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Chronic Illness

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https://www.readbyqxmd.com/read/28705011/the-experiences-and-beliefs-of-patients-with-complex-regional-pain-syndrome-an-exploratory-survey-study
#1
Adriaan Louw, Kory Zimney, Terry Cox, Christine O'Hotto, Craig A Wassinger
Objectives To determine the beliefs and describe the health care experiences of patients with complex regional pain syndrome. Methods A survey tool for patients with complex regional pain syndrome was designed for this study. The survey tool collected self-reported measures associated with pain, disability, health care experiences, education, beliefs, and treatments. Results Thirty-one patients attending physical therapy for complex regional pain syndrome (mean age 40.48; female n = 20) completed the survey...
June 2018: Chronic Illness
https://www.readbyqxmd.com/read/28661195/optimising-mindfulness-based-stress-reduction-for-people-with-multiple-sclerosis
#2
Robert Simpson, Sharon Byrne, Karen Wood, Frances S Mair, Stewart W Mercer
Objectives To gather views from patients with multiple sclerosis after completing a standard eight-week mindfulness-based stress reduction course and optimise and test a modified version as required. Methods Two successive groups of 25 multiple sclerosis patients received mindfulness-based stress reduction in a wait-list randomised controlled trial. Seventeen participants and two mindfulness-based stress reduction instructors were individually interviewed after the first (standard) course and 16 participants and the same two instructors were interviewed following the second (optimised) course...
June 2018: Chronic Illness
https://www.readbyqxmd.com/read/28661194/critical-moments-in-long-term-condition-management-a-longitudinal-qualitative-social-network-study
#3
Rebecca L Morris, Caroline Sanders
Objectives Recent literature has demonstrated the nature and importance of social networks. This study aimed to understand how support needs of people with long-term conditions change over time and how this influences their ability to self-manage. Methods A longitudinal qualitative design was used to explore changes in individual's social networks over a period of year. Thirty participants were recruited and completed initial in-depth face-to-face interviews, telephone follow-ups, and final face-to-face interviews...
June 2018: Chronic Illness
https://www.readbyqxmd.com/read/28661193/-you-want-to-show-you-re-a-valuable-employee-a-critical-discourse-analysis-of-multi-perspective-portrayals-of-employed-women-with-fibromyalgia
#4
Margaret Oldfield, Ellen MacEachen, Margaret MacNeill, Bonnie Kirsh
Background Advice on fibromyalgia, a chronic illness primarily affecting women, often presents it as incompatible with work and rarely covers how to remain employed. Yet many women do. Objectives We aimed to understand how these women, their family members, and workmates portrayed employees with fibromyalgia, and how these portrayals helped women retain employment. Methods We interviewed 22 participants, comprising five triads and three dyads of people who knew each other. Using the methodology of critical discourse analysis, we analysed the interview data within and across the triads/dyads through coding, narrative summaries, and relational mapping...
June 2018: Chronic Illness
https://www.readbyqxmd.com/read/28530114/patients-and-healthcare-professionals-perceptions-of-self-management-support-interactions-systematic-review-and-qualitative-synthesis
#5
Marika Franklin, Sophie Lewis, Karen Willis, Helen Bourke-Taylor, Lorraine Smith
Objective To review studies examining the experience of self-management support in patient-provider interactions and the shaping of goals through interactions. Methods We undertook a systematic review and thematic synthesis of the qualitative literature. We searched six databases (2004-2015) for published studies on the provision of self-management support in one-to-one, face-to-face, patient-provider interactions for obesity, type 2 diabetes mellitus and chronic obstructive pulmonary disease, with 14 articles meeting inclusion criteria...
June 2018: Chronic Illness
https://www.readbyqxmd.com/read/29226701/parental-happiness-and-strain-among-young-adult-parents-diagnosed-with-attention-deficit-hyperactivity-disorder
#6
Rhiannon A Kroeger
This study used data from the National Longitudinal Study of Adolescent to Adult Health (Add Health) to examine whether young adult parents diagnosed with Attention Deficit Hyperactivity Disorder experience less parental happiness and/or more parental strain than their counterparts not diagnosed with Attention Deficit Hyperactivity Disorder. Results from logistic regression models indicated that young adult parents ever diagnosed with Attention Deficit Hyperactivity Disorder have significantly greater odds of feeling overwhelmed as parents and significantly lower odds of feeling close to their children or happy in their role as parents compared to those never diagnosed with Attention Deficit Hyperactivity Disorder...
March 2018: Chronic Illness
https://www.readbyqxmd.com/read/29226696/to-change-or-not-to-change-that-is-the-question-a-qualitative-study-of-lifestyle-changes-following-acute-myocardial-infarction
#7
Jennifer Nicolai, Nicole Müller, Stefan Noest, Stefanie Wilke, Jobst-Hendrik Schultz, Christian A Gleißner, Wolfgang Eich, Christiane Bieber
Objective The purpose of this study was to investigate key factors related to lifestyle changes following acute myocardial infarction (AMI) by eliciting survivors' subjective needs for, attitudes towards and experiences with behaviour changes in their everyday life to improve future interventions promoting lifestyle changes. Methods Semi-structured interviews were conducted with 21 individuals who had recently experienced an AMI. The interviews were audio-recorded and transcribed verbatim. The data were analysed using qualitative content analysis...
