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Disability and Health Journal

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https://www.readbyqxmd.com/read/28967584/telemedicine-for-facio-scapulo-humeral-muscular-dystrophy-a-multidisciplinary-approach-to-improve-quality-of-life-and-reduce-hospitalization-rate
#1
Simona Portaro, Rocco Salvatore Calabrò, Placido Bramanti, Giuseppe Silvestri, Michele Torrisi, Valeria Conti-Nibali, Santina Caliri, Christian Lunetta, Bernardo Alagna, Antonino Naro, Alessia Bramanti
BACKGROUND: Facio-Scapulo-Humeral Muscular Dystrophy (FSHD) is an autosomal dominant inherited disorder characterized by a variable and asymmetric involvement of facial, trunk, upper and lower extremity muscles. Although respiratory weakness is a relatively unknown feature of FSHD, it is not rare. Telemedicine has been used in a variety of health care fields, but only recently, with the advent of sophisticated technology, its interest among health professionals became evident, even in such diseases...
September 21, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28970019/reflections-on-the-contributions-of-self-advocates-to-an-interdisciplinary-leadership-development-program-for-graduate-students-in-health-affairs
#2
Angela Rosenberg, Deborah Zuver, McCafferty Kermon, Claudia Fernandez, Lewis H Margolis
BACKGROUND: To advance equity and to enhance leadership skills, self-advocates with intellectual/developmental disabilities are now part of the cohort of trainees in the University of North Carolina LEND, which means that they fully participate in the Interdisciplinary Leadership Development Program, a collaboration among programs in public health, social work, and LEND, which meets monthly. OBJECTIVE: Given this important new participation by self-advocates, this study analyzes the reflections of graduate students on the contributions of self-advocates to their leadership training...
September 14, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28958792/meaningful-components-of-a-community-based-exercise-program-for-individuals-with-disabilities-a-qualitative-study
#3
Sarah L Adam, Kerri A Morgan
BACKGROUND: Enhanced methods of evaluation are necessary to identify community-based exercise interventions that promote physical activity and improve health and participation for individuals with disabilities. The heterogeneity of the populations served, interventions implemented, and outcome measures used remains a barrier to effectively evaluate programs and generate evidence to inform best practice. OBJECTIVE: To explore goals and benefits of community-based exercise for individuals with disabilities and determine barriers and facilitators to evaluation in a community setting...
September 12, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28918095/accessibility-and-usability-of-parks-and-playgrounds
#4
Meredith A Perry, Hemakumar Devan, Harry Fitzgerald, Karen Han, Li-Ting Liu, Jack Rouse
BACKGROUND: Public parks and playgrounds are an environment for leisure activity, which all generations can enjoy at low or no financial cost. Evaluating the accessibility and usability of parks and playgrounds is crucial because their design, environment (natural and built) and safety could restrict participation of persons with disabilities. OBJECTIVE: To evaluate the accessibility and usability of 21 public parks and playgrounds in three metropolitan cities of New Zealand...
September 8, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28918094/post-acute-care-for-children-with-special-health-care-needs
#5
Charles D Phillips, Chau Truong, Hye-Chung Kum, Obioma Nwaiwu, Robert Ohsfeldt
BACKGROUND: Almost all studies of post-acute care (PAC) focus on older persons, frequently those suffering from chronic health problems. Some research is available on PAC for the pediatric population in general. However, very few studies focus on PAC services for children with special health care needs (SHCN). OBJECTIVE: To investigate factors affecting the provision of PAC to children with SHCN. METHODS: Pooled cross-sectional data from Texas Department of State Health Services hospital discharge database from 2011-2014 were analyzed...
September 8, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28882468/inclusive-design-in-architectural-practice-experiential-learning-of-disability-in-architectural-education
#6
Kerry Mulligan, Allyson Calder, Hilda Mulligan
BACKGROUND: The built environment can facilitate or impede an individual's ability to participate in society. This is particularly so for people with disability. Architects are well placed to be advocates for design that enhances societal equality. OBJECTIVE: This qualitative study explored architectural design students' perceptions of inclusive design, their reflections resulting from an experiential learning module and the subsequent influence of these on their design practice...
