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https://www.readbyqxmd.com/read/28623629/predicting-euroqol-5-dimensions-5-levels-eq-5d-5l-utilities-from-older-people-s-quality-of-life-brief-questionnaire-opqol-brief-scores
#1
Billingsley Kaambwa, Julie Ratcliffe
BACKGROUND AND OBJECTIVE: Economic evaluation of healthcare treatment and services targeted at older people requires measurement of utility-based quality-of-life outcomes but it is not always possible to collect such outcome data. It may, however, be possible to estimate these outcomes using non-utility measures of quality of life where the latter have been collected. The objective of this study was to develop a regression-based algorithm to map a non-utility-based outcome, the Older People's Quality of Life brief questionnaire (OPQoL-brief), onto a utility-based outcome, the EuroQoL 5 Dimensions 5 Levels (EQ-5D-5L)...
June 16, 2017: Patient
https://www.readbyqxmd.com/read/28623628/does-patient-preference-measurement-in-decision-aids-improve-decisional-conflict-a-randomized-trial-in-men-with-prostate-cancer
#2
Joseph D Shirk, Catherine M Crespi, Josemanuel D Saucedo, Sylvia Lambrechts, Ely Dahan, Robert Kaplan, Christopher Saigal
BACKGROUND: Shared decision making (SDM) has been advocated as an approach to medical decision making that can improve decisional quality. Decision aids are tools that facilitate SDM in the context of limited physician time; however, many decision aids do not incorporate preference measurement. OBJECTIVES: We aim to understand whether adding preference measurement to a standard patient educational intervention improves decisional quality and is feasible in a busy clinical setting...
June 16, 2017: Patient
https://www.readbyqxmd.com/read/28616767/art-and-science-of-instrument-development-for-stated-preference-methods
#3
EDITORIAL
Ellen M Janssen, John F P Bridges
No abstract text is available yet for this article.
June 14, 2017: Patient
https://www.readbyqxmd.com/read/28608038/patient-values-and-preferences-surrounding-proton-pump-inhibitor-use-a-scoping-review
#4
REVIEW
Wade Thompson, Cody Black, Vivian Welch, Barbara Farrell, Lise M Bjerre, Peter Tugwell
BACKGROUND: Proton pump inhibitors (PPIs) treat various upper gastrointestinal (GI) diseases. Around 50% of patients may remain on PPIs long-term without ongoing need. Eligible patients should be offered the choice of continuing their PPI or trying to reduce/stop their PPI (deprescribing), a choice dependent on values and preferences. OBJECTIVES: Our objective was to systematically scope the available evidence on patient values and preferences surrounding continued PPI treatment and/or the decision to try a reduction in their PPI...
June 12, 2017: Patient
https://www.readbyqxmd.com/read/28597378/assessment-of-individual-patient-preferences-to-inform-clinical-practice
#5
LETTER
Jennifer Anne Whitty, Liana Fraenkel, Christopher S Saigal, Catharina G M Groothuis-Oudshoorn, Dean A Regier, Deborah A Marshall
No abstract text is available yet for this article.
June 8, 2017: Patient
https://www.readbyqxmd.com/read/28597377/health-preference-research-an-overview
#6
LETTER
Benjamin M Craig, Emily Lancsar, Axel C Mühlbacher, Derek S Brown, Jan Ostermann
No abstract text is available yet for this article.
June 8, 2017: Patient
https://www.readbyqxmd.com/read/28597376/health-valuation-demonstrating-the-value-of-health-and-lifespan
#7
LETTER
Elly A Stolk, Benjamin M Craig, Brendan Mulhern, Derek S Brown
No abstract text is available yet for this article.
June 8, 2017: Patient
https://www.readbyqxmd.com/read/28597375/preferences-for-health-interventions-improving-uptake-adherence-and-efficiency
#8
LETTER
Jan Ostermann, Derek S Brown, Esther W de Bekker-Grob, Axel C Mühlbacher, Shelby D Reed
No abstract text is available yet for this article.
