journal
MENU ▼
Read by QxMD icon Read
search

Journal of Applied Research in Intellectual Disabilities: JARID

journal
https://www.readbyqxmd.com/read/29336507/-learn-ing-what-is-important-to-children-and-young-people-with-intellectual-disabilities-when-they-are-in-hospital
#1
K Oulton, D Sell, F Gibson
BACKGROUND: The need to review health service provision for children and young people (CYP) with disabilities and their families in the United Kingdom has been expressed in multiple reports: the most consistent message being that services need to be tailored to meet their individual needs. Our aim was to understand the hospital-related needs and experiences of CYP with intellectual disabilities. METHOD: An ethnographic study of a neurosciences ward and outpatient department was conducted within a paediatric tertiary hospital setting...
January 16, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29282814/assessment-of-job-satisfaction-in-people-with-intellectual-disabilities-towards-best-practice-recommendations
#2
Andreas Kocman, Germain Weber
BACKGROUND: The current body of research on job satisfaction of people with intellectual disability is based on highly diverse measures, originating both from the general population and people with intellectual disability. This heterogeneity represents a possible confounder. Best-practice approaches for the assessment of job satisfaction are hence needed. METHOD: Using systematic literature review, job satisfaction measures were identified and analyzed with regard to their applicability for people with intellectual disability...
December 28, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29266636/identifying-perception-behaviours-in-people-with-profound-intellectual-and-multiple-disabilities
#3
Miriam Roemer, Ellen Verheul, Frank Velthausz
BACKGROUND: To support people with profound intellectual and multiple disabilities (PIMD), it is essential to understand how they experience their environment. Insight into perception behaviour may provide an entry point for improved understanding. MATERIALS AND METHODS: A random sample of a 30-min video registration of five participants with PIMD was used to code behaviours per second based on an ethogram containing 157 different perception behaviours in nine categories...
December 21, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29231285/co-research-with-adults-with-intellectual-disability-a-systematic-review
#4
REVIEW
Claudio Di Lorito, Alessandro Bosco, Linda Birt, Angela Hassiotis
BACKGROUND: Co-research with people with intellectual disability is a distinct form of patient and public involvement (PPI). This systematic review summarize published studies and protocols to report on the process of co-research in social and healthcare research. METHOD: Relevant studies were identified using electronic searches on ASSIA, PsycInfo and MedLine. Study quality was assessed, and information relevant to the process of working with co-researchers was extracted and thematically analysed...
December 12, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29231277/do-individuals-with-intellectual-disability-have-a-lower-peak-heart-rate-and-maximal-oxygen-uptake
#5
Thessa Irena Maria Hilgenkamp, Tracy Baynard
BACKGROUND: Individuals with intellectual disability (ID) have very low physical activity and low peak oxygen uptake (VO2peak ), potentially explained by physiologically lower peak heart rates (HRpeak ). METHOD: The present authors performed a retrospective analysis of a large data set of individuals with intellectual disability (n = 100), with Down syndrome (DS) (n = 48) and without intellectual disability (n = 224) using multiple linear regression analyses, to determine if individuals with intellectual disability exhibit lower HRpeak and VO2peak than individuals without intellectual disability, controlling for age, sex and body mass index (BMI)...
December 12, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29231273/the-added-value-of-inclusive-research
#6
Jan Walmsley, Iva Strnadová, Kelley Johnson
BACKGROUND: The study asks when does inclusive research add value? The authors argue that this is important, given the additional time and cost of co-researching with people with intellectual disabilities. The study is situated in debates about a "second generation" of inclusive research which advocates focussing more on outcomes than process. The authors argue that this is premature, rather the authors propose that inclusive research is valuable when it helps to recognize, foster, and above all communicate the contributions people with intellectual disabilities can make...
December 12, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29193494/-it-s-good-they-re-like-me-the-same-but-different-an-interpretative-phenomenological-analysis-of-the-identities-of-women-with-down-s-syndrome
#7
Emma Groves, Kelly Rayner, Steven Muncer
BACKGROUND: For people with disabilities, identity formation is based on responses to hierarchical values determined by able populations. Some adopt a disability identity, whereas others may seek to conceal their disability. No research has focused on how women with Down's Syndrome form an identity. DESIGN: Eight women with Down's Syndrome took part in semi-structured interviews designed to find out more about their individual and shared identities. The transcripts were analysed using interpretive phenomenological analysis...
