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Palliative & Supportive Care

Marian Krawczyk, Richard Sawatzky
OBJECTIVES: This study is part of an overarching research initiative on the development and integration of an electronic Quality of Life and Practice Support System (QPSS) that uses patient-reported outcome and experience measures in clinical practice. The current study focused on palliative nurse consultants trialing the QPSS with older hospitalized adults receiving acute care. The primary aim of the study was to better understand consultants' and patients' experiences and perspectives of use...
March 8, 2018: Palliative & Supportive Care
Vanessa Romotzky, Julia Strupp, Alexander Hayn, Jens Ulrich Rüffer, Judith Grümmer, Raymond Voltz
OBJECTIVE: We aimed to elucidate the views on life as narrated by patients in palliative care (PC) to find out what patients deem to be essential in their life, whether something has changed concerning their view of life in light of the disease, and whether interviewees would like to give others something to take with them. METHOD: Data were collected from narrative audio and video interviews with 18 inpatients in a specialized PC unit. Interviews were recorded and transcribed verbatim and analyzed using qualitative content analysis applying MAXQDA software...
March 8, 2018: Palliative & Supportive Care
Hideki Onishi, Mayumi Ishida, Iori Tanahashi, Takao Takahashi, Kenji Ikebuchi, Yoshitada Taji, Hisashi Kato, Tatsuo Akechi
OBJECTIVE: Wernicke's encephalopathy (WE) is a neuropsychiatric disorder caused by a thiamine deficiency. Although WE has been recognized in cancer patients, it can be overlooked because many patients do not exhibit symptoms that are typical of WE, such as delirium, ataxia, or ocular palsy. Furthermore, outpatients with WE who intermittently present at psycho-oncology clinics have not been described as far as we can ascertain. METHOD: This report describes two patients who did not exhibit the complete classic triad of symptoms among a series with cancer and WE, and who attended a psycho-oncology outpatient clinic...
February 26, 2018: Palliative & Supportive Care
Neide P Areia, Gabriela Fonseca, Sofia Major, Ana P Relvas
OBJECTIVE: The issues surrounding a patient's terminal phase of cancer and the imminent death of the individual represent a major family crisis affecting all its members. The goal of this study was to assess the prevalence of psychological morbidity in family caregivers of persons with terminal cancer in terms of psychological distress, depression, anxiety, somatization, and complicated anticipatory grief, and to determine which factors may influence these responses. METHOD: One hundred and twelve family caregivers of individuals with terminal cancer completed an assessment protocol comprising the Brief Symptom Inventory (depression, anxiety, somatization, and a computed score for global distress), the Marwit-Meuser Caregiver Grief Inventory - Short Form (anticipatory grief), the Family Inventory of Needs (importance and satisfaction of needs), and the Systemic Clinical Outcome Routine Evaluation -15 (family functioning)...
February 26, 2018: Palliative & Supportive Care
Paul Rousseau
No abstract text is available yet for this article.
February 19, 2018: Palliative & Supportive Care
Andrea Bovero, Nader Alessandro Sedghi, Rossana Botto, Chiara Tosi, Valentina Ieraci, Riccardo Torta
OBJECTIVE: Hospice is a favored setting for dignity care. Studies on dignity dimension in end-of-life patients are growing. The Patient Dignity Inventory (PDI) is a tool that can lead to interesting information on dignity-related aspects of suffering. The study aimed to investigate dignity among end-of-life cancer patients, by examining the Italian version of the PDI factor structure and assessing the relationship between dignity and other patients' psychosocial and spiritual variables to improve a patient-centered clinical practice...
February 7, 2018: Palliative & Supportive Care
Samuel M Kase, Elisha D Waldman, Andrea S Weintraub
OBJECTIVE: Compassion fatigue (CF) is secondary traumatic distress experienced by providers from contact with patients' suffering. Burnout (BO) is job-related distress resulting from uncontrollable workplace factors that manifest in career dissatisfaction. Compassion satisfaction (CS) is emotional fulfillment derived from caring for others. The literature on BO in healthcare providers is extensive, whereas CF and CS have not been comprehensively studied. Because of ongoing exposure to patient and family distress, pediatric palliative care (PPC) providers may be at particular risk for CF...
February 5, 2018: Palliative & Supportive Care
Jessica de Wit, Carin D Schröder, Julia El Mecky, Anita Beelen, Leonard H van den Berg, Johanna M A Visser-Meily
OBJECTIVE: The aim of this study was to explore the support needs of Dutch informal caregivers of patients with amyotrophic lateral sclerosis (ALS). METHOD: Individual semi-structured interviews were conducted with 21 caregivers of ALS patients. Audio-taped interviews were transcribed and data were analyzed thematically. Result A total of four global support needs emerged: "more personal time", "assistance in applying for resources", "counseling", and "peer contact"...
February 5, 2018: Palliative & Supportive Care
Lori Wiener, Abby R Rosenberg, Wendy G Lichtenthal, Julia Tager, Meaghann S Weaver
OBJECTIVE: The death of a child has been associated with adverse parental outcomes, including a heightened risk for psychological distress, poor physical health, loss of employment income, and diminished psychosocial well-being. Psychosocial standards of care for centers serving pediatric cancer patients recommend maintaining at least one meaningful contact between the healthcare team and bereaved parents to identify families at risk for negative psychosocial sequelae and to provide resources for bereavement support...
