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Journal of Cancer Survivorship: Research and Practice

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https://www.readbyqxmd.com/read/28721677/the-pervasive-nature-of-uncertainty-a-qualitative-study-of-patients-with-advanced-cancer-and-their-informal-caregivers
#1
Valerie Shilling, Rachel Starkings, Valerie Jenkins, Lesley Fallowfield
PURPOSE: The aim of this study was to explore the impact of extended cancer survival on broader aspects of life and wellbeing such as occupational, financial and family life for patients with advanced cancer and their nominated informal caregivers. METHODS: In-depth qualitative interviews were transcribed verbatim. A thematic framework was developed from an initial process of open coding and tested iteratively as new data were collected. RESULTS: Twenty-four patient-caregiver dyads with advanced ovarian (9), melanoma (9) or lung cancer (6)...
July 18, 2017: Journal of Cancer Survivorship: Research and Practice
https://www.readbyqxmd.com/read/28710544/employers-experience-of-employees-with-cancer-trajectories-of-complex-communication
#2
C M Tiedtke, B Dierckx de Casterlé, M H W Frings-Dresen, A G E M De Boer, M A Greidanus, S J Tamminga, A E De Rijk
PURPOSE: Remaining in paid work is of great importance for cancer survivors, and employers play a crucial role in achieving this. Return to work (RTW) is best seen as a process. This study aims to provide insight into (1) Dutch employers' experiences with RTW of employees with cancer and (2) the employers' needs for support regarding this process. METHODS: Thirty employer representatives of medium and large for-profit and non-profit organizations were interviewed to investigate their experiences and needs in relation to employees with cancer...
July 14, 2017: Journal of Cancer Survivorship: Research and Practice
https://www.readbyqxmd.com/read/28698999/long-term-effectiveness-and-moderators-of-a-web-based-tailored-intervention-for-cancer-survivors-on-social-and-emotional-functioning-depression-and-fatigue-randomized-controlled-trial
#3
Roy A Willems, Ilse Mesters, Lilian Lechner, Iris M Kanera, Catherine A W Bolman
PURPOSE: The web-based computer-tailored Kanker Nazorg Wijzer (Cancer Aftercare Guide) supports cancer survivors with psychosocial issues during cancer recovery. The current study investigates whether the 6-month effects in increasing emotional and social functioning and reducing depression and fatigue hold at 12 months from baseline. Moreover, it explores whether patient characteristics moderate the 6- and 12-month intervention effectiveness. METHODS: Cancer survivors from 21 Dutch hospitals (November 2013-June 2014) were randomized to an intervention (n = 231) or a wait-list control group (n = 231)...
July 11, 2017: Journal of Cancer Survivorship: Research and Practice
https://www.readbyqxmd.com/read/28669098/associations-between-treatment-scoliosis-pulmonary-function-and-physical-performance-in-long-term-survivors-of-sarcoma
#4
Rodrigo B Interiano, Sue C Kaste, Chenghong Li, Deo Kumar Srivastava, Bhaskar N Rao, William C Warner, Daniel M Green, Matthew J Krasin, Leslie L Robison, Andrew M Davidoff, Melissa M Hudson, Israel Fernandez-Pineda, Kirsten K Ness
PURPOSE: Longer survival for children with sarcoma has led to the recognition of chronic health conditions related to prior therapy. We sought to study the association of sarcoma therapy with the development of scoliosis. METHODS: We reviewed patient demographics, treatment exposures, and functional outcomes for patients surviving >10 years after treatment for sarcoma between 1964 and 2002 at our institution. The diagnosis of scoliosis was determined by imaging...
July 1, 2017: Journal of Cancer Survivorship: Research and Practice
https://www.readbyqxmd.com/read/28639159/a-systematic-review-of-patient-perspectives-on-surveillance-after-colorectal-cancer-treatment
#5
REVIEW
Julia R Berian, Amanda Cuddy, Amanda B Francescatti, Linda O'Dwyer, Y Nancy You, Robert J Volk, George J Chang
PURPOSE: Surveillance after colorectal cancer (CRC) treatment is routine, but intensive follow-up may offer little-to-no overall survival benefit. Given the growing population of CRC survivors, we aimed to systematically evaluate the literature for the patient perspective on two questions: (1) How do CRC patients perceive routine surveillance following curative treatment and what do they expect to gain from their surveillance testing or visits? (2) Which providers (specialists, nursing, primary care) are preferred by CRC survivors to guide post-treatment surveillance? METHODS: Systematic searches of PubMed MEDLINE, Embase, the CENTRAL Register of Controlled Trials, CINAHL, and PsycINFO were conducted...
