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Palliative & Supportive Care

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https://www.readbyqxmd.com/read/30223912/psychosocial-services-for-primary-immunodeficiency-disorder-families-during-hematopoietic-cell-transplantation-a-descriptive-study
#1
Christina Mangurian, Christopher Scalchunes, Jennie Yoo, Brent Logan, Tiffany Henderson, Sumathi Iyengar, Heather Smith, Morton J Cowan
OBJECTIVE: Caregivers for patients undergoing hematopoietic cell transplantation (HCT) are susceptible to significant psychosocial distress. This cross-sectional study aimed to describe psychosocial support services offered and used by caregivers of pediatric primary immune deficiency (PID) during HCT at 35 hospitals across North America. METHOD: Caregivers of pediatric patients with PID were recruited by e-mail to participate in an anonymous 140-question survey instrument between April and May 2016 (N = 171)...
September 18, 2018: Palliative & Supportive Care
https://www.readbyqxmd.com/read/30198462/timing-of-palliative-care-access-and-outcomes-of-advanced-cancer-patients-referred-to-an-inpatient-palliative-care-consultation-team-in-brazil
#2
Letícia Taniwaki, Pedro Luiz Serrano Usón Junior, Polianna Mara Rodrigues de Souza, Bernard Lobato Prado
OBJECTIVE: Little is known about the outcomes of cancer patients referred to palliative care (PC) teams in developing countries. Our aim was to examine the timing of PC access and outcomes of patients with advanced cancer referred to an inpatient PC consultation team in Brazil. METHOD: Retrospective study of consecutive patients with advanced cancer admitted to a tertiary care general hospital (April 2015-December 2016) and referred for the first time to an inpatient PC consultation team...
September 10, 2018: Palliative & Supportive Care
https://www.readbyqxmd.com/read/30198451/virtual-reality-as-a-distraction-technique-for-pain-and-anxiety-among-patients-with-breast-cancer-a-randomized-control-trial
#3
Eslam Bani Mohammad, Muayyad Ahmad
OBJECTIVE: The goal of this study was to assess the effectiveness of immersive virtual reality (VR) distraction technology in reducing pain and anxiety among female patients with breast cancer. METHOD: A randomized control trial design was used with a sample of 80 female patients with breast cancer at a specialized cancer center in Jordan. Participants were randomly assigned into intervention and comparison groups.ResultThe study findings showed that one session of the immersive VR plus morphine made a significant reduction in pain and anxiety self-reported scores, compared with morphine alone, in breast cancer patients...
September 10, 2018: Palliative & Supportive Care
https://www.readbyqxmd.com/read/30187842/liminality-as-a-dimension-of-the-experience-of-living-with-terminal-cancer
#4
Carla Willig, Luisa Wirth
OBJECTIVE: This paper is concerned with the phenomenology of death awareness within the context of being diagnosed with terminal cancer. The objective of the research presented here is to provide a deeper insight into terminally ill cancer patients' engagement with their mortality. METHOD: The analysis forms part of a wider project that involved conducting a metasynthesis of 23 phenomenological studies of the experience of living with the awareness of having terminal cancer published between 2011 and 2016...
September 6, 2018: Palliative & Supportive Care
https://www.readbyqxmd.com/read/30187841/training-for-awareness-of-one-s-own-spirituality-a-key-factor-in-overcoming-barriers-to-the-provision-of-spiritual-care-to-advanced-cancer-patients-by-doctors-and-nurses
#5
Gil Bar-Sela, Michael J Schultz, Karima Elshamy, Maryam Rassouli, Eran Ben-Arye, Myrna Doumit, Nahla Gafer, Alaa Albashayreh, Ibtisam Ghrayeb, Ibrahim Turker, Gulcin Ozalp, Sultan Kav, Rasha Fahmi, Sophia Nestoros, Hasanein Ghali, Layth Mula-Hussain, Ilana Shazar, Rana Obeidat, Rehana Punjwani, Mohamad Khleif, Gulbeyaz Can, Gonca Tuncel, Haris Charalambous, Safa Faraj, Neophyta Keoppi, Mazin Al-Jadiry, Sergey Postovsky, Ma'an Al-Omari, Samaher Razzaq, Hani Ayyash, Khaled Khader, Rejin Kebudi, Suha Omran, Osaid Rasheed, Mohammed Qadire, Ahmet Ozet, Michael Silbermann
OBJECTIVE: When patients feel spiritually supported by staff, we find increased use of hospice and reduced use of aggressive treatments at end of life, yet substantial barriers to staff spiritual care provision still exist. We aimed to study these barriers in a new cultural context and analyzed a new subgroup with "unrealized potential" for improved spiritual care provision: those who are positively inclined toward spiritual care yet do not themselves provide it. METHOD: We distributed the Religion and Spirituality in Cancer Care Study via the Middle East Cancer Consortium to physicians and nurses caring for advanced cancer patients...
