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Journal of Applied Research in Intellectual Disabilities: JARID

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https://www.readbyqxmd.com/read/28321970/the-health-and-economic-well-being-of-us-mothers-with-intellectual-impairments
#1
Robyn M Powell, Susan L Parish, Ilhom Akobirshoev
BACKGROUND: While the United States has seen increased attention by policymakers on the rights of parents with disabilities, there is limited understanding of the health and economic well-being of parents with intellectual impairments. This study compares the health and economic well-being of mothers with and without intellectual impairments. METHODS: This descriptive, exploratory study is a secondary analysis of the Fragile Families and Child Wellbeing Study. This study includes a subsample of mothers of three-year-old children (n = 1561), including mothers with intellectual impairments (n = 263) and without intellectual impairments (n = 1298)...
March 21, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28295845/intergenerational-mentoring-at-men-s-sheds-a-feasibility-study
#2
Nathan J Wilson, Reinie Cordier, Marina Ciccarelli, Judith MacCallum, Benjamin Milbourn, Sharmila Vaz, Annette Joosten, Angus Buchanan, Tomomi McAuliffe, Roger J Stancliffe
BACKGROUND: This study reports on the feasibility of an intergenerational mentoring programme for youth with intellectual disability (ID) aimed at developing skills and building networks. METHODS: Youth with ID were paired with older male mentors who were trained to support the mentees participate in activities and social interactions during weekly sessions. We interviewed the mentees and mentors, and assessed them on a range of outcomes using standardized measures...
March 13, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28247586/low-bone-mineral-density-risk-factors-and-testing-patterns-in-institutionalized-adults-with-intellectual-and-developmental-disabilities
#3
Mailee Hess, Elizabeth J Campagna, Kristin M Jensen
BACKGROUND: Adults with intellectual or developmental disability (ID/DD) have multiple risks for low bone mineral density (BMD) without formal guidelines to guide testing. We sought to identify risk factors and patterns of BMD testing among institutionalized adults with ID/DD. METHODS: We evaluated risk factors for low BMD (Z-/T-score < -1) and patterns of BMD testing among adults with ID/DD receiving care at a state-run residential facility. Kruskal-Wallis, Fisher's exact and Pearson's chi-squared tests were used as appropriate...
March 1, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28247558/feasibility-of-electronic-peer-mentoring-for-transition-age-youth-and-young-adults-with-intellectual-and-developmental-disabilities-project-teens-making-environment-and-activity-modifications
#4
Jessica M Kramer, Cathryn T Ryan, Rachel Moore, Ariel Schwartz
BACKGROUND: There is a need for mentoring interventions in which transition-age youth and young adults with intellectual and/or developmental disabilities (I/DD) participate as both mentors and mentees. Project TEAM (Teens making Environment and Activity Modifications) is a problem-solving intervention that includes an electronic peer-mentoring component. METHODS: Forty-two mentees and nine mentors with I/DD participated. The present authors analysed recorded peer-mentoring calls and field notes for mentee engagement, mentor achievement of objectives and supports needed to implement peer mentoring...
March 1, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28247532/direct-care-workers-experiences-of-grief-and-needs-for-support
#5
Jennifer A Gray, Jinsook Kim
BACKGROUND: A paucity of information is available on direct care workers' (DCWs') experiences with loss when their clients (people with intellectual and developmental disabilities [I/DD]) die. This study explored DCWs' grief experiences, their coping methods and their needs for support. METHODS: A thematic analysis approach was used to examine data from nine focus groups with 60 DCWs from five community-based organizations that provide services to people with I/DD...
March 1, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28247486/developmental-changes-in-the-cognitive-and-educational-profiles-of-children-and-adolescents-with-22q11-2-deletion-syndrome
#6
Valentina Tobia, Sophie Brigstocke, Charles Hulme, Margaret J Snowling
BACKGROUND: 22q11.2 deletion syndrome (22q11DS) is the most common microdeletion syndrome in humans. The presence of learning difficulty is reported in the majority of individuals with 22q11DS, but there is considerable heterogeneity in cognitive and educational profiles and in the age-related changes. METHOD: Verbal, non-verbal and spatial abilities, and educational attainment of 18 children and adolescents with 22q11DS were assessed at two time points 5 years apart...
