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Health and Quality of Life Outcomes

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https://www.readbyqxmd.com/read/28526055/developing-a-proxy-version-of-the-adult-social-care-outcome-toolkit-ascot
#1
Stacey Rand, James Caiels, Grace Collins, Julien Forder
BACKGROUND: Social care-related quality of life is a key outcome indicator used in the evaluation of social care interventions and policy. It is not, however, always possible to collect quality of life data by self-report even with adaptations for people with cognitive or communication impairments. A new proxy-report version of the Adult Social Care Outcomes Toolkit (ASCOT) measure of social care-related quality of life was developed to address the issues of wider inclusion of people with cognitive or communication difficulties who may otherwise be systematically excluded...
May 19, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28526051/functional-evaluation-for-patients-with-lower-extremity-sarcoma-application-of-the-chinese-version-of-musculoskeletal-tumor-society-scoring-system
#2
Leilei Xu, Xinhua Li, Zhou Wang, Jin Xiong, Shoufeng Wang
BACKGROUND: The Musculoskeletal Tumor Society (MSTS) scoring system is a disease-specific instrument to determine the physical and mental health for patients with extremity sarcoma. This study aims to investigate the reliability and validity of the Chinese version of the MSTS, and to evaluate functional outcomes of the surgical treatment of lower extremity sarcoma using the Chinese MSTS. METHODS: A cohort of 98 patients who had undergone surgery for lower extremity sarcoma were included...
May 19, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28526049/psychological-status-and-quality-of-life-among-primary-caregivers-of-individuals-with-mental-illness-a-hospital-based-study
#3
Anitha Jeyagurunathan, Vathsala Sagayadevan, Edimansyah Abdin, YunJue Zhang, Sherilyn Chang, Saleha Shafie, Restria Fauziana Abdul Rahman, Janhavi Ajit Vaingankar, Siow Ann Chong, Mythily Subramaniam
BACKGROUND: This study aimed to explore the psychological status and quality of life among primary caregivers of individuals suffering from various mental illnesses including early psychosis, chronic schizophrenia, depressive disorders, anxiety disorders and dementia. METHODS: A total of 350 primary caregivers with relatives seeking treatment at a tertiary psychiatric hospital were recruited for this study. Socio-demographic data was obtained and the brief version of the World Health Organisation Quality of Life instrument was used to assess caregiver's quality of life (QOL)...
May 19, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28521836/are-preferences-over-health-states-informed
#4
M Karimi, J Brazier, S Paisley
BACKGROUND: The use of preference-elicitation tasks for valuing health states is well established, but little is known about whether these preferences are informed. Preferences may not be informed because individuals with little experience of ill health are asked to value health states. The use of uninformed preferences in cost-effectiveness can result in sub-optimal resource allocation. The aim of this study was to pilot a novel method to assess whether members of the public are informed about health states they value in preference-elicitation tasks...
May 18, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28506319/validation-of-the-italian-version-of-the-laval-questionnaire-health-related-quality-of-life-in-subjects-with-obesity
#5
Lorenzo Maria Donini, Aldo Rosano, Luca Di Lazzaro, Eleonora Poggiogalle, Carla Lubrano, Silvia Migliaccio, Mariagrazia Carbonelli, Alessandro Pinto, Andrea Lenzi
BACKGROUND: Obesity is associated to increased risk of metabolic comorbidity as well as increased mortality. Notably, obesity is also associated to the impairment of the psychological status and of quality of life. Only three questionnaires are available in the Italian language evaluating the health-related quality of life in subjects with obesity. The aim of the present study was to test the validity and reliability of the Italian version of the Laval Questionnaire. METHODS: The original French version was translated into Italian and back-translated by a French native speaker...
