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Intellectual and Developmental Disabilities

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https://www.readbyqxmd.com/read/29194030/prevalence-of-dysphagia-in-people-with-intellectual-disability-a-systematic-review
#1
Janet Robertson, Darren Chadwick, Susannah Baines, Eric Emerson, Chris Hatton
Dysphagia (feeding and swallowing disorder) is associated with serious health complications and psychosocial sequelae. This review summarizes international research relating to the prevalence of dysphagia in people with intellectual disability. Studies published from 1990 to July 2016 were identified using Medline, Cinahl, PsycINFO, Web of Science, email requests, and cross-citations. Twenty studies were identified. Dysphagia in people with intellectual disability appears to be associated with more severe levels of intellectual disability, comorbid cerebral palsy, and motor impairments...
December 2017: Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/29194029/development-of-the-supported-decision-making-inventory-system
#2
Karrie A Shogren, Michael L Wehmeyer, Hatice Uyanik, Megan Heidrich
Supported decision making has received increased attention as an alternative to guardianship and a means to enable people with intellectual and developmental disabilities to exercise their right to legal capacity. Assessments are needed that can used by people with disabilities and their systems of supports to identify and plan for needed supports to enable decision making. This article describes the steps taken to develop such an assessment tool, the Supported Decision Making Inventory System (SDMIS), and initial feedback received from self-advocates with intellectual disability...
December 2017: Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/29194028/presidential-address-promoting-health-and-wellness
#3
Susan M Havercamp
No abstract text is available yet for this article.
December 2017: Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/29194027/res%C3%A3%C2%BAmenes-al-espa%C3%A3-ol
#4
(no author information available yet)
No abstract text is available yet for this article.
December 2017: Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/29194026/linking-staff-burnout-to-family-members-satisfaction-in-centers-for-people-with-intellectual-disabilities-a-service-chain-approach
#5
Carolina Moliner, Laura Lorente, Agustín Molina, Esther Gracia, Vicente Martínez-Tur
Research in centers for people with intellectual and developmental disabilities has somewhat neglected the relationship between workers' burnout and users' service evaluations. Two independent survey studies tested this connection. In the first study (100 centers, 714 workers, and 612 family members), results confirmed that burnout has a negative relationship with workers' perceptions of service quality. In turn, these perceptions are associated with the service quality perceptions of family members and their satisfaction with the service...
December 2017: Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/29194025/self-advocacy-services-for-people-with-intellectual-and-developmental-disabilities-a-national-analysis
#6
Carli Friedman
Self-advocacy plays an important role in facilitating the empowerment of people with intellectual and developmental disabilities (IDD), and helps people with IDD develop the skills necessary for the participant direction of services. The purpose of this study was to examine Medicaid Home and Community Based Services (HCBS) 1915(c) waivers across the nation to determine how states were utilizing self-advocacy services for people with IDD. Findings revealed approximately half of waivers provided self-advocacy services; however, less than ...
December 2017: Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/29194024/adapting-the-mullen-scales-of-early-learning-for-a-standardized-measure-of-development-in-children-with-rett-syndrome
#7
Tessa Clarkson, Jocelyn LeBlanc, Geneva DeGregorio, Vanessa Vogel-Farley, Katherine Barnes, Walter E Kaufmann, Charles A Nelson
Rett Syndrome (RTT) is characterized by severe impairment in fine motor (FM) and expressive language (EL) function, making accurate evaluations of development difficult with standardized assessm ents. In this study, the administration and scoring of the Mullen Scales of Early Learning (MSEL) were adapted to eliminate the confounding effects of FM and EL impairments in assessing development. Forty-seven girls with RTT were assessed with the Adapted-MSEL (MSEL-A), a subset (n = 30) was also assessed using the Vineland Adaptive Behavior Scales-Second Edition (Vineland-II) and a further subset (n = 17) was assessed using an eye-tracking version of the MSEL (MSEL-ET)...
December 2017: Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/29194023/leveraging-social-capital-of-persons-with-intellectual-disabilities-through-facebook-participation-the-perspectives-of-family-members-and-direct-support-staff
#8
Carmit-Noa Shpigelman
This study aimed to understand and describe the views of family members and direct support staff regarding the use of Facebook by persons with intellectual disability (ID) within the context of social capital. In-depth, semistructured interviews conducted with 16 family members and direct support staff of persons with ID who use Facebook revealed that most participants favored Facebook use by persons with ID for bonding and bridging social capital and for normalization. Most participants noted the empowering effect of online activity on persons with ID, yet some reported risks and usage difficulties...
December 2017: Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/29194022/r%C3%A3-sum%C3%A3-s-en-fran%C3%A3-ais
#9
(no author information available yet)
No abstract text is available yet for this article.
