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Journal of Social Work in End-of-life & Palliative Care

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https://www.readbyqxmd.com/read/29856280/exploring-the-challenges-that-family-caregivers-faced-when-caring-for-hospice-patients-with-heart-failure
#1
Nai-Ching Chi, George Demiris, Kenneth C Pike, Karla Washington, Debra Parker Oliver
Although patients with heart disease comprise the second largest diagnostic group in hospice care, the challenges faced by family caregivers of hospice patients with heart failure are poorly understood and often go unaddressed. This study explored the challenges and needs of family caregivers of adults with advanced heart failure receiving hospice care in the home. The baseline quantitative and qualitative data from 28 family caregivers' participation in a large-scale hospice clinical trial of a problem-solving therapy intervention were analyzed...
June 1, 2018: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/29843573/advance-directives-information-delivery-in-medicare-medicaid-funded-agencies-an-exploratory-study
#2
Megumi Inoue, Catherine Tompkins, Kiersten Scruggs, Jennifer Robles
To encourage citizens to plan their end-of-life care to protect their autonomy, Congress passed the Patient Self-Determination Act (PSDA) in 1990. Under the PSDA, all Medicare/Medicaid-funded agencies are required to ask if all the patients, upon admission, have advance directives (ADs). If they have not formulated an AD, agencies need to inform that they have a right to do so and provide them with the written information. Although this is required by law, there is no universal procedure or set standard approach to deliver the information to patients in these agencies...
May 29, 2018: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/29578837/my-entrance-her-exit
#3
Elizabeth Paula Cramer
No abstract text is available yet for this article.
March 26, 2018: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/29505397/challenges-of-dealing-with-financial-concerns-during-life-threatening-illness-perspectives-of-health-care-practitioners
#4
Sally A Hageman, Anita J Tarzian, John Cagle
The costs of serious medical illness and end of life care are often a heavy burden for patients and families (Collins, Stepanczuk, Williams, & Rich, 2016 ; Kim, 2007 ; May et al., 2014 ; Zarit, 2004 ). Twenty-six practitioners, including social workers, managers/administrators, supervisors, and case managers from five health care settings, participated in qualitative semistructured interviews about financial challenges patients encountered. Seven practitioners took part in a focus group. Practitioners were recruited from hospice (n = 5), long-term care (n = 5), intensive care (n = 5), dialysis (n = 6), and oncology (n = 5)...
January 2018: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/29494791/physician-assisted-suicide-and-midwest-social-workers-where-do-they-stand
#5
N Rose Gaston, Jill M Randall, Lisa R Kiesel
Physician-assisted suicide (PAS) is explicitly legal in five states and by court decision in one. Legislative bills have been introduced in other states including Minnesota, Iowa, and Wisconsin. This quantitative study was designed to understand Midwest, hospice and palliative care at end-of-life social workers' attitudes toward PAS, preferred terminology, perception of preparedness for the implementation, and awareness of PAS legislation in their state. Sixty-two social workers from Minnesota, Iowa, and Wisconsin completed an anonymous online survey...
January 2018: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/29488858/social-workers-perceptions-of-job-satisfaction-interdisciplinary-collaboration-and-organizational-leadership
#6
Suzanne Marmo, Cathy Berkman
To address job satisfaction, and therefore employment retention, of hospice social workers, this study examined how relationships with other members of the interdisciplinary hospice team and perceptions of hospice leadership may be associated with job satisfaction of hospice social workers. The sample of 203 hospice social workers was recruited by e-mailing invitations to hospice social workers identified by hospice directors in three states, use of online social media sites accessed by hospice social workers, and snowball sampling...
January 2018: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/29488856/reflective-debriefing-a-social-work-intervention-addressing-moral-distress-among-icu-nurses
#7
Emily D Browning, Jourdan S Cruz
Health-care workers may experience moral distress when they are unable to act as they believe is ethically appropriate in their clinical work. A social worker-facilitated protocol called Reflective Debriefing was developed and tested for alleviating moral distress through regular debriefings with nursing staff on an intensive care unit (ICU). Forty-two ICU nurses completed a Moral Distress Scale-Revised (MDS-R) at the beginning and end of a 6-month period, during which time regular debriefings were offered...
January 2018: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/29482491/hispanic-hospice-patients-experiences-of-end-stage-restlessness
#8
Susanny J Beltran
End-stage restlessness, or terminal agitation, is experienced by some patients during their final days and is characterized by physical, emotional, or spiritual distress, agitation or anxiety. End-stage restlessness negatively affects the patient's death experience and can be distressing to the family and care team. Using the 2007 National Home and Hospice Care survey, this study examined factors associated with experiencing end-stage restlessness among non-Hispanic white and Hispanic hospice patients deceased at time of discharge...