June 8, 2017: Patient
https://www.readbyqxmd.com/read/28597374/giving-patients-a-meaningful-voice-in-united-states-regulatory-decision-making-the-role-for-health-preference-research
#9
LETTER
F Reed Johnson, Kathleen Beusterien, Semra Özdemir, Leslie Wilson
No abstract text is available yet for this article.
June 8, 2017: Patient
https://www.readbyqxmd.com/read/28597373/giving-patients-a-meaningful-voice-in-european-health-technology-assessments-the-role-of-health-preference-research
#10
LETTER
Axel C Mühlbacher, F Reed Johnson
No abstract text is available yet for this article.
June 8, 2017: Patient
https://www.readbyqxmd.com/read/28593574/challenges-of-realising-patient-centred-outcomes-for-deaf-patients
#11
Katherine D Rogers, Emma Ferguson-Coleman, Alys Young
In general populations, it has been recognised that patients play a key role in the quality of their own healthcare. However, the idea of realising patient-centred outcomes for the signing Deaf community, who experience the world in a visual way, raises some challenging issues that are rarely acknowledged. Using published research and translational health projects involving Deaf people both in the UK and internationally, this article discusses the challenges of realising patient-centred outcomes for Deaf people who are sign language users...
June 7, 2017: Patient
https://www.readbyqxmd.com/read/28589314/the-health-related-quality-of-life-of-chinese-patients-on-hemodialysis-and-peritoneal-dialysis
#12
Julie Yun Chen, Eric Yuk Fai Wan, Edmond Pui Hang Choi, Anca Ka Chun Chan, Karina Hiu Yen Chan, Joyce Pui Yan Tsang, Cindy Lo Kuen Lam
AIMS: Our aim was to compare health-related quality of life (HRQOL) between end-stage renal disease (ESRD) patients and the Hong Kong general population to identify how the mode of dialysis and other factors were associated with HRQOL. METHODS: We conducted a cross-sectional study involving 253 hemodialysis (HD) patients and 103 peritoneal dialysis (PD) patients recruited in 2014-2015. Their HRQOL was evaluated using Kidney Disease and Quality of Life-36 (KDQOL-36) sub-scale scores and the Short Form-6 Dimensions (SF-6D) health preference score...
June 6, 2017: Patient
https://www.readbyqxmd.com/read/28523465/development-and-validation-of-a-cross-country-hospital-patient-quality-of-care-assessment-tool-in-europe
#13
Amanda Villiers-Tuthill, Karolina Doulougeri, Hannah McGee, Anthony Montgomery, Efharis Panagopoulou, Karen Morgan
BACKGROUND: Patient perceptions of quality of care (QoC) are directly linked with patient safety and clinical effectiveness. We need patient-designed QoC instruments that work across languages and countries to optimise studies across systems in this area. Few QoC measurement tools exist that assess all aspects of QoC from the patient perspective. This paper describes the development and validation of a comprehensive measure to assess patient perceptions of QoC that incorporates technical and interpersonal aspects of care and is grounded in the established Institute of Medicine (IOM) QoC framework...
May 18, 2017: Patient
https://www.readbyqxmd.com/read/28510080/identifying-and-prioritizing-the-barriers-and-facilitators-to-the-self-management-of-type-2-diabetes-mellitus-a-community-centered-approach
#14
Allison H Oakes, Vincent S Garmo, Lee R Bone, Daniel R Longo, Jodi B Segal, John F P Bridges
OBJECTIVE: Self-management of type 2 diabetes mellitus is crucial to controlling the disease and preventing harm. Multiple factors have been identified in the literature as potential barriers and facilitators to self-management, but the magnitude and directionality of these factors are seldom studied. We sought to develop and test an instrument to identify and quantify the barriers and facilitators to self-management of type 2 diabetes. METHODS: A community-centered approach was used to design, implement, and interpret the results of a stated-preference study...
