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Journal of Intellectual Disabilities: JOID

Julie E Sutton, Jaci C Huws, Christopher R Burton
This qualitative study develops a programme theory demonstrating the complexity embedded in sleep hygiene education (SHE) as an intervention to improve sleep problems in children with developmental disabilities. In co-design workshops, eight parents and six sleep practitioners deliberated themes developed from findings of an earlier exploratory study of stakeholder perceptions of SHE. A SHE tool underpinned by programme theory was developed evidenced by mid-range theories of change. Analytical themes were developed to explain the programme theory and the complexities of a successful SHE intervention: the need to legitimize children's sleep problems and consider the nature of customization, knowledge sharing, health expectation and impact of sleep service rationing and gaming strategies on implementation success...
January 17, 2019: Journal of Intellectual Disabilities: JOID
Esma Kabasakal, Hilal Özcebe, Umut Arslan
The aim of this study was to provide current information about the health profile and needs of mainstreamed primary school children with disabilities and special educational needs during their school hours. The Study population is composed of students with special educational needs and disabilities attending mainstream primary schools located in three selected Turkish districts with low, moderate, and high socioeconomic status and literacy rates separately. Parents of 404 students from 72 primary schools constituted the research sample...
January 8, 2019: Journal of Intellectual Disabilities: JOID
Pippa White, Rachel Forrester-Jones
BACKGROUND: Social media is a growing phenomenon, yet people with intellectual disability (ID) may not experience comparable access to this communication technology. Adolescents with ID may benefit from e-inclusion, especially as individuals with ID are at risk of having smaller social networks. MATERIALS AND METHODS: The Social Network Guide was adapted to measure social media usage and used to examine the interpersonal relationships of adolescents with and without ID...
January 7, 2019: Journal of Intellectual Disabilities: JOID
Martin A Elks
A good life is the ultimate goal of a number of theories and approaches to providing supports and services for people with intellectual disability. This article examines four list theories of a good life for people with intellectual disability. Twelve themes of a good life were identified using a basic or conventional content analysis: higher meaning and purpose, respect, rights, social inclusion and belonging, close relationships, contribution, voice and choice, emotional well-being, growth and development, home, materiality, and health...
January 3, 2019: Journal of Intellectual Disabilities: JOID
Samantha Flynn, Richard P Hastings, David Gillespie, Rachel McNamara, Elizabeth Randell
BACKGROUND: The Who's Challenging Who? (WCW) training is coproduced and delivered by people with intellectual disabilities (IDs), and it aims to improve staff empathy for people with challenging behaviour (CB). This study qualitatively describes trainees' and trainers' experiences of the WCW. METHODS: Semi-structured interviews were undertaken with managers ( n = 7), support staff ( n = 6) and the WCW trainers ( n = 4; three had IDs). Interviews were transcribed verbatim and analysed using thematic analysis...
January 3, 2019: Journal of Intellectual Disabilities: JOID
Silvia Stefanelli, Tracy Packiam Alloway
Borderline intellectual functioning is a neurodevelopmental condition characterized by an intelligence quotient (IQ) in the range of 70-85. The present study aimed to investigate the mathematical abilities and the working memory of students with borderline intellectual functioning (BIF). The sample group included 10 year-old students with BIF ( n = 85) and with average non-verbal IQ ( n = 45). The children were assessed in non-verbal intelligence, numerical ability and working memory. Our results showed an impairment of mathematical skills, especially in the operation tasks, and working memory in children with BIF, compared to typically developing peers...
December 28, 2018: Journal of Intellectual Disabilities: JOID
Ruth Northway
No abstract text is available yet for this article.
October 29, 2018: Journal of Intellectual Disabilities: JOID
Deirdre Corby, Laurence Taggart, Wendy Cousins
The transformational role education plays in the lives of people with intellectual disabilities has not been fully examined. The purpose of this study was to explore and investigate the meanings people with intellectual disabilities construct of their experiences in post-secondary and higher education. Heideggerian hermeneutic phenomenology was the qualitative methodology adopted for the study. Individual interviews were conducted with 27 people with intellectual disabilities and analysed in stages. These stages included the creation of I-Poems offering a unique opportunity for individual participant voices to be heard...
October 9, 2018: Journal of Intellectual Disabilities: JOID
Laura E Marshak, Emily E Lasinsky, Courtney Williams
The aim of this qualitative study was to contribute to an understanding of how biological fathers ( N = 311) believe having a child with Down syndrome has impacted them personally. Thematic analysis was used to derive meaning from responses to open-ended survey questions. In addition to describing personal impacts, fathers shared how their perspectives shifted over time and possible contributory factors. The results indicated that fathers were often deeply impacted by the experience of parenting a child with Down syndrome...
September 16, 2018: Journal of Intellectual Disabilities: JOID
Eric Conrad, Adam P Knowlden
Due to the increased prevalence of obesity and disparity experienced by youth with intellectual disabilities, efforts to synthesize existing knowledge of interventions to attenuate obesity within this marginalized population is imperative. The purpose of this investigation is to systematically analyze interventions targeting anthropometric changes in youth with intellectual disabilities. A search of Cumulative Index of Nursing and Allied Health Literature, Educational Resources Information Center, Medical Literature Analysis and Retrieval System Online, and Psychological Information Database was conducted for the time frame of January 2006 to October 2016...
