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Sheelah Connolly
Given the expected increase in the number of people with dementia in the coming years, it is anticipated that the resources necessary to support those with dementia will significantly increase. There will therefore likely be increased emphasis on how best to use limited resources across a number of domains including prevention, diagnosis, treatment and supporting informal caregivers. There has been increasing use of economic methods in dementia in the past number of years, in particular, cost-of-illness analysis and economic evaluation...
September 19, 2018: Dementia
Emma Ferguson-Coleman, Alice Johnston, Alys Young, Fiona Brown, Ruth de Sainte Croix, Paul Redfern
Deaf sign language users living with dementia and their carers, some of whom are Deaf, routinely face everyday barriers in accessing information, support (both formal and informal) and services. The familial care situation is further complicated given that most Deaf people will choose a life partner who is Deaf and most Deaf couples will have hearing children. This study focussed specifically on the everyday experiences of Deaf carers and the impact of caring for a loved one with dementia. Drawing on data from a wider consultation about dementia care, three Deaf carers were directly interviewed in British Sign Language by a Deaf researcher about their everyday experiences of care, support, and services...
September 17, 2018: Dementia
Traci Walker, Heidi Christensen, Bahman Mirheidari, Thomas Swainston, Casey Rutten, Imke Mayer, Daniel Blackburn, Markus Reuber
Previous work on interactions in the memory clinic has shown that conversation analysis can be used to differentiate neurodegenerative dementia from functional memory disorder. Based on this work, a screening system was developed that uses a computerised 'talking head' (intelligent virtual agent) and a combination of automatic speech recognition and conversation analysis-informed programming. This system can reliably differentiate patients with functional memory disorder from those with neurodegenerative dementia by analysing the way they respond to questions from either a human doctor or the intelligent virtual agent...
September 14, 2018: Dementia
Gary Hodge
Objectives The objective of this literature review and synthesis of data was to consider the presence, drivers, and protectors of suicidality in people diagnosed with dementia. The review also considered what factors represented an increased risk of suicidality. Finally, it reflected on the morality and ethics of choice when discussing dying in dementia. Method This article used a critical interpretive synthesis model which interpreted data associated with the subject of suicidality in dementia. A sample frame was used to determine the quality and relevance of extracted data, and finally to construct a critical interpretive synthesis...
September 14, 2018: Dementia
Mohsen Saffari, Harold G Koenig, Keisha N O'Garo, Amir H Pakpour
Background A considerable number of the persons living with dementia rely on family members for care and assistance when performing activities of daily living. As a result, caregivers may be at increased risk for mental health problems such as depression, anxiety and caregiver burden. This study examined if and how spiritual coping and stigma-related family stress impacted the associations between the patient activities of daily living impairment and caregiver mental health. Methods Using a longitudinal design, 664 caregivers were assessed at baseline for spiritual coping strategies and family stigma stress, along with patients' instrumental activities of daily living and cognitive functioning...
September 11, 2018: Dementia
Charlotte L Clarke, Jane Wilcockson, Julie Watson, Heather Wilkinson, Sarah Keyes, Lindsay Kinnaird, Toby Williamson
Dementia is emerging from the shadows of societal exclusion and stigma. The engagement within society for people who are marginalised is co-constructed through the everyday practices that take place between them and those around them. However, this is inherently political, positioning people as active and activist in the relationship of their lives with their communities. The research aimed to interrogate an existing qualitative dataset in partnership with people living with dementia to inform the development of a way of working with people with dementia that is empowering...
September 11, 2018: Dementia
Garuth Chalfont, Christine Milligan, Jane Simpson
Objective Multimodal non-pharmacological interventions have been argued to have the potential to complement current pharmacological approaches to improving quality of life for people living with dementia. The aim of this review was to identify, synthesise and appraise the evidence for the effectiveness of multimodal non-pharmacological interventions for improving cognitive function specifically. Method After a comprehensive search strategy including grey literature, 26 studies were reviewed. The inclusion criteria concerned adults with a primary diagnosis of dementia...
September 7, 2018: Dementia
Assumpta A Ryan, Claire O McCauley, Elizabeth A Laird, Aideen Gibson, Maurice D Mulvenna, Raymond Bond, Brendan Bunting, Kevin Curran, Finola Ferry
The aim of this qualitative study was to explore the impact of a home-based, personalised reminiscence programme facilitated through an iPad app on people living with dementia and their family carers. Semi-structured interviews were used to collect data from 15 people living with dementia and 17 family carers from a region of the United Kingdom. The interviews were recorded, transcribed and analysed using thematic analysis. Six key themes emerged related to usability ('It's part of my life now'); revisiting the past ('Memories that are important to me'); home use ('It was homely'); impact on the person living with dementia ('It helped me find myself again'); gains and abilities ('There is still so much inside') and impact on relationships ('It's become very close')...
September 7, 2018: Dementia
Nadine Cameron, Deirdre Fetherstonhaugh, Michael Bauer, Laura Tarzia
This paper considers the significance of how staff in residential aged care facilities interpret the non-verbal communication and behaviour of residents vis-a-vis their assessments of residents' preferences and ability to participate in decision-making. It highlights the risks associated with staff members' failure to interpret residents' non-verbal communication and behaviour with reference to residents' backgrounds and prior experiences. It also considers how non-verbal communication implemented by staff may impact residents' emotional state and, as a consequence, decision-making abilities...
September 6, 2018: Dementia
Swati Bajpai, Manjari Tripathi, R M Pandey, A B Dey, Ashima Nehra
Introduction Alzheimer's disease is a gradual and progressive disorder which cripples the person's functionality due to cognitive decline. Many clinicopathological and pharmacological therapy has the potential to slow down the progression of the disease but has limited efficacy. One complimentary approach that has emerged is cognitive training interventions which have shown synergistic effect with the drug therapy. Nevertheless, many cognitive interventions lack on specificities of the intervention due to which its efficacy gets scrutinized...
