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Journal of Applied Research in Intellectual Disabilities: JARID

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https://www.readbyqxmd.com/read/29152833/training-therapists-to-work-with-people-with-intellectual-disability-in-improving-access-to-psychological-therapies-iapt-services
#1
Dave Dagnan, John Masson, Richard Thwaites, Amy James, Chris Hatton
BACKGROUND: Current policy in the England suggests that people with intellectual disabilities should, where possible, access mainstream mental health services; this should include access to mainstream therapy services. It is likely that mainstream therapists will need training and support to work with people with intellectual disabilities. METHOD: Sixty-eight therapists working in an English Improving Access to Psychological Therapies (IAPT) service received one- or 2-day training on working with people with intellectual disabilities...
November 20, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29124850/the-role-of-shame-in-the-development-and-maintenance-of-psychological-distress-in-adults-with-intellectual-disabilities-a-narrative-review-and-synthesis
#2
REVIEW
Neil E Clapton, Jonathan Williams, Robert S P Jones
BACKGROUND: The role of shame in the development and maintenance of psychological distress in adults with mild-to-moderate intellectual disabilities has been relatively under-researched. This study provides a review of diverse current research that has implicitly or explicitly investigated shame processes in this population in some form. METHODS: A narrative review of the literature was undertaken. An electronic search of four databases identified 17 studies that met the eligibility criteria...
November 10, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29119672/self-compassion-and-psychological-distress-in-parents-of-young-people-and-adults-with-intellectual-and-developmental-disabilities
#3
Suzanne Robinson, Richard P Hastings, Jonathan A Weiss, Jaffni Pagavathsing, Yona Lunsky
BACKGROUND: Parenting an individual with intellectual and developmental disabilities (IDD) can be challenging, particularly during adulthood. It is important to better understand ways of supporting families as individuals with IDD age. Self-compassion is a potential internal coping resource for parents, and is strongly linked to positive mental health outcomes, though research has yet to examine it in parents of adults with IDD. METHOD: The current study examines the association between self-compassion and measures of well-being for 56 parents of adults with IDD...
November 9, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29064145/the-roles-of-adult-siblings-in-the-lives-of-people-with-severe-intellectual-and-developmental-disabilities
#4
Sarah A Hall, Zach Rossetti
BACKGROUND: Siblings of people with intellectual and developmental disabilities (IDD) often assume key roles to support their brothers and sisters. For people with more significant support needs, siblings may undertake additional roles and responsibilities throughout their lives. The purpose of the present study was to identify and describe the roles of adult siblings who have a brother or sister with severe IDD. METHOD: Seventy-nine adult siblings from 19 to 72 years of age completed an online survey with open-ended questions about the roles they play in their relationships with their brother or sister...
October 24, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29064142/parent-to-parent-support-providers-how-recruits-are-identified
#5
Robin L Dodds, George H S Singer
OBJECTIVE: To examine selection criteria for Parent-to-Parent support parents trained to provide support to other parents of children with disabilities. METHOD: Ten leaders of Parent-to-Parent programmes participated in telephone interviews to explore attributes associated with parents selected to be trained as support parents. RESULTS: Qualitative analysis reveals parents deemed "ready" to become support parents, build relationships, exhibit positivity, build capacities, have good communication skills and a future orientation and feel the need to give back...
October 24, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29052929/what-makes-generalist-mental-health-professionals-effective-when-working-with-people-with-an-intellectual-disability-a-family-member-and-support-person-perspective
#6
Janelle Weise, Karen R Fisher, Julian N Trollor
BACKGROUND: Generalist mental health professionals are inadequately equipped to meet the rights of people with intellectual disability. A better understanding of the attributes of effective professionals may assist in the development of workforce capacity in this area. METHODS: Twenty-eight family/support persons of people with intellectual disability participated in four focus groups. Thematic analysis was undertaken applying the Intellectual Disability Mental Health Core Competencies Framework...
October 20, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29044754/factors-affecting-access-to-daily-oral-and-dental-care-among-adults-with-intellectual-disabilities
#7
Darren Chadwick, Melanie Chapman, Gill Davies
BACKGROUND/PURPOSE: Accessing oral health care can be more difficult for adults with intellectual disabilities with reports of poorer levels of oral health. This investigation identifies factors influencing engagement in day-to-day oral and dental health care for adults with intellectual disabilities. METHOD: A survey, containing questions about facilitators and barriers to maintaining oral health and hygiene, was completed with adults with intellectual disabilities and their caregivers (N = 372)...
