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International Journal of MS Care

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https://www.readbyqxmd.com/read/29270092/editorial
#1
EDITORIAL
Francois Bethoux
No abstract text is available yet for this article.
November 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/29270091/2017-ijmsc-reviewer-acknowledgment
#2
(no author information available yet)
No abstract text is available yet for this article.
November 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/29270090/alemtuzumab-in-multiple-sclerosis-lessons-from-social-media-in-enhancing-patient-care
#3
Louise Rath, Nirosen Vijiaratnam, Olga Skibina
Background: Alemtuzumab is a monoclonal antibody that has been approved for the treatment of relapsing-remitting multiple sclerosis (MS). Alemtuzumab is associated with infusion reactions and potential autoimmune complications. Patient education and understanding are crucial to favorable outcomes. Our objective was to observe communication on a peer-to-peer Facebook group for content, accuracy of posts, and number of "likes" per post and to compare shared themes to current approved prescribing information and educational modules...
November 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/29270089/barriers-to-the-accessibility-and-continuity-of-health-care-services-in-people-with-multiple-sclerosis-a-literature-review
#4
Chungyi Chiu, Malachy Bishop, J J Pionke, David Strauser, Ryan L Santens
Background: Individuals with multiple sclerosis (MS) face a range of barriers to accessing and using health-care services. The aim of this review was to identify specific barriers to accessing and using health-care services based on a continuum of the health-care delivery system. Methods: Literature searches were conducted in the PubMed, PsycINFO, CINAHL, and Web of Science databases. The following terms were searched as subject headings, key words, or abstracts: health care, access, barriers, physical disability, and multiple sclerosis...
November 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/29270088/shared-decision-making-and-autonomy-among-us-participants-with-multiple-sclerosis-in-the-narcoms-registry
#5
Stacey S Cofield, Nina Thomas, Tuula Tyry, Robert J Fox, Amber Salter
Background: Treatment decisions in multiple sclerosis (MS) are affected by many factors and are made by the patient, doctor, or both. With new disease-modifying therapies (DMTs) emerging, the complexity surrounding treatment decisions is increasing, further emphasizing the importance of understanding decision-making preferences. Methods: North American Research Committee on Multiple Sclerosis (NARCOMS) Registry participants completed the Fall 2014 Update survey, which included the Control Preferences Scale (CPS)...
November 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/29270087/fatigue-and-mood-states-in-nursing-home-and-nonambulatory-home-based-patients-with-multiple-sclerosis
#6
Zilfah Younus, Caila B Vaughn, Shaik Ahmed Sanai, Katelyn S Kavak, Sahil Gupta, Muhammad Nadeem, Barbara E Teter, Katia Noyes, Robert Zivadinov, Keith Edwards, Patricia K Coyle, Andrew Goodman, Bianca Weinstock-Guttman
Background: Multiple sclerosis (MS) is a chronic, progressively disabling condition of the central nervous system. We sought to evaluate and compare mood states in patients with MS with increased disability residing in nursing homes and those receiving home-based care. Methods: We conducted a cross-sectional analysis of the New York State Multiple Sclerosis Consortium to identify patients with MS using a Kurtzke Expanded Disability Status Scale (EDSS) score of 7...
November 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/29270086/triaging-patients-with-multiple-sclerosis-in-the-emergency-department-room-for-improvement
#7
Hesham Abboud, Karin Mente, Meagan Seay, Jeffrey Kim, Ashhar Ali, Robert Bermel, Mary A Willis
Background: Patients with multiple sclerosis (MS) present to the emergency department (ED) for various reasons. Although true relapse is rarely the underlying culprit, ED visits commonly result in new magnetic resonance imaging (MRI) and neurology admissions. We studied ED visits in patients with MS and evaluated decision making regarding diagnostic/therapeutic interventions and visit outcomes. We identified potential areas for improvement and used the data to propose a triaging algorithm for patients with MS in the ED...
