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Disability and Health Journal

Shivani R Khan, Allyson G Hall, Rebecca J Tanner, Nicole M Marlow
BACKGROUND: Individuals living with a disability or are a member of a certain racial/ethnic group may be at heightened risk for not receiving important vaccinations. OBJECTIVE: This study examined whether race/ethnicity and disability status are associated with the receipt of two vaccines (influenza and pneumococcal) among older adults living in Florida. METHODS: Using the 2011-2015 Florida Behavioral Risk Factor Surveillance System, a cross-sectional survey, we ran bivariate and multivariate analyses to determine the associations for race/ethnicity and disability status with receipt of vaccinations among individuals 65 years and older...
November 28, 2017: Disability and Health Journal
Erin Kraft, Raymond Leblanc
BACKGROUND: Although there has been a notable increase in Autism Spectrum Disorder (ASD) diagnoses over the past twenty years, children with ASD continue to be underrepresented in physical activity opportunities. Swimming lessons have been suggested as an ideal form of physical activity for this population, but studies exploring instructors' experiences gaining knowledge specific for instructing these swimmers remains limited. Research in this area is warranted, as drowning is a leading injury cause of death for persons with ASD...
November 22, 2017: Disability and Health Journal
Akmer Mutlu, Özgün Kaya Kara, Ayşe Livanelioğlu, Sevilay Karahan, Halil Alkan, Bilge Nur Yardımcı, Mary Jo Cooley Hidecker
BACKGROUND: Functional classification systems have generally been used by clinicians and recently by parents to classify various functions of children with cerebral palsy (CP). OBJECTIVE: This study evaluated the agreement between clinicians and parents when classifying the communication function of children with CP using the Communication Function Classification System (CFCS). In addition, the relationships between the Gross Motor Function Classification System - Expanded and Revised (GMFCS-E&R), the Manual Ability Classification System (MACS), and CFCS were investigated...
November 14, 2017: Disability and Health Journal
Oscar Castro, Kwok Ng, Elizaveta Novoradovskaya, Grégoire Bosselut, Mary Hassandra
BACKGROUND: Despite the strong evidence that physical activity (PA) is a key determinant of health, there is limited knowledge on the content and outcomes of PA promotion interventions among individuals with disabilities. OBJECTIVE: To conduct a scoping review in order to examine the published literature on PA promotion interventions among adults with disabilities. METHODS: A scoping review following the methodological framework provided by Arksey and O'Malley used electronic databases (MEDLINE, PsycINFO, and CINAHL), reference lists, and journals to locate studies...
October 31, 2017: Disability and Health Journal
Justin A Haegele, T Nicole Kirk, Xihe Zhu
BACKGROUND: According to empirical evidence, adults with visual impairments are generally less physically active than their sighted peers, however less is known about what specific motivational factors influence physical activity participation among this population. While research has identified self-efficacy as one important motivational factor for physical activity, no previous research has examined this association among individuals with visual impairments. OBJECTIVE: The primary purpose of the current study was to examine the association between self-efficacy and physical activity for adults with visual impairments...
October 31, 2017: Disability and Health Journal
Elizabeth Newbronner, Karl Atkin
BACKGROUND: In the late 1950s and early 1960s the drug Thalidomide was given to thousands of pregnant women across the world to relieve morning sickness. The drug caused severe birth defects. Much has been written about the drug, its teratogenic effects, and the nature of the damage it caused. There is however, little literature exploring ageing with Thalidomide damage. OBJECTIVES: The aim of the review was to bring together, for the first time, the evidence about the Thalidomide-related health problems Thalidomide survivors are experiencing, as they grow older...
October 28, 2017: Disability and Health Journal
Andrea C Betts, Katherine Froehlich-Grobe, Simon Driver, Danielle Carlton, M Kaye Kramer
BACKGROUND: People with impaired mobility (IM) disabilities have a higher prevalence of obesity and obesity-related chronic conditions; however, lifestyle interventions that address the unique needs of people with IM are lacking. OBJECTIVE: This paper describes an adapted evidence-based lifestyle intervention developed through community-based participatory research (CBPR). METHODS: Individuals with IM, health professionals, disability group representatives, and researchers formed an advisory board to guide the process of thoroughly adapting the Diabetes Prevention Program Group Lifestyle Balance (DPP GLB) intervention after a successful pilot in people with IM...
October 27, 2017: Disability and Health Journal
Nahid Dehghan-Nayeri, Zohreh Khakbazan, Faezeh Ghafoori
BACKGROUND: Multiple sclerosis (MS) is a debilitating and life-long disease that affects the sexual life of people. However, in Iran little attention has been paid to the sexual life of women with MS. OBJECTIVE: The aim of this study was to understand the sexual life and experiences of Iranian women with multiple sclerosis. METHODS: A qualitative study was designed, and face-to-face semi-structured interviews were conducted with twenty-five women with MS...
October 26, 2017: Disability and Health Journal
Sema Büğüşan, Aysu Kahraman, Bülent Elbasan, Akmer Mutlu
BACKGROUND: It is important to determine the quality of life (QoL) and level of participation in children with Cerebral Palsy (CP). Previous research has used reports from adolescents or caregivers, but there is no evidence that caregivers' reports accurately reflect the experiences of the adolescents they are interested in. OBJECTIVE/HYPOTHESIS: The aim of this study was to investigate whether a difference was present in the views of the adolescents and their caregivers regarding the participation and the quality of life of adolescents with CP, and to reveal the parameters creating such differences...
