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Palliative & Supportive Care

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https://www.readbyqxmd.com/read/28095943/sleep-disturbances-in-caregivers-of-patients-with-advanced-cancer-a-systematic-review
#1
Kirstin F Maltby, Christine R Sanderson, Elizabeth A Lobb, Jane L Phillips
OBJECTIVE: Sleep disturbances are a common issue for those who provide informal care to someone with a life-limiting condition. The negative consequences of poor sleep are well documented. The purpose of the present study was to determine the sleep patterns of caregivers of patients with advanced cancer. METHOD: An extensive systematic review of studies reporting empirical sleep data was undertaken in 2015 in accordance with the PRISMA Statement. A total of eight electronic databases were searched, with no date restrictions imposed...
January 18, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28095941/preparation-for-the-end-of-life-and-life-completion-during-late-stage-lung-cancer-an-exploratory-analysis
#2
Gail Adorno, Cara Wallace
OBJECTIVE: Our aim was to explore preparation for the end of life (EoL) and life closure among persons with advanced metastatic lung cancer. Understanding quality of life through the lens of preparation and completion is important since the trajectory of lung cancer can be relatively short, often leading to application of cancer-directed therapies near death without the opportunity for advance planning or palliative care. Clinical research is needed to understand the kinds of distress specific to older adults with advanced lung cancer that are amendable to palliative care interventions...
January 18, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28077196/brief-assessment-of-delirium-subtypes-psychometric-evaluation-of-the-delirium-motor-subtype-scale-dmss-4-in-the-intensive-care-setting
#3
Soenke Boettger, David Garcia Nuñez, Rafael Meyer, Andre Richter, Maria Schubert, David Meagher, Josef Jenewein
OBJECTIVE: The management of and prognosis for delirium are affected by its subtype: hypoactive, hyperactive, mixed, and none. The DMSS-4, an abbreviated version of the Delirium Motor Symptom Scale, is a brief instrument for the assessment of delirium subtypes. However, it has not yet been evaluated in an intensive care setting. METHOD: We performed a prospective/descriptive cohort study in order to determine the internal consistency, reliability, and validity of the relevant items of the DMSS-4 versus the Delirium Rating Scale-Revised-98 (DRS-R-98) and the original DMSS in a surgical intensive care setting...
January 12, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28065203/the-short-demoralization-scale-sds-a-new-tool-to-appraise-demoralization-in-palliative-care-patients
#4
Laura Galiana, David Rudilla, Amparo Oliver, Pilar Barreto
OBJECTIVE: The Demoralization Scale (DS) is the most widely used measure for assessing demoralization. Following the recent clamor for brief assessment tools, and taking into account that demoralization has proved to be a symptom that needs to be controlled and treated in the palliative care setting, a shorter scale is needed. The aim of the present research is to introduce and evaluate the Short Demoralization Scale (SDS). METHOD: We employed a cross-sectional design that included a survey of 226 Spanish palliative care patients from the Hospital General Universitario de Valencia...
January 9, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28065197/aligning-guidelines-and-medical-practice-literature-review-on-pediatric-palliative-care-guidelines
#5
Eva De Clercq, Michael Rost, Nadia Pacurari, Bernice S Elger, Tenzin Wangmo
OBJECTIVE: Palliative care for children is becoming an important subspecialty of healthcare. Although concurrent administration of curative and palliative care is recommended, timely referral to pediatric palliative care (PPC) services remains problematic. This literature review aims to identify barriers and recommendations for proper implementation of palliative care for children through the looking glass of PPC guidelines. METHOD: To identify studies on PPC guidelines, five databases were searched systematically between 1960 and 2015: Scopus, PubMed, PsycINFO, the Web of Science, and CINAHL...
