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Journal of Intellectual Disabilities: JOID

J Devapriam, H Fosker, V Chester, S Gangadharan, A Hiremath, R T Alexander
Rehabilitation services for people with mental illnesses have been extensively researched. However, services with similar aims and specifications for patients with intellectual disabilities (IDs) have had little focus. This study describes the characteristics and outcomes of 21 patients admitted to a specialist ID rehabilitation service over an 8-year time frame. Rather that solely accepting 'step-down' referrals, some patients were referred from community settings. During the study, 20 patients were discharged, 80% to lower levels of service restriction, while 14...
January 1, 2018: Journal of Intellectual Disabilities: JOID
Herawati I Nowak, Malin Broberg, Mikaela Starke
A random sample of parents of children with disabilities ( n = 144) from three Swedish municipalities participated in a structured telephone interview including seven questions on child participation and 156 professionals from the same municipalities completed a web-based survey including six questions on child participation. The aim of the study was to explore parents' and professionals' (1) ratings of the opportunities available to children with disabilities to participate in planning, decision-making and evaluation of support and (2) satisfaction with the children's current level of such participation...
January 1, 2018: Journal of Intellectual Disabilities: JOID
Karen Watchman, Matthew P Janicki, Leslie Udell, Mary Hogan, Sam Quinn, Anna Beránková
The International Summit on Intellectual Disability and Dementia covered a range of issues related to dementia and intellectual disability, including the dearth of personal reflections of persons with intellectual disability affected by dementia. This article reflects on this deficiency and explores some of the personal perspectives gleaned from the literature, from the Summit attendees and from the experiences of persons with intellectual disability recorded or scribed in advance of the two-day Summit meeting...
January 1, 2018: Journal of Intellectual Disabilities: JOID
Stian H Thoresen, Angela Fielding, Sue Gillieatt, Barbara Blundell, Liem Nguyen
Lao People's Democratic Republic (PDR) has experienced significant economic growth in the last two decades. While access to education, health, and employment for people with disabilities has also improved markedly, people with intellectual disabilities are still among the most vulnerable in society. This article presents findings from a screening survey of 2469 participants, a focus group discussion with key stakeholders in intellectual disabilities, and a case study of the Association for Autism. The screening survey suggests 1...
September 2017: Journal of Intellectual Disabilities: JOID
Susan Buell, Darren Chadwick
Services available for people with disabilities in Bolivia tend to be fragmented and costly. Children and adults with intellectual disabilities are more likely to have a related communication disability and are thus both literally and metaphorically excluded from having a voice. The following research aimed to explore the experiences of accessing services by people with communication disabilities in Bolivia through semi-structured interviews and one focus group carried out with family members, professionals, service providers, educators and policymakers...
September 2017: Journal of Intellectual Disabilities: JOID
Desh Keerti Menon, M Thomas Kishore, T Sivakumar, Pallab K Maulik, Devvarta Kumar, Ram Lakhan, Ruma Banerjee
The longevity of people with intellectual disabilities is increasing in developing nations. However, developing nations lack a proper system of care for aging persons with intellectual disabilities. Until now the care has been provided by parents and relatives in the home environment in developing countries, but this scenario is also changing; therefore, there is a strong need to explore a plan of care for this population which is also feasible and replicable. The National Trust is an autonomous body of the Government of India which has developed a comprehensive plan of care for adults with intellectual disabilities...
September 2017: Journal of Intellectual Disabilities: JOID
M Thomas Kishore
No abstract text is available yet for this article.
September 2017: Journal of Intellectual Disabilities: JOID
Jayanthi Narayan, Raja Pratapkumar, Sudhakara P Reddy
In resource poor settings innovative and bottom-up approaches are required to provide services to people with with disabilities. In this context, the present paper explains a community-based model of manpower development and coordination of services for people with intellectual disabilities in unified state of Andhra Pradesh in India. Women with disabilities from the village were identified, and those willing to be trained to work as community resource persons (CRPs) were selected and given hands-on training in a phased manner...
September 2017: Journal of Intellectual Disabilities: JOID
Ruth Northway
No abstract text is available yet for this article.
June 2017: Journal of Intellectual Disabilities: JOID
Ruth Northway
No abstract text is available yet for this article.
March 2017: Journal of Intellectual Disabilities: JOID
Suzanne Lg Jansen, Annette Aj van der Putten, Carla Vlaskamp
BACKGROUND: There is little data on the collaboration between parents and professionals in the support of persons with profound intellectual and multiple disabilities. Since communication is essential to collaboration, this study analysed the frequency, means, and personal experiences of communication between parents and professionals. METHOD: A multiple case study ( n = 4) was conducted. Observations were logged for every contact between professionals and parents during 12 months...
