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Disability and Health Journal

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https://www.readbyqxmd.com/read/28215627/caregivers-effect-on-weight-management-in-adults-with-intellectual-and-developmental-disabilities
#1
L T Ptomey, C A Gibson, J Lee, D K Sullivan, R A Washburn, A M Gorczyca, J E Donnelly
INTRODUCTION: Caregivers of adults with IDD often play a large role in the ability of adults with IDD to lose weight. OBJECTIVE: The purpose of this study was to determine to examine the effects of the caregivers' perceived burdens and self-efficacy and their relationship to an individual (family member or paid staff) on weight changes across a weight management intervention for adults with IDD. METHODS: Overweight/obese adults with mild to moderate IDD, along with assigned caregivers who served as their study partner, were randomized to an 18-month weight management intervention...
February 12, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28187953/factors-related-to-early-intervention-part-c-enrollment-a-systematic-review
#2
REVIEW
Erica Twardzik, Coral Cotto-Negrón, Megan MacDonald
BACKGROUND: The first few years of life are critical for the healthy growth and development of every child. Enrolling children with disabilities or at risk of developmental delay into early intervention services is essential to successfully meet their physical, cognitive, communication, socio-emotional and adaptive needs. However, many children throughout in the United States who are eligible for public services, including early intervention services, are not accessing them. Research has yet to fully describe low enrollment rates and variability in enrollment into early intervention services...
January 28, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28185857/do-prominent-quality-measurement-surveys-capture-the-concerns-of-persons-with-disability
#3
Lisa I Iezzoni, Sarah A Marsella, Tiffany Lopinsky, Dennis Heaphy, Kimberley S Warsett
BACKGROUND: Demonstration programs nationwide aim to control costs and improve care for people dually-eligible for Medicare and Medicaid, including many persons with disability. Ensuring these initiatives maintain or improve care quality requires comprehensive evaluation of quality of care. OBJECTIVES: To examine whether the common quality measures being used to evaluate the Massachusetts One Care duals demonstration program comprehensively address the concerns of persons with disability...
January 28, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28159502/profile-differences-of-purchasers-non-purchasers-and-users-and-non-users-of-personal-emergency-response-systems-results-of-a-prospective-cohort-study
#4
Frédéric Bloch, Jean-Eric Lundy, Anne-Sophie Rigaud
BACKGROUND: 'Personal Emergency Response Systems' (PERS) can provide a solution for raising the alert after a fall but no criteria are available to enable us to estimate whether a population which is set to benefit from a PERS will be able to use the device. OBJECTIVE: To describe the profile differences of purchasers and non-purchasers of a PERS and to explore the population of users and non-users of these devices. METHODS: The study was part of an observational cohort survey of elderly fallers which took place in the emergency department of our University urban hospital...
January 28, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28162985/levels-of-disability-in-the-older-population-of-england-comparing-binary-and-ordinal-classifications
#5
Benedetta Pongiglione, George B Ploubidis, Bianca L De Stavola
BACKGROUND: Recent studies suggest the importance of distinguishing severity levels of disability. Nevertheless, there is not yet a consensus with regards to an optimal classification. OBJECTIVE: Our study seeks to advance the existing binary definitions towards categorical/ordinal manifestations of disability. METHODS: We define disability according to the WHO's International Classification of Functioning, Disability and Health (ICF) using data collected at the baseline wave of the English Longitudinal Study of Aging, a longitudinal study of the non-institutionalized population, living in England...
January 25, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28148465/knowledge-and-attitudes-towards-disability-in-moldova-a-qualitative-study-of-young-people-s-views
#6
Kenneth A McLean, Samantha Hardie, Abigail Paul, Gary Paul, Iain Savage, Paul Shields, Rebecca Symes, Joanna Wilson, Catherine Winstanley, Jeni Harden
BACKGROUND: People with disabilities in the Republic of Moldova continue to experience considerable discrimination and social exclusion. The Moldovan government recently affirmed their commitment to promote community integration. However, there remains limited evidence to facilitate understanding of these issues, and barriers to the integrative process. OBJECTIVE: This study explored the knowledge and attitudes towards disability of young people within Moldova. METHODS: A qualitative approach was adopted and 3 semi-structured focus group interviews were conducted with schoolchildren (n = 12), aged 13-15 years...
January 25, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28143708/dietary-and-physical-activity-behaviors-of-adults-with-developmental-disabilities-and-their-direct-support-professional-providers
#7
Kendall A Leser, Phyllis L Pirie, Amy K Ferketich, Susan M Havercamp, Mary Ellen Wewers
BACKGROUND: People with developmental disabilities lead more sedentary lifestyles, consume poorer diets, as well as have higher rates of chronic conditions such as diabetes and heart disease when compared to members of the general population. Direct support professionals play a large social role in the lives of their clients with developmental disabilities, and thus have the ability to influence the health behaviors of their clients. OBJECTIVES: The overall purpose of this study was to examine the relationship between the dietary and physical activity behaviors of direct support professionals and their clients with developmental disabilities, as well as to assess how direct support professionals facilitate the health behaviors of their clients...
