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Palliative & Supportive Care

Maria Norinder, Ida Goliath, Anette Alvariza
OBJECTIVE: Patients who receive palliative home care are in need of support from family members, who take on great responsibility related to caregiving but who often feel unprepared for this task. Increasing numbers of interventions aimed at supporting family members in palliative care have been described and evaluated. It is not known whether and how these interventions actually affect the care or support provided to a patient, even though it has been suggested that family members would be likely to provide better care and support and thus allow for positive experiences for patients...
October 17, 2016: Palliative & Supportive Care
Joshua Weiss
No abstract text is available yet for this article.
October 17, 2016: Palliative & Supportive Care
Ging-Long Wang, Chih-Tao Cheng, An-Chen Feng, Sheng-Hui Hsu, Yi-Chen Hou, Chiu-Yuan Chiu
OBJECTIVE: Beginning in 2007, all newly diagnosed cancer patients at the Koo Foundation Sun Yat-Sen Cancer Center (KF-SYSCC) were screened for psychosocial distress. Our social workers, as part of the psychosocial care team (PCT), have engaged in proactive outreach with patients identified as distressed. The goal of the present study was to assess the prevalence of psychosocial distress and the extent of contact between the PCT and distressed patients. METHOD: Newly diagnosed patients who were treated at KF-SYSCC between 2007 and 2010 for cancer were eligible if there were at least 100 patients with the same type of cancer...
October 4, 2016: Palliative & Supportive Care
Anette Alvariza, Malin Lövgren, Tove Bylund-Grenklo, Pia Hakola, Carl Johan Fürst, Ulrika Kreicbergs
OBJECTIVE: The loss of a parent to cancer is considered one of the most traumatic events a teenager can experience. Studies have shown that teenagers, from the time of diagnosis, are already extremely worried about the consequences of a parent's cancer but tend to be left to manage these concerns on their own. The present study aimed to explore young adults' advice to healthcare professionals on how to support teenagers who are losing a parent to cancer. METHODS: This work derives from a Swedish nationwide survey and employs a qualitative approach with a descriptive/interpretive design to obtain answers to an open-ended question concerning advice to healthcare professionals...
October 3, 2016: Palliative & Supportive Care
Johannes Wüller, Stefanie Küttner, Ann Christina Foldenauer, Roman Rolke, Tania Pastrana
OBJECTIVE: Our aim was to examine the accuracy of the German version of the Distress Thermometer (DT) compared with the Hospital Anxiety and Depression Scale (HADS) in patients with palliative care needs living at home. METHOD: Ours was a 15-month cross-sectional study beginning in September of 2013 in Germany with consecutive patients cared for by a palliative home care service. The survey was implemented during the initial visit by a home care team. Patients were excluded if they were under 18 years of age, mentally or physically unable to complete the assessment questionnaires as judged by their healthcare worker, or unable to understand the German language...
September 26, 2016: Palliative & Supportive Care
Helen Butlin, Elizabeth Anne Kinsella, Carla Garcia, Glenn Bauman
OBJECTIVE: The concept of "wisdom" is beginning to emerge in the oncology literature, raising questions concerning: (1) how the concept of wisdom is used in oncology literature; (2) the ways in which wisdom has been a focus of inquiry within oncology care; and (3) how wisdom is characterized when the term is used. METHOD: A scoping review, using Arksey and O'Malley's five-step framework, was undertaken to address these questions. In consultation with oncology reference librarians, "wisdom"- and "oncology"-related search terms were identified, and four electronic databases were searched: CINAHL, SocINDEX, PubMed, and PsychINFO...
September 26, 2016: Palliative & Supportive Care
Eunjeong Ko, Jaehoon Lee, Carlos Ramirez, Stephanie Martinez, Denicka Lopez
OBJECTIVE: Hospice is an important method of promoting quality end-of-life (EoL) care, yet its utilization is relatively low in underserved populations. The unique characteristics of a border community-such as a lack of healthcare resources and cultural integration-impact EoL decision making. The aim of our study was to assess the willingness to use hospice care services and its predictors among family caregivers of Latino patients in the United States (U.S.)-Mexico border region of Southern California...
September 9, 2016: Palliative & Supportive Care
Fernando Espí Forcén
No abstract text is available yet for this article.
August 30, 2016: Palliative & Supportive Care
Richard Egan, Rod MacLeod, Chrystal Jaye, Rob McGee, Joanne Baxter, Peter Herbison, Sarah Wood
OBJECTIVE: International studies have shown that patients want their spiritual needs attended to at the end of life. The present authors developed a project to investigate people's understanding of spirituality and spiritual care practices in New Zealand (NZ) hospices. METHOD: A mixed-methods approach included 52 semistructured interviews and a survey of 642 patients, family members, and staff from 25 (78%) of NZ's hospices. We employed a generic qualitative design and analysis to capture the experiences and understandings of participants' spirituality and spiritual care, while a cross-sectional survey yielded population level information...
