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Health Expectations: An International Journal of Public Participation in Health Care and Health Policy

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https://www.readbyqxmd.com/read/27899006/french-women-s-representations-and-experiences-of-the-post-treatment-management-of-breast-cancer-and-their-perception-of-the-general-practitioner-s-role-in-follow-up-care-a-qualitative-study
#1
Catherine Laporte, Julie Vaure, Anne Bottet, Bénédicte Eschalier, Clémentine Raineau, Denis Pezet, Philippe Vorilhon
BACKGROUND: In France, the Cancer Plan II 2009-2013 was launched to improve post-cancer management and promote greater involvement of general practitioners (GPs) in follow-up care. OBJECTIVES: We investigated how women experienced the post-treatment management of breast cancer and perceived the role of the GP in follow-up care. DESIGN: We conducted a qualitative study based on semi-structured interviews with women with breast cancer in remission...
November 29, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27885770/the-power-of-symbolic-capital-in-patient-and-public-involvement-in-health-research
#2
Louise Locock, Anne-Marie Boylan, Rosamund Snow, Sophie Staniszewska
BACKGROUND: Policy-makers and health research funders increasingly require researchers to demonstrate that they have involved patients in the design and conduct of research. However, the extent to which patients and public have the power to get involved on an equal footing is dependent on their economic, cultural, social and symbolic capital. OBJECTIVE: To explore power relations in patient and public involvement (PPI) in research, particularly how patients may wield symbolic capital to develop a more equal relationship...
November 24, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27868327/communication-and-patient-participation-influencing-patient-recall-of-treatment-discussions
#3
Claude Richard, Emma Glaser, Marie-Thérèse Lussier
CONTEXT: Patient recall of treatment information is a key variable towards chronic disease (CD) management. It is unclear what communication and patient participation characteristics predict recall. OBJECTIVES: To assess what aspects of doctor-patient communication predict patient recall of medication information. To describe lifestyle treatment recall, in CD primary care patients. DESIGN: Observational study within a RCT. SETTING & PARTICIPANTS: Community-based primary care (PC) practices...
November 21, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27860037/the-impact-of-physicians-communication-styles-on-evaluation-of-physicians-and-information-processing-a-randomized-study-with-simulated-video-consultations-on-contraception-with-an-intrauterine-device
#4
Martina Bientzle, Tim Fissler, Ulrike Cress, Joachim Kimmerle
OBJECTIVE: This study aimed at examining the impact of different types of physicians' communication styles on people's subsequent evaluation of physician attributes as well as on their information processing, attitude and decision making. METHOD: In a between-group experiment, 80 participants watched one of three videos in which a gynaecologist displayed a particular communication style in a consultation situation on contraception with an intrauterine device. We compared doctor-centred communication (DCC) vs patient-centred communication (PCC) vs patient-centred communication with need-orientation (PCC-N)...
November 18, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27862757/easy-read-and-accessible-information-for-people-with-intellectual-disabilities-is-it-worth-it-a-meta-narrative-literature-review
#5
REVIEW
Deborah Chinn, Claire Homeyard
BACKGROUND: The proliferation of "accessible information" for people with intellectual disabilities in UK health care has accelerated in recent years, underpinned by policy guidance alongside the recent introduction of mandatory standards. However, questions have been raised as to the impact of such resources as a means of enhancing involvement in health care and addressing health inequalities. OBJECTIVE: To review and synthesize the evidence from different approaches used to evaluate the impact of accessible information for people with intellectual disabilities using a meta-narrative approach...
November 16, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27860200/presafe-a-model-of-barriers-and-facilitators-to-patients-providing-feedback-on-experiences-of-safety
#6
Aoife De Brún, Emily Heavey, Justin Waring, Pamela Dawson, Jason Scott
OBJECTIVE: The importance of involving patients in reporting on safety is increasingly recognized. Whilst studies have identified barriers to clinician incident reporting, few have explored barriers and facilitators to patient reporting of safety experiences. This paper explores patient perspectives on providing feedback on safety experiences. DESIGN/PARTICIPANTS: Patients (n=28) were invited to take part in semi-structured interviews when given a survey about their experiences of safety following hospital discharge...
November 16, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27813210/-what-matters-to-someone-who-matters-to-me-using-media-campaigns-with-young-people-to-prevent-interpersonal-violence-and-abuse
#7
Nicky Stanley, Jane Ellis, Nicola Farrelly, Sandra Hollinghurst, Sue Bailey, Soo Downe
BACKGROUND: While media campaigns are increasingly advocated as a strategy for preventing interpersonal violence and abuse, there is little evidence available regarding their effectiveness. SETTING AND DESIGN: Consultation with experts and young people was used as part of a UK scoping review to capture current thinking and practice on the use of media campaigns to address interpersonal violence and abuse among young people. Three focus groups and 16 interviews were undertaken with UK and international experts, and three focus groups were held with young people...
