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Health and Quality of Life Outcomes

Ling Sun, Hai Ming Wong, Colman P J McGrath
BACKGROUND: Young adulthood is a time when subjects transform their role from a dependent child to an independent social identity. This cross-sectional study aimed to analyze the sociodemographic and clinical factors that may influence the OHRQoL of 18-year-old young adults. METHODS: A representative sample was selected from Hong Kong. Periodontal status and caries were examined according to WHO criteria. Four orthodontic indices were used to assess malocclusion...
September 17, 2018: Health and Quality of Life Outcomes
Jeongwi An, Young Hoon Kim, Sungkun Cho
BACKGROUND: The avoidance-endurance model suggests both fear-avoidance responses and endurance-related responses could affect the chronicity of pain. Proper pain intervention requires measuring fear-avoidance responses and endurance-related responses but no Korean language questionnaire has yet been made to measure them. The purpose of this study was to evaluate the validity and reliability of the Korean version of the Avoidance-Endurance Behavior Questionnaire (K-AEQ-Behavior) by adapting the behavioral responses of Avoidance-Endurance Questionnaire into Korean language...
September 17, 2018: Health and Quality of Life Outcomes
Bomi Park, Minsu Ock, Hye Ah Lee, Seonhwa Lee, Hyejin Han, Min-Woo Jo, Hyesook Park
BACKGROUND: Multimorbidity negatively affects health outcomes and impairs health-related quality of life (HRQoL). We assessed the prevalence of multimorbidity in Koreans aged 50 and older, taking into consideration their socioeconomic status, and estimated the loss in HRQoL due to multimorbidity. METHODS: This study is based on an analysis of data for adults aged 50 and older derived from the cross-sectional nationally representative Korean National Health and Nutrition Examination Survey conducted in 2013-14...
September 15, 2018: Health and Quality of Life Outcomes
T Beemster, C van Bennekom, J van Velzen, M Reneman, M Frings-Dresen
BACKGROUND: The Pain Disability Index (PDI) is a widely-used instrument to measure pain-related disability. The aim of this study was to assess the responsiveness and interpretation of change score of the PDI in patients with chronic musculoskeletal pain (CMP) at discharge of vocational rehabilitation. METHODS: Retrospective data of patients with CMP who attended vocational rehabilitation between 2014 and 2017 was used. The anchor-based method was used to assess the responsiveness of the total sample and of PDI baseline quartile groups...
September 14, 2018: Health and Quality of Life Outcomes
Alina Skrzypek-Salamon, Anna Lis-Święty, Irmina Ranosz-Janicka, Ligia Brzezińska-Wcisło
BACKGROUND: Localized scleroderma (LoS) affects both children and adults and is associated with permanent functional and cosmetic impairment, and reduced quality of life predominating in adults. The Localized Scleroderma Cutaneous Assessment Tool (LoSCAT) is a clinical instrument designed to measure an activity and damage of LoS. It has been validated for use with pediatric LoS patients. This study assessed the validity and reliability of the LoSCAT adapted for use in adults. METHODS: Before the initiation of the study two examiners participated in an intensive training course carried out by an expert in LoS...
September 14, 2018: Health and Quality of Life Outcomes
Kamyar Iravani, Peyman Jafari, Allahkaram Akhlaghi, Bijan Khademi
BACKGROUND: The European Organization for Research and Treatment of Cancer QOL Core Questionnaire 30 (EORTC QLQ-30) and the Assessment of Cancer Therapy-General (FACT-G) are the two most widely used measures of cancer-specific health-related quality of life (HRQOL). This study aims to assess whether the two instruments measure the same constructs of HRQOL in patients with total laryngectomy. METHODS: The EORTC QLQ-30 and the FACT-G was completed by 132 patients with total laryngectomy...
September 14, 2018: Health and Quality of Life Outcomes
Victoria Arija, Felipe Villalobos, Roser Pedret, Angels Vinuesa, Dolors Jovani, Gabriel Pascual, Josep Basora
BACKGROUND: Physical activity (PA) promotes cardiovascular health and health related quality of life (HRQoL), although the effect of that on blood pressure (BP) control has rarely been studied in hypertensive subjects. Our aim was to evaluate the effectiveness of a PA intervention programme on cardiovascular disease (CVD) risk, HRQoL and BP control in hypertensive subjects. METHODS: A randomized clinical trial, with a PA intervention programme of 9 months duration, comprising a walking group of 120 min/week, supervised, and with socio-cultural activities...