August 30, 2016: Palliative & Supportive Care
Kailey Roberts, Jimmie Holland, Holly G Prigerson, Corinne Sweeney, Geoffrey Corner, William Breitbart, Wendy G Lichtenthal
OBJECTIVE: Following the loss of a loved one to cancer, a significant subset of bereaved family members are at heightened risk for mental and physical health problems; however, these family members often "fall through the cracks" of the healthcare system. A brief, clinically useful self-report bereavement risk-screening tool could facilitate more effective identification of family members in need of psychosocial support before and after a cancer loss. Thus, the purpose of this study was to develop and refine the Bereavement Risk Inventory and Screening Questionnaire (BRISQ), a self-report bereavement screening tool, and to assess its utility using feedback from bereavement experts...
August 12, 2016: Palliative & Supportive Care
Marie Bakitas, J Nicholas Dionne-Odom, Lisa Jackson, Jennifer Frost, Margaret F Bishop, Zhongze Li
OBJECTIVE: Few decision aids are available for patients with a serious illness who face many treatment and end-of-life decisions. We evaluated the Looking Ahead: Choices for Medical Care When You're Seriously Ill® patient decision aid (PtDA), one component of an early palliative care clinical trial. METHOD: Our participants included individuals with advanced cancer and their caregivers who had participated in the ENABLE (Educate, Nurture, Advise, Before Life Ends) early palliative care telehealth randomized controlled trial (RCT) conducted in a National Cancer Institute-designated cancer center, a U...
August 12, 2016: Palliative & Supportive Care
Nnamdi O Ndubuka, Hyun J Lim, Valerie J Ehlers, Dirk M van der Wal
OBJECTIVE: Antiretroviral therapy (ART) affords longevity to patients infected with the human immune deficiency virus (HIV). Since little is known about the health-related quality of life (HRQoL) of persons who have been on ART for at least five years, the present study investigated the HRQoL of these patients in Botswana. METHOD: Medical records, structured interviews, and the World Health Organization Quality of Life-BREF (WHOQoL-HIV-BREF) instrument were employed to obtain information from 456 respondents...
August 12, 2016: Palliative & Supportive Care
Belmira D C P C C Martins, Reinaldo A Oliveira, Antonio J M Cataneo
OBJECTIVE: The purpose of our systematic review was to determine whether the introduction of palliative care (PC) teams reduces length of stay and/or mortality for terminally ill patients (TIPs) in an intensive care unit (ICU). METHOD: We hoped to examine studies that compared TIPs in an ICU who received end-of-life care following implementation of a PC team (intervention group) to those who received care where PC teams had not yet been introduced (control group)...
July 27, 2016: Palliative & Supportive Care
William Breitbart
No abstract text is available yet for this article.
October 2016: Palliative & Supportive Care
Mabel Q H Leow, Sally W C Chan
OBJECTIVE: Our aim was to evaluate caregivers' perceptions of a video, telephone follow-up, and online forum as components of a psychoeducational intervention. METHOD: Qualitative semistructured face-to-face interviews were conducted with 12 participants two weeks post-intervention. The study was conducted from September of 2012 to May of 2015. Family caregivers were recruited from four home hospice organizations (HCA Hospice Care, Metta Hospice, Singapore Cancer Centre, and Agape Methodist Hospice) and the National Cancer Centre outpatient clinic in Singapore...
October 2016: Palliative & Supportive Care
Miguel Julião
No abstract text is available yet for this article.
October 2016: Palliative & Supportive Care
Lina Eriksson, Inger Öster, Margareta Lindberg
OBJECTIVE: The aim of this study was to describe how patients in palliative care relate to occupation during hospitalization and to define the meaning it has for them. METHOD: Eight inpatients in palliative care with various cancer diagnoses were interviewed one time. These interviews were transcribed and analyzed using qualitative content analysis. RESULTS: Patients experience occupations as meaningful when in hospital during the last period of their lives...
October 2016: Palliative & Supportive Care
Miguel Julião, Baltazar Nunes, António Barbosa
BACKGROUND: Demoralization syndrome (DS) within the context of the psychological experience at the end of life is an important and relevant medical issue and remains the subject of a growing area of research. METHOD: Ours was a cross-sectional study designed to assess the prevalence and associated demographic, physical, psychiatric, and psychosocial factors for demoralization syndrome in Portuguese patients with advanced disease. RESULTS: Some 80 terminally ill patients were included in the analyses over a 28-month period of time...
October 2016: Palliative & Supportive Care
Donald W Strauss
No abstract text is available yet for this article.
October 2016: Palliative & Supportive Care
Fernando Espi Forcén, Carlos Espi Forcén
OBJECTIVE: The Ars moriendi was a book written in the early 15th century with the goal of assisting friars in their work of helping the dying. The aim of our study was to review the current literature on the Ars Moriendi concerning the field of medicine, to analyze the psychological mechanisms for coping with death anxiety within Ars Moriendi, and to explore parallels between the strategies used in the medieval book and in contemporary literature about death and dying. METHOD: A review of literature using Pubmed, EMBASE, JSTOR, Project MUSE, and the New York Public Library was undertaken first...
October 2016: Palliative & Supportive Care
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