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Chronic Illness

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https://www.readbyqxmd.com/read/29119866/exploring-service-users-carers-and-professionals-perspectives-and-experiences-of-current-antipsychotic-prescribing-a-qualitative-study
#1
Kamelia Harris, Helen Brooks, Garry Lythgoe, Penny Bee, Karina Lovell, Richard J Drake
Objectives Shared decision-making is the pinnacle of patient-centred care; mental health stakeholders value shared decision-making but find it difficult to enact. The objective was to compare and synthesise mental health stakeholder views on antipsychotic prescribing in one NHS Trust, to understand potential reasons for the difficult enactment of shared decision-making in practice. Methods We conducted 12 interviews and 5 focus groups with 33 mental health stakeholders, after obtaining their informed consent...
December 2017: Chronic Illness
https://www.readbyqxmd.com/read/29119865/exercise-and-mental-health-of-people-living-with-hiv-a-systematic-review
#2
Sanaz Nosrat, James W Whitworth, Joseph T Ciccolo
Objective Mental illness is highly prevalent among people living with HIV. Poor mental health is linked to HIV disease progression, making the treatment of mental illness alongside HIV essential. While the benefits of exercise on the physical health of people living with HIV are well established, the effect of exercise on mental health in this population is less examined. Therefore, this study aimed to conduct a systematic literature review of the effects of exercise on mental health in people living with HIV...
December 2017: Chronic Illness
https://www.readbyqxmd.com/read/29119864/associations-between-having-an-informal-caregiver-social-support-and-self-care-among-low-income-adults-with-poorly-controlled-diabetes
#3
Erin D Bouldin, Ranak B Trivedi, Gayle E Reiber, Ann-Marie Rosland, Julie B Silverman, James Krieger, Karin M Nelson
Objective To determine whether the presence of an informal caregiver and the patient's level of social support are associated with better diabetes self-care among adults with poorly controlled diabetes. Methods Cross-sectional study using baseline data from 253 adults of age 30-70 with poorly controlled diabetes. Participants who reported receiving assistance with their diabetes from a friend or family member in the past month were classified as having a caregiver. We used multivariate linear and logistic regression models to evaluate the associations between having a caregiver and level of social support with five self-reported diabetes self-care behaviors: diet, foot checks, blood glucose monitoring, medications, and physical activity...
December 2017: Chronic Illness
https://www.readbyqxmd.com/read/29119863/understanding-uncertainty-in-young-onset-parkinson-disease
#4
Michael Ravenek, Debbie L Rudman, Mary E Jenkins, Sandi Spaulding
Objectives Individuals living with young-onset Parkinson's disease compose a rare subtype of a disease typically associated with older age. Situated within a large grounded theory study exploring information behavior, this paper describes the core category of the theory, i.e. uncertainty. Methods Data were collected with 39 individuals living with young-onset Parkinson's disease who took part in in-depth interviews, focus groups and/or an online discussion board. Fourteen autobiographies written by individuals living with young-onset Parkinson's disease were also used as data sources...
December 2017: Chronic Illness
https://www.readbyqxmd.com/read/28783975/barriers-and-facilitators-to-epilepsy-self-management-for-patients-with-physical-and-psychological-co-morbidity
#5
Adam T Perzynski, Riane K Ramsey, Kari Colón-Zimmermann, Jamie Cage, Elisabeth Welter, Martha Sajatovic
Objectives This exploratory study identifies barriers and facilitators to self-management to inform future epilepsy self-management interventions for persons who have epilepsy complicated by co-morbid mental health conditions and serious medical events. Methods Focus group methods were used in a series of community advisory board meetings. Analysis was conducted using a thematic, constant comparative approach aiming to describe the range of barriers and facilitators salient to participants. There were a total of 22 participants, including 8 health professionals, 9 patients with epilepsy, and 5 care partners...
