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Indian Journal of Palliative Care

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https://www.readbyqxmd.com/read/29736126/perceived-barriers-to-symptoms-management-among-family-caregivers-of-cancer-patients
#1
Malathi G Nayak, Anice George, M S Vidyasagar
Introduction: Caring for patients with advanced disease involves many concerns for caregivers. All aspects of health of the caregiver is compromised in the process of caring for the cancer patients. Usually, most of the terminally ill cancer patients live with their caregivers at home. Objectives: The aims of the present study was to identify the barriers to symptom management among caregivers of cancer patients and to find the association between perceived barriers to symptom management of caregivers' with their demographic variables and their patients' disease-related variables...
April 2018: Indian Journal of Palliative Care
https://www.readbyqxmd.com/read/29736125/spirituality-focused-palliative-care-to-improve-indonesian-breast-cancer-patient-comfort
#2
Tuti Nuraini, Andrijono Andrijono, Dewi Irawaty, Jahja Umar, Dewi Gayatri
Background: Palliative care is an approach that focuses on improving a patient's quality of life. This research aimed to develop a path model of the relationships between the variables of nursing care (information, emotional support, technical support, and palliative care), patient coping, family support, patient spirituality, and patient comfort expressed through physical and emotional mediators. Method: This cross-sectional study involved 308 breast cancer patients from 3 referral hospitals in Jakarta, Indonesia...
April 2018: Indian Journal of Palliative Care
https://www.readbyqxmd.com/read/29736124/burden-experience-of-caregivers-of-acute-lymphoblastic-leukemia-impact-of-coping-and-spirituality
#3
Usha Chivukula, Sirisha Kota, Durgesh Nandinee
Background: When a child is diagnosed with cancer the parents as caregivers experience severe anxiety, trauma, ambiguity, and grief. Caregivers of cancer patients thus deal with the management of their own psychological distress along with the child's illness. Aim: Coping plays a crucial role in improving the caregivers' physical and emotional well-being. Spirituality is an important means of consolation, strength, and emotional support during this phase. The present study aims to investigate the impact of coping and spirituality on caregiver burden...
April 2018: Indian Journal of Palliative Care
https://www.readbyqxmd.com/read/29736123/prognostic-factors-of-malignant-pleural-effusion-among-palliative-care-outpatients-a-retrospective-study
#4
Jenifer Jeba, Renitha M Cherian, Balamugesh Thangakunam, Reena George, J Visalakshi
Background: Malignant pleural effusion (MPE) has varied survival and indicates advanced disease. LENT prognostic score is the first validated score used for MPE. This study assessed the role of LENT among palliative care cancer patients and assessed different patient, tumor, and treatment related factors that may affect survival. Methods: A retrospective study of advanced cancer patients with MPE, seen in palliative care outpatient clinic (2013-2015) until death, was done...
April 2018: Indian Journal of Palliative Care
https://www.readbyqxmd.com/read/29736122/evaluation-of-supportive-care-management-outcomes-in-cancer-chemotherapy-a-prospective-observational-study-in-a-tertiary-care-teaching-hospital-in-south-india
#5
Reshma Susan Reji, Binit Kumar, N Sreedharan, Girish Thunga, K Vijayanarayana, Mahadev Rao, Karthik S Udupa, M K Unnikrishnan
Aims: Evaluation of supportive care management of cancer patients experiencing drug-related problems (DRPs) is a challenge because it might increase the cost due to additional therapy. The main objectives of this study were to estimate chemotherapy-associated drug-related hospital admissions in the department of medical oncology and to estimate the cost of managing chemotherapy-associated DRPs. Settings and Design: This study is a prospective observational study...
April 2018: Indian Journal of Palliative Care
https://www.readbyqxmd.com/read/29736121/analgesic-and-opioid-use-in-pain-associated-with-head-and-neck-radiation-therapy
#6
Sandeep Muzumder, S Nirmala, H U Avinash, Mg John Sebastian, Prashanth Bhat Kainthaje
Aim: The aim of the study is to find the incidence of analgesic and opioid use in pain associated in HNC patient undergoing radiation therapy. Background: Radiation therapy with concurrent chemotherapy has become the standard of care in head and neck cancer. Acute toxicity like mucositis and dysphagia has increased with aggressive therapy. Pain is an invariable accompaniment of oropharyngeal mucositis, which leads to decreased quality of life and treatment break...
