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Health Expectations: An International Journal of Public Participation in Health Care and Health Policy

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https://www.readbyqxmd.com/read/28078763/development-and-feasibility-testing-of-the-pediatric-emergency-discharge-interaction-coding-scheme
#1
Janet A Curran, Alexandra Taylor, Jill Chorney, Stephen Porter, Andrea Murphy, Shannon MacPhee, Andrea Bishop, Rebecca Haworth
BACKGROUND: Discharge communication is an important aspect of high-quality emergency care. This study addresses the gap in knowledge on how to describe discharge communication in a paediatric emergency department (ED). OBJECTIVE: The objective of this feasibility study was to develop and test a coding scheme to characterize discharge communication between health-care providers (HCPs) and caregivers who visit the ED with their children. DESIGN: The Pediatric Emergency Discharge Interaction Coding Scheme (PEDICS) and coding manual were developed following a review of the literature and an iterative refinement process involving HCP observations, inter-rater assessments and team consensus...
January 12, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28071841/attending-to-power-differentials-how-np-led-group-medical-visits-can-influence-the-management-of-chronic-conditions
#2
Laura Housden, Annette J Browne, Sabrina T Wong, Martin Dawes
OBJECTIVE: In Canada, primary care reform has encouraged innovations, including nurse practitioners (NPs) and group medical visits (GMVs). NP-led GMVs provide an opportunity to examine barriers and enablers to implementing this innovation in primary care. DESIGN: An instrumental case study design (n=3): two cases where NPs were using GMVs and one case where NPs were not using GMVs, was completed. In-depth interviews with patients and providers (N=24) and 10 hours of direct observation were completed...
January 10, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28009082/patient-expectations-for-management-of-chronic-non-cancer-pain-a-systematic-review
#3
REVIEW
Jose W Geurts, Paul C Willems, Craig Lockwood, Maarten van Kleef, Jos Kleijnen, Carmen Dirksen
BACKGROUND: Chronic pain is a major economic and social health problem. Up to 79% of chronic pain patients are unsatisfied with their pain management. Meeting patients' expectations is likely to produce greater satisfaction with care. The challenge is to explore patients' genuine expectations and needs. However, the term expectation encompasses several concepts and may concern different aspects of health-care provision. OBJECTIVE: This review aimed to systematically collect information on types and subject of patients' expectations for chronic pain management...
December 23, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28001322/-giving-us-hope-parent-and-neonatal-staff-views-and-expectations-of-a-planned-family-centred-discharge-process-train-to-home
#4
Jenny Ingram, Maggie Redshaw, Sarah Manns, Lucy Beasant, Debbie Johnson, Peter Fleming, David Pontin
BACKGROUND: Preparing families and preterm infants for discharge is relatively unstructured in many UK neonatal units (NNUs). Family-centred neonatal care and discharge planning are recommended but variable. DESIGN AND PARTICIPANTS: Qualitative interviews with 37 parents of infants in NNUs, and 18 nursing staff and 5 neonatal consultants explored their views of discharge planning and perceptions of a planned family-centred discharge process (Train-to-Home). Train-to-Home facilitates communication between staff and parents throughout the neonatal stay, using a laminated train and parent booklets...
December 21, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27981688/a-new-graphical-format-to-communicate-treatment-effects-to-patients-a-web-based-randomized-controlled-trial
#5
Jürgen Kasper, Adrian van de Roemer, Jana Pöttgen, Anne Rahn, Imke Backhus, Yasemin Bay, Sascha Köpke, Christoph Heesen
OBJECTIVE: Patients making treatment decisions require understandable evidence-based information. However, evidence on graphical presentation of benefits and side-effects of medical treatments is not conclusive. The study evaluated a new space-saving format, CLARIFIG (clarifying risk figures), aiming to facilitate accuracy of comprehension. METHODS: CLARIFIG displays groups of patients with and without treatment benefits as coloured sectors of a proportional bar graph representing in total 100 patients...
December 16, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27933711/using-a-co-production-prioritization-exercise-involving-south-asian-children-young-people-and-their-families-to-identify-health-priorities-requiring-further-research-and-public-awareness
#6
Logan Manikam, Rakhee Shah, Kate Reed, Gupreet Santini, Monica Lakhanpaul
OBJECTIVES: To facilitate South Asian (SA) families and health-care professionals (HCPs) participation in a prioritization exercise to co-produce child health research and public awareness agendas. DESIGN: A three-stage process was adopted involving the following: (i) systematic literature review, (ii) HCP scoping survey and (iii) focus groups of SA adolescents and families. A Punjabi- and Urdu-speaking community facilitator moderated focus groups. A British Sign Language interpreter assisted in the hard of hearing group...
