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Journal of Registry Management

Christie R Eheman, Mary Elizabeth O'Neil, Timothy S Styles, Trevor D Thompson, Cyllene R Morris, Frances A Babcock, Vivien W Chen
Background: Some guidelines advise adjuvant chemotherapy be considered after surgical resection for high-risk stage II colon cancer patients; however, high-risk criteria are poorly defined and the long-term benefits are still debated. This study documents patterns of care by selected patient and tumor characteristics using a US population-based cohort of stage II colon cancer patients diagnosed in 2011. Methods: Data were collected from 10 specialized cancer registries participating in the Centers for Disease Control and Prevention's National Program of Cancer Registries' Enhancing Cancer Registry Data for Comparative Effectiveness Research project...
2016: Journal of Registry Management
Mary Fleming
The following article describes the development of a new data use for cancer registry information. The registry in Hartford Hospital recently participated in a summer program for high school students interested in the field of health care. After an introduction to the registry and its core data elements, a research topic was assigned to the students. Using de-identified registry data consisting of 101 non-small cell lung cancer patients who were diagnosed in 2015, 4 students in the oncology work group (Zirui Hao, Princess Harmon, Nathaniel Nicholson and Kajal Shah) from the Academy of Aerospace and Engineering in Windsor, Connecticut were charged with analyzing and drawing conclusions from the data...
2016: Journal of Registry Management
Vicki Hawhee, Vonetta L Williams
The Registry Resources guide useful and beneficial education resources to new and current cancer registrars. Further development of this resource guide can incorporate more state standards along with any other resources that you use on a regular basis that were not included in this resource guide.
2016: Journal of Registry Management
Xuesong Han, Shiyun Zhu, Yao Tian, Betsy A Kohler, Ahmedin Jemal, Elizabeth Ward
PURPOSE: Previous studies on insurance and cancer stage at diagnosis are limited by either insufficient power for less common cancers or nonpopulation-based samples. We aimed to examine this association using a nationwide population- based sample of patients for a wide range of cancer sites prior to implementation of the Affordable Care Act (ACA) in the United States. METHODS: A total of 1,233,045 incident cancer patients aged 18-64 years diagnosed in 2007-2011 from 35 US central cancer registries were analyzed...
2016: Journal of Registry Management
Timothy Styles, Manxia Wu, Reda Wilson, Frances Babcock, David Butterworth, Dee W West, Lisa C Richardson
INTRODUCTION: National and international hematology/oncology practice guidelines recommend testing for the BCR-ABL mutation for definitive diagnosis of chronic myeloid leukemia (CML) to allow for appropriate treatment with a tyrosine kinase inhibitor (TKI). The purpose of our study was to describe population-based testing and treatment practice characteristics for patients diagnosed with CML. METHODS: We analyzed cases of CML using 2011 data from 10 state registries that are part of the Centers for Disease Control and Prevention (CDC)'s National Program of Cancer Registries...
2016: Journal of Registry Management
Mariana Rosenthal, Christopher J Johnson, Steve Scoppa, Kris Carter
BACKGROUND: Investigations of suspected cancer clusters are resource intensive and rarely identify true clusters: among 428 publicly reported US investigations during 1990-2011, only 1 etiologic cluster was identified. In 2013, the Cancer Data Registry of Idaho (CDRI) was contacted regarding a suspected cancer cluster at a worksite (Cluster A) and among an occupational cohort (Cluster B). We investigated to determine whether these were true clusters. METHODS: We derived investigation cohorts for Cluster A from facility-provided employee records and for Cluster B from professional licensing records...
2016: Journal of Registry Management
Normandeau Chris, Mehta Vivek, Strother Douglas, Hatcher Juanita, Davis Faith
Estimates suggest that brain tumors are underreported in the Alberta Cancer Registry (ACR). While the reporting of malignant tumors is thought to be complete in cancer registries across Canada, the reporting of benign tumors is estimated at 33 percent of the actual number of cases expected within the country.6 There are many international studies that highlight the issues of underreporting of benign brain tumors in cancer registries. This study had 3 objectives to investigate the amount of and potential reasons for underreporting: 1) overall case ascertainment of pediatric brain tumor cases present in physician databases captured by the ACR was assessed; 2) overall case ascertainment of all known pediatric brain tumors was assessed and summarized for the ACR and physician pediatric brain tumor databases; and 3) the expected number of unknown pediatric brain tumor cases was estimated so overall case ascertainment could be assessed...
