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Disability and Health Journal

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https://www.readbyqxmd.com/read/28442320/people-with-multiple-sclerosis-report-significantly-worse-symptoms-and-health-related-quality-of-life-than-the-us-general-population-as-measured-by-promis-and-neuroqol-outcome-measures
#1
Dagmar Amtmann, Alyssa M Bamer, Jiseon Kim, Hyewon Chung, Rana Salem
BACKGROUND: Individuals with multiple sclerosis (MS) report fatigue, pain, depression, cognitive difficulties, and other symptoms. It is often difficult to compare symptoms across studies and populations because scales used to measure individual symptoms or quality of life indicators (QOLI) use different metrics and often do not provide norms. PROMIS and Neuro-QOL measures, developed with modern psychometric methods, use a common metric and provide population norms. OBJECTIVE: To create symptom profiles and compare symptoms and QOLIs of people living with MS to a US general population sample...
April 21, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28428113/impact-of-enjoyment-on-physical-activity-and-health-among-children-with-disabilities-in-schools
#2
Jooyeon Jin, Joonkoo Yun, Stamatis Agiovlasitis
BACKGROUND: Enjoyment in school-based physical activity (PA) programs, such as recess or physical education may be important for promoting children's health, but there is a lack of evidence explaining how enjoyment affects health in children with disabilities. HYPOTHESES: Enjoyment in school-based PA programs will positively influence general health through participating in more daily PA, and this relationship will vary between younger and older children with disabilities...
April 12, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28420592/association-between-perceived-discrimination-and-healthcare-seeking-behavior-in-people-with-a-disability
#3
Miguel G Moscoso-Porras, German F Alvarado
BACKGROUND: Experiences of discrimination lead people from vulnerable groups to avoid medical healthcare. It is yet to be known if such experiences affect people with disabilities (PWD) in the same manner. OBJECTIVES: To determine the association between perceived discrimination and healthcare-seeking behavior in people with disabilities and to explore differences of this association across disability types. METHODS: We performed a cross-sectional study with data from a national survey of people with disabilities...
April 12, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28431989/live-birth-miscarriage-and-abortion-among-u-s-women-with-and-without-disabilities
#4
Willi Horner-Johnson, Sheetal Kulkarni-Rajasekhara, Blair G Darney, Mekhala Dissanayake, Aaron B Caughey
BACKGROUND: Prior studies have found that women with disabilities who give birth are more likely to have preterm deliveries and low birthweight infants. However, it is not known what proportion of pregnant women with disabilities experience live birth, versus miscarriage or abortion. OBJECTIVE: To compare proportions of live birth, miscarriage, and abortion among women with basic action difficulties, women with complex activity limitations, and women without disabilities in a nationally representative sample...
April 6, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28431988/time-trends-in-births-and-cesarean-deliveries-among-women-with-disabilities
#5
Willi Horner-Johnson, Frances M Biel, Blair G Darney, Aaron B Caughey
BACKGROUND: Although it is likely that childbearing among women with disabilities is increasing, no empirical data have been published on changes over time in the numbers of women with disabilities giving birth. Further, while it is known that women with disabilities are at increased risk of cesarean delivery, temporal trends in cesarean deliveries among women with disabilities have not been examined. OBJECTIVE: To assess time trends in births by any mode and in primary cesarean deliveries among women with physical, sensory, or intellectual/developmental disabilities...
April 6, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28428112/experiences-and-unmet-needs-of-women-with-physical-disabilities-for-pain-relief-during-labor-and-delivery
#6
Linda Long-Bellil, Monika Mitra, Lisa I Iezzoni, Suzanne C Smeltzer, Lauren D Smith
BACKGROUND: Childbirth is widely acknowledged as one of the most painful experiences most women will undergo in their lifetimes. Alleviating labor and delivery pain for women with physical disabilities can involve an additional level of complexity beyond that experienced by most women, but little research has explored their experiences. OBJECTIVE/HYPOTHESIS: The purpose of this study was to explore the experiences of women with physical disabilities with respect to pain relief during labor and delivery with the goal of informing their care...
April 6, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28420593/sexual-health-in-the-community-services-for-people-with-intellectual-and-developmental-disabilities
#7
Carli Friedman, Aleksa L Owen
BACKGROUND: Sexuality is a central dimension of overall health and well-being. People with intellectual and developmental disabilities (IDD) continue to experience disparities in healthcare, particularly regarding access to sexual health related services. Medicaid Home and Community-Based Services (HCBS) waivers are ideally situated to provide sexual and reproductive healthcare in accessible settings. OBJECTIVE: This preliminary study analyzed national Medicaid HCBS waivers to determine how they provide sexuality services for people with IDD...
