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BMC Medical Ethics

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https://www.readbyqxmd.com/read/29325536/autonomy-and-couples-joint-decision-making-in-healthcare
#1
Pauline E Osamor, Christine Grady
BACKGROUND: Respect for autonomy is a key principle in bioethics. However, respecting autonomy in practice is complex because most people define themselves and make decisions influenced by a complex network of social relationships. The extent to which individual autonomy operates for each partner within the context of decision-making within marital or similar relationships is largely unexplored. This paper explores issues related to decision-making by couples (couples' joint decision-making) for health care and the circumstances under which such a practice should be respected as compatible with autonomous decision-making...
January 11, 2018: BMC Medical Ethics
https://www.readbyqxmd.com/read/29310657/-right-to-recommend-wrong-to-require-an-empirical-and-philosophical-study-of-the-views-among-physicians-and-the-general-public-on-smoking-cessation-as-a-condition-for-surgery
#2
Joar Björk, Niklas Juth, Niels Lynøe
BACKGROUND: In many countries, there are health care initiatives to make smokers give up smoking in the peri-operative setting. There is empirical evidence that this may improve some, but not all, operative outcomes. However, it may be feared that some support for such policies stems from ethically questionable opinions, such as paternalism or anti-smoker sentiments. This study aimed at investigating the support for a policy of smoking cessation prior to surgery among Swedish physicians and members of the general public, as well as the reasons provided for this...
January 8, 2018: BMC Medical Ethics
https://www.readbyqxmd.com/read/29304784/ethical-aspects-of-diagnosis-and-interventions-for-children-with-fetal-alcohol-spectrum-disorder-fasd-and-their-families
#3
Gert Helgesson, Göran Bertilsson, Helena Domeij, Gunilla Fahlström, Emelie Heintz, Anders Hjern, Christina Nehlin Gordh, Viviann Nordin, Jenny Rangmar, Ann-Margret Rydell, Viveka Sundelin Wahlsten, Monica Hultcrantz
BACKGROUND: Fetal alcohol spectrum disorders (FASD) is an umbrella term covering several conditions for which alcohol consumption during pregnancy is taken to play a causal role. The benefit of individuals being identified with a condition within FASD remains controversial. The objective of the present study was to identify ethical aspects and consequences of diagnostics, interventions, and family support in relation to FASD. METHODS: Ethical aspects relating to diagnostics, interventions, and family support regarding FASD were compiled and discussed, drawing on a series of discussions with experts in the field, published literature, and medical ethicists...
January 5, 2018: BMC Medical Ethics
https://www.readbyqxmd.com/read/29282045/balancing-the-local-and-the-universal-in-maintaining-ethical-access-to-a-genomics-biobank
#4
Catherine Heeney, Shona M Kerr
BACKGROUND: Issues of balancing data accessibility with ethical considerations and governance of a genomics research biobank, Generation Scotland, are explored within the evolving policy landscape of the past ten years. During this time data sharing and open data access have become increasingly important topics in biomedical research. Decisions around data access are influenced by local arrangements for governance and practices such as linkage to health records, and the global through policies for biobanking and the sharing of data with large-scale biomedical research data resources and consortia...
December 28, 2017: BMC Medical Ethics
https://www.readbyqxmd.com/read/29273030/the-use-of-empirical-research-in-bioethics-a-survey-of-researchers-in-twelve-european-countries
#5
Tenzin Wangmo, Veerle Provoost
BACKGROUND: The use of empirical research methods in bioethics has been increasing in the last decades. It has resulted in discussions about the 'empirical turn of bioethics' and raised questions related to the value of empirical work for this field, methodological questions about its quality and rigor, and how this integration of the normative and the empirical can be achieved. The aim of this paper is to describe the attitudes of bioethics researchers in this field towards the use of empirical research, and examine their actual conduct: whether they use empirical research methods (and if so, what methods), and whether (and how) they have made attempts at integrating the empirical and the normative...
