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BMC Palliative Care

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https://www.readbyqxmd.com/read/30404631/bereaved-parents-experiences-of-research-participation
#1
Ashleigh E Butler, Helen Hall, Beverley Copnell
BACKGROUND: As understandings of the impacts of end-of-life experiences on parents' grief and bereavement increase, so too does the inclusion of bereaved parents into research studies exploring these experiences. However, designing and obtaining approval for these studies can be difficult, as guidance derived from bereaved parents' experiences of the research process are limited within the current literature. METHODS: We aimed to explore bereaved parents' experiences of research participation in a larger grounded theory study exploring experiences of the death of a child in the paediatric intensive care unit...
November 7, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/30390662/correction-to-the-prognosis-in-palliative-care-study-ii-pips2-study-protocol-for-a-multi-centre-prospective-observational-cohort-study
#2
Anastasia K Kalpakidou, Chris Todd, Vaughan Keeley, Jane Griffiths, Karen Spencer, Victoria Vickerstaff, Rumana Z Omar, Patrick Stone
After publication, the authors noticed some minor errors in "Nested qualitative sub-study" section, first paragraph of the section, page 7 of the published article.
November 3, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/30382835/a-public-health-approach-to-palliative-care-in-the-response-to-drug-resistant-tb-an-ethnographic-study-in-bengaluru-india
#3
Joseph M Sawyer, Rahul Asgr, Florence N Todd Fordham, John D H Porter
BACKGROUND: The treatment of Multidrug-Resistant Tuberculosis represents one of the most significant challenges to global health. Despite guidance on improving treatment outcomes, there is little focus on how to support individuals in their suffering. Palliative care is therefore proposed as a necessary component in the global strategy to fight Tuberculosis. We aim to describe the informal resources and networks available to persons affected by Multidrug-Resistant Tuberculosis, how they are accessed and how they are integrated into everyday lives...
October 31, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/30355351/access-to-palliative-care-for-homeless-people-complex-lives-complex-care
#4
Anke J E de Veer, Barbara Stringer, Berno van Meijel, Renate Verkaik, Anneke L Francke
BACKGROUND: People experiencing homelessness often encounter progressive incurable somatic diseases in combination with psychiatric and psychosocial problems, and many need palliative care at the end of their lives. Little is known about how palliative care for this group can be started in good time and provided optimally. The objective of this paper is to give insight into the extent people experiencing homelessness have access to good palliative care. METHODS: Qualitative in-depth interviews were held to reconstruct the cases of 19 people experiencing homelessness in the Netherlands...
October 24, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/30340632/talk-cpr-a-technology-project-to-improve-communication-in-do-not-attempt-cardiopulmonary-resuscitation-decisions-in-palliative-illness
#5
Mark Taubert, James Norris, Sioned Edwards, Veronica Snow, Ilora Gillian Finlay
BACKGROUND: A national Do Not Attempt Cardiopulmonary Resuscitation policy was rolled out for the National Health Service in Wales in 2015. A national steering group led on producing information videos and a website for patients, carers and healthcare professionals, forming part of a quality improvement program. Videos were planned, scripted and produced with healthcare professionals and patient/carer representatives, and were completed with both English and Welsh language versions. The TalkCPR videos encourage and promote open discussion about Cardiopulmonary Resuscitation (CPR) and DNACPR in palliative care situations...
October 19, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/30340568/voices-that-matter-end-of-life-care-in-two-acute-hospitals-from-the-perspective-of-bereaved-relatives
#6
Sarah Donnelly, Geraldine Prizeman, Diarmuid Ó Coimín, Bettina Korn, Geralyn Hynes
BACKGROUND: End-of-life care (EoLC) is an experience that touches the lives of everyone. Dying in an acute hospital is a common occurrence in developed countries across the world. Previous studies have shown that there is wide variation in EoLC and at times is experienced as being of poor quality. Assessing and measuring the quality of care provided is a key component of all healthcare systems. This paper reports on the qualitative analysis of open-ended free text questions that were asked as part of a post-bereavement survey conducted in two adult acute hospitals in Ireland...
October 19, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/30333013/the-experience-of-caring-for-patients-at-the-end-of-life-stage-in-non-palliative-care-settings-a-qualitative-study
#7
Xiao Bin Lai, Frances Kam Yuet Wong, Shirley Siu Yin Ching
BACKGROUND: More patients are dying in non-palliative care settings than in palliative care settings. How health care providers care for adult patients at the end-of-life stage in non-palliative care settings has not been adequately explored. The aim of this study was to explore the experiences of health care providers in caring for patients at the end-of-life stage in non-palliative care settings. METHODS: This is a qualitative study. Twenty-six health care providers from eight health care institutions which are based in Shanghai were interviewed individually between August 2016 and February 2017...
