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Journal of Cancer Survivorship: Research and Practice

Trisha L Raque-Bogdan, Brooke Lamphere, Marisa Kostiuk, Maura Gissen, Megan Beranek
PURPOSE: To review the empirical qualitative literature on cancer survivor's experiences with loneliness to inform assessments and interventions for improving cancer survivors' social well-being. METHODS: A rigorous systematic review of qualitative studies published in five databases between 1993 and 2016 was conducted. Three coders reviewed 285 titles and abstracts and, after applying a critical review process, 20 manuscripts were synthesized using meta-ethnography...
November 9, 2018: Journal of Cancer Survivorship: Research and Practice
David R Strauser, Fong Chan, Elizabeth Fine, Kanako Iwanaga, Chelsea Greco, Cori Liptak
PURPOSE: Given the significant employment disparities for survivors of pediatric brain tumors, there is increased need to conduct vocational and career research with this group. The purpose of the present study was to construct an instrument, the Perceived Barriers Scale, that is psychometrically sound and has both clinical and research application related to career and employment issues of pediatric brain tumor survivors. METHOD: The participants consisted of 110 young adult central nervous system survivors of childhood cancer aged between 18 and 30 years old (M = 23...
October 24, 2018: Journal of Cancer Survivorship: Research and Practice
Alison Pearce, Bianca Tomalin, Billingsley Kaambwa, Nicole Horevoorts, Saskia Duijts, Floortje Mols, Lonneke van de Poll-Franse, Bogda Koczwara
PURPOSE: The aim of this study was to examine the relationship between employment and financial toxicity by examining the prevalence of, and factors associated with, financial toxicity among cancer survivors. METHODS: We conducted a secondary analysis of a sub-sample from the Dutch Patient Reported Outcomes Following Initial Treatment and Long-term Evaluation of Survivorship (PROFILES) registry. Descriptive statistics, bivariate analysis and logistic regression were used...
October 24, 2018: Journal of Cancer Survivorship: Research and Practice
Melissa A Little, Robert C Klesges, Zoran Bursac, Jennifer P Halbert, Jon Ebbert, Gerald W Talcott, Benny Weksler
PURPOSE: To determine the characteristics associated with cancer survivors which indicate continued cigarette smoking at or around the time of cancer diagnosis. METHODS: A total of 631 survivors were recruited in four cancer centers in Memphis, TN, between March 2015 and June 2016. To increase the probability of accurate reporting, surveys were conducted anonymously. A total of 112 respondents reported they were current smokers and 202 reported they were former smokers (n = 314), who comprised the sample...
October 20, 2018: Journal of Cancer Survivorship: Research and Practice
Amy K Otto, Emily C Soriano, Scott D Siegel, Stefanie T LoSavio, Jean-Philippe Laurenceau
PURPOSE: The purpose of this study was to determine whether fear of cancer recurrence (FCR) is associated with greater health care utilization (HCU) in early-stage breast cancer survivors. METHODS: Three hundred early-stage breast cancer survivors diagnosed within the past 7 years reported on FCR as well as calls and visits to oncology providers and primary care providers during the preceding 3 months. Participants also reported on use of mental health services and psychotropic medications since diagnosis...
October 19, 2018: Journal of Cancer Survivorship: Research and Practice
Matthew P Banegas, Marc A Emerson, Alyce S Adams, Ninah S Achacoso, Neetu Chawla, Stacey Alexeeff, Laurel A Habel
PURPOSE: To investigate the implications of a cancer diagnosis on medication adherence for pre-existing comorbid conditions, we explored statin adherence patterns prior to and following a new diagnosis of breast, colorectal, or prostate cancer among a multi-ethnic cohort. METHODS: We identified adults enrolled at Kaiser Permanente Northern California who were prevalent statin medication users, newly diagnosed with breast, colorectal, or prostate cancer between 2000 and 2012...
October 18, 2018: Journal of Cancer Survivorship: Research and Practice
Nora K Horick, Ariela Muzikansky, Hilda L Gutierrez, Kristina L Boyd, Dianne M Finkelstein
PURPOSE: Advances in cancer detection and treatment have resulted in a growing population of long-term survivors, but even years after treatment has concluded, many survivors report physical symptoms that interfere with daily living. While there are studies of late effects following common cancers, less is known about these complications in rare cancers. This study focuses on the physical symptoms reported by long-term survivors enrolled in the NIH-sponsored Rare Cancer Genetics Registry...
