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Health and Quality of Life Outcomes

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https://www.readbyqxmd.com/read/28738881/assessment-of-quality-of-life-in-patients-with-post-kalaazar-dermal-leishmaniasis
#1
Biplab Pal, Krishna Murti, Niyamat Ali Siddiqui, Pradeep Das, Chandra Shekhar Lal, Rajendra Babu, Manoj Kumar Rastogi, Krishna Pandey
BACKGROUND: Post kala-azar dermal leishmaniasis (PKDL) is a dermatological disorder caused by protozoal parasite Leishmania donovani. PKDL cases are thought to be a reservoir of parasites and may increase cases of visceral leishmaniasis. The disease is not life threatening but cosmetic disfigurement associated with it may impair the patients' quality of life. This study aimed to assess the health related quality of life in patients with post kalaazar dermal leishmanasis for the first time...
July 24, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28738816/disease-activity-resilience-and-health-related-quality-of-life-in-chinese-patients-with-rheumatoid-arthritis-a-multi-center-cross-sectional-study
#2
Li Liu, Xin Xu, Neili Xu, Lie Wang
BACKGROUND: Positive psychological constructs that can moderate or mediate the negative impact of disease activity on health-related quality of life (HRQOL) in patients with rheumatoid arthritis (RA) have not been explored widely. This study aimed to assess the associations of disease activity, resilience with HRQOL and the moderating and mediating roles of resilience among Chinese RA patients. METHODS: A multi-center, cross-sectional study was conducted in RA inpatients in northeast of China...
July 24, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28732511/primary-liver-transplantation-and-liver-retransplantation-comparison-of-health-related-quality-of-life-and-mental-status-a-cross-sectional-study
#3
Johannes Broschewitz, Georg Wiltberger, Nicco Krezdorn, Felix Krenzien, Julia Förster, Georgi Atanasov, Hans-Michael Hau, Moritz Schmelzle, Andreas Hinz, Michael Bartels, Christian Benzing
BACKGROUND: Liver Retransplantation (Re-LT) procedures are associated with an increased risk of morbidity and mortality. Up to date, there is no knowledge on the health-related quality of life and the mental status of these patients. METHODS: Health-Related Quality of Life (HRQoL) was assessed by using the Short Form 36 (SF-36) Health Survey and Mental Status was assessed by using the Hospital Anxiety and Depression Scale (HADS). The patients were examined in different assessments: During regular check-up examinations in the LT outpatient department in 2011 (Survey 1) and in a postal survey in 2013 (Survey 2)...
July 21, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28720133/developing-a-questionnaire-to-determine-the-impact-of-self-management-in-diabetes-giving-people-with-diabetes-a-voice
#4
J Carlton, J Elliott, D Rowen, K Stevens, H Basarir, K Meadows, J Brazier
BACKGROUND: The prevalence of diabetes mellitus (DM) is increasing dramatically, placing considerable financial burden on the healthcare budget of each country. Patient self-management is crucial for the control of blood glucose, which largely determines the chances of developing diabetes-related complications. Self-management interventions vary widely, and a method is required for assessing the impact of self-management. This paper describes the development of a questionnaire intended for use to measure the impact of self-management in diabetes...
July 18, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28716084/development-and-validation-of-the-chinese-version-of-dry-eye-related-quality-of-life-scale
#5
Bang Zheng, Xiao-Jing Liu, Yue-Qian Fiona Sun, Jia-Zeng Su, Yang Zhao, Zheng Xie, Guang-Yan Yu
BACKGROUND: To develop the Chinese version of quality of life scale for dry eye patients based on the Impact of Dry Eye on Everyday Life (IDEEL) questionnaire and to assess the reliability and validity of the developed scale. METHODS: The original IDEEL was adapted cross-culturally to Chinese language and further developed following standard procedures. A total of 100 Chinese patients diagnosed with dry eye syndrome were included to investigate the psychometric properties of the Chinese version of scale...
