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Health Expectations: An International Journal of Public Participation in Health Care and Health Policy

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https://www.readbyqxmd.com/read/30341795/potential-harms-associated-with-routine-collection-of-patient-sociodemographic-information-a-rapid-review
#1
Jennifer Petkovic, Stephanie L Duench, Vivian Welch, Tamara Rader, Alison Jennings, Alan J Forster, Peter Tugwell
BACKGROUND: Health systems are recommended to capture routine patient sociodemographic data as a key step in providing equitable person-centred care. However, collection of this information has the potential to cause harm, especially for vulnerable or potentially disadvantaged patients. OBJECTIVE: To identify harms perceived or experienced by patients, their families, or health-care providers from collection of sociodemographic information during routine health-care visits and to identify best practices for when, by whom and how to collect this information...
October 19, 2018: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/30334315/translation-transcultural-adaptation-and-validation-of-two-questionnaires-on-shared-decision-making
#2
María Victoria Ruiz Yanzi, Mariela Silvia Barani, Juan Victor Ariel Franco, Fernando Ramón Vazquez Peña, Sergio Adrian Terrasa, Karin Silvana Kopitowski
OBJECTIVE: To translate, transcultural adapt, and validate the "CollaboRATE" measure and the "Ask 3 Questions" intervention in Argentina, allowing us to quantify the degree of use and implementation of shared decision making (SDM). DESIGN: Cross-sectional study. SETTING AND PARTICIPANTS: Data were collected in an academic hospital in Buenos Aires. Physician-patient pairs were invited to participate following their scheduled outpatient visits...
October 17, 2018: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/30318769/identifying-the-processes-of-change-and-engagement-from-using-a-social-network-intervention-for-people-with-long-term-conditions-a-qualitative-study
#3
Ivaylo Vassilev, Anne Rogers, Anne Kennedy, Chad Oatley, Elizabeth James
BACKGROUND: Personal and community networks are recognized as influencing and shaping self-management activities and practices. An acceptable intervention which facilitates self-management by mobilizing network support and improves network engagement has a positive impact on health and quality of life. This study aims to identify the processes through which such changes and engagement take place. METHODS: The study was conducted in the south of England in 2016-2017 and adopted a longitudinal case study of networks design...
October 14, 2018: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/30302869/involving-young-people-in-cyberbullying-research-the-implementation-and-evaluation-of-a-rights-based-approach
#4
Rebecca Dennehy, Mary Cronin, Ella Arensman
BACKGROUND: Cyberbullying is an international Public Health concern. Efforts to understand and address it can be enhanced by involving young people. This paper describes a rights-based collaboration with young people in a qualitative exploration of cyberbullying. It describes the establishment, implementation and evaluation of a Young Person's Advisory Group as well as identifying the impact on the research process and the young people involved. METHODS: Sixteen postprimary school students met with researchers on five occasions in a youth centre...
October 10, 2018: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/30289189/moving-between-ideologies-in-self-management-support-a-qualitative-study
#5
Dagmara Bossy, Ingrid Ruud Knutsen, Anne Rogers, Christina Foss
BACKGROUND: Reforms in current health policy explicitly endorse health promotion through group-based self-management support for people with long-term conditions. Health promotion and traditional medicine are based on different logics. Accordingly, health professionals in health-promoting settings demand the adoption of new practices and ways of thinking. OBJECTIVES: The objective of our study was to investigate how health professionals perceive the health-promoting group-based self-management support that is politically initiated for people with long-term conditions...
October 9, 2018: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/30289592/coproduction-and-health-public-and-clinicians-perceptions-of-the-barriers-and-facilitators
#6
Daniella M Holland-Hart, Samia M Addis, Adrian Edwards, Joyce E Kenkre, Fiona Wood
BACKGROUND: Coproduction is an approach increasingly recognized across public services internationally. However, awareness of the term and the barriers and facilitators to its implementation in the NHS are not widely understood. This study examines clinician and public perceptions of coproduction within the context of the Prudent Healthcare initiative. OBJECTIVES: To provide insights into how coproduction is viewed by clinicians and the public and identify perceived barriers and facilitators to its implementation...
October 5, 2018: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/30289590/user-involvement-in-digital-health-working-together-to-design-smart-home-health-technology
#7
Alison Burrows, Ben Meller, Ian Craddock, Fiona Hyland, Rachael Gooberman-Hill
BACKGROUND: Public involvement adds value to numerous aspects of health research, yet few studies have attempted to evaluate its impact on research. Evidence of such impact is needed to develop recommendations for best practice and ensure adequate resourcing. AIM: To evaluate public involvement within a large interdisciplinary Science, Technology, Engineering and Mathematics (STEM) research project that focused on digital health. METHODS: The evaluation was conducted with members of the project's Public Advisory Groups (PAG) and with researchers who had participated in involvement activities...
