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Journal of Bioethical Inquiry

Sigrid Bosteels, Michel Vandenbroeck, Geert Van Hove
New-born screening programs for congenital disorders and chronic disease are expanding worldwide and children "at risk" are identified by nationwide tracking systems at the earliest possible stage. These practices are never neutral and raise important social and ethical questions. An emergent concern is that a reflexive professionalism should interrogate the ever earlier interference in children's lives. The Flemish community of Belgium was among the first to generalize the screening for hearing loss in young children and is an interesting case to study the public justification of early interventions for families with deaf children...
October 19, 2016: Journal of Bioethical Inquiry
Kenneth Jacobs
No abstract text is available yet for this article.
October 19, 2016: Journal of Bioethical Inquiry
Jennifer Bartlett
No abstract text is available yet for this article.
October 19, 2016: Journal of Bioethical Inquiry
Abby Wilkerson, Joseph Fisher, Wade Fletcher
Writing is central both to the medical diagnostic codification of disability and to disabled people's efforts to interrupt, complicate, or disrupt dominant medical narratives. This Symposium, like the George Washington University conference from which it takes its name, creates space for diverse modes and genres of claiming authority regarding diagnosis and its cultural and material effects. "Queer" and "crip" interrogations of diagnosis illuminate its status as a cultural phenomenon, embracing culturally disavowed embodiments and embodied experiences as tools for diagnosing inegalitarian social relations and opportunities for cultural interventions...
October 5, 2016: Journal of Bioethical Inquiry
Vida Jeremic, Karine Sénécal, Pascal Borry, Davit Chokoshvili, Danya F Vears
Participation in healthcare decision-making is considered to be an important right of minors, and is highlighted in both international legislation and public policies. However, despite the legal recognition of children's rights to participation, and also the benefits that children experience by their involvement, there is evidence that legislation is not always translated into healthcare practice. There are a number of factors that may impact on the ability of the child to be involved in decisions regarding their medical care...
September 21, 2016: Journal of Bioethical Inquiry
Bernadette Richards, Michaela E Okninski
No abstract text is available yet for this article.
September 8, 2016: Journal of Bioethical Inquiry
Jonathan Hsy
This essay examines constructions of deafness in medieval culture, exploring how deaf experience disrupts authoritative discourses in three textual genres: medical treatise, literary fiction, and autobiographical writing. Medical manuals often present deafness as a physical defect, yet they also suggest how social conditions for deaf people can be transformed in lieu of treatment protocols. Fictional narratives tend to associate deafness with sin or social stigma, but they can also imagine deaf experience with a remarkable degree of sympathy and nuance...
August 26, 2016: Journal of Bioethical Inquiry
Paul Walker, Terry Lovat
This paper is predicated on the understanding that clinical encounters between clinicians and patients should be seen primarily as inter-relations among persons and, as such, are necessarily moral encounters. It aims to relocate the discussion to be had in challenging medical decision-making situations, including, for example, as the end of life comes into view, onto a more robust moral philosophical footing than is currently commonplace. In our contemporary era, those making moral decisions must be cognizant of the existence of perspectives other than their own, and be attuned to the demands of inter-subjectivity...
August 17, 2016: Journal of Bioethical Inquiry
Holly Louise Northam
No abstract text is available yet for this article.
August 9, 2016: Journal of Bioethical Inquiry
Michael Ashby
No abstract text is available yet for this article.
September 2016: Journal of Bioethical Inquiry
Rafael Boscolo-Berto, Massimo Montisci, Silvia Secco, Carolina D'Elia, Rosella Snenghi, Guido Viel, Santo Davide Ferrara
A conflict of interest (COI) is a situation in which a person has competing loyalties or interests that make it difficult to fulfil his or her duties impartially. Conflict of interest is not categorically improper in itself but requires proper management. A SCOPUS literature search was performed for publications on the efficacy/safety of Phospho-Di-Esterase Inhibitors (PDEIs) for treating erectile dysfunction. A categorization tool (CoOpCaT) was used to review and classify the publications as supportive/not-supportive for the discussed active ingredient and reporting or not reporting a COI for that specific drug or for the remaining PDEIs (i...
