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Journal of Intellectual Disabilities: JOID

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https://www.readbyqxmd.com/read/28173735/evaluation-of-the-essences-in-a-neurodevelopmental-inpatient-service-for-adolescents
#1
Ciara Glennon, Marilyn A Sher
Ward climate is a key element within psychiatric settings, associated with positive clinical outcomes. The Essen Climate Evaluation Schema (EssenCES) is a ward climate measure, which is validated for use within UK forensic settings. It has been studied within neurodevelopmental psychiatric inpatient settings with mixed findings on its appropriateness, and there is a dearth of EssenCES research which has been conducted within an adolescent psychiatric inpatient setting. The present study piloted the EssenCES within an inpatient psychiatric neurodevelopmental setting for adolescents in the East of England, in order to explore its usefulness within this setting and to provide preliminary normative data for a child and adolescent mental health services inpatient learning disability population...
January 1, 2017: Journal of Intellectual Disabilities: JOID
https://www.readbyqxmd.com/read/28125943/a-comparison-of-physical-activity-physical-fitness-levels-bmi-and-blood-pressure-of-adults-with-intellectual-disability-who-do-and-do-not-take-part-in-special-olympics-ireland-programmes
#2
Denise Walsh, Sarahjane Belton, Sarah Meegan, Kirsty Bowers, Deidre Corby, Anthony Staines, Treasa McVeigh, Michael McKeon, Edel Hoey, Dominic Trépel, Peter Griffin, Mary Rose Sweeney
People with an intellectual disability are less physically active, live more sedentary lives, have lower fitness levels and are more likely to be overweight or obese than the general population. No evidence exists on the impact of participation in Special Olympics Ireland (SOI) on physical activity and physical fitness levels. Adults with intellectual disabilities (16-64 years) were recruited from services and SOI clubs. Physical measures included waist circumference, height, weight, blood pressure, heart rate and 6-min walking test...
January 1, 2017: Journal of Intellectual Disabilities: JOID
https://www.readbyqxmd.com/read/28125942/portable-electronic-assistive-technology-to-improve-vocational-task-completion-in-young-adults-with-an-intellectual-disability
#3
James C Collins, Lana Collet-Klingenberg
This article summarizes a review of empirical literature from 2000 to 2015 that involved the use of specific portable technology to support persons with an intellectual disability in completing work-related tasks. Nineteen studies were identified for review, with an emphasis on the identification of (a) the characteristics of participants and settings, (b) the types of portable technology and prompting formats used, (c) the research designs utilized, (d) the independent and dependent variables, (e) the measures of reliability and validity, and (f) the overall effectiveness of the interventions...
January 1, 2017: Journal of Intellectual Disabilities: JOID
https://www.readbyqxmd.com/read/28125941/meeting-the-challenge-of-interpretation
#4
Deirdre Corby, Laurence Taggart, Wendy Cousins
Including the inner perspectives of people who have intellectual disability can pose methodological challenges to qualitative researchers. This article explains how the Listening Guide was applied as an additional step in the analysis during a study which used hermeneutic interviews with people with intellectual disability as the sole method of data collection. An argument is made for the systematic application of the guide with a focus on the use of I-Poems. This article advances qualitative methodological approaches and concludes that this method of drawing attention to the participants' own voices provides a unique basis for interpreting interviews and tasks researchers to examine the use of the Listening Guide...
January 1, 2017: Journal of Intellectual Disabilities: JOID
https://www.readbyqxmd.com/read/28105897/-finding-the-person-you-really-are-%C3%A2-on-the-inside
#5
Neil E Clapton, Jonathan Williams, Gemma M Griffith, Robert Sp Jones
This study utilized a mixed methods approach to examine the feasibility and acceptability of group compassion focused therapy for adults with intellectual disabilities (CFT-ID). Six participants with mild ID participated in six sessions of group CFT, specifically adapted for adults with ID. Session-by-session feasibility and acceptability measures suggested that participants understood the group content and process and experienced group sessions and experiential practices as helpful and enjoyable. Thematic analysis of focus groups identified three themes relating to (1) direct experiences of the group, (2) initial difficulties in being self-compassionate and (3) positive emotional changes...
January 1, 2017: Journal of Intellectual Disabilities: JOID
https://www.readbyqxmd.com/read/28078918/dietary-practices-of-children-and-adolescents-with-down-syndrome
#6
Marina Lummertz Magenis, Alessandra Gonçalves Machado, Angela Martinha Bongiolo, Marco Antonio da Silva, Kamila Castro, Ingrid Dalira Schweigert Perry
The aim of this study was to assess dietary intake, breastfeeding history, weight at birth and current weight in children and adolescents with Down syndrome (DS). Therefore, a cross-sectional, controlled study with 19 DS participants and 19 controls without DS matched by gender and age was performed. Except for vitamin D, a lower or the same frequency of insufficient intake in other micronutrients was noted in participants compared with controls. The DS group had a reduced exclusive breastfeeding duration and increased carbohydrate and caloric intake...