October 17, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28994488/families-experiences-of-raising-concerns-in-health-care-services-an-interpretative-phenomenological-analysis
#8
Naomi Bright, Nick Hutchinson, Peter Oakes, Dave Marsland
BACKGROUND: This exploratory study aimed to increase understanding of the experiences of families of people with intellectual disabilities when noticing and raising concerns in services. A qualitative design was employed. METHODS: Seven participants (all female) were recruited through local and national voluntary agencies; five were mothers of people with intellectual disabilities, one was the aunt and one the sister. Participants took part in semi-structured interviews centred on their experiences of noticing and raising concerns, these were recorded and transcribed...
October 10, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28984406/early-death-and-causes-of-death-of-people-with-intellectual-disabilities-a-systematic-review
#9
Lisa O'Leary, Sally-Ann Cooper, Laura Hughes-McCormack
BACKGROUND: Death of people with intellectual disabilities is considered to be earlier than for the general population. METHODS: Databases were searched for key words on intellectual disabilities and death. Strict inclusion/exclusion criteria were used. Information was extracted from selected papers, tabulated and synthesized. Prospero registration number: CRD42015020161. RESULTS: Of 19,111 retrieved articles, 27 met criteria. Death was earlier by 20 years...
October 6, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28976080/social-anxiety-and-parental-overprotection-in-young-adults-with-and-without-intellectual-disabilities
#10
Cahley Hemm, Dave Dagnan, Thomas D Meyer
OBJECTIVES: Developmental literature highlights peer relationships and parental overprotection as factors implicated in the development of social anxiety. These factors are highly prevalent in the lives of people with intellectual disabilities; however research has not examined whether these factors are associated with social anxiety for this population. METHODS: Twenty-one individuals without intellectual disabilities and 21 individuals with intellectual disabilities (aged 16-24 years) completed the Social Anxiety Scale for Adolescents with follow-up questions, the Glasgow Anxiety Scale-Intellectual disabilities and the parental overprotection subscale of the Parental Bonding Instrument with follow-up questions...
October 4, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28976060/being-a-valuable-contributor-on-the-frontline-the-self-perception-of-staff-in-group-homes-for-people-with-intellectual-disability
#11
Claire Quilliam, Christine Bigby, Jacinta Douglas
BACKGROUND: Group home frontline staff have a critical role in implementing service policies, yet research typically examines implementation issues from an organisational perspective. The aim of this study was to explore the self-perception of frontline staff about their role in group homes for people with intellectual disability. METHOD: Constructivist grounded theory methodology guided the study. Data were collected with frontline staff through semistructured interviews and participant observations...
October 4, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28976054/patterns-of-sport-participation-for-youth-with-autism-spectrum-disorder-and-intellectual-disability
#12
Stephanie Ryan, Jessica Fraser-Thomas, Jonathan A Weiss
BACKGROUND: Little is known about sport participation in youth with Autism Spectrum Disorder (ASD). The current study examined sport characteristics (frequency, diversity, positive social experiences [PSE]) for youth with ASD and intellectual disability compared to youth with intellectual disability alone and explored the personal and contextual correlates of involvement. METHOD: Parents (N = 409) completed an online survey, and multiple mediation analyses were used to examine the factors that explained the relationships between sport involvement in youth with ASD and intellectual disability...
October 4, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28960662/do-adults-with-down-syndrome-do-the-same-amount-of-physical-activity-as-adults-without-disability-a-proof-of-principle-study
#13
Nora Shields, Samantha Plant, Catherine Warren, Dennis Wollersheim, Casey Peiris
BACKGROUND: This study compared levels of physical activity completed by adults with and without Down syndrome. METHOD: Fifteen adults with and 15 adults without Down syndrome matched for age and gender, took part. The intensity and duration of physical activity were measured using RT3 accelerometers worn for seven days. RESULTS: Only, 12 participants with Down syndrome had complete physical activity data, and these participants and their matched controls (total: six females, 18 males; aged 25...
September 27, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28892239/impact-of-physical-activity-on-obesity-and-lipid-profile-of-adults-with-intellectual-disability
#14
Krystyna Gawlik, Anna Zwierzchowska, Diana Celebańska
INTRODUCTION: This study assessed overweight, obesity and lipid profiles in adults with intellectual disability and compared these metrics with their physical activity. MATERIALS AND METHOD: Basic somatic parameters, lipid profile and weekly physical activity were examined in 27 adults with moderate intellectual disability. Chi-square independence tests and Pearson's linear correlation coefficients were used. RESULTS: The participants had excess body mass, excess body fat and abdominal obesity...