September 2016: Journal of Bioethical Inquiry
David Shaw
No abstract text is available yet for this article.
September 2016: Journal of Bioethical Inquiry
Marja Visser, Monique H Mochtar, Fulco van der Veen
No abstract text is available yet for this article.
September 2016: Journal of Bioethical Inquiry
A Olesen, S N Nor, L Amin
Pre-Implantation Genetic Diagnosis (PGD) represents the first fusion of genomics and assisted reproduction and the first reproductive technology that allows prospective parents to screen and select the genetic characteristics of their potential offspring. However, for some, the idea that we can intervene in the mechanisms of human existence at such a fundamental level can be, at a minimum, worrying and, at most, repugnant. Religious doctrines particularly are likely to collide with the rapidly advancing capability for science to make such interventions...
September 2016: Journal of Bioethical Inquiry
Michaela Okninski
No abstract text is available yet for this article.
September 2016: Journal of Bioethical Inquiry
Gabrielle Samuel, Alan Cribb, John Owens, Clare Williams
In this paper we contribute to "sociology in bioethics" and help clarify the range of ways sociological work can contribute to ethics scholarship. We do this using a case study of an innovative neurotechnology, functional magnetic resonance imaging, and its use to attempt to diagnose and communicate with severely brain-injured patients. We compare empirical data from interviews with relatives of patients who have a severe brain injury with perspectives from mainstream bioethics scholars. We use the notion of an "ethical landscape" as an analogy for the different ethical positions subjects can take-whereby a person's position relative to the landscape makes a difference to the way they experience and interact with it...
September 2016: Journal of Bioethical Inquiry
Malcolm Parker
The United Nations Convention on the Rights of Persons with Disabilities urges and requires changes to how signatories discharge their duties to people with intellectual disabilities, in the direction of their greater recognition as legal persons with expanded decision-making rights. Australian jurisdictions are currently undertaking inquiries and pilot projects that explore how these imperatives should be implemented. One of the important changes advocated is to move from guardianship models to supported or assisted models of decision-making...
September 2016: Journal of Bioethical Inquiry
Charles Mpofu, Tarun Sen Gupta, Richard Hays
Medical migration appears to be an increasing global phenomenon, with complex contributing factors. Although it is acknowledged that such movements are inevitable, given the current globalized economy, the movement of health professionals from their country of training raises questions about equity of access and quality of care. Concerns arise if migration occurs from low- and middle-income countries (LMICs) to high-income countries (HICs). The actions of HICs receiving medical practitioners from LMICs are examined through the global justice theories of John Rawls and Immanuel Kant...
September 2016: Journal of Bioethical Inquiry
Myles Balfe
This article examines why U.S. healthcare professionals became involved in "enhanced interrogation," or torture, during the War on Terror. A number of factors are identified including a desire on the part of these professionals to defend their country and fellow citizens from future attack; having their activities approved and authorized by legitimate command structures; financial incentives; and wanting to prevent serious harm from occurring to prisoners/detainees. The factors outlined here suggest that psychosocial factors can influence health professionals' ethical decision-making...
September 2016: Journal of Bioethical Inquiry
Juhong Liao, Katrien Devolder
Gamete donation from third parties is controversial in China as it severs blood ties, which are considered of utmost importance in Confucian tradition. In recent years, infertile couples are increasingly demonstrating a preference for the use of gametes donated by family members to conceive children-known as "intra-family gamete donation." The main advantage of intra-family gamete donation is that it maintains blood ties between children and both parents. To date there is no practice of intra-family gamete donation in China...
September 2016: Journal of Bioethical Inquiry
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