December 8, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27899006/french-women-s-representations-and-experiences-of-the-post-treatment-management-of-breast-cancer-and-their-perception-of-the-general-practitioner-s-role-in-follow-up-care-a-qualitative-study
#7
Catherine Laporte, Julie Vaure, Anne Bottet, Bénédicte Eschalier, Clémentine Raineau, Denis Pezet, Philippe Vorilhon
BACKGROUND: In France, the Cancer Plan II 2009-2013 was launched to improve post-cancer management and promote greater involvement of general practitioners (GPs) in follow-up care. OBJECTIVES: We investigated how women experienced the post-treatment management of breast cancer and perceived the role of the GP in follow-up care. DESIGN: We conducted a qualitative study based on semi-structured interviews with women with breast cancer in remission...
November 29, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27885770/the-power-of-symbolic-capital-in-patient-and-public-involvement-in-health-research
#8
Louise Locock, Anne-Marie Boylan, Rosamund Snow, Sophie Staniszewska
BACKGROUND: Policy-makers and health research funders increasingly require researchers to demonstrate that they have involved patients in the design and conduct of research. However, the extent to which patients and public have the power to get involved on an equal footing is dependent on their economic, cultural, social and symbolic capital. OBJECTIVE: To explore power relations in patient and public involvement (PPI) in research, particularly how patients may wield symbolic capital to develop a more equal relationship...
November 24, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27868327/communication-and-patient-participation-influencing-patient-recall-of-treatment-discussions
#9
Claude Richard, Emma Glaser, Marie-Thérèse Lussier
CONTEXT: Patient recall of treatment information is a key variable towards chronic disease (CD) management. It is unclear what communication and patient participation characteristics predict recall. OBJECTIVES: To assess what aspects of doctor-patient communication predict patient recall of medication information. To describe lifestyle treatment recall, in CD primary care patients. DESIGN: Observational study within a RCT. SETTING & PARTICIPANTS: Community-based primary care (PC) practices...
November 21, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27860037/the-impact-of-physicians-communication-styles-on-evaluation-of-physicians-and-information-processing-a-randomized-study-with-simulated-video-consultations-on-contraception-with-an-intrauterine-device
#10
Martina Bientzle, Tim Fissler, Ulrike Cress, Joachim Kimmerle
OBJECTIVE: This study aimed at examining the impact of different types of physicians' communication styles on people's subsequent evaluation of physician attributes as well as on their information processing, attitude and decision making. METHOD: In a between-group experiment, 80 participants watched one of three videos in which a gynaecologist displayed a particular communication style in a consultation situation on contraception with an intrauterine device. We compared doctor-centred communication (DCC) vs patient-centred communication (PCC) vs patient-centred communication with need-orientation (PCC-N)...
November 18, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27862757/easy-read-and-accessible-information-for-people-with-intellectual-disabilities-is-it-worth-it-a-meta-narrative-literature-review
#11
REVIEW
Deborah Chinn, Claire Homeyard
BACKGROUND: The proliferation of "accessible information" for people with intellectual disabilities in UK health care has accelerated in recent years, underpinned by policy guidance alongside the recent introduction of mandatory standards. However, questions have been raised as to the impact of such resources as a means of enhancing involvement in health care and addressing health inequalities. OBJECTIVE: To review and synthesize the evidence from different approaches used to evaluate the impact of accessible information for people with intellectual disabilities using a meta-narrative approach...
November 16, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27860200/presafe-a-model-of-barriers-and-facilitators-to-patients-providing-feedback-on-experiences-of-safety
#12
Aoife De Brún, Emily Heavey, Justin Waring, Pamela Dawson, Jason Scott
OBJECTIVE: The importance of involving patients in reporting on safety is increasingly recognized. Whilst studies have identified barriers to clinician incident reporting, few have explored barriers and facilitators to patient reporting of safety experiences. This paper explores patient perspectives on providing feedback on safety experiences. DESIGN/PARTICIPANTS: Patients (n=28) were invited to take part in semi-structured interviews when given a survey about their experiences of safety following hospital discharge...
November 16, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27813210/-what-matters-to-someone-who-matters-to-me-using-media-campaigns-with-young-people-to-prevent-interpersonal-violence-and-abuse
#13
Nicky Stanley, Jane Ellis, Nicola Farrelly, Sandra Hollinghurst, Sue Bailey, Soo Downe
BACKGROUND: While media campaigns are increasingly advocated as a strategy for preventing interpersonal violence and abuse, there is little evidence available regarding their effectiveness. SETTING AND DESIGN: Consultation with experts and young people was used as part of a UK scoping review to capture current thinking and practice on the use of media campaigns to address interpersonal violence and abuse among young people. Three focus groups and 16 interviews were undertaken with UK and international experts, and three focus groups were held with young people...
