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BMC Palliative Care

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https://www.readbyqxmd.com/read/28086861/managing-shades-of-grey-a-focus-group-study-exploring-community-dwellers-views-on-advance-care-planning-in-older-people
#1
Natasha Michael, Clare O'Callaghan, Emma Sayers
BACKGROUND: Community-dwelling consumers of healthcare are increasing, many aging with life-limiting conditions and deteriorating cognition. However, few have had advance care planning discussions or completed documentation to ensure future care preferences are acted upon. This study examines the awareness, attitudes, and experiences of advance care planning amongst older people and unrelated offspring/caregivers of older people residing in the community. METHODS: Qualitative descriptive research, which included focus groups with older people (55+ years) and older people's offspring/caregivers living in an Australian city and surrounding rural region...
January 13, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/28077099/a-prospective-study-on-the-characteristics-and-subjects-of-pediatric-palliative-care-case-management-provided-by-a-hospital-based-palliative-care-team
#2
Charissa T Jagt-van Kampen, Marijke C Kars, Derk A Colenbrander, Diederik K Bosman, Martha A Grootenhuis, Huib N Caron, Antoinette Y N Schouten-van Meeteren
BACKGROUND: Case management is a subject of interest within pediatric palliative care. Detailed descriptions of the content of this type of case management are lacking. We aim to describe the contents of care provided, utilization of different disciplines, and times of usage of a pediatric palliative care case management program compared for patients with malignant disease (MD) and non-malignant disease (NMD). METHODS: A three-month prospective study, with questionnaires filled in by members of a pediatric palliative care team (PPCT) for each contact with parents...
January 12, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/28038676/health-care-professionals-experience-understanding-and-perception-of-need-of-advanced-cancer-patients-with-cachexia-and-their-families-the-benefits-of-a-dedicated-clinic
#3
David Scott, Joanne Reid, Peter Hudson, Peter Martin, Sam Porter
BACKGROUND: Cachexia is defined as the on-going loss of skeletal muscle mass that cannot be fully reversed by conventional nutritional support. It is found in up to 80% of patients with advanced cancer and has profound psycho-social consequences for patients and their families. Previous studies demonstrate that many healthcare professionals receive little formal education in cachexia management leading them to feel that they have limited understanding of the syndrome and cannot intervene effectively...
December 30, 2016: BMC Palliative Care
https://www.readbyqxmd.com/read/28038669/development-and-validation-of-a-new-patient-experience-tool-in-patients-with-serious-illness
#4
Karl M Fernstrom, Nathan D Shippee, Alissa L Jones, Heather R Britt
BACKGROUND: Patients with serious chronic illnesses face increasingly complex care and are at risk of poor experience due to a fragmented health system. Most current patient experience tools are not designed to address the unique care aspects of this population and the few that exist are delivered too late in the disease trajectory and are not administered longitudinally which makes them less useful across settings. METHODS: We developed a new tool designed to address these gaps...
December 30, 2016: BMC Palliative Care
https://www.readbyqxmd.com/read/28034302/erratum-to-protocol-for-the-end-of-life-social-action-study-elsa-a-randomised-wait-list-controlled-trial-and-embedded-qualitative-case-study-evaluation-assessing-the-causal-impact-of-social-action-befriending-services-on-end-of-life-experience
#5
Catherine Walshe, Guillermo Perez Algorta, Steven Dodd, Evangelia Papavasiliou, Matthew Hill, Nick Ockenden, Sheila Payne, Nancy Preston
No abstract text is available yet for this article.
December 29, 2016: BMC Palliative Care
https://www.readbyqxmd.com/read/27964735/strength-in-numbers-patient-experiences-of-group-exercise-within-hospice-palliative-care
#6
Lorna Malcolm, Gill Mein, Alison Jones, Helena Talbot-Rice, Matthew Maddocks, Katherine Bristowe
BACKGROUND: Exercise is increasingly recognized as a core component of palliative rehabilitation. The group exercise model is often adopted as a means of reaching more patients with limited resource. Despite the growth of quantitative research examining this area of practice, few qualitative studies have looked at the patient experience of participating in group exercise in a palliative setting, and most exclude patients with a non-cancer diagnosis. METHODS: The aim of this study was to explore patients' experiences of participating in group exercise classes in a hospice setting...
December 13, 2016: BMC Palliative Care
https://www.readbyqxmd.com/read/27912748/challenges-to-access-and-provision-of-palliative-care-for-people-who-are-homeless-a-systematic-review-of-qualitative-research
#7
Briony F Hudson, Kate Flemming, Caroline Shulman, Bridget Candy
BACKGROUND: People who are homeless or vulnerably housed are a marginalized group who often experience high rates of morbidity and die young as a result of complex problems. Access to health care and support can be challenging, with access to palliative care even more so. This review presents a synthesis of published qualitative research exploring from the perspective of homeless people and those working to support them, current challenges to palliative care access and provision, in addition to suggestions for what may improve palliative care for this population...
