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Palliative & Supportive Care

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https://www.readbyqxmd.com/read/28809134/cancer-treatment-experiences-among-survivors-of-childhood-sexual-abuse-a-qualitative-investigation-of-triggers-and-reactions-to-cumulative-trauma
#1
Julie B Schnur, Matthew J Dillon, Rachel E Goldsmith, Guy H Montgomery
OBJECTIVE: Some 25% of women and 8% of men in the United States have experienced childhood sexual abuse (CSA) before the age of 18. For these individuals, healthcare visits and interactions can be retraumatizing due to perceived similarities to past abuse (e.g., pain, undressing, lack of control). However, no prior studies have provided formal qualitative analyses regarding CSA survivors' reactions to cancer treatment. Therefore, our study's objective was to identify key themes pertaining to CSA survivors' cancer treatment experiences...
August 15, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28805170/perspectives-of-patients-close-relatives-nurses-and-physicians-on-end-of-life-medication-management
#2
Marianne K Dees, Eric C T Geijteman, Wim J M Dekkers, Bregje A A Huisman, Roberto S G M Perez, Lia van Zuylen, Agnes van der Heide, Evert van Leeuwen
OBJECTIVE: Our aim was to gain insight into the perspectives of patients, close relatives, nurses, and physicians on medication management for patients with a life expectancy of less than 3 months. METHOD: We conducted an empirical multicenter study with a qualitative approach, including in-depth interviews with patients, relatives, nurses, specialists, and general practitioners (GPs). We used the constant comparative method and ATLAS.ti (v. 7.1) software for our analysis...
August 14, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28789725/demoralization-in-medical-illness-feasibility-and-acceptability-of-a-pilot-educational-intervention-for-inpatient-oncology-nurses
#3
Benjamin W Brewer, Jennifer M Caspari, Jean Youngwerth, Leigh Nathan, Izaskun Ripoll, Alison Heru
OBJECTIVE: Demoralization is a common problem among medical inpatients with such serious health problems as cancer. An awareness of this syndrome, a knowledge of what defines it, and a plan for how to intervene are limited among nursing teams. Nurses are uniquely poised to efficiently provide brief interventions that address demoralization in their patients. To our knowledge, there are no interventions that train nurses to distinguish and treat demoralization in their patients. The objective of the present study was to determine the acceptability, feasibility, and impact of a novel educational intervention for nurses...
August 9, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28789719/meaning-of-life-representation-of-death-and-their-association-with-psychological-distress
#4
Ines Testoni, Giulia Sansonetto, Lucia Ronconi, Maddalena Rodelli, Gloria Baracco, Luigi Grassi
OBJECTIVE: This paper presents a two-phase cross-sectional study aimed at examining the possible mitigating role of perceived meaning of life and representation of death on psychological distress, anxiety, and depression. METHOD: The first phase involved 219 healthy participants, while the second encompassed 30 cancer patients. Each participant completed the Personal Meaning Profile (PMP), the Testoni Death Representation Scale (TDRS), the Hospital Anxiety and Depression Scale (HADS), and the Distress Thermometer (DT)...
August 9, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28780923/assessment-of-cognitive-function-in-patients-with-metastatic-cancer-are-we-using-the-right-tools
#5
Geana Paula Kurita, Marlene Sandvad, Lena Lundorff, Cibele Andrucioli De Mattos-Pimenta, Jette Højsted, Per Sjøgren
OBJECTIVE: This study aimed at analyzing the validity and reliability of the continuous reaction time (CRT) test, the finger-tapping test (FTT), the Digit Span Test (DST), the Trail Making Test - part B (TMTB), and the Mini-Mental State Examination (MMSE) in patients with metastatic cancer. METHOD: Eighty adult patients and 81 healthy controls were assessed between July of 2010 and November of 2015. The neuropsychological tests were analyzed regarding construct/discriminant/criterion validity and reliability...
August 7, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28701245/parental-coping-in-the-context-of-having-a-child-who-is-facing-death-a-theoretical-framework
#6
Anne-Sophie E Darlington, David N Korones, Sally A Norton
OBJECTIVE: While improvements in healthcare have resulted in children with complex and life-threatening conditions living longer, a proportion of them still die. The death of a child puts parents at increased risk for anxiety, depression, and complicated grief. Increasing our understanding of the coping strategies that parents use under such extreme circumstances will enable us to best provide support to families, before and after a child's death. Our aim herein was to develop a theoretical framework of parental coping...