March 1, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28247464/love-and-resistance-of-mothers-with-intellectual-disability-from-ethnocultural-communities-in-canada
#7
Laura Pacheco, David McConnell
BACKGROUND: Mothers with intellectual disability are thought to be passive, dependent and in need of protection. This study contributes to a nascent body of research that challenges this schema, revealing how women with intellectual disability who are mothers resist oppression. METHODS: Narrative research methods underpinned by intersectionality theory were used to explore the lives of eight mothers with intellectual disability from various ethnocultural communities in Canada...
March 1, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28224690/health-professionals-working-effectively-with-support-workers-to-enhance-the-quality-of-support-for-adults-with-intellectual-disabilities-a-meta-ethnography
#8
David Haines, Alexander Brown
BACKGROUND: Paid support workers are often central to the quality of life of adults with intellectual disabilities. Health and social care professionals increasingly carry out interventions indirectly through those support workers and therefore need to understand how best to collaborate. METHODS: This article synthesizes findings from the qualitative research of others investigating health professionals' work with support staff. From sixty-two articles retrieved from a database and journal search, seven met inclusion criteria and a meta-ethnographic synthesis allowed construction of an interpretive line-of-argument...
February 22, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28218493/improving-vision-awareness-in-autism-services-evaluation-of-a-dedicated-education-programme-for-support-practitioners
#9
Joseph J Long, Maggie Butchart, Michael Brown, Janice Bain, Anne McMillan, Thanos Karatzias
BACKGROUND: The research reported here sought to evaluate whether a dedicated education programme in vision awareness improved the knowledge and skills of autism support practitioners in identifying visual impairment in autistic people with intellectual disabilities and providing better support to those individuals identified as visually impaired. METHODS: Researchers undertook a mixed methods evaluation. A survey questionnaire was devised and administered before and after training and focus groups were undertaken in order to gain qualitative data relating how practitioners implemented their learning in practice...
February 20, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28205369/parental-psychopathology-and-expectations-for-the-futures-of-children-with-autism-spectrum-disorder
#10
Paul Andrew Thomas, Jake S King, Jenna L Mendelson, Rosemery O Nelson-Gray
BACKGROUND: The influence of parental psychopathology and parental expectations on child well-being is well documented among typically developing populations. However, to date little research has examined the relationship among these factors in families of children with autism spectrum disorder (ASD). This study examines an observed relationship between parental psychopathology and expectations in families with children with ASD in the light of research in other populations. METHOD: Twenty-four parents of children diagnosed with ASD were assessed for symptoms of psychopathology...
February 16, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28205297/underemployment-among-mothers-of-children-with-intellectual-disabilities
#11
Yueh-Ching Chou, Teppo Kröger, Cheng-Yun Pu
BACKGROUND: Mothers with lifelong care responsibilities might involuntarily be non-employed or work part-time, both of which are defined as "underemployment." This study aimed to investigate who these underemployed mothers are and what are the factors associated with such employment hardship when having a child with intellectual disability (ID). METHOD: An interview survey was conducted in 2011 in two local authorities of Taiwan on 876 working-age mothers with a child with intellectual disability; 514 of them were working part-time/non-employed and chosen as participants of this study...
February 16, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28205296/effects-of-mindfulness-based-intervention-to-improve-task-performance-for-children-with-intellectual-disabilities
#12
Jeongil Kim, Miyoung Kwon
BACKGROUND: Task performance is a critical factor for learning in individuals with intellectual disabilities. This study aimed to examine mindfulness-based intervention (MBI) to improve task performance for children with intellectual disability (ID). METHODS: Three elementary school children with ID participated in the study. A multiple baseline design across subjects was used. The intervention was consisted of "understanding the necessary concept of mindfulness, practice of awareness and attention, and practice focusing on mindful behaviours...
February 16, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28205295/validity-of-proxy-reported-height-and-weight-to-derive-body-mass-index-in-adults-participating-in-special-olympics
#13
Kristin Dobranowski, Meghann Lloyd, Pierre Côté, Robert Balogh
BACKGROUND: Overweight and obesity are common in adults with intellectual disabilities, which complicates their health. To meet their health needs, individuals with intellectual disability frequently rely on proxies to answer questions on their behalf. In the general population, the use of proxy-reported height and weight to compute body mass index (BMI) has been validated, but not among adults with intellectual disability. The objective of this study was to determine the accuracy of proxy-reported height, weight and derived BMI among adults with intellectual disability...
