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Health Expectations: An International Journal of Public Participation in Health Care and Health Policy

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https://www.readbyqxmd.com/read/28812330/black-and-minority-ethnic-group-involvement-in-health-and-social-care-research-a-systematic-review
#1
REVIEW
Shoba Dawson, Stephen M Campbell, Sally J Giles, Rebecca L Morris, Sudeh Cheraghi-Sohi
BACKGROUND: Patient and public involvement (PPI) in research is growing internationally, but little is known about black and minority ethnic (BME) involvement and the factors influencing their involvement in health and social care research. OBJECTIVES: To characterize and critique the empirical literature on BME-PPI involvement in health and social care research. SEARCH STRATEGY: Systematic searches of six electronic bibliographic databases were undertaken, utilizing both MeSH and free-text terms to identify international empirical literature published between 1990 and 2016...
August 15, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28806484/tensions-in-perspectives-on-suicide-prevention-between-men-who-have-attempted-suicide-and-their-support-networks-secondary-analysis-of-qualitative-data
#2
Andrea S Fogarty, Michael Spurrier, Michael J Player, Kay Wilhelm, Erin L Whittle, Fiona Shand, Helen Christensen, Judith Proudfoot
BACKGROUND: Men generally have higher rates of suicide, despite fewer overt indicators of risk. Differences in presentation and response suggest a need to better understand why suicide prevention is less effective for men. OBJECTIVE: To explore the views of at-risk men, friends and family about the tensions inherent in suicide prevention and to consider how prevention may be improved. DESIGN: Secondary analysis of qualitative interview and focus group data, using thematic analysis techniques, alongside bracketing, construction and contextualisation...
August 14, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28805985/willingness-to-pay-for-antiretroviral-drugs-among-hiv-and-aids-clients-in-south-east-nigeria
#3
Chinyere Mbachu, Chijioke Okoli, Obinna Onwujekwe, Fabian Enabulele
BACKGROUND: The current trend of withdrawal of donor support for HIV/AIDS treatment in Nigeria may require that the cost of antiretroviral drugs be borne in part by infected people and their families. OBJECTIVE: This study was conducted to determine the economic value for free antiretroviral drugs (ARVs) expressed by clients receiving treatment for HIV/AIDS in a tertiary hospital. STUDY METHOD: The contingent valuation method was used to elicit the values attached to free ARVs from people living with HIV/AIDS that were receiving care in a public tertiary hospital in south-east Nigeria...
August 14, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28779520/involved-inputting-or-informing-shared-decision-making-in-adult-mental-health-care
#4
Eleanor Bradley, Debra Green
BACKGROUND: A diagnosis of serious mental illness can impact on the whole family. Families informally provide significant amounts of care but are disproportionately at risk of carer burden when compared to those supporting people with other long-term conditions. Shared decision making (SDM) is an ethical model of health communication associated with positive health outcomes; however, there has been little research to evaluate how routinely family is invited to participate in SDM, or what this looks like in practice...
August 4, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28779512/patients-views-on-the-use-of-an-option-grid-for-knee-osteoarthritis-in-physiotherapy-clinical-encounters-an-interview-study
#5
Katharine Kinsey, Jill Firth, Glyn Elwyn, Adrian Edwards, Katherine Brain, Katy Marrin, Alan Nye, Fiona Wood
BACKGROUND: Patient decision support tools have been developed as a means of providing accurate and accessible information in order for patients to make informed decisions about their care. Option Grids(™) are a type of decision support tool specifically designed to be used during clinical encounters. OBJECTIVE: To explore patients' views of the Option Grid encounter tool used in clinical consultations with physiotherapists, in comparison with usual care, within a patient population who are likely to be disadvantaged by age and low health literacy...
August 4, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28768067/-this-illness-diminishes-me-what-it-does-is-like-theft-a%C3%A2-qualitative-meta-synthesis-of-people-s-experiences-of-living%C3%A2-with-asthma
#6
REVIEW
Kristen Pickles, Daniela Eassey, Helen K Reddel, Louise Locock, Susan Kirkpatrick, Lorraine Smith
BACKGROUND: What matters to people in their everyday experiences of living with asthma is influenced by a diverse range of personal, social, medical and environmental factors. Previous reviews of the asthma literature have largely focused on medical aspects of asthma or specific population groups with particular needs. OBJECTIVE: To identify, describe and synthesize from the available qualitative literature the views and experiences of adults living with asthma...
August 2, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28768065/multiple-influences-on-participating-in-physical-activity-in-older-age-developing-a-social-ecological-approach
#7
Elisabeth R Boulton, Maria Horne, Chris Todd
BACKGROUND: Evidence of the benefits of engaging in physical activity (PA) is strong, yet the number of older adults meeting the recommended 150 min/wk is low. Policy to increase uptake and adherence has focussed on the health benefits of PA, but may not be the most successful approach. OBJECTIVE: This qualitative study sought to ask older adults what the components of a successful intervention to promote PA would be, by asking active older adults what motivated them to be active and asking inactive older adults what might encourage them to change...