July 17, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28716065/the-validity-of-the-sf-12-and-sf-6d-instruments-in-people-living-with-hiv-aids-in-kenya
#6
Anik R Patel, Richard T Lester, Carlo A Marra, Mia L van der Kop, Paul Ritvo, Lidia Engel, Sarah Karanja, Larry D Lynd
BACKGROUND: Health-related quality of life (HRQoL) and health state utility value (HSUV) measurements are vital components of healthcare clinical and economic evaluations. Accurate measurement of HSUV and HRQoL require validated instruments. The 12-item Short-Form Health Survey (SF-12) is one of few instruments that can evaluate both HRQoL and HSUV, but its validity has not been assessed in people living with HIV/AIDS (PLWHA) in east Africa, where the burden of HIV is high. METHODS: This cross-sectional study used baseline data from a randomized trial involving PLWHA in Kenya...
July 17, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28716032/association-of-financial-status-and-the-quality-of-life-in-chinese-women-with-recurrent-ovarian-cancer
#7
Zhuyan Shao, Tao Zhu, Ping Zhang, Qiang Wen, Dan Li, Shihua Wang
BACKGROUND: Very few studies have examined the association between financial status and the quality of life (QOL) of patients with specific cancers. Ovarian cancer survivors frequently suffer repeat recurrence and subsequent treatment and, as a result, a significant added financial burden. Financial burdens disproportionally affect patients of low income. This study examines the association between financial status, based upon family income and expenses, and QOL in Chinese women with recurrent ovarian cancer...
July 17, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28709437/profile-and-predictors-of-health-related-quality-of-life-among-type-ii-diabetes-mellitus-patients-in-quetta-city-pakistan
#8
Qaiser Iqbal, Noman Ul Haq, Sajid Bashir, Mohammad Bashaar
BACKGROUND: This study aims to assess the profile and predictors of Health-Related Quality of Life (HRQoL) in Type II Diabetes Mellitus (T2DM) patients in Quetta, Pakistan. METHODS: The study was designed as a questionnaire based, cross sectional analysis. 300 Type II diabetic patients attending public and private hospitals were targeted for data collection. In addition to demographic and disease related information, Euroqol Quality of Life was used to measure HRQoL...
July 14, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28709430/exploring-the-factor-structure-of-the-health-of-the-nation-outcomes-scale-honos-in-a-sample-of-patients-with-schizophrenia-schizotypal-and-delusional-disorders
#9
Wayne Smith, Silia Vitoratou, Paul McCrone, Anita Patel
BACKGROUND: The Health of the Nation Outcomes Scale (HoNOS) is recommended for use by the English National Service Framework for Mental Health and by the working group on outcome indicators for severe mental illnesses to the Department of Health. It was developed to measure the health and social functioning of people with severe mental illness. Since the development of the HoNOS many have debated its latent structure. This paper examines the latent structure of the HoNOS using current factor analysis techniques...
July 14, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28705225/the-impact-of-social-engagement-on-health-related-quality-of-life-and-depressive-symptoms-in-old-age-evidence-from-a-multicenter-prospective-cohort-study-in-germany
#10
André Hajek, Christian Brettschneider, Tina Mallon, Annette Ernst, Silke Mamone, Birgitt Wiese, Siegfried Weyerer, Jochen Werle, Michael Pentzek, Angela Fuchs, Janine Stein, Tobias Luck, Horst Bickel, Dagmar Weeg, Michael Wagner, Kathrin Heser, Wolfgang Maier, Martin Scherer, Steffi G Riedel-Heller, Hans-Helmut König
BACKGROUND: Thus far, only a few longitudinal studies investigated the impact of social engagement on health-related quality of life (HRQoL) and depressive symptoms in old age. Therefore, we aimed to examine the impact of social engagement on HRQoL and depressive symptoms in late life. METHODS: Individuals aged 75 years and over at baseline were interviewed every 1.5 years in a multicenter prospective cohort study in Germany. While HRQoL was quantified by using the Visual Analogue Scale (EQ VAS) of the EQ-5D instrument, depressive symptoms was assessed by using the Geriatric Depression Scale (GDS)...
