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Health and Quality of Life Outcomes

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https://www.readbyqxmd.com/read/28431587/psychometric-properties-of-the-sdm-q-9-questionnaire-for-shared-decision-making-in-multiple-sclerosis-item-response-theory-modelling-and-confirmatory-factor-analysis
#1
Javier Ballesteros, Ester Moral, Luis Brieva, Elena Ruiz-Beato, Daniel Prefasi, Jorge Maurino
BACKGROUND: Shared decision-making is a cornerstone of patient-centred care. The 9-item Shared Decision-Making Questionnaire (SDM-Q-9) is a brief self-assessment tool for measuring patients' perceived level of involvement in decision-making related to their own treatment and care. Information related to the psychometric properties of the SDM-Q-9 for multiple sclerosis (MS) patients is limited. The objective of this study was to assess the performance of the items composing the SDM-Q-9 and its dimensional structure in patients with relapsing-remitting MS...
April 22, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28431574/does-where-you-live-matter-to-your-health-investigating-factors-that-influence-the-self-rated-health-of-urban-and-rural-chinese-residents-evidence-drawn-from-chinese-general-social-survey-data
#2
Hongsheng Chen, Ye Liu, Zhenjun Zhu, Zhigang Li
BACKGROUND: China's rapid urbanization over the past decades has exacerbated the problems of environmental degradation and health disparities. However, few studies have analysed the differences between urban and rural residents in relation to how environmental quality impacts health outcomes. This study examines the associations between Chinese people's perceptions of environmental quality and their self-rated health, particularly focusing on differences between rural and urban residents in environment-health relationships...
April 21, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28427471/quality-of-life-and-healthcare-service-utilization-among-methadone-maintenance-patients-in-a-mountainous-area-of-northern-vietnam
#3
Long Hoang Nguyen, Lan Huong Thi Nguyen, Victoria L Boggiano, Canh Dinh Hoang, Hung Van Nguyen, Huong Thi Le, Hai Quan Le, Tho Dinh Tran, Bach Xuan Tran, Carl A Latkin, Nabil Zary, Minh Thuc Thi Vu
BACKGROUND: The expansion of methadone maintenance treatment in mountainous areas in still limited and little is known about its health impacts on drug users. This study aimed to examine health-related quality of life (HRQOL) and health care access among patients engaging in methadone maintenance treatment (MMT) in Tuyen Quang, a mountainous province in Vietnam. METHODS: We conducted a cross-sectional survey with 241 patients conveniently recruited in two MMT clinics (Son Duong and Tuyen Quang)...
April 20, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28424076/caregiver-s-quality-of-life-and-its-positive-impact-on-symptomatology-and-quality-of-life-of-patients-with-schizophrenia
#4
Alejandra Caqueo-Urízar, Marine Alessandrini, Alfonso Urzúa, Xavier Zendjidjian, Laurent Boyer, David R Williams
BACKGROUND: Although the quality of life (QoL) experienced by patients with schizophrenia has been recognized, few studies have assessed the relationship between the caregivers' QoL and patients' QoL. METHODS: The study included 253 stabilized outpatients with schizophrenia and their caregivers from 3 Mental Health Services in Bolivia (N = 83), Chile (N = 85) and Peru (N = 85). Caregivers' and patients' QoL were respectively assessed using two specific QoL questionnaires (S-CGQoL and S-QoL 18)...
April 19, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28420397/responsiveness-of-the-short-form-health-survey-and-the-parkinson-s-disease-questionnaire-in-patients-with-parkinson-s-disease
#5
Xiao-Jing Tu, Wen-Juh Hwang, Shih-Pin Hsu, Hui-Ing Ma
BACKGROUND: The responsiveness of a measurement instrument is important for understanding its ability to detect changes in the progression of a disease. We examined and compared the internal and external responsiveness of the 36-item Short-Form Health Survey (SF-36) and the 39-item Parkinson's Disease Questionnaire (PDQ-39) in patients with Parkinson's Disease (PD). METHODS: Seventy-four patients with PD were evaluated using the SF-36 and PDQ-39 at baseline and again after one year...
