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Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community

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https://www.readbyqxmd.com/read/29466883/inequality-and-poverty-toxic-issues-that-impact-on-children-s-health-and-opportunities
#1
Bernie Carter
No abstract text is available yet for this article.
March 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29298495/-i-m-almost-never-sick-everyday-life-experiences-of-children-and-young-people-with-home-mechanical-ventilation
#2
Åsa Israelsson-Skogsberg, Lena Hedén, Berit Lindahl, Katja Laakso
Developments in medical technology and treatment have increased the survival rates of children with serious illnesses or injuries, including those receiving home mechanical ventilation, which is a small but growing group. The aim of this study was to explore everyday life experiences of children and young people living with home mechanical ventilation (HMV). Data were obtained through interviews with nine participants. The interviews were supported by photovoice methodology: photographs taken by the participants before or during the interviews were used to facilitate conversation...
March 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29278917/experiences-with-unregulated-respite-care-among-family-caregivers-of-children-dependent-on-respiratory-technologies
#3
Krista Keilty, David Nicholas, Enid Selkirk
Increasingly, children with respiratory conditions who are dependent on medical technology (e.g. ventilators and tracheostomies) are cared for at home by family caregivers who are at risk for significant health, financial and social burdens. In many jurisdictions, access to quality respite is varied and often the availability of regulated (nursing) providers is insufficient. Rather than go without, some families have secured alternative and unregulated providers to supplement formal home care systems. The purpose of this study was to explore the experiences of family caregivers of children dependent on respiratory technologies who have used unregulated providers for in-home respite care...
March 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29277107/a-systematic-evidence-synthesis-of-interventions-to-engage-children-and-young-people-in-consultations-about-their-long-term-conditions
#4
Lucy Bray, Michelle Maden, Toni Bewley, Bernie Carter
Children and young people with long-term conditions are not always provided with opportunities to engage fully in consultations. This systematic review examined the effectiveness or worth of methods used to engage children and young people with long-term conditions in their consultations. Searches were undertaken in October 2016 in eight databases and of the grey literature. Two reviewers independently screened the results, extracted data and assessed the quality of the studies using a validated and reliable checklist...
March 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29268618/understanding-the-impact-of-diet-and-nutrition-on-symptoms-of-tourette-syndrome-a-scoping-review
#5
Amanda K Ludlow, Samantha L Rogers
Anecdotal reports frequently suggest some dietary involvement in the maintenance of tics in children with Tourette syndrome (TS). This scoping review aimed to (1) understand the possible influence of diet as a trigger of tics and (2) map out the existing studies documenting dietary interventions in children with TS. Current evidence suggests no single diet to benefit individuals with TS. However, reports from parents of children with TS suggest that certain allergens in food may exacerbate tic-related symptoms...
March 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29262717/family-structure-and-children-s-unmet-health-care-needs
#6
Katherine Irvin, Farhan Fahim, Saeed Alshehri, Panagiota Kitsantas
This study assessed children's unmet health-care needs within different family types (two-parent biological/adoptive, two-parent stepfamily, and single-mother family type) using data from the 2011/2012 National Survey of Children's Health. Findings indicate that 10.4% of children in single-mother family types had unmet health-care needs compared to 8.7% of children from a two-parent stepfamily and 5.3% for those from two-parent biological/adoptive families. Further analyses revealed racial/ethnic disparities with Black children from two parent-biological/adoptive families being 1...
March 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29258354/coping-strategies-and-emotional-well-being-in-children-with-disease-related-pain
#7
Alessandro Failo, Sarah E Beals-Erickson, Paola Venuti
Disease-related pain and the consequences of pain in children and families are important areas for further research inquiry. There are limited data on the relationship between children's emotional well-being, their experience of pain, and the strategies they employ to cope with pain within the context of serious medical illnesses. Understanding what strategies chronically ill children use to cope with pain and stress is essential for clinical intervention. This observational study examined the ways that children and adolescents with chronic diseases cope with pain and adapt to illness...
