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Disability and Health Journal

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https://www.readbyqxmd.com/read/28495217/individuals-with-mild-ms-with-poor-sleep-quality-have-impaired-visuospatial-memory-and-lower-perceived-functional-abilities
#1
Catherine F Siengsukon, Mayis Aldughmi, Melike Kahya, Sharon Lynch, Jared Bruce, Morgan Glusman, Abigail Ness Norouzinia, Sandra Billinger
BACKGROUND: Sleep disturbances are common in individuals with Multiple Sclerosis (MS), but the impact of poor sleep quality on cognitive and physical function in individuals with MS is less clear. OBJECTIVE/HYPOTHESIS: The purpose of this study was to examine the relationship between sleep quality and cognitive and physical function in individuals with mild MS. METHODS: Forty individuals with relapsing-remitting or secondary-progressive MS (50...
April 29, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28476583/prevalence-and-causes-of-work-disability-among-working-age-u-s-adults-2011-2013-nhis
#2
K A Theis, D Roblin, C G Helmick, R Luo
BACKGROUND: Chronic conditions are among the major causes of work disability (WD), which is associated with lower employment, less economic activity, and greater dependence on social programs, while limiting access to the benefits of employment participation. OBJECTIVE/HYPOTHESIS: We estimated the overall prevalence of WD among working-age (18-64 years) U.S. adults and the most common causes of WD overall and by sex. Next, we estimated the prevalence and most common causes of WD among adults with 12 common chronic conditions by sex and age...
April 25, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28501322/extra-costs-of-living-with-a-disability-a-systematized-review-and-agenda-for-research
#3
REVIEW
Sophie Mitra, Michael Palmer, Hoolda Kim, Daniel Mont, Nora Groce
BACKGROUND: There has been a growing interest in disability and poverty on the international research and policy stages. Poverty assessments for persons with disabilities may be affected by the experience of extra costs associated with a disability. OBJECTIVE: This article provides a systematized review of the global literature on the direct costs associated with living with a disability at the individual or household level. METHODS: We searched three databases for peer-reviewed journal articles that estimated extra costs associated with disability: Econlit, SocIndex and PubMed...
April 24, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28456615/a-pilot-study-of-trabajadora-de-salud-a-lay-health-worker-intervention-for-latinas-os-with-traumatic-brain-injuries-and-their-caregivers
#4
Kristen F Linton, Bum Jung Kim
BACKGROUND: Latinas/os with traumatic brain injuries (TBIs) and their caregivers experience worse outcomes than others. OBJECTIVE: The study aimed to assess the acceptability and promise of Trabajadora de Salud on the functional abilities, hospital readmission, rehabilitation, employment, depression, somatic symptoms, and caregiver burden among Latinas/os with TBIs and their caregivers. METHODS: A pre-posttest experimental pilot study was conducted...
April 21, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28442320/people-with-multiple-sclerosis-report-significantly-worse-symptoms-and-health-related-quality-of-life-than-the-us-general-population-as-measured-by-promis-and-neuroqol-outcome-measures
#5
Dagmar Amtmann, Alyssa M Bamer, Jiseon Kim, Hyewon Chung, Rana Salem
BACKGROUND: Individuals with multiple sclerosis (MS) report fatigue, pain, depression, cognitive difficulties, and other symptoms. It is often difficult to compare symptoms across studies and populations because scales used to measure individual symptoms or quality of life indicators (QOLI) use different metrics and often do not provide norms. PROMIS and Neuro-QOL measures, developed with modern psychometric methods, use a common metric and provide population norms. OBJECTIVE: To create symptom profiles and compare symptoms and QOLIs of people living with MS to a US general population sample...
April 21, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28462901/-canaries-in-the-mine-the-impact-of-affordable-care-act-implementation-on-people-with-disabilities-evidence-from-interviews-with-disability-advocates
#6
Stephan Lindner, Ruth Rowland, Margaret Spurlock, Stan Dorn, Melinda Davis
BACKGROUND: The Affordable Care Act (ACA) has many provisions that could improve health care for people with disabilities, including Medicaid expansion and the ability to purchase qualified health plans (QHPs). OBJECTIVE: To explore how ACA provisions affected people with disabilities' health care experiences during the first enrollment period and to suggest hypotheses for future research. METHOD: We conducted semi-structured interviews with disability community leaders (N = 16) from a maximum variation sample of 10 U...