December 2017: Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/28972872/bone-mass-assessment-in-a-cohort-of-adults-with-down-syndrome-a-cross-sectional-study
#10
Ramón Costa, Rosa De Miguel, Clara García, Diego Real de Asúa, Santos Castañeda, Fernando Moldenhauer, Carmen Suárez
Differences in bone mineral density (BMD) have been observed between adults with Down syndrome (DS) and the general population. The purpose of this article is to describe the prevalence of bone mass disorders in a cohort of adults with DS and their predisposing factors. We performed a cross-sectional study of 104 consecutively recruited adults with DS from an outpatient clinic of a tertiary care hospital in Madrid, Spain. We recorded epidemiological and anthropometric data, nutritional variables, coexisting clinical conditions, and laboratory variables...
October 2017: Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/28972871/informing-and-equipping-parents-of-people-with-intellectual-and-developmental-disabilities
#11
Carly B Gilson, Lauren K Bethune, Erik W Carter, Elise D McMillan
The importance of supporting families with members who have intellectual and developmental disabilities (IDD) is well-established in both policy and research. Yet little is known about how familiar parents are with existing resources (e.g., programs, supports, trainings), what information they would consider most helpful, and how they would prefer to access resources. Our study examined the resource needs of 1,738 parents of children and adults with IDD in the state of Tennessee. Most parents reported limited familiarity with programs across every domain (e...
October 2017: Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/28972870/self-determination-intellectual-disability-and-context-a-meta-analytic-study
#12
Cristina Mumbardó-Adam, Joan Guàrdia-Olmos, Ana L Adam-Alcocer, Maria Carbó-Carreté, Anna Balcells-Balcells, Climent Giné, Karrie A Shogren
The relation between self-determination and intellectual functioning is complex, as other contextual factors may also play significant roles in explaining variability in self-determination. This study used meta-analytic techniques to assess how self-determination measures vary between people with disabilities classified as having intellectual disability (ID) or not, and contextual variables that moderate this relation. The literature search yielded 16 eligible studies, whose variables of interest were coded and analyzed...
October 2017: Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/28972869/mothers-parenting-a-child-with-intellectual-disability-in-urban-india-an-application-of-the-stress-and-resilience-framework
#13
Aesha John, Martha Zapata Roblyer
We examined relevance of the key constructs of the stress and resilience framework in the urban Indian context. Analyses of interviews with urban Indian mothers (N = 47) of a 3-6 year old child with intellectual disability generated themes on maternal appraisals of the child's disability, perceived stressors, and resources. Mothers seemed to utilize a combination of fact-based and religious explanation to make sense of their child's disability. Parental stressors ranged from child-related factors (diagnosis, behavioral problems) to financial and family-level challenges...
October 2017: Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/28972868/consensus-statement-of-the-international-summit-on-intellectual-disability-and-dementia-related-to-nomenclature
#14
Matthew P Janicki, Philip McCallion, Michael Splaine, Flavvia H Santos, Seth M Keller, Karen Watchman
A working group of the 2016 International Summit on Intellectual Disability and Dementia was charged to examine the terminology used to define and report on dementia in publications related to intellectual disability (ID). A review of related publications showed mixed uses of terms associated with dementia or causative diseases. As with dementia research in the non-ID population, language related to dementia in the ID field often lacks precision and could lead to a misunderstanding of the condition(s) under discussion, an increasingly crucial issue given the increased global attention dementia is receiving in that field...
October 2017: Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/28972867/a-national-analysis-of-medicaid-home-and-community-based-services-waivers-for-people-with-intellectual-and-developmental-disabilities-fy-2015
#15
Carli Friedman
Medicaid Home and Community Based Services (HCBS) 1915(c) waivers are the largest source of funding for the long term services and supports of people with intellectual and developmental disabilities (IDD). National-level analyses of HCBS IDD waivers are crucial because of the large variance across states, the recent CMS rule and regulation changes (CMS 2249-F/2296-F), and the ever changing economic and political landscape. Therefore, the aim of this study was to examine state waiver priorities for people with IDD...
October 2017: Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/28972866/r%C3%A3-sum%C3%A3-s-en-fran%C3%A3-ais
#16
(no author information available yet)
No abstract text is available yet for this article.
October 2017: Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/28972865/res%C3%A3%C2%BAmenes-al-espa%C3%A3-ol
#17
(no author information available yet)
No abstract text is available yet for this article.
October 2017: Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/28985474/erratum
#18
(no author information available yet)
No abstract text is available yet for this article.
August 2017: Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/28753405/r%C3%A3-sum%C3%A3-s-en-fran%C3%A3-ais
#19
(no author information available yet)
No abstract text is available yet for this article.
July 2017: Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/28753404/introduction-to-the-special-issue-on-disability-policy-in-a-time-of-change
#20
Robert L Schalock
The enormous effects of public policy-both for good and for ill-in the lives of people with intellectual disability and related developmental disabilities demand the development of stronger tools for policy analysis, and more effective strategies for policy implementation and evaluation. The purpose of this special issue is to help readers understand the complexities of disability policy and the factors that influence its successful development, implementation, and evaluation; and to encourage readers to expand their thinking and actions regarding the role they play in disability policy in a time of change...
July 2017: Intellectual and Developmental Disabilities
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