January 9, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28049548/chimeric-antigen-receptor-t-cell-neuropsychiatric-toxicity-in-acute-lymphoblastic-leukemia
#6
Vasthie Prudent, William S Breitbart
Chimeric antigen receptor T cells are used in the treatment of B-cell leukemias. Common chimeric antigen receptor T-cell toxicities can range from mild flu-like symptoms, such as fever and myalgia, to a more striking neuropsychiatric toxicity that can present as discrete neurological symptoms and delirium. We report here two cases of chimeric antigen receptor T-cell neuropsychiatric toxicity, one who presented as a mild delirium and aphasia that resolved without intervention, and one who presented with delirium, seizures, and respiratory insufficiency requiring intensive treatment...
January 4, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28049547/palliative-care-during-the-final-week-of-life-of-older-people-in-nursing-homes-a-register-based-study
#7
Jonas Smedbäck, Joakim Öhlén, Kristofer Årestedt, Anette Alvariza, Carl-Johan Fürst, Cecilia Håkanson
OBJECTIVE: Our aim was to explore the presence of symptoms, symptom relief, and other key aspects of palliative care during the final week of life among older people residing in nursing homes. METHOD: Our study employed data from the Swedish Palliative Care Register on all registered individuals aged 60 and older who had died in nursing homes during the years 2011 and 2012. Variables pertaining to monitoring and treatment of symptoms, end-of-life discussions, circumstances around the death, and the individual characteristics of deceased individuals were explored using descriptive statistics...
January 4, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28049545/portuguese-validation-of-the-prolonged-grief-disorder-questionnaire-predeath-pg-12-psychometric-properties-and-correlates
#8
Alexandra Coelho, Cláudia Silva, António Barbosa
OBJECTIVE: This study aimed to contribute to the validation of the Portuguese version of the Prolonged Grief Disorder Questionnaire-Predeath (PG-12), examining its psychometric properties, including factorial, discriminant, and predictive validity. The prevalence of predeath prolonged grief disorder (PGD) and its psychosocial correlates were also analyzed. METHOD: The PG-12 was assessed in a sample of family caregivers (FCs) of oncological patients in palliative care...
January 4, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28025952/development-and-validation-of-the-palliative-care-knowledge-scale-packs
#9
Elissa Kozlov, Brian D Carpenter, Thomas L Rodebaugh
OBJECTIVE: The purpose of this study was to develop a reliable and valid scale that broadly measures knowledge about palliative care among non-healthcare professionals. METHOD: An initial item pool of 38 true/false questions was developed based on extensive qualitative and quantitative pilot research. The preliminary items were tested with a community sample of 614 adults aged 18-89 years as well as 30 palliative care professionals. The factor structure, reliability, stability, internal consistency, and validity of the 13-item Palliative Care Knowledge Scale (PaCKS) were assessed...
December 27, 2016: Palliative & Supportive Care
https://www.readbyqxmd.com/read/27995822/factors-to-consider-for-motor-neurone-disease-carer-intervention-research-a-narrative-literature-review
#10
Cathy Gluyas, Susan Mathers, Nicole Hennessy Anderson, Anna Ugalde
OBJECTIVE: The experience of caregiving in the context of motor neurone disease (MND) is extremely challenging. Over the past 15 years, quantitative and qualitative studies have delineated the psychosocial aspects of this experience, exploring its impact on caregivers' quality of life, rates of depression, distress, anxiety, and burden. Our paper aimed to provide an overview of the lived experience of MND caregivers, identifying the variables that can influence MND caregiver functioning that are relevant to the development of an intervention...
December 20, 2016: Palliative & Supportive Care
https://www.readbyqxmd.com/read/27995821/modes-of-relating-to-contingency-an-exploration-of-experiences-in-advanced-cancer-patients
#11
Renske Kruizinga, Iris D Hartog, Michael Scherer-Rath, Hans Schilderman, Hanneke Van Laarhoven
OBJECTIVE: Throughout their lives, people are confronted with unexpected life events, which can be difficult to incorporate into their life narratives. Such a confrontation can result in an experience of contingency. Different ways of relating to contingency have been described by Wuchterl: denying, acknowledging, and "encounter with the Other." In the present article, we aim to trace these theoretical distinctions in real-life experiences of patients. METHOD: We analyzed 45 interviews using the constant comparative method with a directed content analysis approach in the Atlas...