March 2018: Chronic Illness
https://www.readbyqxmd.com/read/29226694/effectiveness-of-motivational-interviewing-for-improving-physical-activity-self-management-for-adults-with-type-2-diabetes-a-review
#8
Patricia Davern Soderlund
Objectives This review examines the effectiveness of motivational interviewing for physical activity self-management for adults diagnosed with diabetes mellitus type 2. Motivational interviewing is a patient centered individually tailored counseling intervention that aims to elicit a patient's own motivation for health behavior change. Review questions include (a) How have motivational interviewing methods been applied to physical activity interventions for adults with diabetes mellitus type 2? (b) What motivational interviewing approaches are associated with successful physical activity outcomes with diabetes mellitus 2? Methods Database searches used PubMed, CINAHL, and PsycINFO for the years 2000 to 2016...
March 2018: Chronic Illness
https://www.readbyqxmd.com/read/28449592/-i-had-to-change-so-much-in-my-life-to-live-with-my-new-limitations-multimorbid-patients-descriptions-of-their-most-bothersome-chronic-conditions
#9
Cindie A Slightam, Kirsten Brandt, Emily C Jenchura, Eleanor T Lewis, Steven M Asch, Donna M Zulman
Objective To characterize diseases that are described as most bothersome by individuals with multiple chronic conditions and to identify themes that characterize their experiences with their most bothersome condition. Methods In a survey of patients at an academic center and a Veterans Affairs hospital, we asked individuals with multiple chronic conditions to identify their most bothersome chronic condition and describe why it is challenging. Standard content analysis methods were used to code responses and identify themes reflecting characteristics of most bothersome conditions...
March 2018: Chronic Illness
https://www.readbyqxmd.com/read/28441882/work-right-to-right-work-an-automythology-of-chronic-illness-and-work
#10
Lavanya Vijayasingham
Objectives Chronic illness is known to disrupt and redirect the usual course of work trajectories. This article aims to portray the longitudinal course of negotiating work after multiple sclerosis. Methods Using therapy and personal journals to reconstruct memories and experience, an autoethnography is produced and narrated within Campbell's "Hero's Journey" automythology framework. Results The narrative highlights the intrasubjectivity of illness meaning-the changing internal meaning-making and external behavior and decision-making dynamics...
March 2018: Chronic Illness
https://www.readbyqxmd.com/read/28403636/a-content-analysis-of-chronic-fatigue-syndrome-and-myalgic-encephalomyelitis-in-the-news-from-1987-to-2013
#11
Zachary A Siegel, Abigail Brown, Andrew Devendorf, Johanna Collier, Leonard A Jason
Objectives The aim of this study was to analyze the content of American newspaper articles ( n=214) from 1987 to 2013, in order to understand how the public digests information related to Chronic Fatigue syndrome, a controversial and misunderstood illness. Methods A novel codebook derived from the scientific literature was applied to 214 newspaper articles collected from Lexis Nexis Academic®. These articles were coded quantitatively and frequency tables were created to delineate the variables as they appeared in the articles...
March 2018: Chronic Illness
https://www.readbyqxmd.com/read/30003798/arts-based-interventions-to-promote-transition-outcomes-for-young-people-with-long-term-conditions-a-review
#12
J Callinan, I Coyne
Objectives To conduct a systematic review of arts-based interventions promoting transition from paediatric to adult services for young people (Note: The term young people refers to adolescents and young adults.) with long-term conditions and to explore their effectiveness. Interventions Arts-based interventions included studies of young people who were actively participating in the intervention rather than passive observers. Visual arts interventions included film/video production, time-based media, photography, animation, sculpture, audio, installation, sound recordings, painting, textiles, print, mixed media, multimedia...
January 1, 2018: Chronic Illness
https://www.readbyqxmd.com/read/29940779/cardiovascular-disease-among-united-states-military-veterans-evidence-of-a-waning-healthy-soldier-effect-using-the-national-health-interview-survey
#13
Ramon Hinojosa
Objectives Cardiovascular disease is the most common chronic health condition affecting Americans. One important group of Americans that health researchers have noted as key to understanding general population health and wellbeing are veterans of the US military. The healthy soldier effect has been used to explain the health benefits of military service during and for a period of time after service. The purpose of this study is to examine the prevalence of cardiovascular disease in a national sample of veterans and non-veterans with specific attention paid to reported cardiovascular disease across ages...
January 1, 2018: Chronic Illness
https://www.readbyqxmd.com/read/29914264/biopsychosocial-benefits-of-movement-based-complementary-and-integrative-health-therapies-for-patients-with-chronic-conditions
#14
Rendelle E Bolton, Gemmae M Fix, Carol VanDeusen Lukas, A Rani Elwy, Barbara G Bokhour
Objectives Complementary and integrative health practices are growing in popularity, including use of movement-based therapies such as yoga, tai-chi, and qigong. Movement-based therapies are beneficial for a range of health conditions and are used more frequently by individuals with chronic illness. Yet little is known about how patients with chronic conditions characterize the health benefits of movement-based therapies. Methods We conducted focus groups with 31 patients enrolled in yoga and qigong programs for chronic conditions at two VA medical centers...