March 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29212362/how-health-professionals-facilitate-parents-involvement-in-decision-making-at-the-hospital-a-parental-perspective
#8
Antje Aarthun, Knut A Øymar, Kristin Akerjordet
In many western countries, parents have a legal right to influence and be involved in decision-making (DM) surrounding their children's healthcare. This ensures that the healthcare is customized as far as possible to meet the children's and families' needs and preferences. However, parental involvement in such DM is not sufficiently implemented and the parental role during hospitalizations has become demanding. More knowledge is required to inform health professionals (HPs) about how to improve parental involvement in DM from a health-promoting perspective...
March 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29685050/factors-influencing-the-caregiving-performance-of-mothers-of-hospitalized-toddlers-with-acute-respiratory-diseases-a-path-analysis
#9
Han Hye-Yul, Kim Shin-Jeong, Ellis Kevin Wayne, Kang Kyung-Ah
Studies on the management of respiratory diseases in children have focused on family members' participation and caregivers' needs. However, evidence-based data on the effectiveness of mothers' management of acute respiratory diseases (ARDs) in toddlers are lacking. This study aimed to examine the factors influencing the caregiving performance of mothers of toddlers hospitalized for an ARD and to test a hypothetical causal model based on the Caregiving Effectiveness Model (CEM). A cross-sectional design was used, and participants included 291 mothers of toddlers aged 12-36 months who were hospitalized for an ARD...
January 1, 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29618238/the-importance-of-environment-neighborhood-characteristics-and-parent-perceptions-of-child-health
#10
Cory E Cronin, Brian K Gran
Andersen's Behavioral Model of Health Services Use acknowledges the importance of community and environment in how individuals utilize health-care services. This article questions whether and how environment influences perceptions of health, specifically parents' perceptions of their children's health. Based on data from the 2011-2012 US National Survey of Children's Health, this study investigates how parents' views of their neighborhoods (such as safety, social support, amenities, and detracting elements) shape perceptions of their child's health...
January 1, 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29618237/transition-from-paediatric-to-adult-healthcare-for-young-people-with-cystic-fibrosis-parents-information-needs
#11
Imelda Coyne, Helen Malone, Emma Chubb, Alison E While
Parents of young people with cystic fibrosis (YPWCF) play an important role during the transition from paediatric to adult health services. There is limited evidence on parental information needs and the extent to which they are met. An online survey was conducted targeting a finite population of 190 parents of YPWCF in Ireland. Fifty-nine parents responded (31% response rate). Parents reported the need for more general preparation and timing of the transfer, more information regarding the differences between adult and child health services and how their child will self-manage his/her illness in the future...
January 1, 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29614879/the-complexities-of-contagion-the-experience-of-social-isolation-among-children-and-youth-living-with-cystic-fibrosis-in-canada
#12
Fiona Moola
While cross-respiratory infection guidelines reduce the risk of infection, this may have deleterious impacts on the socialization skills of young people living with cystic fibrosis (CF). The purpose of this study was to explore the experience of social isolation among young Canadians with CF, as well as how they navigate these complex contamination restrictions. The thematic analytic qualitative research tradition was adopted and social theories of risk provided theoretical grounding. The youth described a pressing sense of social isolation in their everyday lives...
January 1, 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29606015/avoidant-coping-moderates-the-relationship-between-paternal-involvement-in-the-child-s-type-1-diabetes-t1d-care-and-parenting-stress
#13
Ashley Teasdale, Christine Limbers
Fathers may experience greater parenting stress and anxiety when they are more involved in their child's type 1 diabetes (T1D) care. The present study evaluated whether seeking social support and avoidant coping strategies moderate the relationship between paternal involvement in the child's T1D care and parenting stress in an international sample. Two hundred forty-nine fathers of young children with T1D completed the Parenting Stress Index (PSI), Pediatric Inventory for Parents (PIP), Dads' Active Disease Support scale (DADS), COPE Inventory, Self-Care Inventory (SCI-R), and a demographic questionnaire online...
January 1, 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29606014/analysis-of-sudden-infant-death-syndrome-coverage-in-canadian-newspapers
#14
Sadia Ahmed, Ian Mitchell, Gregor Wolbring
Sudden infant death syndrome (SIDS; also known as crib death) describes the sudden unexpected death of an infant under one year of age, which remains unexplained after a thorough investigation. SIDS is a public health concern. It is the fourth leading cause of infant death in Canada. Newspapers are a major source of health information for the public, shape public perceptions and can direct the discussion around issues. Despite the potential influence of newspapers, no study has examined the portrayal of SIDS in Canadian newspapers over time...
