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Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community

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https://www.readbyqxmd.com/read/29852757/the-practice-of-writing
#1
Bernie Carter
No abstract text is available yet for this article.
June 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29466883/inequality-and-poverty-toxic-issues-that-impact-on-children-s-health-and-opportunities
#2
Bernie Carter
No abstract text is available yet for this article.
March 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29298495/-i-m-almost-never-sick-everyday-life-experiences-of-children-and-young-people-with-home-mechanical-ventilation
#3
Åsa Israelsson-Skogsberg, Lena Hedén, Berit Lindahl, Katja Laakso
Developments in medical technology and treatment have increased the survival rates of children with serious illnesses or injuries, including those receiving home mechanical ventilation, which is a small but growing group. The aim of this study was to explore everyday life experiences of children and young people living with home mechanical ventilation (HMV). Data were obtained through interviews with nine participants. The interviews were supported by photovoice methodology: photographs taken by the participants before or during the interviews were used to facilitate conversation...
March 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29278917/experiences-with-unregulated-respite-care-among-family-caregivers-of-children-dependent-on-respiratory-technologies
#4
Krista Keilty, David Nicholas, Enid Selkirk
Increasingly, children with respiratory conditions who are dependent on medical technology (e.g. ventilators and tracheostomies) are cared for at home by family caregivers who are at risk for significant health, financial and social burdens. In many jurisdictions, access to quality respite is varied and often the availability of regulated (nursing) providers is insufficient. Rather than go without, some families have secured alternative and unregulated providers to supplement formal home care systems. The purpose of this study was to explore the experiences of family caregivers of children dependent on respiratory technologies who have used unregulated providers for in-home respite care...
March 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29277107/a-systematic-evidence-synthesis-of-interventions-to-engage-children-and-young-people-in-consultations-about-their-long-term-conditions
#5
Lucy Bray, Michelle Maden, Toni Bewley, Bernie Carter
Children and young people with long-term conditions are not always provided with opportunities to engage fully in consultations. This systematic review examined the effectiveness or worth of methods used to engage children and young people with long-term conditions in their consultations. Searches were undertaken in October 2016 in eight databases and of the grey literature. Two reviewers independently screened the results, extracted data and assessed the quality of the studies using a validated and reliable checklist...
March 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29268618/understanding-the-impact-of-diet-and-nutrition-on-symptoms-of-tourette-syndrome-a-scoping-review
#6
Amanda K Ludlow, Samantha L Rogers
Anecdotal reports frequently suggest some dietary involvement in the maintenance of tics in children with Tourette syndrome (TS). This scoping review aimed to (1) understand the possible influence of diet as a trigger of tics and (2) map out the existing studies documenting dietary interventions in children with TS. Current evidence suggests no single diet to benefit individuals with TS. However, reports from parents of children with TS suggest that certain allergens in food may exacerbate tic-related symptoms...
March 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29262717/family-structure-and-children-s-unmet-health-care-needs
#7
Katherine Irvin, Farhan Fahim, Saeed Alshehri, Panagiota Kitsantas
This study assessed children's unmet health-care needs within different family types (two-parent biological/adoptive, two-parent stepfamily, and single-mother family type) using data from the 2011/2012 National Survey of Children's Health. Findings indicate that 10.4% of children in single-mother family types had unmet health-care needs compared to 8.7% of children from a two-parent stepfamily and 5.3% for those from two-parent biological/adoptive families. Further analyses revealed racial/ethnic disparities with Black children from two parent-biological/adoptive families being 1...
March 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29258354/coping-strategies-and-emotional-well-being-in-children-with-disease-related-pain
#8
Alessandro Failo, Sarah E Beals-Erickson, Paola Venuti
Disease-related pain and the consequences of pain in children and families are important areas for further research inquiry. There are limited data on the relationship between children's emotional well-being, their experience of pain, and the strategies they employ to cope with pain within the context of serious medical illnesses. Understanding what strategies chronically ill children use to cope with pain and stress is essential for clinical intervention. This observational study examined the ways that children and adolescents with chronic diseases cope with pain and adapt to illness...
