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Journal of Social Work in End-of-life & Palliative Care

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https://www.readbyqxmd.com/read/27462957/exhaust-all-measures-ethical-issues-in-pediatric-end-of-life-care
#1
Kara J Thieleman, Cara Wallace, Andrea N Cimino, Heidi A Rueda
The death of a child may have a profound impact on parents, family members, and health care providers who provided care for the child. Unique challenges are faced by parents of seriously ill children as they must serve as the legal authority for health care decisions of children under age 18, although the child's wishes must also be considered. Social workers must balance core social work values, bioethical values, and psychosocial issues presented by such situations. While studies have been conducted with physicians and nurses regarding ethical issues in pediatric end-of-life care settings, little is known about how social workers experience these conflicts...
July 2016: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/27462956/emotional-support-for-health-care-professionals-a-therapeutic-role-for-the-hospital-ethics-committee
#2
David M Chooljian, James Hallenbeck, Stephen C Ezeji-Okoye, Robert Sebesta, Hasan Iqbal, Ware G Kuschner
Hospital ethics committees (HECs) are typically charged with addressing ethical disputes, conflicts, and dilemmas that arise in the course of patient care. HECs are not widely viewed as having a therapeutic role for health care professionals who experience psychological distress or anticipatory grief in the course of discharging professional duties. A case is presented in which an ethics consultation was requested, chiefly, to secure emotional support for health care professionals who had been asked by a patient to discontinue life-sustaining treatments...
July 2016: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/27462955/detained-and-dying-ethical-issues-surrounding-end-of-life-care-in-prison
#3
Meredith Stensland, Sara Sanders
Prisons are increasingly being called upon to provide end-of-life (EOL) care within the restrictive correctional environment. Several relatively recent phenomena have brought medical ethics to the forefront of prison EOL care-including aging behind bars, a paradigm shift in prison culture, the increasing rate of in-prison deaths, and the corresponding prison hospice movement. This article examines prominent ethical issues that emerge for prison personnel who are tasked with providing care to terminally ill offenders by presenting three offender composite characters that exemplify dying offenders and emergent ethical issues surrounding their care...
July 2016: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/27462954/rethinking-suffering-allowing-for-suffering-that-is-intrinsic-at-end-of-life
#4
Maxxine Rattner, Joan Berzoff
The dilemma so central to the work of providers of palliative and end-of-life care is the paradox of their professional and ethical duty to try to relieve suffering and the limitations of so doing. While the capacity to sit with suffering at the end of life is critical to clinical work, the idea that some intrinsic suffering cannot necessarily always be relieved may model for patients and families that suffering can be borne. Clinicians who encounter unrelievable suffering may feel a sense of failure, helplessness, moral distress, and compassion fatigue...
July 2016: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/27462953/room-432-bed-1
#5
Steve Popkin
No abstract text is available yet for this article.
July 2016: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/27462952/re-imagining-god-a-meditation-on-existential-suffering-at-the-end-of-life
#6
Glenn Meuche
No abstract text is available yet for this article.
July 2016: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/27462951/the-wish-to-die-assisted-suicide-and-mental-illness
#7
Jennifer Hirsch
No abstract text is available yet for this article.
July 2016: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/27462950/hospice-core-professions-views-on-interdisciplinary-teams-a-qualitative-investigation
#8
Rie Kobayashi, Carolyn A McAllister
The hospice interdisciplinary team (IDT) has been recognized as an ideal model for interprofessional collaboration. To address the manner in which interdisciplinary practices are perceived by team members, this study explored profession-based similarities and differences in perceptions among the four core hospice IDT members (physicians, nurses, social workers, and spiritual care providers) as well as experiences on the IDT. Semistructured interviews with 20 hospice professionals, 5 from each profession, were completed...
July 2016: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/27462949/use-of-contemporary-film-as-a-medium-for-teaching-an-online-death-and-grief-course
#9
Barbara A Head, Lisa C Smith
Online education is becoming commonplace in the academic world. Schools now offer totally online degree programs or provide a hybrid of face-to-face and online courses for fulfilling academic requirements. Developing courses and teaching online requires instructors to rethink the educational paradigms they have relied upon in the past. The Net Generation of learners brings a different set of expectations, styles, and needs to the classroom than those of previous generations; this mandates that instructors redesign courses and use contemporary teaching modalities...
July 2016: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/27462948/a-time-and-place-the-role-of-social-workers-in-improving-end-of-life-care
#10
Judith Peres
Americans are living longer, but dying after a prolonged period of management of multiple chronic illnesses and functional disabilities. Despite waves of public and professional activity targeted toward improving care for the dying and supporting the families, gaps in care and challenges in end-of-life care persist. Contentious issues such as the so-called "death panels" or physician payment for discussion of advance directives and care wishes at the end of life; aid in dying; and regarding individuals who actively choose death (case of Brittney Maynard) are continually debated in the public media...
July 2016: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/27462947/editor-s-introduction
#11
Ellen L Csikai
No abstract text is available yet for this article.
