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Health and Quality of Life Outcomes

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https://www.readbyqxmd.com/read/28623928/the-effects-of-beliefs-about-aids-related-death-on-quality-of-life-in-chinese-married-couples-with-both-husband-and-wife-infected-with-hiv-examining-congruence-using-the-actor-partner-interdependence-model
#1
Nancy Xiaonan Yu
BACKGROUND: This cross-sectional study examined the actor and partner effects of beliefs about AIDS-related death on quality of life in Chinese married couples in which both were living with HIV. METHODS: A total of 49 married couples in central China who were both infected with HIV completed measures to assess their beliefs about AIDS-related death and quality of life. RESULTS: In the actor-partner interdependence model, the husband-wife dyad showed congruence in their beliefs about AIDS-related death (r = ...
June 17, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28610625/health-related-quality-of-life-and-health-preference-of-chinese-patients-with-diabetes-mellitus-managed-in-primary-care-and-secondary-care-setting-decrements-associated-with-individual-complication-and-number-of-complications
#2
Fangfang Jiao, Carlos King Ho Wong, Rita Gangwani, Kathryn Choon Beng Tan, Sydney Chi Wai Tang, Cindy Lo Kuen Lam
BACKGROUND: Health-related quality of life (HRQoL) and health preference of patients with diabetes mellitus (DM) are essential in health economic evaluations but data on Chinese population is rare. This study aims to evaluate HRQoL and health preference of diabetic patients with different diabetic complications in Chinese population. METHODS: A cross-sectional study was conducted in 1275 patients with DM, including 518 subjects with various DM-related complications...
June 13, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28606098/determining-the-longitudinal-validity-and-meaningful-differences-in-hrql-of-the-pedsql%C3%A2-sickle-cell-disease-module
#3
Julie A Panepinto, J Paul Scott, Oluwakemi Badaki-Makun, Deepika S Darbari, Corrie E Chumpitazi, Gladstone E Airewele, Angela M Ellison, Kim Smith-Whitley, Prashant Mahajan, Sharada A Sarnaik, T Charles Casper, Larry J Cook, Julie Leonard, Monica L Hulbert, Elizabeth C Powell, Robert I Liem, Robert Hickey, Lakshmanan Krishnamurti, Cheryl A Hillery, David C Brousseau
BACKGROUND: Detecting change in health status over time and ascertaining meaningful changes are critical elements when using health-related quality of life (HRQL) instruments to measure patient-centered outcomes. The PedsQL™ Sickle Cell Disease module, a disease specific HRQL instrument, has previously been shown to be valid and reliable. Our objectives were to determine the longitudinal validity of the PedsQL™ Sickle Cell Disease module and the change in HRQL that is meaningful to patients...
June 12, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28606095/evaluation-of-the-impact-of-once-weekly-dulaglutide-on-patient-reported-outcomes-in-japanese-patients-with-type-2-diabetes-comparisons-with-liraglutide-insulin-glargine-and-placebo-in-two-randomized-studies
#4
Shuichi Suzuki, Tomonori Oura, Masakazu Takeuchi, Kristina S Boye
BACKGROUND: Standardized patient-reported outcome (PRO) questionnaires can be utilized to evaluate treatment satisfaction (subjective evaluation of treatment) in patients with type 2 diabetes (T2D). These outcomes are important because they may affect patient adherence and overall study results. METHODS: PROs were evaluated in two randomized 26-week clinical trials in Japanese patients with T2D taking dulaglutide 0.75 mg (dulaglutide) once weekly; comparators were once-daily liraglutide (0...
June 12, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28601090/physical-health-related-quality-of-life-in-relation-to-metabolic-health-and-obesity-among-men-and-women-in-germany
#5
Julia Truthmann, Gert B M Mensink, Anja Bosy-Westphal, Ulfert Hapke, Christa Scheidt-Nave, Anja Schienkiewitz
BACKGROUND: This study examined sex-specific differences in physical health-related quality of life (HRQoL) across subgroups of metabolic health and obesity. We specifically asked whether (1) obesity is related to lower HRQoL independent of metabolic health status and potential confounders, and (2) whether associations are similar in men and women. METHODS: We used cross-sectional data from the German Health Interview and Examination Survey 2008-11. Physical HRQoL was measured using the Short Form-36 version 2 physical component summary (PCS) score...
June 10, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28595584/the-impact-of-hyperhidrosis-on-patients-daily-life-and-quality-of-life-a-qualitative-investigation
#6
P Kamudoni, B Mueller, J Halford, A Schouveller, B Stacey, M S Salek
BACKGROUND: An understanding of the daily life impacts of hyperhidrosis and how patients deal with them, based on qualitative research, is lacking. This study investigated the impact of hyperhidrosis on the daily life of patients using a mix of qualitative research methods. METHODS: Participants were recruited through hyperhidrosis patient support groups such as the Hyperhidrosis Support Group UK. Data were collected using focus groups, interviews and online surveys...