April 6, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28416204/-they-must-understand-we-are-people-pregnancy-and-maternity-service-use-among-signing-deaf-women-in-cape-town
#8
Margaret W Gichane, Marion Heap, Mayara Fontes, Leslie London
BACKGROUND: Women with disabilities are at disproportionate risk for adverse pregnancy outcomes, however, there is limited information on their pregnancy histories. This mixed-methods study focuses on signing Deaf women whose access to health care may be compromised by language barriers related to their disability. OBJECTIVE: To describe and compare the pregnancy outcomes and maternity service use of a sample of signing Deaf women of child-bearing age in Cape Town to the population of the Western Cape of South Africa...
April 6, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28408099/the-sexuality-of-young-women-with-intellectual-and-developmental-disabilities-a-neglected-focus-in-the-american-foster-care-system
#9
Michelle S Ballan, Molly Burke Freyer
Youths with intellectual and developmental disabilities (ID/DD) are overrepresented in the American foster care system and experience heightened rates of pregnancy compared to their nondisabled peers. Yet limited information is known about sexually active or pregnant young women with ID/DD in foster care. Consequently, important healthcare needs of this population are not adequately addressed. This article explores sexuality education and sexual healthcare for female adolescents in foster care with ID/DD and recommends practice guidelines to support and prepare their emergent sexual development...
April 6, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28404230/birth-outcomes-among-us-women-with-intellectual-and-developmental-disabilities
#10
Ilhom Akobirshoev, Susan L Parish, Monika Mitra, Eliana Rosenthal
BACKGROUND: Women with intellectual and developmental disabilities (IDD) are bearing children at increasing rates. However, there is very little research about pregnancy experiences and birth outcomes among women with IDD. No studies to date have examined birth outcomes with a US population-based sample. OBJECTIVE: The main objective was to estimate the national occurrence of deliveries in women with IDD and to compare their birth outcomes to women without IDD. METHODS: We examined the 2007-2011 Nationwide Inpatient Sample of the Healthcare Cost and Utilization Project to compare birth outcomes in women with and without IDD...
April 6, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28395910/disparities-in-receipt-of-family-planning-services-by-disability-status-new-estimates-from-the-national-survey-of-family-growth
#11
William Mosher, Tina Bloom, Rosemary Hughes, Leah Horton, Ramin Mojtabai, Jeanne L Alhusen
BACKGROUND: A substantial and increasing population of US women of childbearing age live with disability. Disability-based disparities in access to family planning services have been previously documented, but few studies have used population-based data sources or evidence-based measures of disability. OBJECTIVE: To determine population-based estimates of use of family planning services among women 15-44 years of age in the United States, and to examine differences by disability status...
April 6, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28395909/transcending-the-counter-normative-sexual-and-reproductive-health-and-persons-with-disability
#12
EDITORIAL
Lisa I Iezzoni, Monika Mitra
No abstract text is available yet for this article.
April 6, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28428111/reproductive-healthcare-experiences-of-women-with-cerebral-palsy
#13
Katharine Hayward, Angela Y Chen, Elizabeth Forbes, Rachel Byrne, Marcia B Greenberg, Eileen G Fowler
BACKGROUND: Little is known about pregnancy rates in women with disabilities in general and even less is known about women with child-onset disabilities such as cerebral palsy (CP). HYPOTHESIS: We hypothesized that discussions about pregnancy with healthcare providers and pregnancy rates for woman with CP would be related to their functional levels. METHODS: Survey methodology was used to gather information about demographics, function, whether women were asked about their desire for children, pregnancy outcomes, and services offered during pregnancy and postpartum...
April 5, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28404229/-we-don-t-know-we-ve-never-had-anybody-like-you-before-barriers-to-perinatal-care-for-women-with-physical-disabilities
#14
Lesley A Tarasoff
BACKGROUND: While more women with physical disabilities are becoming mothers, many encounter barriers to perinatal care and experience poor outcomes. Little is known about the perinatal care experiences and outcomes of women with physical disabilities in Canada. OBJECTIVE: This qualitative study sought to understand the perinatal care experiences and outcomes of women with physical disabilities in one Canadian province, with an emphasis on identifying barriers to care...
