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BMC Palliative Care

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https://www.readbyqxmd.com/read/28212651/erratum-to-when-parents-face-the-death-of-their-child-a-nationwide-cross-sectional-survey-of-parental-perspectives-on-their-child-s-end-of-life-care
#1
Karin Zimmermann, Eva Bergstraesser, Sandra Engberg, Anne-Sylvie Ramelet, Katrin Marfurt-Russenberger, Nicolas Von der Weid, Chantal Grandjean, Patricia Fahrni-Nater, Eva Cignacco
No abstract text is available yet for this article.
February 17, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/28193270/the-experience-of-providing-end-of-life-care-at-a-children-s-hospice-a-qualitative-study
#2
Tracey McConnell, Sam Porter
BACKGROUND: More attention is being paid to the wellbeing of staff working in stressful situations. However, little is known about staff experience of providing end-of-life care to children within a hospice setting. This study aims to explore the experiences of care team staff who provide end-of-life care within a children's hospice. METHODS: Qualitative research incorporating interviews and a focus group. Data were analysed using thematic analysis. Purposeful sampling led to a total of 15 care team staff recruited from a children's hospice offering palliative and specialist care to life-limited children and young people...
February 13, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/28125994/measuring-geographical-accessibility-to-palliative-and-end-of-life-peolc-related-facilities-a-comparative-study-in-an-area-with-well-developed-specialist-palliative-care-spc-provision
#3
Clare Pearson, Julia Verne, Claudia Wells, Giovanna M Polato, Irene J Higginson, Wei Gao
BACKGROUND: Geographical accessibility is important in accessing healthcare services. Measuring it has evolved alongside technological and data analysis advances. High correlations between different methods have been detected, but no comparisons exist in the context of palliative and end of life care (PEoLC) studies. To assess how geographical accessibility can affect PEoLC, selection of an appropriate method to capture it is crucial. We therefore aimed to compare methods of measuring geographical accessibility of decedents to PEoLC-related facilities in South London, an area with well-developed SPC provision...
January 26, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/28122614/clinical-decision-making-in-the-recognition-of-dying-a-qualitative-interview-study
#4
Paul Taylor, Dawn Dowding, Miriam Johnson
BACKGROUND: Recognising dying is an essential clinical skill for general and palliative care professionals alike. Despite the high importance, both identification and good clinical care of the dying patient remains extremely difficult and often controversial in clinical practice. This study aimed to answer the question: "What factors influence medical and nursing staff when recognising dying in end-stage cancer and heart failure patients?" METHODS: This study used a descriptive approach to decision-making theory...
January 25, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/28122560/clinical-trials-in-palliative-care-a-systematic-review-of-their-methodological-characteristics-and-of-the-quality-of-their-reporting
#5
Raquel Bouça-Machado, Madalena Rosário, Joana Alarcão, Leonor Correia-Guedes, Daisy Abreu, Joaquim J Ferreira
BACKGROUND: Over the past decades there has been a significant increase in the number of published clinical trials in palliative care. However, empirical evidence suggests that there are methodological problems in the design and conduct of studies, which raises questions about the validity and generalisability of the results and of the strength of the available evidence. We sought to evaluate the methodological characteristics and assess the quality of reporting of clinical trials in palliative care...
January 25, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/28122553/undergraduate-curriculum-in-palliative-medicine-at-tampere-university-increases-students-knowledge
#6
Juho T Lehto, Kati Hakkarainen, Pirkko-Liisa Kellokumpu-Lehtinen, Tiina Saarto
BACKGROUND: Education in palliative medicine (PM) at medical schools reveals wide variation despite the increasing importance of palliative care. Many universities present poor description of the benefits and detailed content of the total curriculum in PM. Using the recommendations of European Association for Palliative Care (EAPC) as a reference, we evaluated the content and outcomes of the curriculum in PM at the University of Tampere, Finland. METHODS: We searched for a PM curriculum by examining the teaching offered by every specialty and compared it to EAPC recommendations...
January 25, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/28122549/a-good-resource-for-parents-but-will-clinicians-use-it-evaluation-of-a-resource-for-paediatric-end-of-life-decision-making
#7
Clare Delany, Vicki Xafis, Lynn Gillam, Jo-Anne Hughson, Jenny Hynson, Dominic Wilkinson
BACKGROUND: Communication with parents about end-of-life care and decisions is a difficult and sensitive process. The objective of the present study was to ascertain clinicians' views on the acceptability and usefulness of a handbook and web-based resource (Caring Decisions) that was designed as an aid for parents facing end-of-life decisions for their child. METHODS: Qualitative interviews were conducted with a range of health professionals who provide care to children facing life-limiting conditions...
