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International Journal of MS Care

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https://www.readbyqxmd.com/read/28835747/editorial
#1
EDITORIAL
Francois Bethoux
No abstract text is available yet for this article.
July 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/28835746/effect-of-cognitive-demand-on-functional-mobility-in-ambulatory-individuals-with-multiple-sclerosis
#2
Marcia Aparecida Ciol, Patricia Noritake Matsuda, Seema Rani Khurana, Melissa Jaclyn Cline, Jacob Jonathan Sosnoff, George Howard Kraft
BACKGROUND: As disease progresses, cognitive demands may affect functional mobility in individuals with multiple sclerosis (MS). The Timed Up and Go (TUG) test assesses functional mobilityin populationssuch as MS. A cognitive-demanding task can be added to the TUG test to assess its effect on functional mobility. METHODS: People with MS (n = 52) and controls (n = 57) performed three versions of the TUG test: TUG alone (TUG-alone), TUG plus reciting the alphabet (TUG-alpha), and TUG plus subtracting numbers by 3s (TUG-3s)...
July 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/28835745/cultural-adaptation-validity-and-factor-structure-of-the-jalowiec-coping-scale-in-iranian-women-with-multiple-sclerosis-which-coping-strategies-are-most-common-and-effective
#3
Mohsen Saffari, Hormoz Sanaeinasab, Mahrokh Hashempour, Amir H Pakpour, Jesus F Lovera, Saad Al Shohaib
BACKGROUND: The aims of this study were to evaluate the Jalowiec Coping Scale (JCS) psychometrically in Iranian women with multiple sclerosis (MS) and to identify the most frequent and efficacious coping strategies. METHODS: A total of 306 women with MS participated in a cross-sectional study. A demographics questionnaire, the JCS, and the Perceived Stress Scale were administered. Forward-backward translation was used to achieve a Persian version of the scale. Cronbach α and test-retest were assessed for reliability...
July 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/28835744/depression-and-age-at-first-neurology-appointment-associated-with-receipt-of-behavioral-medicine-services-within-1-year-in-a-multiple-sclerosis-population
#4
Benjamin Greenberg, Youran Fan, Lucille Carriere, Amy Sullivan
BACKGROUND: Patients with multiple sclerosis (MS) newly seen by a neurologist may benefit from early psychological intervention owing to the reciprocal relationship between stress and disease progression. However, it is uncertain what factors contribute to patients' receiving these services. METHODS: Logistic regression analysis of prospectively gathered data evaluated how demographic and disease characteristics and emotional/physical health factors contributed to referral to receive behavioral medicine (BM) services within 1 year of their first neurology appointment at the Mellen Center for Multiple Sclerosis at the Cleveland Clinic...
July 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/28835743/how-beliefs-about-bladder-dysfunction-among-health-care-professionals-influence-clinical-practice-development-perspectives-of-allied-health-professionals-nurses-and-managers
#5
Catherine Browne, Maria Kehoe, Nancy Salmon
BACKGROUND: Bladder dysfunction can affect up to 75% of people with multiple sclerosis (MS) on several important life domains. It is a multifaceted problem that remains underdiagnosed by health-care professionals. The aims of this study were to understand the perceptions of Irish health-care professionals regarding bladder dysfunction and to explore current service provision for people with MS. METHODS: Two focus groups, three dyadic interviews, and one semistructured interview with 14 health-care professionals lasting up to 90 minutes were audio-recorded...
July 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/28835742/associations-between-bladder-dysfunction-and-falls-in-people-with-relapsing-remitting-multiple-sclerosis
#6
Jaime E Zelaya, Charles Murchison, Michelle Cameron
BACKGROUND: Bladder dysfunction and falls are common in people with multiple sclerosis (MS), but associations between these problems are unclear. We sought to clarify the association between specific types of bladder dysfunction and prospectively recorded falls in people with MS. METHODS: Fifty-one people aged 18 to 50 years with relapsing-remitting MS and mild-to-moderate disability (Expanded Disability Status Scale score ≤6.0) completed a self-report questionnaire regarding urinary incontinence, urgency, and frequency at baseline and then prospectively recorded their falls daily for 3 months using fall calendars...
