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https://www.readbyqxmd.com/read/28710681/evaluating-the-european-health-literacy-survey-questionnaire-in-patients-with-stroke-a-latent-trait-analysis-using-rasch-modeling
#1
Yi-Jing Huang, Cheng-Te Chen, Gong-Hong Lin, Tzu-Yi Wu, Sheng-Shiung Chen, Li-Fong Lin, Wen-Hsuan Hou, Ching-Lin Hsieh
BACKGROUND: The effective self-management and treatment of long-term disability after stroke depends greatly on the health literacy of patients. The European Health Literacy Survey Questionnaire (HLS-EU-Q) is a comprehensive and theory-based measure that captures multiple self-perceived competencies of health literacy and covers a diverse range of health contexts. However, there is no psychometric evidence on the HLS-EU-Q in the stroke population. OBJECTIVE: The aim of this study was to examine the validity of the HLS-EU-Q in patients with stroke using Rasch analysis...
July 14, 2017: Patient
https://www.readbyqxmd.com/read/28710680/development-of-a-novel-tool-to-assess-the-impact-of-itching-in-pediatric-cholestasis
#2
Binita M Kamath, Linda Abetz-Webb, Ciara Kennedy, Bonnie Hepburn, Martha Gauthier, Nathan Johnson, Sharon Medendorp, Alejandro Dorenbaum, Lora Todorova, Benjamin L Shneider
OBJECTIVES: The aim was to develop a clinical outcome assessment (COA) for itching in children with cholestatic pruritus. METHODS: This prospective study aimed to enroll patients aged 4-30 years with Alagille syndrome (ALGS) or progressive familial intrahepatic cholestasis type 1 and caregivers of patients aged 5 months to 14 years. Eligible patients experienced itching during ≥3 of the 7 days before enrollment and had not undergone liver transplant or surgical interruption of the enterohepatic circulation...
July 14, 2017: Patient
https://www.readbyqxmd.com/read/28688021/inaugural-conference-on-incorporating-patient-reported-outcomes-and-patient-preference-information-into-clinical-research-clinical-care-and-risk-benefit-assessments-for-neurodegenerative-diseases
#3
LETTER
Jennifer L Purks, Erin E Wilhelm, Ira Shoulson, John Creveling, E Ray Dorsey, Telba Irony, Tara M LoCastro, Fernando Pagan, Bernard Ravina, Tanya Simuni, MaryAnne Sterling, Pierre Tariot, Karen E Anderson
No abstract text is available yet for this article.
July 7, 2017: Patient
https://www.readbyqxmd.com/read/28681319/measuring-health-related-quality-of-life-in-adolescent-populations-an-empirical-comparison-of-the-chu9d-and-the-pedsql-tm-4-0-short-form%C3%A2-15
#4
Karin Dam Petersen, Gang Chen, Christine Mpundu-Kaambwa, Katherine Stevens, John Brazier, Julie Ratcliffe
OBJECTIVE: The aim was to conduct an empirical assessment of the measurement properties of the preference-based Child Health Utility 9D (CHU9D) versus the non-preference-based Pediatric Quality of Life Inventory (PedsQL)™ 4.0 Short Form 15 Generic Core Scales (referred to as 'PedsQL') in an Australian community-based sample of adolescents. METHODS: An online survey including the CHU9D, the PedsQL, a self-reported general health question, and socio-demographic questions was administered to adolescents (aged 15-17 years)...
July 5, 2017: Patient
https://www.readbyqxmd.com/read/28660567/the-best-of-both-worlds-an-example-mixed-methods-approach-to-understand-men-s-preferences-for-the-treatment-of-lower-urinary-tract-symptoms
#5
Divine Ikenwilo, Sebastian Heidenreich, Mandy Ryan, Colette Mankowski, Jameel Nazir, Verity Watson
BACKGROUND: Discrete choice experiments (DCEs) are widely used to quantify individuals' preferences for healthcare. Guidelines recommend the design of DCEs should be informed by qualitative research. However, only a few studies go beyond guidelines by fully presenting qualitative and quantitative research jointly together in a mixed methods approach (MMA). OBJECTIVES: Using an example study about men's preferences for medical treatment of lower urinary tract symptoms (LUTS), we demonstrate how qualitative research can complement DCEs to gain a rich understanding of individuals' preferences...