September 5, 2018: Journal of Intellectual Disabilities: JOID
Carlos Peña-Salazar, Francesc Arrufat, Josep Manel Santos, Abel Fontanet, Gretel González-Castro, Silvia Más, Pere Roura-Poch, Juan Valdés-Stauber
BACKGROUND AND PURPOSE: The purpose of this study was to assess the level of mental disorders and challenging behaviour in individuals with intellectual disability (ID) supported by specialized services, but without a prior psychiatric diagnosis, and to compare the levels of different disorders depending on the severity of ID. METHODS: This is a cross-sectional study ( N = 142) of population with ID. Inclusion criteria were the following: adult patients with ID and with no previous psychiatric diagnosis prior to this survey...
September 5, 2018: Journal of Intellectual Disabilities: JOID
Gary Byrne
The impact of sexual abuse among those with an intellectual disability is an area in need of further research. The current article provides an in-depth narrative review of the sexual abuse literature relevant to individuals with an intellectual disability. The 29 articles included in this study focused on (a) the prevalence of sexual abuse, (b) the risk factors associated with this population, and (c) the psychological impact of abuse. The findings confirmed that children and adults with an intellectual disability are at a higher risk of sexual abuse than nondisabled peers...
September 2018: Journal of Intellectual Disabilities: JOID
Jens Ineland, Jan Hjelte
What does it mean to decide, act and behave in a professional manner towards people with intellectual disabilities? This article analyses how professionals from three welfare organizations describe quality in daily encounters with people with intellectual disabilities. Four hundred and twenty-one respondents participated in the study. Our empirical data consisted of written excerpts exclusively. Findings revealed that quality in encounters with people with intellectual disabilities was associated with personal attributes, pertinent knowledge, professional actions and ideological awareness...
September 2018: Journal of Intellectual Disabilities: JOID
Ruth Northway
No abstract text is available yet for this article.
September 2018: Journal of Intellectual Disabilities: JOID
Daphne Rickson, Penny Warren
We investigated a continuing education course in creative music making, initiated to promote the inclusion of young people with intellectual disability in a university setting. Despite organizers' attempts to foster diversity within the student cohort, enrolments were almost exclusively from students who had intellectual disability. Being in the university environment, and in a place of higher learning, seemed to be valued by some. However, students' main focus was on group musicking in a dedicated music room rather than interacting with the wider university community...
September 2018: Journal of Intellectual Disabilities: JOID
Olena Zyga, Sandra W Russ, Heather Meeker, Jodi Kirk
The presence of an intellectual disability may cause a child to have significant deficits in social skills and emotion regulation abilities across development. A vital next step is to find interventions that can be delivered in the school environment and across disability categories that target socioemotional factors. The current study investigated the feasibility of delivering a school-based musical theater program to students with intellectual disability across a range of school settings. A within-group repeated-measures design was used to analyze pre- and post-video recordings of the intervention program, which were coded for six domains of socioemotional ability across all participants ( n = 47)...
September 2018: Journal of Intellectual Disabilities: JOID
Ciara Glennon, Marilyn A Sher
Ward climate is a key element within psychiatric settings, associated with positive clinical outcomes. The Essen Climate Evaluation Schema (EssenCES) is a ward climate measure, which is validated for use within UK forensic settings. It has been studied within neurodevelopmental psychiatric inpatient settings with mixed findings on its appropriateness, and there is a dearth of EssenCES research which has been conducted within an adolescent psychiatric inpatient setting. The present study piloted the EssenCES within an inpatient psychiatric neurodevelopmental setting for adolescents in the East of England, in order to explore its usefulness within this setting and to provide preliminary normative data for a child and adolescent mental health services inpatient learning disability population...
September 2018: Journal of Intellectual Disabilities: JOID
James C Collins, Lana Collet-Klingenberg
This article summarizes a review of empirical literature from 2000 to 2015 that involved the use of specific portable technology to support persons with an intellectual disability in completing work-related tasks. Nineteen studies were identified for review, with an emphasis on the identification of (a) the characteristics of participants and settings, (b) the types of portable technology and prompting formats used, (c) the research designs utilized, (d) the independent and dependent variables, (e) the measures of reliability and validity, and (f) the overall effectiveness of the interventions...
September 2018: Journal of Intellectual Disabilities: JOID
Michele Glacken, Denise Healy, Ursula Gilrane, Siobhan Healy-Mc Gowan, Seamus Dolan, Dympna Walsh-Gallagher, Carmel Jennings
Parents' experiences of using Lámh, a key word signing approach used in Ireland, were captured through in-depth face-to-face interviews with parents of children with a range of intellectual disabilities. It emerged that Lámh provides child users with one of the rudiments of inclusion, that is, a means of engaging with others. A number of factors can potentially influence the engagement achieved, namely ongoing family commitment to the sustainment of Lámh, available communication partners, accessibility, appropriate Lámh training, speech and language therapy support and the existence of a Lámh signing environment external to the home...
August 19, 2018: Journal of Intellectual Disabilities: JOID
Rosemary B Hughes, Susan Robinson-Whelen, Rebecca Goe, Michelle Schwartz, Lisa Cesal, Kimberly B Garner, Katie Arnold, Tina Hunt, Katherine E McDonald
People with intellectual disability experience disproportionately high rates of interpersonal violence (IPV) due, in part, to disability-related risks that often can be minimized through targeted intervention. In this article, we describe using an academic and community participatory research approach to develop and test the feasibility of an accessible IPV prevention program for people with intellectual disability. The Safety Class, which is an interactive, structured, eight-session, weekly face-to-face group program, was found feasible for implementation in an efficacy study...
August 12, 2018: Journal of Intellectual Disabilities: JOID
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