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Disability and Health Journal

Lisa I Iezzoni, Dennis Heaphy, Kimberley S Warsett, Sarah A Marsella
BACKGROUND: Persons leading their own evaluations of care quality offers the promise of generating maximally meaningful information to ensure person-centered care. OBJECTIVES: To describe an intervention where persons with disability engage other persons with disability, develop their own metrics to assess their care, and provide these care evaluations directly to primary care practitioners, with the goal of improving care. The context was a research study involving One Care, a Massachusetts demonstration program with capitated reimbursement for individuals ages 18-64 dually eligible for Medicare and Medicaid...
June 30, 2018: Disability and Health Journal
Marji Erickson Warfield, Rachel Sayko Adams, Grant A Ritter, Anne Valentine, Thomas V Williams, Mary Jo Larson
BACKGROUND: Studies have examined utilization of health care services by civilian children with chronic conditions but not utilization among child dependents of military personnel. OBJECTIVE: To identify children with chronic conditions among military members and retirees and examine their health care utilization and its association with type of condition. METHODS: We derived our sample from child dependents ages birth to 18 years of military personnel with health care enrollment in FY2011...
June 30, 2018: Disability and Health Journal
Jessica Hamm, Joonkoo Yun
BACKGROUND: Many young adults, specifically those with a diagnosis of autism spectrum disorder (ASD), do not meet the national physical activity (PA) guidelines. One way to address this problem may be to examine the factors that motivate individuals to engage in PA. However, the majority of current literature does not consider the unique characteristics of individuals with ASD, which may influence their motivation. OBJECTIVE: The purpose of this research was to examine Self-Determination Theory predictors for PA for young adults with ASD...
June 15, 2018: Disability and Health Journal
Barbara Mazurkiewicz, Małgorzata Stefaniak, Ewa Dmoch-Gajzlerska
BACKGROUND: As estimated from the number of published studies, in Poland the research into the perinatal care experiences of women with low vision or total blindness remains limited. OBJECTIVES: The purpose of the study was to fill this gap by investigating satisfaction with perinatal care received by women with visual impairment in four city hospitals in Warsaw, Poland, and to recommend, if required, modifications in midwives' education and care standards based on the women's perceptions and expectations...
June 12, 2018: Disability and Health Journal
L B Strober
BACKGROUND: Reductions in quality of life (QOL) exist among individuals with multiple sclerosis (MS). OBJECTIVE: The present investigation aimed to adopt a biopsychosocial model in examining QOL in the early stages of MS. METHODS: Individuals with MS (34 with average to low QOL and 35 with high QOL) were compared on measures of disease symptoms, psychological functioning, personality, self-efficacy, locus of control (LOC), social support, and coping to determine the most salient predictors of QOL...
May 31, 2018: Disability and Health Journal
Allyson Calder, Gisela Sole, Hilda Mulligan
BACKGROUND: Fitness centers could be ideal places for people with disabilities to engage in the recommended levels of physical activity for healthy well-being. However, one of the primary barriers to participation at fitness centers is an inaccessible built environment. OBJECTIVE: This review study aimed to evaluate the accessibility of public indoor fitness centers for people with disabilities. METHODS: We searched electronic databases and web based search engines using keywords and synonyms for fitness centers, people with disability and accessibility...
May 24, 2018: Disability and Health Journal
Ilanit Hasson-Ohayon, Meiran Hason-Shaked, Tamar Silberg, Carmit-Noa Shpigelman, David Roe
BACKGROUND: Women with disabilities may face social negative attitudes with regard to their being mothers. In addition, attitudes toward different disabilities form a hierarchy, with more positive attitudes being displayed toward persons with physical disabilities than toward persons with psychiatric disabilities. OBJECTIVE: Current observational study examined whether the relationship between a woman's type of disability (psychiatric vs. physical) and the social attitude towards her would be moderated by her being presented as a mother...
May 16, 2018: Disability and Health Journal
Margaret A Turk, Suzanne McDermott
No abstract text is available yet for this article.
July 2018: Disability and Health Journal
Lisa Bundara Sinclair, Michael H Fox, Bruce S Jonas, Hugh G Berry, Louis A Quatrano, Angela K McGowan, Georgina Peacock
The Healthy People 2020 (HP2020) Midcourse Review (MCR) presents an opportunity for professionals in the disability and health field to contemplate preliminary progress toward achieving specific health objectives. The MCR showed notable progress in access to primary care, appropriate services for complex conditions associated with disability, expansion of health promotion programs focusing on disability, improving mental health, and reducing the unemployment rate among job seekers with disabilities. This commentary presents potential considerations, at least in part, for such progress including increased access to health care, greater awareness of appropriate services for complex conditions, and opportunities for societal participation...
July 2018: Disability and Health Journal
Lauren T Ptomey, Amanda N Szabo, Erik A Willis, Anna M Gorczyca, J Leon Greene, Jessica C Danon, Joseph E Donnelly
BACKGROUND: Between 250,000 and 400,000 individuals in the United States are diagnosed with Down syndrome (DS). Nearly all adults with DS will develop Alzheimer's disease pathology starting in their thirties. Recent studies suggest that increased physical activity (PA) may be important for maintaining components of cognition, including memory. OBJECTIVE: The purpose of this study was to evaluate changes in cognitive function after completion of a 12-week exercise intervention in adults with DS...
