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Disability and Health Journal

Magdalena Wrzesińska, Beata Urzędowicz, Tadeusz Nawarycz, Sławomir Motylewski, Lucjan Pawlicki
BACKGROUND: Obesity particularly affects young people with disabilities, whose ability to participate in health promotion programs is reduced. OBJECTIVE: The aim of the study is to determine the prevalence of abdominal obesity among students with visual impairment in Poland according to waist-to-height ratio, including indicators such as gender, age or certain additional coexisting disabilities or disorders. METHODS: A total of 238 students who were blind or partially-sighted, aged 7...
February 24, 2017: Disability and Health Journal
Michael D Stillman, Gina Bertocci, Craig Smalley, Steve Williams, Karen L Frost
BACKGROUND: More than twenty-five years after passage of the ADA, little remains known about the experiences of wheelchair users when attempting to access health care and how accessibility may influence health care utilization. OBJECTIVE/HYPOTHESIS: To describe health care utilization among wheelchair users and characterize barriers encountered when attempting to obtain access to health care. METHODS: An internet-based survey of wheelchair users was conducted...
February 16, 2017: Disability and Health Journal
David W Hollar
BACKGROUND: People with disabilities tend to be at risk for secondary conditions. There is a need for comprehensive disability and health databases, including geographic information systems to evaluate trends in health, functioning, and employment. OBJECTIVE: We evaluated county levels in morbidity and mortality across the Southeastern United States using spatial regression, examining 2015 trends in accordance with Healthy People 2020 objectives. METHODS: We merged 2015 National County Health Rankings and the 2015 Social Security Administration's Report on SSDI Beneficiaries, all for n = 1387 Southeastern U...
February 16, 2017: Disability and Health Journal
L T Ptomey, C A Gibson, J Lee, D K Sullivan, R A Washburn, A M Gorczyca, J E Donnelly
INTRODUCTION: Caregivers of adults with IDD often play a large role in the ability of adults with IDD to lose weight. OBJECTIVE: The purpose of this study was to determine to examine the effects of the caregivers' perceived burdens and self-efficacy and their relationship to an individual (family member or paid staff) on weight changes across a weight management intervention for adults with IDD. METHODS: Overweight/obese adults with mild to moderate IDD, along with assigned caregivers who served as their study partner, were randomized to an 18-month weight management intervention...
February 12, 2017: Disability and Health Journal
Erica Twardzik, Coral Cotto-Negrón, Megan MacDonald
BACKGROUND: The first few years of life are critical for the healthy growth and development of every child. Enrolling children with disabilities or at risk of developmental delay into early intervention services is essential to successfully meet their physical, cognitive, communication, socio-emotional and adaptive needs. However, many children throughout in the United States who are eligible for public services, including early intervention services, are not accessing them. Research has yet to fully describe low enrollment rates and variability in enrollment into early intervention services...
January 28, 2017: Disability and Health Journal
Lisa I Iezzoni, Sarah A Marsella, Tiffany Lopinsky, Dennis Heaphy, Kimberley S Warsett
BACKGROUND: Demonstration programs nationwide aim to control costs and improve care for people dually-eligible for Medicare and Medicaid, including many persons with disability. Ensuring these initiatives maintain or improve care quality requires comprehensive evaluation of quality of care. OBJECTIVES: To examine whether the common quality measures being used to evaluate the Massachusetts One Care duals demonstration program comprehensively address the concerns of persons with disability...
January 28, 2017: Disability and Health Journal
Frédéric Bloch, Jean-Eric Lundy, Anne-Sophie Rigaud
BACKGROUND: 'Personal Emergency Response Systems' (PERS) can provide a solution for raising the alert after a fall but no criteria are available to enable us to estimate whether a population which is set to benefit from a PERS will be able to use the device. OBJECTIVE: To describe the profile differences of purchasers and non-purchasers of a PERS and to explore the population of users and non-users of these devices. METHODS: The study was part of an observational cohort survey of elderly fallers which took place in the emergency department of our University urban hospital...
