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Health and Quality of Life Outcomes

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https://www.readbyqxmd.com/read/28222807/validation-of-the-aging-perceptions-questionnaire-short-on-a-sample-of-community-dwelling-turkish-elderly-migrants
#1
Anne Slotman, Jane M Cramm, Anna P Nieboer
BACKGROUND: Aging perceptions have been found to be major contributors to health in old age. To quantitatively explore aging perceptions among elderly Turkish migrants, valid and reliable Turkish-language instruments are needed. The objective of the current study was to examine the construct validity and reliability of the Turkish-language version of the seven-dimension Aging Perceptions Questionnaire Short version (APQ-S) in a sample of community-dwelling elderly Turkish migrants in the Netherlands...
February 21, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28222781/the-complex-interplay-between-clinical-and-person-centered-diabetes-outcomes-in-the-two-genders
#2
Maria Chiara Rossi, Giuseppe Lucisano, Basilio Pintaudi, Angela Bulotta, Sandro Gentile, Marco Scardapane, Soren Eik Skovlund, Giacomo Vespasiani, Antonio Nicolucci
BACKGROUND: New approaches to cope with clinical and psychosocial aspects of type 2 diabetes (T2DM) are needed; gender influences the complex interplay between clinical and non-clinical factors. We used data from the BENCH-D study to assess gender-differences in terms of clinical and person-centered measures in T2DM. METHODS: Clinical quality of care indicators relative to control of HbA1c, lipid profile, blood pressure, and BMI were derived from electronic medical records...
February 21, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28222741/the-impact-of-psychological-factors-on-condition-specific-generic-and-individualized-patient-reported-outcomes-in-low-back-pain
#3
Ida Løchting, Andrew M Garratt, Kjersti Storheim, Erik L Werner, Margreth Grotle
BACKGROUND: An individualized patient reported outcome (PRO) has recently been recommended within LBP research, but no study has evaluated this instrument with commonly applied PROs. Moreover, the impact of psychological factors has mostly been assessed for disease-specific instruments. The objective of this study was to assess the predictive value of illness perceptions, pain catastrophizing and psychological distress on 12 month outcomes assessed by specific, generic and individualized PROs recommended in low back pain (LBP)...
February 21, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28219389/valuation-of-the-eq-5d-5l-with-composite-time-trade-off-for-the-german-population-an-exploratory-study
#4
Kristina Ludwig, J-Matthias Graf von der Schulenburg, Wolfgang Greiner
BACKGROUND: The EuroQol Group has extended the severity levels of the EQ-5D from three to five (EQ-5D-5L). There are valuation studies worldwide planned in order to convert the EQ-5D-5L health states into a single preference-based summary score based on country-specific value sets of social health status preference valuations. The EuroQol Group developed an internationally standardised EQ-5D-5L valuation protocol. Based on the experiences of the first wave of valuation studies applying the protocol, a number of modifications to the implementation of composite time trade-off (cTTO) were proposed and tested in an exploratory study in Germany...
February 20, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28209168/the-impact-of-preterm-birth-37%C3%A2-weeks-on-parents-and-families-a-cross-sectional-study-in-the-2%C3%A2-years-after-discharge-from-the-neonatal-intensive-care-unit
#5
Ashwini Lakshmanan, Meghana Agni, Tracy Lieu, Eric Fleegler, Michele Kipke, Philippe S Friedlich, Marie C McCormick, Mandy B Belfort
BACKGROUND: Little is known about the quality of life of parents and families of preterm infants after discharge from the neonatal intensive care unit (NICU). Our aims were (1) to describe the impact of preterm birth on parents and families and (2) and to identify potentially modifiable determinants of parent and family impact. METHODS: We surveyed 196 parents of preterm infants <24 months corrected age in 3 specialty clinics (82% response rate). Primary outcomes were: (1) the Impact on Family Scale total score; and (2) the Infant Toddler Quality of Life parent emotion and (3) time limitations scores...