September 11, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28875557/establishing-core-mental-health-workforce-attributes-for-the-effective-mental-health-care-of-people-with-an-intellectual-disability-and-co-occurring-mental-ill-health
#15
Janelle Weise, Karen R Fisher, Julian N Trollor
BACKGROUND: People with intellectual disability experience high rates of mental ill health but multiple barriers to access to quality mental health care. One significant barrier to access is a generalist mental health workforce that lacks capacity, and consensus on what constitutes core workforce competencies in this area. As such, the first step in developing a comprehensive strategy that addresses these barriers is to define the core mental health workforce attributes. METHODS: Thirty-six intellectual disability mental health experts from across Australia participated in a modified online Delphi which aimed to reach consensus on the core attributes required of the generalist mental health workforce...
September 5, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28875511/development-and-evaluation-of-a-manual-for-extended-brief-intervention-for-alcohol-misuse-for-adults-with-mild-to-moderate-intellectual-disabilities-living-in-the-community-the-ebi-ld-study-manual
#16
Christos Kouimtsidis, Katrina Scior, Gianluca Baio, Rachael Hunter, Vittoria Pezzoni, Angela Hassiotis
BACKGROUND: Extended brief interventions for alcohol misuse are effective in the general population. The process of manualising the first ever such intervention for people with mild to moderate intellectual disabilities in the UK is the focus of this study. METHODS: The manual was an adaptation of existing manuals based on Motivational Enhancement and Cognitive Behaviour Therapy and was used in a feasibility randomized controlled trial, the EBI-LD study. The sessions were recorded and scored using an adapted version of the Yale Adherence and Competence Scale (YACS II)...
September 5, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28869357/the-moderator-effect-of-commitment-on-the-relations-between-satisfaction-and-motivation-in-special-employment-centres
#17
Francisco J Pérez-Conesa, Marina Romeo, Montserrat Yepes-Baldó
BACKGROUND: Little is known about the relation between satisfaction, commitment and motivation among employees with mild intellectual disabilities. The present research analyses the moderated effect of commitment on the relation between satisfaction of employees with intellectual disabilities and their motivation. METHOD: Employees with legally recognized intellectual disabilities, following the Spanish law, answered a questionnaire. The present authors examined bivariate relations across all variables in the model...
September 4, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28869323/main-causes-of-hospitalization-in-people-with-angelman-syndrome
#18
M Felícitas Domínguez-Berjón, Ana Clara Zoni, María D Esteban-Vasallo, Juan Manuel Sendra-Gutiérrez, Jenaro Astray-Mochales
BACKGROUND: The objective was to describe the main causes of hospitalization in people with Angelman syndrome (AS). METHOD: Population-based cross-sectional study in the Community of Madrid (CM), Spain. The information source for AS cases was the information system for rare diseases in the CM. Variables related to hospitalization, for the period 2006-2014, were the following: number of episodes, outcome, main cause, length of stay and type of admission. Main causes of hospitalization were described by age group and sex...
September 4, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28875573/people-with-intellectual-disabilities-at-the-end-of-their-lives-the-case-for-specialist-care
#19
Rachel Forrester-Jones, Jennifer K Beecham, Magali Barnoux, David Oliver, Elyse Couch, Claire Bates
BACKGROUND: People with intellectual disabilities have a shorter life expectancy, but healthcare improvements mean that they are beginning to live longer, with associated health difficulties. This means that there is an urgent need to focus research on ageing as well as end-of-life care. This study aimed to explore a specialist intellectual disability service for older people who are dying and how it related to their quality of life and to costs associated with care provided. METHOD: Data were collected for nine residents and 15 staff members of the specialist service...
November 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28851035/challenges-in-providing-end-of-life-care-for-people-with-intellectual-disability-health-services-access
#20
Stuart Wark, Rafat Hussain, Arne Müller, Peta Ryan, Trevor Parmenter
BACKGROUND: Increasing life expectancy for people with intellectual disability is resulting in greater need for end-of-life care services. However, limited knowledge is available regarding what barriers to accessing end-of-life care support are evident, particularly comparatively across rural and metropolitan locations. METHODS: Focus group interviews were undertaken with 35 direct-care staff from four rural and two metropolitan locations. A semistructured interview guide was used, with a focus on health service access...
November 2017: Journal of Applied Research in Intellectual Disabilities: JARID
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