May 15, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28506313/latent-variable-mixture-models-to-test-for-differential-item-functioning-a-population-based-analysis
#6
Xiuyun Wu, Richard Sawatzky, Wilma Hopman, Nancy Mayo, Tolulope T Sajobi, Juxin Liu, Jerilynn Prior, Alexandra Papaioannou, Robert G Josse, Tanveer Towheed, K Shawn Davison, Lisa M Lix
BACKGROUND: Comparisons of population health status using self-report measures such as the SF-36 rest on the assumption that the measured items have a common interpretation across sub-groups. However, self-report measures may be sensitive to differential item functioning (DIF), which occurs when sub-groups with the same underlying health status have a different probability of item response. This study tested for DIF on the SF-36 physical functioning (PF) and mental health (MH) sub-scales in population-based data using latent variable mixture models (LVMMs)...
May 15, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28506306/predictors-of-physical-and-mental-health-in-persons-with-morbid-obesity-attending-a-patient-education-course-a-two-year-follow-up-study
#7
Anners Lerdal, Caryl L Gay, Tore Bonsaksen, May Solveig Fagermoen
BACKGROUND: People with morbid obesity (body mass index ≥40) may experience changes in their health after participating in a tailored patient education course. The aims of this study were to assess the changes in physical and mental health in persons with morbid obesity during the 2 years following an educational course and to explore possible socio-demographic, treatment, and personal predictors of physical and mental health outcomes. METHODS: In this prospective longitudinal cohort study, self-report questionnaire data were collected from people with morbid obesity at the beginning of mandatory educational courses while on a waiting list for gastric surgery and at two-year follow-up...
May 15, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28506305/effect-of-chemotherapy-counseling-by-pharmacists-on-quality-of-life-and-psychological-outcomes-of-oncology-patients-in-malaysia-a-randomized-control-trial
#8
Ummavathy Periasamy, Sherina Mohd Sidik, Lekhraj Rampal, Siti Irma Fadhilah, Mehrnoosh Akhtari-Zavare, Rozi Mahmud
BACKGROUND: Cancer is now becoming a leading cause of death. Chemotherapy is an important treatment for cancer patients. These patients also need consultation during their treatment to improve quality of life and decrease psychological disorders. The objectives of the study were to develop, implement and evaluate the effectiveness of a chemotherapy counseling module by pharmacists among oncology patients on their quality of life and psychological outcomes in Malaysia. METHOD: A single-blind randomized controlled trial was carried out among 162 oncology patients undergoing chemotherapy from July 2013 to February 2014 in a government hospital with oncology facilities in Malaysia...
May 15, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28494773/domains-of-quality-of-life-freely-expressed-by-cancer-patients-and-their-caregivers-contribution-of-the-seiqol
#9
Zeinab Hamidou, Karine Baumstarck, Olivier Chinot, Fabrice Barlesi, Sébastien Salas, Tanguy Leroy, Pascal Auquier
BACKGROUND: The purposes of this study, performed on a large sample of cancer patient-caregiver dyads, were: i) to simultaneously investigate, using an individualized quality of life (QoL) measure (Schedule for the Evaluation of Individual QoL, SEIQoL), the QoL domains freely expressed by cancer patients and their caregivers, and ii) to explore overlapping between the SEIQoL assessment and QoL assessment using traditional instruments. METHODS: The study employed a cross-sectional design including cancer patients who were going to receive chemotherapy treatment and their caregivers...
May 12, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28490338/international-evaluation-of-the-psychometrics-of-health-related-quality-of-life-questionnaires-for-use-among-long-term-survivors-of-testicular-and-prostate-cancer
#10
Marieke van Leeuwen, Jacobien M Kieffer, Fabio Efficace, Sophie D Fosså, Michel Bolla, Laurence Collette, Marc Colombel, Ugo De Giorgi, Bernhard Holzner, Lonneke V van de Poll-Franse, Hendrik van Poppel, Jeff White, Ronald de Wit, Susanne Osanto, Neil K Aaronson
BACKGROUND: Understanding of the physical, functional and psychosocial health problems and needs of cancer survivors requires cross-national and cross-cultural standardization of health-related quality of life (HRQoL) questionnaires that capture the full range of issues relevant to cancer survivors. To our knowledge, only one study has investigated in a comprehensive way whether a questionnaire used to evaluate HRQoL in cancer patients under active treatment is also reliable and valid when used among (long-term) cancer survivors...