October 5, 2018: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/30289583/-to-know-or-not-to-know%C3%A2-push-and-pull-in-ever-smokers-lung-screening-uptake-decision-making-intentions
#8
Janet E Tonge, Melanie Atack, Phil A Crosbie, Phil V Barber, Richard Booton, Denis Colligan
BACKGROUND: In the United States, lung cancer screening aims to detect cancer early in nonsymptomatic current and former smokers. A lung screening pilot service in an area of high lung cancer incidence in the United Kingdom has been designed based on United States trial evidence. However, our understanding of acceptability and reasons for lung screening uptake or decline in a United Kingdom nontrial context are currently limited. OBJECTIVE: To explore with ever smokers the acceptability of targeted lung screening and uptake decision-making intentions...
October 5, 2018: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/30244514/how-does-it-feel-to-be-a-problem-patients-experiences-of-self-management-support-in-new-zealand-and-canada
#9
Nicolette F Sheridan, Timothy W Kenealy, Anita C Fitzgerald, Kerry Kuluski, Annette Dunham, Ann M McKillop, Allie Peckham, Ashlinder Gill
BACKGROUND: The impact of long-term conditions is the "healthcare equivalent to climate change." People with long-term conditions often feel they are a problem, a burden to themselves, their family and friends. Providers struggle to support patients to self-manage. The Practical Reviews in Self-Management Support (PRISMS) taxonomy lists what provider actions might support patient self-management. OBJECTIVE: To offer providers advice on how to support patient self-management...
September 22, 2018: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/30244499/what-s-the-problem-with-patient-experience-feedback-a-macro-and-micro-understanding-based-on-findings-from-a-three-site-uk-qualitative-study
#10
Laura Sheard, Rosemary Peacock, Claire Marsh, Rebecca Lawton
CONTEXT: Collecting feedback from patients about their experiences of health care is an important activity. However, improvement based on this feedback rarely materializes. In this study, we focus on answering the question-"what is impeding the use of patient experience feedback?" METHODS: We conducted a qualitative study in 2016 across three NHS hospital Trusts in the North of England. Focus groups were undertaken with ward-based staff, and hospital managers were interviewed in-depth (50 participants)...
September 22, 2018: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/30221463/the-different-perspectives-of-patients-informal-caregivers-and-professionals-on-patient-involvement-in-primary-care-teams-a-qualitative-study
#11
Kirti D Doekhie, Mathilde M H Strating, Martina Buljac-Samardzic, Hester M van de Bovenkamp, Jaap Paauwe
BACKGROUND: Patient involvement in the decision-making process, especially for chronically ill elderly patients, has become an important element of patient-centred primary care in many countries, including the Netherlands. This study openly explores different perspectives of patients, informal caregivers and primary care professionals on patient involvement in primary care team interactions. METHODS: Sixty-four qualitative semi-structured interviews with chronically ill elderly patients, informal caregivers and primary care professionals from various disciplines...
September 17, 2018: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/30221454/interventions-to-support-shared-decision-making-for-hypertension-a-systematic-review-of-controlled-studies
#12
Rachel A Johnson, Alyson Huntley, Rachael A Hughes, Helen Cramer, Katrina M Turner, Ben Perkins, Gene Feder
BACKGROUND: Hypertension (high blood pressure) is a common long-term health condition. Patient involvement in treating and monitoring hypertension is essential. Control of hypertension improves population cardiovascular outcomes. However, for an individual, potential benefits and harms of treatment are finely balanced. Shared decision making has the potential to align decisions with the preferences and values of patients. OBJECTIVE: Determine the effectiveness of interventions to support shared decision making in hypertension...
September 17, 2018: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/30209841/-imagine-if-i-m-not-here-what-they-re-going-to-do-health-care-access-and-culturally-and-linguistically-diverse-women-in-prison
#13
Kelly Watt, Wendy Hu, Parker Magin, Penny Abbott
BACKGROUND: Women in prison have complex medical needs and poorer health status than the general population. Culturally and linguistically diverse (CALD) women in prison, particularly those with limited English proficiency (LEP), have distinct needs and risk additional isolation, discrimination and marginalization when they are in prison. OBJECTIVE: We sought to examine how cultural and linguistic diversity, particularly LEP, affects the health-care experiences of women in prison...