October 17, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/30322397/attitudes-to-specialist-palliative-care-and-advance-care-planning-in-people-with-copd-a-multi-national-survey-of-palliative-and-respiratory-medicine-specialists
#8
Natasha Smallwood, David Currow, Sara Booth, Anna Spathis, Louis Irving, Jennifer Philip
BACKGROUND: Chronic obstructive pulmonary disease (COPD) guidelines recommend early access to palliative care together with optimal, disease-directed therapy for people with advanced disease, however, this occurs infrequently. This study explored the approaches of respiratory and palliative medicine specialists to palliative care and advance care planning (ACP) in advanced COPD. METHODS: An online survey was emailed to all specialists and trainees in respiratory medicine in Australia and New Zealand (ANZ), and to all palliative medicine specialists and trainees in ANZ and the United Kingdom...
October 15, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/30305068/allow-natural-death-versus-do-not-resuscitate-titles-information-contents-outcomes-and-the-considerations-related-to-do-not-resuscitate-decision
#9
Sheng-Yu Fan, Ying-Wei Wang, I-Mei Lin
BACKGROUND: As the "do not resuscitate" (DNR) discussion involves communication, this study explored (1) the effects of a title that included "allow natural death", and of information contents and outcomes of the decision; and (2) the information needs and consideration of the DNR decision, and benefits and barriers of the DNR discussion. METHODS: Healthy adults (n = 524) were presented with a scenario with different titles, information contents, and outcomes, and they rated the probability of a DNR decision...
October 10, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/30296932/first-year-experiences-with-a-palliative-out-patients-structure-for-patients-with-copd-a-qualitative-study-of-health-professionals-expectations-and-experiences
#10
Dorthe Gaby Bove, Marie Lavesen, Maria Omel Jellington, Kristoffer Bastrup-Madsen Marsaa, Suzanne Forsyth Herling
BACKGROUND: To improve the care of patients with advanced COPD and be able to address their palliative needs a new outpatient organization (CAPTAIN) was developed and implemented. CAPTAIN was inspired by best practice and existing guidelines and changed the traditional organization of an outpatient structure including the roles of nurses and doctors. Only sparse knowledge exists of the health professionals' expectations and experiences to organizational changes in an outpatient setting...
October 8, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/30290818/end-of-life-situations-in-cardiology-a-qualitative-study-of-physicians-and-nurses-experience-in-a-large-university-hospital
#11
Fiona Ecarnot, Nicolas Meunier-Beillard, Marie-France Seronde, Romain Chopard, François Schiele, Jean-Pierre Quenot, Nicolas Meneveau
BACKGROUND: Professional societies call for integration of end-of-life discussions early in the trajectory of heart failure, yet it remains unclear where current practices stand in relation to these recommendations. We sought to describe the perceptions and attitudes of caregivers in cardiology regarding end-of-life situations. METHODS: We performed a qualitative study using semi-directive interviews in the cardiology department of a university teaching hospital in France...
October 5, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/30285709/study-protocol-evaluation-of-specialized-outpatient-palliative-care-in-the-german-state-of-hesse-elsah-study-work-package-i-assessing-the-quality-of-care
#12
Katrin Kuss, Hannah Seipp, Dorothée Becker, Stefan Bösner, Antje Erler, Dania Gruber, Michaela Hach, Lisa R Ulrich, Jörg Haasenritter
BACKGROUND: In Germany, patients suffering from life-limiting conditions are eligible for specialized outpatient palliative care (SOPC). Evaluation of the quality of this service lacks currently integration of patient-relevant outcomes. There is also no scientific consensus how to prove quality of care in the special context of SOPC adequately. Existing quality reports are primarily based on descriptive structural data which do not allow for estimation of process quality or result quality...
October 2, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/30266081/the-palliative-radiotherapy-and-inflammation-study-prais-protocol-for-a-longitudinal-observational-multicenter-study-on-patients-with-cancer-induced-bone-pain
#13
Ragnhild Habberstad, Trude Camilla Salvesen Frøseth, Nina Aass, Tatiana Abramova, Theo Baas, Siri Tessem Mørkeset, Augusto Caraceni, Barry Laird, Jason W Boland, Romina Rossi, Elena Garcia-Alonso, Hanne Stensheim, Jon Håvard Loge, Marianne Jensen Hjermstad, Ellen Bjerkeset, Asta Bye, Jo-Åsmund Lund, Tora Skeidsvoll Solheim, Ola Magne Vagnildhaug, Cinzia Brunelli, Jan Kristian Damås, Tom Eirik Mollnes, Stein Kaasa, Pål Klepstad
BACKGROUND: Radiation therapy (RT) results in pain relief for about 6 of 10 patients with cancer induced bone pain (CIBP) caused by bone metastases. The high number of non-responders, the long median time from RT to pain response and the risk of adverse effects, makes it important to determine predictors of treatment response. Clinical features such as cancer type, performance status and pain intensity, and biomarkers for osteoclast activity are proposed as predictors of response to RT...