April 2018: Indian Journal of Palliative Care
https://www.readbyqxmd.com/read/29736120/symptoms-in-bangladeshi-patients-with-incurable-cancers-implications-for-interventions
#7
Richard R Love, G M Tanimul Ahsan, Tahmina Ferdousy, Shamsun Nahar, Sheikh Iqbal Ahamed
Aims: The poor state of palliative care in low- and middle-income countries has been termed a global crisis by the Lancet Commission on Palliative Care. The investigators previously reported on a cross-sectional study of symptoms in 640 Bangladeshi adults with incurable cancers. Usual levels of pain were high. The not-reported details of pain and other symptoms offered an opportunity to consider explanations and implications for interventions to lessen these symptoms. Methods: At one visit, 640 Bangladeshi patients completed a symptom questionnaire...
April 2018: Indian Journal of Palliative Care
https://www.readbyqxmd.com/read/29736119/professional-quality-of-life-among-professional-care-providers-at-cancer-palliative-care-centers-in-bengaluru-india
#8
Amanpreet Kaur, Mahendra P Sharma, Santosh K Chaturvedi
Context: Being a professional care provider at cancer palliative care settings is demanding and stressful. Literature has indicated the prevalence of high burnout (BO) and distress; however, there is a dearth of studies in India, with no study available on professional quality of life in the field of palliative care. Aims: The aim of the present study was to explore the professional quality of life, namely-compassion satisfaction [CS], burnout [BO], and secondary traumatic stress [STS] among professional care providers at cancer palliative care centers...
April 2018: Indian Journal of Palliative Care
https://www.readbyqxmd.com/read/29736118/phenomenology-study-on-nurses-experiences-in-understanding-the-comfort-of-children-at-the-end-of-life
#9
Roro Lintang Suryani, Allenidekania Allenidekania, Imami Nur Rachmawati
Context: Patients' need for comfort at the end of their lives is rarely fulfilled. The comfort of patients at the end of their lives, especially children, is affected by nurses' understanding of what comfort means. Aims: This research aims to explore and to understand the meaning of children's comfort at the end of their life for nurses. Setting and Design: The research applied descriptive qualitative phenomenology design. Subject and Methods: The study was conducted at Jakarta...
April 2018: Indian Journal of Palliative Care
https://www.readbyqxmd.com/read/29736117/parents-voice-in-managing-the-pain-of-children-with-cancer-during-palliative-care
#10
Rina Mariyana, Allenidekania Allenidekania, Nani Nurhaeni
Context: Pain experienced by children can adversely affect their growth and development. Pain is a major health problem for cancer patients and remains an unresolved problem. Aim: To know how the experiences of mothers managing their children's pain during palliative care following cancer diagnosis. Background: Pain experienced by children can adversely affect their growth and development. Subject and Methods: Using qualitative methods within a descriptive phenomenological approach, in-depth interviews were conducted with parents (mostly mothers) of eight children diagnosed with cancer...
April 2018: Indian Journal of Palliative Care
https://www.readbyqxmd.com/read/29736116/providing-palliative-care-in-rural-nepal-perceptions-of-mid-level-health-workers
#11
Rajesh N Gongal, Shambhu Kumar Upadhyay, Kedar Prasad Baral, Max Watson, George W Kernohan
Introduction: Nepal is beginning to develop palliative care services across the country. Most people live in rural areas, where the Mid-Level Health Workers (MHWs) are the major service providers. Their views on providing palliative care are most important in determining how the service is organized and developed. Aim: This study aims to ascertain the perceptions of MHWs about palliative care in their local community, to inform service development. Methods: A qualitative descriptive design, using focus group discussions, was used to collect data from a rural district of Makwanpur, 1 of the 75 districts of Nepal...
April 2018: Indian Journal of Palliative Care
https://www.readbyqxmd.com/read/29736115/developing-a-training-course-for-spiritual-counselors-in-health-care-evidence-from-iran
#12
Behzad Damari, Ahmad Hajebi, Jafar Bolhari, Alireza Heidari
Background: Spiritual health can cause mental health promotion and well-being of the people's lives but it is still neglected in practice so that there is no trace of spiritual training in medical education in Iran. This study was conducted to develop a training course for spiritual counselors in the Iranian health-care system. Methods: In this qualitative study, senior managers of the Ministry of Health (MOH) and experts in the related fields were purposively selected as the participants...
April 2018: Indian Journal of Palliative Care
https://www.readbyqxmd.com/read/29736114/exploring-education-and-training-needs-in-palliative-care-among-family-physicians-in-mumbai-a-qualitative-study
#13
Anuja Damani, Arunangshu Ghoshal, Manjiri Dighe, Sunil Dhiliwal, Maryann Muckaden
Context: Patients with chronic life-limiting conditions on palliative care (PC) prefer to be treated at home. Medical care by family physicians (FPs) reduces demand on costly and busy hospital facilities. Working of PC team in collaboration with FPs is thus helpful in home-based management of patients. Aims: This study aimed at exploring the extent of knowledge of FPs about PC and the need for additional training. Settings and Design: Semi-structured interviews were conducted with ten FPs from two suburbs of Mumbai, currently served by home care services of a tertiary cancer care center...