February 16, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28202043/reliability-and-validity-of-the-korean-version-of-the-coronary-revascularization-outcome-questionnaire
#6
Minju Kim, JiYeong Seo, Jin-Yong Hwang, Ki Soo Park
BACKGROUND: People with ischemic heart disease have increased drastically, and their health-related quality of life (HRQOL) has been increasingly important. The Coronary Revascularization Outcome Questionnaire (CROQ) is a widely used tool to assess the quality of life in patients with coronary artery disease. The purpose of this study was to rigorously examine the psychometric properties of the CROQ in patients who had undergone percutaneous coronary intervention (PCI). METHODS: The CROQ was translated into Korean...
February 15, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28196503/validation-of-the-generic-medical-interview-satisfaction-scale-the-g-miss-questionnaire
#7
Axel Maurice-Szamburski, Pierre Michel, Anderson Loundou, Pascal Auquier
BACKGROUND: Patients have about seven medical consultations a year. Despite the importance of medical interviews in the healthcare process, there is no generic instrument to assess patients' experiences in general practices, medical specialties, and surgical specialties. The main objective was to validate a questionnaire assessing patients' experiences with medical consultations in various practices. METHOD: The G-MISS study was a prospective multi-center trial that enrolled patients from May to July 2016...
February 14, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28196491/health-related-quality-of-life-work-productivity-and-indirect-costs-among-patients-with-irritable-bowel-syndrome-with-diarrhea
#8
Jessica L Buono, Robyn T Carson, Natalia M Flores
BACKGROUND: Irritable bowel syndrome (IBS) affects 10-15% of adults in the US, and is associated with significant impairment in health-related quality of life (HRQoL); however, information specific to the diarrhea subtype (IBS-D) is lacking. We assessed the impact of IBS-D on HRQoL, work productivity, and daily activities, and the associated indirect costs, among a sample of the US population. METHODS: Respondents (≥18 years) from the 2012 US National Health and Wellness Survey who reported an IBS-D diagnosis by a physician or symptoms consistent with Rome II criteria for IBS-D were identified as having IBS-D...
February 14, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28193237/evaluation-of-quality-of-life-in-adults-with-neurofibromatosis-1-nf1-using-the-impact-of-nf1-on-quality-of-life-inf1-qol-questionnaire
#9
Rosalie E Ferner, Mary Thomas, Gemma Mercer, Victoria Williams, Guy D Leschziner, Shazia K Afridi, John F Golding
BACKGROUND: Neurofibromatosis 1 (NF1) is an inherited, multi-system, tumour suppressor disorder with variable complications that cause psychological distress and social isolation. The study aim was to develop and validate a disease-specific questionnaire to measure quality of life (QOL) in NF1 that is suitable both as an assessment tool in clinical practice and in clinical trials of novel therapy. METHODS: The Impact of NF1 on Quality of Life (INF1-QOL) questionnaire was developed by a literature search for common terms, focus group (n = 6), semi-structured interviews (n = 21), initial drafts (n =50) and final 14 item questionnaire (n = 50)...
February 14, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28187773/perceived-quality-of-life-among-caregivers-of-children-with-a-childhood-onset-dystrophinopathy-a-double-abcx-model-of-caregiver-stressors-and-perceived-resources
#10
Natalia Frishman, Kristin Caspers Conway, Jennifer Andrews, Jacob Oleson, Katherine Mathews, Emma Ciafaloni, Joyce Oleszek, Molly Lamb, Dennis Matthews, Pangaja Paramsothy, Lowell McKirgan, Paul Romitti
BACKGROUND: Duchenne and Becker muscular dystrophies, collectively referred to as dystrophinopathies, are recessive X-linked disorders characterized by progressive muscle weakness and ultimately cardiac and respiratory failure. Immediate family members are often primary caregivers of individuals with a dystrophinopathy. METHODS: We explored the impact of this role by inviting primary caregivers (n = 209) of males diagnosed with childhood-onset dystrophinopathy who were identified by the Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet) to complete a mailed questionnaire measuring perceived social support and stress, spirituality, and family quality of life (FQoL)...
