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Journal of Cancer Survivorship: Research and Practice

Andy S K Cheng, Xiangyu Liu, Cindy T T Kwok, Raymond C K Chung, Yingchun Zeng, Michael Feuerstein
PURPOSE: To produce a culturally sensitive Chinese translation of the original version of the Cancer Survivor Profile for breast cancer (CSPro-BC) survivors, which identifies problems in breast cancer patients post-primary treatment for breast cancer. METHODS: Four hundred forty-four female Chinese patients following primary treatment for breast cancer completed a Chinese translation of the CSPro-BC. Participants were randomly divided into two equal groups (n = 222)...
January 16, 2019: Journal of Cancer Survivorship: Research and Practice
Katherine R Sterba, Kent Armeson, Jane Zapka, Megan A Scallion, Tiffany K Garris, Evan M Graboyes, Kenneth Ruggiero, Terry A Day
PURPOSE: The objectives of this study were to test the acceptability and feasibility of a survivorship needs assessment planning (SNAP) tool for head and neck cancer (HNC) survivors and caregivers, evaluate short-term changes in psychosocial outcomes after completing the SNAP session, and develop strategies for system refinement. METHODS: We used a prospective one-group design and mixed methods with HNC survivors and caregivers (N = 25 dyads). Participants completed baseline and 6-week surveys before and after completing a SNAP clinic visit to assess psychosocial outcomes and acceptability...
January 15, 2019: Journal of Cancer Survivorship: Research and Practice
Sietske J Tamminga, Pieter Coenen, Carmen Paalman, Angela G E M de Boer, Neil K Aaronson, Hester S A Oldenburg, Flora E van Leeuwen, Allard J van der Beek, Saskia F A Duijts, Michael Schaapveld
PURPOSE: To identify which factors are associated with adverse work outcome 5-10 years after diagnosis. METHODS: In this cross-sectional study, breast cancer survivors, treated between 2003 and 2008, completed a questionnaire 5-10 years after diagnosis. Adverse work outcome was defined as not having paid employment or working > 20% less compared to prediagnosis. Logistic regression analyses were conducted. RESULTS: Of 906 participants, 326 (36%) had an adverse work outcome...
January 14, 2019: Journal of Cancer Survivorship: Research and Practice
Elizabeth Hernandez Silva, Sheleigh Lawler, Danette Langbecker
PURPOSE: Integrating mHealth into the cancer care continuum may be an effective strategy to improve cancer survivorship care by supporting self-management. We aim to assess the effectiveness of mHealth applications (apps) for self-management in improving pain, psychological distress, fatigue, or sleep outcomes in adult cancer survivors. METHODS: Experimental quantitative studies evaluating apps aiming to support self-management for adult cancer survivors and reporting pain, psychological distress, fatigue, or sleep outcomes were included...
January 11, 2019: Journal of Cancer Survivorship: Research and Practice
M Shayne Gallaway, Rebecca Glover-Kudon, Behnoosh Momin, Mary Puckett, Natasha Buchanan Lunsford, Kathleen R Ragan, Elizabeth A Rohan, Stephen Babb
PURPOSE: The prevalence of smoking among cancer survivors is similar to the general population. However, there is little evidence on the prevalence of specific smoking cessation behaviors among adult cancer survivors. METHODS: The 2015 National Health Interview Survey (NHIS) data were analyzed to examine the prevalence of smoking cessation behaviors and use of treatments among cancer survivors. Weighted self-reported prevalence estimates and 95% confidence intervals were calculated using a sample of 2527 cancer survivors...
January 5, 2019: Journal of Cancer Survivorship: Research and Practice
Cynthia C Forbes, Amy Finlay, Megan McIntosh, Shihab Siddiquee, Camille E Short
PURPOSE: To examine the feasibility, acceptability, and efficacy of online supportive care interventions targeting prostate cancer survivors (PCS). METHODS: Studies were identified through structured searches of PubMed, Embase and PsycINFO databases, and bibliographic review. Inclusion criteria were (1) examined feasibility, acceptability, or efficacy of an online intervention designed to improve supportive care outcomes for PCS; (2) presented outcome data collected from PCS separately (if mixed cancer); and (3) evaluated efficacy outcomes using randomized controlled trial (RCT) design...