January 2018: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/29482490/editor-s-introduction
#9
Ellen L Csikai
No abstract text is available yet for this article.
January 2018: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/29482461/mothers-experience-of-post-traumatic-growth-in-pediatric-kidney-transplantation
#10
Andrew Mantulak, Susan Cadell
Parenting a child with chronic kidney disease has a profound impact on the parental caregivers across social, emotional, and physical functioning. As the survival rates for children with chronic kidney disease increase, the demands on parents caring for these children intensify. The aim of this study was to understand the lived experience of being a mother of a child who has undergone kidney transplantation. Seven mothers caring for children with chronic kidney disease in Ontario, Canada participated in in-depth interviews that were analyzed according to the principles of hermeneutic phenomenology...
January 2018: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/29469656/when-the-teacher-becomes-the-pupil-lessons-derived-from-a-terminally-ill-student
#11
Lise Johns
No abstract text is available yet for this article.
January 2018: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/29252160/fathers-facing-advanced-cancer-an-exploratory-study
#12
Melissa Lundquist
Adults who are living with cancer while raising young children are faced with distinct challenges particularly when that cancer is advanced. While the literature examining parental cancer continues to grow, very little has focused on families facing advanced cancer and the father's perspective is nearly absent. To address these gaps, grounded theory methods were used to study the experiences of 11 fathers living with advanced cancer while raising minor children. The participants were all married with between one and six children living in their household...
October 2017: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/29252159/editor-s-introduction
#13
Ellen L Csikai, Karen Bullock
No abstract text is available yet for this article.
October 2017: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/29252158/would-you
#14
Paul J Moon
No abstract text is available yet for this article.
October 2017: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/29252156/end-of-life-preparations-among-lesbian-gay-bisexual-and-transgender-people-integrative-review-of-prevalent-behaviors
#15
Luisa Kcomt, Kevin M Gorey
Proactively making end-of-life (EOL) preparations is important to ensure high quality EOL care. Critical to preparation is the discussion of preferences with one's primary health care providers. Lesbian, gay, bisexual, and transgender (LGBT) people often experience discrimination from health care providers that will detrimentally affect their ability to communicate their care preferences. Structural barriers, such as those based on sexual orientation and gender identity, may impede timely and quality care when one is most in need...
October 2017: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/29252155/grieving-the-loss-of-a-pet-needs-the-health-system-recognition
#16
Bidhu K Mohanti
Globally there is increased presence of pets in the households. This non-human relationship, with its dimensions of physical and emotional bonds, can get severely jolted on the death of the companion animal. It sets a feeling, 'our life is now left with a void and the house feels utterly empty'. Unlike the loss of a child, spouse or parent which become a shared tragedy; others may not understand the depth of sadness and a sense of void in a grieving pet owner. Emotional pain and physical distress due to the loss of a companion animal are likely to be pronounced...
October 2017: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/29252154/evidence-based-treatment-with-older-adults-theory-practice-and-research
#17
Mercedes Bern-Klug
No abstract text is available yet for this article.
October 2017: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/29252153/burnout-among-iowa-hospice-workers-a-test-of-the-job-demands-resources-model
#18
Meredith Stensland, Miriam Landsman
Burnout is a critical problem for hospice care system, particularly given the potential increase in hospice utilization because of the increasing older adult population. Hospice care requires social workers and other professionals to work in interdisciplinary settings under conditions of prolonged stress. Guided by the Job Demands-Resources (JDR) model, this study sought to: (1) understand Iowa hospice workers' level of burnout, indicated by emotional exhaustion (EE); (2) identify organizational and personal determinants of EE...
October 2017: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/29252152/digital-storytelling-families-search-for-meaning-after-child-death
#19
Abigail J Rolbiecki, Karla Washington, Katina Bitsicas
Bereaved families that collectively make meaning of their grief experiences often function better than those that do not, yet most social work bereavement interventions target individuals rather than family units. In this article, authors describe an innovative social work intervention that employs digital storytelling. This is a narrative technique that combines photography, music, and spoken word to help families bereaved by child death make meaning of their loss and envision a future without their deceased child...
October 2017: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/29252151/developing-a-palliative-radiation-oncology-service-line-the-integration-of-advance-care-planning-in-subspecialty-oncologic-care
#20
Rebecca Cammy
Within radiation oncology, there is often minimal attention on radiotherapy with palliative benefits due to the overlying focus on curative treatments. Historically at the University of Pennsylvania, advanced-stage patients are cared for by cancer site-specific teams rather than a more rapid treatment service model that focuses on patients' symptom needs and larger clinical issues within a palliative framework. Thus, the University of Pennsylvania created a designated palliative radiation oncology team to focus on the complex medical and relational issues of metastatic cancer patients...
October 2017: Journal of Social Work in End-of-life & Palliative Care
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