November 29, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29171141/the-mental-health-of-adolescents-with-and-without-mild-moderate-intellectual-disabilities-in-england-secondary-analysis-of-a-longitudinal-cohort-study
#8
Chris Hatton, Eric Emerson, Janet Robertson, Susannah Baines
BACKGROUND: Children with mild/moderate intellectual disabilities are at greater risk for mental health problems, with socio-economic factors and adversity partly accounting for this. Fewer data are available for adolescents. METHODS: Secondary analysis was undertaken of the Next Steps annual panel study following a cohort through adolescence into adulthood containing self-report mental health data up to age 16/17. Participants with mild/moderate intellectual disabilities were identified through data linkage with educational records...
November 24, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29168267/explicit-and-implicit-attitudes-towards-people-with-intellectual-disabilities-the-role-of-contact-and-participant-demographics
#9
Aidan J Murch, Tanveen Choudhury, Michelle Wilson, Katrina Scior, Eleanor Collerton, Maya Patel
BACKGROUND: Intellectual disability research has concentrated on self-reported explicit attitudes with little focus on implicit attitudes. Such attitudes are evaluations which occur with or without conscious awareness, respectively. This investigation examined participants' (N = 234) attitudes towards individuals with intellectual disabilities with reference to participants' gender, age, level of education, frequency of contact and closeness. METHOD: UK adults completed explicit (ATTID) and implicit attitude (ST-IAT) measures, and provided demographics via an online survey...
November 23, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29168259/constipation-management-in-people-with-intellectual-disability-a-systematic-review
#10
REVIEW
Janet Robertson, Susannah Baines, Eric Emerson, Chris Hatton
BACKGROUND: Constipation can lead to serious health issues and death. This systematic review summarizes international research pertaining to the management of constipation in people with intellectual disability. METHOD: Studies published from 1990 to 2017 were identified using Medline, Cinahl, PsycINFO, Web of Science, email requests and cross-citations. Studies were reviewed narratively in relation to identified themes. RESULTS: Eighteen studies were reviewed in relation to three themes: laxative receipt; interventions (dietary fibre, abdominal massage and macrogol); and staff issues (knowledge and training)...
November 23, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29152833/training-therapists-to-work-with-people-with-intellectual-disability-in-improving-access-to-psychological-therapies-iapt-services
#11
Dave Dagnan, John Masson, Richard Thwaites, Amy James, Chris Hatton
BACKGROUND: Current policy in the England suggests that people with intellectual disabilities should, where possible, access mainstream mental health services; this should include access to mainstream therapy services. It is likely that mainstream therapists will need training and support to work with people with intellectual disabilities. METHOD: Sixty-eight therapists working in an English Improving Access to Psychological Therapies (IAPT) service received one- or 2-day training on working with people with intellectual disabilities...
November 20, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29124850/the-role-of-shame-in-the-development-and-maintenance-of-psychological-distress-in-adults-with-intellectual-disabilities-a-narrative-review-and-synthesis
#12
REVIEW
Neil E Clapton, Jonathan Williams, Robert S P Jones
BACKGROUND: The role of shame in the development and maintenance of psychological distress in adults with mild-to-moderate intellectual disabilities has been relatively under-researched. This study provides a review of diverse current research that has implicitly or explicitly investigated shame processes in this population in some form. METHODS: A narrative review of the literature was undertaken. An electronic search of four databases identified 17 studies that met the eligibility criteria...
November 10, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29119672/self-compassion-and-psychological-distress-in-parents-of-young-people-and-adults-with-intellectual-and-developmental-disabilities
#13
Suzanne Robinson, Richard P Hastings, Jonathan A Weiss, Jaffni Pagavathsing, Yona Lunsky
BACKGROUND: Parenting an individual with intellectual and developmental disabilities (IDD) can be challenging, particularly during adulthood. It is important to better understand ways of supporting families as individuals with IDD age. Self-compassion is a potential internal coping resource for parents, and is strongly linked to positive mental health outcomes, though research has yet to examine it in parents of adults with IDD. METHOD: The current study examines the association between self-compassion and measures of well-being for 56 parents of adults with IDD...
November 9, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28875573/people-with-intellectual-disabilities-at-the-end-of-their-lives-the-case-for-specialist-care
#14
Rachel Forrester-Jones, Jennifer K Beecham, Magali Barnoux, David Oliver, Elyse Couch, Claire Bates