June 28, 2017: Patient
https://www.readbyqxmd.com/read/28646416/assessing-preference-based-outcome-measures-for-overactive-bladder-an-evaluation-of-patient-reported-outcome-data-from-the-beside-clinical-trial
#6
REVIEW
Mike Herdman, Jameel Nazir, Zalmai Hakimi, Emad Siddiqui, Moses Huang, Marco Pavesi, Scott MacDiarmid, Marcus J Drake, Nancy Devlin
OBJECTIVES: The aim of this study was to compare outcomes using two preference-based measures of health status (EQ-5D-5L and OAB-5D) in patients with overactive bladder (OAB) treated with solifenacin plus mirabegron or solifenacin monotherapy in the BESIDE trial. METHODS: Patients with OAB who remained incontinent after 4 weeks' treatment with solifenacin 5 mg were randomized 1:1:1 to combination treatment (solifenacin 5 mg plus mirabegron [25 mg for the first 4 weeks/50 mg for the last 8 weeks]), solifenacin 5 mg, or solifenacin 10 mg...
June 23, 2017: Patient
https://www.readbyqxmd.com/read/28623629/predicting-euroqol-5-dimensions-5-levels-eq-5d-5l-utilities-from-older-people-s-quality-of-life-brief-questionnaire-opqol-brief-scores
#7
Billingsley Kaambwa, Julie Ratcliffe
BACKGROUND AND OBJECTIVE: Economic evaluation of healthcare treatment and services targeted at older people requires measurement of utility-based quality-of-life outcomes but it is not always possible to collect such outcome data. It may, however, be possible to estimate these outcomes using non-utility measures of quality of life where the latter have been collected. The objective of this study was to develop a regression-based algorithm to map a non-utility-based outcome, the Older People's Quality of Life brief questionnaire (OPQoL-brief), onto a utility-based outcome, the EuroQoL 5 Dimensions 5 Levels (EQ-5D-5L)...
June 16, 2017: Patient
https://www.readbyqxmd.com/read/28623628/does-patient-preference-measurement-in-decision-aids-improve-decisional-conflict-a-randomized-trial-in-men-with-prostate-cancer
#8
Joseph D Shirk, Catherine M Crespi, Josemanuel D Saucedo, Sylvia Lambrechts, Ely Dahan, Robert Kaplan, Christopher Saigal
BACKGROUND: Shared decision making (SDM) has been advocated as an approach to medical decision making that can improve decisional quality. Decision aids are tools that facilitate SDM in the context of limited physician time; however, many decision aids do not incorporate preference measurement. OBJECTIVES: We aim to understand whether adding preference measurement to a standard patient educational intervention improves decisional quality and is feasible in a busy clinical setting...
June 16, 2017: Patient
https://www.readbyqxmd.com/read/28616767/art-and-science-of-instrument-development-for-stated-preference-methods
#9
EDITORIAL
Ellen M Janssen, John F P Bridges
No abstract text is available yet for this article.
June 14, 2017: Patient
https://www.readbyqxmd.com/read/28608038/patient-values-and-preferences-surrounding-proton-pump-inhibitor-use-a-scoping-review
#10
REVIEW
Wade Thompson, Cody Black, Vivian Welch, Barbara Farrell, Lise M Bjerre, Peter Tugwell
BACKGROUND: Proton pump inhibitors (PPIs) treat various upper gastrointestinal (GI) diseases. Around 50% of patients may remain on PPIs long-term without ongoing need. Eligible patients should be offered the choice of continuing their PPI or trying to reduce/stop their PPI (deprescribing), a choice dependent on values and preferences. OBJECTIVES: Our objective was to systematically scope the available evidence on patient values and preferences surrounding continued PPI treatment and/or the decision to try a reduction in their PPI...
June 12, 2017: Patient
https://www.readbyqxmd.com/read/28597378/assessment-of-individual-patient-preferences-to-inform-clinical-practice
#11
LETTER
Jennifer Anne Whitty, Liana Fraenkel, Christopher S Saigal, Catharina G M Groothuis-Oudshoorn, Dean A Regier, Deborah A Marshall
No abstract text is available yet for this article.
June 8, 2017: Patient
https://www.readbyqxmd.com/read/28597377/health-preference-research-an-overview
#12
LETTER
Benjamin M Craig, Emily Lancsar, Axel C Mühlbacher, Derek S Brown, Jan Ostermann
No abstract text is available yet for this article.
