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Journal of Applied Research in Intellectual Disabilities: JARID

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https://www.readbyqxmd.com/read/28401698/whoever-shouts-the-loudest-listening-to-parents-of-children-with-disabilities
#1
Christian Ryan, Elizabeth Quinlan
BACKGROUND: Elevated stress is common among parents of children with disabilities. The parents' perspective and evaluation of services have a significant impact on their well-being and adaptation to their child's disability and is a source of information for service improvements. This study explores parental perceptions of communication and collaboration between parents and health and education staff in the context of an imminent reconfiguration of disability services. METHODS: A qualitative study was conducted using four focus groups with parents (n = 24) of children with disabilities who attend various educational and health services...
April 12, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28401626/a-theory-informed-qualitative-exploration-of-social-and-environmental-determinants-of-physical-activity-and-dietary-choices-in-adolescents-with-intellectual-disabilities-in-their-final-year-of-school
#2
REVIEW
Gemma Stevens, Andrew Jahoda, Lynsay Matthews, Catherine Hankey, Craig Melville, Heather Murray, Fiona Mitchell
BACKGROUND: The prevalence of obesity is higher in those with intellectual disabilities than the general population. The aim of the study was to understand the determinants of physical activity and dietary patterns in this population during their final year of school. METHOD: Qualitative data were generated from 10 interviews with adolescents with mild-moderate intellectual disabilities. Data were analysed using deductive thematic analysis, employing Self-Determination Theory as a theoretical framework...
April 12, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28378391/physical-and-psychological-health-of-family-carers-co-residing-with-an-adult-relative-with-an-intellectual-disability
#3
Jillian M Grey, Vasiliki Totsika, Richard P Hastings
BACKGROUND: Providing long-term care to an adult relative with intellectual disability can impact negatively on caregivers' health and well-being. METHODS: Data were collected via online and postal questionnaires on 110 family carers' physical and psychological health, family stress and perceived positive gains from caring. Psychological adaptation and carers' satisfaction with available support were also examined. RESULTS: Study participants reported more health problems than general populations...
April 5, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28378405/-i-m-still-here-exploring-what-matters-to-people-with-intellectual-disability-during-advance-care-planning
#4
Nicola McKenzie, Brigit Mirfin-Veitch, Jennifer Conder, Sharon Brandford
BACKGROUND: This study sought to identify, from the perspective of people with intellectual disabilities and life limiting conditions, the factors that strengthened and inhibited their Advance Care Planning. METHODS: This in depth qualitative study explored the experiences of four people with intellectual disability and life limiting conditions, through interviews and documentation reviews. RESULTS: There was strong agreement across all participants about what positively influenced Advance Care Planning, namely; going at my pace; supporting me to make my own choices; adapting the process to suit me, and, most importantly; continuing to support and plan the life I'm still living...
April 4, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28378339/educators-evaluations-of-children-s-ideas-on-the-social-exclusion-of-classmates-with-intellectual-and-learning-disabilities
#5
Elizabeth A Nowicki, Jason D Brown, Lynn Dare
BACKGROUND: Reasons underlying the social exclusion of children with intellectual or learning disabilities are not entirely understood. Although it is important to heed the voices of children on this issue, it is also important to consider the degree to which these ideas are informed. The present authors invited educators to evaluate the content of children's ideas on the causes of social exclusion. METHOD: Educators thematically sorted and rated children's ideas on why classmates with intellectual or learning disabilities are socially excluded...
April 4, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28370737/experiences-of-going-to-court-witnesses-with-intellectual-disabilities-and-their-carers-speak-up
#6
Tessy Beckene, Rachel Forrester-Jones, Glynis H Murphy
BACKGROUND: People with intellectual disabilities are more vulnerable to sexual abuse and are more disadvantaged in the criminal justice system than the general population. However, little is known about the experiences of people with intellectual disabilities who have allegedly been victims of sexual abuse and also been witnesses in court. MATERIALS AND METHODS: This study used semi-structured interviews and a Grounded Theory approach to examine the experiences of four people with intellectual disabilities and four carers/supporters who had all attended trials...
March 31, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28345176/eye-movement-desensitisation-and-reprocessing-therapy-for-posttraumatic-stress-disorder-in-a-child-and-an-adolescent-with-mild-to-borderline-intellectual-disability-a-multiple-baseline-across-subjects-study
#7
Liesbeth Mevissen, Robert Didden, Hubert Korzilius, Ad de Jongh
BACKGROUND: This study explored the effectiveness of eye movement desensitisation and reprocessing (EMDR) therapy for post-traumatic stress disorder (PTSD) in persons with mild to borderline intellectual disability (MBID) using a multiple baseline across subjects design. METHODS: One child and one adolescent with MBID, who met diagnostic criteria for PTSD according to a PTSD clinical interview (i.e., ADIS-C PTSD section), adapted and validated for this target group, were offered four sessions of EMDR...