January 28, 2017: Disability and Health Journal
Benedetta Pongiglione, George B Ploubidis, Bianca L De Stavola
BACKGROUND: Recent studies suggest the importance of distinguishing severity levels of disability. Nevertheless, there is not yet a consensus with regards to an optimal classification. OBJECTIVE: Our study seeks to advance the existing binary definitions towards categorical/ordinal manifestations of disability. METHODS: We define disability according to the WHO's International Classification of Functioning, Disability and Health (ICF) using data collected at the baseline wave of the English Longitudinal Study of Aging, a longitudinal study of the non-institutionalized population, living in England...
January 25, 2017: Disability and Health Journal
Kenneth A McLean, Samantha Hardie, Abigail Paul, Gary Paul, Iain Savage, Paul Shields, Rebecca Symes, Joanna Wilson, Catherine Winstanley, Jeni Harden
BACKGROUND: People with disabilities in the Republic of Moldova continue to experience considerable discrimination and social exclusion. The Moldovan government recently affirmed their commitment to promote community integration. However, there remains limited evidence to facilitate understanding of these issues, and barriers to the integrative process. OBJECTIVE: This study explored the knowledge and attitudes towards disability of young people within Moldova. METHODS: A qualitative approach was adopted and 3 semi-structured focus group interviews were conducted with schoolchildren (n = 12), aged 13-15 years...
January 25, 2017: Disability and Health Journal
Kendall A Leser, Phyllis L Pirie, Amy K Ferketich, Susan M Havercamp, Mary Ellen Wewers
BACKGROUND: People with developmental disabilities lead more sedentary lifestyles, consume poorer diets, as well as have higher rates of chronic conditions such as diabetes and heart disease when compared to members of the general population. Direct support professionals play a large social role in the lives of their clients with developmental disabilities, and thus have the ability to influence the health behaviors of their clients. OBJECTIVES: The overall purpose of this study was to examine the relationship between the dietary and physical activity behaviors of direct support professionals and their clients with developmental disabilities, as well as to assess how direct support professionals facilitate the health behaviors of their clients...
January 24, 2017: Disability and Health Journal
Lisa I Iezzoni, Holly Matulewicz, Sarah A Marsella, Kimberley S Warsett, Dennis Heaphy, Karen Donelan
BACKGROUND: When assessing results of health care delivery system reforms targeting persons with disability, quality metrics must reflect the experiences and perspectives of this population. OBJECTIVE: For persons with disability and researchers to develop collaboratively a survey that addresses critical quality questions about a new Massachusetts health care program for persons with disability dually-eligible for Medicare and Medicaid. METHODS: Persons with significant physical disability or serious mental health diagnoses participated fully in all research activities, including co-directing the study, co-moderating focus groups, performing qualitative analyses, specifying survey topics, cognitive interviewing, and refining survey language...
January 8, 2017: Disability and Health Journal
Karl S Bagraith, Jenny Strong, Pamela J Meredith, Steven M McPhail
BACKGROUND: The International Classification of Functioning, Disability and Health (ICF) Low Back Pain Core Set (LBP-CS) has been proposed as a tool to facilitate the description and measurement of chronic low back pain (CLBP) related disability. Patient ratings of ICF categories may serve as a practical and effective method for acquiring patient input on activity limitations and participation restrictions. OBJECTIVE: To investigate the test-retest agreement and reliability of patient ratings of activity and participation according to the LBP-CS...
January 6, 2017: Disability and Health Journal
Jacqueline D Stone, Harolyn M E Belcher, Prince Attoh, Michelle D'Abundo, Tao Gong
BACKGROUND: Leadership is a process by which an individual influences a group or individual to achieve a common goal, in this case health promotion for individuals with disabilities. OBJECTIVES: (1) To examine the association between the transformational leadership behaviors of the Association of University Centers on Disabilities (AUCD) network professionals and their practice beliefs about health promotion activities, specifically cardiovascular fitness and healthy weight, for people with disabilities...
