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Palliative & Supportive Care

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https://www.readbyqxmd.com/read/29115199/the-father-daughter-relationship-in-the-wake-of-maternal-death-from-breast-cancer
#1
Marie M Cohen, David K Wellisch, Sarah R Ormseth, Valerie G Yarema
OBJECTIVES: This paper examines whether a relationship exists between paternal psychological stability and daughters' symptomatology following the death of a wife/mother from breast cancer. Specifically, is there a relationship between paternal parenting style and the daughters' subsequent capacity to form committed relationships later in life? METHODS: We assessed 68 adult daughters (average age = 23.5 years) since the mother's breast cancer diagnosis by means of a semistructured clinical interview and psychological testing...
November 8, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/29094668/decisional-control-preferences-of-patients-with-advanced-cancer-receiving-palliative-care
#2
Colombe Tricou, Sriram Yennu, Murielle Ruer, Eduardo Bruera, Marilène Filbet
OBJECTIVE: Understanding patients' decisional control preferences (DCPs) is important to improving the quality of care and the satisfaction of patients who have advanced cancer with their care. In addition to passive decisional control (i.e., the patient prefers his/her doctor or family caregiver to make a decision on their behalf) and active decisional control (i.e., the patient decides alone), shared decisional control, where patients and caregivers decide together, could be more appropriate...
November 2, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/29072148/patient-family-eol-communication-and-its-predictors-reports-from-caregivers-of-latino-patients-in-the-rural-u-s-mexico-border-region
#3
Eunjeong Ko, Jaehoon Lee, Carlos Ramirez, Denicka Lopez, Stephanie Martinez
OBJECTIVE: Family caregivers play an important role in end-of-life (EoL) decision making when the patient is unable to make his/her own decisions. While communication about EoL care between patients and family is perhaps a first step toward advance care planning (ACP)/EoL decisions, not every culture puts great value on open communication about this topic. The aims of the present study were to explore EoL communication and the aspects of communication among caregivers of Latino patients in the rural United States (U...
October 26, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/29037271/trajectories-of-caregiver-burden-in-families-of-adult-cystic-fibrosis-patients
#4
Ann Wojtaszczyk, Myra Glajchen, Russell K Portenoy, Maria Berdella, Patricia Walker, Malcolm Barrett, Jack Chen, Amy Plachta, Julie Balzano, Ashley Fresenius, Kenya Wilder, Elinor Langfelder-Schwind, Lara Dhingra
OBJECTIVES: Little is known about the experience of family caregivers of adults with cystic fibrosis (CF). This information is important for the identification of caregivers at risk for burden. METHODS: This was a longitudinal analysis of survey data obtained from caregivers of adult CF patients participating in an early intervention palliative care trial. Caregivers completed the validated Brief Assessment Scale for Caregivers (BASC) repeatedly over a 28-month period...
October 17, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28942747/prevalence-correlates-and-impact-of-depressive-and-anxiety-disorder-in-cancer-findings-from-a-multicenter-study
#5
Eun-Jung Shim, Bong-Jin Hahm, Eun-Seung Yu, Ha Kyoung Kim, Seong Jin Cho, Sung Man Chang, Jong-Chul Yang, Jong-Heun Kim
OBJECTIVE: Our aim was to examine the prevalence, correlates, and association of depressive and anxiety disorders with quality of life (QoL) and such other outcomes as the need for psychosocial services in cancer patients. METHOD: A total of 400 patients participated in a multicenter survey involving five cancer centers located throughout Korea. The Short-Form Health Survey, the MD Anderson Symptom Inventory, the Mini-Mental Adjustment to Cancer (MINI-MAC), and Mini-International Neuropsychiatric Interview were administered...
September 25, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28942746/rapid-autopsy-of-a-patient-with-recurrent-anaplastic-ependymoma
#6
Katharine Rae Lange, Cheryl Fischer, Prajwal Rajappa, Scott Connors, David Pisapia, Jeffrey P Greenfield, Himisha Beltran, Mark Rubin, Juan Miguel Mosquera, Yasmin Khakoo
OBJECTIVE: Our aim was to outline a procedure for obtaining a rapid autopsy in order to collect high-quality postmortem tissue for genomic analysis. METHODS: This report details a bi-institutional collaborative effort to coordinate a rapid autopsy for a pediatric patient who had died at home. We discuss the scientific rationale for offering a rapid autopsy to caregivers of pediatric patients as well as parental perspectives on broaching the subject of autopsy. We then review the logistics and coordination involved with planning a rapid autopsy and the sequence of events needed to maximize tissue quality...
