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International Journal of MS Care

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https://www.readbyqxmd.com/read/29681777/effects-of-torso-weighting-on-standing-balance-and-falls-during-the-sensory-organization-test-in-people-with-multiple-sclerosis
#1
Kristin K Horn, Diane D Allen, Cynthia Gibson-Horn, Gail L Widener
Background: In people with multiple sclerosis (MS), common gait and balance impairments can lead to falls, fear of falling, activity restriction, and social isolation. Sensory augmentation in the form of torso-weighting has resulted in improvement in gait and balance, but research on its effect on falls in MS is lacking. Methods: 60 people with MS and 10 bin-matched controls completed the Sensory Organization Test (SOT) while nonweighted and again while weighted using the Balance-Based Torso-Weighting assessment method...
March 2018: International Journal of MS Care
https://www.readbyqxmd.com/read/29670496/editorial
#2
EDITORIAL
Francois Bethoux
No abstract text is available yet for this article.
March 2018: International Journal of MS Care
https://www.readbyqxmd.com/read/29670495/impact-of-pilates-exercise-in-multiple-sclerosis-a-randomized-controlled-trial
#3
Whitney R D Duff, Justin W Andrushko, Doug W Renshaw, Philip D Chilibeck, Jonathan P Farthing, Jana Danielson, Charity D Evans
Background: Pilates is a series of exercises based on whole-body movement and may improve mobility in people with multiple sclerosis (MS). The purpose of this study was to determine the effect of Pilates on walking performance in people with MS. Methods: 30 individuals with MS who were not restricted to a wheelchair or scooter (Patient-Determined Disease Steps scale score <7) were randomized to receive Pilates (twice weekly) and massage therapy (once weekly) or once-weekly massage therapy only (control group)...
March 2018: International Journal of MS Care
https://www.readbyqxmd.com/read/29670494/social-identity-in-people-with-multiple-sclerosis-an-examination-of-family-identity-and-mood
#4
Alex B Barker, Nadina B Lincoln, Nigel Hunt, Roshan dasNair
Background: Mood disorders are highly prevalent in people with multiple sclerosis (MS). MS causes changes to a person's sense of self. The Social Identity Model of Identity Change posits that group membership can have a positive effect on mood during identity change. The family is a social group implicated in adjustment to MS. The objectives of this study were to investigate whether family identity can predict mood in people with MS and to test whether this prediction was mediated by social support and connectedness to others...
March 2018: International Journal of MS Care
https://www.readbyqxmd.com/read/29670493/diagnoses-of-depression-and-anxiety-versus-current-symptoms-and-quality-of-life-in-multiple-sclerosis
#5
Ruth Ann Marrie, Scott B Patten, Lindsay I Berrigan, Helen Tremlett, Christina Wolfson, Sharon Warren, Stella Leung, Kirsten M Fiest, Kyla A McKay, John D Fisk
Background: Studies assessing the prevalence of depression and anxiety in multiple sclerosis (MS) have used various ascertainment methods that capture different constructs. The relationships between these methods are incompletely understood. Psychiatric comorbidity is associated with lower health-related quality of life (HRQOL) in MS, but the effects of past diagnoses of depression and anxiety on HRQOL are largely unknown. We compared the prevalence of depression and anxiety in persons with MS using administrative data, self-reported physician diagnoses, and symptom-based measures and compared characteristics of persons classified as depressed or anxious by each method...
March 2018: International Journal of MS Care
https://www.readbyqxmd.com/read/29670492/fluid-attenuated-inversion-recovery-signal-intensity-as-a-predictor-of-gadolinium-enhancement-in-relapsing-remitting-multiple-sclerosis
#6
Mihail Guranda, Marco Essig, Ariane Poulin, Reza Vosoughi
Background: Magnetic resonance imaging (MRI) is used to diagnose and monitor disease activity in relapsing-remitting multiple sclerosis (RRMS). The objective of this study was to explore the association of "ultrabright" axial fluid-attenuated inversion recovery (FLAIR) lesions with gadolinium enhancement in patients with RRMS using qualitative and quantitative approaches. Methods: MRIs from patients with RRMS from 2010 to 2015 were reviewed. Two radiologists independently identified ultrabright lesions on axial FLAIR sequences...
