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https://www.readbyqxmd.com/read/27905072/communicating-uncertainty-in-benefits-and-harms-a-review-of-patient-decision-support-interventions
#1
Nick Bansback, Madelaine Bell, Luke Spooner, Alysa Pompeo, Paul K J Han, Mark Harrison
BACKGROUND: Interventions designed to help people deliberate and participate in their healthcare choices frequently describe uncertainty in potential benefits and harms. This uncertainty can be generalized to aleatory, or first-order uncertainty, represented by risk estimates, and epistemic, or second-order uncertainty, represented by imprecision in the risk estimates. OBJECTIVES: The aim of this short communication was to review how patient decision support interventions (PDSIs) describe aleatory and epistemic uncertainty...
November 30, 2016: Patient
https://www.readbyqxmd.com/read/27882509/what-s-important-to-the-patient-informational-needs-of-patients-making-decisions-about-hepatitis-c-treatment
#2
Donna M Evon, Carol E Golin, Teodora Stoica, Rachel E Jones, Sarah J Willis, Joseph Galanko, Michael W Fried
BACKGROUND AND OBJECTIVES: Multiple treatment options with direct-acting antivirals are now available for hepatitis C virus (HCV). Study aims were to understand (1) the informational topics patients want to have to make informed treatment decisions; (2) the importance patients place on each topic; and (3) the topics patients prioritize as most important. METHODS: We used a mixed-methods study of two samples recruited from an academic liver center. Participants were not currently on treatment...
November 23, 2016: Patient
https://www.readbyqxmd.com/read/27866323/measuring-compassion-in-healthcare-a-comprehensive-and-critical-review
#3
REVIEW
Shane Sinclair, Lara B Russell, Thomas F Hack, Jane Kondejewski, Richard Sawatzky
BACKGROUND: There is international concern about the lack of compassion in healthcare systems. A valid and reliable tool for measuring compassion in healthcare systems and educational institutions is required. This comprehensive and critical narrative synthesis identified and compared existing measures of compassionate care in clinical settings. METHODS: PubMed, MEDLINE, CINAHL and PsycINFO databases and grey literature were searched to identify studies that report information on instruments that measure compassion or compassionate care in clinicians, nurses, healthcare students and patients...
November 19, 2016: Patient
https://www.readbyqxmd.com/read/27830457/patient-and-public-involvement-in-the-development-of-healthcare-guidance-an-overview-of-current-methods-and-future-challenges
#4
Ahmed Rashid, Victoria Thomas, Toni Shaw, Gillian Leng
Clinical guidelines and health technology assessments are valuable instruments to improve the quality of healthcare delivery and aim to integrate the best available evidence with real-world, expert context. The role of patient and public involvement in their development has grown in recent decades, and this article considers the international literature exploring aspects of this participation, including the integration of experiential and scientific knowledge, recruitment strategies, models of involvement, stages of involvement, and methods of evaluation...
November 9, 2016: Patient
https://www.readbyqxmd.com/read/27826812/acknowledgement-to-referees
#5
(no author information available yet)
No abstract text is available yet for this article.
November 8, 2016: Patient
https://www.readbyqxmd.com/read/27817182/is-financial-literacy-a-determinant-of-health
#6
Melanie Meyer
Changes in economic conditions and healthcare delivery models have shifted more healthcare costs to patients, resulting in greater patient financial responsibilities. As a result, it is important to understand the potential impact of financial literacy on patients' healthcare behavior. With the focus on delivering better health outcomes at lower costs, factors that influence patient behavior are important considerations for healthcare providers. Although researchers have proposed a variety of conceptual models that identify influential factors, those models do not fully address financial literacy and its potential impact patients' healthcare decisions...
November 5, 2016: Patient
https://www.readbyqxmd.com/read/27798816/a-systematic-review-of-financial-toxicity-among-cancer-survivors-we-can-t-pay-the-co-pay
#7
REVIEW
Louisa G Gordon, Katharina M D Merollini, Anthony Lowe, Raymond J Chan
OBJECTIVE: To determine the extent of financial toxicity (FT) among cancer survivors, identify the determinants and how FT is measured. METHODS: A systematic review was performed in MEDLINE, CINAHL and PsycINFO, using relevant terminology and included articles published from 1 January, 2013 to 30 June, 2016. We included observational studies where the primary outcomes included FT and study samples were greater than 200. The Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines were followed...
October 31, 2016: Patient
https://www.readbyqxmd.com/read/27798815/the-voice-of-the-patient-methodology-a-novel-mixed-methods-approach-to-identifying-treatment-goals-for-men-with-prostate-cancer
#8
Christopher S Saigal, Sylvia I Lambrechts, V Seenu Srinivasan, Ely Dahan
BACKGROUND: Many guidelines advocate the use of shared decision making for men with newly diagnosed prostate cancer. Decision aids can facilitate the process of shared decision making. Implicit in this approach is the idea that physicians understand which elements of treatment matter to patients. Little formal work exists to guide physicians or developers of decision aids in identifying these attributes. We use a mixed-methods technique adapted from marketing science, the 'Voice of the Patient', to describe and identify treatment elements of value for men with localized prostate cancer...