December 22, 2017: BMC Medical Ethics
https://www.readbyqxmd.com/read/29262814/participatory-improvement-of-a-template-for-informed-consent-documents-in-biobank-research-study-results-and-methodological-reflections
#6
Sabine Bossert, Hannes Kahrass, Ulrike Heinemeyer, Jana Prokein, Daniel Strech
BACKGROUND: For valid informed consent, it is crucial that patients or research participants fully understand all that their consent entails. Testing and revising informed consent documents with the assistance of their addressees can improve their understandability. In this study we aimed at further developing a method for testing and improving informed consent documents with regard to readability and test-readers' understanding and reactions. METHODS: We tested, revised, and retested template informed consent documents for biobank research by means of 11 focus group interviews with members from the documents' target population...
December 20, 2017: BMC Medical Ethics
https://www.readbyqxmd.com/read/29258519/ethical-challenges-experienced-by-uk-military-medical-personnel-deployed-to-sierra-leone-operation-gritrock-during-the-2014-2015-ebola-outbreak-a-qualitative-study
#7
Heather Draper, Simon Jenkins
BACKGROUND: As part of its response to the 2014 Ebola outbreak in west Africa, the United Kingdom (UK) government established an Ebola treatment unit in Sierra Leone, staffed by military personnel. Little is known about the ethical challenges experienced by military medical staff on humanitarian deployment. We designed a qualitative study to explore this further with those who worked in the treatment unit. METHOD: Semi-structured, face-to-face and telephone interviews were conducted with 20 UK military personnel deployed between October 2014 and April 2015 in one of three roles in the Ebola treatment unit: clinician; nursing and nursing assistant; and other medical support work, including infection control and laboratory and mortuary services...
December 19, 2017: BMC Medical Ethics
https://www.readbyqxmd.com/read/29237440/experiences-of-community-members-and-researchers-on-community-engagement-in-an-ecohealth-project-in-south-africa-and-zimbabwe
#8
Rosemary Musesengwa, Moses J Chimbari
BACKGROUND: Community engagement (CE) models have provided much needed guidance for researchers to conceptualise and design engagement strategies for research projects. Most of the published strategies, however, still show very limited contribution of the community to the engagement process. One way of achieving this is to document experiences of community members in the CE processes during project implementation. The aim of our study was to explore the experiences of two research naïve communities, regarding a CE strategy collaboratively developed by researchers and study communities in a multicountry study...
December 13, 2017: BMC Medical Ethics
https://www.readbyqxmd.com/read/29228962/decision-making-on-therapeutic-futility-in-mexican-adolescents-with-cancer-a-qualitative-study
#9
Carlo Egysto Cicero-Oneto, Edith Valdez-Martinez, Miguel Bedolla
BACKGROUND: The world literature shows that empirical research regarding the process of decision-making when cancer in adolescents is no longer curable has been conducted in High-income, English speaking countries. The objective of the current study was to explore in-depth and to explain the decision-making process from the perspective of Mexican oncologists, parents, and affected adolescents and to identify the ethical principles that guide such decision-making. METHODS: Purposive, qualitative design based on individual, fact-to-face, semi-structured, in-depth interviews...
December 11, 2017: BMC Medical Ethics
https://www.readbyqxmd.com/read/29228939/the-ethics-of-caring-for-hospital-dependent-patients
#10
Calvin Sung, Jennifer L Herbst
BACKGROUND: Hospital-dependent patients are individuals who are repeatedly readmitted to the hospital because their acute medical needs cannot be met elsewhere. Unlike the chronically critically ill, these patients do not have a continuous need for life-sustaining equipment and can experience periods of relative stability where they have a good quality of life. However, some end up spending months or even years in the hospital receiving resource-intensive care because they are unable to be safely discharged, despite an initial optimistic prognosis...