January 1, 2018: Chronic Illness
https://www.readbyqxmd.com/read/29895167/patients-perceptions-of-patient-provider-communication-and-diabetes-care-a-systematic-review-of-quantitative-and-qualitative-studies
#15
Maryam Peimani, Ensieh Nasli-Esfahani, Roya Sadeghi
Objectives To explore the association between patients' perceptions of communication quality with their provider and a range of patients' outcomes in T2DM. Also, to identify barriers and facilitators to effective communication from the patients' perspective. Methods English and Persian papers published from 2000 to 2017 were searched in Web of Science, Pubmed, Scopus, Embase and SID, IranMedex, and MAGIRAN databases using appropriate search terms. Twenty-two studies complied the inclusion criteria. Each study was assessed for the focus of the study, study design (cross-sectional or qualitative study), population, outcome measures, patients' outcomes, and methodological quality...
January 1, 2018: Chronic Illness
https://www.readbyqxmd.com/read/29788786/emergency-room-visits-for-chronic-obstructive-pulmonary-disease-in-illinois-counties-an-epidemiological-study-based-on-the-social-ecological-model
#16
Justin T McDaniel
Objectives This study aimed to determine the predictive capability of the Social Ecological Model for emergency room visits for acute exacerbation of chronic obstructive pulmonary disease. Methods County-level secondary data ( n = 102) on emergency room visits for chronic obstructive pulmonary disease were retrieved from the Illinois Department of Public Health for 2016. Data for variables operationalized from the intrapersonal, interpersonal, institutional, community, and public policy levels of the Social Ecological Model were retrieved from several sources...
January 1, 2018: Chronic Illness
https://www.readbyqxmd.com/read/29742923/adult-patients-experiences-of-symptom-management-during-pulmonary-exacerbations-in-cystic-fibrosis-a-thematic-synthesis-of-qualitative-research
#17
Gabriela Schmid-Mohler, Janelle Yorke, Rebecca Spirig, Christian Benden, Ann-Louise Caress
Objective The aim of this review was to describe how patients experience an exacerbation of cystic fibrosis in terms of symptom management. Methods A systematic literature search was performed in MEDLINE, CINAHL, EMBASE, PSYCINFO and ASSIA. Studies were included that contained any direct quotes or summaries of quotes from patients with cystic fibrosis aged 16 or older and were related to symptom experience and management during an exacerbation. Framework analysis, guided by Symptom Management Theory, was used to present the findings...
January 1, 2018: Chronic Illness
https://www.readbyqxmd.com/read/29699410/using-normalisation-process-theory-to-understand-barriers-and-facilitators-to-implementing-mindfulness-based-stress-reduction-for-people-with-multiple-sclerosis
#18
Robert Simpson, Sharon Simpson, Karen Wood, Stewart W Mercer, Frances S Mair
Objectives To study barriers and facilitators to implementation of mindfulness-based stress reduction for people with multiple sclerosis. Methods Qualitative interviews were used to explore barriers and facilitators to implementation of mindfulness-based stress reduction, including 33 people with multiple sclerosis, 6 multiple sclerosis clinicians and 2 course instructors. Normalisation process theory provided the underpinning conceptual framework. Data were analysed deductively using normalisation process theory constructs (coherence, cognitive participation, collective action and reflexive monitoring)...
January 1, 2018: Chronic Illness
https://www.readbyqxmd.com/read/29682997/-how-am-i-gonna-cope-caregivers-of-adolescents-with-diabetes-in-jamaica
#19
M Anderson, M K Tulloch-Reid
Objective To determine the challenges, coping strategies and needs of urban and rural Jamaican caregivers of adolescents with diabetes, and suggest ways to assist coping. Methods This qualitative study comprised four focus groups (two urban and two rural) with a total of nineteen caregivers of adolescents with diabetes. Thematic analysis was conducted on the data. Results The main challenges caregivers faced were keeping their children healthy, managing conflict with their children, and financial concerns. They met these challenges with problem-focused and emotion-focused coping strategies...
January 1, 2018: Chronic Illness
https://www.readbyqxmd.com/read/29642707/an-integrated-motivational-interviewing-and-cognitive-behavioural-intervention-promoting-physical-activity-maintenance-for-adults-with-chronic-health-conditions-a-feasibility-study
#20
Sarah E Scott, Jeff D Breckon, Robert J Copeland
Objectives Physical activity is recommended for managing chronic health conditions but is rarely maintained. This feasibility study aimed to evaluate the preliminary efficacy of a motivational interviewing and cognitive-behavioural intervention for long-term physical activity for adults with chronic health conditions. Methods Participants ( N = 37) with stable conditions (e.g. diabetes) were randomized into a three-month motivational interviewing and cognitive-behavioural group ( N = 20) or usual care ( N = 17) after completing a physical activity referral scheme...
January 1, 2018: Chronic Illness
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