January 1, 2017: Journal of Intellectual Disabilities: JOID
https://www.readbyqxmd.com/read/28162055/laying-the-foundations-for-health
#7
Ruth Northway
No abstract text is available yet for this article.
March 2017: Journal of Intellectual Disabilities: JOID
https://www.readbyqxmd.com/read/27932634/a-narrative-review-of-the-literature-about-people-with-intellectual-disability-who-identify-as-lesbian-gay-bisexual-transgender-intersex-or-questioning
#8
Nathan J Wilson, Jemima Macdonald, Brenda Hayman, Alexandra M Bright, Patsie Frawley, Gisselle Gallego
This narrative review of the research literature presents a summary about the key issues facing people with intellectual disability (ID) who identify as lesbian, gay, bisexual, transgender, intersex or questioning (LGBTIQ). The aim of this review was to consolidate research of the topic; to identify whether any pilot studies reporting social/sexual/educational interventions had been published; and to offer some perspective on the type of future research required to better inform policy, practice and theory that may lead to better outcomes for people with ID who identify as LGBTIQ...
December 8, 2016: Journal of Intellectual Disabilities: JOID
https://www.readbyqxmd.com/read/27899549/rights-and-wrongs
#9
EDITORIAL
Ruth Northway
No abstract text is available yet for this article.
December 2016: Journal of Intellectual Disabilities: JOID
https://www.readbyqxmd.com/read/26800708/a-critical-comparison-of-welfare-states-and-their-relevance-to-people-with-an-intellectual-disability
#10
Linda de Chenu, Dag Dæhlen, Jude Tah
This article compares the welfare services for adults with an intellectual disability in three European countries: England, Norway and Sweden. The purpose of the comparison is to develop an understanding of the welfare state and institutional contexts of the country-specific policies and to develop a critical analysis through a comparative method based on selected secondary literature. Typological frameworks of European welfare states are applied as analytic frameworks to enable comparison between the countries...
December 2016: Journal of Intellectual Disabilities: JOID
https://www.readbyqxmd.com/read/26721875/people-with-intellectual-disability-and-their-families-perspectives-of-special-olympics-ireland-qualitative-findings-from-the-sophie-study
#11
Kirsty Bowers, Deidre Corby, Veronica Lambert, Anthony Staines, Treasa McVeigh, Michael McKeon, Edel Hoey, Sarahjane Belton, Sarah Meegan, Denise Walsh, Dominic Trépel, Peter Griffin, Mary Rose Sweeney
Previous research has highlighted that while involvement in Special Olympics can have benefits for athletes and their families, there can also be many barriers to participation. This qualitative study, which was part of a large mixed-method study, examined the experiences and perspectives of people with intellectual disability, their families and staff who work with them, about Special Olympics Ireland (SOI). A total of 47 participants (15 athletes, 6 non-athletes, 18 family members and 8 staff members) participated in focus group and individual interviews...
December 2016: Journal of Intellectual Disabilities: JOID
https://www.readbyqxmd.com/read/26669608/transcultural-care-and-individuals-with-an-intellectual-disability
#12
Gerard Crotty, Owen Doody
Healthcare delivery today reflects a history of change, which has responded to lifestyle changes, cultural diversity, population needs and expectations. In today's health-care environment it is crucial for health-care professionals to be mindful of cultural factors that affect health. These factors include the intricate interdependent biological, intellectual, psychological, social and spiritual needs of the individuals they work with. However, challenges exists for those who provide healthcare to people with intellectual disability...
December 2016: Journal of Intellectual Disabilities: JOID
https://www.readbyqxmd.com/read/26663808/a-hidden-history-a-survey-of-the-teaching-of-eugenics-in-health-social-care-and-pedagogical-education-and-training-courses-in-europe
#13
H L Atherton, S L Steels
Knowledge and understanding of how eugenics has historically affected the lives of people with intellectual disabilities is vital if professionals are to mount an effective defence against its contemporary influences. An online survey of European providers of health, social care and pedagogical education and training courses was undertaken to find out how the history of eugenics is taught to those wishing to work in services for people with intellectual disabilities. Two hundred and six educational providers were contacted with a response rate of 35...