July 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/28835741/preferences-for-multiple-sclerosis-treatments-using-a-discrete-choice-experiment-to-examine-differences-across-subgroups-of-us-patients
#7
Carol Mansfield, Nina Thomas, David Gebben, Maria Lucas, A Brett Hauber
BACKGROUND: The growing number of treatments for relapsing multiple sclerosis (MS) provides opportunities to consider patient preferences in treatment decisions. METHODS: We designed a Web-based, discrete-choice experiment survey to analyze treatment preferences in patients with relapsing-remitting MS (RRMS). The survey presented hypothetical MS treatments defined by six attributes: risk of MS progression, time between relapses, risk of serious infection, treatment-related flu-like symptoms and gastrointestinal symptoms, and route and frequency of administration...
July 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/28835740/women-s-and-men-s-differing-experiences-of-health-lifestyle-and-aging-with-multiple-sclerosis
#8
Michelle Ploughman, Katie Collins, Elizabeth M Wallack, Michael Monks, Nancy Mayo
BACKGROUND: The growing population of older people with multiple sclerosis (MS) has led to more interest in understanding factors associated with healthy aging. We aimed to determine whether older women and men with MS have different health and lifestyle behaviors and whether there are sex differences in contributors to perceived health. METHODS: Data were obtained from a postal survey involving 743 Canadians older than 55 years with MS for at least 20 years. Sex differences in health, lifestyle, mood, and socioeconomics were examined using analysis of variance...
July 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/28603466/editorial
#9
EDITORIAL
Francois Bethoux
No abstract text is available yet for this article.
May 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/28603465/spinal-cord-as-an-adjunct-to-brain-magnetic-resonance-imaging-in-defining-no-evidence-of-disease-activity-in-multiple-sclerosis
#10
Subhash Tummala, Tarun Singhal, Vinit V Oommen, Gloria Kim, Fariha Khalid, Brian C Healy, Rohit Bakshi
Background: Monitoring patients with multiple sclerosis (MS) for “no evidence of disease activity” (NEDA) may help guide disease-modifying therapy (DMT) management decisions. Whereas surveillance brain magnetic resonance imaging (MRI) is common, the role of spinal cord monitoring for NEDA is unknown. Objective: To evaluate the role of brain and spinal cord 3T MRI in the 1-year evaluation of NEDA. Methods: Of 61 study patients (3 clinically isolated syndrome, 56 relapsing-remitting, 2 secondary progressive), 56 (91...
May 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/28603464/reliability-and-validity-of-the-computerized-dynamic-posturography-sensory-organization-test-in-people-with-multiple-sclerosis
#11
Jeffrey R Hebert, Mark M Manago
BACKGROUND: People with multiple sclerosis (MS) frequently have impaired postural control (balance). Psychometric properties of clinical tests of balance for individuals with MS, including the computerized dynamic posturography sensory organization test (CDP-SOT), are poorly understood. This study aimed to determine the reliability and discriminant validity of the CDP-SOT in people with MS. METHODS: The CDP-SOT was performed on 30 participants with MS. A 2-week-interval, repeated-measures (sessions 1 and 2) design was implemented to investigate test-retest reliability of the CDP-SOT and the ability of the CDP-SOT to discriminate between participants with lower versus higher disability...
May 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/28603463/case-report-two-cases-of-nicolau-syndrome-associated-with-glatiramer-acetate
#12
Dorlan J Kimbrough, Scott D Newsome
We report two cases of Nicolau syndrome (embolia cutis medicamentosa), a rare complication of injectable medications, both associated with the administration of 20 mg of subcutaneous glatiramer acetate. Both patients required surgical debridement and were subsequently treated conservatively without additional complications. Patient 1 opted to discontinue disease-modifying therapy. Patient 2 continued glatiramer acetate therapy without complications by using other injection sites. These cases highlight the need for prompt investigation of new unusual skin lesions in patients receiving injectable multiple sclerosis treatments (regardless of length of treatment and previous minor cosmetic concerns) and illustrate the clinical distinction between Nicolau syndrome and drug-induced skin necrosis...
May 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/28603462/immune-response-to-seasonal-influenza-vaccine-in-patients-with-relapsing-remitting-multiple-sclerosis-receiving-long-term-daclizumab-beta-a-prospective-open-label-single-arm-study
#13
Lahar Mehta, Kimberly Umans, Gulden Ozen, Randy R Robinson, Jacob Elkins
BACKGROUND: For patients with relapsing-remitting multiple sclerosis (RRMS) undergoing continuous immunomodulatory therapy, understanding whether vaccinations can be performed safely and effectively is important. We tested the immune response to inactivated seasonal influenza vaccine during long-term daclizumab beta treatment. METHODS: In this prospective, open-label, single-arm extension SELECTED study, an optional vaccine substudy was performed on patients with RRMS who had already received daclizumab beta for 1 to 2 years in previous studies...
