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Health Expectations: An International Journal of Public Participation in Health Care and Health Policy

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https://www.readbyqxmd.com/read/28218984/closing-the-patient-experience-chasm-a-two-level-validation-of-the-consumer-quality-index-inpatient-hospital-care
#1
Alina Smirnova, Kiki M J M H Lombarts, Onyebuchi A Arah, Cees P M van der Vleuten
BACKGROUND: Evaluation of patients' health care experiences is central to measuring patient-centred care. However, different instruments tend to be used at the hospital or departmental level but rarely both, leading to a lack of standardization of patient experience measures. OBJECTIVE: To validate the Consumer Quality Index (CQI) Inpatient Hospital Care for use on both department and hospital levels. DESIGN: Using cross-sectional observational data, we investigated the internal validity of the questionnaire using confirmatory factor analyses (CFA), and the generalizability of the questionnaire for use at the department and hospital levels using generalizability theory...
February 20, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28195685/stigmatization-among-people-living-with-hiv-in-hong-kong-a%C3%A2-qualitative-study
#2
Phoenix K H Mo, Charlson T Y Ng
BACKGROUND: HIV/AIDS is one of the most stigmatized medical conditions across the world. Self-stigma is prevalent among people living with HIV (PLHIV) and a major obstacle to HIV prevention and care. OBJECTIVE: This study aimed to describe the experiences of stigmatization and explore the possible factors that might be associated with stigmatization among PLHIV in Hong Kong. DESIGN: Qualitative in-depth interviews were conducted. SETTING AND PARTICIPANTS: 15 PLHIV were recruited from two local non-governmental organizations on HIV prevention...
February 14, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28195675/-it-goes-against-the-grain-a-qualitative-study-of-the-experiences-of-parents-administering-distressing-health-care-procedures-for-their-child-at-home
#3
Gemma Spiers, Bryony Beresford
BACKGROUND: Parents caring for children with complex and long-term conditions at home take on responsibility for technical health-care procedures that may cause their child distress. Little evidence exists about parents' experience of this specific aspect of their caring role. AIMS: To explore and understand parents' experiences of administering distressing health-care procedures as part of caring for their child at home. DESIGN: An explorative qualitative study...
February 14, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28186384/women-s-perspectives-on-human-papillomavirus-self-sampling-in-the-context-of-the-uk-cervical-screening-programme
#4
Denitza Williams, Myfanwy Davies, Alison Fiander, Daniel Farewell, Sharon Hillier, Kate Brain
BACKGROUND: Testing for human papillomavirus (HPV) is being incorporated into the cervical screening programme, with the probable future introduction of HPV as a primary test and a possibility of HPV self-sampling. In anticipation of this development, we sought to inform future policy and practice by identifying potential barriers to HPV self-sampling. METHODS: A cross-sectional survey of 194 women aged 20-64 years was conducted. Logistic regression analysis was used to identify determinants of self-sampling intentions...
February 10, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28177564/involving-latina-o-parents-in-patient-centered-outcomes-research-contributions-to-research-study-design-implementation-and-outcomes
#5
Mónica Pérez Jolles, Maria Martinez, San Juanita Garcia, Gabriela L Stein, Kathleen C Thomas
BACKGROUND: Comparative effectiveness research (CER) is supported by policymakers as a way to provide service providers and patients with evidence-based information to make better health-care decisions and ultimately improve services for patients. However, Latina/o patients are rarely involved as study advisors, and there is a lack of documentation on how their voices contribute to the research process when they are included as collaborators. OBJECTIVES: The purpose of this article was to contribute to the literature by presenting concrete contributions of Latina/o parent involvement to study design, implementation and outcomes in the context of a CER study called Padres Efectivos (Parent Activation)...
February 8, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28160350/do-we-all-agree-what-good-health-care-looks-like-views-from-those-who-are-seldom-heard-in-health-research-policy-and-service-improvement
#6
Sara Ryan, Jenny Hislop, Sue Ziebland
CONTEXT: The aim of this study was to ask whether there are shared ideas about what good health care looks like that apply across different populations and conditions. Do priorities among "seldom heard" groups differ from mainstream views and, if so, how might we understand these differences? DESIGN: Focus groups were recruited with the help of our study patient representatives. Participants discussed and prioritized a set of eight "core components" of good care...
February 3, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28152248/the-complexity-of-shaping-self-management-in-daily-practice
#7
Hester M van de Bovenkamp, Jolanda Dwarswaard
BACKGROUND AND CONTEXT: Many countries are giving patients a more active role in health care, on both the individual and collective level. This study focuses on one aspect of the participation agenda on the individual level: self-management. The study explores self-management in practice, including the implications of the difficulties encountered. OBJECTIVE: To gain insight into the complexity of self-management practice. This is crucial for developing both self-management interventions and the participation policy agenda...
