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Journal of Applied Research in Intellectual Disabilities: JARID

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https://www.readbyqxmd.com/read/30004149/measuring-emotional-support-in-family-networks-adapting-the-family-network-method-for-individuals-with-a-mild-intellectual-disability
#1
Sanne A H Giesbers, Tess Tournier, Lex Hendriks, Richard P Hastings, Andrew Jahoda, Petri J C M Embregts
BACKGROUND: Informal supportive networks of individuals with intellectual disability have become increasingly important. The aim of this paper is to describe how the Family Network Method - Intellectual Disability (FNM-ID) offers a way to gather the perspective of people with mild intellectual disability on their family support. METHOD: The FNM is designed to explore how individuals define their family contexts, and more specifically how they perceive existing supportive relationships in these contexts...
July 13, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29998545/staff-members-and-managers-views-of-the-conditions-for-the-participation-of-adults-with-profound-intellectual-and-multiple-disabilities
#2
Lena Talman, Jenny Wilder, Jonas Stier, Christine Gustafsson
BACKGROUND: Participation is a central aspect of quality of life, and it is indicative of high-quality outcomes for people with intellectual disabilities. However, participation is difficult to achieve for adults with profound intellectual and multiple disabilities. AIM: To describe staff members' perceptions of what participation means for adults with profound intellectual and multiple disabilities. METHOD: Using a phenomenographic approach, 27 interviews were analysed resulting in variations in the conditions for participation...
July 11, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29993197/young-children-with-significant-developmental-delay-differentiate-home-observed-attachment-behaviour-towards-their-parents
#3
Sien Vandesande, Guy Bosmans, Carlo Schuengel, Bea Maes
BACKGROUND: The hallmark of attachment is that contact, proximity and relief from stress are sought from specific individuals, laying important groundwork for healthy socioemotional functioning. This study investigated the extent to which differentiated attachment behaviour can be observed in young children with significant developmental delay (DD). METHOD: Video-taped observations of the parent-child and stranger-child interaction were conducted at home and complemented with questionnaires in 20 families with a child with significant DD (age 2-7 years with an average DD of 49 months)...
July 11, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29993175/physical-activity-levels-of-children-and-adolescents-with-moderate-to-severe-intellectual-disability
#4
Marieke Wouters, Heleen M Evenhuis, Thessa I M Hilgenkamp
BACKGROUND: Regular participation of children and adolescents with intellectual disabilites in physical activity is important to maintain good health and to acquire motor skills. The aim of this study was to investigate the habitual physical activity in these children. METHODS: Sixty-eight children and adolescents (2-18 years) with a moderate-to-severe intellectual disability were included in the analyses. They wore an accelerometer on eight consecutive days. Data was analysed by use of descriptive statistics and multiple linear regression analyses...
July 11, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29993171/ghanaian-traditional-and-faith-healers-explanatory-models-of-intellectual-disability
#5
Lily Kpobi, Leslie Swartz
BACKGROUND: The use of traditional/alternative medicine for health care in Africa has been examined for various conditions. However, there is limited research about traditional/alternative health care for intellectual disability. The present authors explored the explanatory models (EMs) of intellectual disability held by traditional/faith healers in Ghana. METHODS: Using a case vignette, the present authors conducted semi-structured interviews with 36 traditional/faith healers in Accra, Ghana...
July 11, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29993166/trends-and-variations-in-per-capita-expenditure-on-adult-intellectual-disabilities-health-and-social-care-across-scotland-and-by-urban-rural-class
#6
Marian Okon, Angela Henderson, Deborah Kinnear, Sally-Ann Cooper
BACKGROUND: Following the global financial crisis in 2007/08, the UK implemented an austerity programme which may impact on services. Scotland comprises both densely populated urban conurbations and highly dispersed remote rural and island communities. METHOD: Expenditure data were extracted from Scottish Government statistics. Per capita expenditure was calculated using adjusted Scotland's 2011 census data. RESULTS: There was a 3.41% decrease in real term expenditure on adult intellectual disabilities services between 2012/13 and 2014/15 (>£32 million)...
July 11, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29992718/-put-bluntly-they-are-targeted-by-the-worst-creeps-society-has-to-offer-police-and-professionals-views-and-actions-relating-to-domestic-violence-and-women-with-intellectual-disabilities
#7
Michelle McCarthy, Claire Bates, Paraskevi Triantafyllopoulou, Siobhan Hunt, Karen Milne Skillman
BACKGROUND: Little is known about the attitudes and practices of key personnel towards the domestic violence experienced by women with intellectual disabilities. METHOD: An online survey was conducted of Police officers and health and social care professionals. A total of 717 Police and other professionals across a wide variety of UK sites responded. Research questions were focussed on direct experience, attitudes and responses. RESULTS: Approximately half of all respondents had direct experience of working with a woman with intellectual disabilities who had been through domestic violence...