June 8, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28592310/validation-of-the-spanish-version-of-the-amsterdam-preoperative-anxiety-and-information-scale-apais
#7
Manuel Vergara-Romero, José Miguel Morales-Asencio, Angelines Morales-Fernández, Jose Carlos Canca-Sanchez, Francisco Rivas-Ruiz, Jose Antonio Reinaldo-Lapuerta
BACKGROUND: Preoperative anxiety is a frequent and challenging problem with deleterious effects on the development of surgical procedures and postoperative outcomes. To prevent and treat preoperative anxiety effectively, the level of anxiety of patients needs to be assessed through valid and reliable measuring instruments. One such measurement tool is the Amsterdam Preoperative Anxiety and Information Scale (APAIS), of which a Spanish version has not been validated yet. OBJECTIVE: To perform a Spanish cultural adaptation and empirical validation of the APAIS for assessing preoperative anxiety in the Spanish population...
June 7, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28583165/validity-and-reliability-of-the-sri-lankan-version-of-the-kidney-disease-quality-of-life-questionnaire-kdqol-sf%C3%A2
#8
Sameera Senanayake, Nalika Gunawardena, Paba Palihawadana, Sanjeewa Kularatna, T S G Peiris
BACKGROUND: The disabling symptoms, various food and fluid restrictions, restrictions to social life and stigma and taboos attached to Chronic Kidney Disease (CKD), have shown to pose a significant bearing on a patient's Quality of Life (QOL). In the present study the Kidney Disease QOL-Short Form (KDQOL-SF™) was culturally adapted, modified and translated into Sinhala and validity and reliability were assessed. METHOD: The process to culturally adapt the Kidney Disease Specific Component (KDSC) of KDQOL-SF™ was carried out by the modified Delphi process with a group of experts...
June 5, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28577570/post-traumatic-stress-disorder-in-parturients-delivering-by-caesarean-section-and-the-implication-of-anaesthesia-a-prospective-cohort-study
#9
U Lopez, M Meyer, V Loures, I Iselin-Chaves, M Epiney, C Kern, G Haller
BACKGROUND: Post-traumatic stress disorder (PTSD) occurs in 1-7% of women following childbirth. While having a caesarean section (C-section) is known to be a significant risk factor for postpartum PTSD, it is currently unknown whether coexisting anaesthesia-related factors are also associated to the disorder. The aim of this study was to assess anaesthesia-linked factors in the development of acute postpartum PTSD. METHODS: We performed a prospective cohort study on women having a C-section in a tertiary hospital in Switzerland...
June 2, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28577358/sensitivity-of-alternative-measures-of-functioning-and-wellbeing-for-adults-with-sickle-cell-disease-comparison-of-promis%C3%A2-to-ascq-me%C3%A2
#10
San Keller, Manshu Yang, Marsha J Treadwell, Kathryn L Hassell
BACKGROUND: Sickle Cell Disease (SCD) causes profound suffering and decrements in daily functioning. Demand is growing for valid and reliable measures to systematically document these effects, particularly in adults. The Adult Sickle Cell Quality of Life Measurement System, ASCQ-Me℠, was developed for this purpose. ASCQ-Me℠ is one of four measurement systems housed within the Person-Centered Assessment Resource (PCAR), funded by the National Institutes of Health, to support clinical research...
June 2, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28569162/psychometric-properties-of-the-original-and-short-versions-of-the-falls-efficacy-scale-international-fes-i-in-people-with-parkinson-s-disease
#11
Stina B Jonasson, Maria H Nilsson, Jan Lexell
BACKGROUND: Fear of falling is common in people with Parkinson's disease (PD) and is associated with an increased risk for future falls, activity limitations and a reduced quality of life. The Falls Efficacy Scale-International (FES-I) assesses fear of falling conceptualized as concerns about falling. The original FES-I has good psychometric properties in people with PD, but whether this applies also for the short version of FES-I remains to be shown. The aim of the present study was to evaluate the psychometric properties of the short FES-I and to compare these with the original FES-I in the same sample of people with PD...
May 31, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28558805/development-of-a-12-item-short-version-of-the-hiv-stigma-scale
#12
Maria Reinius, Lena Wettergren, Maria Wiklander, Veronica Svedhem, Anna Mia Ekström, Lars E Eriksson
BACKGROUND: Valid and reliable instruments for the measurement of enacted, anticipated and internalised stigma in people living with HIV are crucial for mapping trends in the prevalence of HIV-related stigma and tracking the effectiveness of stigma-reducing interventions. Although longer instruments exist, e.g., the commonly used 40-item HIV Stigma Scale by Berger et al., a shorter instrument would be preferable to facilitate the inclusion of HIV stigma in more and broader surveys. Therefore, the aim of this work was to develop a substantially shorter, but still valid, version of the HIV Stigma Scale...
May 30, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28558803/cross-cultural-measurement-invariance-in-the-satisfaction-with-food-related-life-scale-in-older-adults-from-two-developing-countries
#13
Berta Schnettler, Edgardo Miranda-Zapata, Germán Lobos, María Lapo, Klaus G Grunert, Cristian Adasme-Berríos, Clementina Hueche
BACKGROUND: Nutrition is one of the major determinants of successful aging. The Satisfaction with Food-related Life (SWFL) scale measures a person's overall assessment regarding their food and eating habits. The SWFL scale has been used in older adult samples across different countries in Europe, Asia and America, however, there are no studies that have evaluated the cross-cultural measurement invariance of the scale in older adult samples. Therefore, we evaluated the measurement invariance of the SWFL scale across older adults from Chile and Ecuador...
