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Disability and Health Journal

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https://www.readbyqxmd.com/read/29661683/healthy-living-a-health-promotion-program-for-adults-with-intellectual-disability
#1
Andrea An, Lyn McPherson, Anna Urbanowicz
BACKGROUND: Adults with intellectual disability are more likely to experience a range of physical and mental health problems in comparison to the general population. However with access to appropriate health care and promotion, many of these health problems can be prevented. OBJECTIVE: To explore the perspectives of stakeholders of a health promotion program established for adults with intellectual disability. METHODS: Semi-structured interviews were conducted with 12 stakeholders of a health promotion program...
April 4, 2018: Disability and Health Journal
https://www.readbyqxmd.com/read/29650348/the-effectiveness-of-a-serious-game-to-enhance-empathy-for-care-workers-for-people-with-disabilities-a-parallel-randomized-controlled-trial
#2
P S Sterkenburg, V S Vacaru
BACKGROUND: Empathic care is fundamental in healthcare settings and is associated to several positive outcomes for care workers (i.e. burnout, compassion satisfaction) and patients (i.e. therapeutic alliance, trust, wellbeing). Yet, studies showed a decrease in empathy in care workers, which is argued to be a product of personal distress. Thus, interventions should aim at enhancing empathy in care workers working for vulnerable populations to ensure optimal client-carer relationships...
April 4, 2018: Disability and Health Journal
https://www.readbyqxmd.com/read/29673932/recess-and-children-with-disabilities-a-mixed-methods-pilot-study
#3
Lauren McNamara, Yana Lakman, Natalie Spadafora, Ken Lodewyk, Meaghan Walker
BACKGROUND: It is well-understood that children's social relationships are intrinsically linked to their overall health trajectories. Recess is the only time in the school day that children are free to play and socialize. Yet research on recess consistently indicates that many school playgrounds are challenged by a social landscape that is not conducive to meaningful play. While all children are susceptible to negative social experiences, children with disabilities are at a heightened risk for exclusion and victimization...
April 3, 2018: Disability and Health Journal
https://www.readbyqxmd.com/read/29650349/perceived-influence-of-intrinsic-extrinsic-factors-on-participation-in-life-activities-after-spinal-cord-injury
#4
John E Cobb, Jean Leblond, Frédéric S Dumont, Luc Noreau
BACKGROUND: Various types of limitations on community participation are experienced by people with spinal cord injury (SCI). OBJECTIVES: To determine: 1) the perceived influence of six intrinsic/extrinsic factors (i.e. physical impairment, emotional condition, thinking skills, environment, lack of assistance, discrimination) on participation in 26 life activities, 2) if this influence varied based on extent of participation, and 3) if personal or environmental characteristics influenced perceptions...
April 3, 2018: Disability and Health Journal
https://www.readbyqxmd.com/read/29636237/health-related-quality-of-life-in-children-with-spina-bifida-in-uganda
#5
Femke Bannink, Richard Idro, Geert Van Hove
BACKGROUND: Studies on health related quality of life (HRQOL) of children with disabilities in low income countries are limited. OBJECTIVE: To inform interventions for children with spina bifida in low income countries, HRQOL of children with spina bifida and siblings, predictors, relationships between HRQOL and parental stress in Uganda were examined. METHODS: Demographic, impairment, daily, social functioning data, and HRQOL using the KIDSCREEN-10 were collected from 39 children, 33 siblings, and 39 parents from a cohort of families of children with spina bifida...
April 3, 2018: Disability and Health Journal
https://www.readbyqxmd.com/read/29628361/relationship-between-habitual-physical-activity-motor-capacity-and-capability-in-children-with-cerebral-palsy-aged-4-5-years-across-all-functional-abilities
#6
Piyapa Keawutan, Kristie L Bell, Stina Oftedal, Peter S W Davies, Robert S Ware, Roslyn N Boyd
BACKGROUND: Children with cerebral palsy (CP) have lower habitual physical activity (HPA) than their typically developing peers. There are limited studies of HPA in young children with CP under the age of 5 years. OBJECTIVE: To investigate the relationships between HPA, sedentary time, motor capacity and capability in children with CP aged 4-5 years. METHODS: Sixty-seven participants were classified using Gross Motor Function Classification System (GMFCS), assessed for motor capacity using Gross Motor Function Measure (GMFM) and wore accelerometers for three days to measure HPA and sedentary time...
April 3, 2018: Disability and Health Journal
https://www.readbyqxmd.com/read/29598927/epidemiology-of-hip-fracture-in-nursing-home-residents-with-multiple-sclerosis
#7
Tingting Zhang, Andrew R Zullo, Theresa I Shireman, Yoojin Lee, Vincent Mor, Qing Liu, Kevin W McConeghy, Lori Daiello, Douglas P Kiel, Sarah D Berry
BACKGROUND: Hip fracture risk is high in young people with multiple sclerosis (MS), but has not been examined in an institutionalized aging population with MS. OBJECTIVE: We aimed to compare the hip fracture risk in nursing home (NH) residents with and without MS; and (2) examine risk factors for hip fracture in those with MS. METHODS: We conducted a retrospective cohort study using national NH clinical assessment and Medicare claims data...