March 2018: International Journal of MS Care
https://www.readbyqxmd.com/read/29670491/a-longitudinal-evaluation-of-cognitive-fatigue-on-a-task-of-sustained-attention-in-early-relapsing-remitting-multiple-sclerosis
#7
Jason A Berard, Andra M Smith, Lisa A S Walker
Background: Cognitive fatigue can be objectively measured on tasks of sustained attention and can be defined as decreased performance as a result of sustained cognitive effort. Individuals with multiple sclerosis (MS) early in their disease are vulnerable to cognitive fatigue, although this has yet to be evaluated longitudinally. We aimed to evaluate cognitive fatigue over a 3-year interval in individuals with early-phase relapsing-remitting MS (RRMS). The sensitivity of the Paced Auditory Serial Addition Test (PASAT) at detecting cognitive fatigue was evaluated, as was the impact of scoring method...
March 2018: International Journal of MS Care
https://www.readbyqxmd.com/read/29507544/editorial
#8
EDITORIAL
Francois Bethoux
No abstract text is available yet for this article.
January 2018: International Journal of MS Care
https://www.readbyqxmd.com/read/29507543/reliability-and-validity-of-a-danish-version-of-the-multiple-sclerosis-neuropsychological-screening-questionnaire
#9
Tobias Sejbæk, Morten Blaabjerg, Pippi Sprogøe, Mads Ravnborg
Background: More than half of all patients with multiple sclerosis (MS) acquire cognitive impairment as part of their disease progression. Because cognitive dysfunction adds substantially to disability and coping strategies, a cost-effective screening tool is needed for cognitive impairment. The Multiple Sclerosis Neuropsychological Screening Questionnaire (MSNQ) has previously shown good validity in American, Argentinean, and Dutch MS cohorts. We sought to test reliability and validity of a Danish translation of the MSNQ compared with formal neuropsychological testing, and measures of depression and disability, and to compare self-reported cognition with Symbol Digit Modalities Test (SDMT) results...
January 2018: International Journal of MS Care
https://www.readbyqxmd.com/read/29507542/-short-report-evaluation-of-acceptance-and-commitment-therapy-training-for-psychologists-working-with-people-with-multiple-sclerosis
#10
Kenneth I Pakenham, Theresa Scott, Michele Messmer Uccelli
Background: Acceptance and commitment therapy (ACT) is the most widely used and researched recent variant of cognitive behavioral therapy and has been shown to increase quality of life in people with chronic illnesses, including multiple sclerosis (MS). However, few MS health practitioners are trained in ACT. This study evaluated a 2-day ACT training workshop for Italian psychologists working with people with MS. Methods: Data were collected via online questionnaires from 34 psychologists before the workshop, after the workshop, and at 6-month follow-up...
January 2018: International Journal of MS Care
https://www.readbyqxmd.com/read/29507541/projecting-the-adequacy-of-the-multiple-sclerosis-neurologist-workforce
#11
Michael T Halpern, Heather Kane, Stephanie Teixeira-Poit, Corey Ford, Barbara Giesser, June Halper, Shana Johnson, Nicholas G LaRocca, Aaron Miller, Steven P Ringel
Background: Anecdotal reports suggest shortages among neurologists who provide multiple sclerosis (MS) patient care. However, little information is available regarding the current and future supply of and demand for this neurologist workforce. Methods: We used information from neurologist and neurology resident surveys, professional organizations, and previously reported studies to develop a model assessing the projected supply and demand (ie, expected physician visits) of neurologists providing MS patient care...
January 2018: International Journal of MS Care
https://www.readbyqxmd.com/read/29507540/association-between-pain-and-mindfulness-in-multiple-sclerosis-a-cross-sectional-survey
#12
Angela Senders, Alena Borgatti, Douglas Hanes, Lynne Shinto
Background: Chronic pain is a common symptom in people with multiple sclerosis (MS) and often requires a multimodal approach to care. The practice of mindfulness has been shown to decrease the experience of pain in other conditions, yet little is known about the relationship between mindfulness and pain in people with MS. The objective of this study was to evaluate the association between pain interference and trait mindfulness in people with MS. Methods: In this cross-sectional survey, 132 people with any type of MS completed the Patient-Reported Outcomes Measurement Information System Pain Interference scale and the Five Facet Mindfulness Questionnaire...
January 2018: International Journal of MS Care
https://www.readbyqxmd.com/read/29507539/feasibility-of-an-international-multiple-sclerosis-rehabilitation-data-repository-perceived-challenges-and-motivators-for-sharing-data
#13
Elissa Held Bradford, Ilse Baert, Marcia Finlayson, Peter Feys, Joanne Wagner
Background: Multiple sclerosis (MS) rehabilitation evidence is limited due to methodological factors, which may be addressed by a data repository. We describe the perceived challenges of, motivators for, interest in participating in, and key features of an international MS rehabilitation data repository. Methods: A multimethod sequential investigation was performed with the results of two focus groups, using nominal group technique, and study aims informing the development of an online questionnaire...