November 3, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27807905/similar-perspectives-on-prostate-cancer-screening-value-and-new-guidelines-across-patient-demographic-and-psa-level-subgroups-a-qualitative-study
#14
Melissa R Partin, Sarah E Lillie, Katie M White, Timothy J Wilt, Kristin L Chrouser, Brent C Taylor, Diana J Burgess
BACKGROUND: In 2012, the United States Preventive Services Task Force (USPSTF) recommended against prostate-specific antigen (PSA)-based prostate cancer screening for all men. OBJECTIVE: To inform educational materials addressing patient questions and concerns about the 2012 USPSTF guidelines, we sought to: (i) characterize patient perceptions about prostate cancer screening benefits, harms and recommendations against screening, and (ii) compare perceptions across race, age and PSA level subgroups...
November 2, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27804191/patient-and-nurse-preferences-for-implementation-of-bedside-handover-do-they-agree-findings-from-a-discrete-choice-experiment
#15
Jennifer A Whitty, Jean Spinks, Tracey Bucknall, Georgia Tobiano, Wendy Chaboyer
OBJECTIVE: To describe and compare patients' and nurses' preferences for the implementation of bedside handover. DESIGN: Discrete choice experiment describing handover choices using six characteristics: whether the patient is invited to participate; whether a family member/carer/friend is invited; the number of nurses present; the level of patient involvement; the information content; and privacy. SETTING: Two Australian hospitals. PARTICIPANTS: Adult patients (n=401) and nurses (n=200) recruited from medical wards...
November 2, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27785868/is-there-a-role-for-patients-and-their-relatives-in-escalating-clinical-deterioration-in-hospital-a-systematic-review
#16
REVIEW
Abigail K Albutt, Jane K O'Hara, Mark T Conner, Stephen J Fletcher, Rebecca J Lawton
BACKGROUND: Measures exist to improve early recognition of, and response to, deteriorating patients in hospital. However, deteriorating patients continue to go unrecognized. To address this, interventions have been developed that invite patients and relatives to escalate patient deterioration to a rapid response team (RRT). OBJECTIVE: To systematically review articles that describe these interventions and investigate their effectiveness at reducing preventable deterioration...
October 26, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28052539/what-are-the-support-experiences-and-needs-of-patients-who-have-received-bariatric-surgery
#17
Melanie Sharman, Martin Hensher, Stephen Wilkinson, Danielle Williams, Andrew Palmer, Alison Venn, Douglas Ezzy
OBJECTIVE: To explore the support needs and experiences of patients who had received publicly or privately funded bariatric surgery and the importance of this support in mediating outcomes of surgery. METHODS: Seven semi-structured focus groups were conducted. A broad interview schedule guided the discussions which were audio-recorded and transcribed verbatim. Data were analysed thematically. RESULTS: Twenty-six women and 15 men with a mean age of 54 years (range 24-72) participated in the study...
February 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28052538/broadening-the-reach-of-health-expectations
#18
EDITORIAL
Carolyn A Chew-Graham
No abstract text is available yet for this article.
February 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27312575/attitudes-to-participating-in-a-birth-cohort-study-views-from-a-multiethnic-population-a-qualitative-study-using-focus-groups
#19
Neeru Garg, Thomas P Round, Gavin Daker-White, Peter Bower, Chris J Griffiths
BACKGROUND: Recruitment to birth cohort studies is a challenge. Few studies have addressed the attitudes of women about taking part in birth cohort studies particularly those from ethnic minority groups. OBJECTIVE: To seek the views of people from diverse ethnic backgrounds about participation in a proposed birth cohort examining the impact of infections. DESIGN AND SETTING: Eight focus groups of pregnant women and mothers of young children took place in GP surgeries and community centres in an ethnically diverse area of east London...
February 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27115476/framework-for-enhancing-clinical-practice-guidelines-through-continuous-patient-engagement
#20
Melissa J Armstrong, Juan-David Rueda, Gary S Gronseth, C Daniel Mullins
BACKGROUND: Patient engagement in clinical practice guideline (CPG) development is recommended by multiple institutions and instruments measuring guideline quality. Approaches to engaging patients, however, vary between oversight organizations, quality tools and guideline developers. OBJECTIVE: We propose a ten-step framework outlining steps and options for patient engagement in guideline development with the goal of highlighting steps for patient engagement and methods by which this can be achieved...
February 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
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