February 16, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28120547/the-experiences-of-high-intensity-therapists-delivering-cognitive-behavioural-therapy-to-people-with-intellectual-disabilities
#14
Hayley Marwood, Deborah Chinn, Kenneth Gannon, Katrina Scior
BACKGROUND: People with intellectual disabilities (ID) should be able to access the Improving Access to Psychological Therapies (IAPT) programme, currently a main provider of mainstream mental health services in England. IAPT offer cognitive behavioural therapy (CBT) to individuals experiencing mental health problems, although its effectiveness for people with ID, when delivered within IAPT, is unclear. METHOD: Ten high-intensity therapists took part in semi-structured interviews, analysed using thematic analysis, regarding their experiences of delivering CBT to people with ID in IAPT...
January 24, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28116851/photovoice-in-research-involving-people-with-intellectual-disabilities-a-guided-photovoice-approach-as-an-alternative
#15
Tessa Overmars-Marx, Fleur Thomése, Xavier Moonen
BACKGROUND: In studies involving people with intellectual disabilities, photovoice is increasingly used to include the voice of participants. Analysing existing literature, the present authors found that photovoice was used in various forms with different outcomes. These studies describe both obstructing and facilitating factors. The present authors designed a more standardized approach of photovoice and developed an alternative strategy: "guided photovoice." METHOD: The "guided photovoice" approach was tested on fourteen participants with intellectual disabilities...
January 24, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28116840/health-knowledge-and-the-impact-of-social-exclusion-on-young-people-with-intellectual-disabilities
#16
Jaycee Pownall, Sarah Wilson, Andrew Jahoda
BACKGROUND: Cognitive impairments are often assumed to underlie individuals' difficulties with understanding health issues. However, it was predicted that socially excluded individuals would have greater difficulty gaining understanding of sensitive topics related to sexuality than other public health messages, such as alcohol use. METHOD: The health knowledge of 31 typically developing young people, 29 young people with mild intellectual disabilities (ID) and 23 participants with physical disabilities but no cognitive impairments was compared...
January 24, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28116787/effects-of-detraining-on-anthropometry-aerobic-capacity-and-functional-ability-in-adults-with-down-syndrome
#17
P H Boer
BACKGROUND: Structured exercise has shown to improve parameters of functional fitness in adults with Down syndrome (DS). However, few, if any, continue to exercise after exercise intervention studies. Consequently, the purpose of this study was to determine the effects of detraining on anthropometry, aerobic capacity and functional ability of adults with DS. METHODS: In a previous study, forty-two participants either performed 12 weeks of interval training, continuous aerobic training or no training (CON)...
January 24, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28070932/the-experience-of-adult-children-of-mothers-with-intellectual-disability-a-qualitative-retrospective-study-from-poland
#18
Agnieszka Wołowicz-Ruszkowska, David McConnell
BACKGROUND: Little is known about the experience of growing up with a mother with intellectual disability. The aim of this study was to explore this experience from the perspective of adult children. METHOD: In-depth interviews with 23 adult children brought up by mothers with moderate-to-severe intellectual disability. The interview data were analysed using grounded theory methods. RESULTS: The childhood experiences of the interviewees and the role their mothers played in their upbringing varied, depending in part on the involvement of extended family...
January 10, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28070922/an-open-label-randomized-control-trial-of-hopping-and-jumping-training-versus-sensorimotor-rehabilitation-programme-on-postural-capacities-in-individuals-with-intellectual-disabilities
#19
Rihab Borji, Sonia Sahli, Rym Baccouch, Rabeb Laatar, Hiba Kachouri, Haithem Rebai
BACKGROUND: This study aimed to compare the effectiveness of a hopping and jumping training programme (HJP) versus a sensorimotor rehabilitation programme (SRP) on postural performances in children with intellectual disability. METHODS: Three groups of children with intellectual disability participated in the study: the HJP group, the SRP group and a control group. Postural capacities were tested with the Berg Balance Scale (BBS) and the Tinetti tests. The HJP and the SRP groups participated in the training programmes for eight weeks...
January 10, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/26647916/the-mental-health-of-british-adults-with-intellectual-impairments-living-in-general-households
#20
Chris Hatton, Eric Emerson, Janet Robertson, Susannah Baines
BACKGROUND: People with intellectual disability or borderline intellectual functioning may have poorer mental health than their peers. The present authors sought to (i) estimate the risk of poorer mental health among British adults with and without intellectual impairments and (ii) estimate the extent to which any between-group differences in mental health may reflect between-group differences in rates of exposure to common social determinants of poorer health. MATERIALS AND METHODS: The present authors undertook secondary analysis of confidentialized unit records collected in Wave 3 of Understanding Society...
January 2017: Journal of Applied Research in Intellectual Disabilities: JARID
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