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Health Expectations: An International Journal of Public Participation in Health Care and Health Policy

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https://www.readbyqxmd.com/read/28338280/patients-views-on-their-decision-making-during-inpatient-rehabilitation-after-newly-acquired-spinal-cord-injury-a-qualitative-interview-based-study
#1
Anke Scheel-Sailer, Marcel W Post, Franz Michel, Tatjana Weidmann-Hügle, Ruth Baumann Hölzle
INTRODUCTION: Involving patients in decision making is a legal requirement in many countries, associated with better rehabilitation outcomes, but not easily accomplished during initial inpatient rehabilitation after severe trauma. Providing medical treatment according to the principles of shared decision making is challenging as a point in case for persons with spinal cord injury (SCI). OBJECTIVES: The aim of this study was to retrospectively explore the patients' views on their participation in decision making during their first inpatient rehabilitation after onset of SCI, in order to optimize treatment concepts...
March 24, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28306185/-i-have-nine-specialists-they-need-to-swap-notes-australian-patients-perspectives-of-medication-related-problems-following-discharge-from-hospital
#2
Daniela Eassey, Andrew J McLachlan, Jo-Anne Brien, Ines Krass, Lorraine Smith
BACKGROUND: Research has shown that patients are most susceptible to medication-related problems (MRPs) when transitioning from hospital to home. Currently, the literature in this area focuses on interventions, which are mainly orientated around the perspective of the health-care professional and do not take into account patient perspectives and experiences. OBJECTIVE: To capture the experiences and perceptions of Australian patients regarding MRPs following discharge from hospital...
March 17, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28306182/barriers-and-enablers-of-type-2-diabetes-self-management-in-people-with-severe-mental-illness
#3
Kathleen Mulligan, Hayley McBain, Frederique Lamontagne-Godwin, Jacqui Chapman, Mark Haddad, Julia Jones, Chris Flood, David Thomas, Alan Simpson
BACKGROUND: People with diabetes and severe mental illness (SMI) experience poorer outcomes than those with diabetes alone. To improve outcomes, it is necessary to understand the difficulties that people with SMI experience in managing their diabetes. AIMS: To identify barriers and enablers to effective diabetes self-management experienced by people with SMI and type 2 diabetes. METHOD: Qualitative methodology using semi-structured interviews was employed...
March 17, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28295883/social-and-material-aspects-of-life-and-their-impact-on-the-physical-health-of-people-diagnosed-with-mental-illness
#4
Stephanie B Ewart, Brenda Happell, Julia Bocking, Chris Platania-Phung, Robert Stanton, Brett Scholz
BACKGROUND: People diagnosed with mental illness have shorter lives and poorer physical health, compared to the general population. These health inequities are usually viewed at an individual and clinical level, yet there is little research on the views of mental health consumers on clinical factors in broader contexts. OBJECTIVE: To elicit the views of consumers of mental health services regarding their physical health and experiences of accessing physical health-care services...
March 15, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28295940/implementation-of-a-youth-adult-partnership-model-in-youth-mental-health-systems-research-challenges-and-successes
#5
Olivia S Heffernan, Tyson M Herzog, Jordana E Schiralli, Lisa D Hawke, Gloria Chaim, Joanna L Henderson
BACKGROUND: By integrating Youth-Adult Partnerships (Y-APs) in organizational decision making and programming in health-care settings, youth can be engaged in decisions that affect them in a way that draws on their unique skills and expertise. Despite challenges, Y-APs can have many benefits for youth and adults alike, as well as for the programmes and initiatives that they undertake together. OBJECTIVE: This article describes the development, implementation and success of a Y-AP initiative at the McCain Centre at the Centre for Addiction and Mental Health, a large urban hospital...
March 14, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28295915/effectiveness-of-a-decision-aid-for-patients-with-depression-a%C3%A2-randomized-controlled-trial
#6
Lilisbeth Perestelo-Perez, Amado Rivero-Santana, Juan Antonio Sanchez-Afonso, Jeanette Perez-Ramos, Carmen Luisa Castellano-Fuentes, Karen Sepucha, Pedro Serrano-Aguilar
BACKGROUND: Shared decision making is an important component of patient-centred care and decision aids are tools designed to support patients' decision making and help patients with depression to make informed choices. OBJECTIVE: The study aim was to assess the effectiveness of a web-based decision aid for patients with unipolar depression. DESIGN: Randomized controlled trial. SETTING AND PARTICIPANTS: Adults diagnosed with a major depressive disorder and recruited in primary care centres were included and randomized to the decision aid (n=68) or usual care (n=79)...
March 10, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28294479/understanding-advance-care-planning-within-the-south-asian-community
#7
Patricia D Biondo, Rashika Kalia, Rooh-Afza Khan, Nadia Asghar, Cyrene Banerjee, Debbie Boulton, Nancy Marlett, Svetlana Shklarov, Jessica E Simon
BACKGROUND: Advance care planning (ACP) is a process of reflection on and communication of a person's future health-care preferences. Evidence suggests visible minorities engage less in ACP. The South Asian ethnic group is the largest visible minority group in Canada, and information is needed to understand how ACP is perceived and how best to approach ACP within this diverse community. OBJECTIVE: To explore perspectives of South Asian community members towards ACP...