May 30, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28558703/-fibromyalgia-and-quality-of-life-mapping-the-revised-fibromyalgia-impact-questionnaire-to-the-preference-based-instruments
#14
Daniel Collado-Mateo, Gang Chen, Miguel A Garcia-Gordillo, Angelo Iezzi, José C Adsuar, Pedro R Olivares, Narcis Gusi
BACKGROUND: The revised version of the Fibromyalgia Impact Questionnaire (FIQR) is one of the most widely used specific questionnaires in FM studies. However, this questionnaire does not allow calculation of QALYs as it is not a preference-based measure. The aim of this study was to develop mapping algorithm which enable FIQR scores to be transformed into utility scores that can be used in the cost utility analyses. METHODS: A cross-sectional survey was conducted...
May 30, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28532496/erratum-to-manifesto-towards-a-clinically-oriented-psychometrics
#15
Andrew J Vickers, Ling Y Chen
No abstract text is available yet for this article.
May 22, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28532468/translation-cultural-adaptation-and-validation-of-the-english-short-form-sf-12v2-into-bengali-in-rheumatoid-arthritis-patients
#16
Nazrul Islam, Ikramul Hasan Khan, Nira Ferdous, Johannes J Rasker
BACKGROUND: To develop a culturally adapted and validated Bengali Short Form SF 12v2 among Rheumatoid arthritis (RA) patients. METHODS: The English SF 12v2 was translated, adapted and back translated into and from Bengali, pre-tested by 60 patients. The Bengali SF 12v2 was administered twice with 14 days interval to 130 Bangladeshi RA patients. The psychometric properties of the Bengali SF 12v2 were assessed. Test-retest reliability was assessed by intra-class correlation coefficient (ICC) and Spearman's rank correlation coefficient and internal consistency by Cronbach's alpha...
May 22, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28532452/psychometric-properties-of-the-paindetect-questionnaire-in-rheumatoid-arthritis-psoriatic-arthritis-and-spondyloarthritis-rasch-analysis-and-test-retest-reliability
#17
Signe Rifbjerg-Madsen, Eva Ejlersen Wæhrens, Bente Danneskiold-Samsøe, Kirstine Amris
BACKGROUND: Pain is inherent in rheumatoid arthritis (RA), psoriatic arthritis (PsA) and spondyloarthritis (SpA) and traditionally considered to be of nociceptive origin. Emerging data suggest a potential role of augmented central pain mechanisms in subsets of patients, thus, valid instruments that can identify underlying pain mechanisms are needed. The painDETECT questionnaire (PDQ) was originally designed to differentiate between pain phenotypes. The objectives were to evaluate the psychometric properties of the PDQ in patients with inflammatory arthritis by applying Rasch analysis and to explore the reliability of pain classification by test-retest...
May 22, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28532413/dietary-habits-oral-impact-on-daily-performance-and-type-2-diabetes-a-matched-case-control-study-from-sudan
#18
Hasaan G Mohamed, Kamal Mustafa, Salah O Ibrahim, Anne N Åstrøm
BACKGROUND: It is evident that social and behavioural factors influence on individuals' general health and quality of life. Nevertheless, information about the influence of dietary habits on oral health-related quality of life is limited; especially among patients with type 2 diabetes (T2D). The aim of this study was to examine the influence of dietary habits and clinical oral health indicators on oral health-related quality of life in individuals with and without T2D. METHODS: A total of 149 T2D cases and 298 controls were recruited for this age and gender matched case-control study...
May 22, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28526055/developing-a-proxy-version-of-the-adult-social-care-outcome-toolkit-ascot
#19
Stacey Rand, James Caiels, Grace Collins, Julien Forder
BACKGROUND: Social care-related quality of life is a key outcome indicator used in the evaluation of social care interventions and policy. It is not, however, always possible to collect quality of life data by self-report even with adaptations for people with cognitive or communication impairments. A new proxy-report version of the Adult Social Care Outcomes Toolkit (ASCOT) measure of social care-related quality of life was developed to address the issues of wider inclusion of people with cognitive or communication difficulties who may otherwise be systematically excluded...
May 19, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28526051/functional-evaluation-for-patients-with-lower-extremity-sarcoma-application-of-the-chinese-version-of-musculoskeletal-tumor-society-scoring-system
#20
Leilei Xu, Xinhua Li, Zhou Wang, Jin Xiong, Shoufeng Wang
BACKGROUND: The Musculoskeletal Tumor Society (MSTS) scoring system is a disease-specific instrument to determine the physical and mental health for patients with extremity sarcoma. This study aims to investigate the reliability and validity of the Chinese version of the MSTS, and to evaluate functional outcomes of the surgical treatment of lower extremity sarcoma using the Chinese MSTS. METHODS: A cohort of 98 patients who had undergone surgery for lower extremity sarcoma were included...
May 19, 2017: Health and Quality of Life Outcomes
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