October 24, 2017: Disability and Health Journal
Megan A Morris, Jonathan Inselman, Julie M G Rogers, Colin Halverson, Megan Branda, Joan M Griffin
BACKGROUND: To provide care that meets the values and preferences of patients with disabilities, health care providers need to understand patients' perceptions and understanding of their disability. No studies have explored patients' definitions of disability within the healthcare setting. OBJECTIVE: The aim of the study was to understand how patients' define their disability in the healthcare setting and to develop a coding system for categorizing how they describe their disability...
October 23, 2017: Disability and Health Journal
Jennifer Piatt, Sangguk Kang, Mary Sara Wells, Shinichi Nagata, Jamie Hoffman, Jennifer Taylor
BACKGROUND: Adolescents with mobility impairments have fewer opportunities to challenge identity as an athlete through sport participation. OBJECTIVE/HYPOTHESIS: This study examined athletic identity impact of adolescent athletes with mobility impairments who participate in Paralympic Sport Clubs. METHODS: This cross-sectional web-survey design examined demographics (gender, academic level, hours of time spent in sports participation, and preferred amount of time in sport participation) and athletic identity through the Athletic Identity Measurement Scale (AIMS)...
October 23, 2017: Disability and Health Journal
Allyson Calder, Jo Nunnerley, Hilda Mulligan, Nordawama Ahmad Ali, Gemma Kensington, Tim McVicar, Olivia van Schaik
BACKGROUND: For individuals with spinal cord injury the long term benefits of physical activity are well documented, however the majority of this population report inactivity secondary to participatory barriers. Research investigating physically intensive exercise programs for people with spinal cord injury is limited, with even less attention paid to the experience of the participants. OBJECTIVE: To explore the experiences of persons with spinal cord injury of their participation in the New Zealand arm of the Spinal Cord Injury and Physical Activity (SCIPA) 'Full-On' randomized controlled trial...
October 23, 2017: Disability and Health Journal
Mara Nery-Hurwit, Joonkoo Yun, Vicki Ebbeck
BACKGROUND: There are over 400,000 individuals living with Multiple Sclerosis (MS) in the U.S. These individuals experience unpredictable relapses of disabling conditions and poorer quality of life than the general population. Recent literature suggests self-compassion and resilience may improve wellness in this population. OBJECTIVE: The purpose of this study was to examine the roles of self-compassion and resilience on perceived health-related quality of life for individuals with Multiple Sclerosis (MS) using mediation analysis...
October 23, 2017: Disability and Health Journal
Robert J Fetsch, Philip Turk
BACKGROUND: There is evidence that the combination of assistive technology and education increases ability to live and work independently, which in turn increases the quality of life (QOL) levels of adults with disabilities. No previously published treatment-comparison group intervention studies were found with adult farmers and ranchers with disabilities. Knowing how effective USDA's AgrAbility Project is at increasing this population's QOL and independent living and working (ILW) levels will reinforce and inform change in AgrAbility and will provide outcomes for stakeholders and public decision makers to better address agricultural communities' needs...
October 16, 2017: Disability and Health Journal
Brooks C Wingo, Hui-Ju Young, Robert W Motl
BACKGROUND: Persons with multiple sclerosis (MS) have many health conditions related to overweight and obesity, but little is known about how body composition among those with MS compares to those without MS at the same weight. OBJECTIVE: To compare differences in whole body and regional body composition between persons with and without MS matched for sex and body mass index (BMI). METHODS: Persons with MS (n = 51) and non-MS controls (n = 51) matched for sex and BMI...
October 16, 2017: Disability and Health Journal
Simona Portaro, Rocco Salvatore Calabrò, Placido Bramanti, Giuseppe Silvestri, Michele Torrisi, Valeria Conti-Nibali, Santina Caliri, Christian Lunetta, Bernardo Alagna, Antonino Naro, Alessia Bramanti
BACKGROUND: Facio-Scapulo-Humeral Muscular Dystrophy (FSHD) is an autosomal dominant inherited disorder characterized by a variable and asymmetric involvement of facial, trunk, upper and lower extremity muscles. Although respiratory weakness is a relatively unknown feature of FSHD, it is not rare. Telemedicine has been used in a variety of health care fields, but only recently, with the advent of sophisticated technology, its interest among health professionals became evident, even in such diseases...
September 21, 2017: Disability and Health Journal
Angela Rosenberg, Deborah Zuver, McCafferty Kermon, Claudia Fernandez, Lewis H Margolis
BACKGROUND: To advance equity and to enhance leadership skills, self-advocates with intellectual/developmental disabilities are now part of the cohort of trainees in the University of North Carolina LEND, which means that they fully participate in the Interdisciplinary Leadership Development Program, a collaboration among programs in public health, social work, and LEND, which meets monthly. OBJECTIVE: Given this important new participation by self-advocates, this study analyzes the reflections of graduate students on the contributions of self-advocates to their leadership training...
September 14, 2017: Disability and Health Journal
Margaret A Turk, Suzanne McDermott
No abstract text is available yet for this article.
January 2018: Disability and Health Journal
Suzanne McDermott, Margaret A Turk
No abstract text is available yet for this article.
October 2017: Disability and Health Journal
Vicki A Freedman, Deborah Carr, Jennifer C Cornman, Richard E Lucas
BACKGROUND: Wellbeing is often described as U-shaped over the life course, suggesting an apparent paradox that wellbeing remains high at older ages despite increases in impairments. OBJECTIVE/HYPOTHESES: We explore associations among age, lower body impairments-one of the most common late-life impairments-and three measures of wellbeing: life satisfaction, emotional wellbeing and somatic wellbeing. We hypothesize that age effects are positive, become stronger once lower body impairments are controlled, and are concentrated among those who have maintained their mobility...
October 2017: Disability and Health Journal
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