April 18, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28412945/multimorbidity-associated-with-functional-independence-among-community-dwelling-older-people-a-cross-sectional-study-in-southern-china
#6
Xiao-Xiao Wang, Wei-Quan Lin, Xu-Jia Chen, Ying-Yu Lin, Ling-Ling Huang, Sheng-Chao Zhang, Pei-Xi Wang
BACKGROUND: Multimorbidity, the coexistence of two or more chronic diseases, is common in older adults. And it may lead to many adverse health outcomes, such as disability. However, data on multimorbidity and its relationship with functional independence are scarce in Asian countries. Therefore, this study aims to investigate the relationship between multimorbidity and functional status among older people in China. METHODS: Based on a cross-sectional survey, the information regarding 2705 older adults, who were of at least 60 years of age, was collected through interviews and analyzed...
April 17, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28412933/beyond-quality-of-life-a-cross-sectional-study-on-the-mental-health-of-patients-with-chronic-kidney-disease-undergoing-dialysis-and-their-caregivers
#7
Beatriz Dos Santos Pereira, Neimar da Silva Fernandes, Nayara Pires de Melo, Renata Abrita, Fabiane Rossi Dos Santos Grincenkov, Natália Maria da Silva Fernandes
BACKGROUND: Patients with terminal chronic kidney disease (CKDT) requiring renal replacement therapies (RRT) undergo important changes in living habits and frequently need caregiving. These patients and their caregivers are risk groups for the development of physical and psychological symptoms. This study aimed to evaluate the prevalence of anxiety, depression, stress, fatigue, social support, and quality of life in patients with CKD and their caregivers. METHOD: This cross sectional study was conducted with 21 patients and their caregivers, from January to September 2015...
April 17, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28410593/comparing-health-related-quality-of-life-of-dutch-and-chinese-patients-with-traumatic-brain-injury-do-cultural-differences-play-a-role
#8
Maryse C Cnossen, Suzanne Polinder, Pieter E Vos, Hester F Lingsma, Ewout W Steyerberg, Yanming Sun, Pengpeng Ye, Leilei Duan, Juanita A Haagsma
BACKGROUND: There is growing interest in health related quality of life (HRQoL) as an outcome measure in international trials. However, there might be differences in the conceptualization of HRQoL across different socio-cultural groups. The objectives of current study were: (I) to compare HRQoL, measured with the short form (SF)-36 of Dutch and Chinese traumatic brain injury (TBI) patients 1 year after injury and; (II) to assess whether differences in SF-36 profiles could be explained by cultural differences in HRQoL conceptualization...
April 14, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28407778/coping-strategies-and-quality-of-life-in-caregivers-of-dependent-elderly-relatives
#9
Margarita Rodríguez-Pérez, Ana Abreu-Sánchez, María Jesús Rojas-Ocaña, Rafael Del-Pino-Casado
BACKGROUND: Despite the importance of coping in caregiving, there are few studies on the relationship between coping and quality of life in caregivers of the frail dependent elderly. Thus, this study aims to analyze the relationship between coping strategies and quality of life dimensions in primary caregivers of dependent elderly relatives. METHODS: A cross-sectional study was conducted from 86 caregivers. Predictive variables were coping strategies (problem-focused, emotion-focused, socially-supported, and dysfunctional); dependent variables were quality of life dimensions (psychological, physical, relational, and environmental); and potential confounding variables were age, gender, perceived health and burden of caregiver, and functional capacity of care receiver...
April 14, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28407776/trends-of-medical-expenditures-and-quality-of-life-in-us-adults-with-diabetes-the-medical-expenditure-panel-survey-2002-2011
#10
Jennifer A Campbell, Kinfe G Bishu, Rebekah J Walker, Leonard E Egede
BACKGROUND: Studies indicate a relationship between cost and quality of life (QOL) in diabetes care, however, the interaction is complex and the relationship is not well understood. The aim of this study was to 1) examine the relationship of quartiles of QOL on cost amongst U.S. adults with diabetes, 2) investigate how the relationship may change over time, and 3) examine the incremental effect of QOL on cost while controlling for other relevant covariates. METHODS: Data from 2002-2011 Medical Expenditure Panel Survey (MEPS) was used to examine the association between QOL and medical expenditures among adults with diabetes (aged ≥18 years) N = 20,442...