April 12, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28456614/healthcare-provider-perceptions-of-accessible-exam-tables-in-primary-care-implementation-and-benefits-to-patients-with-and-without-disabilities
#7
Allysha C Maragh-Bass, Joan M Griffin, Sean Phelan, Lila J Finney Rutten, Megan A Morris
BACKGROUND: Recent healthcare mandates require availability of accessible medical exam equipment, which may reduce barriers to care for patients with disabilities (PWD). However, more research is needed to explore healthcare provider views on implementation and routine use of accessible equipment. OBJECTIVE: This study qualitatively explored healthcare provider perceptions of: (1) daily use of accessible medical examination tables with PWD; and (2) recommendations for addressing challenges to using this equipment...
April 12, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28428113/impact-of-enjoyment-on-physical-activity-and-health-among-children-with-disabilities-in-schools
#8
Jooyeon Jin, Joonkoo Yun, Stamatis Agiovlasitis
BACKGROUND: Enjoyment in school-based physical activity (PA) programs, such as recess or physical education may be important for promoting children's health, but there is a lack of evidence explaining how enjoyment affects health in children with disabilities. HYPOTHESES: Enjoyment in school-based PA programs will positively influence general health through participating in more daily PA, and this relationship will vary between younger and older children with disabilities...
April 12, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28420592/association-between-perceived-discrimination-and-healthcare-seeking-behavior-in-people-with-a-disability
#9
Miguel G Moscoso-Porras, German F Alvarado
BACKGROUND: Experiences of discrimination lead people from vulnerable groups to avoid medical healthcare. It is yet to be known if such experiences affect people with disabilities (PWD) in the same manner. OBJECTIVES: To determine the association between perceived discrimination and healthcare-seeking behavior in people with disabilities and to explore differences of this association across disability types. METHODS: We performed a cross-sectional study with data from a national survey of people with disabilities...
April 12, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28487170/-paying-the-price-to-get-there-motherhood-and-the-dynamics-of-pregnancy-deliberations-among-women-with-disabilities
#10
Tracey A LaPierre, Mary K Zimmerman, Jean P Hall
BACKGROUND: Women with disabilities report fewer pregnancies than those without disabilities. OBJECTIVE: To explore the range of factors involved in pregnancy decision-making among women with disabilities, and give insight into the decision making process. METHODS: Data were obtained from 4 focus groups conducted with 22 women of child-bearing age, who had a chronic physical or mental health condition or disability that influenced their pregnancy decisions...
April 6, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28431989/live-birth-miscarriage-and-abortion-among-u-s-women-with-and-without-disabilities
#11
Willi Horner-Johnson, Sheetal Kulkarni-Rajasekhara, Blair G Darney, Mekhala Dissanayake, Aaron B Caughey
BACKGROUND: Prior studies have found that women with disabilities who give birth are more likely to have preterm deliveries and low birthweight infants. However, it is not known what proportion of pregnant women with disabilities experience live birth, versus miscarriage or abortion. OBJECTIVE: To compare proportions of live birth, miscarriage, and abortion among women with basic action difficulties, women with complex activity limitations, and women without disabilities in a nationally representative sample...
April 6, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28431988/time-trends-in-births-and-cesarean-deliveries-among-women-with-disabilities
#12
Willi Horner-Johnson, Frances M Biel, Blair G Darney, Aaron B Caughey
BACKGROUND: Although it is likely that childbearing among women with disabilities is increasing, no empirical data have been published on changes over time in the numbers of women with disabilities giving birth. Further, while it is known that women with disabilities are at increased risk of cesarean delivery, temporal trends in cesarean deliveries among women with disabilities have not been examined. OBJECTIVE: To assess time trends in births by any mode and in primary cesarean deliveries among women with physical, sensory, or intellectual/developmental disabilities...
April 6, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28428112/experiences-and-unmet-needs-of-women-with-physical-disabilities-for-pain-relief-during-labor-and-delivery
#13
Linda Long-Bellil, Monika Mitra, Lisa I Iezzoni, Suzanne C Smeltzer, Lauren D Smith
BACKGROUND: Childbirth is widely acknowledged as one of the most painful experiences most women will undergo in their lifetimes. Alleviating labor and delivery pain for women with physical disabilities can involve an additional level of complexity beyond that experienced by most women, but little research has explored their experiences. OBJECTIVE/HYPOTHESIS: The purpose of this study was to explore the experiences of women with physical disabilities with respect to pain relief during labor and delivery with the goal of informing their care...