September 14, 2018: Health and Quality of Life Outcomes
Johannes Gräske, Annika Schmidt, Sylvia Schmidt, Franziska Laporte Uribe, Jochen René Thyrian, Bernhard Michalowsky, Susanne Schäfer-Walkmann, Karin Wolf-Ostermann
BACKGROUND: The majority of individuals with dementia live in the community; thus, regional dementia care networks are becoming increasingly more important for the provision of care. To date, four different types of dementia care networks have been identified in Germany (stakeholder, organisation, hybrid, mission); however, the effect on the quality of life of persons with dementia using such network services has not yet been examined. Moreover, the possible differences in the effect on the quality of life among the four types of dementia care networks have not been investigated...
September 14, 2018: Health and Quality of Life Outcomes
Sungwon Jung, Seung-Mi Lee, David Suh, Hyun Taek Shin, Dong-Churl Suh
BACKGROUND: This study aimed to determine the socioeconomic and clinical characteristics affecting health-related quality of life (HRQoL) in patients with psoriasis. METHODS: A cross-sectional study was conducted between March and June 2015 using data obtained via an Internet-based survey completed by a psoriasis patient group in Korea. The survey included items regarding demographic, socioeconomic, and clinical characteristics and HRQoL. Patients' HRQoL impairment was classified as severe if their Dermatology Life Quality Index Scores were ≥ 11...
September 12, 2018: Health and Quality of Life Outcomes
Noman Paracha, Ahmed Abdulla, Katherine S MacGilchrist
BACKGROUND: Health state utility values (HSUVs) are an important input to economic evaluations and the choice of HSUV can affect the estimate of relative cost-effectiveness between interventions. This systematic review identified utility scores for patients with metastatic non-small cell lung cancer (mNSCLC), as well as disutilities or utility decrements relevant to the experience of patients with mNSCLC, by treatment line and health state. METHODS: The MEDLINE®, Embase and Cochrane Library databases were systematically searched (September 2016) for publications describing HSUVs in mNSCLC in any treatment line...
September 12, 2018: Health and Quality of Life Outcomes
Badr M Madani, Rajaa Al Raddadi, Soad Al Jaouni, Mohab Omer, Marie-Isabelle Al Awa
PURPOSE: To assess the quality of life (QoL) of caregivers of children with sickle cell disease (SCD) and to determine the risk factors associated with poor QoL. METHOD: A cross sectional study was conducted between 01 and 30 June 2015, in a tertiary care center in western Saudi Arabia to assess various dimensions of QoL by using TNO-AZL Questionnaire for Adult's Health-related Quality of Life (TAAQOL). A total 164 adult caregivers (aged 16 years or more) of children with SCD, who were regularly visiting the department were enrolled (refusal rate = 61...
September 10, 2018: Health and Quality of Life Outcomes
Manuel Monroy, Miguel A Ruiz, Javier Rejas, Javier Soto
BACKGROUND: The short, self-administered Gastroesophageal Reflux Disease (GERD) Symptom Frequency Questionnaire (GSFQ) is a specific Quality of Life (QoL) instrument which measures the impact of GERD symptoms on QoL. This study aims to map the specific scores in GSFQ into two generic instruments: SF-6D and EQ-5D-3 L, in order to obtain utility estimates derived from the GERD condition. METHOD: A national representative sample of GERD patients was selected, stratified by gender, age (< 45, ≥45 years) and GERD severity (0-I, II-IV Savary-Miller score) for validation purposes...
September 10, 2018: Health and Quality of Life Outcomes
Mariana Amorim, Elisabete Alves, Michelle Kelly-Irving, Ana Isabel Ribeiro, Susana Silva
BACKGROUND: Knowledge about parental quality of life (QoL) is paramount to family-centred and integrated healthcare on prematurity, but evidence is limited. We aimed to explore mothers' and fathers' perspectives about their QoL 4 months after a very preterm childbirth. METHODS: This is a cross-sectional mixed methods study using a convergent design. Parents of very preterm infants were systematically recruited at all level III neonatal intensive care units in the Northern health region of Portugal for one year...