December 3, 2016: BMC Palliative Care
https://www.readbyqxmd.com/read/27871265/the-association-between-different-opioid-doses-and-the-survival-of-advanced-cancer-patients-receiving-palliative-care
#8
Anon Sathornviriyapong, Kittiphon Nagaviroj, Thunyarat Anothaisintawee
BACKGROUND: Concerns that opioids may hasten death can be a cause of the physicians' reluctance to prescribe opioids, leading to inadequate symptom palliation. Our aim was to find if there was an association between different opioid doses and the survival of the cancer patients that participated in our palliative care program. METHODS: A retrospective study was conducted at Ramathibodi Hospital, Bangkok between January 2013 and December 2015. All of the cancer patients that were referred to palliative care teams by their primary physicians were included in the study...
November 21, 2016: BMC Palliative Care
https://www.readbyqxmd.com/read/27855681/using-telehealth-to-support-end-of-life-care-in-the-community-a-feasibility-study
#9
Jennifer J Tieman, Kate Swetenham, Deidre D Morgan, Timothy H To, David C Currow
BACKGROUND: Telehealth is being used increasingly in providing care to patients in the community setting. Telehealth enhanced service delivery could offer new ways of managing load and care prioritisation for palliative care patients living in the community. The study assesses the feasibility of a telehealth-based model of service provision for community based palliative care patients, carers and clinicians. METHODS: This study was a prospective cohort study of a telehealth-based intervention for community based patients of a specialist palliative care service living in Southern Adelaide, South Australia...
November 17, 2016: BMC Palliative Care
https://www.readbyqxmd.com/read/27829425/evaluation-of-a-pilot-of-nurse-practitioner-led-gp-supported-rural-palliative-care-provision
#10
Geoffrey Keith Mitchell, Hugh Edgar Senior, Michael Peter Bibo, Blessing Makoni, Sharleen Nicole Young, John Patrick Rosenberg, Patsy Yates
BACKGROUND: Providing end of life care in rural areas is challenging. We evaluated in a pilot whether nurse practitioner (NP)-led care, including clinical care plans negotiated with involved health professionals including the general practitioner(GP), ± patient and/or carer, through a single multidisciplinary case conference (SMCC), could influence patient and health system outcomes. METHODS: Setting - Australian rural district 50 kilometers from the nearest specialist palliative care service...
November 9, 2016: BMC Palliative Care
https://www.readbyqxmd.com/read/27825330/-it-still-haunts-me-whether-we-did-the-right-thing-a-qualitative-analysis-of-free-text-survey-data-on-the-bereavement-experiences-and-support-needs-of-family-caregivers
#11
Emily Harrop, Fiona Morgan, Anthony Byrne, Annmarie Nelson
BACKGROUND: Research suggests that there may be bereavement experiences and support needs which are specific to family caregivers providing end of life care (EoLC), although this remains an under-researched area. This paper focuses on themes relating to bereavement which were derived from an analysis of free text survey responses collected in a research priority setting exercise for palliative and EoLC. METHODS: The priority setting exercise involved a public survey, designed to generate research priorities...
November 8, 2016: BMC Palliative Care
https://www.readbyqxmd.com/read/27821105/interventions-and-decision-making-at-the-end-of-life-the-effect-of-establishing-the-terminal-illness-situation
#12
C Campos-Calderón, R Montoya-Juárez, C Hueso-Montoro, E Hernández-López, F Ojeda-Virto, M P García-Caro
BACKGROUND: Many 'routine' interventions performed in hospital rooms have repercussions for the comfort of the patient, and the decision to perform them should depend on whether the patient is identified as in a terminal phase. The aim of this study is to analyse the health interventions performed and decisions made in the last days of life in patients with advanced oncological and non-oncological illness to ascertain whether identifying the patient's terminal illness situation has any effect on these decisions...
November 7, 2016: BMC Palliative Care
https://www.readbyqxmd.com/read/27809819/helping-palliative-care-healthcare-professionals-get-the-most-out-of-mentoring-in-a-low-income-country-a-qualitative-study
#13
J L Whitehurst, J Rowlands
BACKGROUND: Being a mentor in any setting brings challenges in addition to recognised benefits. Working in a low-income country confers specific challenges including logistical and communication issues. The need to adequately support UK-based international health volunteers prior to, during and after their trip is recognised at government level. Whilst the need to support mentors is recognised little is known about their support needs. This study aims to explore the lived experience of mentorship in a low-income country and gain insight into mentors' support and information needs and the barriers and facilitators to mentoring...
November 4, 2016: BMC Palliative Care
https://www.readbyqxmd.com/read/27793144/family-and-healthcare-professionals-perceptions-of-a-pilot-hospice-at-home-programme-for-children-a-qualitative-study
#14
Maria Brenner, Michael Connolly, Des Cawley, Frances Howlin, Jay Berry, Claire Quinn
BACKGROUND: Parents commonly report a significant improvement in quality of life following the provision of hospice and supportive care and have identified a need for such a service in the home. The purpose of this study was to understand the experiences of families receiving a nurse led pilot hospice at home programme and the experiences of healthcare professionals delivering and engaging with the programme. METHODS: An exploratory, qualitative study was conducted, including telephone interviews with parents and focus groups and individual interviews with healthcare professionals...