January 4, 2019: Journal of Cancer Survivorship: Research and Practice
Jennifer A Hydeman, Odochi C Uwazurike, Elizabeth I Adeyemi, Lynda K Beaupin
PURPOSE: Adolescents and young adults (AYAs) with cancer are known to have complex medical and psychosocial needs throughout treatment; however, information is lacking about the challenges AYA survivors face after treatment has ended. Focus groups were conducted using a concept mapping framework to better understand the most important issues these patients face in transitioning to survivorship and how prepared they felt to face them. METHODS: AYAs diagnosed between 18 and 39 years old and at least 2 years post-treatment participated in one of six focus groups based on age group and follow-up status...
January 2, 2019: Journal of Cancer Survivorship: Research and Practice
Ashley Daly, Rebecca Williamson Lewis, Kristen Vangile, Karen Wasilewski Masker, Karen E Effinger, Lillian R Meacham, Ann C Mertens
PURPOSE: Childhood cancer survivors need regular, risk-adapted, long-term survivor care. This retrospective study describes the proportion of survivors seen for an initial survivor clinic visit within a large pediatric oncology program. METHODS: Patients diagnosed with non-central nervous system childhood malignancies from 2007 to 2012 were followed from the time of survivor clinic eligibility (2 years following completion of therapy) through their initial survivor clinic visit or end of study...
December 17, 2018: Journal of Cancer Survivorship: Research and Practice
Simon Dunne, Laura Coffey, Linda Sharp, Deirdre Desmond, Rachael Gooberman-Hill, Eleanor O'Sullivan, Aileen Timmons, Ivan Keogh, Conrad Timon, Pamela Gallagher
BACKGROUND: Self-management may help cancer survivors to better deal with challenges to their physical, functional, social and psychological well-being presented by cancer and its treatment. Nonetheless, little is known about how people integrate cancer self-management practices into their daily lives. The aim of this study was to describe and characterise the processes through which head and neck cancer (HNC) survivors attempt to integrate self-management into their daily lives following primary treatment...
December 8, 2018: Journal of Cancer Survivorship: Research and Practice
Trisha L Raque-Bogdan, Brooke Lamphere, Marisa Kostiuk, Maura Gissen, Megan Beranek
PURPOSE: To review the empirical qualitative literature on cancer survivor's experiences with loneliness to inform assessments and interventions for improving cancer survivors' social well-being. METHODS: A rigorous systematic review of qualitative studies published in five databases between 1993 and 2016 was conducted. Three coders reviewed 285 titles and abstracts and, after applying a critical review process, 20 manuscripts were synthesized using meta-ethnography...
November 9, 2018: Journal of Cancer Survivorship: Research and Practice
David R Strauser, Fong Chan, Elizabeth Fine, Kanako Iwanaga, Chelsea Greco, Cori Liptak
PURPOSE: Given the significant employment disparities for survivors of pediatric brain tumors, there is increased need to conduct vocational and career research with this group. The purpose of the present study was to construct an instrument, the Perceived Barriers Scale, that is psychometrically sound and has both clinical and research application related to career and employment issues of pediatric brain tumor survivors. METHOD: The participants consisted of 110 young adult central nervous system survivors of childhood cancer aged between 18 and 30 years old (M = 23...
October 24, 2018: Journal of Cancer Survivorship: Research and Practice
Alison Pearce, Bianca Tomalin, Billingsley Kaambwa, Nicole Horevoorts, Saskia Duijts, Floortje Mols, Lonneke van de Poll-Franse, Bogda Koczwara
PURPOSE: The aim of this study was to examine the relationship between employment and financial toxicity by examining the prevalence of, and factors associated with, financial toxicity among cancer survivors. METHODS: We conducted a secondary analysis of a sub-sample from the Dutch Patient Reported Outcomes Following Initial Treatment and Long-term Evaluation of Survivorship (PROFILES) registry. Descriptive statistics, bivariate analysis and logistic regression were used...
October 24, 2018: Journal of Cancer Survivorship: Research and Practice
Melissa A Little, Robert C Klesges, Zoran Bursac, Jennifer P Halbert, Jon Ebbert, Gerald W Talcott, Benny Weksler
PURPOSE: To determine the characteristics associated with cancer survivors which indicate continued cigarette smoking at or around the time of cancer diagnosis. METHODS: A total of 631 survivors were recruited in four cancer centers in Memphis, TN, between March 2015 and June 2016. To increase the probability of accurate reporting, surveys were conducted anonymously. A total of 112 respondents reported they were current smokers and 202 reported they were former smokers (n = 314), who comprised the sample...
