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Journal of Hospice and Palliative Nursing: JHPN

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https://www.readbyqxmd.com/read/29910692/measuring-the-impact-of-the-home-health-nursing-shortage-on-family-caregivers-of-children-receiving-palliative-care
#1
Meaghann S Weaver, Brittany Wichman, Sue Bace, Denice Schroeder, Catherine Vail, Chris Wichman, Andrew Macfadyen
The national nursing shortage translates into a gap in home nursing care available to children with complex, chronic medical conditions and their family caregivers receiving palliative care consultations. A total of 38 home health nursing surveys were completed by families receiving pediatric palliative care consultation services at a freestanding children's hospital in the Midwest. The gap in the average number of nursing hours allotted versus received was 40 h/wk per family, primarily during evening hours...
June 2018: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/29657556/care-in-nursing-facilities-after-palliative-consult
#2
Joan G Carpenter, Patricia H Berry, Mary Ersek
Despite hospital palliative care consultations during which goals of care are discussed in the context of poor prognoses, older adults are admitted to nursing homes for post-acute care where the focus is on rehabilitation. The purpose of this qualitative descriptive study was to describe factors that influence discontinuity between a palliative care consult and nursing home care and explore the potential consequences of this discontinuity. Twelve adults (mean age of 80 years) were enrolled from one community hospital and nursing home in the mid-Atlantic United States...
April 2018: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/29403331/we-re-the-eyes-and-the-ears-but-we-don-t-have-a-voice-perspectives-of-hospice-aides
#3
Djin Lai, Kristin G Cloyes, Margaret F Clayton, Katherine Doyon, Maija Reblin, Anna C Beck, Lee Ellington
Hospice aides are integral to the delivery of home hospice care and play an essential role in the effective communication and collaboration of the hospice interdisciplinary team. Despite their critical role, little is known about hospice aides' perceptions of their role in providing hospice services. This qualitative study explores hospice aides' perspectives of their work, their relationships with patients, families and interdisciplinary team members, and their contributions to end-of-life care. Two focus groups of hospice aides ( N = 13), and 16 hours of observation of in-home caregiving were conducted...
February 2018: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/29276432/animal-assisted-interactions-to-alleviate-psychological-symptoms-in-patients-on-mechanical-ventilation
#4
Breanna Hetland, Tanya Bailey, Maryjo Prince-Paul
Mechanical ventilation is a common life support intervention for critically ill patients that can cause stressful psychological symptoms. Animal assisted interactions have been used in variety of inpatient settings to reduce symptom burden and promote overall well-being. Due to the severity of illness associated with critical care, use of highly technological equipment, and heightened concern for infection control and patient safety, animal-assisted interaction has not been widely adopted in the intensive care unit...
December 2017: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/28684928/end-of-life-transitions-and-hospice-utilization-for-adolescents-does-having-a-usual-source-of-care-matter
#5
Jessica Keim-Malpass, Lisa C Lindley
Adolescents with life-limiting illnesses have intensive end-of-life trajectories and could benefit from initiation of hospice services. The medical home model, which includes having a usual source of primary care, may help facilitate quality outcomes at the end-of-life for adolescents. The purpose of this study was to determine the relationship between having a usual source of primary care on hospice utilization and end-of-life transitions among adolescents between 15-20 years with a life-limiting illness. A retrospective cohort design used 2007-2010 California Medicaid claims data (n=585)...
August 2017: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/28943805/outcomes-for-end-of-life-patients-with-anticipatory-grieving-insights-from-practice-with-standardized-nursing-terminologies-within-an-interoperable-internet-based-electronic-health-record
#6
Julie Johnson, Muhammad Kamran Lodhi, Umer Cheema, Janet Stifter, Karen Dunn-Lopez, Yingwei Yao, Andrew Johnson, Gail M Keenan, Rashid Ansari, Ashfaq Khokhar, Diana J Wilkie
No abstract text is available yet for this article.