July 2018: Disability and Health Journal
Neeharika Nandam, Deborah Gaebler-Spira, Rachel Byrne, Judith Wolfman, Judy Panko Reis, Chun Wai Hung, Allison Todd, Jordyn Durkin, Christina Marciniak
BACKGROUND: Women with disabilities (WWD) have reported lower mammography rates than the general population, however rates for women with cerebral palsy (CP) have not been specifically studied. OBJECTIVE: To evaluate mammography rates in women with CP and to identify strengths and barriers with their screening experience. METHODS: Women with CP 40 years or older (n = 118) participating in a prospective cross-sectional survey were queried regarding screening status, imaging modality, and accommodation needs and availability...
July 2018: Disability and Health Journal
Aoife Cahill, Orna Mc Ginley, Courtney Bertrand, Olive Lennon
BACKGROUND: Robotic walking devices (RWD) have shown many physical benefits in Spinal Cord Injury (SCI) rehabilitation. No study to date has explored end-user perceptions of these devices or gained insight into the use of these devices in a gym-based setting. OBJECTIVE: This preliminary study explores the perspectives of four non-ambulatory individuals with SCI on using an exoskeleton walking device in a gym-based community setting. METHODS: In-depth, semi-structured interviews were conducted with four SCI individuals living in the community...
July 2018: Disability and Health Journal
Alexa K Stuifbergen, Heather Becker, Francisco Perez, Janet Morrison, Adama Brown, Vicki Kullberg, Wenhui Zhang
BACKGROUND: The effects of multiple sclerosis (MS) on cognition have gained increasing recognition as one of the major disabling symptoms of the disease. Despite the prevalence of these symptoms and their impact on quality of life, limited attention has been given to strategies that might help manage the cognitive changes commonly experienced by persons with MS. OBJECTIVE: The primary purpose of this study was to determine the effectiveness of a novel computer-assisted cognitive rehabilitation intervention MAPSS-MS (Memory, Attention, Problem Solving Skills in MS) in a multi-site trial with persons with MS...
July 2018: Disability and Health Journal
Brian Barger, Catherine Rice, Rebecca Wolf, Andrew Roach
BACKGROUND: Widely recommended developmental surveillance methods include developmental monitoring (DM) and development screening (DS). Much research has been done on DS, but very little research has compared the effectiveness of DM and DS together. OBJECTIVES: To investigate the relationship between DM and DS in Part C early intervention (EI) service receipt. METHODS: Authors used data from the 2007/2008 and 2011/2012 National Survey of Children's Health (NSCH)...
July 2018: Disability and Health Journal
Robert S Dembo, Monika Mitra, Michael McKee
BACKGROUND: People with disabilities experience mental health disparities and higher rates of violence compared to people without disabilities. Few studies have examined the psychological consequences of violence against people with disabilities, and whether they differ from those experienced by people without disabilities. OBJECTIVE: This study compared psychological consequences of violence among men and women with and without disabilities. METHODS: We analyzed data from the 2008-2014 waves of the National Crime Victimization Survey...
July 2018: Disability and Health Journal
Karen Lucia de Araújo Freitas Moreira, Gracia María Ábalos-Medina, Carmen Villaverde-Gutiérrez, Neide María Gomes de Lucena, Anderson Belmont Correia de Oliveira, José Manuel Pérez-Mármol
BACKGROUND: Informal caregivers of post-stroke patients usually undergo high levels of pain and stress and have a reduced quality of life. OBJECTIVE: To evaluate the effectiveness of two home ergonomic interventions aimed at reducing pain intensity and perceived stress and enhancing the quality of life in informal caregivers of chronic post-stroke patients. METHODS: A randomized single-blind controlled clinical trial was conducted, with a sample of 33 informal caregivers of patients with stroke...
July 2018: Disability and Health Journal
Elaine Eisenbaum, Diana M DiNitto, Lauren Bishop-Fitzpatrick
BACKGROUND: The rise in women's tobacco use and subsequent health complications has generated an increase in gender-related tobacco use research. However, no research has examined gender's influence on tobacco use among people with intellectual and developmental disabilities (IDD). OBJECTIVE: To examine 1) tobacco use prevalence rates among men and women with IDD, and 2) correlates of tobacco use among men and women with IDD. METHODS: This study examined gender differences in tobacco use among a sample of 3587 adult U...
July 2018: Disability and Health Journal
Kendall A Leser, Phyllis L Pirie, Amy K Ferketich, Susan M Havercamp, Mary Ellen Wewers
BACKGROUND: People with developmental disabilities are not immune from the addictive effects and poor health outcomes associated with cigarette use. Direct support professionals often play a large role in the social environments of people with developmental disabilities and the literature suggests that one's environment can influence behavior. OBJECTIVES: To examine the relationship between the smoking behaviors of people with developmental disabilities and their direct support professional providers...
July 2018: Disability and Health Journal
Ariane Camoin, Lionel Dany, Corinne Tardieu, Michel Ruquet, Pierre Le Coz
BACKGROUND: The provision of dental care for children with intellectual disability raises many ethical questions. OBJECTIVE: The aim of this qualitative study was to explore approaches to dental treatment in an anxious child with intellectual disability and the ethical dilemmas that ensue. METHODS: Semi-structured interviews were conducted between February and May 2012. A clinical scenario was used to establish a starting point for a discussion of the clinical approach and lead to an ethical reflection...
July 2018: Disability and Health Journal
Lisa I Iezzoni, Amy J Wint, Alexy Arauz Boudreau, Cheri A Blauwet, Karen A Kuhlthau
BACKGROUND: Few U.S. studies have explored how children experience a parent's mobility disability and its effects on their daily lives. OBJECTIVE: We aimed to engage youth ages 13-17 who had at least one parent with mobility disability in describing their perceptions of their parent's disability and its consequences for their daily and family life. METHODS: Participants videoed and photographed their experiences following general guidelines from the researchers about topics of interest...
July 2018: Disability and Health Journal
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