September 6, 2018: Palliative & Supportive Care
https://www.readbyqxmd.com/read/30168410/evaluation-of-decision-support-tools-for-patients-with-advanced-cancer-a-systematic-review-of-literature
#6
Diane Tapp, Marie-Claude Blais
OBJECTIVE: Medical decisions in the context of advanced cancer are more based on patient values and preferences than during the early stages of the disease. The implementation of shared decision-making is particularly important with an oncology palliative care population. However, few decision support tools focus on this population. This literature review aims to identify decision support tools related to palliative care for an oncological population and to assess their quality using International Patient Decision Aids Standards criteria...
August 31, 2018: Palliative & Supportive Care
https://www.readbyqxmd.com/read/30168403/subclinical-thiamine-deficiency-identified-by-preoperative-evaluation-in-an-ovarian-cancer-patient-diagnosis-and-the-need-for-preoperative-thiamine-measurement
#7
Hideki Onishi, Mayumi Ishida, Nozomu Uchida, Daisuke Shintani, Tadaaki Nishikawa, Kosei Hasegawa, Keiichi Fujiwara, Tatsuo Akechi
OBJECTIVE: Although thiamine deficiency (TD) and Wernicke encephalopathy (WE) are not rare in cancer patients, the cases reported to date developed TD and/or WE after treatment had started. METHOD: From a series of cancer patients, we report a patient diagnosed with TD without the typical clinical symptoms of WE at the preoperative psychiatric examination.ResultA 43-year-old woman with ovarian cancer was referred by her oncologist to the psycho-oncology outpatient clinic for preoperative psychiatric evaluation...
August 31, 2018: Palliative & Supportive Care
https://www.readbyqxmd.com/read/30109833/depressive-anxiety-and-distress-symptoms-among-cancer-patients-who-endorse-appearance-problems
#8
Deepti Chopra, Richard De La Garza
OBJECTIVE: Body image is a vital and complex issue in cancer patients, but not well recognized. In the ambulatory psychiatric-oncology clinic, we assessed what portion of cancer patients endorsed appearance problems and if they differed in terms of depression, anxiety, or distress scores when compared with those who did not endorse appearance problems. METHOD: All adult patients with active cancer diagnosis seen in the outpatient psychiatry oncology clinic (June 2014-January 2016) who provided informed consent were included (N = 1,939) in the cross-sectional study design...
August 15, 2018: Palliative & Supportive Care
https://www.readbyqxmd.com/read/30073944/wernicke-encephalopathy-in-a-lung-cancer-patient-during-treatment-with-nivolumab
#9
Hideki Onishi, Mayumi Ishida, Hiroshi Kagamu, Yoshitake Murayama, Kunihiko Kobayashi, Izumi Sato, Nozomu Uchida, Tatsuo Akechi
OBJECTIVE: Wernicke encephalopathy (WE) is a neuropsychiatric disorder caused by thiamine deficiency. It is recognized in various stages of the cancer trajectory but has not previously been recognized during nivolumab treatment. METHOD: From a series of WE patients with cancer, we report a lung cancer patient who developed WE during treatment with nivolumab.ResultA 78-year-old woman with lung cancer was referred to our psycho-oncology clinic because of depressed mood...
August 3, 2018: Palliative & Supportive Care
https://www.readbyqxmd.com/read/30073940/cross-cultural-validation-of-the-brazilian-version-of-the-spiritual-care-competence-scale
#10
Luciana Winterkorn Dezorzi, Márcia Mocellin Raymundo, José Roberto Goldim, René van Leeuwen
OBJECTIVE: This study describes the cross-cultural validation and psychometric evaluation of the Spiritual Care Competence Scale - Brazilian Portuguese version. This reliable and valid instrument is recommended in the literature to measure the outcomes of the education process in the development of spiritual care competences. METHOD: This is a cross-sectional validation study following the stages proposed by Beaton et al.: translation into Portuguese, back translation into English, expert committee review for semantic equivalence, assessment of the clarity of the pre-final version, and evaluation of the psychometric properties of the final version in Portuguese...
August 3, 2018: Palliative & Supportive Care
https://www.readbyqxmd.com/read/30073939/psychometric-evaluation-and-cultural-adaptation-of-the-spanish-version-of-the-scale-for-end-of-life-caregiving-appraisal
#11
José Manuel Hernández-Padilla, Matías Correa-Casado, José Granero-Molina, Alda Elena Cortés-Rodríguez, Tamara María Matarín-Jiménez, Cayetano Fernández-Sola
OBJECTIVE: To translate, culturally adapt, and psychometrically evaluate the Spanish version of the "Scale for End-of Life Caregiving Appraisal" (SEOLCAS). METHOD: Observational cross-sectional study. Convenience sample of 201 informal end-of-life caregivers recruited in a southern Spanish hospital. The reliability of the questionnaire was assessed through its internal consistency (Cronbach's α) and temporal stability (Pearson's correlation coefficient [r] between test-retest)...