September 2017: Chronic Illness
https://www.readbyqxmd.com/read/28783974/a-novel-primary-specialist-care-collaborative-demonstration-project-to-improve-the-access-and-health-care-of-medically-complex-patients
#6
Henry Yu-Hin Siu, Nicole Steward, Jessica Peter, Laurel Cooke, Donald M Arnold, David Price
Objective Medically complex patients experience fragmented health care compounded by long wait times. The MedREACH program was developed to improve access and overall system experience for medically complex patients. Program description MedREACH is a novel primary-tertiary care collaborative demonstration program that features community nursing outreach, community specialist outreach, and a multi-specialty consultation clinic. Methods All 179 patients, referring primary care clinicians, and specialists involved were eligible to participate...
September 2017: Chronic Illness
https://www.readbyqxmd.com/read/27539955/living-with-uncertainty-and-hope-a-qualitative-study-exploring-parents-experiences-of-living-with-childhood-multiple-sclerosis
#7
Denise Hinton, Susan Kirk
Background There is growing recognition that multiple sclerosis is a possible, albeit uncommon, diagnosis in childhood. However, very little is known about the experiences of families living with childhood multiple sclerosis and this is the first study to explore this in depth. Objective Our objective was to explore the experiences of parents of children with multiple sclerosis. Methods Qualitative in-depth interviews with 31 parents using a grounded theory approach were conducted. Parents were sampled and recruited via health service and voluntary sector organisations in the United Kingdom...
June 2017: Chronic Illness
https://www.readbyqxmd.com/read/27358286/the-lived-experience-of-having-a-rare-medical-disorder-hermansky-pudlak-syndrome
#8
Stacy Christensen, Linda Wagner, Melissa M Coleman, Donna Appell
Hermansky-Pudlak Syndrome is a rare form of albinism, affecting approximately one in 500,000 to one in 1,000,000 non-Hispanic individuals. The syndrome is more commonly found in Hispanics, where one in 18,00 individuals in Northwestern Puerto Rico are impacted. Because of the rarity of this chronic condition, patients often face challenges in their ability to cope with the diagnosis. A phenomenological study was conducted to explore the experience of individuals with this rare genetic disease. A purposive sample of adults between the ages of 20 and 49 diagnosed with Hermansky-Pudlak Syndrome was interviewed (N = 23)...
March 2017: Chronic Illness
https://www.readbyqxmd.com/read/27343016/living-a-secret-disclosure-among-adolescents-and-young-adults-with-chronic-illnesses
#9
Daniel Kaushansky, Jarad Cox, Chaka Dodson, Miles McNeeley, Sinthu Kumar, Ellen Iverson
Objectives This qualitative study examines how and why adolescents living with visible and invisible chronic illnesses choose to share their condition with individuals within their social environments. Methods A sample of 25 adolescents were recruited from five subspecialty services: Spina bifida, rheumatology, cardiology, cystic fibrosis, and renal transplant/dialysis. Recruits completed a semi-structured interview designed to explore: (1) to whom adolescents disclose their conditions, (2) motivation and conditions under which they disclose, (3) content of disclosure, and (4) barriers to disclosure...
March 2017: Chronic Illness
https://www.readbyqxmd.com/read/27269506/attachment-in-medical-care-a-review-of-the-interpersonal-model-in-chronic-disease-management
#10
REVIEW
Xavier F Jimenez
Objective Patient-physician interaction is continually examined in an era prioritizing patient-centered approaches, yet elaboration beyond aspects of communication and empathy is lacking. Major chronic conditions would benefit tremendously from understanding interpersonal aspects of patient-physician encounters. This review intends to provide a concise introduction to the interpersonal model of attachment theory and how it informs both the patient-physician interaction and medical outcomes in chronic care. Methods A narrative review of the theoretical, neurobiological, epidemiological, investigational, and clinical literature on attachment theory and its impact on medical outcomes was conducted, utilizing a variety of key words as searched on PubMed database...