March 2017: Journal of Intellectual Disabilities: JOID
Josephine Cleary, Owen Doody
The number of people with intellectual disability living into old age and developing dementia continues to increase. Dementia presents a wide range of challenges for staff due to progressive deterioration. This article presents the findings from a narrative literature review of professional caregivers' experiences of caring for individuals with intellectual disability and dementia. Seven electronic databases were searched using Boolean operators and truncation to identify relevant literature. Search results were combined and narrowed to articles relevant to staff working with individuals with intellectual disability and dementia, and 14 articles met the criteria for review...
March 2017: Journal of Intellectual Disabilities: JOID
Leanne Etheridge, Hannah Senior
The impact on full-time carers of children with intellectual disabilities who exhibit challenging behaviour has been well researched (e.g. Lach et al., 2009; Shah et al., 2010; Wodehouse and McGill, 2009), however, there is to date no published research into the impact of behaviour that challenges on seasonal carers. Five participants who had been employed in summer playschemes for children and young people (up to the age of 18) were interviewed about their experiences of behaviour that challenges. The transcripts were analysed using interpretative phenomenological analysis, which revealed six superordinate themes: the belief in and sanctuary of temporary work, emotional impact, personality and gender, strength through knowledge, communication difficulties and the belief in integration...
March 2017: Journal of Intellectual Disabilities: JOID
Hanne Marie Høybråten Sigstad
BACKGROUND: This study examined how adolescents with mild intellectual disabilities define qualities of friendship and discussed the extent to which these definitions adhere to established definitions of close friendship. MATERIALS AND METHODS: The study was based on qualitative interviews with 11 adolescents in secondary school. The interviews were supplemented with information from six parents. A thematic structural analysis was used to identify themes. RESULTS: Qualities of friendship were categorized as mutual preference, mutual enjoyment, shared interactions, care, mutual trust and bonding...
March 2017: Journal of Intellectual Disabilities: JOID
Munir Dag, Eric Svanelöv, Christine Gustafsson
This article reports on the results of a pilot study exploring whether and how the meal situations of persons with intellectual disabilities (PWIDs) in need of help and support during meal situations were affected by an eating aid. This article also analyzes how PWIDs and their assistants perceived their experiences of using an eating aid during meal situations. Data for the study were collected in interviews with PWIDs and their assistants. The results are presented in five themes: independence in the meal situation, motivation to use the eating aid, functions of the eating aid, social aspects of using the eating aid, and design corresponding to intellectual disability...
March 2017: Journal of Intellectual Disabilities: JOID
Daljit Sandhu, Rose Tomlins
The role and future of assessment and treatment units for people with intellectual disabilities is once again the focus of debate and government policy. Reviewing the admissions to inpatient services can provide useful information about the characteristics, needs and clinical outcomes of clients. Data were collected retrospectively for all 36 referrals accepted to an inpatient assessment and treatment unit for people with intellectual disability, between January 2013 and April 2014. Clinical and demographic characteristics of service users were identified through descriptive analysis...
March 2017: Journal of Intellectual Disabilities: JOID
Grace Ryan, Shelley Brady, Jennifer Holloway, Helena Lydon
The current research evaluates the effectiveness of a behavioral skills training (BST) package used to increase appropriate conversation interactions for six adults with autism spectrum disorder (ASD). Deficits in the area of social skills can become a significant feature for individuals with disabilities and in particular for those with ASD. A multiple probe design across participant dyads was employed to examine the effects of the intervention on conversation interactions. The BST package was delivered in small group instruction and included (i) instructions about having a conversation, (ii) modeling a conversation, (iii) practicing a conversation, and (iv) feedback on performance during each session...
January 1, 2017: Journal of Intellectual Disabilities: JOID
Miyako Kimura, Yoshihiko Yamazaki
To investigate how having a child without a disability is related to maternal mental health and its predictors, we compared mothers of a single child with intellectual disabilities (single-child group, n = 117) and mothers of children with and without intellectual disabilities (multiple-children group, n = 457), in Japan. Compared to the multiple-children group, the single-child group had lower hope and social capital and poorer mental health; furthermore, 42.5% of them had decided not to have another child, despite desiring one...
January 1, 2017: Journal of Intellectual Disabilities: JOID
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