August 3, 2018: Palliative & Supportive Care
https://www.readbyqxmd.com/read/30071913/from-bedside-to-fruit-stand-a-cultural-exploration-at-pallium-india
#12
Vijayvardhan Kamalumpundi
No abstract text is available yet for this article.
August 3, 2018: Palliative & Supportive Care
https://www.readbyqxmd.com/read/30058506/state-of-advance-care-planning-research-a-descriptive-overview-of-systematic-reviews
#13
Geronimo Jimenez, Woan Shin Tan, Amrit K Virk, Chan Kee Low, Josip Car, Andy Hau Yan Ho
OBJECTIVE: To provide an overview of the current state of research of advance care planning (ACP), highlighting most studied topics, publication time, quality of studies and reported outcomes, and to identify gaps to improve ACP receptivity, utilization, implementation, and outcomes. METHOD: Cochrane methodology for conducting overviews of systematic reviews. Study quality was assessed using a modified version of the Assessing the Methodological Quality of Systematic Reviews tool...
July 30, 2018: Palliative & Supportive Care
https://www.readbyqxmd.com/read/30039777/abbreviated-dignity-therapy-for-adults-with-advanced-stage-cancer-and-their-family-caregivers-qualitative-analysis-of-a-pilot-study
#14
Adrienne Beck, Ann H Cottingham, Patrick V Stutz, Rachel Gruber, Jennifer K Bernat, Paul R Helft, Laura Wilhelm, Karen Schmidt, Madison E Stout, Claire Willard, Shelley A Johns
OBJECTIVE: Dignity therapy (DT) is designed to address psychological and existential challenges that terminally ill individuals face. DT guides patients in developing a written legacy project in which they record and share important memories and messages with those they will leave behind. DT has been demonstrated to ease existential concerns for adults with advanced-stage cancer; however, lack of institutional resources limits wide implementation of DT in clinical practice. This study explores qualitative outcomes of an abbreviated, less resource-intensive version of DT among participants with advanced-stage cancer and their legacy project recipients...
July 24, 2018: Palliative & Supportive Care
https://www.readbyqxmd.com/read/30033905/life-lessons
#15
Kim Caldwell
No abstract text is available yet for this article.
July 23, 2018: Palliative & Supportive Care
https://www.readbyqxmd.com/read/29991379/prayer-requests-generous-love-and-a-patient-s-wish-to-die
#16
Aldis H Petriceks
No abstract text is available yet for this article.
July 11, 2018: Palliative & Supportive Care
https://www.readbyqxmd.com/read/29947309/-impossible-patients-in-oncology-two-unusual-cases
#17
Michel Reich, Williams Tessier, Justine Lemaire, Nicolas Penel
OBJECTIVE: Cancer patients can present with impossible behavior, which can jeopardize their treatment and challenge healthcare professionals' teamwork. METHOD: Report of two unusual psychiatric cases, including Munchausen and Peter Pan syndromes, which occurred in a comprehensive cancer center.ResultGuidelines in medical and surgical wards are suggested to address such situations regarding oncologic compliance.Significance of resultsMultidisciplinary collaboration between medical and surgical teams and the psycho-oncologic department is highly recommended...
June 27, 2018: Palliative & Supportive Care
https://www.readbyqxmd.com/read/29941065/pain-related-distress-among-patients-referred-to-a-community-based-palliative-care-program
#18
Alexa Riggs, Brenda Breuer, Vaishali Patel, Joshua Harounian, Jack Chen, Lara Dhingra, Russell K Portenoy, Helena Knotkova
OBJECTIVE: Numerous studies have characterized the pain reported by patients with advanced illness in terms of descriptors such as severity, but few have measured pain-related distress. Distress may be important in the clinical approach to pain. To evaluate pain-related distress among adult patients with advanced illness and pain following enrollment in an urban, specialist-level, community-based palliative care program. METHOD: In a retrospective cross-sectional analysis, data were extracted from the electronic health records of all patients who were able to complete the pain item from the Condensed Memorial Symptom Assessment Scale at the start of care...
June 26, 2018: Palliative & Supportive Care
https://www.readbyqxmd.com/read/29941058/communicating-terminal-prognosis-the-provider-s-role-in-reframing-hope
#19
Jennifer Currin-McCulloch, Megan Lippe, Kristi Acker, Barbara Jones
No abstract text is available yet for this article.
June 26, 2018: Palliative & Supportive Care
https://www.readbyqxmd.com/read/30226127/supporting-the-bereaved-in-greatest-need-we-can-do-better
#20
Wendy G Lichtenthal
No abstract text is available yet for this article.
August 2018: Palliative & Supportive Care
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