December 2016: Journal of Intellectual Disabilities: JOID
https://www.readbyqxmd.com/read/26590292/studying-abroad-inclusively-reflections-by-college-students-with-and-without-intellectual-disability
#14
Seb M Prohn, Kelly R Kelley, David L Westling
Postsecondary education programs have increased opportunities for students with and without intellectual disabilities to study abroad as inclusive classes. Using open-coding qualitative techniques, the authors examined an inclusive study abroad group's daily reflective journals during a study abroad trip to London and Dublin. Three shared categories emerged from analysis: personal development, bonding/social inclusion, and learning from English and Irish adults with intellectual disabilities. Each group reported two distinct categories as well...
December 2016: Journal of Intellectual Disabilities: JOID
https://www.readbyqxmd.com/read/26446830/drug-administration-via-enteral-feeding-tube-in-residential-care-facilities-for-individuals-with-intellectual-disability-a-focus-group-study-on-guideline-implementation
#15
Elke Joos, Inge Van Tongelen, Karen Wijnants, Els Mehuys, Jan Van Bocxlaer, Jean Paul Remon, Maria Grypdonck, Myriam Van Winckel, Koen Boussery
People with profound intellectual disabilities often receive medication through enteral feeding tube (EFT). In a previous study, we found that current guidelines concerning medication preparation and administration through EFT are often not followed in residential care facilities (RCFs) for individuals with intellectual disabilities. The present qualitative study aimed to identify barriers and facilitators experienced by RCF staff members to following guidelines on medication administration via EFT, by conducting focus group interviews...
December 2016: Journal of Intellectual Disabilities: JOID
https://www.readbyqxmd.com/read/26358715/becoming-a-mother-supported-decision-making-in-context
#16
Rhiann Jamieson, Kate Theodore, Roman Raczka
Little is known about how women with intellectual disabilities make decisions in relation to pregnancy. Social support is important for mothers with intellectual disabilities in many areas. This study explored how the support network influenced the decision-making of women with intellectual disabilities in relation to pregnancy. The study extended previous research to include the multiple perspectives of mothers, personal and professional support network. A model of decision-making was constructed, with implications of how services approach working with mothers with intellectual disabilities...
December 2016: Journal of Intellectual Disabilities: JOID
https://www.readbyqxmd.com/read/27856825/community-intellectual-disability-nurses-public-health-roles-in-the-united-kingdom-an-exploratory-documentary-analysis
#17
Kay Mafuba, Bob Gates, Maria Cozens
The aim of this study was to explore how public health policy in the United Kingdom was reflected in community intellectual disability nurses' (CIDNs)' job descriptions and person's specifications. The role of CIDNs has evolved due to policy changes. As these roles evolve, job descriptions and person specifications are important in highlighting employer's expectations staff, priorities, and professional values of their employees. This study involved an exploratory documentary analysis of n = 203 CIDNs' job descriptions and person specifications in the context of role theory...
November 17, 2016: Journal of Intellectual Disabilities: JOID
https://www.readbyqxmd.com/read/27777364/changes-in-the-self-rated-well-being-of-people-who-move-from-congregated-settings-to-personalized-arrangements-and-group-home-placements
#18
Roy McConkey, Fiona Keogh, Brendan Bunting, Edurne Garcia Iriarte
A natural experiment contrasted the self-rated well-being of people with intellectual disabilities (n = 75) and those with enduring mental health problems (n = 44) after they moved to new accommodation and support options, while others remained in congregated settings or living in the family home. Most support staff also provided well-being ratings. In personalized arrangements, personal well-being was significantly higher than in congregated settings; particularly for people with intellectual disability who had higher support needs compared to people with mental health problems...
October 24, 2016: Journal of Intellectual Disabilities: JOID
https://www.readbyqxmd.com/read/27756831/identity-constructions-and-transition-to-adulthood-for-young-people-with-mild-intellectual-disabilities
#19
Turid Midjo, Karin Ellingsen Aune
This article explores the self-constructions of young adults with mild intellectual disabilities in talk about their everyday living and how parents and professionals construct young adults with disabilities in talk about their involvement in transition processes. The analysis is related to an interpretive tradition and conducted based on individual interviews with four young adults with mild intellectual disability, five parents of young adults with mild intellectual disabilities and five professionals in the adult service system...
October 18, 2016: Journal of Intellectual Disabilities: JOID
https://www.readbyqxmd.com/read/27645205/education-creates-comfort-and-challenges-stigma-towards-children-with-intellectual-disabilities
#20
Lynn M Breau, Megan Aston, Emily MacLeod
Children with intellectual disabilities (IDs) are frequent users of the healthcare system, yet nurses report they receive little education regarding specialized medical, social and relational needs of this population. Therefore, parents take on a greater burden of care while their child is in hospital than do parents of typically developing children. This article reports findings from a qualitative study that used feminist poststructuralism to examine the hospital experiences of eight children with IDs, 17 mothers and 12 nurses...
September 19, 2016: Journal of Intellectual Disabilities: JOID
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