June 22, 2017: Journal of Cancer Survivorship: Research and Practice
https://www.readbyqxmd.com/read/28639158/development-of-a-survivorship-needs-assessment-planning-tool-for-head-and-neck-cancer-survivors-and-their-caregivers-a-preliminary-study
#6
K R Sterba, J Zapka, N LaPelle, T K Garris, A Buchanan, M Scallion, T Day
PURPOSE: The purpose of this study was to characterize primary end-of-treatment challenges in head and neck cancer (HNC) to drive the development of a survivorship needs assessment planning (SNAP) tool and evaluate its acceptability and feasibility. METHODS: Using qualitative methods (focus groups, interviews), we identified physical, emotional, and social post-treatment challenges from the perspectives of survivors (N = 17), caregivers (N = 14), and healthcare providers (N = 14) and pretested the SNAP tool...
June 21, 2017: Journal of Cancer Survivorship: Research and Practice
https://www.readbyqxmd.com/read/28639157/exercise-for-improving-bone-health-in-women-treated-for-stages-i-iii-breast-cancer-a-systematic-review-and-meta-analyses
#7
REVIEW
Canan P Fornusek, Sharon L Kilbreath
PURPOSE: The purpose of this study was to evaluate the efficacy of exercise, either alone or in combination with other interventions, compared to a control, for the preservation of bone mineral density (BMD) in early breast cancer (BC) patients. METHODS: A systematic search was conducted to identify randomized or quasi-randomized trials which met inclusion criteria including prescribed exercise for ≥12 months. Ten publications from seven randomized controlled trials (RCTs), involving 1199 participants, were identified...
June 21, 2017: Journal of Cancer Survivorship: Research and Practice
https://www.readbyqxmd.com/read/28634734/exploring-the-digital-technology-preferences-of-teenagers-and-young-adults-tya-with-cancer-and-survivors-a-cross-sectional-service-evaluation-questionnaire
#8
Esha Abrol, Mike Groszmann, Alexandra Pitman, Rachael Hough, Rachel M Taylor, Golnar Aref-Adib
PURPOSE: Digital technology has the potential to support teenagers and young adults (TYAs) with cancer from the onset of their disease into survivorship. We aimed to establish (1) the current pattern of use of TYA digital technologies within our service-user population, and (2) their preferences regarding digital information and support within the service. METHODS: A cross-sectional survey was administered as a paper and online self-completed questionnaire to TYAs aged 13-24 accessing outpatient, inpatient, and day care cancer services at a regional specialist centre over a 4-week period...
June 20, 2017: Journal of Cancer Survivorship: Research and Practice
https://www.readbyqxmd.com/read/28601981/social-media-for-breast-cancer-survivors-a-literature-review
#9
REVIEW
Angela L Falisi, Kara P Wiseman, Anna Gaysynsky, Jennifer K Scheideler, Daniel A Ramin, Wen-Ying Sylvia Chou
PURPOSE: Social media may offer support to individuals who are navigating the complex and challenging experience of cancer. A growing body of literature has been published over the last decade exploring the ways cancer survivors utilize social media. This study aims to provide a systematic synthesis of the current literature in order to inform cancer health communication practice and cancer survivorship research. METHODS: Using PRISMA guidelines, four electronic databases were searched to retrieve publications on breast cancer and social media published between 2005 and 2015...
June 10, 2017: Journal of Cancer Survivorship: Research and Practice
https://www.readbyqxmd.com/read/28528448/prostate-cancer-related-anxiety-in-long-term-survivors-after-radical-prostatectomy
#10
Valentin H Meissner, Kathleen Herkommer, Birgitt Marten-Mittag, Jürgen E Gschwend, Andreas Dinkel
PURPOSE: Knowledge of the psychological distress of long- and very long-term (>10 years) prostate cancer (PC) survivors is limited. This study intended to examine the parameters influencing anxiety related to prostate-specific antigen (PSA) and PC in long-term survivors after radical prostatectomy. METHODS: We surveyed 4719 PC survivors from the German multicenter prospective database "Familial Prostate Cancer." We evaluated the association of PC-related anxiety (MAX-PC) with sociodemographic characteristics, family history of PC, global health status/quality of life (EORTC QLQ-C30), depression and anxiety (PHQ-2; GAD-2), latest PSA level, time since radical prostatectomy, and current therapy...