March 10, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28261937/communication-challenges-experienced-by-migrants-with-cancer-a-comparison-of-migrant-and-english-speaking-australian-born-cancer-patients
#8
Amelia Hyatt, Ruby Lipson-Smith, Penelope Schofield, Karla Gough, Ming Sze, Lynley Aldridge, David Goldstein, Michael Jefford, Melanie L Bell, Phyllis Butow
OBJECTIVES: Understanding the difficulties faced by different migrant groups is vital to address disparities and inform targeted health-care service delivery. Migrant oncology patients experience increased morbidity, mortality and psychological distress, with this tentatively linked to language and communication difficulties. The objective of this exploratory study was to investigate the communication barriers and challenges experienced by Arabic, Greek and Chinese (Mandarin and Cantonese) speaking oncology patients in Australia...
March 5, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28261901/discussing-prognosis-and-treatment-goals-with-patients-with-advanced-cancer-a-qualitative-analysis-of-oncologists-language
#9
Wen-Ying Sylvia Chou, Lauren M Hamel, Chan L Thai, David Debono, Robert A Chapman, Terrance L Albrecht, Louis A Penner, Susan Eggly
BACKGROUND: The National Academy of Medicine recommends that cancer patients be knowledgeable of their prognosis to enable them to make informed treatment decisions, but research suggests few patients receive this information. OBJECTIVE: This qualitative study describes oncologists' language during discussions of prognosis and treatment goals in clinical interactions with African American patients diagnosed with cancer. DESIGN: We analysed transcripts from video recordings of clinical interactions between patients with Stage III or IV cancer (n=26) and their oncologists (n=9)...
March 5, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28245085/effect-on-cardiovascular-disease-risk-factors-of-interventions-to-alter-consultations-between-practitioners-and-patients-with-type-2-diabetes-a-systematic-review-and-meta-analysis-of-trials-in-primary-care
#10
REVIEW
Hajira Dambha-Miller, Andrew J M Cooper, Ann Louise Kinmonth, Simon J Griffin
OBJECTIVE: To examine the effect on cardiovascular (CVD) risk factors of interventions to alter consultations between practitioners and patients with type 2 diabetes. SEARCH STRATEGY: Electronic and manual citation searching to identify relevant randomized controlled trials (RCTs). INCLUSION CRITERIA: RCTs that compared usual care to interventions to alter consultations between practitioners and patients. The population was adults aged over 18 years with type 2 diabetes...
February 28, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28244631/identifying-patient-centred-recommendations-for-improving-patient-safety-in-general-practices-in-england-a-qualitative-content-analysis-of-free-text-responses-using-the-patient-reported-experiences-and-outcomes-of-safety-in-primary-care-preos-pc-questionnaire
#11
Ignacio Ricci-Cabello, Lorena Saletti-Cuesta, Sarah P Slight, Jose M Valderas
BACKGROUND: There is a growing interest in identifying strategies to achieve safer primary health-care provision. However, most of the research conducted so far in this area relies on information supplied by health-care providers, and limited attention has been paid to patients' perspectives. OBJECTIVE: To explore patients' experiences and perceptions of patient safety in English general practices with the aim of eliciting patient-centred recommendations for improving patient safety...
February 28, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28218984/closing-the-patient-experience-chasm-a-two-level-validation-of-the-consumer-quality-index-inpatient-hospital-care
#12
Alina Smirnova, Kiki M J M H Lombarts, Onyebuchi A Arah, Cees P M van der Vleuten
BACKGROUND: Evaluation of patients' health care experiences is central to measuring patient-centred care. However, different instruments tend to be used at the hospital or departmental level but rarely both, leading to a lack of standardization of patient experience measures. OBJECTIVE: To validate the Consumer Quality Index (CQI) Inpatient Hospital Care for use on both department and hospital levels. DESIGN: Using cross-sectional observational data, we investigated the internal validity of the questionnaire using confirmatory factor analyses (CFA), and the generalizability of the questionnaire for use at the department and hospital levels using generalizability theory...
February 20, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28195685/stigmatization-among-people-living-with-hiv-in-hong-kong-a%C3%A2-qualitative-study
#13
Phoenix K H Mo, Charlson T Y Ng
BACKGROUND: HIV/AIDS is one of the most stigmatized medical conditions across the world. Self-stigma is prevalent among people living with HIV (PLHIV) and a major obstacle to HIV prevention and care. OBJECTIVE: This study aimed to describe the experiences of stigmatization and explore the possible factors that might be associated with stigmatization among PLHIV in Hong Kong. DESIGN: Qualitative in-depth interviews were conducted. SETTING AND PARTICIPANTS: 15 PLHIV were recruited from two local non-governmental organizations on HIV prevention...