April 6, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28420593/sexual-health-in-the-community-services-for-people-with-intellectual-and-developmental-disabilities
#14
Carli Friedman, Aleksa L Owen
BACKGROUND: Sexuality is a central dimension of overall health and well-being. People with intellectual and developmental disabilities (IDD) continue to experience disparities in healthcare, particularly regarding access to sexual health related services. Medicaid Home and Community-Based Services (HCBS) waivers are ideally situated to provide sexual and reproductive healthcare in accessible settings. OBJECTIVE: This preliminary study analyzed national Medicaid HCBS waivers to determine how they provide sexuality services for people with IDD...
April 6, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28416204/-they-must-understand-we-are-people-pregnancy-and-maternity-service-use-among-signing-deaf-women-in-cape-town
#15
Margaret W Gichane, Marion Heap, Mayara Fontes, Leslie London
BACKGROUND: Women with disabilities are at disproportionate risk for adverse pregnancy outcomes, however, there is limited information on their pregnancy histories. This mixed-methods study focuses on signing Deaf women whose access to health care may be compromised by language barriers related to their disability. OBJECTIVE: To describe and compare the pregnancy outcomes and maternity service use of a sample of signing Deaf women of child-bearing age in Cape Town to the population of the Western Cape of South Africa...
April 6, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28408099/the-sexuality-of-young-women-with-intellectual-and-developmental-disabilities-a-neglected-focus-in-the-american-foster-care-system
#16
Michelle S Ballan, Molly Burke Freyer
Youths with intellectual and developmental disabilities (ID/DD) are overrepresented in the American foster care system and experience heightened rates of pregnancy compared to their nondisabled peers. Yet limited information is known about sexually active or pregnant young women with ID/DD in foster care. Consequently, important healthcare needs of this population are not adequately addressed. This article explores sexuality education and sexual healthcare for female adolescents in foster care with ID/DD and recommends practice guidelines to support and prepare their emergent sexual development...
April 6, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28404230/birth-outcomes-among-us-women-with-intellectual-and-developmental-disabilities
#17
Ilhom Akobirshoev, Susan L Parish, Monika Mitra, Eliana Rosenthal
BACKGROUND: Women with intellectual and developmental disabilities (IDD) are bearing children at increasing rates. However, there is very little research about pregnancy experiences and birth outcomes among women with IDD. No studies to date have examined birth outcomes with a US population-based sample. OBJECTIVE: The main objective was to estimate the national occurrence of deliveries in women with IDD and to compare their birth outcomes to women without IDD. METHODS: We examined the 2007-2011 Nationwide Inpatient Sample of the Healthcare Cost and Utilization Project to compare birth outcomes in women with and without IDD...
April 6, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28395910/disparities-in-receipt-of-family-planning-services-by-disability-status-new-estimates-from-the-national-survey-of-family-growth
#18
William Mosher, Tina Bloom, Rosemary Hughes, Leah Horton, Ramin Mojtabai, Jeanne L Alhusen
BACKGROUND: A substantial and increasing population of US women of childbearing age live with disability. Disability-based disparities in access to family planning services have been previously documented, but few studies have used population-based data sources or evidence-based measures of disability. OBJECTIVE: To determine population-based estimates of use of family planning services among women 15-44 years of age in the United States, and to examine differences by disability status...
April 6, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28395909/transcending-the-counter-normative-sexual-and-reproductive-health-and-persons-with-disability
#19
EDITORIAL
Lisa I Iezzoni, Monika Mitra
No abstract text is available yet for this article.
April 6, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28428111/reproductive-healthcare-experiences-of-women-with-cerebral-palsy
#20
Katharine Hayward, Angela Y Chen, Elizabeth Forbes, Rachel Byrne, Marcia B Greenberg, Eileen G Fowler
BACKGROUND: Little is known about pregnancy rates in women with disabilities in general and even less is known about women with child-onset disabilities such as cerebral palsy (CP). HYPOTHESIS: We hypothesized that discussions about pregnancy with healthcare providers and pregnancy rates for woman with CP would be related to their functional levels. METHODS: Survey methodology was used to gather information about demographics, function, whether women were asked about their desire for children, pregnancy outcomes, and services offered during pregnancy and postpartum...
April 5, 2017: Disability and Health Journal
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