February 2, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28116774/beyond-the-consultation-room-proposals-to-approach-health-promotion-in-primary-care-according-to-health-care-users-key-community-informants-and-primary-care-centre-workers
#8
Anna Berenguera, Mariona Pons-Vigués, Patricia Moreno-Peral, Sebastià March, Joana Ripoll, Maria Rubio-Valera, Haizea Pombo-Ramos, Angela Asensio-Martínez, Eva Bolaños-Gallardo, Catalina Martínez-Carazo, José Ángel Maderuelo-Fernández, Maria Martínez-Andrés, Enriqueta Pujol-Ribera
BACKGROUND: Primary health care (PHC) is the ideal setting to provide integrated services centred on the person and to implement health promotion (HP) activities. OBJECTIVE: To identify proposals to approach HP in the context of primary care according to health-care users aged 45-75 years, key community informants and primary care centre (PCC) workers. METHODS: Descriptive-interpretive qualitative research with 276 participants from 14 PCC of seven Spanish regions...
January 24, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28105781/a-qualitative-study-exploring-medication-management-in-people-with-dementia-living-in-the-community-and-the-potential-role-of-the-community-pharmacist
#9
Ian D Maidment, Lydia Aston, Tiago Moutela, Chris G Fox, Andrea Hilton
BACKGROUND: The prevalence of dementia is increasing rapidly. People with dementia may be prescribed complex medication regimens, which may be challenging for them and any carers involved to safely manage. OBJECTIVE: To describe and understand the key challenges, in relation to medication issues, experienced by people with dementia and their informal carers dwelling in the community and the potential role of community pharmacists. DESIGN: Qualitative semi-structured interviews...
January 19, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28097734/how-lay-people-understand-and-make-sense-of-personalized-disease-risk-information
#10
Olga C Damman, Nina M M Bogaerts, Maaike J van den Haak, Danielle R M Timmermans
BACKGROUND: Disease risk calculators are increasingly web-based, but previous studies have shown that risk information often poses problems for lay users. OBJECTIVE: To examine how lay people understand the result derived from an online cardiometabolic risk calculator. DESIGN: A qualitative study was performed, using the risk calculator in the Dutch National Prevention Program for cardiometabolic diseases. The study consisted of three parts: (i) attention: completion of the risk calculator while an eye tracker registered eye movements; (ii) recall: completion of a recall task; and (iii) interpretation: participation in a semi-structured interview...
January 17, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28078763/development-and-feasibility-testing-of-the-pediatric-emergency-discharge-interaction-coding-scheme
#11
Janet A Curran, Alexandra Taylor, Jill Chorney, Stephen Porter, Andrea Murphy, Shannon MacPhee, Andrea Bishop, Rebecca Haworth
BACKGROUND: Discharge communication is an important aspect of high-quality emergency care. This study addresses the gap in knowledge on how to describe discharge communication in a paediatric emergency department (ED). OBJECTIVE: The objective of this feasibility study was to develop and test a coding scheme to characterize discharge communication between health-care providers (HCPs) and caregivers who visit the ED with their children. DESIGN: The Pediatric Emergency Discharge Interaction Coding Scheme (PEDICS) and coding manual were developed following a review of the literature and an iterative refinement process involving HCP observations, inter-rater assessments and team consensus...
January 12, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28071841/attending-to-power-differentials-how-np-led-group-medical-visits-can-influence-the-management-of-chronic-conditions
#12
Laura Housden, Annette J Browne, Sabrina T Wong, Martin Dawes
OBJECTIVE: In Canada, primary care reform has encouraged innovations, including nurse practitioners (NPs) and group medical visits (GMVs). NP-led GMVs provide an opportunity to examine barriers and enablers to implementing this innovation in primary care. DESIGN: An instrumental case study design (n=3): two cases where NPs were using GMVs and one case where NPs were not using GMVs, was completed. In-depth interviews with patients and providers (N=24) and 10 hours of direct observation were completed...
January 10, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28009082/patient-expectations-for-management-of-chronic-non-cancer-pain-a-systematic-review
#13
REVIEW
Jose W Geurts, Paul C Willems, Craig Lockwood, Maarten van Kleef, Jos Kleijnen, Carmen Dirksen
BACKGROUND: Chronic pain is a major economic and social health problem. Up to 79% of chronic pain patients are unsatisfied with their pain management. Meeting patients' expectations is likely to produce greater satisfaction with care. The challenge is to explore patients' genuine expectations and needs. However, the term expectation encompasses several concepts and may concern different aspects of health-care provision. OBJECTIVE: This review aimed to systematically collect information on types and subject of patients' expectations for chronic pain management...