July 13, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28701233/bereavement-support-standards-and-bereavement-care-pathway-for-quality-palliative-care
#7
Peter Hudson, Chris Hall, Alison Boughey, Audrey Roulston
OBJECTIVE: Provision of bereavement support is an essential component of palliative care service delivery. While bereavement support is integral to palliative care, it is typically insufficiently resourced, under-researched, and not systematically applied. Our aim was to develop bereavement standards to assist palliative care services to provide targeted support to family caregivers. METHOD: We employed a multiple-methods design for our study, which included: (1) a literature review, (2) a survey of palliative care service providers in Australia, (3) interviews with national (Australian) and international experts, (4) key stakeholder workshops, and (5) a modified Delphi-type survey...
July 13, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28693652/professional-caregivers-experiences-with-the-liverpool-care-pathway-in-dementia-an-ethnographic-study-in-a-dutch-nursing-home
#8
Natashe Lemos Dekker, Marjolein Gysels, Jenny T van der Steen
OBJECTIVE: There are few studies on how professional caregivers apply the Liverpool Care Pathway (LCP) in nursing home care for people with dementia. Further, despite critiques in the United Kingdom, the LCP continues to be used in the Netherlands, while, to the best of our knowledge, no studies have been conducted since its implementation. The purpose of the present study was to analyze professional caregivers' experiences with the LCP in this context. METHOD: This article draws on an ethnographic study...
July 11, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28693631/palliative-care-education-in-latin-america-a-systematic-review-of-training-programs-for-healthcare-professionals
#9
Cecilia Vindrola-Padros, Rosa Mertnoff, Cristina Lasmarias, Xavier Gómez-Batiste
OBJECTIVE: The integration of palliative care (PC) education into medical and nursing curricula has been identified as an international priority. PC education has undergone significant development in Latin America, but gaps in the integration of PC courses into undergraduate and postgraduate curricula remain. The aim of our review was to systematically examine the delivery of PC education in Latin America in order to explore the content and method of delivery of current PC programs, identify gaps in the availability of education opportunities, and document common barriers encountered in the course of their implementation...
July 11, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28669376/association-between-pancreatic-cancer-patients-perception-of-their-care-coordination-and-patient-reported-and-survival-outcomes
#10
Vanessa L Beesley, Monika Janda, Elizabeth A Burmeister, David Goldstein, Helen Gooden, Neil D Merrett, Dianne L O'Connell, David K Wyld, Raymond J Chan, Jane M Young, Rachel E Neale
OBJECTIVE: People with pancreatic cancer have poor survival, and management is challenging. Pancreatic cancer patients' perceptions of their care coordination and its association with their outcomes have not been well-studied. Our objective was to determine if perception of care coordination is associated with patient-reported outcomes or survival. METHODS: People with pancreatic cancer who were 1-8 months postdiagnosis (52 with completed resection and 58 with no resection) completed a patient-reported questionnaire that assessed their perceptions of care coordination, quality of life, anxiety, and depression using validated instruments...
July 3, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28669369/young-people-s-perspectives-on-open-communication-between-family-members-when-a-parent-is-dying
#11
Nicola Turner
OBJECTIVE: Living with a parent who is approaching the end of life is profoundly troubling for young people. Research indicates that family communication about life-limiting parental illness can influence how young people manage living with dying. In particular, open communication between family members has been shown to be helpful. This paper reports on a study of young people's experiences of family interaction when a parent is dying and considers the practice of open communication in the context of young people's involvement in giving and receiving family care...
July 3, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28669368/attitudes-of-palliative-care-clinical-staff-toward-prolonged-grief-disorder-diagnosis-and-grief-interventions
#12
Esther L Davis, Frank P Deane, Gregory D Barclay, Joan Bourne, Vivienne Connolly
OBJECTIVE: The provision of psychological support to caregivers is an important part of the role of the clinical staff working in palliative care. Staff knowledge and attitudes may determine their openness to referring caregivers to a psychological intervention. We recently developed a self-help intervention for grief and psychological distress among caregivers and were interested in exploring the extent to which staff knowledge and attitudes might affect future implementation. The aims of our study were to: (1) examine the acceptability of self-help psychological intervention for caregivers among palliative care clinical staff; (2) examine potential attitudinal barriers toward prolonged grief disorder (PGD) as a diagnosis and interventions for grief; and (3) bolster staff confidence in skills and knowledge in identifying and managing caregiver psychological distress...
July 3, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28660841/the-care-experiences-of-patients-who-die-in-residential-hospice-a-qualitative-analysis-of-the-last-three-months-of-life-from-the-views-of-bereaved-caregivers
#13
Daryl Bainbridge, Mohanna Giruparajah, Hanyan Zou, Hsien Seow
OBJECTIVE: Despite the increasing prominence of residential hospices as a place of death and that, in many regards, this specialized care represents a gold standard, little is known about the care experience in this setting. Using qualitative survey data, we examined the positive and negative perceptions of care in hospices and in other prior settings. METHOD: Qualitative comments were extracted from the CaregiverVoice survey completed by bereaved caregivers of decedents who had died in 16 residential hospices in Ontario, Canada...