2016: Journal of Registry Management
Ignacio Zarante, Karen Sarmiento, C Mallarino, G Gracia
Congenital anomalies contribute greatly to child mortality and physical disabilities. Strategies used around the world to reduce the frequency and impact of congenital anomalies require epidemiologic surveillance systems to verify their effectiveness. In Bogotá, Colombia, implementation of an accurate monitoring system has been challenging. METHODS: The Bogotá Congenital Malformations Surveillance Program (BCMSP) gathers data on malformations from 2 sources: (1) the National Public Health Surveillance System (SIVIGILA), applying methodology from the National Health Institute, and (2) cases and control logs from hospitals...
2016: Journal of Registry Management
Michele Webb
The view from the top of Hoover Dam looking south over the Colorado River was breathtaking! My friend and I stood there in silence, taking it all in. I had visited Hoover Dam on many occasions, but this visit was the first time I had seen the arch bridge that carries US Route 93 over the river and joins Nevada and Arizona states. It was a beautiful day, the temperature was perfect, and there was a slight breeze coming from Lake Mead behind us as we took in the view.
2016: Journal of Registry Management
Brenda Campbell, Edna Crueta, Fred Furnera, Mary Healy, Sandy Stewart
No abstract text is available yet for this article.
2016: Journal of Registry Management
Meredith LeBeau
In the search for new registrars, we often find that applicants have no medical experience or knowledge of the cancer registry. This poster will illustrate an onboarding process on how to train and foster the professional development of a new cancer registrar (Figure 1).
2016: Journal of Registry Management
Meredith LeBeau
Accurately identifying Class of Case (Figure 1) is crucial in understanding the type of data that can be analyzed in determining valuable patient population characteristics for your cancer program targeted community. Class of Case has a large impact on statistical analysis and public reporting. Physician/institution mergers and acquisitions, contracts, and other agreements make determining class of case challenging.
2016: Journal of Registry Management
Vicki Hawhee
No abstract text is available yet for this article.
2016: Journal of Registry Management
Recinda L Sherman, Laura Williamson, Patricia Andrews, Amy Kahn
An individual's access to health insurance influences the amount and type of health services a patient receives for prevention and treatment, and, ultimately, influences survival. The North American Association of Central Cancer Registries (NAACCR) Item #630, Primary Payer at DX, is a required field intended to document health insurance status for the purpose of supporting patterns-of-care studies and other research. However, challenges related to the uniformity of collection and availability of data needed to populate this field diminish the value of the Primary Payer at DX data...
2016: Journal of Registry Management
Kendra Johnson
No abstract text is available yet for this article.
2016: Journal of Registry Management
Mary S Potts, Jennifer L Hafterson
Historically, newly hired staff members were trained using a labor intensive one-on-one strategy and experienced staff participated in monthly education meetings. With the ever-expanding data collection requirements and guideline changes, helping every staff member remain current became impossible to achieve using this methodology. To better address the training needs of each staff member and to do so in a cost effective way, a comprehensive e-training platform was designed.
2016: Journal of Registry Management
Danette Clark, Danillie Clark
The Web-based Cancer Program Practice Profile Reports (CP3R) offer providers comparative information to assess adherence to and consideration of standard-of-care therapies for major cancers. The tool helps facilities practice continuous improvement to ensure quality of patient care. The poster will illustrate a process to ensure the presentation of data at a compliance level.
2016: Journal of Registry Management
Clara Lam, Lois Dickie, Peggy Adamo, Lynne Penberthy
In light of the recent assessment done for ProstateSpecific Antigen values in the Surveillance, Epidemiology, and End Results (SEER) Program, it is possible that coding procedures for melanoma tumor depth may have similar quality issues. Potential errors that have been initially identified are implied decimal errors, transcription errors, and incomplete information. Because of the SEER Program's commitment to high data quality standards, various studies are being planned to review and adjudicate incorrect lab values for several different data items in the SEER data collection...
2016: Journal of Registry Management
Carla J Ambrosius
No abstract text is available yet for this article.
2016: Journal of Registry Management
Angela Deneka
Monoclonal B-cell lymphocytosis (MBL) does not have a World Health Organization (WHO) International Classification of Diseases for Oncology (ICD-O) morphology code as it is not currently recognized as a reportable disease. Although MBL is premalignant, patients diagnosed with MBL need to be monitored as they eventually progress to chronic lymphocytic leukemia/small lymphocytic lymphoma (CLL/SLL). Working together, the Manitoba CLL Disease Site Group (DSG) and the Manitoba Cancer Registry developed a way to record and track these patients to ensure they receive the proper follow-up care...
2016: Journal of Registry Management
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