November 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/29270085/project-extension-for-community-healthcare-outcomes-echo-in-multiple-sclerosis-increasing-clinician-capacity
#8
Kurt L Johnson, Deborah Hertz, Gary Stobbe, Kevin Alschuler, Rosalind Kalb, Katharine S Alexander, George H Kraft, John D Scott
Background: A pilot program using the Project Extension for Community Healthcare Outcomes (ECHO) model was conducted for multiple sclerosis (MS) clinicians in the Pacific Northwest. The pilot was a collaboration between the National Multiple Sclerosis Society and faculty at the University of Washington. The goal was to determine the feasibility of using this telehealth model to increase the capacity and capability of clinicians in rural areas to treat people with MS. Methods: Thirteen practice sites with 24 clinicians were recruited to participate...
November 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/29270084/access-to-and-use-of-clinical-services-and-disease-modifying-therapies-by-people-with-progressive-multiple-sclerosis-in-the-united-kingdom
#9
Evan Campbell, Elaine H Coulter, Paul Mattison, Angus McFadyen, Linda Miller, Lorna Paul
Background: According to current UK guidelines, everyone with progressive multiple sclerosis (MS) should have access to an MS specialist, but levels of access and use of clinical services is unknown. We sought to investigate access to MS specialists and use of clinical services and disease-modifying therapies (DMTs) by people with progressive MS in the United Kingdom. Methods: A UK-wide online survey was conducted via the UK MS Register. The inclusion criteria were age 18 years or older, primary or secondary progressive MS, and a member of the UK MS Register...
November 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/29070969/editorial
#10
Francois Bethoux
No abstract text is available yet for this article.
September 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/29070968/predictors-of-mortality-in-veterans-with-multiple-sclerosis-in-an-outpatient-clinic-setting
#11
Meheroz H Rabadi, Christopher E Aston
BACKGROUND: Examining factors that increase risk of death in veterans with multiple sclerosis (MS) may help reduce MS-related mortality. We sought to determine predictors of mortality in veterans with MS attending an outpatient clinic. METHODS: Review of electronic medical records of 226 veterans with MS regularly followed up from January 1, 2000, through December 31, 2014. RESULTS: Mortality at the end of the 15-year study period was 14%...
September 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/29070967/case-report-glatiramer-acetate-induced-serum-sickness
#12
Paul Ferguson
Multiple sclerosis (MS) is a central nervous system demyelinating disease with a prevalence of approximately 400,000 individuals in the United States. Glatiramer acetate is a frequently prescribed disease-modifying therapy used for the management of relapsing forms of the disease. A 40-year-old woman with relapsing-remitting MS presented with symptomatic concerns of vomiting, fever, diffuse rash, joint and low back pain, and distal lower-limb paresthesia and was subsequently admitted to the hospital for investigation and treatment...
September 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/29070966/psychometric-properties-of-a-clinical-strength-assessment-protocol-in-people-with-multiple-sclerosis
#13
Mark M Mañago, Jeffrey R Hebert, Margaret Schenkman
BACKGROUND: Strength training in people with multiple sclerosis (MS) is an important component of rehabilitation, but it can be challenging for clinicians to quantify strength accurately and reliably. This study investigated the psychometric properties of a clinical strength assessment protocol using handheld dynamometry and other objective, quantifiable tests for the lower extremities and trunk in people with MS. METHODS: This study determined discriminant validity between 25 participants with MS and 25 controls and between participants with MS who had higher versus lower disability; test-retest reliability across 7 to 10 days; and response stability...
September 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/29070965/validity-and-reliability-of-four-clinical-gait-measures-in-patients-with-multiple-sclerosis
#14
Susan E Bennett, Lacey E Bromley, Nadine M Fisher, Machiko R Tomita, Paulette Niewczyk
BACKGROUND: The gold standards for assessing ambulation are the Expanded Disability Status Scale (EDSS) and the Timed 25-Foot Walk (T25FW) test. In relation with these measures, we assessed the reliability and validity of four clinical gait measures: the Timed Up and Go (TUG) test, the Dynamic Gait Index (DGI), the 2-Minute Walk Test (2MWT), and the 6-Minute Walk Test (6MWT). Patient self-report of gait was also assessed using the 12-item Multiple Sclerosis Walking Scale (MSWS-12). METHODS: Individuals 20 years or older with a diagnosis of multiple sclerosis (MS) and an EDSS score of 2...