September 28, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/30261860/examining-palliative-and-end-of-life-care-research-in-ireland-within-a-global-context-a-systematic-mapping-review-of-the-evidence
#14
Sonja McIlfatrick, Deborah H L Muldrew, Felicity Hasson, Sheila Payne
BACKGROUND: Globally the state of palliative care research remains uncertain. Questions remain regarding impact, funding, and research priorities. Building upon previous research, this review examines palliative care research in Ireland and contributes to a wider international debate on the state of palliative care research. METHODS: A systematic mapping review was undertaken. Eight bibliographic databases and thesis repositories were searched from May 2012 to April 2017...
September 27, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/30213263/assessing-the-credibility-and-transferability-of-the-patient-compassion-model-in-non-cancer-palliative-populations
#15
Shane Sinclair, Priya Jaggi, Thomas F Hack, Susan E McClement, Shelley Raffin-Bouchal, Pavneet Singh
BACKGROUND: A lack of evidence and psychometrically sound measures of compassion necessitated the development of the first known, empirically derived, theoretical Patient Compassion Model (PCM) generated from qualitative interviews with advanced cancer inpatients. We aimed to assess the credibility and transferability of the PCM across diverse palliative populations and settings. METHODS: Semi-structured, audio-recorded qualitative interviews were conducted with 20 patients with life-limiting diagnoses, recruited from 4 settings (acute care, homecare, residential care, and hospice)...
September 13, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/30208902/exploring-the-vagueness-of-religion-spirituality-in-complex-pediatric-decision-making-a-qualitative-study
#16
Alexandra K Superdock, Raymond C Barfield, Debra H Brandon, Sharron L Docherty
BACKGROUND: Medical advances have led to new challenges in decision-making for parents of seriously ill children. Many parents say religion and spirituality (R&S) influence their decisions, but the mechanism and outcomes of this influence are unknown. Health care providers (HCPs) often feel unprepared to discuss R&S with parents or address conflicts between R&S beliefs and clinical recommendations. Our study sought to illuminate the influence of R&S on parental decision-making and explore how HCPs interact with parents for whom R&S are important...
September 12, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/30200942/intranasal-fentanyl-for-respiratory-distress-in-children-and-adolescents-with-life-limiting-conditions
#17
Lucas Pieper, Julia Wager, Boris Zernikow
BACKGROUND: Respiratory distress is one of the most common and frightening symptoms of children with life-limiting conditions. Because treatment of the underlying cause is frequently impossible or insufficient, in many children, symptomatic treatment is warranted. The purpose of this study was to describe the circumstances of the use of intranasal fentanyl in an acute attack of respiratory distress (AARD) in children receiving palliative care, as well as to describe outcomes and adverse events after its use...
September 10, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/30193579/scopolaminebutyl-given-prophylactically-for-death-rattle-study-protocol-of-a-randomized-double-blind-placebo-controlled-trial-in-a-frail-patient-population-the-silence-study
#18
Harriëtte J van Esch, Lia van Zuylen, Esther Oomen-de Hoop, Agnes van der Heide, Carin C D van der Rijt
BACKGROUND: Death rattle (DR), caused by mucus in the respiratory tract, occurs in about half of patients who are in the dying phase. Relatives often experience DR as distressing. Anticholinergics are recommended to treat DR, although there is no evidence for the effect of these drugs. Anticholinergic drugs decrease the production of mucus but do not affect existing mucus. We therefore hypothesize that these drugs are more effective when given prophylactically. METHODS: We set up a randomized double-blind, placebo-controlled, multi-center study evaluating the efficacy of prophylactically given subcutaneous scopolaminebutyl for the prevention of DR in the dying phase...
September 7, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/30157836/determinants-of-favorable-or-unfavorable-opinion-about-euthanasia-in-a-sample-of-french-cancer-patients-receiving-palliative-care
#19
Alexandre de Nonneville, Théo Chabal, Anthony Marin, Jean Marc La Piana, Marie Fichaux, Véronique Tuzzolino, Florence Duffaud, Pascal Auquier, Augustin Boulanger, Karine Baumstark, Sébastien Salas
BACKGROUND: Opinion about euthanasia has been explored among the general population and recently in patients receiving palliative care. 96% of the French population declared themselves in favor of euthanasia while less of 50% of palliative care patients are. The aim of the present study was to explore and identify potential determinant factors associated with favorable or unfavorable opinion about euthanasia in a French population of cancer patients receiving palliative care. METHODS: We performed a cross-sectional study among patients in two palliative care units...
August 29, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/30143039/negative-pain-management-index-scores-do-not-necessarily-indicate-inadequate-pain-management-a-cross-sectional-study
#20
Naoki Sakakibara, Takahiro Higashi, Itsuku Yamashita, Tetsusuke Yoshimoto, Motohiro Matoba
BACKGROUND: The Pain Management Index (PMI) is widely used in the assessment of pain management, and negative scores are traditionally considered to indicate inadequate pain management. However, it is not known whether negative PMI scores are always problematic. METHODS: In this prospective observational study, we examined the data of 1156 patients with cancer and pain who were hospitalized in a cancer care hospital in Japan from July 2012 to January 2015 and compared the proportion of patients with PI across various PMI scores in this cohort...
August 24, 2018: BMC Palliative Care
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