February 1, 2018: Palliative & Supportive Care
Christina Mangurian, Wendy Packman, Nicholas S Riano, Julia Kearney
OBJECTIVE: Pediatric bone marrow transplants represent a medically stressful, potentially traumatic experience for children and caregivers, and psychological support for parental caregivers is paramount to their long-term well-being. However, many medical centers do not have protocols in place to sustain caregiver well-being during these distressing experiences. METHOD: We report on a case of a 10-month-old infant with Wiskott Aldrich Syndrome who was hospitalized for bone marrow transplantation...
January 30, 2018: Palliative & Supportive Care
Juyeon Oh, Seong-Il Oh, Jung A Kim
OBJECTIVE: The aim of the study is to develop an amyotrophic lateral sclerosis supportive care needs (ALSSCN) instrument based on Fitch's Supportive Care Needs Framework and to test its psychometric properties. METHOD: This study consists of three parts: (1) item generation from the literature review and qualitative interview; (2) content validation; and (3) psychometric evaluation of the instrument. Participants who were diagnosed with ALS (n = 139) were recruited from two ALS clinics in Seoul, Korea, and Busan, Korea for the psychometric testing...
January 29, 2018: Palliative & Supportive Care
Daniel E Epner
No abstract text is available yet for this article.
January 24, 2018: Palliative & Supportive Care
David C Currow, Miriam J Johnson, Magnus Ekström
No abstract text is available yet for this article.
January 24, 2018: Palliative & Supportive Care
Helena Daudt, Margo d'Archangelo, Dominique Duquette
OBJECTIVE: Spiritual care has formed an integral part of palliative care since its inception. People with advanced illnesses, however, frequently report that their spiritual needs are not attended to by their medical care team. The present study examines and describes the impact of a spiritual care training program on practice and cultural change in our Canadian hospice. METHOD: A qualitative case study approach was adopted to gather feedback from hospice staff and volunteers using purposive sampling...
January 23, 2018: Palliative & Supportive Care
Susanne Lind, J Sandberg, T Brytting, C J Fürst, L Wallin
OBJECTIVE: Although hospitals have been described as inadequate place for end-of-life care, many deaths still occur in hospital settings. Although patient-reported outcome measures have shown positive effects for patients in need of palliative care, little is known about how to implement them. We aimed to explore the feasibility of a pilot version of an implementation strategy for the Integrated Palliative care Outcome Scale (IPOS) in acute care settings. METHOD: A strategy, including information, training, and facilitation to support the use of IPOS, was developed and carried out at three acute care units...
January 21, 2018: Palliative & Supportive Care
Chinatsu Hayashibara, Masatoshi Inagaki, Maiko Fujimori, Yuji Higuchi, Masaki Fujiwara, Seishi Terada, Hitoshi Okamura, Yosuke Uchitomi, Norihito Yamada
OBJECTIVE: Recently, rehabilitation therapists have become involved in cancer rehabilitation; however, no communication skills training that increases the ability to provide emotional support for cancer patients has been developed for rehabilitation therapists. In addition, no study has examined associations between rehabilitation therapists' communication skills and their level of autistic-like traits (ALT), which are in-born characteristics including specific communication styles and difficulty communicating with patients...
January 21, 2018: Palliative & Supportive Care
Pippa Blackburn, Caroline Bulsara
OBJECTIVE: Although the needs of the bereaved have been identified widely in the literature, how these needs translate into meaningful, appropriate, and client-centered programs needs further exploration. The application of receptivity to support is a critical factor in participation by the bereaved in palliative care bereavement programs. Receptivity is a complex multifactorial phenomenon influenced by internal and external factors that ultimately influences engagement in psychosocial support in bereavement...
January 21, 2018: Palliative & Supportive Care
Daniela D'Angelo, Chiara Mastroianni, Marco Artico, Valentina Biagioli, Roberto Latina, Michela Guarda, Michela Piredda, Maria Grazia De Marinis
OBJECTIVE: Patients suffering from advanced disease face different care transitions. The transition from acute to palliative care is challenging and may lead to the discontinuity of care. Family caregivers become important sources of information, as patients begin to experience difficulties in coping with emotional transition events. The Care Transition Measure was developed to evaluate care transitions as experienced by the elderly. It has never been used in palliative care. The aim of this study was to test the validity and reliability of a modified version of the Palliative Care Transition Measure, specifically the Palliative Care Transition Measure for Caregivers (PCTM-C)...
January 21, 2018: Palliative & Supportive Care
Xiangfeng Xu, Tim Luckett, Alex Yueping Wang, Melanie Lovell, Jane L Phillips
OBJECTIVE: More than half of all cancer patients experience unrelieved pain. Culture can significantly affect patients' cancer pain-related beliefs and behaviors. Little is known about cultural impact on Chinese cancer patients' pain management. The objective of this review was to describe pain management experiences of cancer patients from Chinese backgrounds and to identify barriers affecting their pain management. METHOD: A systematic review was conducted adhering to Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines...
January 17, 2018: Palliative & Supportive Care
Alberto García-Salido, R Martino-Alba
No abstract text is available yet for this article.
January 11, 2018: Palliative & Supportive Care
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