September 25, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28942739/the-predictive-value-of-symptoms-for-anxiety-in-hospice-inpatients-with-advanced-cancer
#7
Danielle Zweers, Everlien de Graaf, Alexander de Graeff, Rebecca K Stellato, Petronella O Witteveen, Saskia C C M Teunissen
OBJECTIVE: Insight into symptoms as predictors for anxiety may help to foster early identification of anxiety and to ameliorate anxiety management. The aim of this study was to determine which frequently occurring symptoms are predictors for anxiety in advanced cancer patients recently admitted to a hospice. METHOD: Symptom burden was measured in patients admitted to a hospice who died ≤3 month after admission using the Utrecht Symptom Diary. This is a Dutch-translated and adapted version of the Edmonton Symptom Assessment System to self-assess the 11 most prevalent symptoms and overall well-being on a 0-10 numerical rating scale...
September 25, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28933313/sleep-wake-difficulties-in-community-dwelling-cancer-patients-receiving-palliative-care-subjective-and-objective-assessment
#8
Marie Solange Bernatchez, Josée Savard, Marie-Hélène Savard, Michèle Aubin, Hans Ivers
OBJECTIVE: Prevalence rates of sleep difficulties in advanced cancer patients have varied widely across studies (12 to 96%), and none of these employed a diagnostic interview to distinguish different types of sleep-wake disorders. Moreover, very limited information is available on subjective and objective sleep parameters in this population. Our study was conducted in palliative cancer patients and aimed to assess rates of sleep-wake disorders and subsyndromal symptoms and to document subjective and objective sleep-wake parameters across various types of sleep-wake difficulties...
September 21, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28931454/the-experience-of-informal-caregivers-of-patients-with-motor-neurone-disease-a-thematic-synthesis
#9
Lucy Holkham, Andy Soundy
OBJECTIVE: Research is required in order to illustrate and detail the experiences of informal caregivers of patients with motor neurone disease (pwMND) to further advance the research base and to inform the development of future support structures and services. Due to the heterogeneous nature of caregiving for pwMND, one way in which this can be achieved is through a qualitative review. A qualitative thematic analysis of existing qualitative studies has not, to the best of the authors' knowledge, been previously undertaken...
September 21, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28931445/the-care-experiences-of-patients-who-die-in-residential-hospice-a-qualitative-analysis-of-the-last-three-months-of-life-from-the-views-of-bereaved-caregivers-erratum
#10
Daryl Bainbridge, Mohanna Giruparajah, Hanyan Zou, Hsien Seow
No abstract text is available yet for this article.
September 21, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28835295/confirmatory-factor-analysis-of-the-beck-depression-inventory-ii-in-patients-with-advanced-cancer-a-theory-driven-approach
#11
Kristen G Tobias, Jonathan Lehrfeld, Barry Rosenfeld, Hayley Pessin, William Breitbart
OBJECTIVE: The diagnosis and treatment of depression are complicated by the presence of a serious medical illness, such as cancer. The role of inflammation in the pathophysiology of depression remains unknown; however, the symptom cluster of sickness behavior is more clearly related to inflammation. Symptom clusters may provide the specificity needed to improve treatment outcomes. The purpose of this study is to use confirmatory factor analysis to examine the construct of sickness behavior in patients with advanced cancer using the Beck Depression Inventory-II (BDI-II)...
August 24, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28829011/-we-never-speak-about-death-healthcare-professionals-views-on-palliative-care-for-inpatients-in-tanzania-a-qualitative-study
#12
E Grace Lewis, Lloyd L Oates, Jane Rogathi, Ashanti Duinmaijer, Aisa Shayo, Simon Megiroo, Barthlomew Bakari, Felicity Dewhurst, Richard W Walker, Matt Dewhurst, Sarah Urasa
OBJECTIVE: Little is known about the current views and practices of healthcare professionals (HCPs) in Sub-Saharan Africa (SSA) regarding delivery of hospital palliative care. The present qualitative study explored the views of nursing staff and medical professionals on providing palliative and end-of-life care (EoLC) to hospital inpatients in Tanzania. METHOD: Focus group discussions were conducted with a purposive sample of HCPs working on the medical and pediatric wards of the Kilimanjaro Christian Medical Centre, a tertiary referral hospital in northern Tanzania...
August 22, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28829002/supporting-wellbeing-in-motor-neurone-disease-for-patients-carers-social-networks-and-health-professionals-a-scoping-review-and-synthesis
#13
Melanie Harris, Geoff Thomas, Mary Thomas, Paul Cafarella, Allegra Stocks, Julia Greig, R Doug McEvoy
OBJECTIVE: Disease management in motor neurone disease (MND) is focused on preserving quality of life. However, the emphasis has so far been on physical symptoms and functioning and not psychosocial wellbeing. MND affects the wellbeing of carers, of family and social network members, and of healthcare providers, as well as of the patients. We therefore aimed to assess and synthesize the knowledge about maximizing MND-related psychosocial wellbeing across all these groups. METHOD: We used a systematic search and selection process to assess the scope of the literature along with a narrative synthesis of recent high-quality reviews...