June 2017: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/28845135/adolescents-experiences-7-and-13-months-following-the-death-of-a-brother-or-sister
#7
Dorothy Brooten, JoAnne M Youngblut, Rosa M Roche
This qualitative study used semi-structured interviews to describe adolescents' responses at 7 and 13 months to siblings' NICU/PICU/ED death. At 7 months, adolescents were asked about events around the sibling's death; at 7 and 13 months, about concerns/fears, feelings, and life changes. Seventeen adolescents participated (13-18 years; M=15); 65% Black, 24% Hispanic, 11% White. Themes included death circumstances, burial events, thinking about the deceased sibling, fears, and life changes. Adolescents reported shock and disbelief that the sibling died; 80% knew the reason for the death; many had difficulty getting through burials; all thought about the sibling...
June 2017: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/28496382/elements-of-family-centered-care-in-the-pediatric-intensive-care-unit-an-integrative-review
#8
Claire A Richards, Helene Starks, M Rebecca O'Connor, Ardith Z Doorenbos
This paper reports result from a systematic search and thematic analysis of qualitative literature to identify key issues related to family-centered care, behaviors, and communication skills that support the parental role and improve patient and family outcomes in the PICU. Five themes were identified: 1) sharing information; 2) hearing parental voices; 3) making decisions for or with parents; 4) negotiating roles; and 5) individualizing communication. These themes highlight several gaps between how parents want to be involved and perceive clinicians engage them in the care of their child...
June 2017: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/29398974/fatigue-symptom-management-in-people-living-with-human-immunodeficiency-virus
#9
Joseph D Perazzo, Allison R Webel, Joachim G Voss, Maryjo Prince-Paul
Fatigue is a subjective, unpleasant, potentially disabling symptom rooted in physiological, psychological, and behavioral causes. People living with HIV are a population highly affected by fatigue due to risk factors associated with HIV-infection, treatment, and psychosocial disease burden. People with HIV are living longer, and are facing the challenge of a longer disease trajectory. Palliative nurses with expertise in symptom management can play a crucial role in helping people with HIV to engage in health behaviors that prevent or mitigate fatigue...
April 2017: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/28670203/caregivers-heart-failure-knowledge-is-necessary-but-not-sufficient-to-assure-engagement-with-patients-in-self-care-maintenance
#10
Harleah G Buck, Judith Hupcey, Jacqueline Mogle, Mary Kay Rayens
No abstract text is available yet for this article.
April 2017: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/28260997/children-with-intellectual-disability-and-hospice-utilization
#11
Lisa C Lindley, Mari Beth Colman, John T Meadows
Over 42,000 children die each year in the United States, including those with intellectual disability (ID). Survival is often reduced when children with intellectual disability also suffer from significant motor dysfunction, progressive congenital conditions, and comorbidities. Yet, little is known about hospice care for children with intellectual disability. The purpose of this study was to explore the relationship between intellectual disability and hospice utilization. Additionally, we explored whether intellectual disability combined with motor dysfunction, progressive congenital conditions, and comorbidities influenced pediatric hospice utilization...
February 2017: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/29238269/promoting-excellence-in-symptom-management-case-series-case-study-a-new-intervention-for-rapid-end-of-life-symptom-control-in-the-home-setting
#12
Kathryn Paez, Meegan Gregg, Charlea T Massion, Brad Macy
The oral route is compromised for nearly all patients at the end of life (EOL). This article reviews the benefits and burdens of the usual alternative routes of medication delivery when the oral route fails and presents a case study on the use of a new innovation for the rectal delivery of medication to control EOL symptoms. A 62-year-old male hospice patient with end-stage metastatic prostate cancer presented with severe symptoms (Face, Legs, Activity, Cry and Consolability scale score, 9/10) that were uncontrollable with medications given via oral or sublingual routes...