February 10, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28183312/psychometric-properties-of-the-press-ganey%C3%A2-outpatient-medical-practice-survey
#11
Angela P Presson, Chong Zhang, Amir M Abtahi, Jacob Kean, Man Hung, Andrew R Tyser
BACKGROUND: The Press Ganey® Medical Practice Survey ("Press Ganey® survey") is a patient-reported questionnaire commonly used to measure patient satisfaction with outpatient health care in the United States. Our objective was to evaluate the reliability and validity of the Press Ganey® survey in a single institution setting. METHODS: We analyzed surveys from 34,503 unique respondents seen by 624 providers from 47 specialties and 94 clinics at the University of Utah in 2013...
February 10, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28153023/reliability-and-validity-of-the-chinese-version-of-the-autoimmune-bullous-disease-quality-of-life-abqol-questionnaire
#12
Baoqi Yang, Guo Chen, Qing Yang, Xiaoxiao Yan, Zhaoxia Zhang, Dédée F Murrell, Furen Zhang
BACKGROUND: The autoimmune bullous diseases quality of life (ABQOL) questionnaire was recently developed by an Australian group and has been validated in Australian and North American patient cohorts. It is a 17-item, multidimensional, self-administered English questionnaire. The study aimed to validate the Chinese version of the ABQOL questionnaire and evaluate the reliability in Chinese patients. METHODS: The Chinese version of the ABQOL questionnaire was produced by forward-backward translation and cross-cultural adaptation of the original English version...
February 2, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28143502/transcultural-adaptation-and-psychometric-validation-of-a-spanish-language-version-of-the-pelvic-girdle-questionnaire
#13
Montserrat Rejano-Campo, Raúl Ferrer-Peña, M Alicia Urraca-Gesto, Tomás Gallego-Izquierdo, Daniel Pecos-Martín, Britt Stuge, Gustavo Plaza-Manzano
BACKGROUND: The Pelvic Girdle Questionnaire is the only instrument designed to assess pain and disability specifically in pregnant or postpartum women with pelvic girdle pain. The objective of this study was the adaptation to the Spanish language and analysis of the psychometric properties of the Pelvic Girdle Questionnaire. METHODS: This is a descriptive cross-sectional study divided into two phases. In the first phase, a translation and adaptation process was performed according to international guidelines...
February 1, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28143559/health-utilities-using-sf-6d-scores-in-japanese-patients-with-chronic-hepatitis-c-treated-with-sofosbuvir-based-regimens-in-clinical-trials
#14
Zobair Younossi, Maria Stepanova, Masao Omata, Masashi Mizokami, Mercedes Walters, Sharon Hunt
BACKGROUND: Health utilities are preference-based measures for health states which are typically used in economic analyses to estimate quality-adjusted life years. Our aim is to report the standard SF-6D health utility scores in Japanese patients with hepatitis C virus (HCV) during treatment with different regimens. METHODS: Japanese patients were enrolled in clinical trials of sofosbuvir (SOF) used in combination with or without ledipasvir (LDV) and/or ribavirin (RBV)...
January 31, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28143551/validation-of-the-dutch-version-of-the-health-education-impact-questionnaire-heiq-and-comparison-of-the-dutch-translation-with-the-english-german-and-french-heiq
#15
Judy W Ammerlaan, Harmieke van Os-Medendorp, Jacob K Sont, Gerald R Elsworth, Richard H Osborne
BACKGROUND: The Health Education Impact Questionnaire (heiQ) evaluates the effectiveness of health education and self-management programs provided to people dealing with a wide range of conditions. Aim of this study was to translate, culturally adapt and validate the Dutch translation of the heiQ and to compare the results with the English, German and French translations. METHODS: A systematic translation process was undertaken. Psychometric properties were studied among patients with arthritis, atopic dermatitis, food allergy and asthma (n = 286)...