September 10, 2018: Health and Quality of Life Outcomes
Liv Marit Valen Schougaard, Annette de Thurah, Per Bech, Niels Henrik Hjollund, David Høyrup Christiansen
BACKGROUND: The generic questionnaire WHO-5 Well-being Index (WHO-5), which measures the construct of mental well-being has been widely used in several populations across countries. The questionnaire has demonstrated sufficient psychometric properties; however, the test- retest reliability of the WHO-5 scale has yet to be determined. The aim of this study was to evaluate the test-retest reliability and measurement error of the Danish WHO-5 Well-being Index for outpatients with epilepsy...
September 6, 2018: Health and Quality of Life Outcomes
Maryam Nikkhah, Majideh Heravi-Karimooi, Ali Montazeri, Nahid Rejeh, Hamid Sharif Nia
BACKGROUND: Assessing quality of life (QOL) in elderly needs specific instruments. The Older People's Quality of Life Questionnaire (OPQOL-35) is one of the common tools that used for measuring quality of life in elderly populations. The questionnaires contains 35 items tapping into eight domains including life overall, health, social relationships and participation, independence, control over life and freedom, home and neighborhood, psychological and emotional well-being, financial circumstances, culture and religion...
September 5, 2018: Health and Quality of Life Outcomes
Rachel Milte, Maria Crotty, Michelle D Miller, Craig Whitehead, Julie Ratcliffe
BACKGROUND: The purpose of this study was to empirically compare the performance of two generic preference based quality of life instruments, EQ-5D-3 L (with a health and physical function focus) and ICECAP-O (with a wellbeing and capability focus), in a population of older Australians following hip fracture. METHODS: Older adults or their family member proxies (in cases of severe cognitive impairment) following surgery to repair a fractured hip were invited to take part in this cross sectional study...
September 5, 2018: Health and Quality of Life Outcomes
Christoph Spiekermann, Eleftherios Savvas, Claudia Rudack, Markus Stenner
BACKGROUND: Questionnaires have proven their worth in detecting changes in quality of life after medical interventions. The Nasal Obstruction Symptom Evaluation scale (NOSE) is a reliable and valid tool to identify restrictions of quality of life in patients with nasal problems. The aim of this prospective study was the validation of the German version of the NOSE scale (D-NOSE). METHODS: Adaption of the NOSE in German language was performed by forward and backward translation process...
September 4, 2018: Health and Quality of Life Outcomes
Zonghua Wang, Juan Zhou, Yan Xu, Honghua Yin, Xi She, Wei Bian, Xianyuan Wang
BACKGROUND: Substantial challenges have been reported in China in terms of the large number of adult patients with strabismus and their poor quality of life. Quality of life is a cultural concept that varies according to personal feelings and perceptions, and it is influenced by physical, psychological and social factors. However, to date, there has been no mixed-method research of the quality of life of Chinese adult patients with strabismus, and no conceptual model has been reported...
September 3, 2018: Health and Quality of Life Outcomes
Chika Shigeyasu, Masakazu Yamada, Motoko Kawashima, Kazuhisa Suwaki, Miki Uchino, Yoshimune Hiratsuka, Norihiko Yokoi, Kazuo Tsubota
BACKGROUND: To determine whether quality of life (QOL) and health utility are affected to the same extent among dry eye (DE) patients with short tear film break-up time dry eye (TBUT-DE) with minimal clinical signs were as severe as aqueous-deficient dry eye (ADDE). METHODS: A multicenter cross-sectional study was conducted among DE patients who visited one of 10 eye clinics in Japan. Among the 463 registered patients, this study involved 449 patients with DE who were aged 20 years or older...
August 31, 2018: Health and Quality of Life Outcomes
Thomas G Poder, Nathalie Carrier, Harriet Mead, Katherine J Stevens
BACKGROUND: Several preference based measures are validated for adults in cost utility analysis, but less are available for children and many researchers have criticized the quality of pediatric economic studies. The objective of this study was to perform a Canadian French translation and linguistic validation of the Child Health Utility 9D (CHU9D) that was conceptually equivalent to the original English version for use in Canada. METHODS: The translation and linguistic validation were realized by ICON Clinical Research (UK) Limited in association with the developer of the CHU9D and Canadian collaborators...
August 29, 2018: Health and Quality of Life Outcomes
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