September 12, 2018: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/30178508/empowerment-and-pathologization-a-case-study-in-norwegian-mental-health-and-substance-abuse-services
#14
Tone Larsen, Hildegunn Sagvaag
CONTEXT: Service user involvement in service development and research is an international goal. However, research illuminating the patient stakeholder role is limited. OBJECTIVE: The aim was to explore what may hinder patients' voices being heard when collaborating with staff and leaders to improve services. DESIGN: This action research project targeted Norwegian public mental health and substance abuse services, utilizing co-operative inquiry principles...
September 3, 2018: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/30168239/from-activism-to-secrecy-contemporary-experiences-of-living-with-hiv-in-london-in-people-diagnosed-from-1986-to-2014
#15
Tanvi Rai, Jane Bruton, Sophie Day, Helen Ward
BACKGROUND: Successes in biomedicine have transformed HIV from a debilitating and frequently fatal infection to a chronic, manageable condition. OBJECTIVE: To explore how the contemporary metanarrative of HIV as a chronic condition is understood by patients and how it varies depending on when they were diagnosed. DESIGN: Qualitative interviews with 52 people living with HIV who were diagnosed during different phases in the history of the epidemic...
August 30, 2018: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/30160006/a-5-facet-framework-to-describe-patient-engagement-in-patient-safety
#16
Lenora Duhn, Jennifer Medves
BACKGROUND: Health care remains unacceptably error prone. Recently, efforts to address this problem have included the patient and their family as partners with providers in harm prevention. Policymakers and clinicians have created patient safety strategies to encourage patient engagement, yet they have typically not included patient perspectives in their development or been comprehensively evaluated. We do not have a good understanding of "if" and "how" patients want involvement in patient safety during clinical interactions...
August 29, 2018: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/30160003/measuring-therapeutic-relationship-in-the-care-of-patients-with-haemophilia-a-scoping-review
#17
Erin McCabe, Maxi Miciak, Liz Dennett, Patricia Manns, Christine Guptill, Jeremy Hall, Douglas P Gross
OBJECTIVE: We conducted a scoping review of the tools used to measure therapeutic relationship in patients with haemophilia. BACKGROUND: Haemophilia is an inherited bleeding disorder caused by a deficiency of a clotting factor in the blood. Therapeutic relationship is foundational to the management of patients with chronic diseases like haemophilia. A reliable and valid measurement tool for assessing therapeutic relationship is needed to evaluate the quality of care received by these patients, and to rigorously study the association between therapeutic relationship and the outcomes of treatment...
August 29, 2018: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/30159960/public-involvement-in-health-and-social-sciences-research-a-concept-analysis
#18
Mel Hughes, Catherine Duffy
BACKGROUND: Research funding bodies have significantly increased emphasis on the need for public involvement in research with the requirement to evidence effective methods and approaches to achieving this. Specific definitions and approaches within published research remain tokenistic and vague. OBJECTIVE: The concept analysis explores and clarifies the nature and meaning of public involvement in health and social sciences research and identifies operational definitions which can be used to guide, develop and evaluate public involvement in research activity...
August 29, 2018: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/30120809/a-cross-sectional-survey-of-mental-health-service-users-carers-and-professionals-priorities-for-patient-safety-in-the-united-kingdom
#19
Kathryn Berzins, John Baker, Mark Brown, Rebecca Lawton
BACKGROUND: Establishing patient safety priorities in psychiatry has received less international attention than in other areas of health care. This study aimed to identify safety issues as described by people in the United Kingdom identifying as mental health service users, carers and professionals. METHODS: A cross-sectional online survey was distributed via social media. Identified safety issues were mapped onto the Yorkshire Contributory Factors Framework (YCFF) which categorizes factors that contribute to patient safety incidents in general hospital settings...
August 17, 2018: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/30112819/long-term-views-on-chronic-kidney-disease-research-priorities-among-stakeholders-engaged-in-a-priority-setting-partnership-a-qualitative-study
#20
Meghan J Elliott, Joanna E M Sale, Zahra Goodarzi, Linda Wilhelm, Andreas Laupacis, Brenda R Hemmelgarn, Sharon E Straus
BACKGROUND: Patients and stakeholders are increasingly engaging in health research to help address evidence-practice gaps and improve health-care delivery. We previously engaged patients, caregivers, health-care providers (HCPs) and policymakers in identifying priorities for chronic kidney disease (CKD) research. OBJECTIVE: We aimed to explore participants' views on the research priorities and prioritization process 2 years after the exercise took place. DESIGN: In this qualitative descriptive study, individual interviews were conducted and analysed using an inductive, thematic analysis approach...
August 15, 2018: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
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