April 2018: Indian Journal of Palliative Care
https://www.readbyqxmd.com/read/29736113/getting-out-or-remaining-in-the-cage-of-inauthentic-self-the-meaning-of-existential-challenges-in-patients-with-cancer
#14
Zohreh Khoshnood, Sedigheh Iranmanesh, Masoud Rayyani, Mahlegha Dehghan
Context: Cancer as a life-threatening disease develops a range of existential challenges in persons. These challenges cause the patients to encounter some existential questions and tensions. This study method focuses on a person's experience about them. Aims: The aim of this study is to illuminate the meaning of existential challenges in patients with cancer in Iran. Subjects and Methods: A hermeneutic phenomenological approach, influenced by the philosophy of Ricoeur, was used to analyze the experiences of 10 Iranian patients with cancer...
April 2018: Indian Journal of Palliative Care
https://www.readbyqxmd.com/read/29736112/still-hoping-for-a-miracle-parents-experiences-in-caring-for-their-child-with-cancer-under-palliative-care
#15
Mercy Nafratilova, Allenidekania Allenidekania, Dessie Wanda
Context: Parents' despair and feelings of grief, as well as communication and coordination that is less than adequate between the parents and the palliative team, can affect the provision of a qualified palliative care plan for children and their families. Aims: This study aims to explore the parents' experience in caring for children with cancer under palliative care condition. Setting and Design: The research applied descriptive qualitative phenomenology design...
April 2018: Indian Journal of Palliative Care
https://www.readbyqxmd.com/read/29736111/silver-jubilee-conference-of-indian-association-of-palliative-care-a-reflection
#16
EDITORIAL
Sushma Bhatnagar
No abstract text is available yet for this article.
April 2018: Indian Journal of Palliative Care
https://www.readbyqxmd.com/read/29497252/challenges-of-using-methadone-in-the-indian-pain-and-palliative-care-practice
#17
REVIEW
Vidya Viswanath, Gayatri Palat, Srini Chary, Ann Broderick
Palliative care providers across India lobbied to gain access to methadone for pain relief and this has finally been achieved. Palliative care activists will count on the numerous strengths for introducing methadone in India, including the various national and state government initiatives that have been introduced recognizing the importance of palliative care as a specialty in addition to improving opioid accessibility and training. Adding to the support are the Non-Governmental Organizations (NGOs), the medical fraternity and the international interactive and innovative programs such as the Project Extension for Community Health Outcome...
January 2018: Indian Journal of Palliative Care
https://www.readbyqxmd.com/read/29497251/practical-guide-for-using-methadone-in-pain-and-palliative-care-practice
#18
REVIEW
Gayatri Palat, Srini Chary
Since the 2014 Amendment to the NDPS Act methadone has been released in India for pain management. The methadone is supplied as racemic mixture with R & S methadone with benefit in pain management and associated adverse effects. Physicians need to be aware of adverse effects so that methadone can be administered safely. Similarly, patients and families need to store and use methadone carefully and experience the benefits and not increase the risk of further morbidity. Considerable amount of literature on methadone is available and sometimes conflicting, hence the article is attempting to guide a physician to use methadone safely to acquire experience and expertise over time...
January 2018: Indian Journal of Palliative Care
https://www.readbyqxmd.com/read/29497250/when-to-use-methadone-for-pain-a-case-based-approach
#19
REVIEW
Gayatri Palat, Nandini Vallath, Srini Chary, Ann Broderick
The case studies are written in this article to illustrate how methadone might be used for pain in the Indian context. These cases might be used for discussion in a multidisciplinary team, or for individual study. It is important to understand that pain requires a multidisciplinary approach as opioids will assist only with physical, i.e. neuropathic and nociceptive pain, but not emotional, spiritual, or relational pain or the pain of immobility. The social determinants of pain were included to demonstrate how emotional, relational, and psychological dimensions of pain amplify the physical aspects of pain...
January 2018: Indian Journal of Palliative Care
https://www.readbyqxmd.com/read/29497249/practical-pharmacology-of-methadone-a-long-acting-opioid
#20
REVIEW
M M Sunilkumar, Kashelle Lockman
Methadone is a naturally long-acting analgesic with unique pharmacodynamic and pharmacokinetic properties compared to other opioids, available now in India, to treat severe pain. It has the potential to dramatically relieve suffering among patients with serious illness who are living with persistent physical pain. However, clinicians must appreciate its unique pharmacologic properties and its use in clinical practice safely and effectively. The available formulation in India is a racemic mixture of the S- and R-enantiomers, and as such, it will have a propensity for drug-drug and drug-genetic interactions that can increase the risk of Torsades de Point and respiratory depression...
January 2018: Indian Journal of Palliative Care
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