February 14, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28195675/-it-goes-against-the-grain-a-qualitative-study-of-the-experiences-of-parents-administering-distressing-health-care-procedures-for-their-child-at-home
#14
Gemma Spiers, Bryony Beresford
BACKGROUND: Parents caring for children with complex and long-term conditions at home take on responsibility for technical health-care procedures that may cause their child distress. Little evidence exists about parents' experience of this specific aspect of their caring role. AIMS: To explore and understand parents' experiences of administering distressing health-care procedures as part of caring for their child at home. DESIGN: An explorative qualitative study...
February 14, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28186384/women-s-perspectives-on-human-papillomavirus-self-sampling-in-the-context-of-the-uk-cervical-screening-programme
#15
Denitza Williams, Myfanwy Davies, Alison Fiander, Daniel Farewell, Sharon Hillier, Kate Brain
BACKGROUND: Testing for human papillomavirus (HPV) is being incorporated into the cervical screening programme, with the probable future introduction of HPV as a primary test and a possibility of HPV self-sampling. In anticipation of this development, we sought to inform future policy and practice by identifying potential barriers to HPV self-sampling. METHODS: A cross-sectional survey of 194 women aged 20-64 years was conducted. Logistic regression analysis was used to identify determinants of self-sampling intentions...
February 10, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28177564/involving-latina-o-parents-in-patient-centered-outcomes-research-contributions-to-research-study-design-implementation-and-outcomes
#16
Mónica Pérez Jolles, Maria Martinez, San Juanita Garcia, Gabriela L Stein, Kathleen C Thomas
BACKGROUND: Comparative effectiveness research (CER) is supported by policymakers as a way to provide service providers and patients with evidence-based information to make better health-care decisions and ultimately improve services for patients. However, Latina/o patients are rarely involved as study advisors, and there is a lack of documentation on how their voices contribute to the research process when they are included as collaborators. OBJECTIVES: The purpose of this article was to contribute to the literature by presenting concrete contributions of Latina/o parent involvement to study design, implementation and outcomes in the context of a CER study called Padres Efectivos (Parent Activation)...
February 8, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28160350/do-we-all-agree-what-good-health-care-looks-like-views-from-those-who-are-seldom-heard-in-health-research-policy-and-service-improvement
#17
Sara Ryan, Jenny Hislop, Sue Ziebland
CONTEXT: The aim of this study was to ask whether there are shared ideas about what good health care looks like that apply across different populations and conditions. Do priorities among "seldom heard" groups differ from mainstream views and, if so, how might we understand these differences? DESIGN: Focus groups were recruited with the help of our study patient representatives. Participants discussed and prioritized a set of eight "core components" of good care...
February 3, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28152248/the-complexity-of-shaping-self-management-in-daily-practice
#18
Hester M van de Bovenkamp, Jolanda Dwarswaard
BACKGROUND AND CONTEXT: Many countries are giving patients a more active role in health care, on both the individual and collective level. This study focuses on one aspect of the participation agenda on the individual level: self-management. The study explores self-management in practice, including the implications of the difficulties encountered. OBJECTIVE: To gain insight into the complexity of self-management practice. This is crucial for developing both self-management interventions and the participation policy agenda...
February 2, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28116774/beyond-the-consultation-room-proposals-to-approach-health-promotion-in-primary-care-according-to-health-care-users-key-community-informants-and-primary-care-centre-workers
#19
Anna Berenguera, Mariona Pons-Vigués, Patricia Moreno-Peral, Sebastià March, Joana Ripoll, Maria Rubio-Valera, Haizea Pombo-Ramos, Angela Asensio-Martínez, Eva Bolaños-Gallardo, Catalina Martínez-Carazo, José Ángel Maderuelo-Fernández, Maria Martínez-Andrés, Enriqueta Pujol-Ribera
BACKGROUND: Primary health care (PHC) is the ideal setting to provide integrated services centred on the person and to implement health promotion (HP) activities. OBJECTIVE: To identify proposals to approach HP in the context of primary care according to health-care users aged 45-75 years, key community informants and primary care centre (PCC) workers. METHODS: Descriptive-interpretive qualitative research with 276 participants from 14 PCC of seven Spanish regions...
January 24, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28105781/a-qualitative-study-exploring-medication-management-in-people-with-dementia-living-in-the-community-and-the-potential-role-of-the-community-pharmacist
#20
Ian D Maidment, Lydia Aston, Tiago Moutela, Chris G Fox, Andrea Hilton
BACKGROUND: The prevalence of dementia is increasing rapidly. People with dementia may be prescribed complex medication regimens, which may be challenging for them and any carers involved to safely manage. OBJECTIVE: To describe and understand the key challenges, in relation to medication issues, experienced by people with dementia and their informal carers dwelling in the community and the potential role of community pharmacists. DESIGN: Qualitative semi-structured interviews...
January 19, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
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