April 5, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28395911/a-predictive-model-of-anxiety-and-depression-symptoms-after-a-lower-limb-amputation
#15
Susana Pedras, Rui Carvalho, M Graça Pereira
BACKGROUND: Patients with Diabetic Foot Ulcer (DFU) show high levels of depression and anxiety symptoms. The loss of a limb is undoubtedly a devastating experience and several studies have shown that anxiety and depression symptoms are a common reaction after a lower limb amputation (LLA). However, no study has focused on the immediate emotional reactions to LLA as a personal factor based on the ICF Model. OBJECTIVE: This study focused on the characterization of anxiety and depression levels, before and after surgery, differences in levels of depression and anxiety before and after surgery and the predictors of anxiety and depression one month after surgery, in a sample of patients with DFU...
March 27, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28389231/using-a-flipped-classroom-and-the-perspective-of-families-to-teach-medical-students-about-children-with-disabilities-and-special-education
#16
Mary E Sheppard, Nancy Vitalone-Raccaro, Jacqueline M Kaari, Taiwo T Ajumobi
BACKGROUND: The need to teach medical students to care for children with disabilities, work effectively with these patients' families, and collaborate with schools has been well established. Yet, what is not clear is the exact nature of the content to be taught and how medical schools develop the systems and enabling structures required to ensure medical education responds to the needs of children with disabilities and their families. OBJECTIVE: The aim of this study was to develop and assess the efficacy of an educational intervention designed to introduce the topics of special education law and practices and working with parents of children with disabilities into an undergraduate medical education pediatrics course...
March 27, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28351748/beliefs-about-physical-activity-and-sedentary-behaviors-of-adults-with-visual-impairments
#17
Justin A Haegele, Samuel R Hodge, Francis M Kozub
BACKGROUND: When exploring reasons why individuals with visual impairments (VI) may or may not engage in physical activity (PA) or sedentary behaviors (SB), theoretically grounded research on the determinants of these behaviors is scarce. OBJECTIVE/HYPOTHESIS: Situated in the theory of planned behavior (TpB), the purposes of this study were to: (a) develop a theoretically-sound scale, Beliefs about Physical and Sedentary Behaviors-Visual Impairment (BAPS-VI), to determine if the constructs of TpB are useful in predicting PA and SBs of adults with VI; (b) analyze their beliefs about PA and SBs; and (c) determine which TpB constructs are the best predictors of PA behaviors...
March 24, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28359637/development-and-evaluation-of-a-social-cognitive-theory-based-instrument-to-assess-correlations-for-physical-activity-among-people-with-spinal-cord-injury
#18
Jereme Wilroy, Lori Turner, David Birch, Deidre Leaver-Dunn, Elizabeth Hibberd, James Leeper
BACKGROUND: People with spinal cord injury (SCI) are more susceptible to sedentary lifestyles because of the displacement of physical functioning and the copious barriers. Benefits of physical activity for people with SCI include physical fitness, functional capacity, social integration and psychological well-being. OBJECTIVE: The purpose of this study was to develop and test a social cognitive theory-based instrument aimed to predict physical activity among people with SCI...
March 23, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28351749/the-link-between-smoking-status-and-co-morbid-conditions-in-individuals-with-multiple-sclerosis-ms
#19
Pamela Newland, Louise Flick, Amber Salter, David Dixon, Mark P Jensen
BACKGROUND: In individuals with multiple sclerosis (MS) comorbidities and quality of life (QOL) may be affected by tobacco use. OBJECTIVE: To evaluate the associations between smoking status, in particular quit attempts, and comorbidities among individuals with MS. METHODS: We used a web-based survey to obtain cross-sectional data from 335 individuals with MS who were members of the Gateway Chapter of the National MS Society email registry...
March 23, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28411023/comparison-of-bioelectrical-impedance-and-dxa-for-measuring-body-composition-among-adults-with-down-syndrome
#20
Michael R Esco, Brett S Nickerson, Angela R Russell
BACKGROUND: Individuals with Down syndrome (DS) have been shown to display high levels of adiposity and a unique body shape. Laboratory methods used to evaluate body composition might be too cumbersome for this special population. Therefore, field methods are desired due to their non-invasive nature. OBJECTIVE: to determine the agreement between dual energy x-ray absorptiometry (DXA) and bioelectrical impedance analysis (BIA) for measuring body fat percentage BF% and fat-free mass (FFM) among adults with DS...
March 22, 2017: Disability and Health Journal
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