March 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29212362/how-health-professionals-facilitate-parents-involvement-in-decision-making-at-the-hospital-a-parental-perspective
#9
Antje Aarthun, Knut A Øymar, Kristin Akerjordet
In many western countries, parents have a legal right to influence and be involved in decision-making (DM) surrounding their children's healthcare. This ensures that the healthcare is customized as far as possible to meet the children's and families' needs and preferences. However, parental involvement in such DM is not sufficiently implemented and the parental role during hospitalizations has become demanding. More knowledge is required to inform health professionals (HPs) about how to improve parental involvement in DM from a health-promoting perspective...
March 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29166768/active-parents-active-children-the-importance-of-parental-organized-physical-activity-in-children-s-extracurricular-sport-participation
#10
Daniela Rodrigues, Cristina Padez, Aristides M Machado-Rodrigues
This study investigated whether parental participation in organized and unorganized physical activity (PA) was associated with children's participation in extracurricular sport. The sample comprised 834 parents and their children (aged 6-10 years), living in central Portugal. Questionnaires assessed parental PA (organized and unorganized) and extracurricular sport participation in children (number of sports and frequency of participation). Multinomial logistic regression was applied to assess associations between parental and child physical behaviors...
March 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29110533/childhood-language-skills-and-adolescent-self-esteem-in-preterm-survivors
#11
Umna A Islam, Kristie L Poole, Louis A Schmidt, Jennifer Ford, Saroj Saigal, Ryan J Van Lieshout
Fifty-seven percent of children with poor language skills are affected by socio-emotional problems. Despite the importance of language skills to interpersonal functioning and school performance, relatively little is known about how they affect self-esteem in adolescence. Data on youth at high risk for language problems (e.g. those born extremely low birth weight (ELBW; <1000 grams)) are even more scarce. This prospective study examined associations between language skills at age 8 and self-esteem during adolescence (12-16 years) in individuals born at ELBW ( N = 138) or normal birth weight (NBW; >2500 grams) ( N = 111)...
March 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29110532/psychometric-testing-of-the-turkish-version-of-the-health-literacy-for-school-aged-children-scale
#12
Meryem Ozturk Haney
This study aimed to assess the validity and reliability of the Turkish version of the Health Literacy for School-Aged Children (HLSAC-T) scale. This study was a cross-sectional and methodological design. The sample consisted of 563 sixth and ninth grade students in Izmir, Turkey. Data were collected with the socio-demographic characteristics questionnaire, HLSAC-T, and Turkish version of the Adolescent Lifestyle Profile. Cronbach's α for the scale was .77 and item-total correlations were between .49 and .61 ( p < ...
March 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29110529/impaired-mobility-associated-with-an-increased-likelihood-of-death-in-children-a-systematic-review
#13
Sally Nissen, Edward Purssell, Karen Shaw, Cara Bailey, Nikolaos Efstathiou, Carolyn Dunford
Improved identification of children with an increased likelihood of death can support appropriate provision of integrated palliative care. This systematic review aims to consider immobility and the associated likelihood of death in children with disabilities, living in high-income countries. Two reviewers independently searched MEDLINE, Embase, Cochrane Library, OpenGrey and Science Citation Index (1990-2016) for studies that reported hazard ratios (HRs) and relative risk for the likelihood of death related to impaired mobility...
March 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29110509/stress-management-for-headaches-in-children-and-adolescents-a-review-and-practical-recommendations-for-health-promotion-programs-and-well-being
#14
Anastasia Bougea, Nikolaos Spantideas, George P Chrousos
Stress is considered to be the most common factor reported to trigger headaches in children and adolescents. Although tension-type headache and migraine are the two most common types of headache in children and adolescents, they are often untreated, ignoring their stressful background. We provide a narrative review of the available evidence for health-care professionals involved in stress-related headache management and health promotion programs. An integrative plan is delivered through lifestyle improvement and biopsychosocial modifying stress response techniques...