November 3, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27807905/similar-perspectives-on-prostate-cancer-screening-value-and-new-guidelines-across-patient-demographic-and-psa-level-subgroups-a-qualitative-study
#8
Melissa R Partin, Sarah E Lillie, Katie M White, Timothy J Wilt, Kristin L Chrouser, Brent C Taylor, Diana J Burgess
BACKGROUND: In 2012, the United States Preventive Services Task Force (USPSTF) recommended against prostate-specific antigen (PSA)-based prostate cancer screening for all men. OBJECTIVE: To inform educational materials addressing patient questions and concerns about the 2012 USPSTF guidelines, we sought to: (i) characterize patient perceptions about prostate cancer screening benefits, harms and recommendations against screening, and (ii) compare perceptions across race, age and PSA level subgroups...
November 2, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27804191/patient-and-nurse-preferences-for-implementation-of-bedside-handover-do-they-agree-findings-from-a-discrete-choice-experiment
#9
Jennifer A Whitty, Jean Spinks, Tracey Bucknall, Georgia Tobiano, Wendy Chaboyer
OBJECTIVE: To describe and compare patients' and nurses' preferences for the implementation of bedside handover. DESIGN: Discrete choice experiment describing handover choices using six characteristics: whether the patient is invited to participate; whether a family member/carer/friend is invited; the number of nurses present; the level of patient involvement; the information content; and privacy. SETTING: Two Australian hospitals. PARTICIPANTS: Adult patients (n=401) and nurses (n=200) recruited from medical wards...
November 2, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27785868/is-there-a-role-for-patients-and-their-relatives-in-escalating-clinical-deterioration-in-hospital-a-systematic-review
#10
REVIEW
Abigail K Albutt, Jane K O'Hara, Mark T Conner, Stephen J Fletcher, Rebecca J Lawton
BACKGROUND: Measures exist to improve early recognition of, and response to, deteriorating patients in hospital. However, deteriorating patients continue to go unrecognized. To address this, interventions have been developed that invite patients and relatives to escalate patient deterioration to a rapid response team (RRT). OBJECTIVE: To systematically review articles that describe these interventions and investigate their effectiveness at reducing preventable deterioration...
October 26, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27748004/right-choice-right-time-evaluation-of-an-online-decision-aid-for-youth-depression
#11
Magenta B Simmons, Aurora Elmes, Joanne E McKenzie, Lyndal Trevena, Sarah E Hetrick
BACKGROUND: Appropriate treatment for youth depression is an important public health priority. Shared decision making has been recommended, yet no decision aids exist to facilitate this. OBJECTIVES: The main objective of this study was to evaluate an online decision aid for youth depression. DESIGN: An uncontrolled cohort study with pre-decision, immediately post-decision and follow-up measurements. SETTING AND PARTICIPANTS: Young people (n=66) aged 12-25 years with mild, mild-moderate or moderate-severe depression were recruited from two enhanced primary care services...
October 17, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27714904/successful-participation-of-patients-in-interprofessional-team-meetings-a-qualitative-study
#12
Jerôme Jean Jacques van Dongen, Iris Gerarda Josephine Habets, Anna Beurskens, Marloes Amantia van Bokhoven
BACKGROUND: The number of people with multiple chronic conditions increases as a result of ageing. To deal with the complex health-care needs of these patients, it is important that health-care professionals collaborate in interprofessional teams. To deliver patient-centred care, it is often recommended to include the patient as a member of the team. OBJECTIVE: To gain more insight into how health-care professionals and patients, who are used to participate in interprofessional team meetings, experience and organize patient participation in the team meetings...
October 7, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27714892/the-partners-in-health-scale-for-older-adults-design-and-examination-of-its-psychometric-properties-in-a-dutch-population-of-older-adults
#13
Karin Veldman, Sijmen A Reijneveld, Maarten M H Lahr, Ronald J Uittenbroek, Klaske Wynia
BACKGROUND: Self-management is an important asset in helping older adults remain independent and in control for as long as possible. There is no reliable and valid measurement instrument to evaluate self-management behaviour of older adults. OBJECTIVE: This study aims to design a measurement instrument, that is the Partners in Health scale for older adults (PIH-OA), to assess self-management knowledge and behaviour of community-living older adults and to examine its psychometric properties in a Dutch context...
October 7, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27709734/what-factors-influence-successful-recruitment-of-siblings-of-individuals-with-first-episode-psychosis-to-e-health-interventions-a-qualitative-study
#14
Jacqueline Sin, Claire Henderson, Debbie Spain, Catherine Gamble, Ian Norman
BACKGROUND: Recruitment to clinical research studies can prove complex. This is particularly true of mental health research, given factors such as confidentiality, capacity and consent, or when attempting to recruit family members as opposed to service users themselves. AIM: This study investigated the challenges experienced and strategies employed in the recruitment of siblings of people with first episode psychosis using Early Intervention in Psychosis Services (EIPS) in England...