July 14, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28701163/quality-of-life-and-general-health-of-infertile-women
#11
Azam Namdar, Mohammad Mehdi Naghizadeh, Marziyeh Zamani, Farideh Yaghmaei, Mohammad Hadi Sameni
BACKGROUND: Measuring the quality of life (QOL) is a benchmark in today's world of medicine. The aim of the present study was to determine the general health and QOL of infertile women and certain affecting conditions. METHODS: In a cross-sectional study, 161 infertile women referring to Dr. Rostami's Infertility Center of Shiraz, Southern Iran, in 2013 were enrolled by the convenience sampling method. Data were collected via a socio-demographic, general health (GHQ28), and the QOL Questionnaire of Infertile Couples and analyzed using descriptive and analytical statistics...
July 12, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28683747/international-comparison-of-experience-based-health-state-values-at-the-population-level
#12
Richard Heijink, Peter Reitmeir, Reiner Leidl
BACKGROUND: Decision makers need to know whether health state values, an important component of summary measures of health, are valid for their target population. A key outcome is the individuals' valuation of their current health. This experience-based perspective is increasingly used to derive health state values. This study is the first to compare such experience-based valuations at the population level across countries. METHODS: We examined the relationship between respondents' self-rated health as measured by the EQ-VAS, and the different dimensions and levels of the EQ-5D-3 L...
July 7, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28683743/the-relationship-between-health-literacy-and-quality-of-life-among-frequent-users-of-health-care-services-a-cross-sectional-study
#13
Éva Marjorie Couture, Maud-Christine Chouinard, Martin Fortin, Catherine Hudon
BACKGROUND: Although health literacy and quality of life are important concepts in health care, the link between them is unclear, especially for a population of frequent users of health care services with chronic diseases. Low health literacy is a common problem that has been linked to several negative health outcomes. Quality of life is an important health outcome in patient-centered care. Frequent users of health care services are a vulnerable population that deserves attention due to high costs and negative outcomes such as lower quality of life and higher mortality...
July 6, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28679417/adherence-to-hydroxyurea-health-related-quality-of-life-domains-and-patients-perceptions-of-sickle-cell-disease-and-hydroxyurea-a-cross-sectional-study-in-adolescents-and-young-adults
#14
Sherif M Badawy, Alexis A Thompson, Jin-Shei Lai, Frank J Penedo, Karen Rychlik, Robert I Liem
BACKGROUND: Sickle cell disease (SCD) patients have impaired domains of health-related quality of life (HRQOL). Hydroxyurea is safe and efficacious in SCD; however, adherence is suboptimal, and patients' perceptions are poorly understood amongst adolescents and young adults (AYA). Study objectives were to: (1) examine patients' perceptions of SCD and hydroxyurea; and (2) explore the relationship of their perceptions to clinical characteristics, HRQOL domains and hydroxyurea adherence...
July 5, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28676060/the-development-of-a-health-related-quality-of-life-instrument-for-young-people-with-narcolepsy-narqol-21
#15
John E Chaplin, Attila Szakács, Tove Hallböök, Niklas Darin
BACKGROUND: Narcolepsy is a lifelong sleep disorder with a prevalence of between 0.03% and 0.06% and onset at around puberty. It is associated with psychiatric comorbidities and cognitive difficulties. No valid and reliable condition-specific health-related quality-of-life (HrQoL) instrument has been developed for this population. METHODS: A questionnaire based on four mixed-gender age-defined focus group discussions and a patient panel analysis was administered to young people with narcolepsy and a control group...
