journal
MENU ▼
Read by QxMD icon Read
search

Patient

journal
https://www.readbyqxmd.com/read/29197944/experience-of-symptoms-and-disease-impact-in-patients-with-adenomyosis
#1
Linda M Nelsen, William R Lenderking, Robin Pokrzywinski, Zaneta Balantac, Libby Black, Shibani Pokras, Mary Beth Enslin, Melisa Cooper, Andrea S Lukes
BACKGROUND: Adenomyosis is a poorly understood, benign disease of the uterus. OBJECTIVE: In this study, patient interviews were conducted to characterize the symptoms and impact of adenomyosis. METHODS: This was a cross-sectional study in which women with adenomyosis were recruited from five US clinics and a health-related social network forum. Participants (aged 18-55 years) were pre-menopausal with a history of regular menstrual cycles...
December 2, 2017: Patient
https://www.readbyqxmd.com/read/29177797/a-systematic-review-comparing-the-acceptability-validity-and-concordance-of-discrete-choice-experiments-and-best-worst-scaling-for-eliciting-preferences-in-healthcare
#2
REVIEW
Jennifer A Whitty, Ana Sofia Oliveira Gonçalves
OBJECTIVE: The aim of this study was to compare the acceptability, validity and concordance of discrete choice experiment (DCE) and best-worst scaling (BWS) stated preference approaches in health. METHODS: A systematic search of EMBASE, Medline, AMED, PubMed, CINAHL, Cochrane Library and EconLit databases was undertaken in October to December 2016 without date restriction. Studies were included if they were published in English, presented empirical data related to the administration or findings of traditional format DCE and object-, profile- or multiprofile-case BWS, and were related to health...
November 25, 2017: Patient
https://www.readbyqxmd.com/read/29178024/does-egfr-mutation-type-influence-patient-reported-outcomes-in-patients-with-advanced-egfr-mutation-positive-non-small-cell-lung-cancer-analysis-of-two-large-phase-iii-studies-comparing-afatinib-with-chemotherapy-lux-lung-3-and-lux-lung-6
#3
Yi-Long Wu, Vera Hirsh, Lecia V Sequist, Cheng-Ping Hu, Jifeng Feng, Shun Lu, Yunchao Huang, Martin Schuler, Tony Mok, Nobuyuki Yamamoto, Kenneth O'Byrne, Sarayut L Geater, Caicun Zhou, Dan Massey, Angela Märten, Juliane Lungershausen, James Chih-Hsin Yang
INTRODUCTION: In LUX-Lung 3 and LUX-Lung 6, afatinib significantly improved progression-free survival (PFS) versus chemotherapy in patients with tumors harboring common epidermal growth factor receptor (EGFR) mutations (Del19/L858R) and significantly improved overall survival (OS) in patients with tumors harboring Del19 mutations. Patient-reported outcomes stratified by EGFR mutation type are reported. PATIENTS AND METHODS: Lung cancer symptoms and health-related quality of life (QoL) were assessed every 21 days until progression using the EORTC Quality of Life Core Questionnaire C30 and its lung cancer-specific module, LC13...
November 24, 2017: Patient
https://www.readbyqxmd.com/read/29164493/mapping-quality-of-life-eq-5d-from-dapsa-clinical-dapsa-and-haq-in-psoriatic-arthritis
#4
Tomas Mlcoch, Jan Tuzil, Liliana Sedova, Jiri Stolfa, Monika Urbanova, David Suchy, Andrea Smrzova, Jitka Jircikova, Tereza Hrnciarova, Karel Pavelka, Tomas Dolezal
BACKGROUND: Clinical trials and observational studies lacking measures of health-related quality of life (QoL) are often inapplicable when conducting cost-effectiveness analyses using quality-adjusted life-years (QALYs). The only solution is to map QoL ex post from additionally collected clinical outcomes and generic QoL instruments. Nonetheless, mapping studies are absent in psoriatic arthritis (PsA). METHODS: In this 2-year, prospective, multicentre, non-interventional study of PsA patients, EQ-5D and key clinical parameters such as Disease Activity in PsA (DAPsA), clinical DAPsA (cDAPsA; DAPsA without C-reactive protein [CRP]), and Health Assessment Questionnaire disability index (HAQ) were collected...
November 21, 2017: Patient
https://www.readbyqxmd.com/read/29071525/the-primacy-of-patient-centered-outcomes-in-tracheostomy-care
#5
LETTER
Erin Ward, Vinciya Pandian, Michael J Brenner
No abstract text is available yet for this article.
October 25, 2017: Patient
https://www.readbyqxmd.com/read/29071524/symptom-monitoring-in-pediatric-oncology-using-patient-reported-outcomes-why-how-and-where-next