October 31, 2016: Patient
https://www.readbyqxmd.com/read/27798814/a-latent-class-analysis-to-identify-variation-in-caregivers-preferences-for-their-child-s-attention-deficit-hyperactivity-disorder-treatment-do-stated-preferences-match-current-treatment
#9
Xinyi Ng, John F P Bridges, Melissa M Ross, Emily Frosch, Gloria Reeves, Charles E Cunningham, Susan dosReis
OBJECTIVES: To investigate variation in caregiver preferences for their child's attention-deficit/hyperactivity disorder (ADHD) care and to determine if their stated preferences align with current care management. METHODS: Caregivers of a child aged 4-14 years and in care for ADHD were recruited from pediatric outpatient clinics and advocacy groups across the state of Maryland. Participants completed a survey collecting demographics, the child's treatment, and caregiver preferences-elicited using a best-worst scaling experiment (case 2)...
October 31, 2016: Patient
https://www.readbyqxmd.com/read/27744499/the-patient-experience-with-soft-tissue-sarcoma-a-systematic-review-of-the-literature
#10
Randall Winnette, Lisa M Hess, Steven J Nicol, Datchen Fritz Tai, Catherine Copley-Merriman
BACKGROUND: Soft tissue sarcomas (STS) are a heterogenous group of rare tumors that involve the connective tissue in the body (e.g. muscle, tendons). As with many rare tumors, little is known about the impact of STS on patient well-being. OBJECTIVE: The aim of this review was to better understand current knowledge related to patient experience and quality of life (QOL) following diagnosis of STS. METHODS: A systematic review of English-language articles published from 2005 to 2015 was conducted in the PubMed/MEDLINE, Embase, PsychINFO, and Evidence-Based Medicine databases...
October 15, 2016: Patient
https://www.readbyqxmd.com/read/27738817/big-data-will-it-improve-patient-centered-care
#11
Denzil G Fiebig
Within a generation, empirical researchers have experienced unprecedented increases in the availability of data. 'Big data' has arrived with considerable hype and a sense that these are dramatic shifts in the research environment that have wide-reaching implications across many disciplines. There is no doubt that the analysis of new and varied sources of data currently available to researchers in health have the potential to better measure, monitor and describe health outcomes of patients and to uncover interesting patterns in how patients respond to treatments and interact with the health system...
October 13, 2016: Patient
https://www.readbyqxmd.com/read/27718132/the-therapy-attitudes-and-process-questionnaire-a-brief-measure-of-factors-related-to-psychotherapy-appointment-attendance
#12
Bonnie A Clough, Sonia M Nazareth, Leanne M Casey
BACKGROUND: Patient non-attendance and dropout remains problematic in mental health settings. The theory of planned behavior (TPB) has proven useful in understanding such challenges in a variety of healthcare settings, but the absence of an adequate measure in mental health has hampered research in this area. OBJECTIVE: The aim of the current study was to develop and conduct an initial psychometric investigation of a brief measure, the Therapy Attitudes and Process Questionnaire (TAP), utilizing the TPB to understand factors associated with attendance in mental health settings...
October 7, 2016: Patient
https://www.readbyqxmd.com/read/27704486/successful-stepwise-development-of-patient-research-partnership-14-years-experience-of-actions-and-consequences-in-outcome-measures-in-rheumatology-omeract
#13
Maarten de Wit, John R Kirwan, Peter Tugwell, Dorcas Beaton, Maarten Boers, Peter Brooks, Sarah Collins, Philip G Conaghan, Maria-Antonietta D'Agostino, Cathie Hofstetter, Rod Hughes, Amye Leong, Ann Lyddiatt, Lyn March, James May, Pamela Montie, Pamela Richards, Lee S Simon, Jasvinder A Singh, Vibeke Strand, Marieke Voshaar, Clifton O Bingham, Laure Gossec
There is increasing interest in making patient participation an integral component of medical research. However, practical guidance on optimizing this engagement in healthcare is scarce. Since 2002, patient involvement has been one of the key features of the Outcome Measures in Rheumatology (OMERACT) international consensus effort. Based on a review of cumulative data from qualitative studies and internal surveys among OMERACT participants, we explored the potential benefits and challenges of involving patient research partners in conferences and working group activities...