March 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29911431/gathering-expert-opinion-to-inform-benchmarks-to-support-transitional-care
#15
Susie Aldiss, Laura Rose, Dominic McCutcheon, Hilary Cass, Judith Ellis, Faith Gibson
This study aimed to (1) explore views of known experts leading on transition, (2) gather insights on the essential features of transitional care models and (3) highlight opportunities for and barriers to change: to inform core elements of benchmarks for transitional care. We held three workshops ( n = 20) and used a telephone interview ( n = 1) with health and social care professionals with expertise working with young people with a range of health conditions and disabilities. The workshops included individual brainstorming and group discussion...
January 1, 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29807461/using-drawings-to-understand-the-child-s-experience-of-child-centred-care-on-admission-to-a-paediatric-high-dependency-unit
#16
Mandie Foster, Lisa Whitehead
Family- and child-centred care are philosophies of care used within paediatrics where the family and/or the child are central to healthcare delivery. This study explored the lived experience of hospitalized school-aged children admitted to a paediatric high dependency unit in New Zealand to gain insight into child-centred care from a child's perspective. An interpretive thematic approach was used where the child was asked to draw a picture of 'a person in the hospital' that was further explored through interviews...
January 1, 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29804471/evaluating-a-telehealth-intervention-for-urinalysis-monitoring-in-children-with-neurogenic-bladder
#17
Bernie Carter, Karen Whittaker, Caroline Sanders
Telehealth as a community-monitoring project within children's urology care is an innovative development. There is limited evidence of the inclusion of staff and parents in the early-stage development and later adoption of telehealth initiatives within routine urological nursing care or families' management of their child's bladder. The aim was to explore the experiences of key stakeholders (parents, clinicians, and technical experts) of the proof of concept telehealth intervention in terms of remote community-based urinalysis monitoring by parents of their child's urine...
January 1, 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29804465/leaders-limitations-and-approaches-to-creating-conditions-for-interaction-and-communication-in-parental-groups-a-qualitative-study
#18
Karin Forslund Frykedal, Michael Rosander, Mia Barimani, Anita Berlin
The aim of this study was to describe and understand parental group (PG) leaders' experiences of creating conditions for interaction and communication. The data consisted of 10 interviews with 14 leaders. The transcribed interviews were analysed using thematic analysis. The results showed that the leaders' ambition was to create a parent-centred learning environment by establishing conditions for interaction and communication between the parents in the PGs. However, the leaders' experience was that their professional competencies were insufficient and that they lacked pedagogical tools to create constructive group discussions...
January 1, 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29804463/-happy-that-someone-cared-non-native-speaking-immigrant-mothers-experiences-of-participating-in-screening-for-postpartum-depression-in-the-swedish-child-health-services
#19
Malin Skoog, Vanja Berggren, Inger Kristensson Hallström
Immigrant mothers who have immigrated during the last ten years and do not speak the language of the new country are found to be at particular risk of being affected by postpartum depression (PPD). Still they choose to participate to a lesser extent in screening for PPD and are not screened out as frequently as can be expected. In this study, non-native-speaking immigrant mothers' experiences of participating in screening for PPD in the Swedish Child Health Services were elucidated. Thirteen qualitative interviews were performed with the help of an interpreter and analysed using latent content analysis...
January 1, 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29792063/integrating-childhood-obesity-resources-into-the-patient-centered-medical-home-provider-perspectives-in-the-united-states
#20
Samareh G Hill, Thao-Ly T Phan, George A Datto, Jobayer Hossain, Lloyd N Werk, Diane Abatemarco
Pediatric primary care providers play a critical role in managing obesity yet often lack the resources and support systems to provide effective care to children with obesity. The objective of this study was to identify system-level barriers to managing obesity and resources desired to better managing obesity from the perspective of pediatric primary care providers. A 64-item survey was electronically administered to 159 primary care providers from 26 practices within a large pediatric primary care network. Bivariate analyses were performed to compare survey responses based on provider and practice characteristics...
January 1, 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
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