January 31, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28143548/the-lmc-skills-confidence-preparedness-index-scpi-development-and-evaluation-of-a-novel-tool-for-assessing-self-management-in-patients-with-diabetes
#16
Lawrence Mbuagbaw, Ronnie Aronson, Ashleigh Walker, Ruth E Brown, Naomi Orzech
BACKGROUND: Optimal diabetes care requires a specific set of self-management behaviours. The purpose of this study was to present the development and initial psychometric evaluation of a new tool to measure three key aspects of a patient's diabetes self-management: knowledge of the skill, confidence in being able to perform the skill and preparedness to implement the skill. METHODS: A sequential exploratory mixed-methods design was used. A panel of educators, researchers and clinicians established a scale with items that would adequately capture skills, confidence and preparedness in seven core health behaviours central to diabetes care...
January 31, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28143546/patient-defined-desired-outcome-success-criteria-and-expectation-in-outpatient-physical-therapy-a-longitudinal-assessment
#17
Giorgio Zeppieri, Steven Z George
BACKGROUND: Patient-centered approaches offer an alternative method in evaluating treatment outcomes. This study investigated; 1) if patient's criteria for success (satisfaction of clinical outcomes) changes from pre to post treatment, 2) whether patients who met their success criteria also meet minimal clinical important difference scores (MCIDs), and 3) if patient's success criteria differed from their expected (what the patient believes will occur) and desired (what the patient wants to occur) outcomes following intervention...
January 31, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28143536/the-impact-of-resilience-on-psychological-outcomes-in-women-with-threatened-premature-labor-and-spouses-a-cross-sectional-study-in-southwest-china
#18
Chunhua Nie, Qin Dai, Ren Zhao, Yushu Dong, Yushan Chen, Hui Ren
BACKGROUND: Threatened premature labor (TPL) is a severe obstetric complication which affects the mental and physical health of both the mother and fetus. Family resilience may have protective role against psychological distress in women experiencing these pregnancy complications. There may be resilience related risk factors in TPL women, and interplays may exist among psychological variables and within couples. This study aims to examine psychological outcomes influenced by different levels of resilience, and explore psychological interactions in TPL women, spouses, and between women and spouses...
January 31, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28129770/validation-of-the-french-versions-of-the-hirschsprung-s-disease-and-anorectal-malformations-quality-of-life-haql-questionnaires-for-adolescents-and-adults
#19
Corine Baayen, Fanny Feuillet, Pauline Clermidi, Célia Crétolle, Sabine Sarnacki, Guillaume Podevin, Jean-Benoit Hardouin
BACKGROUND: The Hirschsprung's disease Anorectal malformation QoL questionnaire (HAQL) is a disease-specific quality of life (QoL) questionnaire for patients with Hirschsprung's disease (HD) or anorectal malformations (ARM). It was originally proposed in Dutch and is currently being translated into other languages to obtain an internationally standardized instrument. In this work we validate a French adaptation of the HAQL for adolescents and adults. METHODS: The questionnaires were translated into French and sent to patients aged 12 years and older, followed for HD or ARM at three French university hospitals...
January 28, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28126000/validation-and-reliability-of-the-translated-malay-version-of-the-psychosocial-impact-of-dental-aesthetics-questionnaire-for-adolescents
#20
COMPARATIVE STUDY
Wan Nurazreena Wan Hassan, Zamros Yuzadi Mohd Yusof, Siti Safuraa Zahirah Shahidan, Siti Farhana Mohd Ali, Mohd Zambri Mohamed Makhbul
BACKGROUND: This paper describes the cross-cultural adaptation of the Psychosocial Impact of Dental Aesthetics Questionnaire (PIDAQ) into Malay version (Malay PIDAQ), an oral health-related quality of life (OHRQoL) instrument specific for orthodontics for Malaysian adolescents between 12 and 17 years old. METHODS: The PIDAQ was cross-culturally adapted into Malay version by forward- and backward-translation processes, followed by psychometric validations. After initial investigation of the conceptual suitability of the measure for the Malaysian population, the PIDAQ was translated into Malay, pilot tested and back translated into English...
January 26, 2017: Health and Quality of Life Outcomes
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