June 8, 2017: Patient
https://www.readbyqxmd.com/read/28597376/health-valuation-demonstrating-the-value-of-health-and-lifespan
#13
LETTER
Elly A Stolk, Benjamin M Craig, Brendan Mulhern, Derek S Brown
No abstract text is available yet for this article.
June 8, 2017: Patient
https://www.readbyqxmd.com/read/28597375/preferences-for-health-interventions-improving-uptake-adherence-and-efficiency
#14
LETTER
Jan Ostermann, Derek S Brown, Esther W de Bekker-Grob, Axel C Mühlbacher, Shelby D Reed
No abstract text is available yet for this article.
June 8, 2017: Patient
https://www.readbyqxmd.com/read/28597374/giving-patients-a-meaningful-voice-in-united-states-regulatory-decision-making-the-role-for-health-preference-research
#15
LETTER
F Reed Johnson, Kathleen Beusterien, Semra Özdemir, Leslie Wilson
No abstract text is available yet for this article.
June 8, 2017: Patient
https://www.readbyqxmd.com/read/28597373/giving-patients-a-meaningful-voice-in-european-health-technology-assessments-the-role-of-health-preference-research
#16
LETTER
Axel C Mühlbacher, F Reed Johnson
No abstract text is available yet for this article.
June 8, 2017: Patient
https://www.readbyqxmd.com/read/28593574/challenges-of-realising-patient-centred-outcomes-for-deaf-patients
#17
Katherine D Rogers, Emma Ferguson-Coleman, Alys Young
In general populations, it has been recognised that patients play a key role in the quality of their own healthcare. However, the idea of realising patient-centred outcomes for the signing Deaf community, who experience the world in a visual way, raises some challenging issues that are rarely acknowledged. Using published research and translational health projects involving Deaf people both in the UK and internationally, this article discusses the challenges of realising patient-centred outcomes for Deaf people who are sign language users...
June 7, 2017: Patient
https://www.readbyqxmd.com/read/28589314/the-health-related-quality-of-life-of-chinese-patients-on-hemodialysis-and-peritoneal-dialysis
#18
Julie Yun Chen, Eric Yuk Fai Wan, Edmond Pui Hang Choi, Anca Ka Chun Chan, Karina Hiu Yen Chan, Joyce Pui Yan Tsang, Cindy Lo Kuen Lam
AIMS: Our aim was to compare health-related quality of life (HRQOL) between end-stage renal disease (ESRD) patients and the Hong Kong general population to identify how the mode of dialysis and other factors were associated with HRQOL. METHODS: We conducted a cross-sectional study involving 253 hemodialysis (HD) patients and 103 peritoneal dialysis (PD) patients recruited in 2014-2015. Their HRQOL was evaluated using Kidney Disease and Quality of Life-36 (KDQOL-36) sub-scale scores and the Short Form-6 Dimensions (SF-6D) health preference score...
June 6, 2017: Patient
https://www.readbyqxmd.com/read/28523465/development-and-validation-of-a-cross-country-hospital-patient-quality-of-care-assessment-tool-in-europe
#19
Amanda Villiers-Tuthill, Karolina Doulougeri, Hannah McGee, Anthony Montgomery, Efharis Panagopoulou, Karen Morgan
BACKGROUND: Patient perceptions of quality of care (QoC) are directly linked with patient safety and clinical effectiveness. We need patient-designed QoC instruments that work across languages and countries to optimise studies across systems in this area. Few QoC measurement tools exist that assess all aspects of QoC from the patient perspective. This paper describes the development and validation of a comprehensive measure to assess patient perceptions of QoC that incorporates technical and interpersonal aspects of care and is grounded in the established Institute of Medicine (IOM) QoC framework...
May 18, 2017: Patient
https://www.readbyqxmd.com/read/28510080/identifying-and-prioritizing-the-barriers-and-facilitators-to-the-self-management-of-type-2-diabetes-mellitus-a-community-centered-approach
#20
Allison H Oakes, Vincent S Garmo, Lee R Bone, Daniel R Longo, Jodi B Segal, John F P Bridges
OBJECTIVE: Self-management of type 2 diabetes mellitus is crucial to controlling the disease and preventing harm. Multiple factors have been identified in the literature as potential barriers and facilitators to self-management, but the magnitude and directionality of these factors are seldom studied. We sought to develop and test an instrument to identify and quantify the barriers and facilitators to self-management of type 2 diabetes. METHODS: A community-centered approach was used to design, implement, and interpret the results of a stated-preference study...
May 16, 2017: Patient
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