March 2017: Chronic Illness
https://www.readbyqxmd.com/read/27269275/acceptance-of-technology-based-tools-in-a-sample-of-parkinson-s-patients
#11
Nathalie Duroseau, Tobi Abramson, Kathleen Pergament, Vivian Chan, John Paul Govindavari, Christina Ciraco, David Tegay, Bhuma Krishnamachari
Objectives Parkinson's disease is the second most common neurodegenerative movement disorder in the United States. Patients' opinions of technology-based tools for education and communication as related to Parkinson's disease are unclear with little documented research addressing the issue. The goal of this research was to investigate patient opinions about technology-based tools with a focus on differences between patients of different age groups. Methods A cross-sectional survey was used to assess views on using multiple different electronic methods for receiving instructions and communicating with healthcare providers in 109 Parkinson's disease patients...
March 2017: Chronic Illness
https://www.readbyqxmd.com/read/27170783/parent-perspectives-of-the-challenging-aspects-of-disclosing-a-child-s-epilepsy-diagnosis-to-others-why-don-t-they-tell
#12
Ailbhe Benson, Veronica Lambert, Pamela Gallagher, Amre Shahwan, Joan K Austin
Objectives This study aimed to explore the challenges parents of children with epilepsy (CWE) experienced when deciding to disclose their child's epilepsy diagnosis to others. Methods Using a qualitative exploratory design, interviews were conducted with 34 parents (27 mothers and 7 fathers) of 29 CWE (aged 6-16 years). Parents were recruited from a neurology clinic of a specialist children's hospital and from a national epilepsy association. Interviews were directed by a semi-structured guide informed by a review of the literature...
March 2017: Chronic Illness
https://www.readbyqxmd.com/read/29119817/factors-affecting-self-reported-medication-adherence-and-hypertension-knowledge-a-cross-sectional-study-in-rural-villages-yogyakarta-province-indonesia
#13
Riana Rahmawati, Beata Bajorek
Objectives This study assessed medication adherence and hypertension knowledge, and their predictive factors, in people with hypertension, living in rural communities in Indonesia. Methods Data were acquired from 384 people living in eight rural villages via a researcher-administered questionnaire, a validated adherence scale, and a standardized hypertension knowledge survey. Multivariate analysis was used to identify the predictors of adherence and knowledge. Results Fifty-nine (15%) participants had good hypertension knowledge (score ≥ 8 out of 10)...
January 1, 2017: Chronic Illness
https://www.readbyqxmd.com/read/29096534/the-doctor-patient-relationship-and-patient-resilience-in-chronic-pain-a-qualitative-approach-to-patients-perspectives
#14
Lilla Náfrádi, Zlatina Kostova, Kent Nakamoto, Peter J Schulz
Objectives To study patients' perspectives about the role of the doctor-patient relationship in promoting the resilience process. Methods We conducted in-depth interviews with 20 chronic pain patients. Using open-ended questions, the interviews explored aspects of the doctor-patient relationship that impacted the patients' perceptions of their resilience. Thematic analysis built on an inductive, adaptive approach to data coding was employed to organize a representation of key factors affecting resilience. Results The themes emerging from the interviews inform us about how the different aspects of the doctor-patient relationship can promote patient resilience in chronic pain...
January 1, 2017: Chronic Illness
https://www.readbyqxmd.com/read/29022766/a-solution-focused-approach-to-understanding-patient-motivation-in-diabetes-self-management-gender-differences-and-implications-for-primary-care
#15
Tajudaullah Bhaloo, Michael Juma, Christine Criscuolo-Higgins
Objective Healthcare providers often neglect to recognize the role they play in motivating patients with diabetes to perform self-management. Our aims were to understand what motivates patients with diabetes to implement recommended self-management practices and understand the role of the primary care team in patient motivation. Methods We use a solution-focused qualitative approach, supplemented with a quantitative scale. We used a purposive sampling strategy to invite patients with uncontrolled diabetes. Semi-structured telephone interviews were conducted and analyzed using content and thematic analysis...