July 2016: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/27143579/an-ecological-understanding-of-caregiver-experiences-in-palliative-care
#12
Devyani Chandran, J Hope Corbin, Casey Shillam
Palliative care is specialized health care to improve quality of life for patients with serious illness and their families through prevention and relief of suffering. A Palliative Care Institute was held in western Washington to capture community voices about diverse needs, strengths, and opportunities for improvement of palliative care. Researchers employed qualitative methods to obtain thematic data, provide real-time analysis, and engage in a multivoting technique to reflect stakeholder interest in individual themes and prioritize larger group interests...
January 2016: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/27143578/identities-in-transition-women-caregivers-in-bereavement
#13
Pam Orzeck
Population aging and longevity due to medical advances over the past few decades have meant that the approximately 44 million caregivers in the United States and eight million caregivers in Canada must provide more intensive levels of care and for longer periods of time. Consequently, caregivers are often profoundly affected by their caregiving role in emotional, psychological, physical, and financial ways. Thirty years of research on this population have helped to create a caregiver profile and identify the significant challenges for caregivers...
January 2016: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/27143577/examining-the-experiences-of-fathers-of-children-with-a-life-limiting-illness
#14
David B Nicholas, Laura Beaune, Maru Barrera, Jonathan Blumberg, Mark Belletrutti
Families who have a child diagnosed with a life-limiting illness (LLI) face substantial challenges resulting from the complexity and devastating impact of the condition and potential closeness of death. The experiences of fathers of a child with LLI have been understudied; therefore, this study explored the stresses, experiences, and strategies of these fathers, including their perceptions about support needs. Based on grounded theory, in-depth semi-structured interviews were conducted with 18 fathers of children with LLI...
January 2016: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/27143576/allowing-family-to-be-family-end-of-life-care-in-veterans-affairs-medical-foster-homes
#15
Chelsea E Manheim, Leah M Haverhals, Jacqueline Jones, Cari R Levy
The Medical Foster Home program is a unique long-term care program coordinated by the Veterans Health Administration. The program pairs Veterans with private, 24-hour a day community-based caregivers who often care for Veterans until the end of life. This qualitative study explored the experiences of care coordination for Medical Foster Home Veterans at the end of life with eight Veterans' family members, five Medical Foster Home caregivers, and seven Veterans Health Administration Home-Based Primary Care team members...
January 2016: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/27143575/a-cross-sectional-examination-of-the-association-between-dyspnea-and-distress-as-experienced-by-palliative-home-care-clients-and-their-informal-caregivers
#16
Shannon Freeman, John P Hirdes, Paul Stolee, John Garcia
This study examined the association between dyspnea and distress as experienced by both palliative home care clients and their informal caregivers as a unit of care. Cross-sectional analysis was conducted using the interRAI Palliative Care Assessment database. Responses from 6,655 individual palliative home care clients across six regional jurisdictions in Ontario, Canada were included. This study found that clients experiencing dyspnea were more likely to show overall signs of distress; report one or more signs of self-reported distress; and be at risk for depression when compared to clients who do not experience dyspnea...
January 2016: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/27143574/coaching-family-caregivers-to-become-better-problem-solvers-when-caring-for-persons-with-advanced-cancer
#17
J Nicholas Dionne-Odom, Kathleen D Lyons, Imatullah Akyar, Marie A Bakitas
Family caregivers of persons with advanced cancer often take on responsibilities that present daunting and complex problems. Serious problems that go unresolved may be burdensome and result in negative outcomes for caregivers' psychological and physical health and affect the quality of care delivered to the care recipients with cancer, especially at the end of life. Formal problem-solving training approaches have been developed over the past several decades to assist individuals with managing problems faced in daily life...
January 2016: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/27143573/live-discharge-from-hospice-and-the-grief-experience-of-dementia-caregivers
#18
Stephanie P Wladkowski
When an individual has dementia, family members are involved in many care transitions in their roles as caregivers. One such transition is the 'live' discharge from hospice services. This occurs when an individual no longer meets eligibility criteria. This can be difficult for caregivers who have been anticipating an end to understand in the context of their grief process. This qualitative study (N = 24) explored the experience of caregivers of adults with dementia, including Alzheimer's disease, who experienced a 'live' discharge from hospice...
January 2016: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/27143572/family-caregiving-and-the-site-of-care-four-narratives-about-end-of-life-care-for-individuals-with-dementia
#19
Anne P Glass
Little is known about end-of-life care for individuals with Alzheimer's disease and other dementias. Four case studies are presented, using data collected by qualitative interviews conducted with family caregivers who were closely involved with end-of-life care for relatives with dementia. The case studies are formatted in two pairs, with one reflecting two deaths occurring at home and the other pair representing two deaths in the nursing home. The cases reveal a range of end-of-life experiences, suggesting that there is not just one "good" path...
January 2016: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/27143571/coping-with-a-terminal-diagnosis-perspectives-from-inside-the-patient-s-home
#20
Jayson R Baman
This vignette describes the evolving and intimate relationship between a medical student and his patient, and their shared journey in accepting the patient's terminal diagnosis. The news of her diagnosis touched all parts of her life, and this account explores those effects on a very personal level.
January 2016: Journal of Social Work in End-of-life & Palliative Care
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