December 11, 2017: BMC Medical Ethics
https://www.readbyqxmd.com/read/29221454/must-we-remain-blind-to-undergraduate-medical-ethics-education-in-africa-a-cross-sectional-study-of-nigerian-medical-students
#11
Onochie Okoye, Daniel Nwachukwu, Ferdinand C Maduka-Okafor
BACKGROUND: As the practice of medicine inevitably raises both ethical and legal issues, it had been recommended since 1999 that medical ethics and human rights be taught at every medical school. Most Nigerian medical schools still lack a formal undergraduate medical ethics curriculum. Medical education remains largely focused on traditional medical science components, leaving the medical students to develop medical ethical decision-making skills and moral attitudes passively within institutions noted for relatively strong paternalistic traditions...
December 8, 2017: BMC Medical Ethics
https://www.readbyqxmd.com/read/29216883/transplant-eligibility-for-patients-with-affective-and-psychotic-disorders-a-review-of-practices-and-a-call-for-justice
#12
Katherine L Cahn-Fuller, Brendan Parent
BACKGROUND: The scarcity of human organs requires the transplant community to make difficult allocation decisions. This process begins at individual medical centers, where transplant teams decide which patients to place on the transplant waiting list. Each transplant center utilizes its own listing criteria to determine if a patient is eligible for transplantation. These criteria have historically considered preexisting affective and psychotic disorders to be relative or absolute contraindications to transplantation...
December 8, 2017: BMC Medical Ethics
https://www.readbyqxmd.com/read/29212490/attitudes-towards-assisted-suicide-and-euthanasia-among-care-dependent-older-adults-50-in-austria-the-role-of-socio-demographics-religiosity-physical-illness-psychological-distress-and-social-isolation
#13
Erwin Stolz, Hannes Mayerl, Peter Gasser-Steiner, Wolfgang Freidl
BACKGROUND: Care-dependency constitutes an important issue with regard to the approval of end-of-life decisions, yet attitudes towards assisted suicide and euthanasia are understudied among care-dependent older adults. We assessed attitudes towards assisted suicide and euthanasia and tested empirical correlates, including socio-demographics, religiosity, physical illness, psychological distress and social isolation. METHODS: A nationwide cross-sectional survey among older care allowance recipients (50+) in private households in Austria was conducted in 2016...
December 7, 2017: BMC Medical Ethics
https://www.readbyqxmd.com/read/29202840/patient-targeted-googling-and-social-media-a-cross-sectional-study-of-senior-medical-students
#14
Aaron N Chester, Susan E Walthert, Stephen J Gallagher, Lynley C Anderson, Michael L Stitely
BACKGROUND: Social media and Internet technologies present several emerging and ill-explored issues for a modern healthcare workforce. One issue is patient-targeted Googling (PTG), which involves a healthcare professional using a social networking site (SNS) or publicly available search engine to find patient information online. The study's aim was to address a deficit in data and knowledge regarding PTG, and to investigate medical student use of SNSs due to a close association with PTG...
December 4, 2017: BMC Medical Ethics
https://www.readbyqxmd.com/read/29197378/informed-consent-for-clinical-treatment-in-low-income-setting-evaluating-the-relationship-between-satisfying-consent-and-extent-of-recall-of-consent-information
#15
Ikenna I Nnabugwu, Fredrick O Ugwumba, Emeka I Udeh, Solomon K Anyimba, Oyiogu F Ozoemena
BACKGROUND: Treatment informed consent aims to preserve the autonomy of patients in the clinician - patient relationship so as to ensure valid consent. An acceptable method of evaluating understanding of consent information is by assessing the extent of recall by patients of the pieces information believed to have been passed across. When concerns are not satisfactorily addressed from the patients' perspective, recall of consent information may be low. METHODS: This study is a questionnaire - based cross - sectional interview of consecutive adult surgical patients who could give their respective medical histories and who were booked for elective major surgical procedures over a period of 7 months in a tertiary health institution in southeastern Nigeria...