July 4, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28673360/how-great-is-the-medical-burden-of-disease-on-the-aged-research-based-on-system-of-health-account-2011
#16
Wenjuan Duan, Ang Zheng, Xin Mu, Mingyang Li, Chunli Liu, Wenzhong Huang, Xin Wang
BACKGROUND: The aging of population and the burden of disease among the aged have become one of the hot topics in the international health, and also brought tremendous pressure in the development of health service. METHODS: A total of 1,377,681 patients aged 65 years and over were collected with multistage stratified cluster random sampling in 252 medical institutions in Liaoning China, and "System of Health Account 2011" was conducted to analyze the expenditure of disease for the elderly...
July 3, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28668090/informal-caregivers-experience-of-supplemental-oxygen-in-pulmonary-fibrosis
#17
Bridget A Graney, Frederick S Wamboldt, Susan Baird, Tara Churney, Kaitlin Fier, Marjorie Korn, Mark McCormick, Thomas Vierzba, Jeffrey J Swigris
BACKGROUND: Patients prescribed supplemental oxygen (O2) therapy face challenges as they adjust to being constantly "tethered" to an oxygen delivery device. Informal caregivers (ICs) of patients with pulmonary fibrosis (PF) face their own, often overlooked hardships when O2 is brought into their home and added to their lives. Our aim was to understand the multiple effects of supplemental oxygen therapy on ICs of patients with PF. METHODS: We conducted single, semi-structured telephone interviews with twenty ICs of patients with PF who were using O2 for at least 8 months...
July 1, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28666465/the-association-between-physical-activity-and-health-related-quality-of-life-among-breast-cancer-survivors
#18
Woo-Kyoung Shin, Sihan Song, So-Youn Jung, Eunsook Lee, Zisun Kim, Hyeong-Gon Moon, Dong-Young Noh, Jung Eun Lee
BACKGROUND: The quality of life for breast cancer survivors has become increasingly important because of their high survival rate and prolonged life expectancy. The purpose of this study was to examine the association of physical activity following diagnosis and health-related quality of life (HRQOL) in breast cancer survivors. METHODS: We conducted a cross-sectional study of breast cancer survivors. A total of 231 women aged 21-78 years who had been diagnosed with stages I to III breast cancer and had breast cancer surgery at least 6 months prior were recruited from three hospitals between September 2012 and April 2015 and were included in this study...
June 30, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28662673/patient-reported-health-state-utilities-in-metastatic-gastroenteropancreatic-neuroendocrine-tumours-an-analysis-based-on-the-clarinet-study
#19
Yang Meng, Grant McCarthy, Anthony Berthon, Jerome Dinet
BACKGROUND: Gastroenteropancreatic neuroendocrine tumours (GEP-NETs) are rare cancers most often found in the gastrointestinal system or the pancreas. However, patient-reported health state utilities based on clinical trials have not been previously reported in this disease area. METHODS: The CLARINET study collected EORTC QLQ-C30 data from patients in both stable and progressive disease states, although data for the latter were only available during the early stage of progression due to trial design...
June 29, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28645287/health-related-quality-of-life-effects-of-enzalutamide-in-patients-with-metastatic-castration-resistant-prostate-cancer-an-in-depth-post-hoc-analysis-of-eq-5d-data-from-the-prevail-trial
#20
Nancy Devlin, Michael Herdman, Marco Pavesi, De Phung, Shevani Naidoo, Tomasz M Beer, Bertrand Tombal, Yohann Loriot, Cristina Ivanescu, Teresa Parli, Mark Balk, Stefan Holmstrom
BACKGROUND: The effect of enzalutamide on health-related quality of life (HRQoL) in the PREVAIL trial in chemotherapy-naïve men with metastatic castration-resistant prostate cancer was analyzed using the generic EQ-5D instrument. METHODS: Patients received oral enzalutamide 160 mg/day (n = 872) or placebo (n = 845). EQ-5D index and EQ-5D visual analogue scale (EQ-5D VAS) scores were evaluated at baseline, week 13, and every 12 weeks until week 61 due to sample size reduction thereafter...
June 23, 2017: Health and Quality of Life Outcomes
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