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Journal of Intellectual Disabilities: JOID

Stian H Thoresen, Angela Fielding, Sue Gillieatt, Barbara Blundell, Liem Nguyen
Lao People's Democratic Republic (PDR) has experienced significant economic growth in the last two decades. While access to education, health, and employment for people with disabilities has also improved markedly, people with intellectual disabilities are still among the most vulnerable in society. This article presents findings from a screening survey of 2469 participants, a focus group discussion with key stakeholders in intellectual disabilities, and a case study of the Association for Autism. The screening survey suggests 1...
September 2017: Journal of Intellectual Disabilities: JOID
Susan Buell, Darren Chadwick
Services available for people with disabilities in Bolivia tend to be fragmented and costly. Children and adults with intellectual disabilities are more likely to have a related communication disability and are thus both literally and metaphorically excluded from having a voice. The following research aimed to explore the experiences of accessing services by people with communication disabilities in Bolivia through semi-structured interviews and one focus group carried out with family members, professionals, service providers, educators and policymakers...
September 2017: Journal of Intellectual Disabilities: JOID
Desh Keerti Menon, M Thomas Kishore, T Sivakumar, Pallab K Maulik, Devvarta Kumar, Ram Lakhan, Ruma Banerjee
The longevity of people with intellectual disabilities is increasing in developing nations. However, developing nations lack a proper system of care for aging persons with intellectual disabilities. Until now the care has been provided by parents and relatives in the home environment in developing countries, but this scenario is also changing; therefore, there is a strong need to explore a plan of care for this population which is also feasible and replicable. The National Trust is an autonomous body of the Government of India which has developed a comprehensive plan of care for adults with intellectual disabilities...
September 2017: Journal of Intellectual Disabilities: JOID
M Thomas Kishore
No abstract text is available yet for this article.
September 2017: Journal of Intellectual Disabilities: JOID
Jayanthi Narayan, Raja Pratapkumar, Sudhakara P Reddy
In resource poor settings innovative and bottom-up approaches are required to provide services to people with with disabilities. In this context, the present paper explains a community-based model of manpower development and coordination of services for people with intellectual disabilities in unified state of Andhra Pradesh in India. Women with disabilities from the village were identified, and those willing to be trained to work as community resource persons (CRPs) were selected and given hands-on training in a phased manner...
September 2017: Journal of Intellectual Disabilities: JOID
Ruth Northway
No abstract text is available yet for this article.
June 2017: Journal of Intellectual Disabilities: JOID
Ruth Northway
No abstract text is available yet for this article.
March 2017: Journal of Intellectual Disabilities: JOID
Suzanne Lg Jansen, Annette Aj van der Putten, Carla Vlaskamp
BACKGROUND: There is little data on the collaboration between parents and professionals in the support of persons with profound intellectual and multiple disabilities. Since communication is essential to collaboration, this study analysed the frequency, means, and personal experiences of communication between parents and professionals. METHOD: A multiple case study ( n = 4) was conducted. Observations were logged for every contact between professionals and parents during 12 months...
March 2017: Journal of Intellectual Disabilities: JOID
Josephine Cleary, Owen Doody
The number of people with intellectual disability living into old age and developing dementia continues to increase. Dementia presents a wide range of challenges for staff due to progressive deterioration. This article presents the findings from a narrative literature review of professional caregivers' experiences of caring for individuals with intellectual disability and dementia. Seven electronic databases were searched using Boolean operators and truncation to identify relevant literature. Search results were combined and narrowed to articles relevant to staff working with individuals with intellectual disability and dementia, and 14 articles met the criteria for review...
March 2017: Journal of Intellectual Disabilities: JOID
Leanne Etheridge, Hannah Senior
The impact on full-time carers of children with intellectual disabilities who exhibit challenging behaviour has been well researched (e.g. Lach et al., 2009; Shah et al., 2010; Wodehouse and McGill, 2009), however, there is to date no published research into the impact of behaviour that challenges on seasonal carers. Five participants who had been employed in summer playschemes for children and young people (up to the age of 18) were interviewed about their experiences of behaviour that challenges. The transcripts were analysed using interpretative phenomenological analysis, which revealed six superordinate themes: the belief in and sanctuary of temporary work, emotional impact, personality and gender, strength through knowledge, communication difficulties and the belief in integration...
March 2017: Journal of Intellectual Disabilities: JOID
Hanne Marie Høybråten Sigstad
BACKGROUND: This study examined how adolescents with mild intellectual disabilities define qualities of friendship and discussed the extent to which these definitions adhere to established definitions of close friendship. MATERIALS AND METHODS: The study was based on qualitative interviews with 11 adolescents in secondary school. The interviews were supplemented with information from six parents. A thematic structural analysis was used to identify themes. RESULTS: Qualities of friendship were categorized as mutual preference, mutual enjoyment, shared interactions, care, mutual trust and bonding...