May 21, 2017: Journal of Cancer Survivorship: Research and Practice
https://www.readbyqxmd.com/read/28478587/young-adult-cancer-survivors-and-work-a-systematic-review
#11
REVIEW
Dawn S Stone, Patricia A Ganz, Carol Pavlish, Wendie A Robbins
CONTEXT: Sixty-three percent of cancer survivors continue to work, or return to work after treatment. Among this population, work ability and challenges encountered in the workplace by young adult cancer survivors have not been well established. PURPOSE: The purposes of the study are to describe what is currently known about work-related issues for young adult cancer survivors diagnosed between ages 15 and 39, to identify gaps in the research literature, and to suggest interventions or improvements in work processes and occupational settings...
May 6, 2017: Journal of Cancer Survivorship: Research and Practice
https://www.readbyqxmd.com/read/28470507/time-course-of-upper-limb-function-and-return-to-work-post-radiotherapy-in-young-adults-with-breast-cancer-a-pilot-randomized-control-trial-on-effects-of-targeted-exercise-program
#12
Marize Ibrahim, Thierry Muanza, Nadia Smirnow, Warren Sateren, Beatrice Fournier, Petr Kavan, Michael Palumbo, Richard Dalfen, Mary-Ann Dalzell
PURPOSE: Breast cancer (BC) diagnosis in young adults (YA) is rising, and both disease and treatments are aggressive in this population. Evidence supports the use of physical activity in reducing shoulder dysfunction, which is common among BC survivors. A pilot randomized clinical trial was performed to determine the effectiveness of a 12-week post-radiation exercise program in minimizing upper extremity dysfunction in YA with BC. METHODS: Participants were randomized to either an exercise arm or a control arm receiving standard care...
May 3, 2017: Journal of Cancer Survivorship: Research and Practice
https://www.readbyqxmd.com/read/28470506/navigating-cancer-using-online-communities-a-grounded-theory-of-survivor-and-family-experiences
#13
Lydia Jo Harkin, Kinta Beaver, Paola Dey, Kartina Choong
PURPOSE: People affected by cancer often have unmet emotional and social support needs. Online cancer communities are a convenient channel for connecting cancer survivors, allowing them to support one another. However, it is unclear whether online community use makes a meaningful contribution to cancer survivorship, as little previous research has examined the experience of using contemporary cancer communities. We aimed to explore the experiences of visitors to online cancer communities...
May 3, 2017: Journal of Cancer Survivorship: Research and Practice
https://www.readbyqxmd.com/read/28374090/cancer-survivorship-monitoring-systems-for-the-collection-of-patient-reported-outcomes-a-systematic-narrative-review-of-international-approaches
#14
REVIEW
N Corsini, J Fish, I Ramsey, G Sharplin, I Flight, R Damarell, B Wiggins, C Wilson, D Roder, M Eckert
PURPOSE: This systematic narrative review describes and compares the development and operational approaches of monitoring systems without a clinical care component that collect patient-reported outcome (PRO) data from cancer survivors. METHODS: Searches were conducted using Medline, PubMed, PsycINFO, the Cochrane Library, CINAHL, Scopus, Joanna Briggs Institute EBP Database and Google Scholar (Advanced). Sources of grey literature and websites of relevant organisations were also searched for relevant published and unpublished material...
August 2017: Journal of Cancer Survivorship: Research and Practice
https://www.readbyqxmd.com/read/28364263/development-of-a-text-messaging-system-to-improve-receipt-of-survivorship-care-in-adolescent-and-young-adult-survivors-of-childhood-cancer
#15
Jacqueline Casillas, Anju Goyal, Jason Bryman, Faisal Alquaddoomi, Patricia A Ganz, Emma Lidington, Joshua Macadangdang, Deborah Estrin
PURPOSE: This study aimed to develop and examine the acceptability, feasibility, and usability of a text messaging, or Short Message Service (SMS), system for improving the receipt of survivorship care for adolescent and young adult (AYA) survivors of childhood cancer. METHODS: Researchers developed and refined the text messaging system based on qualitative data from AYA survivors in an iterative three-stage process. In stage 1, a focus group (n = 4) addressed acceptability; in stage 2, key informant interviews (n = 10) following a 6-week trial addressed feasibility; and in stage 3, key informant interviews (n = 23) following a 6-week trial addressed usability...