July 10, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29974576/neighbourhood-social-inclusion-from-the-perspective-of-people-with-intellectual-disabilities-relevant-themes-identified-with-the-use-of-photovoice
#8
Tessa Overmars-Marx, Fleur Thomése, Herman Meininger
BACKGROUND: Earlier studies show that to gain more understanding of the concept of social inclusion, the views and experiences of people with intellectual disabilities are needed. The aim of this study was to investigate their perspective on neighbourhood social inclusion from an ecological point of view. METHOD: We carried out a photovoice study with 18 people with intellectual disabilities in three neighbourhoods in the Netherlands. Participants took photographs in their neighbourhood they considered relevant, and these photographs were discussed during an interview...
July 5, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29974586/family-and-community-in-the-lives-of-uk-bangladeshi-parents-with-intellectual-disabilities
#9
Emily Durling, Deborah Chinn, Katrina Scior
BACKGROUND: Little is known about the lives of parents with intellectual disabilities from minority ethnic communities. Previous research suggests that what it means to live with intellectual disabilities varies across cultural contexts. The current research aimed to explore how cultural values and practices impact upon the experiences of parents with intellectual disabilities within the Bangladeshi community in London, England. METHOD: Six members of the Bangladeshi community, four Bangladeshi parents with intellectual disabilities and four of their family members were interviewed...
July 4, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29963734/children-and-young-people-with-down-syndrome-their-awareness-of-down-syndrome-and-developing-self-perceptions
#10
Karen Deakin, Derek G Moore, Andrew Jahoda
BACKGROUND: Past research suggests children with Down syndrome often lack awareness of their disability despite the visibility of their condition. METHOD: This study used novel tasks to investigate their insight. Twenty-eight young people with Down syndrome (aged 8-17 years) were recruited, along with control groups of 67 typically developing young people. Three tasks explored the children's awareness of Down syndrome: (a) choice of partner for social activities, (b) sorting photographs and (c) attributing positive or negative descriptors to photographs...
July 2, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29961997/development-and-applicability-of-a-tool-for-identification-of-people-with-intellectual-disabilities-in-need-of-palliative-care-palli
#11
Cis Vrijmoeth, Michael A Echteld, Pim Assendelft, Milou Christians, Dederieke Festen, Henny van Schrojenstein Lantman-de Valk, Kris Vissers, Marieke Groot
BACKGROUND: Timely identifying people with intellectual disabilities in need of palliative care is important. Therefore, we developed PALLI: a screening tool for deteriorating health, indicative of a limited life expectancy. Here, we aimed to describe development of PALLI and to explore its applicability. METHOD: We used a five-stage mixed-methods procedure to develop PALLI based on knowledge from practice. For exploring applicability, professionals caring for people with intellectual disabilities completed PALLI for 185 people with intellectual disabilities and provided information on applicability after 5-6 months...
July 1, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29953700/violent-incidents-in-a-secure-service-for-individuals-with-learning-disabilities-incident-types-circumstances-and-staff-responses
#12
Javier Malda Castillo, Ian Smith, Lucy Morris, Guillermo Perez-Algorta
BACKGROUND: The issue of violence in secure services has long been recognized both in the UK and worldwide. However, there is currently scarce literature available about violence within learning disability (LD) secure settings. METHODS: Secondary data analysis was conducted on violent incidents, using information routinely collected by the staff over a 1-year period. RESULTS: Physical assaults were the most frequent type of incident, and the distribution in terms of days or months was homogenous and incidents were concentrated in the corridors, lounges and dining rooms of secure facilities...
June 28, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29953695/engaging-with-and-navigating-limbo-lived-experiences-of-siblings-of-adults-with-autism-spectrum-disorders
#13
Hester Noonan, Isabelle O' Donoghue, Charlotte Wilson
BACKGROUND: Supporting an adult with autism spectrum disorder (ASD) can be associated with family stress but also with personal growth and resilience. Research providing insight into how typically developing siblings make sense of their unique sibling relationships in adulthood remains limited. METHOD: Using interpretative phenomenological analysis, this study explored subjective experiences of eight siblings of adults with ASD and co-occurring intellectual disability...