January 5, 2017: Disability and Health Journal
Sarah H Ailey, Paula J Brown, Caitlin M Ridge
People with intellectual disabilities and developmental disabilities (IDD) face poorer care and outcomes when hospitalized than patients without IDD. A panel discussion Hospital care for individuals with IDD: The Issues and Challenges was held at the Annual Conference of the American Academy of Developmental Medicine and Dentistry, held in Chicago July 8-10, 2016. Among the panelists were representatives from Rush University Medical Center in Chicago, IL and Saint Barnabas Medical Center in Livingston, NJ who discussed efforts to improve hospital care of patients with IDD at their institutions...
January 4, 2017: Disability and Health Journal
Justine P Wu, Michael M McKee, Kimberly S Mckee, Michelle A Meade, Melissa Plegue, Ananda Sen
BACKGROUND: Female sterilization accounts for 50% of all contraceptive use in the U.S. The extent to which U.S. women with physical and/or sensory disabilities have undergone female sterilization is unknown. OBJECTIVE: Our primary objective was to determine the prevalence of sterilization for women with physical/sensory disabilities, and compare this to the prevalence for women without disabilities. We also compared use of long-acting reversible contraceptive (LARC) methods between women with and without disabilities...
January 3, 2017: Disability and Health Journal
Monika Mitra, Lauren D Smith, Suzanne C Smeltzer, Linda M Long-Bellil, Nechama Sammet Moring, Lisa I Iezzoni
BACKGROUND: Women with physical disabilities are known to experience disparities in maternity care access and quality, and communication gaps with maternity care providers, however there is little research exploring the maternity care experiences of women with physical disabilities from the perspective of their health care practitioners. OBJECTIVE: This study explored health care practitioners' experiences and needs around providing perinatal care to women with physical disabilities in order to identify potential drivers of these disparities...
January 3, 2017: Disability and Health Journal
Carli Friedman
BACKGROUND: Medicaid Home and Community Based Services (HCBS) 1915(c) waivers are the largest providers of long-term supports and services (LTSS) for people with intellectual and developmental disabilities (IDD) in the United States. National and longitudinal analyses of HCBS 1915(c) waivers for people with IDD are critical because of changes in the fiscal landscape, the variability produced by states ability to flexibly customize their programs, and the significant changes required by the HCBS final settings rule...
January 3, 2017: Disability and Health Journal
Buyi Yu, Jingqi Chen, Yichen Jin, Wenjing Zhang, Yanan Feng, Xiaoxia Zhao
BACKGROUND: The prevalence of any child sexual abuse (CSA) experience before the age of 16 years ranges from 10.2 to 35.2% in China,(1-5) but there has been no research so far exploring the level of awareness of CSA prevention and self-protection skills among Chinese children with hearing loss. OBJECTIVE: The school based survey examines the CSA prevention knowledge and self-protection skills in Chinese children with hearing loss. METHODS: Fifty-one students (30 boys, 21 girls) from 10 to 16 years old participated in the study...
January 1, 2017: Disability and Health Journal
Kuem Ju Lee, Hye In Jang, Hyun Choi
BACKGROUND: The QOL assessment to measure disabilities has needed to survey studies for a variety of fields. Until now, no Korean translation of the World Health Organization Quality of Life-disability (WHOQOL-DIS) module existed. OBJECTIVE/HYPOTHESIS: We translated and cross-culturally adapted the WHOQOL-DIS module into Korean, testing its reliability and validity with Korean spinal cord injury and stroke patients. METHODS: The translation occurred using the methodology recommended by WHO...
January 1, 2017: Disability and Health Journal
Caitlin E Coyle, Michelle Putnam
BACKGROUND: The population of persons aging with disabilities is growing. Being able to segment aging with disability sub-populations within national data sets is becoming increasingly important in order to understand the relationship of aging with disability to a range of outcomes in later life including health and wellness, economic security, and health and long-term service and support need and use. OBJECTIVE: The purpose of this study was to identify viable sub-samples of adults aging with disabilities within the Health and Retirement Study, one of the most used secondary data sets to study aging and older adults...
January 1, 2017: Disability and Health Journal
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