December 20, 2016: Palliative & Supportive Care
https://www.readbyqxmd.com/read/27964770/emotional-processing-during-psychotherapy-among-women-newly-diagnosed-with-a-gynecological-cancer
#12
Sharon L Manne, Shannon Myers-Virtue, Katie Darabos, Melissa Ozga, Carolyn Heckman, David Kissane, David Rotter
OBJECTIVE: Our aim was to compare changes in emotional processing by women newly diagnosed with gynecological cancer enrolled in either a coping and communication skills intervention (CCI) or a supportive counseling (SC) intervention. We examined the association between in-session emotional processing and patient-rated therapeutic progress. METHOD: Three therapy sessions with 201 patients were rated for the depth of emotional processing (peak and mode) during emotion episodes (EEs) using the Experiencing Rating Scale (EXP)...
December 14, 2016: Palliative & Supportive Care
https://www.readbyqxmd.com/read/27919306/finding-peace-in-clinical-settings-a-narrative-review-of-concept-and-practice
#13
Philip Austin, Roderick MacLeod
The purpose of this review was to investigate and review the concept of "peace" and the role it plays in the spiritual well-being and care of people with a chronic or terminal illness. Our objectives were, first, to examine the importance of peace in palliative care as a measure of acceptance and in chronic illness settings as a predictor of improved survival. Second, we explored the dimensions of peace and their relationships with spiritual well-being. We further examined how the constructs of peace are assessed both within valid spiritual well-being measures and as individual items related solely to peace...
December 6, 2016: Palliative & Supportive Care
https://www.readbyqxmd.com/read/27917746/insomnia-in-breast-cancer-independent-symptom-or-symptom-cluster
#14
Philip R Gehrman, Sheila N Garland, Lea Ann Matura, Jun Mao
OBJECTIVE: This study examined insomnia in the context of breast cancer, both as an independent symptom and as a component of a symptom cluster that includes depression, anxiety, fatigue, and pain. METHOD: Women with a history of breast cancer currently taking an aromatase inhibitor and who had completed cancer treatment at least one month prior to enrollment were included (n = 413). Participants completed validated measures of insomnia, fatigue, pain, depression, and anxiety...
December 5, 2016: Palliative & Supportive Care
https://www.readbyqxmd.com/read/27894377/effect-of-a-spiritual-care-training-program-for-staff-on-patient-outcomes
#15
Grace Meijuan Yang, Yung Ying Tan, Yin Bun Cheung, Weng Kit Lye, Sock Hui Amy Lim, Wan Ru Ng, Christina Puchalski, Patricia Soek Hui Neo
OBJECTIVE: Physicians and nurses do not assess spirituality routinely, even though spiritual care is a vital part of palliative care for patients with an advanced serious illness. The aim of our study was to determine whether a training program for healthcare professionals on spirituality and the taking of a spiritual history would result in improved patient quality of life (QoL) and spiritual well-being. METHOD: This was a cluster-controlled trial of a spiritual care training program for palliative care doctors and nurses...
November 29, 2016: Palliative & Supportive Care
https://www.readbyqxmd.com/read/27890024/end-of-life-experiences-and-deathbed-phenomena-as-reported-by-brazilian-healthcare-professionals-in-different-healthcare-settings
#16
Claudia Soares Dos Santos, Bianca Sakamoto Ribeiro Paiva, Alessandra Lamas Granero Lucchetti, Carlos Eduardo Paiva, Peter Fenwick, Giancarlo Lucchetti
OBJECTIVE: The objectives of the present study were to describe and compare the characteristics and reports of end-of-life experiences (ELEs) by healthcare professionals at different institutions and to investigate the influence of religious beliefs on these reports. METHOD: A multicenter study was carried out in Brazil that included six nursing homes (NHs), a cancer hospital (ONC), and a palliative care (PC) unit. Sociodemographic data, ELE reports (Fenwick's questionnaire), religiosity (the Duke Religion Index), spirituality (the Spirituality Self-Rating Scale), and mental health (the DASS-21 questionnaire) were assessed...
