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Journal of Intellectual Disabilities: JOID

Roy McConkey, Fiona Keogh, Brendan Bunting, Edurne Garcia Iriarte
A natural experiment contrasted the self-rated well-being of people with intellectual disabilities (n = 75) and those with enduring mental health problems (n = 44) after they moved to new accommodation and support options, while others remained in congregated settings or living in the family home. Most support staff also provided well-being ratings. In personalized arrangements, personal well-being was significantly higher than in congregated settings; particularly for people with intellectual disability who had higher support needs compared to people with mental health problems...
October 24, 2016: Journal of Intellectual Disabilities: JOID
Turid Midjo, Karin Ellingsen Aune
This article explores the self-constructions of young adults with mild intellectual disabilities in talk about their everyday living and how parents and professionals construct young adults with disabilities in talk about their involvement in transition processes. The analysis is related to an interpretive tradition and conducted based on individual interviews with four young adults with mild intellectual disability, five parents of young adults with mild intellectual disabilities and five professionals in the adult service system...
October 18, 2016: Journal of Intellectual Disabilities: JOID
Lynn M Breau, Megan Aston, Emily MacLeod
Children with intellectual disabilities (IDs) are frequent users of the healthcare system, yet nurses report they receive little education regarding specialized medical, social and relational needs of this population. Therefore, parents take on a greater burden of care while their child is in hospital than do parents of typically developing children. This article reports findings from a qualitative study that used feminist poststructuralism to examine the hospital experiences of eight children with IDs, 17 mothers and 12 nurses...
September 19, 2016: Journal of Intellectual Disabilities: JOID
Andrew Cashin, Thomas Buckley, Julian N Trollor, Nicholas Lennox
Little research has been carried out on the physical health of people with autism spectrum disorder (ASD). From the studies conducted with both children and adults, few studies have moved beyond retrospective record analysis and survey and conducted health assessment. The majority of the studies are from the United States of America with a small number conducted in Europe. A scoping review was conducted to determine what is known of the physical health of adults with ASD and to identify research gaps. In addition to studies of adults, this review includes studies of children to determine possible health trajectories...
September 13, 2016: Journal of Intellectual Disabilities: JOID
Neomi van Duijvenbode, Robert Didden, Joanne El VanDerNagel, Hubert Plm Korzilius, Rutger Cme Engels
We examined cognitive deficits in problematic drinkers with and without mild to borderline intellectual disability (MBID). Problematic drinkers were expected to show a significantly lower estimated performance IQ (PIQ), but not a lower estimated verbal IQ (VIQ), compared to light drinkers. Participants (N = 474) were divided into four groups based on IQ and severity of alcohol use-related problems. IQ was estimated using (a short form of) the Wechsler Adult Intelligence Scale third edition. Severity of alcohol use-related problems was assessed using the Alcohol Use Disorder Identification Test...
August 23, 2016: Journal of Intellectual Disabilities: JOID
Natalie E Boulton, Jonathan Williams, Robert Sp Jones
BACKGROUND: People with intellectual disabilities are entitled to equitable access to psychological support. Traditional therapeutic approaches often rely on a person's ability to verbally articulate a description of their life, which can be particularly difficult for emotionally salient information. METHODS: A systematic literature review was undertaken to determine the evidence base underpinning the use of participant-produced photography within therapeutic settings...
August 8, 2016: Journal of Intellectual Disabilities: JOID
Alex McClimens, Janet Finlayson, Chris Darbyshire
AIM: We aimed to learn about the value of family placements from the perspective of parent-carers who provide them to nurse students via a Scottish university Family Placement Scheme. METHOD: Qualitative interviews were conducted with seven parent-carers who provided a family placement over two academic years. Descriptive data was analysed, organized into themes and subject to content analysis: parents' descriptions of caring; their perceived value of family placements; and their views and experiences of participation in intellectual disability nurse education...
August 4, 2016: Journal of Intellectual Disabilities: JOID
Kathleen Fisher, Thomas L Hardie, Sobhana Ranjan, Justin Peterson
US surveys report higher prevalence of obesity in adults with intellectual disability. Health records of 40 adults with intellectual disability were retrospectively reviewed for data on health status, problem lists with International Classification of Diseases, Ninth Revision codes, medication lists, and health encounters over 18 months. Mean age was 49.5 years, 53% were males. Prevalence of overweight, obese, and morbidly obese was 28%, 58%, and 23%, respectively. Primary diagnosis was intellectual disability (50% mild, 33% moderate, 10% severe, and 8% profound), 85% had mental health disorders (67...
August 1, 2016: Journal of Intellectual Disabilities: JOID
Ruth Northway
No abstract text is available yet for this article.
September 2016: Journal of Intellectual Disabilities: JOID
Valentina Iemmi, Martin Knapp, Freddy Jackson Brown
Decision-makers with limited budgets want to know the economic consequences of their decisions. Is there an economic case for positive behavioural support (PBS)? A small before-after study assessing the impact of PBS on challenging behaviours and positive social and communication skills in children and adolescents with intellectual disabilities and behaviours that challenge was followed by an evaluation of costs. Results were compared with the costs of alternative packages of care currently available in England obtained from a Delphi exercise conducted alongside the study...
September 2016: Journal of Intellectual Disabilities: JOID
Paula Roscoe, Michael Petalas, Richard Hastings, Cathy Thomas
There is a general lack of self-report data from service users with an intellectual disability (ID) about their views of psychological interventions. This research explored the views and experiences of female inpatients, with a diagnosis of a personality disorder and an ID, about dialectical behaviour therapy (DBT). Semi-structured interviews were used with 10 women, recruited from two independent mental health hospitals. The interviews were analysed using interpretative phenomenological analysis. Participants showed varying levels of understanding of DBT...