August 31, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28877860/accelerometer-assessed-light-intensity-physical-activity-and-mortality-among-those-with-mobility-limitations
#7
Emily Frith, Paul D Loprinzi
BACKGROUND: Emerging research demonstrates that light-intensity physical activity is favorably associated with numerous health outcomes among the general population, even independent of high-intensity physical activity. OBJECTIVE: To examine the association between accelerometer-assessed light-intensity physical activity and mortality in a national sample of American adults with mobility limitations. METHODS: Data from the 2003-2006 National Health and Nutrition Examination Survey were utilized...
August 31, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28867152/cognitive-and-affective-empathy-among-adolescent-siblings-of-children-with-a-physical-disability
#8
Lidia Perenc, Ryszard Pęczkowski
BACKGROUND: This study is a continuation of research on possible psychosocial benefits resulting from exposure to sibling with disability present in the family system. The issue seems to be especially important in Poland because of growing number of children with a disability and inconsistent results of previously performed studies. OBJECTIVE: The main aim of this study was to examine the differences in the intensity of cognitive and affective empathy in adolescents who either have or do not have siblings with physical disability...
August 31, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28851508/long-term-housing-subsidies-and-ssi-ssdi-income-creating-health-promoting-contexts-for-families-experiencing-housing-instability-with-disabilities
#9
Zachary S Glendening, Erin McCauley, Marybeth Shinn, Scott R Brown
BACKGROUND: Though disability and housing instability are discussed separately in public health literature, few studies address families at their intersection. As a result, little is known about families who experience both homelessness and disability, how many receive disability benefits like SSI and SSDI, or the influence of those benefits on health-promoting outcomes like housing stability and self-sufficiency. Moreover, no previous research compares the ability of different housing and service interventions to increase disability benefit access...
August 26, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28870419/healthy-body-healthy-mind-a-mixed-methods-study-of-outcomes-barriers-and-supports-for-exercise-by-people-who-have-chronic-moderate-to-severe-acquired-brain-injury
#10
Laura S Lorenz, Ann L Charrette, Therese M O'Neil-Pirozzi, Julia M Doucett, Jeffrey Fong
BACKGROUND: Few people with chronic moderate-to-severe brain injury are following recommended physical activity guidelines. OBJECTIVE: Investigate effects of planned, systematic physical activity while cultivating social and emotional well-being of people with chronic moderate-to-severe brain injury. HYPOTHESIS: Moderate-to-intensive physical activity would be associated with improvements in impairment and activity limitation measures (endurance, mobility, gait speed) immediately post-intervention and six weeks later (study week 12)...
August 24, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28823389/introducing-the-adults-with-chronic-healthcare-needs-achcn-definition-and-screening-instrument-rationale-supporting-evidence-and-testing
#11
Stephen P Gulley, Elizabeth K Rasch, Barbara M Altman, Christina D Bethell, Adam C Carle, Benjamin G Druss, Amy J Houtrow, Amanda Reichard, Leighton Chan
BACKGROUND: Among working age adults in the United States, there is a large, heterogeneous population that requires ongoing and elevated levels of healthcare and related services. At present, there are conflicting approaches to the definition and measurement of this population in health services research. OBJECTIVE: An expert panel was convened by the National Institutes of Health with the objective of developing a population-level definition of Adults with Chronic Healthcare Needs (ACHCN)...
August 8, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28811155/assessing-changes-in-quality-of-life-and-independent-living-and-working-levels-among-agrability-farmers-and-ranchers-with-disabilities
#12
Robert J Fetsch, Danielle M Jackman, Christina L Collins
BACKGROUND: While emerging research has focused on quality of life (QOL) levels among farmers and ranchers with disabilities, much work is still needed on this largely understudied population. The AgrAbility Project, a USDA initiative, offers pragmatic solutions to increase farmers and ranchers with disabilities' QOL and ability to work and live independently (ILW). OBJECTIVES: To assess pretest-posttest changes in farmers and ranchers with disabilities' ILW and QOL levels after participating in AgrAbility, to identify demographic predictors of ILW and QOL (e...