October 5, 2016: Patient
https://www.readbyqxmd.com/read/27658673/engaging-patient-advocates-and-other-stakeholders-to-design-measures-of-patient-centered-communication-in-cancer-care
#14
Katherine Treiman, Lauren McCormack, Murrey Olmsted, Nancy Roach, Bryce B Reeve, Christa E Martens, Rebecca R Moultrie, Hanna Sanoff
BACKGROUND: Patient-centered communication (PCC) is an essential component of patient-centered care and contributes to patient satisfaction, health-related quality of life, and other important patient outcomes. OBJECTIVE: The aim of this study was to develop and test survey questions to assess patients' experiences with PCC in cancer care. METHODS: We used a conceptual model developed by the National Cancer Institute as our framework. The survey questions align with the six core functions of PCC defined in the model: Exchanging Information, Managing Uncertainty, Enabling Patient Self-Management, Fostering Healing Relationships, Making Decisions, and Responding to Emotions...
September 23, 2016: Patient
https://www.readbyqxmd.com/read/27646693/using-proms-in-healthcare-who-should-be-in-the-driving-seat-policy-makers-health-professionals-methodologists-or-patients
#15
Kirstie L Haywood, Roger Wilson, Sophie Staniszewska, Sam Salek
No abstract text is available yet for this article.
September 19, 2016: Patient
https://www.readbyqxmd.com/read/27637488/a-review-of-hiv-specific-patient-reported-outcome-measures
#16
Kim Engler, David Lessard, Bertrand Lebouché
The use of patient-reported outcome (PRO) measures to provide added feedback to health providers is receiving interest as a means of improving clinical care and patient outcomes, and contributing to more patient-centered care. In human immunodeficiency virus (HIV), while PROs are used in research, their application in clinical practice has been limited despite their potential utility. PRO selection is an important consideration when contemplating their use. As past reviews of PROs in HIV have focused on particular areas (e...
September 16, 2016: Patient
https://www.readbyqxmd.com/read/27637487/impact-of-measuring-patient-reported-outcomes-in-dermatology-drug-development
#17
Catherine Copley-Merriman, Susan Zelt, Marci Clark, Ari Gnanasakthy
Although some symptoms of dermatologic diseases, such as pruritus and pain, can be subjectively assessed only by patients, the most commonly used endpoints in dermatology drug research traditionally have been clinician-reported outcomes. Research has found that patient-reported outcomes (PROs) were included in only one-quarter of 125 trials conducted between 1994 and 2001. Our objective was to characterize the impact of PROs in dermatology drug development from the patient, prescriber, regulator, payer, and manufacturer perspectives using a case study approach...
September 15, 2016: Patient
https://www.readbyqxmd.com/read/27637486/symptoms-and-functional-limitations-in-the-first-year-following-a-myocardial-infarction-a-qualitative-study
#18
Chad Gwaltney, Matthew Reaney, Meaghan Krohe, Mona M Martin, Heather Falvey, Patrick Mollon
BACKGROUND AND OBJECTIVES: This qualitative interview study was designed to highlight the symptoms and functional limitations experienced by patients in the year following a myocardial infarction (MI). This information can support the use or development of patient-reported outcome (PRO) instruments in the post-MI population. METHODS: Individual face-to-face interviews were conducted with 38 participants who had experienced an MI (with or without ST segment elevation) within the past month to <6 months (n = 17), or 6 months to ≤12 months (n = 21)...
September 14, 2016: Patient
https://www.readbyqxmd.com/read/27167076/translating-evidence-to-facilitate-shared-decision-making-development-and-usability-of-a-consult-decision-aid-prototype
#19
Dawn Stacey, France Légaré, Anne Lyddiatt, Anik M C Giguere, Manosila Yoganathan, Anton Saarimaki, Jordi Pardo Pardo, Tamara Rader, Peter Tugwell
AIM: The purpose of this study was to translate evidence from Cochrane Reviews into a format that can be used to facilitate shared decision making during the consultation, namely patient decision aids. METHODS: A systematic development process (a) established a stakeholder committee; (b) developed a prototype according to the International Patient Decision Aid Standards; (c) applied the prototype to a Cochrane Review and used an interview-guided survey to evaluate acceptability/usability; (d) created 12 consult decision aids; and (e) used a Delphi process to reach consensus on considerations for creating a consult decision aid...
December 2016: Patient
https://www.readbyqxmd.com/read/27155887/factors-in-patient-empowerment-a-survey-of-an-online-patient-research-network
#20
Emil Chiauzzi, Pronabesh DasMahapatra, Elisenda Cochin, Mikele Bunce, Raya Khoury, Purav Dave
BACKGROUND: Providers and healthcare organizations have begun recognizing the importance of patient empowerment as a driver of patient-centered care. Unfortunately, most studies have investigated empowerment with single diseases. Identifying factors of empowerment across conditions and populations would enable a greater understanding of this construct. OBJECTIVE: The purpose of this study was to understand empowerment in relation to health information-seeking, interactions with providers and peers, and healthcare access in chronic disease patients...
December 2016: Patient
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