March 21, 2018: Disability and Health Journal
https://www.readbyqxmd.com/read/29548565/emergency-department-utilization-among-people-with-disabilities-in-korea
#8
Agnus M Kim, Jin Yong Lee, Jayeun Kim
BACKGROUND: According to prior studies, it is possible to consider the emergency care utilization due to ambulatory care sensitive conditions (ACSCs) as a proxy measure of access to primary care but there was no confirmed study among people with disabilities. OBJECTIVE/HYPOTHESIS: We examined overall emergency department (ED) utilization patterns among people with disabilities compared with the general population and estimated factors affecting ED utilization. Additionally, we examined whether there were any differences in ED visits due to ACSCs according to type and severity of disability...
March 9, 2018: Disability and Health Journal
https://www.readbyqxmd.com/read/29545015/the-economic-case-for-well-considered-investment-in-health-related-employment-support-costs-and-savings-of-alternative-modified-individual-and-placement-support-ips-models
#9
Adam Whitworth
BACKGROUND: Health-related unemployment is a major issue across advanced economies. Modified versions of well-evidenced Individual Placement and Support (IPS) models of employment support for health cohorts offer considerable potential. A significant gap currently however is the lack of evidence around their financial return on investment. OBJECTIVE/HYPOTHESIS: To provide robust financial return on investment estimates for analytically derived alternative specifications of modified IPS services for the first time in the literature, sensitivity tested across various levels of performance...
March 9, 2018: Disability and Health Journal
https://www.readbyqxmd.com/read/29501470/changes-in-cognitive-function-after-a-12-week-exercise-intervention-in-adults-with-down-syndrome
#10
Lauren T Ptomey, Amanda N Szabo, Erik A Willis, Anna M Gorczyca, J Leon Greene, Jessica C Danon, Joseph E Donnelly
BACKGROUND: Between 250,000 and 400,000 individuals in the United States are diagnosed with Down syndrome (DS). Nearly all adults with DS will develop Alzheimer's disease pathology starting in their thirties. Recent studies suggest that increased physical activity (PA) may be important for maintaining components of cognition, including memory. OBJECTIVE: The purpose of this study was to evaluate changes in cognitive function after completion of a 12-week exercise intervention in adults with DS...
February 26, 2018: Disability and Health Journal
https://www.readbyqxmd.com/read/29576274/corrigendum-to-associations-between-neurodevelopmental-disorders-and-factors-related-to-school-health-and-social-interaction-in-schoolchildren-results-from-a-swedish-population-based-survey-disabil-health-j-9-4-2016-663-672
#11
https://www.readbyqxmd.com/read/29576273/knowledge-translation-and-the-health-of-people-with-disability
#12
EDITORIAL
Margaret A Turk, Suzanne McDermott
No abstract text is available yet for this article.
April 2018: Disability and Health Journal
https://www.readbyqxmd.com/read/29396271/at-the-intersection-of-chronic-disease-disability-and-health-services-research-a-scoping-literature-review
#13
REVIEW
Stephen P Gulley, Elizabeth K Rasch, Christina D Bethell, Adam C Carle, Benjamin G Druss, Amy J Houtrow, Amanda Reichard, Leighton Chan
BACKGROUND: There is a concerted effort underway to evaluate and reform our nation's approach to the health of people with ongoing or elevated needs for care, particularly persons with chronic conditions and/or disabilities. OBJECTIVE: This literature review characterizes the current state of knowledge on the measurement of chronic disease and disability in population-based health services research on working age adults (age 18-64). METHODS: Scoping review methods were used to scan the health services research literature published since the year 2000, including medline, psycINFO and manual searches...
April 2018: Disability and Health Journal
https://www.readbyqxmd.com/read/29287974/enhancing-individual-and-community-disaster-preparedness-individuals-with-disabilities-and-others-with-access-and-functional-needs
#14
Judy Kruger, Cynthia F Hinton, Lisa Bundara Sinclair, Brenda Silverman
Preparedness planning is essential to minimizing the impact of disasters on communities and individuals. Attention to the needs of people with disabilities is vital as they have additional needs before, during and after a disaster that are specific to the disabling condition. In this Commentary, we emphasize national guidelines on disability inclusion in emergency preparedness. We examine some potential areas of planning and response that need attention as suggested by preparedness data for people with self-reported disabilities (also referred to as access and functional needs) and highlight selected resources (e...