June 29, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28655363/a-scoping-research-literature-review-to-assess-the-state-of-existing-evidence-on-the-bad-death
#14
Donna M Wilson, Jessica A Hewitt
OBJECTIVE: A scoping research literature review on "bad death" was undertaken to assess the overall state of the science on this topic and to determine what evidence exists on how often bad deaths occur, what contributes to or causes a bad death, and what the outcomes and consequences of bad deaths are. METHOD: A search for English-language research articles was conducted in late 2016, with 25 articles identified and all retained for examination, as is expected with scoping reviews...
June 28, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28655361/long-hair
#15
Sarah H Lipscomb
No abstract text is available yet for this article.
June 28, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28641599/association-between-level-of-exposure-to-death-and-dying-and-professional-quality-of-life-among-palliative-care-workers
#16
Tali Samson, Pesach Shvartzman
BACKGROUND: Exposure to the death and dying of others is an anxiety-provoking condition that can contribute to psychological stress. However, the results of empirical studies that evaluated work-related outcomes among physicians and nurses with repeated exposure to dying patients are not consistent. OBJECTIVE: Our aim was to evaluate whether a high level of exposure to death and dying (LED) can increase the risk for poor professional quality of life (ProQoL) in most healthcare workers, but it can also improve ProQoL in a subset of healthcare workers with specific characteristics...
June 23, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28641585/cancer-bereaved-siblings-positive-and-negative-memories-and-experiences-of-illness-and-death-a-nationwide-follow-up
#17
Mary-Elizabeth Bradley Eilertsen, Malin Lövgren, Alexandra Eilegård Wallin, Ulrika Kreicbergs
OBJECTIVE: Our aim was to explore bereaved siblings' positive and negative memories and experiences of their brother's or sister's illness and death. METHOD: In our nationwide Swedish study, 174 of 240 (73%) bereaved siblings participated, and 70% responded to two open-ended statements, which focused on siblings' positive and negative memories and experiences of illness and death. The data were analyzed using systematic text condensation. RESULTS: The bereaved siblings' responses were categorized into four different themes: (1) endurance versus vulnerability, (2) family cohesion versus family conflicts, (3) growth versus stagnation, and (4) professional support versus lack of professional support...
June 23, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28635585/the-meaning-and-experience-of-bereavement-support-a-qualitative-interview-study-of-bereaved-family-caregivers
#18
Emma Kirby, Katherine Kenny, Alex Broom, John MacArtney, Phillip Good
OBJECTIVE: Experiences of bereavement can be stressful and are frequently complicated by emotional, familial, and financial issues. Some-though not all-caregivers may benefit from bereavement support. While considered standard within palliative care services in Australia, bereavement support is not widely utilized by family caregivers. There is little research focused on the forms of bereavement support desired or required by family caregivers, how such care is viewed, and/or how bereavement support is experienced...
June 21, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28635584/the-patient-dignity-inventory-just-another-evaluation-tool-experiences-with-advanced-cancer-patients
#19
María Rullán, María Arantzamendi, Ana Carvajal, Marina Martínez, Amaia Saenz de Ormijana, Carlos Centeno
OBJECTIVE: The Patient Dignity Inventory (PDI) evaluates sources of distress related to the feeling of loss of dignity and was designed for patients at the end of life. The aim of the present work was to generate a better understanding of the experiences of healthcare staff when using the PDI. METHOD: An exploratory qualitative study is presented about the experience of 4 professionals who applied the PDI to 124 advanced-cancer patients. Our study consisted of an analysis of their experiences, taken from information generated in a focus group...
June 21, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28635580/hide-and-sick-self-concealment-shame-and-distress-in-the-setting-of-psycho-oncology
#20
Reut Wertheim, Ilanit Hasson-Ohayon, Michal Mashiach-Eizenberg, Noam Pizem, Einat Shacham-Shmueli, Gil Goldzweig
OBJECTIVE: Both trait and contextual self-concealment, as well as shame- and guilt-proneness, have previously been found to be associated with psychological distress. However, findings regarding the associations between these variables among patients with cancer and among the spouses of patients with cancer are limited. The aim of the current study was therefore to investigate the relationship between shame-proneness and psychological distress (anxiety and depression) by examining the mediating role of both trait and contextual self-concealment among patients with cancer and among the spouses of patients with cancer...
June 21, 2017: Palliative & Supportive Care
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