May 11, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28490332/feasibility-of-the-participation-and-activity-inventory-for-children-and-youth-pai-cy-and-young-adults-pai-ya-with-a-visual-impairment-a-pilot-study
#11
Ellen Bernadette Maria Elsman, Ruth Marie Antoinette van Nispen, Gerardus Hermanus Maria Bartholomeus van Rens
BACKGROUND: Having a visual impairment affects quality of life, daily functioning and participation. To assess rehabilitation needs of visually impaired children and young adults, the Participation and Activity Inventory for Children and Youth (PAI-CY) and Young Adults (PAI-YA) were developed. The PAI-CY comprises four questionnaires for different age categories: 0-2 years, 3-6 years, 7-12 years and 13-17 years. This pilot study assesses the feasibility and acceptability of the PAI-CY and PAI-YA, and the relevance of the content of the questionnaires...
May 11, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28486990/an-assessment-of-quality-of-life-for-early-phase-after-adjuvant-radiotherapy-in-breast-cancer-survivors-a-korean-multicenter-survey-krog-14-09
#12
Chai Hong Rim, Sung-Ja Ahn, Jin Hee Kim, Won Sup Yoon, Mison Chun, Dae Sik Yang, Jong-Hoon Lee, Kyubo Kim, Moonkyoo Kong, Suzy Kim, Juree Kim, Kyung Ran Park, Young-Joo Shin, Sun Young Ma, Bae-Kwon Jeong, Su Ssan Kim, Yong Bae Kim, Dong Soo Lee, Jaehyung Cha
BACKGROUNDS: Quality of life (QoL) has become a major concern as the survival time of breast cancer increases. We investigated the changes in QoL through comprehensive categorical analysis, for the first three years after breast cancer treatment including radiotherapy. METHODS: A total of 1156 patients were enrolled from 17 institutions. All survivors were grouped according to a surveillance period of 9-15 months (first year), 21-27 months (second year), and 33-39 months (third year) from the end of radiotherapy...
May 10, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28482849/quality-of-life-of-depressed-and-suicidal-patients-seeking-services-from-traditional-and-faith-healers-in-rural-kenya
#13
Christine W Musyimi, Victoria N Mutiso, Sameera S Nayak, David M Ndetei, David C Henderson, Joske Bunders
BACKGROUND: In rural Kenya, traditional and faith healers provide an alternative pathway to health care, including mental health care. However, not much is known about the characteristics of the populations they serve. The purpose of this study was to determine the relationship between depression, suicidal ideation, and socio-demographic variables with Quality of Life (QoL) indicators in a sample seeking mental health services from traditional and faith healers in rural Kenya. Understanding QoL in this sample can help develop mental health policy and training to improve the well-being of this population...
May 8, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28476163/tinnitus-functional-index-validation-of-the-german-version-for-switzerland
#14
Nicole Peter, Tobias Kleinjung, Raphael Jeker, Martin Meyer, Richard Klaghofer, Steffi Weidt
BACKGROUND: Different standardized questionnaires are used to assess tinnitus severity, making comparisons across studies difficult. These questionnaires are also used to measure treatment-related changes in tinnitus although they were not designed for this purpose. To solve these problems, a new questionnaire - the Tinnitus Functional Index (TFI) - has been established. The TFI is highly responsive to treatment-related change and promises to be the new gold standard in tinnitus evaluation...
May 5, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28472964/reliability-and-validity-of-the-sf-36-health-survey-questionnaire-in-patients-with-brain-tumors-a-cross-sectional-study
#15
Adomas Bunevicius
BACKGROUND: Deterioration of health related quality of life (HRQoL) is common in brain tumor patients. This study evaluated validity and reliability of the Medical Outcomes Study 36-Item Short Form (SF-36) in patients with brain tumors. METHODS: Two hundred and seventy-seven patients admitted for brain tumor surgery were evaluated for HRQoL (SF-36 questionnaire); depressive symptoms (Beck Depression Inventory-II or BDI-II); and functional status (Barthel index or BI)...