August 22, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28901283/a-systematic-review-of-religious-beliefs-about-major-end-of-life-issues-in-the-five-major-world-religions
#14
Rajshekhar Chakraborty, Areej R El-Jawahri, Mark R Litzow, Karen L Syrjala, Aric D Parnes, Shahrukh K Hashmi
OBJECTIVE: The objective of this study was to examine the religious/spiritual beliefs of followers of the five major world religions about frequently encountered medical situations at the end of life (EoL). METHOD: This was a systematic review of observational studies on the religious aspects of commonly encountered EoL situations. The databases used for retrieving studies were: Ovid MEDLINE In-Process & Other Non-Indexed Citations, Ovid MEDLINE, Ovid EMBASE, Ovid PsycINFO, Ovid Cochrane Central Register of Controlled Trials, Ovid Cochrane Database of Systematic Reviews, and Scopus...
October 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28829012/existential-guilt-and-the-fear-of-death
#15
William Breitbart
No abstract text is available yet for this article.
October 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28162124/clinical-implications-and-quality-of-evidence-in-metaanalysis-about-effects-of-palliative-care-in-critically-ill-patients-in-the-intensive-care-unit
#16
Alex Wonnaparhown, Amaan Shafi, Xibei Liu, Angela H Villamagna, Michael Lee, Shunichi Nakagawa, Ji Won Yoo
No abstract text is available yet for this article.
October 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28137343/identifying-domains-of-quality-of-life-in-children-with-cancer-undergoing-palliative-care-a-qualitative-study-with-professionals
#17
Josianne Avoine-Blondin, Véronique Parent, Magali Lahaye, Nago Humbert, Michel Duval, Serge Sultan
OBJECTIVE: The goal of pediatric palliative care (PPC) is to maintain the quality of life (QoL) of children whose lives are threatened. However, there are sparse scientific data on the domains of QoL in this particular context, and no measurement strategies are available. The present study aims to describe the domains of QoL in the context of PPC in oncology, according to the perceptions of professional caregivers. METHOD: Semistructured interviews were conducted with a random sample of 20 professional caregivers from the Division of Hematology/Oncology at Le Centre Hospitalier Universitaire Sainte-Justine (Montréal, Canada)...
October 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28112072/physicians-perceptions-of-suffering-in-people-with-dementia-at-the-end-of-life
#18
Jenny T van der Steen, Luc Deliens, Raymond T C M Koopmans, Bregje D Onwuteaka-Philipsen
OBJECTIVE: Our aim was to describe physicians' perceptions of the suffering of their patients who are dying with dementia, many of whom are incompetent with regard to decision making and have difficulty with communicating about the source of their distress and with identifying related factors. METHOD: We analyzed data from the nationally representative observational Dutch End-of-Life in Dementia (DEOLD) cohort study (2007-2011), which involved 34 long-term care facilities...
October 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28110640/effect-of-a-group-intervention-for-children-and-their-parents-who-have-cancer
#19
Mariko Kobayashi, Sue P Heiney, Kaori Osawa, Miwa Ozawa, Eisuke Matsushima
OBJECTIVE: Although support programs for children whose parents have cancer have been described and evaluated, formal research has not been conducted to document outcomes. We adapted a group intervention called CLIMB®, originally developed in the United States, and implemented it in Tokyo, Japan, for school-aged children and their parents with cancer. The purpose of this exploratory pilot study was to examine the feasibility, acceptability, and impact of the Japanese version of the CLIMB® Program on children's stress and parents' quality of life and psychosocial distress...
October 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28077196/brief-assessment-of-delirium-subtypes-psychometric-evaluation-of-the-delirium-motor-subtype-scale-dmss-4-in-the-intensive-care-setting
#20
Soenke Boettger, David Garcia Nuñez, Rafael Meyer, Andre Richter, Maria Schubert, David Meagher, Josef Jenewein
OBJECTIVE: The management of and prognosis for delirium are affected by its subtype: hypoactive, hyperactive, mixed, and none. The DMSS-4, an abbreviated version of the Delirium Motor Symptom Scale, is a brief instrument for the assessment of delirium subtypes. However, it has not yet been evaluated in an intensive care setting. METHOD: We performed a prospective/descriptive cohort study in order to determine the internal consistency, reliability, and validity of the relevant items of the DMSS-4 versus the Delirium Rating Scale-Revised-98 (DRS-R-98) and the original DMSS in a surgical intensive care setting...
October 2017: Palliative & Supportive Care
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