#6
Allison Barz Leahy, Chris Feudtner, Ethan Basch
Symptom monitoring using patient-reported outcomes (PROs) is not common in pediatric oncology, despite interest from stakeholders-including patients, families, clinicians, and regulatory organizations-and proven clinical benefit in adult oncology. This article examines the foundational data for patient-reported symptom reporting in this population and posits the next investigative steps toward the implementation of patient-reported symptom monitoring in the care and research of pediatric oncology patients. The reasoning behind, and feasibility of, monitoring symptoms in pediatric oncology patients using PRO measures are discussed, as well as specific tools that have been developed to track symptoms in this population, including innovative electronic self-reporting platforms built to engage children in the symptom reporting process...
October 25, 2017: Patient
https://www.readbyqxmd.com/read/29032437/scale-heterogeneity-in-healthcare-discrete-choice-experiments-a-primer
#7
Caroline M Vass, Stuart Wright, Michael Burton, Katherine Payne
Discrete choice experiments (DCEs) are used to quantify the preferences of specified sample populations for different aspects of a good or service and are increasingly used to value interventions and services related to healthcare. Systematic reviews of healthcare DCEs have focussed on the trends over time of specific design issues and changes in the approach to analysis, with a more recent move towards consideration of a specific type of variation in preferences within the sample population, called taste heterogeneity, noting rises in the popularity of mixed logit and latent class models...
October 14, 2017: Patient
https://www.readbyqxmd.com/read/29030831/practical-considerations-for-using-online-methods-to-engage-patients-in-guideline-development
#8
Sean Grant, Glen S Hazlewood, Holly L Peay, Ann Lucas, Ian Coulter, Arlene Fink, Dmitry Khodyakov
Clinical practice guidelines (CPGs) have been widely used in healthcare policy, practice, and for suggesting future research. As patients increasingly become involved in CPG development to produce patient-centered recommendations, more research is needed on methods to engage patients, particularly methods allowing for scalable engagement of large, diverse, and geographically distributed groups of patients. In this article, we discuss practical considerations for using online methods to engage patients in CPG development...
October 13, 2017: Patient
https://www.readbyqxmd.com/read/29019161/assessing-the-use-of-a-feedback-module-to-model-eq-5d-5l-health-states-values-in-hong-kong
#9
Eliza L Y Wong, Juan Manuel Ramos-Goñi, Annie W L Cheung, Amy Y K Wong, Oliver Rivero-Arias
BACKGROUND: An international valuation protocol exists for obtaining societal values for each of the 3125 health states of the five-level EuroQol-five dimensions (EQ-5D-5L) questionnaire. A feedback module (FM) that can be related to theoretical models used in behavioral economics was recently included in this protocol. OBJECTIVES: Our objective was to assess the impact of using an FM to estimate an EQ-5D-5L value set in Hong Kong. METHODS: EQ-5D-5L health states were elicited using a composite time trade-off (C-TTO) and a discrete-choice (DC) experiment...
October 10, 2017: Patient
https://www.readbyqxmd.com/read/28956281/patient-evaluation-of-satisfaction-and-outcomes-with-an-autoinjector-for-self-administration-of-subcutaneous-belimumab-in-patients-with-systemic-lupus-erythematosus
#10
Ebony Dashiell-Aje, Gale Harding, Katie Pascoe, Jane DeVries, Pamela Berry, Sulabha Ramachandran
OBJECTIVE: This study assessed patient experiences of using an autoinjector device to self-administer subcutaneous belimumab for the treatment of systemic lupus erythematosus (SLE). Satisfaction, ease and convenience of use, and confidence with the device were assessed, in addition to overall experience with belimumab. METHODS: This cross-sectional study was conducted among patients who completed a phase IIb open-label, multi-dose usability, tolerability, and safety study of subcutaneous belimumab (NCT02124798), in which patients receiving intravenous belimumab or subcutaneous belimumab using a prefilled syringe were switched to eight weekly self-administered doses of subcutaneous belimumab using the autoinjector...