October 28, 2016: BMC Palliative Care
https://www.readbyqxmd.com/read/27776501/the-feasibility-and-acceptability-of-short-term-individual-existential-behavioural-therapy-for-informal-caregivers-of-patients-recruited-in-a-specialist-palliative-care-unit
#15
Helena S Stöckle, Sigrid Haarmann-Doetkotte, Claudia Bausewein, Martin J Fegg
BACKGROUND: Existential behavioural therapy (EBT) is a recently developed intervention to support informal caregivers of patients in a specialist palliative care unit and was initially established as a six-session group programme. This pilot study aimed to test the feasibility and acceptability of an adapted short-term, individual approach of EBT in preparation for a randomized controlled trial (RCT). METHODS: The study was conducted in a prospective, mixed methods design including four quantitiative assessments with embedded qualitative interviews at one assessment...
October 24, 2016: BMC Palliative Care
https://www.readbyqxmd.com/read/27769258/reasons-for-transferral-to-emergency-departments-of-terminally-ill-patients-a-french-descriptive-and-retrospective-study
#16
Pierre Cornillon, Sébastien Loiseau, Bruno Aublet-Cuvelier, Virginie Guastella
BACKGROUND: Patients under palliative care and in hospital-at-home services are frequently transferred to emergency departments. We set out to identify the reasons for these presentations to determine the proportion that might be avoidable. METHODS: We conducted a retrospective study by assessment of patient files. We studied admissions to four emergency departments in an area of France (Puy-de-Dôme) between September 2011 and August 2013. Reasons for transfer and diagnostic conclusion by emergency doctors were noted...
October 21, 2016: BMC Palliative Care
https://www.readbyqxmd.com/read/27756296/using-linked-administrative-and-disease-specific-databases-to-study-end-of-life-care-on-a-population-level
#17
Arno Maetens, Robrecht De Schreye, Kristof Faes, Dirk Houttekier, Luc Deliens, Birgit Gielen, Cindy De Gendt, Patrick Lusyne, Lieven Annemans, Joachim Cohen
BACKGROUND: The use of full-population databases is under-explored to study the use, quality and costs of end-of-life care. Using the case of Belgium, we explored: (1) which full-population databases provide valid information about end-of-life care, (2) what procedures are there to use these databases, and (3) what is needed to integrate separate databases. METHODS: Technical and privacy-related aspects of linking and accessing Belgian administrative databases and disease registries were assessed in cooperation with the database administrators and privacy commission bodies...
October 18, 2016: BMC Palliative Care
https://www.readbyqxmd.com/read/27729035/end-of-life-care-of-patients-with-idiopathic-pulmonary-fibrosis
#18
Kaisa Rajala, Juho T Lehto, M Saarinen, E Sutinen, T Saarto, M Myllärniemi
BACKGROUND: Idiopathic pulmonary fibrosis (IPF) is a progressive disease with median survival from 2 to 7 years. Palliative care is an important part of patients´ care as lung transplantation is not an option for the majority of patients. The aim of this study was to describe treatment practices, decision-making and symptoms during end-of-life care of IPF patients. METHODS: We identified 59 deceased patients from a national prospective IPF cohort study (FinnishIPF) and analyzed retrospectively their health care documentation during the 6 months that preceded death...
October 12, 2016: BMC Palliative Care
https://www.readbyqxmd.com/read/27663192/case-conference-primary-secondary-care-planning-at-end-of-life-can-reduce-the-cost-of-hospitalisations
#19
Samantha Hollingworth, Jianzhen Zhang, Bharat Phani Vaikuntam, Claire Jackson, Geoffrey Mitchell
BACKGROUND: To plan integrated care at end of life for people with either heart failure or lung disease, we used a case conference between the patient's general practitioner (GP), specialist services and a palliative care consultant physician. This intervention significantly reduced hospitalisations and emergency department visits. This paper reports estimates of potential savings of reduced hospitalisation through end of life case conferences in a pilot study. METHODS: We used Australian Refined Diagnosis Related Group codes to obtain data on hospitalisations and costs...
September 23, 2016: BMC Palliative Care
https://www.readbyqxmd.com/read/27662830/dying-among-older-adults-in-switzerland-who-dies-in-hospital-who-dies-in-a-nursing-home
#20
Xhyljeta Luta, Radoslaw Panczak, Maud Maessen, Matthias Egger, David C Goodman, Marcel Zwahlen, Andreas E Stuck, Kerri Clough-Gorr
BACKGROUND: Institutional deaths (hospitals and nursing homes) are an important issue because they are often at odds with patient preference and associated with high healthcare costs. The aim of this study was to examine deaths in institutions and the role of individual, regional, and healthcare supply characteristics in explaining variation across Swiss Hospital Service Areas (HSAs). METHODS: Retrospective study of individuals ≥66 years old who died in a Swiss institution (hospital or nursing homes) in 2010...
September 23, 2016: BMC Palliative Care
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