August 2, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28768060/factors-associated-with-shared-decision-making-among-primary-care-physicians-findings-from-a-multicentre-cross-sectional-study
#8
Matthew Menear, Mirjam Marjolein Garvelink, Rhéda Adekpedjou, Maria Margarita Becerra Perez, Hubert Robitaille, Stéphane Turcotte, France Légaré
BACKGROUND: Despite growing recognition that shared decision making (SDM) is central for patient-centred primary care, adoption by physicians remains limited in routine practice. OBJECTIVE: To examine the characteristics of physicians, patients and consultations associated with primary care physicians' SDM behaviours during routine care. METHODS: A multicentre cross-sectional survey study was conducted with 114 unique patient-physician dyads recruited from 17 primary care clinics in Quebec and Ontario, Canada...
August 2, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28766816/improving-adherence-to-multiple-medications-in-older-people-in-primary-care-selecting-intervention-components-to-address-patient-reported-barriers-and-facilitators
#9
Deborah E Patton, Cathal A Cadogan, Cristín Ryan, Jill J Francis, Gerard J Gormley, Peter Passmore, Ngaire Kerse, Carmel M Hughes
BACKGROUND: Medication adherence is vital to ensuring optimal patient outcomes, particularly amongst multimorbid older people prescribed multiple medications. Interventions targeting adherence often lack a theoretical underpinning and this may impact on effectiveness. The theoretical domains framework (TDF) of behaviour can aid intervention development by systematically identifying key determinants of medication adherence. OBJECTIVES: This study aimed to (i) identify determinants (barriers, facilitators) of adherence to multiple medications from older people's perspectives; (ii) identify key domains to target for behaviour change; and (iii) map key domains to intervention components [behaviour change techniques (BCTs)] that could be delivered in an intervention by community pharmacists...
August 1, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28752577/extent-quality-and-impact-of-patient-and-public-involvement-in-antimicrobial-drug-development-research-a-systematic-review
#10
David Evans, Emma Bird, Andy Gibson, Sally Grier, Teh Li Chin, Margaret Stoddart, Alasdair MacGowan
BACKGROUND: Patient and public involvement (PPI) is increasingly recognized as bringing a range of benefits to clinical and health services research. Recent systematic reviews have identified and synthesized many benefits (eg higher recruitment rates) and some costs (eg extra time need). Much of the literature focuses on PPI in long-term conditions rather than more acute health care in which the majority of microbiological research is undertaken. OBJECTIVES: The aim was to identify the extent, quality and impact of PPI in antimicrobial drug development research...
July 27, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28734004/comparison-of-preferences-of-healthcare-professionals-and-ms-patients-for-attributes-of-disease-modifying-drugs-a-best-worst-scaling
#11
Ingrid E H Kremer, Silvia M A A Evers, Peter J Jongen, Mickaël Hiligsmann
BACKGROUND: The choice between disease-modifying drugs (DMDs) for the treatment of multiple sclerosis (MS) becomes more often a shared decision between the patient and the neurologist and MS nurse. This study aimed to assess which DMD attributes are most important for the healthcare professionals in selecting a DMD for a patient. Subsequently, within this perspective, the neurologists' and nurses' perspectives were compared. Lastly, the healthcare professionals' perspective was compared with the patients' perspective to detect any differences that may need attention in the communication about DMDs...
July 21, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28732138/involving-citizens-in-priority-setting-for-public-health-research-implementation-in-infection-research
#12
Timothy M Rawson, Enrique Castro-Sánchez, Esmita Charani, Fran Husson, Luke S P Moore, Alison H Holmes, Raheelah Ahmad
BACKGROUND: Public sources fund the majority of UK infection research, but citizens currently have no formal role in resource allocation. To explore the feasibility and willingness of citizens to engage in strategic decision making, we developed and tested a practical tool to capture public priorities for research. METHOD: A scenario including six infection themes for funding was developed to assess citizen priorities for research funding. This was tested over two days at a university public festival...
July 21, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28731519/citizen-s-charter-in-a-primary-health-care-setting-of-nepal-an-accountability-tool-or-a-mere-wall-poster
#13
Gagan Gurung, Robin Gauld, Philip C Hill, Sarah Derrett
BACKGROUND: Despite some empirical findings on the usefulness of citizen's charters on awareness of rights and services, there is a dearth of literature about charter implementation and impact on health service delivery in low-income settings. OBJECTIVE: To gauge the level of awareness of the Charter within Nepal's primary health-care (PHC) system, perceived impact and factors affecting Charter implementation. METHOD: Using a case study design, a quantitative survey was administered to 400 participants from 22 of 39 PHC facilities in the Dang District to gauge awareness of the Charter...