January 25, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/28118824/factors-that-influence-advance-directives-completion-amongst-terminally-ill-patients-at-a-tertiary-hospital-in-kenya
#8
Stephen Omondi, John Weru, Asim Jamal Shaikh, Gerald Yonga
BACKGROUND: An advance directive (AD) is a written or verbal document that legally stipulates a person's health care preference while they are competent to make decisions for themselves and is used to guide decisions on life-sustaining treatment in the event that they become incapacitated. AD can take the form of a living will, a limitation of care document, a do-not-resuscitate order, or an appointment of a surrogate by durable power of attorney. The completion rate of AD varies from region to region, and it is influenced by multiple factors...
January 25, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/28114917/development-the-care-evaluation-scale-version-2-0-a-modified-version-of-a-measure-for-bereaved-family-members-to-evaluate-the-structure-and-process-of-palliative-care-for-cancer-patient
#9
Mitsunori Miyashita, Maho Aoyama, Misato Nakahata, Yuji Yamada, Mutsumi Abe, Kazuhiro Yanagihara, Akemi Shirado, Mariko Shutoh, Yoshiaki Okamoto, Jun Hamano, Aoi Miyamoto, Saki Yoshida, Kazuki Sato, Kei Hirai, Tatsuya Morita
BACKGROUND: The Care Evaluation Scale (CES1.0) was designed to allow bereaved family members to evaluate the structure and process of care, but has been associated with a high frequency of misresponses. The objective of this study was to develop a modified version of CES1.0 (CES2.0) that would eliminate misresponses while maintaining good reliability and validity. METHODS: We conducted a cross-sectional questionnaire survey by mail in October 2013. The participants were bereaved family members of patients who died from cancer in seven institutions in Japan...
January 23, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/28109272/opinions-about-the-new-law-on-end-of-life-issues-in-a-sample-of-french-patients-receiving-palliative-care
#10
Augustin Boulanger, Théo Chabal, Marie Fichaux, Mireille Destandau, Jean Marc La Piana, Pascal Auquier, Karine Baumstarck, Sébastien Salas
BACKGROUND: In February 2nd 2016, the French government enacted the Claeys-Leonetti law that forbade euthanasia and established the right to deep and continuous sedation for end-of-life patients. Moreover, the law also obliges clinicians to abide by any advance directives regarding treatment and investigation, except in cases where they are "obviously inappropriate" in a given medical situation, or in cases of emergency, in order to allow medical staff to take time to assess the patient's situation...
January 21, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/28103847/exploring-healthcare-assistants-role-and-experience-in-pain-assessment-and-management-for-people-with-advanced-dementia-towards-the-end-of-life-a-qualitative-study
#11
Bannin De Witt Jansen, Kevin Brazil, Peter Passmore, Hilary Buchanan, Doreen Maxwell, Sonja J McIlfatrick, Sharon M Morgan, Max Watson, Carole Parsons
BACKGROUND: Pain assessment and management are key aspects in the care of people with dementia approaching the end of life but become challenging when patient self-report is impaired or unavailable. Best practice recommends the use of observational pain assessments for these patients; however, difficulties have been documented with health professionals' use of these tools in the absence of additional collateral patient knowledge. No studies have explored the role, perspectives and experiences of healthcare assistants in pain assessment and management in dementia; this study provides insight into this important area...
January 19, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/28095908/limiting-treatment-and-shortening-of-life-data-from-a-cross-sectional-survey-in-germany-on-frequencies-determinants-and-patients-involvement
#12
Birte Malena Dahmen, Jochen Vollmann, Stephan Nadolny, Jan Schildmann
BACKGROUND: Limiting treatment forms part of practice in many fields of medicine. There is a scarcity of robust data from Germany. Therefore, in this paper, we report results of a survey among German physicians with a focus on frequencies, aspects of decision making and determinants of limiting treatment with expected or intended shortening of life. METHODS: Postal survey among a random sample of physicians working in the area of five German state chambers of physicians using a modified version of the questionnaire of the EURELD Consortium...
January 17, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/28095837/enhancing-the-quality-of-life-for-palliative-care-cancer-patients-in-indonesia-through-family-caregivers-a-pilot-study-of-basic-skills-training
#13
Martina Sinta Kristanti, Sri Setiyarini, Christantie Effendy
BACKGROUND: Palliative care in Indonesia is problematic because of cultural and socio-economic factors. Family in Indonesia is an integral part of caregiving process in inpatient and outpatient settings. However, most families are not adequately prepared to deliver basic care for their sick family member. This research is a pilot project aiming to evaluate how basic skills training (BST) given to family caregivers could enhance the quality of life (QoL) of palliative care cancer patients in Indonesia...