December 23, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28001322/-giving-us-hope-parent-and-neonatal-staff-views-and-expectations-of-a-planned-family-centred-discharge-process-train-to-home
#14
Jenny Ingram, Maggie Redshaw, Sarah Manns, Lucy Beasant, Debbie Johnson, Peter Fleming, David Pontin
BACKGROUND: Preparing families and preterm infants for discharge is relatively unstructured in many UK neonatal units (NNUs). Family-centred neonatal care and discharge planning are recommended but variable. DESIGN AND PARTICIPANTS: Qualitative interviews with 37 parents of infants in NNUs, and 18 nursing staff and 5 neonatal consultants explored their views of discharge planning and perceptions of a planned family-centred discharge process (Train-to-Home). Train-to-Home facilitates communication between staff and parents throughout the neonatal stay, using a laminated train and parent booklets...
December 21, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27981688/a-new-graphical-format-to-communicate-treatment-effects-to-patients-a-web-based-randomized-controlled-trial
#15
Jürgen Kasper, Adrian van de Roemer, Jana Pöttgen, Anne Rahn, Imke Backhus, Yasemin Bay, Sascha Köpke, Christoph Heesen
OBJECTIVE: Patients making treatment decisions require understandable evidence-based information. However, evidence on graphical presentation of benefits and side-effects of medical treatments is not conclusive. The study evaluated a new space-saving format, CLARIFIG (clarifying risk figures), aiming to facilitate accuracy of comprehension. METHODS: CLARIFIG displays groups of patients with and without treatment benefits as coloured sectors of a proportional bar graph representing in total 100 patients...
December 16, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27933711/using-a-co-production-prioritization-exercise-involving-south-asian-children-young-people-and-their-families-to-identify-health-priorities-requiring-further-research-and-public-awareness
#16
Logan Manikam, Rakhee Shah, Kate Reed, Gupreet Santini, Monica Lakhanpaul
OBJECTIVES: To facilitate South Asian (SA) families and health-care professionals (HCPs) participation in a prioritization exercise to co-produce child health research and public awareness agendas. DESIGN: A three-stage process was adopted involving the following: (i) systematic literature review, (ii) HCP scoping survey and (iii) focus groups of SA adolescents and families. A Punjabi- and Urdu-speaking community facilitator moderated focus groups. A British Sign Language interpreter assisted in the hard of hearing group...
December 8, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27899006/french-women-s-representations-and-experiences-of-the-post-treatment-management-of-breast-cancer-and-their-perception-of-the-general-practitioner-s-role-in-follow-up-care-a-qualitative-study
#17
Catherine Laporte, Julie Vaure, Anne Bottet, Bénédicte Eschalier, Clémentine Raineau, Denis Pezet, Philippe Vorilhon
BACKGROUND: In France, the Cancer Plan II 2009-2013 was launched to improve post-cancer management and promote greater involvement of general practitioners (GPs) in follow-up care. OBJECTIVES: We investigated how women experienced the post-treatment management of breast cancer and perceived the role of the GP in follow-up care. DESIGN: We conducted a qualitative study based on semi-structured interviews with women with breast cancer in remission...
November 29, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28052539/what-are-the-support-experiences-and-needs-of-patients-who-have-received-bariatric-surgery
#18
Melanie Sharman, Martin Hensher, Stephen Wilkinson, Danielle Williams, Andrew Palmer, Alison Venn, Douglas Ezzy
OBJECTIVE: To explore the support needs and experiences of patients who had received publicly or privately funded bariatric surgery and the importance of this support in mediating outcomes of surgery. METHODS: Seven semi-structured focus groups were conducted. A broad interview schedule guided the discussions which were audio-recorded and transcribed verbatim. Data were analysed thematically. RESULTS: Twenty-six women and 15 men with a mean age of 54 years (range 24-72) participated in the study...
February 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28052538/broadening-the-reach-of-health-expectations
#19
EDITORIAL
Carolyn A Chew-Graham
No abstract text is available yet for this article.
February 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27312575/attitudes-to-participating-in-a-birth-cohort-study-views-from-a-multiethnic-population-a-qualitative-study-using-focus-groups
#20
Neeru Garg, Thomas P Round, Gavin Daker-White, Peter Bower, Chris J Griffiths
BACKGROUND: Recruitment to birth cohort studies is a challenge. Few studies have addressed the attitudes of women about taking part in birth cohort studies particularly those from ethnic minority groups. OBJECTIVE: To seek the views of people from diverse ethnic backgrounds about participation in a proposed birth cohort examining the impact of infections. DESIGN AND SETTING: Eight focus groups of pregnant women and mothers of young children took place in GP surgeries and community centres in an ethnically diverse area of east London...
February 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
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