December 2, 2017: BMC Medical Ethics
https://www.readbyqxmd.com/read/29191186/roles-and-responsibilities-of-clinical-ethics-committees-in-priority-setting
#16
Morten Magelssen, Ingrid Miljeteig, Reidar Pedersen, Reidun Førde
BACKGROUND: Fair prioritization of healthcare resources has been on the agenda for decades, but resource allocation dilemmas in clinical practice remain challenging. Can clinical ethics committees (CECs) be of help? The aim of the study was to explore whether and how CECs handle priority setting dilemmas and contribute to raising awareness of fairness concerns. METHOD: Descriptions of activities involving priority setting in annual reports from Norwegian CECs (2003-2015) were studied and categorized through qualitative content analysis...
December 1, 2017: BMC Medical Ethics
https://www.readbyqxmd.com/read/29187226/development-and-pilot-testing-of-an-informed-consent-video-for-patients-with-limb-trauma-prior-to-debridement-surgery-using-a-modified-delphi-technique
#17
Yen-Ko Lin, Chao-Wen Chen, Wei-Che Lee, Tsung-Ying Lin, Liang-Chi Kuo, Chia-Ju Lin, Leiyu Shi, Yin-Chun Tien, Yuan-Chia Cheng
BACKGROUND: Ensuring adequate informed consent for surgery in a trauma setting is challenging. We developed and pilot tested an educational video containing information regarding the informed consent process for surgery in trauma patients and a knowledge measure instrument and evaluated whether the audiovisual presentation improved the patients' knowledge regarding their procedure and aftercare and their satisfaction with the informed consent process. METHODS: A modified Delphi technique in which a panel of experts participated in successive rounds of shared scoring of items to forecast outcomes was applied to reach a consensus among the experts...
November 29, 2017: BMC Medical Ethics
https://www.readbyqxmd.com/read/29187190/ethical-considerations-in-forensic-genetics-research-on-tissue-samples-collected-post-mortem-in-cape-town-south-africa
#18
Laura J Heathfield, Sairita Maistry, Lorna J Martin, Raj Ramesar, Jantina de Vries
BACKGROUND: The use of tissue collected at a forensic post-mortem for forensic genetics research purposes remains of ethical concern as the process involves obtaining informed consent from grieving family members. Two forensic genetics research studies using tissue collected from a forensic post-mortem were recently initiated at our institution and were the first of their kind to be conducted in Cape Town, South Africa. MAIN BODY: This article discusses some of the ethical challenges that were encountered in these research projects...
November 29, 2017: BMC Medical Ethics
https://www.readbyqxmd.com/read/29179709/measuring-inconsistency-in-research-ethics-committee-review
#19
Samantha Trace, Simon Erik Kolstoe
BACKGROUND: The review of human participant research by Research Ethics Committees (RECs) or Institutional Review Boards (IRBs) is a complex multi-faceted process that cannot be reduced to an algorithm. However, this does not give RECs/ IRBs permission to be inconsistent in their specific requirements to researchers or in their final opinions. In England the Health Research Authority (HRA) coordinates 67 committees, and has adopted a consistency improvement plan including a process called "Shared Ethical Debate" (ShED) where multiple committees review the same project...
November 28, 2017: BMC Medical Ethics
https://www.readbyqxmd.com/read/29157253/the-no-correlation-argument-can-the-morality-of-conscientious-objection-be-empirically-supported-the-italian-case
#20
Marco Bo, Carla Maria Zotti, Lorena Charrier
BACKGROUND: The legitimacy of conscientious objection to abortion continues to fuel heated debate in Italy. In two recent decisions, the European Committee for Social Rights underlined that conscientious objection places safe, legal, and accessible care and services out of reach for most Italian women and that the measures that Italy has adopted to guarantee free access to abortion services are inadequate. Nevertheless, the Ministry of Health states that current Italian legislation, if appropriately applied, accommodates both the right to conscientious objection and the right to voluntary abortion...
November 21, 2017: BMC Medical Ethics
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