October 12, 2018: Journal of Cancer Survivorship: Research and Practice
Cendrine D Robinson, Amparo Gonzalez-Feliciano, Lorelei A Mucci, Sarah C Markt
PURPOSE: Cigarette smoking among cancer survivors increases the risk of recurrence and secondary cancers. We sought to investigate smoking cessation following diagnosis of cancer compared to those not diagnosed with cancer. We also investigated cessation following diagnosis of a smoking-related and non-smoking-related cancer separately. METHODS: We conducted a matched cohort study within the Health Professionals Follow-Up Study (HPFS). We identified 566 men diagnosed with cancer who were current cigarette smokers at the time of diagnosis between 1986 and 2010 (exposed)...
October 9, 2018: Journal of Cancer Survivorship: Research and Practice
Robert I Griffiths, Emily C McFadden, Richard J Stevens, Jose M Valderas, Bernadette A Lavery, Nada F Khan, Nancy L Keating, Clare R Bankhead
PURPOSE: Overlooking other medical conditions during cancer treatment and follow-up could result in excess morbidity and mortality, thereby undermining gains associated with early detection and improved treatment of cancer. We compared the quality of care for diabetes patients subsequently diagnosed with breast, colorectal, or prostate cancer to matched, diabetic non-cancer controls. METHODS: Longitudinal cohort study using primary care records from the Clinical Practice Research Datalink, United Kingdom...
October 6, 2018: Journal of Cancer Survivorship: Research and Practice
Janet S de Moor, Kisha Coa, Erin E Kent, Carmen Moten, Sarah Kobrin, Cheryl Altice, K Robin Yabroff
PURPOSE: Cancer treatment can precipitate functional limitations that restrict survivors' ability to work. Yet, it is unclear whether healthcare providers discuss the potential for employment limitations with their patients. We assessed the frequency of patient-provider communication about employment, from the perspectives of survivors, and examined whether receiving a treatment summary was associated with employment communication. METHODS: Cancer survivors who were working at diagnosis were identified from the Health Information National Trends Survey-4, conducted in 2014 (n = 290)...
October 3, 2018: Journal of Cancer Survivorship: Research and Practice
Andy S K Cheng, Yingchun Zeng, Xiangyu Liu, Shaxin Liu, Stella W C Cheng, Cindy T T Kwok, Raymond C K Chung, Jianfei Xie, Michael Feuerstein
OBJECTIVE: To determine whether work output was related to cognitive limitations while at work in occupationally active breast cancer survivors (BCS) employed in a rapidly developing economy. METHODS: Measures of demographics, job type, job stress, general distress (anxiety, depression), fatigue, work-related cognitive limitations, and work output were obtained using self-report measures in a cross-sectional study in both BCS and controls (n = 267/group). RESULTS: Groups had similar educational backgrounds, job types, and levels of job stress...
September 18, 2018: Journal of Cancer Survivorship: Research and Practice
Belle H de Rooij, Teresa Hagan Thomas, Kathryn E Post, Jane Flanagan, Nicole P M Ezendam, Jeffrey Peppercorn, Don S Dizon
PURPOSE: This qualitative study sought to describe the challenges following treatment and the preferences regarding survivorship care among patients treated for gynecological cancer, their caregivers, and health care providers. METHODS: Between July and August 2017, in-depth semi-structured interviews regarding survivorship were conducted at a large academic hospital in the USA among patients who recently completed treatment (< 12 months) for a gynecological cancer (ovarian, endometrial, cervical, and vulvar) and their primary caregivers...
September 12, 2018: Journal of Cancer Survivorship: Research and Practice
Colleen A Cuthbert, Brenda R Hemmelgarn, Yuan Xu, Winson Y Cheung
PURPOSE: To examine the prevalence of comorbidities and the association of these comorbidities with demographics, tumor characteristics, treatments received, overall survival, and causes of death in a population-based cohort of colorectal cancer (CRC) patients. METHODS: Adult patients with stage I-III CRC diagnosed between 2004 and 2015 were included. Comorbidities were captured using Charlson comorbidity index. Causes of death were categorized using International Classification of Diseases, tenth revision codes...
September 6, 2018: Journal of Cancer Survivorship: Research and Practice
Sally A D Romero, Justin C Brown, Joshua M Bauml, Jennifer L Hay, Q Susan Li, Roger B Cohen, Jun J Mao
PURPOSE: Despite the numerous benefits of physical activity (PA) for patients with cancer, many cancer survivors report challenges to participating in PA. The objectives of this study were (1) to assess barriers to PA and (2) to examine participant characteristics associated with modifiable barriers to PA among cancer survivors with pain. METHODS: We conducted a cross-sectional survey study at one academic medical center and 11 community hospitals. Participants completed the 12-item Physical Activity Barriers After Cancer (PABAC) instrument (Cronbach's alpha = 0...