April 13, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28403872/erratum-to-validation-of-the-german-version-of-two-scales-ris-rcs-hcp-for-measuring-regret-associated-with-providing-healthcare
#11
Silvia C Richner, Stéphane Cullati, Boris Cheval, Ralph E Schmidt, Pierre Chopard, Christoph A Meier, Delphine S Courvoisier
No abstract text is available yet for this article.
April 12, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28399883/role-of-self-efficacy-and-social-support-in-short-term-recovery-after-total-hip-replacement-a-prospective-cohort-study
#12
Espen Andreas Brembo, Heidi Kapstad, Sandra Van Dulmen, Hilde Eide
BACKGROUND: Despite the overall success of total hip replacement (THR) in patients with symptomatic osteoarthritis (OA), up to one-quarter of patients report suboptimal recovery. The aim of this study was to determine whether social support and general self-efficacy predict variability in short-term recovery in a Norwegian cohort. METHODS: We performed secondary analysis of a prospective multicenter study of 223 patients who underwent THR for OA in 2003-2004. The total score of the Western Ontario and McMaster Universities Osteoarthritis Index (WOMAC) at 3 months after surgery was used as the recovery variable...
April 11, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28388906/predictors-of-quality-of-life-among-adolescents-and-young-adults-with-a-bleeding-disorder
#13
John M McLaughlin, James E Munn, Terry L Anderson, Angela Lambing, Bartholomew Tortella, Michelle L Witkop
BACKGROUND: Health-related quality of life (HRQoL) in adolescents and young adults with bleeding disorders is under-researched. We aimed to describe factors related to HRQoL in adolescents and young adults with hemophilia A or B or von Willebrand disease. METHODS: A convenience sample of volunteers aged 13 to 25 years with hemophilia or von Willebrand disease completed a cross-sectional survey that assessed Physical (PCS) and Mental (MCS) Component Summary scores on the SF-36 questionnaire...
April 7, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28388899/validation-of-the-dutch-version-of-the-swallowing-quality-of-life-questionnaire-dswal-qol-and-the-adjusted-dswal-qol-adswal-qol-using-item-analysis-with-the-rasch-model-a-pilot-study
#14
Ingeborg S Simpelaere, Gwen Van Nuffelen, Marc De Bodt, Jan Vanderwegen, Tina Hansen
BACKGROUND: The Swallowing Quality-of-Life Questionnaire (SWAL-QoL) is considered the gold standard for assessing health-related QoL in oropharyngeal dysphagia. The Dutch translation (DSWAL-QoL) and its adjusted version (aDSWAL-QoL) have been validated using classical test theory (CTT). However, these scales have not been tested against the Rasch measurement model, which is required to establish the structural validity and objectivity of the total scale and subscale scores. Thus, the purpose of this study was to examine the psychometric properties of these scales using item analysis according to the Rasch model...
April 7, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28381230/validation-of-the-world-health-organization-disability-assessment-schedule-in-people-with-severe-mental-disorders-in-rural-ethiopia
#15
Kassahun Habtamu, Atalay Alem, Girmay Medhin, Abebaw Fekadu, Michael Dewey, Martin Prince, Charlotte Hanlon
BACKGROUND: The World Health Organization Disability Assessment Schedule (WHODAS-2.0) has been adapted and validated in several cultures, but data on performance in the African context are lacking. The aim of the study was to evaluate the validity and psychometric properties of the WHODAS-2.0 among people with severe mental disorders (SMD) and their caregivers in a rural African setting. METHODS: The content validity of the 36 item WHODAS was assessed using free listing and pile sorting in 36 community members...