May 16, 2017: Patient
https://www.readbyqxmd.com/read/28508354/patient-and-public-preferences-for-treatment-attributes-in-parkinson-s-disease
#15
Marieke G M Weernink, Janine A van Til, Catharina G M Groothuis-Oudshoorn, Maarten J IJzerman
BACKGROUND: Patient and public preferences for therapeutic outcomes or medical technologies are often elicited, and discordance between the two is frequently reported. OBJECTIVE: Our main objective was to compare patient and public preferences for treatment attributes in Parkinson's disease (PD). METHODS: A representative sample from Dutch PD patients and the general public were invited to complete a best-worst scaling case 2 experiment consisting of six health-related outcomes and one attribute describing the specific treatment (brain surgery, pump, oral medication)...
May 15, 2017: Patient
https://www.readbyqxmd.com/read/28477080/choosing-a-doctor-does-presentation-format-affect-the-way-consumers-use-health-care-performance-information
#16
Patricia Kenny, Stephen Goodall, Deborah J Street, Jessica Greene
BACKGROUND: Choosing a new health service provider can be difficult and is dependent on the type and clarity of the information available. This study examines if the presentation of service quality information affects the decisions of consumers choosing a general medical practice. OBJECTIVES: The aim was to examine the impact of presentation format on attribute level interpretation and relative importance. METHODS: A discrete choice experiment eliciting preferences for a general medical practice was conducted using four different presentation formats for service quality attributes: (1) frequency and percentage with an icon array, (2) star ratings, (3) star ratings with a text benchmark, and (4) percentage alone...
May 5, 2017: Patient
https://www.readbyqxmd.com/read/28474295/individual-preferences-for-child-and-adolescent-vaccine-attributes-a-systematic-review-of-the-stated-preference-literature
#17
REVIEW
Christine Michaels-Igbokwe, Shannon MacDonald, Gillian R Currie
BACKGROUND: Discrete choice experiments are increasingly used to assess preferences for vaccines and vaccine service delivery. OBJECTIVES: To synthesize and critically assess the application of discrete choice experiments in childhood/adolescent vaccines, to describe how discrete choice experiments have been applied to understand preferences, and to evaluate the use of discrete choice experiment data to inform estimates of vaccine uptake. METHODS: We conducted a systematic review of six electronic databases...
May 4, 2017: Patient
https://www.readbyqxmd.com/read/28447273/patients-awareness-usage-and-impact-of-hospital-report-cards-in-the-us
#18
Martin Emmert, Mark Schlesinger
BACKGROUND: Little knowledge is available about the importance of hospital report cards in the US from the patients' perspective. It also remains unknown whether specific report cards with a stronger emphasis on clinical measures have a greater impact on hospital choice than general report cards that focus on online-derived ratings. OBJECTIVE: The aim of this study was to determine the awareness and usage of hospital report cards as well as their impact on hospital choice in the US...
April 26, 2017: Patient
https://www.readbyqxmd.com/read/28432593/talking-about-breast-cancer-which-symptoms-and-treatment-side-effects-are-important-to-patients-with-advanced-disease
#19
Anna Niklasson, Jean Paty, Anna Rydén
BACKGROUND: Patients' experience of symptoms and associated treatment is an increasingly important consideration in both regulatory and health technology assessments, and can inform treatment decisions. OBJECTIVE: This study aimed to gain insight directly from patients with advanced breast cancer about which symptoms and treatment side effects are important to them. METHODS: Women with locally advanced or metastatic breast cancer were interviewed individually by trained interviewers, using a semi-structured interview guide...
April 21, 2017: Patient
https://www.readbyqxmd.com/read/28425062/patients-lived-experiences-of-nocturia-a-qualitative-study-of-the-evening-the-night-and-the-next-day
#20
Andrew Trigg, Fredrik L Andersson, Natalie V J Aldhouse, Donald L Bliwise, Helen Kitchen
BACKGROUND: Nocturia, waking to urinate two or more times during the night, is a chronic condition associated with significant patient burden due to sleep disruption. This study aimed to explore the lived experiences of patients with nocturia in terms of the disruption to their lives during the night and day. METHODS: Adult patients in the US diagnosed with nocturia were recruited for face-to-face qualitative interviews. Thematic analysis of patients' narratives, taking a phenomenological interpretative approach, summarised their experiences throughout the night and day, including any apparent contrasts between patients...
April 19, 2017: Patient
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