May 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/28603461/perceptions-of-multiple-sclerosis-in-hispanic-americans-need-for-targeted-messaging
#14
Ozioma Obiwuru, Sarah Joseph, Lihua Liu, Ana Palomeque, Leslie Tarlow, Annette M Langer-Gould, Lilyana Amezcua
BACKGROUND: Illness perceptions have been reported to be important determinants of multiple sclerosis (MS)-related well-being. Hispanic culture is defined by strong cultural beliefs in which illness is often perceived to arise from strong emotions. Understanding the perceptions of MS in Hispanic Americans may provide a better understanding of cultural barriers that may exist. The purpose of this study was to describe Hispanic American perceptions of MS. METHODS: We gathered information from semistructured interviews, focus groups, and participant responses from the University of Southern California Hispanic MS Registry...
May 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/28603460/cultivating-the-multiple-sclerosis-workforce-of-the-future
#15
Gabriele C DeLuca, Guy Buckle, Irene Cortese, Jennifer S Graves, June Halper, Scott D Newsome, Nancy Sicotte, Corey C Ford
Multiple sclerosis (MS) is a complex neurologic disorder that affects people with ever-changing needs. The MS health-care field has entered an era of exponential knowledge growth in which better understanding of the immunologic dysregulation of the disease has translated into an expanding array of treatment options. It is estimated that, if it has not already, within the next decade the demands of a growing MS patient population will outstrip the number of professionals dedicated to the management of this chronic, lifelong disease...
May 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/28603459/outcomes-after-functional-electrical-stimulation-cycle-training-in-individuals-with-multiple-sclerosis-who-are-nonambulatory
#16
Deborah Backus, Blake Burdett, Laura Hawkins, Christine Manella, Kevin K McCully, Mark Sweatman
BACKGROUND: Exercise is safe and beneficial for people with multiple sclerosis (MS). Functional electrical stimulation (FES) cycling offers people with significant weakness and mobility challenges an option for exercise. We sought to evaluate the safety of FES cycling and its potential to improve fatigue, pain, spasticity, and quality of life in people with moderate-to-severe MS. METHODS: Sixteen participants with MS who were nonambulatory cycled for 30 minutes two to three times a week for 1 month...
May 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/28243187/editorial
#17
Francois Bethoux
No abstract text is available yet for this article.
January 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/28243186/a-framework-of-care-in-multiple-sclerosis-part-2-symptomatic-care-and-beyond
#18
Scott D Newsome, Philip J Aliotta, Jacquelyn Bainbridge, Susan E Bennett, Gary Cutter, Kaylan Fenton, Fred Lublin, Dorothy Northrop, David Rintell, Bryan D Walker, Megan Weigel, Kathleen Zackowski, David E Jones
The Consortium of Multiple Sclerosis Centers (CMSC) convened a Framework Taskforce composed of a multidisciplinary group of clinicians and researchers to examine and evaluate the current models of care in multiple sclerosis (MS). The methodology of this project included analysis of a needs assessment survey and an extensive literature review. The outcome of this work is a two-part continuing education series of articles. Part 1, published previously, covered the updated disease phenotypes of MS along with recommendations for the use of disease-modifying therapies...
January 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/28243185/immediate-effect-of-a-service-dog-on-walking-speed-in-individuals-with-multiple-sclerosis-and-gait-dysfunction-a-pilot-study
#19
Cecilie Fjeldstad, Gabriel Pardo
No abstract text is available yet for this article.
January 2017: International Journal of MS Care
https://www.readbyqxmd.com/read/28243184/feasibility-and-impact-of-an-8-week-integrative-yoga-program-in-people-with-moderate-multiple-sclerosis-related-disability-a-pilot-study
#20
Evan T Cohen, David Kietrys, Susan Gould Fogerite, Mariella Silva, Kristen Logan, Donald A Barone, J Scott Parrott
BACKGROUND: This pilot study determined the feasibility of a specifically designed 8-week yoga program for people with moderate multiple sclerosis (MS)-related disability. We explored the program's effect on quality of life (QOL) and physical and mental performance. METHODS: We used a single-group design with repeated measurements at baseline, postintervention, and 8-week follow-up. Feasibility was examined through cost, recruitment, retention, attendance, and safety...
January 2017: International Journal of MS Care
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