patients in the UK for genomic testing...
December 2016: Patient
https://www.readbyqxmd.com/read/27155887/factors-in-patient-empowerment-a-survey-of-an-online-patient-research-network
#15
Emil Chiauzzi, Pronabesh DasMahapatra, Elisenda Cochin, Mikele Bunce, Raya Khoury, Purav Dave
BACKGROUND: Providers and healthcare organizations have begun recognizing the importance of patient empowerment as a driver of patient-centered care. Unfortunately, most studies have investigated empowerment with single diseases. Identifying factors of empowerment across conditions and populations would enable a greater understanding of this construct. OBJECTIVE: The purpose of this study was to understand empowerment in relation to health information-seeking, interactions with providers and peers, and healthcare access in chronic disease patients...
December 2016: Patient
https://www.readbyqxmd.com/read/27744499/the-patient-experience-with-soft-tissue-sarcoma-a-systematic-review-of-the-literature
#16
Randall Winnette, Lisa M Hess, Steven J Nicol, Datchen Fritz Tai, Catherine Copley-Merriman
BACKGROUND: Soft tissue sarcomas (STS) are a heterogenous group of rare tumors that involve the connective tissue in the body (e.g. muscle, tendons). As with many rare tumors, little is known about the impact of STS on patient well-being. OBJECTIVE: The aim of this review was to better understand current knowledge related to patient experience and quality of life (QOL) following diagnosis of STS. METHODS: A systematic review of English-language articles published from 2005 to 2015 was conducted in the PubMed/MEDLINE, Embase, PsychINFO, and Evidence-Based Medicine databases...
October 15, 2016: Patient
https://www.readbyqxmd.com/read/27738817/big-data-will-it-improve-patient-centered-care
#17
Denzil G Fiebig
Within a generation, empirical researchers have experienced unprecedented increases in the availability of data. 'Big data' has arrived with considerable hype and a sense that these are dramatic shifts in the research environment that have wide-reaching implications across many disciplines. There is no doubt that the analysis of new and varied sources of data currently available to researchers in health have the potential to better measure, monitor and describe health outcomes of patients and to uncover interesting patterns in how patients respond to treatments and interact with the health system...
October 13, 2016: Patient
https://www.readbyqxmd.com/read/27718132/the-therapy-attitudes-and-process-questionnaire-a-brief-measure-of-factors-related-to-psychotherapy-appointment-attendance
#18
Bonnie A Clough, Sonia M Nazareth, Leanne M Casey
BACKGROUND: Patient non-attendance and dropout remains problematic in mental health settings. The theory of planned behavior (TPB) has proven useful in understanding such challenges in a variety of healthcare settings, but the absence of an adequate measure in mental health has hampered research in this area. OBJECTIVE: The aim of the current study was to develop and conduct an initial psychometric investigation of a brief measure, the Therapy Attitudes and Process Questionnaire (TAP), utilizing the TPB to understand factors associated with attendance in mental health settings...
October 7, 2016: Patient
https://www.readbyqxmd.com/read/27704486/successful-stepwise-development-of-patient-research-partnership-14-years-experience-of-actions-and-consequences-in-outcome-measures-in-rheumatology-omeract
#19
Maarten de Wit, John R Kirwan, Peter Tugwell, Dorcas Beaton, Maarten Boers, Peter Brooks, Sarah Collins, Philip G Conaghan, Maria-Antonietta D'Agostino, Cathie Hofstetter, Rod Hughes, Amye Leong, Ann Lyddiatt, Lyn March, James May, Pamela Montie, Pamela Richards, Lee S Simon, Jasvinder A Singh, Vibeke Strand, Marieke Voshaar, Clifton O Bingham, Laure Gossec
There is increasing interest in making patient participation an integral component of medical research. However, practical guidance on optimizing this engagement in healthcare is scarce. Since 2002, patient involvement has been one of the key features of the Outcome Measures in Rheumatology (OMERACT) international consensus effort. Based on a review of cumulative data from qualitative studies and internal surveys among OMERACT participants, we explored the potential benefits and challenges of involving patient research partners in conferences and working group activities...
October 5, 2016: Patient
https://www.readbyqxmd.com/read/27581685/the-patient-voice-at-the-intersection-of-a-us-regulatory-revolution
#20
EDITORIAL
Peter J Pitts
No abstract text is available yet for this article.
October 2016: Patient
journal
journal
41668
1
2
Fetch more papers »
Fetching more papers... Fetching...
Read by QxMD. Sign in or create an account to discover new knowledge that matter to you.
Remove bar
Read by QxMD icon Read
×

Search Tips

Use Boolean operators: AND/OR

diabetic AND foot
diabetes OR diabetic

Exclude a word using the 'minus' sign

Virchow -triad

Use Parentheses

water AND (cup OR glass)

Add an asterisk (*) at end of a word to include word stems

Neuro* will search for Neurology, Neuroscientist, Neurological, and so on

Use quotes to search for an exact phrase

"primary prevention of cancer"
(heart or cardiac or cardio*) AND arrest -"American Heart Association"