August 8, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28802895/physical-activity-and-obesity-among-nine-year-old-children-with-and-without-chronic-health-problems-illness-or-disabilities-in-ireland
#13
Justin A Haegele, Sean Healy, Xihe Zhu
BACKGROUND: Regular engagement in physical activity can help youth control their weight during childhood while decreasing one's chances of developing chronic diseases (e.g., coronary heart disease, diabetes) throughout the lifespan. While numerous studies have explored physical activity participation and weight status among typically developing children, few epidemiological studies utilizing nationally representative data has focused on children with chronic health problems, illness, or disabilities (CHID)...
August 8, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28784583/obstetric-clinicians-experiences-and-educational-preparation-for-caring-for-pregnant-women-with-physical-disabilities-a-qualitative-study
#14
Suzanne C Smeltzer, Monika Mitra, Linda Long-Bellil, Lisa I Iezzoni, Lauren D Smith
BACKGROUND: Women with physical disabilities (WPD) experience major barriers to care during pregnancy. Lack of education about disability in health professionals' education is a pervasive barrier to quality care. In an effort to explore this issue, this study examined the issue from the perspective of obstetric clinicians who provide care to WPD. OBJECTIVE: This qualitative descriptive study explored perspectives of obstetric clinicians who provide perinatal care for WPD to inform the educational preparation of clinicians to care for women with disabilities...
August 1, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28974321/sources-of-data-about-disability
#15
EDITORIAL
Suzanne McDermott, Margaret A Turk
No abstract text is available yet for this article.
October 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28385571/aging-mobility-impairments-and-subjective-wellbeing
#16
Vicki A Freedman, Deborah Carr, Jennifer C Cornman, Richard E Lucas
BACKGROUND: Wellbeing is often described as U-shaped over the life course, suggesting an apparent paradox that wellbeing remains high at older ages despite increases in impairments. OBJECTIVE/HYPOTHESES: We explore associations among age, lower body impairments-one of the most common late-life impairments-and three measures of wellbeing: life satisfaction, emotional wellbeing and somatic wellbeing. We hypothesize that age effects are positive, become stronger once lower body impairments are controlled, and are concentrated among those who have maintained their mobility...
October 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28215627/caregivers-effect-on-weight-management-in-adults-with-intellectual-and-developmental-disabilities
#17
L T Ptomey, C A Gibson, J Lee, D K Sullivan, R A Washburn, A M Gorczyca, J E Donnelly
INTRODUCTION: Caregivers of adults with IDD often play a large role in the ability of adults with IDD to lose weight. OBJECTIVE: The purpose of this study was to determine to examine the effects of the caregivers' perceived burdens and self-efficacy and their relationship to an individual (family member or paid staff) on weight changes across a weight management intervention for adults with IDD. METHODS: Overweight/obese adults with mild to moderate IDD, along with assigned caregivers who served as their study partner, were randomized to an 18-month weight management intervention...
October 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28712953/physical-activity-levels-in-children-with-sensory-problems-cross-sectional-analyses-from-the-millennium-cohort-study
#18
Genevieve Williams, Daniel Aggio, Brendon Stubbs, Shahina Pardhan, Benjamin Gardner, Lee Smith
BACKGROUND: Hearing and vision impairments/problems are associated with increased risk of premature mortality in adulthood. One potential pathway explaining this association is reduced levels of physical activity. Reductions in activity levels due to sensory impairments may commence earlier in life; however, associations between sensory impairments/problems and activity levels in childhood are not well understood. OBJECTIVE: The objective of this study was to examine associations between hearing and vision problems and objectively measured activity levels in a representative sample of British children...
July 11, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28728942/response-letter-to-j-hall-et%C3%A2-al
#19
LETTER
Barbara M Altman, Jennifer Madans, Julie D Weeks
No abstract text is available yet for this article.
July 8, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28709824/under-representation-of-certain-disability-groups-by-the-american-community-survey-acs
#20
LETTER
Jean P Hall, Catherine Ipsen, Noelle K Kurth, Cathy Chambless, Sara McCormick, Rebecca Goe
No abstract text is available yet for this article.
July 8, 2017: Disability and Health Journal
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