September 27, 2017: Patient
https://www.readbyqxmd.com/read/28914429/a-systematic-review-of-patient-and-caregiver-experiences-with-a-tracheostomy
#11
REVIEW
Ivana Nakarada-Kordic, Niamh Patterson, Jill Wrapson, Stephen D Reay
BACKGROUND: A tracheostomy is a surgically created opening through the anterior neck tissues and the trachea, into which a tube is inserted. Despite its influence on basic human needs such as respiration, communication and nutrition, little is known about the impact of tracheostomy on patients and their caregivers or what could be done to enable better care and quality of life (QoL) for these individuals. OBJECTIVE: The aim of this review was to better understand the current knowledge related to the experience and QoL of adults living with a tracheostomy and their caregivers so as to be able to improve these experiences...
September 15, 2017: Patient
https://www.readbyqxmd.com/read/29076077/innovation-in-chronic-kidney-disease-the-need-for-the-patient-voice
#12
LETTER
Kevin Fowler
No abstract text is available yet for this article.
December 2017: Patient
https://www.readbyqxmd.com/read/28646416/assessing-preference-based-outcome-measures-for-overactive-bladder-an-evaluation-of-patient-reported-outcome-data-from-the-beside-clinical-trial
#13
REVIEW
Mike Herdman, Jameel Nazir, Zalmai Hakimi, Emad Siddiqui, Moses Huang, Marco Pavesi, Scott MacDiarmid, Marcus J Drake, Nancy Devlin
OBJECTIVES: The aim of this study was to compare outcomes using two preference-based measures of health status (EQ-5D-5L and OAB-5D) in patients with overactive bladder (OAB) treated with solifenacin plus mirabegron or solifenacin monotherapy in the BESIDE trial. METHODS: Patients with OAB who remained incontinent after 4 weeks' treatment with solifenacin 5 mg were randomized 1:1:1 to combination treatment (solifenacin 5 mg plus mirabegron [25 mg for the first 4 weeks/50 mg for the last 8 weeks]), solifenacin 5 mg, or solifenacin 10 mg...
December 2017: Patient
https://www.readbyqxmd.com/read/28589314/the-health-related-quality-of-life-of-chinese-patients-on-hemodialysis-and-peritoneal-dialysis
#14
Julie Yun Chen, Eric Yuk Fai Wan, Edmond Pui Hang Choi, Anca Ka Chun Chan, Karina Hiu Yen Chan, Joyce Pui Yan Tsang, Cindy Lo Kuen Lam
AIMS: Our aim was to compare health-related quality of life (HRQOL) between end-stage renal disease (ESRD) patients and the Hong Kong general population to identify how the mode of dialysis and other factors were associated with HRQOL. METHODS: We conducted a cross-sectional study involving 253 hemodialysis (HD) patients and 103 peritoneal dialysis (PD) patients recruited in 2014-2015. Their HRQOL was evaluated using Kidney Disease and Quality of Life-36 (KDQOL-36) sub-scale scores and the Short Form-6 Dimensions (SF-6D) health preference score...
December 2017: Patient
https://www.readbyqxmd.com/read/28523465/development-and-validation-of-a-cross-country-hospital-patient-quality-of-care-assessment-tool-in-europe
#15
Amanda Villiers-Tuthill, Karolina Doulougeri, Hannah McGee, Anthony Montgomery, Efharis Panagopoulou, Karen Morgan
BACKGROUND: Patient perceptions of quality of care (QoC) are directly linked with patient safety and clinical effectiveness. We need patient-designed QoC instruments that work across languages and countries to optimise studies across systems in this area. Few QoC measurement tools exist that assess all aspects of QoC from the patient perspective. This paper describes the development and validation of a comprehensive measure to assess patient perceptions of QoC that incorporates technical and interpersonal aspects of care and is grounded in the established Institute of Medicine (IOM) QoC framework...
December 2017: Patient
https://www.readbyqxmd.com/read/28510080/identifying-and-prioritizing-the-barriers-and-facilitators-to-the-self-management-of-type-2-diabetes-mellitus-a-community-centered-approach
#16
Allison H Oakes, Vincent S Garmo, Lee R Bone, Daniel R Longo, Jodi B Segal, John F P Bridges