September 2016: Journal of Intellectual Disabilities: JOID
Emily K Madsen, Janelle A Peck, Maria G Valdovinos
In working with individuals with intellectual and developmental disabilities (IDDs), it is direct care staff who are often required to collect data on individuals' behavior which is used as the basis for implementation of empirically based approaches for intervention and treatment. Due to limited resources, indirect and descriptive measures of challenging behaviors are employed to analyze the function of individuals' behaviors in place of the preferred method of multimodal assessment, which includes experimental functional analysis...
September 2016: Journal of Intellectual Disabilities: JOID
Sarah Ramsden, Anna Tickle, David L Dawson, Samantha Harris
Studies have highlighted successful outcomes of psychological therapies for people with intellectual disabilities. However, processes underlying these outcomes are uncertain. Thematic analysis was used to explore the perceptions of three clinical psychologists, six clients and six carers of barriers and facilitators to therapeutic change for people with intellectual disabilities. Six themes were identified relating to: what the client brings as an individual and with regard to their wider system; therapy factors, including the therapeutic relationship and adaptations; psychologists acting as a 'mental health GP' to coordinate care; systemic dependency; and the concept of the revolving door in intellectual disability services...
September 2016: Journal of Intellectual Disabilities: JOID
Cyrille Bouvet, Aurélie Coulet
This pilot study is a randomized controlled trial on the effects of relaxation on anxiety, self-esteem, and emotional regulation in adults with intellectual disabilities (ID) working in a center of supported employment in France. We studied 30 adults with mild or moderate ID who were split at random into a relaxation group (RG, 15 subjects), who completed 10 sessions of relaxation therapy, and a control group (CG, 15 subjects), who were on a waiting list. The method used is the pretest and posttest. Variables were assessed by the State-Trait Anxiety Inventory form Y scale, the Rosenberg Self-Esteem scale, and the Emotion Regulation Questionnaire...
September 2016: Journal of Intellectual Disabilities: JOID
Anastasia Alevriadou, Kyriaki Pavlidou
Teachers' interpersonal style is a new field of research in the study of students with intellectual disabilities and challenging behaviors in school context. In the present study, we investigate emotions and causal attributions of three basic types of challenging behaviors: aggression, stereotypy, and self-injury, in relation to teachers' interpersonal style. One hundred and seventy seven Greek general and special educator teachers participated in the study by completing a three-scaled questionnaire. Statistical analysis revealed that the type of challenging behaviors affected causal attributions...
September 2016: Journal of Intellectual Disabilities: JOID
Kris Southby
Respite aims to alleviate the stress and burden of caring for someone with an intellectual disability and/or autism. Respite can take place in a number of different ways, but most commonly occurs in a residential setting. Based on survey and interview data with carers (CAs), service users and stakeholders (STs) in a northern city in England, this article explores some of the perceived or actual barriers to availing 'non-residential' respite. A number of barriers to non-residential respite are identified. Residential respite appears to be the default conceptualization of 'respite' for carers, service users and stakeholders...
July 20, 2016: Journal of Intellectual Disabilities: JOID
Edel Hoey, Anthony Staines, Denise Walsh, Deirdre Corby, Kirsty Bowers, Sarahjane Belton, Sarah Meegan, Treasa McVeigh, Michael McKeon, Dominic Trépel, Peter Griffin, Mary Rose Sweeney
The prevalence of obesity appears greater in people with intellectual disabilities than those in the general population. This study aimed to examine the nutritional intake and anthropometric status of individuals with intellectual disabilities. Participants aged 16-64 years were recruited from intellectual disability service provider organizations (n = 131). Data were collected using questionnaires; 4-day food dairies and weight, height and waist circumference measurements. Participants' mean body mass index (BMI) was 29...
July 11, 2016: Journal of Intellectual Disabilities: JOID
Carole Beighton, Jane Wills
Although acknowledging the stress of raising their child with intellectual disabilities, parents also report that their child has brought about many positive changes in themselves and family. This study reports what parents perceive to be a positive aspect of parenting their child, as currently what constitutes a 'positive' is unclear. Seven key themes were identified; an increased sense of personal strength and confidence, changed priorities, greater appreciation of life, pleasure in the child's accomplishments, increased faith/spirituality, more meaningful relationships and the positive effect that the child has on the wider community...
June 26, 2016: Journal of Intellectual Disabilities: JOID
Anugraha Merin Rajan, Romate John
Resilience of parents in the context of raising a child with intellectual disability is gaining attention as a mechanism that addresses their inherent strengths to withstand the potential associated strain. Understanding its underlying factors has applications in fostering their resilience. The present study explored the resilience of parents and its relationship with the impact of child's disability. A total of 121 parents were assessed using Connor Davidson Resilience Scale and National Institute for the Mentally Handicapped Disability Impact Scale...
June 21, 2016: Journal of Intellectual Disabilities: JOID
Aafke Kamstra, Annette Aj van der Putten, Carla Vlaskamp
Most people with profound intellectual and multiple disabilities (PIMD) have limited social contact and it is unclear what is done to maintain or increase these contacts. Individual support planning (ISP) can be used in the systematic enhancement of social contacts. This study analyses the content of ISPs with respect to the social contacts of people with PIMD. ISPs for 60 persons with PIMD in the Netherlands were inductively coded and illustrated with quotations. It turned out that every ISP contained information about social contacts...
June 9, 2016: Journal of Intellectual Disabilities: JOID
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