December 2018: Journal of Cancer Survivorship: Research and Practice
Amy K Otto, Emily C Soriano, Scott D Siegel, Stefanie T LoSavio, Jean-Philippe Laurenceau
PURPOSE: The purpose of this study was to determine whether fear of cancer recurrence (FCR) is associated with greater health care utilization (HCU) in early-stage breast cancer survivors. METHODS: Three hundred early-stage breast cancer survivors diagnosed within the past 7 years reported on FCR as well as calls and visits to oncology providers and primary care providers during the preceding 3 months. Participants also reported on use of mental health services and psychotropic medications since diagnosis...
December 2018: Journal of Cancer Survivorship: Research and Practice
Matthew P Banegas, Marc A Emerson, Alyce S Adams, Ninah S Achacoso, Neetu Chawla, Stacey Alexeeff, Laurel A Habel
PURPOSE: To investigate the implications of a cancer diagnosis on medication adherence for pre-existing comorbid conditions, we explored statin adherence patterns prior to and following a new diagnosis of breast, colorectal, or prostate cancer among a multi-ethnic cohort. METHODS: We identified adults enrolled at Kaiser Permanente Northern California who were prevalent statin medication users, newly diagnosed with breast, colorectal, or prostate cancer between 2000 and 2012...
December 2018: Journal of Cancer Survivorship: Research and Practice
Kathryn I Pollak, Laura J Fish, Linda M Sutton, Xiaomei Gao, Pauline Lyna, Lynda Owen, Michele L Patel, Tamara J Somers
PURPOSE: Many cancer survivors continue to smoke. Further, most survivors also report high levels of persistent pain and smoke in response to pain. The investigators tested the feasibility, acceptability, and preliminary efficacy of a smoking cessation program paired with a pain management program for cancer survivors. METHODS: The investigators conducted a two-arm, wait-list randomized controlled pilot study in which they delivered a combined smoking cessation and pain management intervention...
December 2018: Journal of Cancer Survivorship: Research and Practice
Nora K Horick, Ariela Muzikansky, Hilda L Gutierrez, Kristina L Boyd, Dianne M Finkelstein
PURPOSE: Advances in cancer detection and treatment have resulted in a growing population of long-term survivors, but even years after treatment has concluded, many survivors report physical symptoms that interfere with daily living. While there are studies of late effects following common cancers, less is known about these complications in rare cancers. This study focuses on the physical symptoms reported by long-term survivors enrolled in the NIH-sponsored Rare Cancer Genetics Registry...
December 2018: Journal of Cancer Survivorship: Research and Practice
Cendrine D Robinson, Amparo Gonzalez-Feliciano, Lorelei A Mucci, Sarah C Markt
PURPOSE: Cigarette smoking among cancer survivors increases the risk of recurrence and secondary cancers. We sought to investigate smoking cessation following diagnosis of cancer compared to those not diagnosed with cancer. We also investigated cessation following diagnosis of a smoking-related and non-smoking-related cancer separately. METHODS: We conducted a matched cohort study within the Health Professionals Follow-Up Study (HPFS). We identified 566 men diagnosed with cancer who were current cigarette smokers at the time of diagnosis between 1986 and 2010 (exposed)...
December 2018: Journal of Cancer Survivorship: Research and Practice
Robert I Griffiths, Emily C McFadden, Richard J Stevens, Jose M Valderas, Bernadette A Lavery, Nada F Khan, Nancy L Keating, Clare R Bankhead
PURPOSE: Overlooking other medical conditions during cancer treatment and follow-up could result in excess morbidity and mortality, thereby undermining gains associated with early detection and improved treatment of cancer. We compared the quality of care for diabetes patients subsequently diagnosed with breast, colorectal, or prostate cancer to matched, diabetic non-cancer controls. METHODS: Longitudinal cohort study using primary care records from the Clinical Practice Research Datalink, United Kingdom...
December 2018: Journal of Cancer Survivorship: Research and Practice
Janet S de Moor, Kisha Coa, Erin E Kent, Carmen Moten, Sarah Kobrin, Cheryl Altice, K Robin Yabroff
PURPOSE: Cancer treatment can precipitate functional limitations that restrict survivors' ability to work. Yet, it is unclear whether healthcare providers discuss the potential for employment limitations with their patients. We assessed the frequency of patient-provider communication about employment, from the perspectives of survivors, and examined whether receiving a treatment summary was associated with employment communication. METHODS: Cancer survivors who were working at diagnosis were identified from the Health Information National Trends Survey-4, conducted in 2014 (n = 290)...
December 2018: Journal of Cancer Survivorship: Research and Practice
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