January 17, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/28095834/barriers-to-venipuncture-induced-pain-prevention-in-cancer-patients-a-qualitative-study
#14
Marilène Filbet, Philip Larkin, Claire Chabloz, Anne Chirac, Léa Monsarrat, Murielle Ruer, Wadih Rhondali, Cyrille Collin
BACKGROUND: Procedural pain reduces the quality of life of cancer patients. Although there are recommendations for its prevention, there are some obstacles for its management. The purpose of this study was to analyze the barriers to procedural pain prophylaxis in cancer patients reflecting the views of the nurses. METHODS: We used qualitative methodology based on semi-structured interviews conducted with nurses, focusing on practices of venipuncture-induced and needle change for implantable central venous access port (ICVAP) pain management in cancer patients...
January 17, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/28086861/managing-shades-of-grey-a-focus-group-study-exploring-community-dwellers-views-on-advance-care-planning-in-older-people
#15
Natasha Michael, Clare O'Callaghan, Emma Sayers
BACKGROUND: Community-dwelling consumers of healthcare are increasing, many aging with life-limiting conditions and deteriorating cognition. However, few have had advance care planning discussions or completed documentation to ensure future care preferences are acted upon. This study examines the awareness, attitudes, and experiences of advance care planning amongst older people and unrelated offspring/caregivers of older people residing in the community. METHODS: Qualitative descriptive research, which included focus groups with older people (55+ years) and older people's offspring/caregivers living in an Australian city and surrounding rural region...
January 13, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/28077099/a-prospective-study-on-the-characteristics-and-subjects-of-pediatric-palliative-care-case-management-provided-by-a-hospital-based-palliative-care-team
#16
Charissa T Jagt-van Kampen, Marijke C Kars, Derk A Colenbrander, Diederik K Bosman, Martha A Grootenhuis, Huib N Caron, Antoinette Y N Schouten-van Meeteren
BACKGROUND: Case management is a subject of interest within pediatric palliative care. Detailed descriptions of the content of this type of case management are lacking. We aim to describe the contents of care provided, utilization of different disciplines, and times of usage of a pediatric palliative care case management program compared for patients with malignant disease (MD) and non-malignant disease (NMD). METHODS: A three-month prospective study, with questionnaires filled in by members of a pediatric palliative care team (PPCT) for each contact with parents...
January 12, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/28038676/health-care-professionals-experience-understanding-and-perception-of-need-of-advanced-cancer-patients-with-cachexia-and-their-families-the-benefits-of-a-dedicated-clinic
#17
David Scott, Joanne Reid, Peter Hudson, Peter Martin, Sam Porter
BACKGROUND: Cachexia is defined as the on-going loss of skeletal muscle mass that cannot be fully reversed by conventional nutritional support. It is found in up to 80% of patients with advanced cancer and has profound psycho-social consequences for patients and their families. Previous studies demonstrate that many healthcare professionals receive little formal education in cachexia management leading them to feel that they have limited understanding of the syndrome and cannot intervene effectively...
December 30, 2016: BMC Palliative Care
https://www.readbyqxmd.com/read/28038669/development-and-validation-of-a-new-patient-experience-tool-in-patients-with-serious-illness
#18
Karl M Fernstrom, Nathan D Shippee, Alissa L Jones, Heather R Britt
BACKGROUND: Patients with serious chronic illnesses face increasingly complex care and are at risk of poor experience due to a fragmented health system. Most current patient experience tools are not designed to address the unique care aspects of this population and the few that exist are delivered too late in the disease trajectory and are not administered longitudinally which makes them less useful across settings. METHODS: We developed a new tool designed to address these gaps...
December 30, 2016: BMC Palliative Care
https://www.readbyqxmd.com/read/28034302/erratum-to-protocol-for-the-end-of-life-social-action-study-elsa-a-randomised-wait-list-controlled-trial-and-embedded-qualitative-case-study-evaluation-assessing-the-causal-impact-of-social-action-befriending-services-on-end-of-life-experience
#19
Catherine Walshe, Guillermo Perez Algorta, Steven Dodd, Evangelia Papavasiliou, Matthew Hill, Nick Ockenden, Sheila Payne, Nancy Preston
No abstract text is available yet for this article.
December 29, 2016: BMC Palliative Care
https://www.readbyqxmd.com/read/27964735/strength-in-numbers-patient-experiences-of-group-exercise-within-hospice-palliative-care
#20
Lorna Malcolm, Gill Mein, Alison Jones, Helena Talbot-Rice, Matthew Maddocks, Katherine Bristowe
BACKGROUND: Exercise is increasingly recognized as a core component of palliative rehabilitation. The group exercise model is often adopted as a means of reaching more patients with limited resource. Despite the growth of quantitative research examining this area of practice, few qualitative studies have looked at the patient experience of participating in group exercise in a palliative setting, and most exclude patients with a non-cancer diagnosis. METHODS: The aim of this study was to explore patients' experiences of participating in group exercise classes in a hospice setting...
December 13, 2016: BMC Palliative Care
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