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Journal of Hospice and Palliative Nursing: JHPN

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https://www.readbyqxmd.com/read/30260814/transforming-end-of-life-care-by-implementing-a-patient-centered-care-model-findings-from-an-action-research-project
#1
Raffaella Dobrina, Maja Tenze, Alvisa Palese
Patient-centered care is valued by health care professionals working in palliative care settings. However, studies have revealed the difficulty of adopting patient-centered care in daily practice and of sharing its meaning within the interdisciplinary team. The aim of this study was to report the process of transforming end-of-life care by implementing a patient-centered model of care in an Italian hospice. An action research process was conducted between June 2012 and June 2014. The following phases were performed: (a) "looking" phase: the diagnosis was established by collecting data through semistructured interviews in the field study and through the administration of the Frommelt Attitude Toward the Care of the Dying Scale Form B-Italian Version; (b) "thinking" phase: staff members, guided by a research team, redesigned practice by identifying priorities in improvements and actions through multiprofessional focus groups; (c) "acting" phase: actions identified in the previous phase were implemented; and (d) "relooking" phase: the same data collection processes used in the looking phase were applied to evaluate the outcomes achieved...
September 26, 2018: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/30188446/hpna-position-statement-advance-care-planning
#2
(no author information available yet)
No abstract text is available yet for this article.
October 2018: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/30188445/lessons-from-an-immersion-experience-in-southern-india
#3
Kimberly Chow
Approximately 2.4 million people in India are living with cancer, and more than 1 million new cancer diagnoses are made annually, often in advanced stages of disease. An estimated 80% of patients with advanced cancer will develop significant pain resulting in the need to increase access to appropriate palliative care services across the country, including a priority on pain and symptom management. This article describes the history and status of palliative care across India, with an emphasis on the efforts made in the southern state of Kerala to engage community volunteers in the care of patients with chronic serious illness...
October 2018: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/30188444/losing-health-symbols-because-of-nutrition-related-problems-in-advanced-cancer-an-interpretative-phenomenological-analysis
#4
Sophie Opsomer, Sofie Joossens, Claudia De Wit, Emelien Lauwerier, Peter Pype
Cancer and nutrition-related problems are extremely distressing events and disturb functioning and daily life. It is recognized that the effects of stressors challenging well-being are mediated by the meaning attached to these stressors. As nutrition-related problems are often being experienced within couples, it is also important to gain understanding of a partner's interpretation of complaints and whether it coincides with that of the patient.To explore the meaning attached to nutrition-related problems, a qualitative approach was followed...
October 2018: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/30188443/pilot-of-a-pediatric-palliative-care-early-intervention-instrument
#5
Rachel Shaw, Hallie Seegal, Joy G Miller, Jessica Keim-Malpass
Current research demonstrates that pediatric symptom management care is often initiated in the late stages of disease once clinicians are no longer able to meaningfully impact symptom burden. Given that physicians or nurse practitioners are responsible for initiating palliative care referrals, it is incumbent upon registered nurses to advocate when improved symptom management care is needed. The pediatric palliative care screening instrument pilot provides a centralized instrument to document and quantify a patient's symptom profile, giving registered nurses the opportunity to objectively communicate and track a patient's need for improved symptom management care within the areas of pain, secretions, dyspnea, intractable seizures, nausea, vomiting, constipation, diarrhea, anorexia, cachexia, sleep disturbance, lethargy, anxiety, depression, and/or agitation...
October 2018: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/30188442/what-matters-to-persons-with-dementia-at-the-end-of-life-perspectives-of-proxy-decision-makers
#6
Jung Kwak, Hyunjin Noh
For substituted decision makers for the growing number of persons with dementia (PWDs), understanding the PWD's values is a prerequisite for making end-of-life (EOL) decisions congruent with the PWD's wishes. The current qualitative study explored PWD health care proxies' perspectives on values that are important to PWDs at end of life and challenges in making EOL decisions that reflect PWDs' values. Semistructured interviews were conducted with 20 PWD proxies, and data were analyzed using the content analysis, an inductive approach to identify themes...
October 2018: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/30188441/self-efficacy-and-stress-among-informal-caregivers-of-individuals-at-end-of-life
#7
Michelle M Hampton, Patricia Newcomb
Researchers have established associations between the stressors of providing informal care and caregiver health risks. Despite the negative consequences, researchers have identified the existence of protective factors that have the potential to buffer or prevent stress. The purpose of this study was to determine the relationship between self-efficacy and stress in adult informal caregivers providing end-of-life care. This cross-sectional, associational study analyzed data from questionnaires completed by adult informal caregivers providing end-of-life care for an adult in North Texas...
October 2018: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/30188440/exploration-of-families-experiences-caring-for-loved-ones-with-advanced-ovarian-cancer
#8
Kalli Stilos, Margaret Fitch, Amy Eleanor Nolen, Tracey DasGupta, Marilyn Sapsford, Alison McAndrew, Shari Moura
Ovarian cancer is challenging, both physically and psychologically, because of the advanced nature of the disease at diagnosis, adverse effects of the disease and treatment, and impact on roles and responsibilities. The family plays an integral role in promoting and maintaining the health of family caregivers, as well as providing physical and emotional support. The purpose of this study was to explore the experience of family caregivers caring for their loved ones with advanced ovarian cancer. Thirteen family caregivers were interviewed...