November 28, 2016: Palliative & Supportive Care
https://www.readbyqxmd.com/read/27890023/progressive-muscle-relaxation-as-a-supportive-intervention-for-cancer-patients-undergoing-chemotherapy-a-systematic-review
#17
Panagiotis Pelekasis, Ifigeneia Matsouka, Anna Koumarianou
BACKGROUND: Many cancer patients use a wide variety of techniques to improve their physical and mental well-being, including relaxation therapy and, specifically, Progressive Muscle Relaxation (PMR). However, there is no strong evidence that supports the efficacy of this technique. OBJECTIVE: Our aim was to review the evidence regarding the use of PMR as a supportive intervention for cancer patients undergoing chemotherapeutic treatment. METHOD: Six databases were electronically searched: AMED, the Cochrane Library, MEDLINE, PsychINFO, Scopus, and the Web of Science...
November 28, 2016: Palliative & Supportive Care
https://www.readbyqxmd.com/read/27819635/enhancing-psychosocial-and-spiritual-palliative-care-four-year-results-of-the-program-of-comprehensive-care-for-people-with-advanced-illnesses-and-their-families-in-spain
#18
Xavier Gómez-Batiste, Dolors Mateo-Ortega, Cristina Lasmarías, Anna Novellas, Jose Espinosa, Elba Beas, Sara Ela, Javier Barbero
OBJECTIVE: We aimed to describe the overall quantitative and qualitative results of a "La Caixa" Foundation and World Health Organization Collaborating Center Program entitled "Comprehensive Care for Patients with Advanced Illnesses and their Families" after four years of experience. METHOD: Qualitative and quantitative methods were employed to assess the program. Quasiexperimental, prospective, multicenter, single-group, and pretest/posttest methods were utilized to assess the quantitative data...
November 7, 2016: Palliative & Supportive Care
https://www.readbyqxmd.com/read/27819209/how-should-realism-and-hope-be-combined-in-physician-patient-communication-at-the-end-of-life-an-online-focus-group-study-among-participants-with-and-without-a-muslim-background
#19
Mariska G Oosterveld-Vlug, Anneke L Francke, H Roeline W Pasman, Bregje D Onwuteaka-Philipsen
OBJECTIVE: Maintaining false hope may result in prolonged curative aggressive treatments until the very last stage of life. In this study, we sought to explore how people think that realistic and hopeful information should best be combined in physician-patient communications at the end of life. METHOD: During a period of 15 days, participants of five online focus groups (OFGs) could log in onto a closed discussion site and offer responses to several topics. A variety of people participated: patients, older people, relatives, and healthcare professionals with and without a Muslim background...
November 7, 2016: Palliative & Supportive Care
https://www.readbyqxmd.com/read/27819204/parental-experiences-with-a-hospital-based-bereavement-program-following-the-loss-of-a-child-to-cancer
#20
Julie Berrett-Abebe, Elyse Levin-Russman, Marie Elena Gioiella, Jeffrey M Adams
OBJECTIVE: The death of a child from cancer is an intense and life-changing loss for a parent. Guided by the principles of patient- and family-centered care, hospital-based caregivers developed a program to provide bereavement support for parents through phone calls and mailings. The aim of the present qualitative phenomenological study was to understand how parents experienced participating in this bereavement program. METHOD: A total of eight parents from six families participated in a focus-group evaluation of the two-year hospital-based bereavement program...
November 7, 2016: Palliative & Supportive Care
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