May 4, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28472955/reliability-analysis-of-the-chinese-version-of-the-functional-assessment-of-cancer-therapy-leukemia-fact-leu-scale-based-on-multivariate-generalizability-theory
#16
Qiong Meng, Zheng Yang, Yang Wu, Yuanyuan Xiao, Xuezhong Gu, Meixia Zhang, Chonghua Wan, Xiaosong Li
BACKGROUND: The Functional Assessment of Cancer Therapy-Leukemia (FACT-Leu) scale, a leukemia-specific instrument for determining the health-related quality of life (HRQOL) in patients with leukemia, had been developed and validated, but there have been no reports on the development of a simplified Chinese version of this scale. This is a new exploration to analyze the reliability of the HRQOL measurement using multivariate generalizability theory (MGT). This study aimed to develop a Chinese version of the FACT-Leu scale and evaluate its reliability using MGT to provide evidence to support the revision and improvement of this scale...
May 4, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28468658/erratum-to-confirmatory-factor-analysis-of-clinical-outcomes-in-routine-evaluation-core-om-used-as-a-measure-of-emotional-distress-in-people-with-tinnitus
#17
L Handscomb, D A Hall, D J Hoare, G W Shorter
No abstract text is available yet for this article.
May 3, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28464936/validation-of-the-short-forms-of-the-pelvic-floor-distress-inventory-pfdi-20-pelvic-floor-impact-questionnaire-pfiq-7-and-pelvic-organ-prolapse-urinary-incontinence-sexual-questionnaire-pisq-12-in-finnish
#18
Nina Kristiina Mattsson, Kari Nieminen, Anna-Mari Heikkinen, Jyrki Jalkanen, Sari Koivurova, Marja-Liisa Eloranta, Pia Suvitie, Anna-Maija Tolppanen
BACKGROUND: Although several validated generic health-related quality of life instruments exist, disease-specific instruments are important as they are often more sensitive to changes in symptom severity. It is essential to validate the instruments in a new population and language before their use. The objective of the study was to translate into Finnish the short forms of three condition-specific questionnaires (PFDI-20, PFIQ-7 and PISQ-12) and to evaluate their psychometric properties in Finnish women with symptomatic pelvic organ prolapse...
May 2, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28464888/functional-disability-associated-with-disease-and-quality-of-life-parameters-in-chinese-patients-with-rheumatoid-arthritis
#19
Juan Ji, Lijuan Zhang, Qiuxiang Zhang, Rulan Yin, Ting Fu, Liren Li, Zhifeng Gu
BACKGROUND: As an important outcome measure among rheumatoid arthritis (RA) patients, functional disability may contribute to unemployment, loss of work productivity, and impaired quality of life. However, little is known about the risk factors of functional disability in Chinese RA patients. This study aimed (1) to examine the prevalence of functional disability in Chinese RA patients; (2) to explore factors associated with the health assessment questionnaire-disability index (HAQ-DI)...
May 2, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28464830/quality-of-life-improvement-in-latinas-receiving-combined-substance-use-disorders-and-trauma-specific-treatment-a-cohort-evaluation-report
#20
Miguel A Cruz-Feliciano, Christine Miranda-Díaz, Diana M Fernández-Santos, Darice Orobitg-Brenes, Robert F Hunter-Mellado, Ibis S Carrión-González
BACKGROUND: This study evaluates the benefits of integrating behavioral health and trauma services for Latinas with a history drug use. Changes in quality of life (QOL) domains were documented after participation in a manualized intervention in a cohort of Latinas. METHODS: Participants were part of a prospective cohort study of 136 Latinas with co-occurring disorders (COD) who may have experienced trauma and receiving services in our outpatient treatment facility in Bayamón, Puerto Rico...
May 2, 2017: Health and Quality of Life Outcomes
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