December 2016: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/29081717/designing-and-testing-an-end-of-life-discussion-intervention-for-african-american-patients-with-heart-failure-and-their-families
#13
Ubolrat Piamjariyakul, Carol E Smith, Marilyn Werkowitch, Noreen Thompson, Maria Fox, Karin Porter Williamson, Lori Olson
There is an escalating prevalence of heart failure (HF) with high mortality. Compared with other races, African Americans face a higher incidence of HF at earlier age of onset, with more rapid progression, and with increased family care burden and greater care costs and disparity in health care services at the end of life (EOL). Concomitant out-of-pocket HF costs and care demands indicate the need for early discussion of palliative and EOL care needs. We therefore developed and pilot tested a culturally sensitive intervention specific to the needs of African American HF patients and their families at the EOL...
December 2016: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/28286425/what-does-the-staff-think-factors-associated-with-clinical-staff-perceptions-of-what-constitutes-high-quality-dying-and-death-at-a-tertiary-pediatric-hospital
#14
Rebecca Bennett, James Proudfoot
No abstract text is available yet for this article.
October 2016: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/27378830/an-examination-of-interactions-between-hospice-health-care-providers-and-adolescents-with-a-parent-in-hospice
#15
M Murray Mayo
Interviews conducted with adolescents living with a dying parent were examined to identify the type of interactions the adolescents had with members of a hospice healthcare team. Four types of interactions were identified: No Interactions, In-passing Interactions, Engaged Interactions, and Formal Interactions. Results indicated that most of the adolescents had no contact with the hospice healthcare team or interacted with providers only briefly. Some adolescents reported more engagement with one or more hospice healthcare team members, and a few received formal counseling services from the hospice healthcare team or outside provider...
August 2016: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/27398071/confronting-mortality-narratives-of-military-veterans-enrolled-in-home-hospice-care
#16
Maryjo Prince-Paul, Karen Peereboom, Barbara J Daly
No abstract text is available yet for this article.
June 2016: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/27110223/communication-with-residents-and-families-in-nursing-homes-at-the-end-of-life
#17
Samantha Johnson, Marjorie J Bott
Communication with residents and their families is important to ensure that the end-of-life experience is in accordance with resident's wishes. A secondary analysis was conducted to determine: (a) who should communicate with the resident/family about death and dying; (b) when communication should occur around death and dying, obtaining a "DNR" order, and obtaining a hospice referral; and (c) what differences exist in communication about death and dying between Registered Nurses (RNs), Licensed Practical Nurses (LPNs), and unlicensed staff...
April 1, 2016: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/27087785/patients-perceptions-of-illness-severity-in-advanced-heart-failure
#18
Judith E Hupcey, Lisa Kitko, Windy Alonso
No abstract text is available yet for this article.
April 2016: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/26877713/work-environment-facilitators-to-the-availability-of-complementary-and-alternative-therapies-in-perinatal-hospices
#19
Charlotte Wool, Leila E Kozak, Lisa C Lindley
Increasingly, patients and clinicians are considering palliative care interventions during pregnancy for the maternal-fetal dyad, when a life-limiting diagnosis is confirmed. Nurses are at the forefront of providing hospice and palliative care that includes planning interventions for infants nearing the end of life. However, little is known about the work environment facilitators to the availability of complementary and alternative medicine (CAM) therapies. Using a national database of perinatal hospice and palliative care providers, we described the types of CAM therapies available and explored the influence of the nurse work environment on the availability of CAM therapies with multivariate regression analysis...
October 2015: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/26709350/pulmonary-rehabilitation-and-palliative-care-for-the-lung-cancer-patient
#20
Brian Tiep, Virginia Sun, Marianna Koczywas, Jae Kim, Dan Raz, Arti Hurria, Jennifer Hayter
Pulmonary rehabilitation, as a quality of life intervention, has a role to play in palliative care for lung cancer patients. Combining the art and skills of clinical care, physiological, and behavioral tools, pulmonary rehabilitation can serve to rebuild the functional capacity of patients limited by breathlessness and deconditioning. Exercise programs are the primary tool used to restore and rebuild the patient's endurance by challenging the entire pathway of oxygen transport and improving gas exchange. Other tools of pulmonary rehabilitation include breathing retraining, self-management skills, airway clearance techniques, bronchodilitation, smoking cessation and oxygen therapy...
October 2015: Journal of Hospice and Palliative Nursing: JHPN
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