January 24, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28108154/collaborative-design-of-a-health-care-experience-survey-for-persons-with-disability
#8
Lisa I Iezzoni, Holly Matulewicz, Sarah A Marsella, Kimberley S Warsett, Dennis Heaphy, Karen Donelan
BACKGROUND: When assessing results of health care delivery system reforms targeting persons with disability, quality metrics must reflect the experiences and perspectives of this population. OBJECTIVE: For persons with disability and researchers to develop collaboratively a survey that addresses critical quality questions about a new Massachusetts health care program for persons with disability dually-eligible for Medicare and Medicaid. METHODS: Persons with significant physical disability or serious mental health diagnoses participated fully in all research activities, including co-directing the study, co-moderating focus groups, performing qualitative analyses, specifying survey topics, cognitive interviewing, and refining survey language...
January 8, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28126358/self-reported-disability-according-to-the-international-classification-of-functioning-disability-and-health-low-back-pain-core-set-test-retest-agreement-and-reliability
#9
Karl S Bagraith, Jenny Strong, Pamela J Meredith, Steven M McPhail
BACKGROUND: The International Classification of Functioning, Disability and Health (ICF) Low Back Pain Core Set (LBP-CS) has been proposed as a tool to facilitate the description and measurement of chronic low back pain (CLBP) related disability. Patient ratings of ICF categories may serve as a practical and effective method for acquiring patient input on activity limitations and participation restrictions. OBJECTIVE: To investigate the test-retest agreement and reliability of patient ratings of activity and participation according to the LBP-CS...
January 6, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28108155/association-of-health-professional-leadership-behaviors-on-health-promotion-practice-beliefs
#10
Jacqueline D Stone, Harolyn M E Belcher, Prince Attoh, Michelle D'Abundo, Tao Gong
BACKGROUND: Leadership is a process by which an individual influences a group or individual to achieve a common goal, in this case health promotion for individuals with disabilities. OBJECTIVES: (1) To examine the association between the transformational leadership behaviors of the Association of University Centers on Disabilities (AUCD) network professionals and their practice beliefs about health promotion activities, specifically cardiovascular fitness and healthy weight, for people with disabilities...
January 5, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28087196/improving-hospital-care-of-patients-with-intellectual-and-developmental-disabilities
#11
Sarah H Ailey, Paula J Brown, Caitlin M Ridge
People with intellectual disabilities and developmental disabilities (IDD) face poorer care and outcomes when hospitalized than patients without IDD. A panel discussion Hospital care for individuals with IDD: The Issues and Challenges was held at the Annual Conference of the American Academy of Developmental Medicine and Dentistry, held in Chicago July 8-10, 2016. Among the panelists were representatives from Rush University Medical Center in Chicago, IL and Saint Barnabas Medical Center in Livingston, NJ who discussed efforts to improve hospital care of patients with IDD at their institutions...
January 4, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28110980/female-sterilization-is-more-common-among-women-with-physical-and-or-sensory-disabilities-than-women-without-disabilities-in-the-united-states
#12
Justine P Wu, Michael M McKee, Kimberly S Mckee, Michelle A Meade, Melissa Plegue, Ananda Sen
BACKGROUND: Female sterilization accounts for 50% of all contraceptive use in the U.S. The extent to which U.S. women with physical and/or sensory disabilities have undergone female sterilization is unknown. OBJECTIVE: Our primary objective was to determine the prevalence of sterilization for women with physical/sensory disabilities, and compare this to the prevalence for women without disabilities. We also compared use of long-acting reversible contraceptive (LARC) methods between women with and without disabilities...
January 3, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28089188/barriers-to-providing-maternity-care-to-women-with-physical-disabilities-perspectives-from-health-care-practitioners
#13
Monika Mitra, Lauren D Smith, Suzanne C Smeltzer, Linda M Long-Bellil, Nechama Sammet Moring, Lisa I Iezzoni
BACKGROUND: Women with physical disabilities are known to experience disparities in maternity care access and quality, and communication gaps with maternity care providers, however there is little research exploring the maternity care experiences of women with physical disabilities from the perspective of their health care practitioners. OBJECTIVE: This study explored health care practitioners' experiences and needs around providing perinatal care to women with physical disabilities in order to identify potential drivers of these disparities...