March 26, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28332320/interpersonal-relationships-of-older-adults-with-an-intellectual-disability-in-ireland
#8
Darren McCausland, Philip McCallion, Damien Brennan, Mary McCarron
BACKGROUND: People with intellectual disability tend to have smaller social networks than other groups, with even those living in community-based residences comparatively worse off. MATERIALS AND METHODS: Analysis of data from the Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA) (n = 701) examined measures of interpersonal relationships and interactions. Predictors of family contact and having non-resident friends were also explored...
March 23, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28332313/-with-a-touch-of-a-button-staff-perceptions-on-integrating-technology-in-an-irish-service-provider-for-people-with-intellectual-disabilities
#9
Stacy Clifford Simplican, Carolyn Shivers, June Chen, Geraldine Leader
BACKGROUND: People with intellectual disabilities continue to underutilize technology, in part due to insufficient training. Because support staff professionals provide instructional support, how they perceive integrating new technologies is important for people with intellectual disabilities. METHOD: The authors conducted a sequential mixed-methods exploratory study (quan→QUAL) including quantitative data from online surveys completed by 46 staff members and qualitative data from five focus groups attended by 39 staff members...
March 23, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28332285/early-detection-of-dementia-in-people-with-an-intellectual-disability-a-german-pilot-study
#10
Bettina Kuske, Christian Wolff, Uwe Gövert, Sandra Verena Müller
BACKGROUND: This study investigated the application of a newly developed neuropsychological assessment, the Wolfenbütteler Dementia Test for Individuals with Intellectual Disabilities (WDTIM) in combination with the Dementia Screening Questionnaire for Individuals with Intellectual Disabilities (DSQIID). METHODS: The instruments were evaluated in a prospective 2-year follow-up study. A total of 102 people with an intellectual disability were assessed at 6-month intervals...
March 23, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28332261/a-systematic-review-of-the-effectiveness-of-psychological-approaches-in-the-treatment-of-sex-offenders-with-intellectual-disabilities
#11
Emma Jones, Eddie Chaplin
BACKGROUND: Despite considerable advance and growth in the evidence base for psychological interventions as treatment for sex offenders with intellectual disabilities (ID), there remains limited evidence to support their effectiveness. This systematic review seeks to evaluate the effectiveness of psychological interventions on reducing reoffending rates for sex offenders with ID. METHODS: A search of ten electronic databases, grey literature and reference lists was conducted using PRISMA methodology...
March 23, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28332246/weight-management-in-adults-with-intellectual-and-developmental-disabilities-a-randomized-controlled-trial-of-two-dietary-approaches
#12
Lauren T Ptomey, Richard R Saunders, Muriel Saunders, Richard A Washburn, Matthew S Mayo, Debra K Sullivan, Cheryl A Gibson, Jeannine R Goetz, Jeff J Honas, Erik A Willis, Jessica C Danon, Ron Krebill, Joseph E Donnelly
BACKGROUND: The prevalence of obesity among individuals with intellectual and developmental disabilities (IDD) is equal to or greater than the general population. METHODS: Overweight/obese adults (BMI ≥25 kg/m(2) ) with mild-to-moderate intellectual and developmental disabilities were randomized to an enhanced stop light diet (eSLD = SLD + portion-controlled meals, n = 78) or a conventional diet (CD, n = 72) for an 18 months trial (6 months weight loss, 12 months maintenance)...
March 23, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28321970/the-health-and-economic-well-being-of-us-mothers-with-intellectual-impairments
#13
Robyn M Powell, Susan L Parish, Ilhom Akobirshoev
BACKGROUND: While the United States has seen increased attention by policymakers on the rights of parents with disabilities, there is limited understanding of the health and economic well-being of parents with intellectual impairments. This study compares the health and economic well-being of mothers with and without intellectual impairments. METHODS: This descriptive, exploratory study is a secondary analysis of the Fragile Families and Child Wellbeing Study. This study includes a subsample of mothers of three-year-old children (n = 1561), including mothers with intellectual impairments (n = 263) and without intellectual impairments (n = 1298)...