January 1, 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29558835/views-of-children-parents-and-health-care-providers-on-pediatric-disclosure-of-medical-errors
#15
Donna Koller, Sherry Espin
Despite the prevalence of medical errors in pediatrics, little research examines stakeholder perspectives on the disclosure of adverse events, particularly in the case of children's own perspectives. Stakeholder perspectives, however, are integral to informing processes for pediatric disclosure. Building on a systematic review of the literature, this article presents findings from a series of focus groups with key pediatric stakeholders where perspectives were sought on the disclosure of medical errors. Focus groups were conducted with three stakeholder groups...
January 1, 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29551084/psychometric-proprieties-of-the-child-health-questionnaire-in-an-arabic-speaking-context-a-multi-trait-and-multi-sample-study
#16
Guido Veronese, Alessandro Pepe
Ongoing research on the assessment of children's health has led to the development of a large number of quantitative tools. The Child Health Questionnaire-Parent Form (CHQ-PF) is a set of questionnaires aimed at measuring different facets of children's health as perceived by their parents. The present multi-trait multi-sample study tested the validity and the reliability of the 50-item version of the CHQ with families ( N = 1095) living in contexts of low-intensity warfare. The validation procedures implemented (exploratory and confirmatory factor analysis, convergent validity, and reliability testing) yielded a new, shorter version of the questionnaire (CHQ-PF-25)...
January 1, 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29544353/agenda-setting-with-children-using-the-three-wishes-technique
#17
Nikki Kiyimba, Michelle O'Reilly, Jessica Nina Lester
The National Health Service (UK) offers initial screening appointments for children referred to child and adolescent mental health services to determine clinical need and assess risk. Conversation analysis was utilized on 28 video recordings of these assessments, lasting approximately 90 minutes each with a multidisciplinary team. This article focuses on the agenda setting strategies used to establish relevant goals with children and adolescents; specifically, the technique of offering 'three wishes'. For example, ' if you had three wishes, what would you like to make happen?' In cases where children initially volunteered an assessment-relevant wish, they tended not to articulate further wishes...
January 1, 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29544352/experiences-of-adolescents-living-with-cancer-a-descriptive-qualitative-study
#18
Sin Hui Ang, Serena Siew Lin Koh, Xiu Hua Hideka Tamamura Lee, Shefaly Shorey
This study aimed to explore the experiences of adolescents from Singapore, aged 10-18 years old, living with cancer and their perceptions on how their psychosocial outcomes can be improved. A descriptive qualitative study design was used. Convenience sampling was used to recruit 10 participants from a pediatric oncology ward in a Singapore hospital. Individual semi-structured interviews were conducted. Thematic analysis was used to analyze the data. Five major themes emerged: (1) experience of physical symptoms, (2) emotional response to their condition, (3) changes in social dynamics, and (4) falling behind in academics...
January 1, 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29540078/parental-stress-scale-validation-study-with-a-portuguese-population-of-parents-of-children-from-3-to-10-years-old
#19
Susana Algarvio, Isabel Leal, João Maroco
The aim of this study was to validate the Parental Stress Scale (PSS) for Portuguese parents and to further investigate the scale's criterion-related validity. A two-stage stratified sample of the Portuguese population of parents, with children attending public preschools and primary schools, was obtained, totalizing 3842 parents of children between 3 and 10 years old. Parents completed a Parental Concerns Scale and the Portuguese version of the PSS. Results support the four-factor structure of the Portuguese version of the PSS...
January 1, 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29534606/playing-the-game-how-young-people-moderate-influences-in-accommodating-asthma-in-their-lives
#20
Mary Hughes, Eileen Savage, Tom Andrews
This article presents moderating influences, one of the sub-core categories from the theory of accommodating interruptions. This theory emerged in the context of young people who have asthma, explaining how they develop behaviours in their everyday lives (Hughes 2014; Hughes et al., 2017). The aim of this research was to develop a theory on the behaviours of young people who have asthma, in relation to the impact of asthma on the lives and the issues affecting them. This research was undertaken using a classic grounded theory approach...
January 1, 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
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