August 2017: Journal of Cancer Survivorship: Research and Practice
https://www.readbyqxmd.com/read/28265843/validity-of-self-reported-fertility-threatening-cancer-treatments-in-female-young-adult-cancer-survivors
#16
Samantha C Roberts, Amber Knight, Brian W Whitcomb, Jessica R Gorman, Andrew C Dietz, H Irene Su
PURPOSE: Detailed cancer treatment information is important to fertility and pregnancy care of female young adult cancer survivors. Accuracy of self-report of treatments that impact fertility and pregnancy is unknown. This study assessed agreement between self-report and medical records on receipt of fertility-threatening treatments. METHODS: A national cohort study of female young adult cancer survivors reported cancer treatments via Web-based questionnaires. Primary cancer treatment records were abstracted...
August 2017: Journal of Cancer Survivorship: Research and Practice
https://www.readbyqxmd.com/read/28229275/a-pilot-randomized-trial-to-prevent-sexual-dysfunction-in-postmenopausal-breast-cancer-survivors-starting-adjuvant-aromatase-inhibitor-therapy
#17
Pragati Advani, Abenaa M Brewster, George P Baum, Leslie R Schover
PURPOSE: A randomized pilot trial evaluated the hypothesis that early intervention lessens sexual dysfunction in the first year on aromatase inhibitors. A secondary aim was comparing the efficacy of two vaginal moisturizers. METHODS: Fifty-seven postmenopausal women with early stage breast cancer starting aromatase inhibitors were randomized to three treatment groups. All received a handout on managing sexual and other side effects. The Usual Care group received no additional therapy...
August 2017: Journal of Cancer Survivorship: Research and Practice
https://www.readbyqxmd.com/read/28224453/national-estimates-and-correlates-of-secondhand-smoke-exposure-in-us-cancer-survivors
#18
Taghrid Asfar, Kristopher L Arheart, Tulay Koru-Sengul, Margaret M Byrne, Noella A Dietz, Charles Jeng Chen, David J Lee
PURPOSE: Cancer survivors comprise a vulnerable population for exposure to secondhand smoke (SHS). This study examined and compared the prevalence, time trends, and predictors of SHS exposure between nonsmoking adult cancer survivors and nonsmoking adults without cancer history (control group). METHODS: Data were obtained from the 2001-2012 National Health and Nutrition Examination Survey (survivors: n = 2168; controls: n = 19,436). All adults ≥20 years of age who reported not smoking and had a serum cotinine level of 0...
August 2017: Journal of Cancer Survivorship: Research and Practice
https://www.readbyqxmd.com/read/28213769/the-patients-experience-of-a-bladder-cancer-diagnosis-a-systematic-review-of-the-qualitative-evidence
#19
REVIEW
Amanda J Edmondson, Jacqueline C Birtwistle, James W F Catto, Maureen Twiddy
PURPOSE: Bladder cancer (BC) is a common disease with disparate treatment options and variable outcomes. Despite the disease's high prevalence, little is known of the lived experience of affected patients. National patient experience surveys suggest that those with BC have poorer experiences than those with other common cancers. The aim of this review is to identify first-hand accounts of the lived experiences of diagnosis through to survivorship. METHOD: This is a systematic review of the qualitative evidence reporting first-hand accounts of the experiences of being diagnosed with, treated for and surviving bladder cancer...
August 2017: Journal of Cancer Survivorship: Research and Practice
https://www.readbyqxmd.com/read/28194641/unsupervised-exercise-in-survivors-of-human-papillomavirus-related-head-and-neck-cancer-how-many-can-go-it-alone
#20
Joshua Bauml, Jiyoung Kim, Xiaochen Zhang, Charu Aggarwal, Roger B Cohen, Kathryn Schmitz
PURPOSE: Patients with human papillomavirus (HPV)-related head and neck cancer (HNC) have a better prognosis relative to other types of HNC, making survivorship an emerging and critical issue. Exercise is a core component of survivorship care, but little is known about how many survivors of HPV-related HNC can safely be advised to start exercising on their own, as opposed to needing further evaluation or supervised exercise. METHODS: We utilized guidelines to identify health issues that would indicate value of further evaluation prior to being safely prescribed unsupervised exercise...
August 2017: Journal of Cancer Survivorship: Research and Practice
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