March 21, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28295845/intergenerational-mentoring-at-men-s-sheds-a-feasibility-study
#14
Nathan J Wilson, Reinie Cordier, Marina Ciccarelli, Judith MacCallum, Benjamin Milbourn, Sharmila Vaz, Annette Joosten, Angus Buchanan, Tomomi McAuliffe, Roger J Stancliffe
BACKGROUND: This study reports on the feasibility of an intergenerational mentoring programme for youth with intellectual disability (ID) aimed at developing skills and building networks. METHODS: Youth with ID were paired with older male mentors who were trained to support the mentees participate in activities and social interactions during weekly sessions. We interviewed the mentees and mentors, and assessed them on a range of outcomes using standardized measures...
March 13, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28247586/low-bone-mineral-density-risk-factors-and-testing-patterns-in-institutionalized-adults-with-intellectual-and-developmental-disabilities
#15
Mailee Hess, Elizabeth J Campagna, Kristin M Jensen
BACKGROUND: Adults with intellectual or developmental disability (ID/DD) have multiple risks for low bone mineral density (BMD) without formal guidelines to guide testing. We sought to identify risk factors and patterns of BMD testing among institutionalized adults with ID/DD. METHODS: We evaluated risk factors for low BMD (Z-/T-score < -1) and patterns of BMD testing among adults with ID/DD receiving care at a state-run residential facility. Kruskal-Wallis, Fisher's exact and Pearson's chi-squared tests were used as appropriate...
March 1, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28247558/feasibility-of-electronic-peer-mentoring-for-transition-age-youth-and-young-adults-with-intellectual-and-developmental-disabilities-project-teens-making-environment-and-activity-modifications
#16
Jessica M Kramer, Cathryn T Ryan, Rachel Moore, Ariel Schwartz
BACKGROUND: There is a need for mentoring interventions in which transition-age youth and young adults with intellectual and/or developmental disabilities (I/DD) participate as both mentors and mentees. Project TEAM (Teens making Environment and Activity Modifications) is a problem-solving intervention that includes an electronic peer-mentoring component. METHODS: Forty-two mentees and nine mentors with I/DD participated. The present authors analysed recorded peer-mentoring calls and field notes for mentee engagement, mentor achievement of objectives and supports needed to implement peer mentoring...
March 1, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28247532/direct-care-workers-experiences-of-grief-and-needs-for-support
#17
Jennifer A Gray, Jinsook Kim
BACKGROUND: A paucity of information is available on direct care workers' (DCWs') experiences with loss when their clients (people with intellectual and developmental disabilities [I/DD]) die. This study explored DCWs' grief experiences, their coping methods and their needs for support. METHODS: A thematic analysis approach was used to examine data from nine focus groups with 60 DCWs from five community-based organizations that provide services to people with I/DD...
March 1, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28247486/developmental-changes-in-the-cognitive-and-educational-profiles-of-children-and-adolescents-with-22q11-2-deletion-syndrome
#18
Valentina Tobia, Sophie Brigstocke, Charles Hulme, Margaret J Snowling
BACKGROUND: 22q11.2 deletion syndrome (22q11DS) is the most common microdeletion syndrome in humans. The presence of learning difficulty is reported in the majority of individuals with 22q11DS, but there is considerable heterogeneity in cognitive and educational profiles and in the age-related changes. METHOD: Verbal, non-verbal and spatial abilities, and educational attainment of 18 children and adolescents with 22q11DS were assessed at two time points 5 years apart...
March 1, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28247464/love-and-resistance-of-mothers-with-intellectual-disability-from-ethnocultural-communities-in-canada
#19
Laura Pacheco, David McConnell
BACKGROUND: Mothers with intellectual disability are thought to be passive, dependent and in need of protection. This study contributes to a nascent body of research that challenges this schema, revealing how women with intellectual disability who are mothers resist oppression. METHODS: Narrative research methods underpinned by intersectionality theory were used to explore the lives of eight mothers with intellectual disability from various ethnocultural communities in Canada...
March 1, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28224690/health-professionals-working-effectively-with-support-workers-to-enhance-the-quality-of-support-for-adults-with-intellectual-disabilities-a-meta-ethnography
#20
David Haines, Alexander Brown
BACKGROUND: Paid support workers are often central to the quality of life of adults with intellectual disabilities. Health and social care professionals increasingly carry out interventions indirectly through those support workers and therefore need to understand how best to collaborate. METHODS: This article synthesizes findings from the qualitative research of others investigating health professionals' work with support staff. From sixty-two articles retrieved from a database and journal search, seven met inclusion criteria and a meta-ethnographic synthesis allowed construction of an interpretive line-of-argument...
February 22, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
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