October 2018: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/30188439/educating-nurses-about-end-of-life-care-for-patients-with-implanted-cardioverter-defibrillators
#9
Jaclyn Conelius, Diana Mager
Many people with implanted cardioverter defibrillators (ICDs) are living at home and receiving nursing services through home health care agencies. Near the end of life, it is not unusual for patients to request comfort measures and care that promotes quality rather than quantity of life. The purpose of this pilot study was twofold: (1) to educate home health care nurses on care of patients with ICDs nearing the end of life and (2) to measure changes in nurse knowledge pre to post educational session. None of the registered nurses in this study reported ever caring for a patient who had died with an ICD in place...
October 2018: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/30188438/enhancing-cancer-pain-assessment-and-management-in-hospice
#10
Melissa B Miner, Kimberly Stephens, Brenda Swanson-Biearman, Vickie Leone, Kimberly Whiteman
Pain is one of the most common symptoms in individuals with cancer and is directly associated with significantly reduced quality of life. The purpose of this project was to enhance assessment and management of cancer-related pain for patients in the hospice setting. Nurse attitudes and knowledge about pain were evaluated using the Nurses' Knowledge and Attitudes Survey Regarding Pain before and 6 weeks after an educational program. Nurses completed a pain assessment at each home visit and followed an algorithm based on the National Comprehensive Cancer Network Clinical Practice Guidelines to manage pain...
October 2018: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/30188437/the-management-of-nausea-at-the-end-of-life
#11
(no author information available yet)
No abstract text is available yet for this article.
October 2018: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/30188436/the-management-of-nausea-at-the-end-of-life
#12
Gayathri S Moorthy, MariJo Letizia
The evaluation and management of nausea in patients near the end of life can be more challenging than that of nausea in patients undergoing antineoplastic therapies. Unlike in the oncology setting in which nausea is primarily managed using antiemetic regimens that have been developed with the neuropharmacology and emetogenic potentials of chemotherapy agents in mind, many patients receiving end-of-life care have nausea of multifactorial etiology. Patients also may be older with reduced physiologic ability to metabolize and clear drugs...
October 2018: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/30188435/applying-a-balm-medicating-the-patient-to-treat-the-moral-distress-of-caregivers
#13
(no author information available yet)
No abstract text is available yet for this article.
October 2018: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/30188434/applying-a-balm-medicating-the-patient-to-treat-the-moral-distress-of-caregivers
#14
Margaret M Mahon, Karen L Barker
Moral distress occurs when a nurse knows the right action but is impeded from taking that right action because of institutional constraints. Caring for patients who are dying might evoke distress, including moral distress. The distress from a difficult clinical situation is likely to permeate other areas of practice. In this article, 2 cases are used as a means to distinguish moral distress from other distress arising from clinical situations. Opportunities to alleviate distress include increasing knowledge, improved communication, enhanced collaboration, and development of institutional supports...
October 2018: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/30188433/20-5-jhpn-initial-text
#15
Debra Wiegand
No abstract text is available yet for this article.
October 2018: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/30188432/curiosity-and-compassion
#16
Betty Ferrell
No abstract text is available yet for this article.
October 2018: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/30063636/embedding-palliative-care-into-healthy-aging-a-narrative-case-study-from-thailand
#17
Ladda Thiamwong, Wanicha Pungchompoo
This article provides a conceptual framework for understanding the relationship between palliative care and healthy aging using a narrative case study from Thailand. The Thai context is used to clarify two concepts: healthy aging and good death. This case study describes a Thai female older adult's perspective and her drive to stay physically, cognitively, and socially active for as long as possible-strong indicators of healthy aging until the end of life. Family support is a vital part of helping older adults stay active and achieve a good death...
August 2018: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/30063635/the-perceived-facilitators-and-challenges-of-translating-a-lung-cancer-palliative-care-intervention-into-community-based-settings
#18
Shaunna Siler, Iris Mamier, Betty Winslow
Despite significant progress in implementing palliative care interventions for patients with cancer, few intervention studies seek health care clinicians' input before implementation of these into the community. The purpose of this study was to explore palliative care and oncology clinicians' perspectives on the perceived facilitators and challenges in meeting the quality-of-life needs of patients with lung cancer and family caregivers in community-based settings. The Reach Effectiveness Adoption Implementation Maintenance model for implementation research was used as a framework...
August 2018: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/30063634/outcomes-of-a-dignity-therapy-life-plan-intervention-for-patients-with-advanced-cancer-undergoing-chemotherapy
#19
Ann M Dose, Pamela J McCabe, Catherine A Krecke, Jeff A Sloan
Dignity therapy is a psychosocial intervention provided at the end of life to improve patient outcomes, but many persons cannot complete it because of health decline. Patients also reprioritize their life plans as death becomes imminent. As part of meeting standards to provide psychosocial palliative care simultaneously with cancer treatment, we provided a dignity therapy/life plan intervention to 18 patients with advanced pancreatic or lung cancer receiving cancer treatment. The study aim was to evaluate patient-reported outcomes of dignity therapy/life plan...
August 2018: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/30063633/the-effects-of-guided-imagery-on-comfort-in-palliative-care
#20
Adriana Coelho, Vitor Parola, Anna Sandgren, Olga Fernandes, Katharine Kolcaba, João Apóstolo
Guided imagery (GI) is a nonpharmacological intervention that is increasingly implemented in different clinical contexts. However, there have been no studies on the effect of GI on the comfort of inpatients of palliative care (PC) units. Therefore, the aim of this study was to evaluate the effects of GI on the comfort of patients in PC. A 1-group, pretest-posttest, pre-experimental design was used to measure differences in heart rate, respiratory rate, pain, and comfort in patients (n = 26) before and after a 2-session GI program...
August 2018: Journal of Hospice and Palliative Nursing: JHPN
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