January 2018: International Journal of MS Care
https://www.readbyqxmd.com/read/29507538/pregnancy-outcomes-from-the-branded-glatiramer-acetate-pregnancy-database
#14
Magnhild Sandberg-Wollheim, Orit Neudorfer, Augusto Grinspan, Bianca Weinstock-Guttman, Judith Haas, Guillermo Izquierdo, Claire Riley, Amy Perrin Ross, Peleg Baruch, Talya Drillman, Patricia K Coyle
Background: Appropriate counseling and treatment for women with multiple sclerosis (MS) who may become pregnant requires an understanding of the effects of exposure to disease-modifying therapies (DMTs) during pregnancy. Current reports and studies are limited in their usefulness, mostly by small sample size. Branded glatiramer acetate (GA) is a DMT approved for the treatment of relapsing forms of MS. For more than 2 decades, it has been shown to be efficacious and to have a favorable safety profile...
January 2018: International Journal of MS Care
https://www.readbyqxmd.com/read/29507537/sedentary-behavior-and-blood-pressure-in-patients-with-multiple-sclerosis
#15
Elizabeth A Hubbard, Robert W Motl, Bo Fernhall
Background: Sedentary behavior is a pervasive public health concern in the general population. To date, little is known regarding the possible health risks associated with sedentary behavior in patients with multiple sclerosis (MS), although this population has increased risks of comorbidities such as hypertension. Methods: This cross-sectional study examined the association between sedentary behavior and blood pressure (BP) in 31 patients with MS and 31 matched controls...
January 2018: International Journal of MS Care
https://www.readbyqxmd.com/read/29270092/editorial
#16
EDITORIAL
Francois Bethoux
No abstract text is available yet for this article.
November 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/29270090/alemtuzumab-in-multiple-sclerosis-lessons-from-social-media-in-enhancing-patient-care
#17
Louise Rath, Nirosen Vijiaratnam, Olga Skibina
Background: Alemtuzumab is a monoclonal antibody that has been approved for the treatment of relapsing-remitting multiple sclerosis (MS). Alemtuzumab is associated with infusion reactions and potential autoimmune complications. Patient education and understanding are crucial to favorable outcomes. Our objective was to observe communication on a peer-to-peer Facebook group for content, accuracy of posts, and number of "likes" per post and to compare shared themes to current approved prescribing information and educational modules...
November 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/29270089/barriers-to-the-accessibility-and-continuity-of-health-care-services-in-people-with-multiple-sclerosis-a-literature-review
#18
Chungyi Chiu, Malachy Bishop, J J Pionke, David Strauser, Ryan L Santens
Background: Individuals with multiple sclerosis (MS) face a range of barriers to accessing and using health-care services. The aim of this review was to identify specific barriers to accessing and using health-care services based on a continuum of the health-care delivery system. Methods: Literature searches were conducted in the PubMed, PsycINFO, CINAHL, and Web of Science databases. The following terms were searched as subject headings, key words, or abstracts: health care, access, barriers, physical disability, and multiple sclerosis ...
November 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/29270088/shared-decision-making-and-autonomy-among-us-participants-with-multiple-sclerosis-in-the-narcoms-registry
#19
Stacey S Cofield, Nina Thomas, Tuula Tyry, Robert J Fox, Amber Salter
Background: Treatment decisions in multiple sclerosis (MS) are affected by many factors and are made by the patient, doctor, or both. With new disease-modifying therapies (DMTs) emerging, the complexity surrounding treatment decisions is increasing, further emphasizing the importance of understanding decision-making preferences. Methods: North American Research Committee on Multiple Sclerosis (NARCOMS) Registry participants completed the Fall 2014 Update survey, which included the Control Preferences Scale (CPS)...
November 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/29270087/fatigue-and-mood-states-in-nursing-home-and-nonambulatory-home-based-patients-with-multiple-sclerosis
#20
Zilfah Younus, Caila B Vaughn, Shaik Ahmed Sanai, Katelyn S Kavak, Sahil Gupta, Muhammad Nadeem, Barbara E Teter, Katia Noyes, Robert Zivadinov, Keith Edwards, Patricia K Coyle, Andrew Goodman, Bianca Weinstock-Guttman
Background: Multiple sclerosis (MS) is a chronic, progressively disabling condition of the central nervous system. We sought to evaluate and compare mood states in patients with MS with increased disability residing in nursing homes and those receiving home-based care. Methods: We conducted a cross-sectional analysis of the New York State Multiple Sclerosis Consortium to identify patients with MS using a Kurtzke Expanded Disability Status Scale (EDSS) score of 7...
November 2017: International Journal of MS Care
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