October 6, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27704684/cjcheck-stage-1-development-and-testing-of-a-checklist-for-reporting-community-juries-delphi-process-and-analysis-of-studies-published-in-1996-2015
#15
Rae Thomas, Rebecca Sims, Chris Degeling, Jackie M Street, Stacy M Carter, Lucie Rychetnik, Jennifer A Whitty, Andrew Wilson, Paul Ward, Paul Glasziou
BACKGROUND: Opportunities for community members to actively participate in policy development are increasing. Community/citizen's juries (CJs) are a deliberative democratic process aimed to illicit informed community perspectives on difficult topics. But how comprehensive these processes are reported in peer-reviewed literature is unknown. Adequate reporting of methodology enables others to judge process quality, compare outcomes, facilitate critical reflection and potentially repeat a process...
October 5, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27704664/content-analysis-of-public-opinion-on-sexual-expression-and-dementia-implications-for-nursing-home-policy-development
#16
Maggie L Syme, Erin Yelland, Laci Cornelison, Judith L Poey, Ryan Krajicek, Gayle Doll
PURPOSE: We examined public opinion of sexual expression and dementia to inform nursing home policy and practice. DESIGN AND METHODS: A content analysis was conducted on public comments (N=1194) posted in response to a New York Times article about a highly publicized legal case involving a husband engaging in sexual acts with his wife who had dementia, living in a nursing home. Researchers utilized constant comparative analysis to code the comments; reliability analysis showed moderately strong agreement at the subcategory level...
October 5, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27687295/decision-making-about-pap-test-use-among-korean-immigrant-women-a-qualitative-study
#17
Kyounghae Kim, Soohyun Kim, Joseph J Gallo, Marie T Nolan, Hae-Ra Han
BACKGROUND: Understanding how individuals make decisions about Pap tests concerning their personal values helps health-care providers offer tailored approaches to guide patients' decision making. Yet research has largely ignored decision making about Pap tests among immigrant women who experience increased risk of cervical cancer. OBJECTIVE: To explore decision making about Pap tests among Korean immigrant women. METHODS: We conducted a qualitative descriptive study using 32 semi-structured, in-depth interviews with Korean immigrant women residing in a north-eastern metropolitan area...
September 30, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27670148/keeping-all-options-open-parents-approaches-to-advance-care-planning
#18
Emma Beecham, Linda Oostendorp, Joanna Crocker, Paula Kelly, Andrew Dinsdale, June Hemsley, Jessica Russell, Louise Jones, Myra Bluebond-Langner
BACKGROUND: Early engagement in advance care planning (ACP) is seen as fundamental for ensuring the highest standard of care for children and young people with a life-limiting condition (LLC). However, most families have little knowledge or experience of ACP. OBJECTIVE: To investigate how parents of children and young people with LLCs approach and experience ACP. METHODS: Open-ended, semi-structured interviews were conducted with parents of 18 children; nine children who were currently receiving palliative care services, and nine children who had received palliative care and died...
September 26, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27669682/how-best-to-use-and-evaluate-patient-information-leaflets-given-during-a-consultation-a-systematic-review-of-literature-reviews
#19
Mélanie Sustersic, Aurélie Gauchet, Alison Foote, Jean-Luc Bosson
BACKGROUND: In the past, several authors have attempted to review randomized clinical trials (RCT) evaluating the impact of Patient Information Leaflets (PILs) used during a consultation and draw some general conclusions. However, this proved difficult because the clinical situations, size and quality of RCTs were too heterogeneous to pool relevant data. OBJECTIVE: To overcome this 30-year stalemate, we performed a review of reviews and propose general recommendations and suggestions for improving the quality of PILs, how to use them and methods for evaluating them...
September 26, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27624704/examining-chronic-care-patient-preferences-for-involvement-in-health-care-decision-making-the-case-of-parkinson-s-disease-patients-in-a-patient-centred-clinic
#20
Natalie Zizzo, Emily Bell, Anne-Louise Lafontaine, Eric Racine
BACKGROUND: Patient-centred care is a recommended model of care for Parkinson's disease (PD). It aims to provide care that is respectful and responsive to patient preferences, values and perspectives. Provision of patient-centred care should entail considering how patients want to be involved in their care. OBJECTIVE: To understand the participation preferences of patients with PD from a patient-centred care clinic in health-care decision-making processes. DESIGN, SETTING AND PARTICIPANTS: Mixed-methods study with early-stage Parkinson's disease patients from a patient-centred care clinic...
September 14, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
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