September 4, 2018: Journal of Cancer Survivorship: Research and Practice
Ida Hovdenak Jakobsen, Mette Moustgaard Jeppesen, Sébastien Simard, Henriette Vind Thaysen, Søren Laurberg, Therese Juul
PURPOSE: The Fear of Cancer Recurrence Inventory (FCRI) is a multidimensional measure for fear of cancer recurrence (FCR). The aim of this study was to assess the psychometric properties of the translated Danish version of the FCRI in a population of colorectal cancer patients. METHODS: The English version of the FCRI was forward-backward translated into Danish and pilot tested in a gynaecological cancer population. The psychometric properties of the FCRI were assessed in terms of responsiveness, test-retest reliability and discriminative and convergent validity in a population of colorectal cancer patients by asking them to complete questionnaires at three time points during follow-up...
August 20, 2018: Journal of Cancer Survivorship: Research and Practice
Kathryn I Pollak, Laura J Fish, Linda M Sutton, Xiaomei Gao, Pauline Lyna, Lynda Owen, Michele L Patel, Tamara J Somers
PURPOSE: Many cancer survivors continue to smoke. Further, most survivors also report high levels of persistent pain and smoke in response to pain. The investigators tested the feasibility, acceptability, and preliminary efficacy of a smoking cessation program paired with a pain management program for cancer survivors. METHODS: The investigators conducted a two-arm, wait-list randomized controlled pilot study in which they delivered a combined smoking cessation and pain management intervention...
December 2018: Journal of Cancer Survivorship: Research and Practice
Brenna E Blackburn, Patricia A Ganz, Kerry Rowe, John Snyder, Yuan Wan, Vikrant Deshmukh, Michael Newman, Alison Fraser, Ken Smith, Kimberley Herget, Jaewhan Kim, Anne C Kirchhoff, Christina Porucznik, Heidi Hanson, Dev Abraham, Marcus Monroe, Mia Hashibe
PURPOSE: Thyroid cancer is the most rapidly increasing cancer in the USA, affects a young, mostly female population, and has high survival. The aim of this study was to determine if there is an increased risk of reproductive system adverse events or pregnancy complications among women diagnosed with thyroid cancer under the age of 50. METHODS: Up to five female cancer-free individuals were matched to each female thyroid cancer survivor diagnosed before the age of 50 based on birth year, birth state, and follow-up time, within the Utah Population Database...
October 2018: Journal of Cancer Survivorship: Research and Practice
Heide Götze, Sabine Taubenheim, Andreas Dietz, Florian Lordick, Anja Mehnert
PURPOSE: Our study provides a detailed overview of comorbid conditions and health-related quality of life of long-term cancer survivors and analyses the impact of demographic, disease- and treatment-related characteristics. METHODS: We present data obtained from 1000 survivors across mixed tumour entities 5 and 10 years after cancer diagnosis in a cross-sectional study. We analyse the prevalence of physical symptoms and health conditions via self-report and health-related quality of life using the EORTC QLQ-C30 in comparison to gender- and age-matched reference values of the general population...
October 2018: Journal of Cancer Survivorship: Research and Practice
Ruth Elisa Eyl, Lena Koch-Gallenkamp, Lina Jansen, Viola Walter, Prudence Carr, Michael Hoffmeister, Jenny Chang-Claude, Hermann Brenner, Volker Arndt
PURPOSE: Since physical activity (PA) has been shown to be associated with better prognosis and quality of life (QOL) in colorectal cancer (CRC) patients, this study focuses on the barriers of PA among CRC survivors. METHODS: This study is based on a population-based study from Germany of 1343 women and men, diagnosed with CRC between 2003 and 2008 and being alive five years later. Multivariable logistic regression was used to explore associations between baseline as well as five-year follow-up (5YFU) characteristics and physical inactivity (PIA) at 5YFU...
October 2018: Journal of Cancer Survivorship: Research and Practice
E A Fallon, D Driscoll, T S Smith, K Richardson, K Portier
PURPOSE: To describe (a) the conceptualization, purpose, and features of The American Cancer Society's Cancer Survivors Network® (CSN; ), (b) the ongoing two-phase evaluation process of CSN, and (c) the characteristics of CSN members. METHODS: An online opt-in self-report survey of CSN members (N = 4762) was conducted and digital metrics of site use were collected. RESULTS: Annually, CSN attracts over 3.6 million unique users from over 200 countries/territories...
October 2018: Journal of Cancer Survivorship: Research and Practice
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