September 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/29070964/trigeminal-neuralgia-commonly-precedes-the-diagnosis-of-multiple-sclerosis
#15
Ahmad Fallata, Amber Salter, Tuula Tyry, Gary R Cutter, Ruth Ann Marrie
BACKGROUND: Trigeminal neuralgia (TN) is a well-recognized cause of facial pain in the general population, and multiple sclerosis (MS) accounts for some of these cases. However, the prevalence of TN in MS is poorly understood. We investigated the prevalence of TN and how often TN is the initial presentation of MS in a large MS cohort. METHODS: In 2009, we surveyed participants in the North America Research Committee on Multiple Sclerosis Registry regarding TN, including date of onset and pharmacologic and nonpharmacologic treatments used...
September 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/29070963/relationship-between-fatigability-and-perceived-fatigue-measured-using-the-neurological-fatigue-index-in-people-with-multiple-sclerosis
#16
Mayis Aldughmi, Jared Bruce, Catherine F Siengsukon
BACKGROUND: Understanding the relationship between perceived fatigue and performance fatigability could lead to more effective interventions to manage multiple sclerosis (MS)-related fatigue. However, the relationship between self-perceived fatigue measured using the Neurological Fatigue Index (NFI-MS) and performance fatigability in people with MS is unknown. We sought to explore the relationship between the NFI-MS and performance fatigability in people with MS. METHODS: Fifty-two participants (mean ± SD age, 46...
September 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/29070962/mindfulness-in-motion-for-people-with-multiple-sclerosis-a-feasibility-study
#17
Rachel M Gilbertson, Maryanna D Klatt
BACKGROUND: Mindfulness in Motion is an 8-week mindfulness-based intervention that uses yoga movement, mindfulness meditation, and relaxing music. This study examined the feasibility of using Mindfulness in Motion in people with multiple sclerosis (MS) and the effect of this program on stress, anxiety, depression, fatigue, and quality of life in people with MS. METHODS: Twenty-two people with MS completed the 8-week mindfulness program as well as assessments 1 week before and after the intervention...
September 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/28835747/editorial
#18
EDITORIAL
Francois Bethoux
No abstract text is available yet for this article.
July 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/28835746/effect-of-cognitive-demand-on-functional-mobility-in-ambulatory-individuals-with-multiple-sclerosis
#19
Marcia Aparecida Ciol, Patricia Noritake Matsuda, Seema Rani Khurana, Melissa Jaclyn Cline, Jacob Jonathan Sosnoff, George Howard Kraft
BACKGROUND: As disease progresses, cognitive demands may affect functional mobility in individuals with multiple sclerosis (MS). The Timed Up and Go (TUG) test assesses functional mobilityin populationssuch as MS. A cognitive-demanding task can be added to the TUG test to assess its effect on functional mobility. METHODS: People with MS (n = 52) and controls (n = 57) performed three versions of the TUG test: TUG alone (TUG-alone), TUG plus reciting the alphabet (TUG-alpha), and TUG plus subtracting numbers by 3s (TUG-3s)...
July 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/28835745/cultural-adaptation-validity-and-factor-structure-of-the-jalowiec-coping-scale-in-iranian-women-with-multiple-sclerosis-which-coping-strategies-are-most-common-and-effective
#20
Mohsen Saffari, Hormoz Sanaeinasab, Mahrokh Hashempour, Amir H Pakpour, Jesus F Lovera, Saad Al Shohaib
BACKGROUND: The aims of this study were to evaluate the Jalowiec Coping Scale (JCS) psychometrically in Iranian women with multiple sclerosis (MS) and to identify the most frequent and efficacious coping strategies. METHODS: A total of 306 women with MS participated in a cross-sectional study. A demographics questionnaire, the JCS, and the Perceived Stress Scale were administered. Forward-backward translation was used to achieve a Persian version of the scale. Cronbach α and test-retest were assessed for reliability...
July 2017: International Journal of MS Care
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