January 1, 2017: Chronic Illness
https://www.readbyqxmd.com/read/28958163/-i-have-a-feeling-i-can-t-speak-to-anybody-a-thematic-analysis-of-communication-perspectives-in-people-with-huntington-s-disease
#16
Nicolò Zarotti, Jane Simpson, Ian Fletcher
Objectives This study explored the perspectives of people affected by Huntington's disease (HD) on their own communicative abilities. Methods Qualitative semi-structured interviews were carried out with eight people with early HD. The data were analysed through thematic analysis. Results Four themes were constructed from the data, characterised by the following core topics: How HD directs and mediates communication; Regaining control to improve communication; Emotional outflows into communication and the struggle for separation; Sheltering as a way to boost confidence in communication...
January 1, 2017: Chronic Illness
https://www.readbyqxmd.com/read/28927284/shared-medical-appointments-for-patients-with-a-nondiabetic-physical-chronic-illness-a-systematic-review
#17
F Kelly, C Liska, R Morash, J Hu, S L Carroll, R Shorr, S Dent, D Stacey
Objectives Shared medical appointments are group appointments, with an optional individual consultation, for patients diagnosed with chronic illnesses. Shared medical appointments improve diabetes management, but little is known about their use for other illnesses. The objective was to determine the effect that shared medical appointments have on patients with a physical chronic illness, healthcare providers, and the healthcare system. Methods A systematic review was conducted searching databases from January 1970 to September 2016...
January 1, 2017: Chronic Illness
https://www.readbyqxmd.com/read/28914088/multi-morbidity-a-patient-perspective-on-navigating-the-health-care-system-and-everyday-life
#18
Lisbeth Ørtenblad, Lucette Meillier, Alexandra R Jønsson
Objective The importance of everyday life when managing the burden of treatment is rarely studied. This article explores the burden of treatment among people with multi-morbidity by investigating the tension between everyday life and the health care system. Method This was an ethnographic study using individual interviews and participant-observations. An inductive analytical approach was applied, moving from observations and results to broader generalisations. Results People with multi-morbidity experience dilemmas related to their individual priorities in everyday life and the management of their treatment burdens...
January 1, 2017: Chronic Illness
https://www.readbyqxmd.com/read/28906129/perceptions-of-u-s-veterans-affairs-and-community-healthcare-providers-regarding-cross-system-care-for-heart-failure
#19
Charlene A Pope, Boyd H Davis, Leticia Wine, Lynne S Nemeth, K Sue Haddock, Tom Hartney, R Neal Axon
Objectives This study explores perceptions of US Veterans Affairs (VA) and non-VA healthcare providers caring for Veterans with heart failure (HF) regarding Veteran knowledge and motivations for dual use, provider roles in recommending and coordinating dual use, systems barriers and facilitators, and suggestions for improving cross-system care. Methods Twenty VA and 11 non-VA providers participated in semi-structured interviews, which were analyzed using parallel qualitative content and discourse analysis. Results VA and non-VA providers described variable HF knowledge and self-management among Veterans, and both groups described the need for improved education addressing medication adherence, self-care, and management of acute symptoms...
January 1, 2017: Chronic Illness
https://www.readbyqxmd.com/read/28885039/primary-health-care-decision-making-in-pre-dialysis-chronic-kidney-disease
#20
Sandra Joan Campbell-Crofts, Janet Roden
Objectives This qualitative descriptive study explored the primary health care decisions of a group of 12 Australians in Stages 3B to 5 with chronic kidney disease in the preservation of kidney health. Methods Questioning within the qualitative interviews focused on gaining an understanding of the participants' perceptions of their kidney health and the decisions made as a consequence of their interaction within the Australian primary health care system. Results Participants were dependent on their General Practitioner to recognise their symptoms, make the correct diagnosis and authorise the correct referral for specialist nephrology care...
January 1, 2017: Chronic Illness
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