OBJECTIVE: Self-management of type 2 diabetes mellitus is crucial to controlling the disease and preventing harm. Multiple factors have been identified in the literature as potential barriers and facilitators to self-management, but the magnitude and directionality of these factors are seldom studied. We sought to develop and test an instrument to identify and quantify the barriers and facilitators to self-management of type 2 diabetes. METHODS: A community-centered approach was used to design, implement, and interpret the results of a stated-preference study...
December 2017: Patient
https://www.readbyqxmd.com/read/28508354/patient-and-public-preferences-for-treatment-attributes-in-parkinson-s-disease
#17
Marieke G M Weernink, Janine A van Til, Catharina G M Groothuis-Oudshoorn, Maarten J IJzerman
BACKGROUND: Patient and public preferences for therapeutic outcomes or medical technologies are often elicited, and discordance between the two is frequently reported. OBJECTIVE: Our main objective was to compare patient and public preferences for treatment attributes in Parkinson's disease (PD). METHODS: A representative sample from Dutch PD patients and the general public were invited to complete a best-worst scaling case 2 experiment consisting of six health-related outcomes and one attribute describing the specific treatment (brain surgery, pump, oral medication)...
December 2017: Patient
https://www.readbyqxmd.com/read/28477080/choosing-a-doctor-does-presentation-format-affect-the-way-consumers-use-health-care-performance-information
#18
Patricia Kenny, Stephen Goodall, Deborah J Street, Jessica Greene
BACKGROUND: Choosing a new health service provider can be difficult and is dependent on the type and clarity of the information available. This study examines if the presentation of service quality information affects the decisions of consumers choosing a general medical practice. OBJECTIVES: The aim was to examine the impact of presentation format on attribute level interpretation and relative importance. METHODS: A discrete choice experiment eliciting preferences for a general medical practice was conducted using four different presentation formats for service quality attributes: (1) frequency and percentage with an icon array, (2) star ratings, (3) star ratings with a text benchmark, and (4) percentage alone...
December 2017: Patient
https://www.readbyqxmd.com/read/28474295/individual-preferences-for-child-and-adolescent-vaccine-attributes-a-systematic-review-of-the-stated-preference-literature
#19
REVIEW
Christine Michaels-Igbokwe, Shannon MacDonald, Gillian R Currie
BACKGROUND: Discrete choice experiments are increasingly used to assess preferences for vaccines and vaccine service delivery. OBJECTIVES: To synthesize and critically assess the application of discrete choice experiments in childhood/adolescent vaccines, to describe how discrete choice experiments have been applied to understand preferences, and to evaluate the use of discrete choice experiment data to inform estimates of vaccine uptake. METHODS: We conducted a systematic review of six electronic databases...
December 2017: Patient
https://www.readbyqxmd.com/read/28447273/patients-awareness-usage-and-impact-of-hospital-report-cards-in-the-us
#20
Martin Emmert, Mark Schlesinger
BACKGROUND: Little knowledge is available about the importance of hospital report cards in the US from the patients' perspective. It also remains unknown whether specific report cards with a stronger emphasis on clinical measures have a greater impact on hospital choice than general report cards that focus on online-derived ratings. OBJECTIVE: The aim of this study was to determine the awareness and usage of hospital report cards as well as their impact on hospital choice in the US...
December 2017: Patient
journal
journal
41668
1
2
Fetch more papers »
Fetching more papers... Fetching...
Read by QxMD. Sign in or create an account to discover new knowledge that matter to you.
Remove bar
Read by QxMD icon Read
×

Search Tips

Use Boolean operators: AND/OR

diabetic AND foot
diabetes OR diabetic

Exclude a word using the 'minus' sign

Virchow -triad

Use Parentheses

water AND (cup OR glass)

Add an asterisk (*) at end of a word to include word stems

Neuro* will search for Neurology, Neuroscientist, Neurological, and so on

Use quotes to search for an exact phrase

"primary prevention of cancer"
(heart or cardiac or cardio*) AND arrest -"American Heart Association"