September 4, 2018: Dementia
Anna Volkmer, Aimee Spector, Jason D Warren, Suzanne Beeke
Objective To assess the extent of UK speech and language therapy engagement in assessment and management of primary progressive aphasia, determine the factors contributing to any shortfall and explore a gap in the research literature on current speech and language therapy practices with people with primary progressive aphasia. Methods A 37-item, pilot-tested survey was distributed electronically via clinical networks and through the Royal College of Speech and Language Therapists. Survey items included questions on intervention approaches, referral numbers and demographics, referral sources and access to services...
September 4, 2018: Dementia
Peter Kevern, Hans Stifoss-Hanssen
Although one writer has called dementia 'the theological disease', there has been remarkably little research on how people with dementia and their carers find spiritual meaning and significance in their experience. While there is a significant body of literature examining the role of existing spiritual or religious beliefs and practices in supporting the carer of a person with dementia, there is very little research which offers an insight into the reverse process: how the experience of caring challenges a carer's sources of spiritual or religious meaning, and what strategies are adopted to resolve the experienced tension between belief and experience...
August 31, 2018: Dementia
Kerrie Westaway, Janet Sluggett, Christopher Alderman, Anna Moffat, Nicholas Procter, Elizabeth Roughead
At least half of all residents of Australian residential aged care facilities have dementia. Most residents living with dementia will at some stage experience behavioural and psychological symptoms of dementia (BPSD), which can be challenging to manage and distressing for the resident, their family and carers. This literature review examined the prevalence of antipsychotic use in Australian residential aged care facilities, which may be used to manage BPSD only after non-pharmacological treatments have failed...
August 28, 2018: Dementia
Man-Li Liao, Sheng-Jung Ou, Chung Heng Hsieh, Zhelin Li, Chia-Chun Ko
The number of people with dementia is increasing rapidly worldwide. Developing strategies to improve quality of life for those with dementia is crucial and is receiving more attention. Natural environments are known for their healing effects on most people. This pilot study aimed to understand the benefits that natural environments, such as gardens, can provide for people with dementia. In total, 42 staff members in nine dementia care facilities were recruited as participants in this study and answered a semistructured questionnaire...
August 28, 2018: Dementia
Andrea M Mayrhofer, Elspeth Mathie, Jane McKeown, Claire Goodman, Lisa Irvine, Natalie Hall, Michael Walker
Whilst the support requirements of people diagnosed with young onset dementia are well-documented, less is known about what needs to be in place to provide age-appropriate care. To understand priorities for service planning and commissioning and to inform the design of a future study of community-based service delivery models, we held two rounds of discussions with four groups of people affected by young onset dementia (n = 31) and interviewed memory services (n = 3) and non-profit service providers (n = 7) in two sites in England...
August 19, 2018: Dementia
Stina Bjørnskov, Anders Møller Jensen, Rikke Gregersen
Although films and television are frequently used in nursing homes, there is limited knowledge of how they affect people with dementia. Life in the Memories is a collection of 50 short films targeted at people with dementia. The overall objective of the study was to assess the usability of these films in nursing homes and whether they can be used for reminiscence purposes. Workshops were carried out in seven nursing homes, followed by four weeks of practice testing. Data were obtained from 63 professional caregivers working with residents with dementia through a cross-sectional survey and focus group interviews...
August 19, 2018: Dementia
Karen Hutchinson, Chris Roberts, Pamela Roach, Susan Kurrle
Families living with younger onset dementia face unique social challenges, which services do not currently address. There is a gap in understanding the experiences of families affected by younger onset dementia, including the interactions and relationships within the family units, and with existing services and supports. In this qualitative research study, semi-structured interviews were conducted across Australia with seven health and social care providers, five persons living with younger onset dementia, six spouse/carers, and 17 children...
August 15, 2018: Dementia
Sue Booth, Gabriella Zizzo, Jacinta Robertson, Ian Goodwin Smith
Altered behaviour associated with dementia can present a number of challenges in the provision of care within both community and residential aged care settings. This paper presents a qualitative case study investigation of the implementation of the Positive Interactive Engagement programme within a residential aged care setting. The Positive Interactive Engagement programme incorporates non-pharmacological sensory techniques that have been informed by a person-centred, Montessori approach. Face-to-face semi-structured interviews with workers at a residential aged care facility in South Australia yielded seven case studies...
August 13, 2018: Dementia
Emmanuel Tsekleves, Amanda F Bingley, Maria A Luján Escalante, Adrian Gradinar
Stimulating active, social interactions for people with dementia is an important and timely challenge that merits continuing attention in design research. The idea of using participatory co-design to engage people with dementia is attracting increased interest. In this paper, we draw on our qualitative study that used a playful, participatory arts approach to explore the ways co-design could be implemented in a group of 12 people with dementia and their carers, and developed practical recommendations, in the form of a set of playing cards, for other researchers and caregivers to work in similar ways...
August 8, 2018: Dementia
Catherine Talbot, Siobhan O'Dwyer, Linda Clare, Janet Heaton, Joel Anderson
There is a growing body of research on the use of Twitter by people with health conditions, but it does not include people with dementia. In this brief report, we aim to: (1) determine whether people with dementia are using Twitter; (2) provide an estimate of the number of Twitter account holders who identify as having a diagnosis of dementia; and (3) examine the demographic characteristics of these account holders. Tweetcatcher was used to identify tweets containing the search terms 'dementia' or 'Alzheimer'...
August 6, 2018: Dementia
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