BACKGROUND: People with intellectual disabilities have a shorter life expectancy, but healthcare improvements mean that they are beginning to live longer, with associated health difficulties. This means that there is an urgent need to focus research on ageing as well as end-of-life care. This study aimed to explore a specialist intellectual disability service for older people who are dying and how it related to their quality of life and to costs associated with care provided. METHOD: Data were collected for nine residents and 15 staff members of the specialist service...
November 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28851035/challenges-in-providing-end-of-life-care-for-people-with-intellectual-disability-health-services-access
#15
Stuart Wark, Rafat Hussain, Arne Müller, Peta Ryan, Trevor Parmenter
BACKGROUND: Increasing life expectancy for people with intellectual disability is resulting in greater need for end-of-life care services. However, limited knowledge is available regarding what barriers to accessing end-of-life care support are evident, particularly comparatively across rural and metropolitan locations. METHODS: Focus group interviews were undertaken with 35 direct-care staff from four rural and two metropolitan locations. A semistructured interview guide was used, with a focus on health service access...
November 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28836319/paediatric-palliative-care-and-intellectual-disability-a-unique-context
#16
Jacqueline K Duc, Anthony Robert Herbert, Helen S Heussler
BACKGROUND: Paediatric palliative care is a nuanced area of practice with additional complexities in the context of intellectual disability. There is currently minimal research to guide clinicians working in this challenging area of care. METHOD: This study describes the complex care of children with life-limiting conditions and intellectual disability by means of a literature synthesis and commentary with "best-practice" guide. RESULTS: As few articles concerning children with intellectual disability and palliative care needs were identified by formal systematic review, our expert consensus group has drawn from the paediatric palliative, oncology and adult intellectual disability literature to highlight common clinical challenges encountered in the day-to-day care of children with intellectual disability and life-limiting conditions...
November 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28815814/supporting-end-of-life-decision-making-case-studies-of-relational-closeness-in-supported-decision-making-for-people-with-severe-or-profound-intellectual-disability
#17
Joanne Watson, Erin Wilson, Nick Hagiliassis
BACKGROUND: The United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) promotes the use of supported decision making in lieu of substitute decision making. To date, there has been a lack of focus on supported decision making for people with severe or profound intellectual disability, including for end of life decisions. METHODS: Five people with severe or profound intellectual disability's experiences of supported decision making were examined...
November 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28758356/end-of-life-and-people-with-intellectual-disability
#18
EDITORIAL
Roger J Stancliffe, Michele Y Wiese, Sue Read
No abstract text is available yet for this article.
November 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28699697/the-experiences-of-staff-who-support-people-with-intellectual-disability-on-issues-about-death-dying-and-bereavement-a-metasynthesis
#19
Ailsa J Lord, Stephen Field, Ian C Smith
BACKGROUND: Historically, people with intellectual disabilities have tended to be excluded from knowing about death, dying and bereavement. Staff in intellectual disability services can play a valuable role in improving understanding of these issues in those they support. This qualitative metasynthesis aimed to understand the experiences of staff supporting adults with intellectual disabilities with issues of death, dying and bereavement. METHOD: Thirteen papers were identified following a systematic review of six databases...
November 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28681421/communicating-about-death-and-dying-developing-training-for-staff-working-in-services-for-people-with-intellectual-disabilities
#20
Irene Tuffrey-Wijne, Tracey Rose, Robert Grant, Astrid Wijne
BACKGROUND: Many people with intellectual disabilities are affected by death, yet conversations about death are often avoided by staff working with them. This study aimed to assess staff training needs and to develop, trial and evaluate a training course on communicating about death and dying. METHOD: (i) Semi-structured interviews with 20 staff in residential/supported living services to establish training needs; (ii) three-one-day courses were attended by 114 staff and evaluated through questionnaires...
November 2017: Journal of Applied Research in Intellectual Disabilities: JARID
journal
journal
32620
1
2
Fetch more papers »
Fetching more papers... Fetching...
Read by QxMD. Sign in or create an account to discover new knowledge that matter to you.
Remove bar
Read by QxMD icon Read
×

Search Tips

Use Boolean operators: AND/OR

diabetic AND foot
diabetes OR diabetic

Exclude a word using the 'minus' sign

Virchow -triad

Use Parentheses

water AND (cup OR glass)

Add an asterisk (*) at end of a word to include word stems

Neuro* will search for Neurology, Neuroscientist, Neurological, and so on

Use quotes to search for an exact phrase

"primary prevention of cancer"
(heart or cardiac or cardio*) AND arrest -"American Heart Association"