July 21, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28722772/understanding-leisure-time-physical-activity-voices-of-people-with-ms-who-have-moderate-to-severe-disability-and-their-family-caregivers
#14
Afolasade Fakolade, Julie Lamarre, Amy Latimer-Cheung, Trisha Parsons, Sarah A Morrow, Marcia Finlayson
BACKGROUND: Physical activity (PA) is beneficial for all people, yet people affected by multiple sclerosis (MS) find regular PA challenging. These people may include individuals with the disease who have moderate-to-severe disability and their family caregivers. For researchers and clinicians to effectively promote PA among caregiver/care-recipient dyads with moderate-to-severe MS, a comprehensive understanding of the shared PA experiences of these dyads would be beneficial. OBJECTIVE: We explored shared experiences of caregiver/care-recipient dyads affected by moderate-to-severe MS about PA and directions for intervention...
July 19, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28718928/accessing-support-and-empowerment-online-the-experiences-of-individuals-with-diabetes
#15
Ellen Brady, Julia Segar, Caroline Sanders
CONTEXT: The use of the internet for health information by those with long-term conditions is growing. It has been argued that this represents a form of empowerment by patients, as it enables them to control the content and flow of the information available to them. To explore this, the use of online discussion groups by those with diabetes was examined. METHOD: Semi-structured interviews were conducted with 21 participants with type 1 and 2 diabetes and analysed using thematic analysis...
July 18, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28703871/the-role-of-experiential-knowledge-within-attitudes-towards-genetic-carrier-screening-a-comparison-of-people-with-and-without-experience-of-spinal-muscular-atrophy
#16
Felicity K Boardman, Philip J Young, Oliver Warren, Frances E Griffiths
PURPOSE: Autosomal recessive conditions, while individually rare, are a significant health burden with limited treatment options. Population carrier screening has been suggested as a means of tackling them. Little is known, however, about the attitudes of the general public towards such carrier screening and still less about the views of people living with candidate genetic diseases. Here, we focus on the role that such experience has on screening attitudes by comparing views towards screening of people with and without prior experience of the monogenetic disorder, Spinal Muscular Atrophy...
July 13, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28686809/decision-making-in-nice-single-technological-appraisals-how-does-nice-incorporate-patient-perspectives
#17
Ferhana Hashem, Michael W Calnan, Patrick R Brown
CONTEXT: The National Institute for Health and Care Excellence (NICE) has an explicit mandate to include patient and public involvement in the appraisal of medicines to be available for funding on the NHS. NICE involves an appraisal committee who are required to take on board experiential evidence from patient experts alongside population-based evidence on clinical and cost-effectiveness when making a decision whether to fund a drug. OBJECTIVE: This paper considers how NICE Single Technological Appraisal (STA) committees attempt to incorporate the views of patients in making decisions about funding medicines on the NHS...
July 7, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28678433/qualitative-insights-into-the-experience-of-teaching-shared-decision-making-within-adult-education-health-literacy-programmes-for-lower-literacy-learners
#18
Danielle M Muscat, Suzanne Morony, Sian K Smith, Heather L Shepherd, Haryana M Dhillon, Andrew Hayen, Lyndal Trevena, Karen Luxford, Don Nutbeam, Kirsten J McCaffery
BACKGROUND: Enhancing health literacy can play a major role in improving healthcare and health across the globe. To build higher-order (communicative/critical) health literacy skills among socially disadvantaged Australians, we developed a novel shared decision making (SDM) training programme for adults with lower literacy. The programme was delivered by trained educators within an adult basic education health literacy course. OBJECTIVE: To explore the experience of teaching SDM within a health literacy programme and investigate whether communicative/critical health literacy content meets learner needs and teaching and institutional objectives...
July 5, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28678426/using-collaborate-a-brief-patient-reported-measure-of-shared-decision-making-results-from-three-clinical-settings-in-the-united-states
#19
Rachel C Forcino, Paul J Barr, A James O'Malley, Roger Arend, Molly G Castaldo, Elissa M Ozanne, Sanja Percac-Lima, Cheryl D Stults, Ming Tai-Seale, Rachel Thompson, Glyn Elwyn
INTRODUCTION: CollaboRATE is a brief patient survey focused on shared decision making. This paper aims to (i) provide insight on facilitators and challenges to implementing a real-time patient survey and (ii) evaluate CollaboRATE scores and response rates across multiple clinical settings with varied patient populations. METHOD: All adult patients at three United States primary care practices were eligible to complete CollaboRATE post-visit. To inform key learnings, we aggregated all mentions of unanticipated decisions, problems and administration errors from field notes and email communications...
July 5, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28675608/research-priorities-about-stoma-related-quality-of-life-from-the-perspective-of-people-with-a-stoma-a-pilot-survey
#20
Gill Hubbard, Claire Taylor, Becca Beeken, Anna Campbell, Jackie Gracey, Chloe Grimmett, Abi Fisher, Gozde Ozakinci, Sarah Slater, Trish Gorely
BACKGROUND: There is a recognized need to include patients in setting research priorities. Research priorities identified by people with a stoma are rarely elicited. OBJECTIVES: To improve the quality of life of people with a stoma through use of evidence-based practice based on research priorities set by patients. DESIGN AND METHODS: Online pilot survey publicized in 2016 via United Kingdom stoma charities. People ranked nine stoma-related quality of life topics in order of research priority...
July 4, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
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