April 2018: Disability and Health Journal
https://www.readbyqxmd.com/read/28823389/introducing-the-adults-with-chronic-healthcare-needs-achcn-definition-and-screening-instrument-rationale-supporting-evidence-and-testing
#15
Stephen P Gulley, Elizabeth K Rasch, Barbara M Altman, Christina D Bethell, Adam C Carle, Benjamin G Druss, Amy J Houtrow, Amanda Reichard, Leighton Chan
BACKGROUND: Among working age adults in the United States, there is a large, heterogeneous population that requires ongoing and elevated levels of healthcare and related services. At present, there are conflicting approaches to the definition and measurement of this population in health services research. OBJECTIVE: An expert panel was convened by the National Institutes of Health with the objective of developing a population-level definition of Adults with Chronic Healthcare Needs (ACHCN)...
April 2018: Disability and Health Journal
https://www.readbyqxmd.com/read/29500093/breast-cancer-screening-in-women-with-cerebral-palsy-could-care-delivery-be-improved
#16
Neeharika Nandam, Deborah Gaebler-Spira, Rachel Byrne, Judith Wolfman, Judy Panko Reis, Chun Wai Hung, Allison Todd, Jordyn Durkin, Christina Marciniak
BACKGROUND: Women with disabilities (WWD) have reported lower mammography rates than the general population, however rates for women with cerebral palsy (CP) have not been specifically studied. OBJECTIVE: To evaluate mammography rates in women with CP and to identify strengths and barriers with their screening experience. METHODS: Women with CP 40 years or older (n = 118) participating in a prospective cross-sectional survey were queried regarding screening status, imaging modality, and accommodation needs and availability...
February 17, 2018: Disability and Health Journal
https://www.readbyqxmd.com/read/29477372/computer-assisted-cognitive-rehabilitation-in-persons-with-multiple-sclerosis-results-of-a-multi-site-randomized-controlled-trial-with-six-month-follow-up
#17
Alexa K Stuifbergen, Heather Becker, Francisco Perez, Janet Morrison, Adama Brown, Vicki Kullberg, Wenhui Zhang
BACKGROUND: The effects of multiple sclerosis (MS) on cognition have gained increasing recognition as one of the major disabling symptoms of the disease. Despite the prevalence of these symptoms and their impact on quality of life, limited attention has been given to strategies that might help manage the cognitive changes commonly experienced by persons with MS. OBJECTIVE: The primary purpose of this study was to determine the effectiveness of a novel computer-assisted cognitive rehabilitation intervention MAPSS-MS (Memory, Attention, Problem Solving Skills in MS) in a multi-site trial with persons with MS...
February 16, 2018: Disability and Health Journal
https://www.readbyqxmd.com/read/29452985/effectiveness-of-two-home-ergonomic-programs-in-reducing-pain-and-enhancing-quality-of-life-in-informal-caregivers-of-post-stroke-patients-a-pilot-randomized-controlled-clinical-trial
#18
Karen Lucia de Araújo Freitas Moreira, Gracia María Ábalos-Medina, Carmen Villaverde-Gutiérrez, Neide María Gomes de Lucena, Anderson Belmont Correia de Oliveira, José Manuel Pérez-Mármol
BACKGROUND: Informal caregivers of post-stroke patients usually undergo high levels of pain and stress and have a reduced quality of life. OBJECTIVE: To evaluate the effectiveness of two home ergonomic interventions aimed at reducing pain intensity and perceived stress and enhancing the quality of life in informal caregivers of chronic post-stroke patients. METHODS: A randomized single-blind controlled clinical trial was conducted, with a sample of 33 informal caregivers of patients with stroke...
February 13, 2018: Disability and Health Journal
https://www.readbyqxmd.com/read/29409722/smoking-behaviors-of-adults-with-developmental-disabilities-and-their-direct-support-professional-providers
#19
Kendall A Leser, Phyllis L Pirie, Amy K Ferketich, Susan M Havercamp, Mary Ellen Wewers
BACKGROUND: People with developmental disabilities are not immune from the addictive effects and poor health outcomes associated with cigarette use. Direct support professionals often play a large role in the social environments of people with developmental disabilities and the literature suggests that one's environment can influence behavior. OBJECTIVES: To examine the relationship between the smoking behaviors of people with developmental disabilities and their direct support professional providers...
February 3, 2018: Disability and Health Journal
https://www.readbyqxmd.com/read/29459217/better-together-developmental-screening-and-monitoring-best-identify-children-who-need-early-intervention
#20
Brian Barger, Catherine Rice, Rebecca Wolf, Andrew Roach
BACKGROUND: Widely recommended developmental surveillance methods include developmental monitoring (DM) and development screening (DS). Much research has been done on DS, but very little research has compared the effectiveness of DM and DS together. OBJECTIVES: To investigate the relationship between DM and DS in Part C early intervention (EI) service receipt. METHODS: Authors used data from the 2007/2008 and 2011/2012 National Survey of Children's Health (NSCH)...
February 2, 2018: Disability and Health Journal
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