June 28, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29953690/the-lifestyle-behaviours-of-young-adults-with-intellectual-disabilities-as-they-transition-from-school-to-adulthood-a-pilot-and-feasibility-study
#14
Fiona Mitchell, Gemma Stevens, Andrew Jahoda, Lynsay Matthews, Catherine Hankey, Heather Murray, Craig Melville
BACKGROUND: In the general population, the transition from adolescence to adulthood has been identified as a "high-risk" period for weight gain. There has been no research examining health behaviours over this transition in adults with intellectual disabilities. METHODS/DESIGN: The feasibility of recruitment, retention and relevant health behaviours were measured in 31 adolescents with mild-moderate intellectual disabilities. Anthropometric, objective physical activity, dietary and self-determination measures were collected over a 12-month transitional period from school to adulthood...
June 28, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29947462/beliefs-about-intellectual-disability-among-employees-at-a-state-facility-and-undergraduate-students-an-exploratory-analysis
#15
Jessica S James
BACKGROUND: Individuals with intellectual disability are subject to stigmatization, even among those providing services to them. METHOD: Employees from an intermediate care facility (n = 97) and undergraduate students (n = 92) completed measures on their attitudes, beliefs of etiological causes and endorsement of helpful treatments and supports. RESULTS: Overall, participants reported few stigmatizing attitudes and high levels of support for interventions...
June 27, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29947461/how-best-to-support-individuals-with-idd-as-they-become-frail-development-of-a-consensus-statement
#16
Hélène Ouellette-Kuntz, Lynn Martin, Eilish Burke, Philip McCallion, Mary McCarron, Eimear McGlinchey, Magnus Sandberg, Josje Schoufour, Shahin Shooshtari, Bev Temple
BACKGROUND: While higher rates and earlier onset of frailty have been reported among adults with intellectual and developmental disabilities (IDD), research on how best to support these individuals is lacking. METHOD: An international consultation relied on three consensus building methods: the Nominal Group Technique, an NIH consensus conference approach, and a Delphi survey. RESULTS: There is agreement that person-centered planning and aging in place should be guiding principles...
June 27, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29947460/health-indicators-in-intellectual-developmental-disorders-the-key-findings-of-the-pomona-esp-project
#17
Annabel Folch, Luis Salvador-Carulla, Paloma Vicens, Maria José Cortés, Marcia Irazábal, Silvia Muñoz, Lluís Rovira, Carmen Orejuela, Juan A González, Rafael Martínez-Leal
BACKGROUND: The aim of this paper was to summarize the main results of the POMONA-ESP project, the first study to explore health status in a large representative, randomized and stratified sample of people with intellectual developmental disorders in Spain. METHODS: The POMONA-ESP project collected information about the health of 953 individuals with intellectual developmental disorders. RESULTS: Diseases such as urinary incontinence, oral problems, epilepsy, constipation or obesity were highly prevalent among the participants; with gender-differentiated prevalences for certain conditions, and age and intellectual disability level as risk factors for disease...
June 27, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29947459/-having-friends-is-like-having-marshmallows-perspectives-of-transition-aged-youths-with-intellectual-and-developmental-disabilities-on-friendship
#18
Claire Hurd, Cara Evans, Rebecca Renwick
BACKGROUND: The literature emphasizes that friendships are essential to youths' successful transition to and adjustment in adulthood. Few studies have explored the friendships of transition-aged youths with intellectual and developmental disabilities (IDD), and even fewer include youths' own perspectives. This qualitative study explored the perspectives of transition-aged youths with IDD regarding their own experiences of friendship. METHOD: A subset of video-recorded data of 21 interviews with seven participants (20-24 years) was extracted from a larger study for secondary analysis...
June 27, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29947458/psychological-status-and-coping-styles-of-caregivers-of-individuals-with-intellectual-disability-and-psychiatric-illness
#19
Anuja S Panicker, Sonali Ramesh
BACKGROUND: The psychological status of caregivers of individuals with intellectual disability and psychiatric illness (PI) is important for effective management. The aim of this study was to examine the psychological status and its relationship with coping styles among these caregivers. MATERIALS & METHODS: Caregivers (N = 80) of individuals with intellectual disability (n = 40) and PI (n = 40) were administered a socio-demographic questionnaire, depression, anxiety and stress scale and COPE Inventory...
June 27, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29947457/-i-don-t-want-to-take-any-risks-even-if-it-s-gonna-mean-this-service-user-is-gonna-be-happier-a-thematic-analysis-of-community-support-staff-perspectives-on-delivering-transforming-care
#20
Adam Clifford, P J Standen, Jo Jones
BACKGROUND: Transforming Care is making mixed progress in supporting people with intellectual and developmental disabilities, and complex needs, move to more appropriate specialist accommodations closer to home. Community support staff often spend greatest amounts of time with service-users, yet are some of the least heard voices about why placements succeed and fail to varying extents. METHOD: Managers and support staff (n = 13), working in ostensibly "specialist" community placements, were interviewed about perceived barriers and facilitators to implementing Transforming Care...
June 27, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
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