April 5, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28381222/assessment-of-the-consequences-of-caregiving-in-psychosis-a-psychometric-comparison-of-the-zarit-burden-interview-zbi-and-the-involvement-evaluation-questionnaire-ieq
#16
Manuel Gonçalves-Pereira, Eduardo González-Fraile, Borja Santos-Zorrozúa, Manuel Martín-Carrasco, Paola Fernández-Catalina, Ana I Domínguez-Panchón, Paula Muñoz-Hermoso, Javier Ballesteros
BACKGROUND: The Zarit Burden Interview (ZBI) was originally developed to assess the level of subjective burden in caregivers of people with dementia. The Involvement Evaluation Questionnaire (IEQ) is amongst the leading scales to assess caregiving consequences in severe mental illness. We aimed to compare the psychometric properties of the ZBI, a generic tool, and of the IEQ, a more specific tool to assess the consequences of caregiving in schizophrenia and related disorders. METHODS: Secondary analyses of a 16-week, randomized controlled trial of a psychoeducational intervention in 223 primary caregivers of patients with schizophrenia or schizoaffective disorder...
April 5, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28376887/women-with-family-cancer-history-are-at-risk-for-poorer-physical-quality-of-life-and-lower-self-efficacy-a-longitudinal-study-among-men-and-women-with-non-small-cell-lung-cancer
#17
Anna Banik, Ralf Schwarzer, Izabela Pawlowska, Monika Boberska, Roman Cieslak, Aleksandra Luszczynska
BACKGROUND: We investigated the determinants of trajectories of physical symptoms related to lung cancer (a quality of life [QOL] aspect) and self-efficacy among patients with non-small cell lung cancer (NSCLC). It was hypothesized that gender and family cancer history in first-degree relatives would have synergistic effects on QOL-lung cancer specific symptoms and self-efficacy. Women with family cancer history were expected to be at risk of poorer adjustment. METHODS: Quantitative, longitudinal design was applied...
April 4, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28376878/the-patient-assessment-of-chronic-illness-care-produces-measurements-along-a-single-dimension-results-from-a-mokken-analysis
#18
C J Gibbons, N Small, J Rick, J Burt, M Hann, P Bower
BACKGROUND: As the worldwide prevalence of chronic illness increases so too does the demand for novel treatments to improve chronic illness care. Quantifying improvement in chronic illness care from the patient perspective relies on the use of validated patient-reported outcome measures. In this analysis we examine the psychometric and scaling properties of the Patient Assessment of Chronic Illness Care (PACIC) questionnaire for use in the United Kingdom by applying scale data to the non-parametric Mokken double monotonicity model...
April 4, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28372559/comparing-five-depression-measures-in-depressed-chinese-patients-using-item-response-theory-an-examination-of-item-properties-measurement-precision-and-score-comparability
#19
Yue Zhao, Wai Chan, Barbara Chuen Yee Lo
BACKGROUND: Item response theory (IRT) has been increasingly applied to patient-reported outcome (PRO) measures. The purpose of this study is to apply IRT to examine item properties (discrimination and severity of depressive symptoms), measurement precision and score comparability across five depression measures, which is the first study of its kind in the Chinese context. METHODS: A clinical sample of 207 Hong Kong Chinese outpatients was recruited. Data analyses were performed including classical item analysis, IRT concurrent calibration and IRT true score equating...
April 4, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28356121/a-survey-of-the-impact-of-owning-a-service-dog-on-quality-of-life-for-individuals-with-physical-and-hearing-disability-a-pilot-study
#20
Sophie S Hall, Jessica MacMichael, Amy Turner, Daniel S Mills
BACKGROUND: Quality of life refers to a person's experienced standard of health, comfort and happiness and is typically measured using subjective self-report scales. Despite increasing scientific interest in the value of dogs to human health and the growing demand for trained service dogs, to date no research has reported how service dogs may affect client perceptions of quality of life. METHOD: We compared quality of life scores on the 16 item Flanagan quality of life scale from individuals who owned a trained service dog with those who were eligible to receive a dog, but did not yet have one (waiting list control)...
March 29, 2017: Health and Quality of Life Outcomes
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