March 2017: Journal of Intellectual Disabilities: JOID
Munir Dag, Eric Svanelöv, Christine Gustafsson
This article reports on the results of a pilot study exploring whether and how the meal situations of persons with intellectual disabilities (PWIDs) in need of help and support during meal situations were affected by an eating aid. This article also analyzes how PWIDs and their assistants perceived their experiences of using an eating aid during meal situations. Data for the study were collected in interviews with PWIDs and their assistants. The results are presented in five themes: independence in the meal situation, motivation to use the eating aid, functions of the eating aid, social aspects of using the eating aid, and design corresponding to intellectual disability...
March 2017: Journal of Intellectual Disabilities: JOID
Daljit Sandhu, Rose Tomlins
The role and future of assessment and treatment units for people with intellectual disabilities is once again the focus of debate and government policy. Reviewing the admissions to inpatient services can provide useful information about the characteristics, needs and clinical outcomes of clients. Data were collected retrospectively for all 36 referrals accepted to an inpatient assessment and treatment unit for people with intellectual disability, between January 2013 and April 2014. Clinical and demographic characteristics of service users were identified through descriptive analysis...
March 2017: Journal of Intellectual Disabilities: JOID
Elizabeth Barrett
Parent narratives have contributed to ethnographic accounts of the lives of children with autism, but there are fewer examples of parents producing their own autoethnographies. This article explores the affordances of an online blog for enabling a parent of a child with autism to produce a written record of practice which may be considered 'autoethnographic'. Richardson's framework for ethnography as Creative Analytic Process (CAP) is applied to extracts from a blog post in order to consider its contribution, reflexivity, aesthetic merit and impact...
January 1, 2017: Journal of Intellectual Disabilities: JOID
Eric Svanelöv, Per Enarsson, Eva Flygare Wallén, Jonas Stier
This study sought to explore different understandings of participation in daily activity services among people with intellectual disabilities. Using a pedagogical sociocultural perspective, the research focused on individuals' perspectives and understandings as well as their account of social interaction, working and learning. In all, 17 people working in daily activity services were interviewed once, and, of these, 14 were interviewed a second time. Using qualitative content analysis, two themes and three categories were singled out...
January 1, 2017: Journal of Intellectual Disabilities: JOID
Ian Grey, Barry Coughlan, Helena Lydon, Olive Healy, Justin Thomas
Research related to parental satisfaction with early intensive behavioral intervention (EIBI) remains limited. A 35-item questionnaire called the parental satisfaction scale-EIBI (PSS-EIBI) was developed with four subdomains (child outcomes, family outcomes, quality of the model, and relationship with the team). Study 1 assessed levels of satisfaction for 48 parents with their child's EIBI program after approximately 1 year of intervention. Study 2 examined the relationship between parental satisfaction, length of child participation in EIBI, and the relationship between parental satisfaction and actual outcomes for their child as assessed by the Verbal Behavior Milestones Assessment and Placement Program after approximately 2 years...
January 1, 2017: Journal of Intellectual Disabilities: JOID
Joann Kiernan, Duncan Mitchell, Jois Stansfield, Carol Taylor
Children with intellectual disability and behavioural needs (challenging behaviour) are vulnerable to exclusion from services and communities. The situation is exacerbated by difficulties in accessing appropriate support and services to effectively meet the needs of children and carers. Family perspectives on the 'lived experience' of children can provide insight into how behavioural needs can affect their ability to access everyday experiences. Semi-structured interviews were conducted with mothers of children with intellectual disabilities and challenging behaviours...
January 1, 2017: Journal of Intellectual Disabilities: JOID
Sinéad Smyth, Benjamin E Reading, Claire McDowell
BACKGROUND: Research-based evidence points to the efficacy and value of applied behavior analysis (ABA) in meeting the needs of individuals with learning disabilities and autism. Nonetheless, public, government, and professional perception of ABA can be negative. The current study was designed to measure the impact of a short intervention on professionals' attitudes toward, and knowledge of, ABA. METHOD: Teachers and classroom assistants from two separate schools for children with severe learning difficulties completed a self-report survey on knowledge of and attitudes toward ABA...
January 1, 2017: Journal of Intellectual Disabilities: JOID
Caoimhin Mac Giolla Phadraig, Colin Griffiths, Philip McCallion, Mary McCarron, June Nunn
A better understanding of how communication-based behaviour supports are applied with adults with intellectual disabilities may reduce reliance on restrictive practices such as holding, sedation and anaesthesia in dentistry. In this study, we explore how communication is used by dentists who provide treatment for adults with intellectual disabilities. A descriptive qualitative study, adopting synchronous online focus groups, was undertaken with six expert dentists in Ireland. Members were contacted again in pairs or individually for further data collection, analysed using thematic content analysis...
January 1, 2017: Journal of Intellectual Disabilities: JOID
Adelinda Araújo Candeias, Maria Luísa Grácio, Maria José Saragoça, Heldemerina Pires
Upon the publication in Portugal of Decree-Law No. 3/2008, inclusive education for all children in regular schools became compulsory. In a short period of time, the educational community (special education teachers, regular education teachers, administrators, and technicians) were required to include and teach all students in regular schools. This article characterizes Portuguese teachers' perceptions (TPs; N = 105) about the training needs of practitioners working with children and young people with complex and intense support needs (CISNs)...
January 1, 2017: Journal of Intellectual Disabilities: JOID
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