January 3, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28082003/community-integration-of-people-with-intellectual-and-developmental-disabilities-a-national-longitudinal-analysis
#14
Carli Friedman
BACKGROUND: Medicaid Home and Community Based Services (HCBS) 1915(c) waivers are the largest providers of long-term supports and services (LTSS) for people with intellectual and developmental disabilities (IDD) in the United States. National and longitudinal analyses of HCBS 1915(c) waivers for people with IDD are critical because of changes in the fiscal landscape, the variability produced by states ability to flexibly customize their programs, and the significant changes required by the HCBS final settings rule...
January 3, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28111092/the-knowledge-and-skills-related-to-sexual-abuse-prevention-among-chinese-children-with-hearing-loss-in-beijing
#15
Buyi Yu, Jingqi Chen, Yichen Jin, Wenjing Zhang, Yanan Feng, Xiaoxia Zhao
BACKGROUND: The prevalence of any child sexual abuse (CSA) experience before the age of 16 years ranges from 10.2 to 35.2% in China,(1-5) but there has been no research so far exploring the level of awareness of CSA prevention and self-protection skills among Chinese children with hearing loss. OBJECTIVE: The school based survey examines the CSA prevention knowledge and self-protection skills in Chinese children with hearing loss. METHODS: Fifty-one students (30 boys, 21 girls) from 10 to 16 years old participated in the study...
January 1, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28109695/korean-translation-and-validation-of-the-whoqol-dis-for-people-with-spinal-cord-injury-and-stroke
#16
Kuem Ju Lee, Hye In Jang, Hyun Choi
BACKGROUND: The QOL assessment to measure disabilities has needed to survey studies for a variety of fields. Until now, no Korean translation of the World Health Organization Quality of Life-disability (WHOQOL-DIS) module existed. OBJECTIVE/HYPOTHESIS: We translated and cross-culturally adapted the WHOQOL-DIS module into Korean, testing its reliability and validity with Korean spinal cord injury and stroke patients. METHODS: The translation occurred using the methodology recommended by WHO...
January 1, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28082002/identifying-adults-aging-with-disability-using-existing-data-the-case-of-the-health-and-retirement-study
#17
Caitlin E Coyle, Michelle Putnam
BACKGROUND: The population of persons aging with disabilities is growing. Being able to segment aging with disability sub-populations within national data sets is becoming increasingly important in order to understand the relationship of aging with disability to a range of outcomes in later life including health and wellness, economic security, and health and long-term service and support need and use. OBJECTIVE: The purpose of this study was to identify viable sub-samples of adults aging with disabilities within the Health and Retirement Study, one of the most used secondary data sets to study aging and older adults...
January 1, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28065738/disability-identity-development-model-voices-from-the-ada-generation
#18
Anjali J Forber-Pratt, Marianne P Zape
BACKGROUND: For persons with disabilities, 2015 was a historic year, marking the 25th anniversary of the Americans with Disability Act (ADA) and the 40th anniversary of the passing of the Individuals with Disabilities Education Act (IDEA). It is important to consider the effects of this fundamental shift towards equal opportunity and participation on persons with disabilities' identity development. In practice, however, there are few empirical studies that have looked at this phenomenon and even fewer models of disability identity development...
January 1, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28143707/fitness-facilities-still-lack-accessibility-for-people-with-disabilities
#19
James H Rimmer, Sangeetha Padalabalanarayanan, Laurie A Malone, Tapan Mehta
BACKGROUND: Fitness facilities have potential to serve as places of 'health enhancement' for many underserved populations, particularly among people with physical/mobility disabilities where walking outdoors to meet recommendations for regular physical activity is not an option due to mobility or safety issues. OBJECTIVE: To examine the accessibility and usability of fitness facilities across the U.S. from a broader framework of physical and program access. METHODS: A convenience sample of 227 fitness facilities in 10 states were assessed by trained evaluators using the Accessibility Instrument Measuring Fitness and Recreation Environments (AIMFREE) tool...
December 30, 2016: Disability and Health Journal
https://www.readbyqxmd.com/read/28094154/commentary-mandatory-reporting-for-child-protection-in-health-settings-and-the-rights-of-parents-with-disabilities
#20
Nancy R Mudrick, Carrie Jefferson Smith
This commentary considers the intersection of mandatory reporting in health settings and the public child protection system's treatment of parents with disabilities. Its impetus is the August 2015 technical assistance document issued jointly by the U.S. departments of Justice (DOJ) and Health and Human Services (HHS) that affirms the applicability of the ADA and Section 504 to child protection system (CPS) processes. The DOJ/HHS document speaks to actions of state child protection agencies and courts, without addressing the first step, mandatory reporting...
December 30, 2016: Disability and Health Journal
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