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Journal of Applied Research in Intellectual Disabilities: JARID

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https://www.readbyqxmd.com/read/28892239/impact-of-physical-activity-on-obesity-and-lipid-profile-of-adults-with-intellectual-disability
#1
Krystyna Gawlik, Anna Zwierzchowska, Diana Celebańska
INTRODUCTION: This study assessed overweight, obesity and lipid profiles in adults with intellectual disability and compared these metrics with their physical activity. MATERIALS AND METHOD: Basic somatic parameters, lipid profile and weekly physical activity were examined in 27 adults with moderate intellectual disability. Chi-square independence tests and Pearson's linear correlation coefficients were used. RESULTS: The participants had excess body mass, excess body fat and abdominal obesity...
September 11, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28875573/people-with-intellectual-disabilities-at-the-end-of-their-lives-the-case-for-specialist-care
#2
Rachel Forrester-Jones, Jennifer K Beecham, Magali Barnoux, David Oliver, Elyse Couch, Claire Bates
BACKGROUND: People with intellectual disabilities have a shorter life expectancy, but healthcare improvements mean that they are beginning to live longer, with associated health difficulties. This means that there is an urgent need to focus research on ageing as well as end-of-life care. This study aimed to explore a specialist intellectual disability service for older people who are dying and how it related to their quality of life and to costs associated with care provided. METHOD: Data were collected for nine residents and 15 staff members of the specialist service...
September 5, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28875557/establishing-core-mental-health-workforce-attributes-for-the-effective-mental-health-care-of-people-with-an-intellectual-disability-and-co-occurring-mental-ill-health
#3
Janelle Weise, Karen R Fisher, Julian N Trollor
BACKGROUND: People with intellectual disability experience high rates of mental ill health but multiple barriers to access to quality mental health care. One significant barrier to access is a generalist mental health workforce that lacks capacity, and consensus on what constitutes core workforce competencies in this area. As such, the first step in developing a comprehensive strategy that addresses these barriers is to define the core mental health workforce attributes. METHODS: Thirty-six intellectual disability mental health experts from across Australia participated in a modified online Delphi which aimed to reach consensus on the core attributes required of the generalist mental health workforce...
September 5, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28875511/development-and-evaluation-of-a-manual-for-extended-brief-intervention-for-alcohol-misuse-for-adults-with-mild-to-moderate-intellectual-disabilities-living-in-the-community-the-ebi-ld-study-manual
#4
Christos Kouimtsidis, Katrina Scior, Gianluca Baio, Rachael Hunter, Vittoria Pezzoni, Angela Hassiotis
BACKGROUND: Extended brief interventions for alcohol misuse are effective in the general population. The process of manualising the first ever such intervention for people with mild to moderate intellectual disabilities in the UK is the focus of this study. METHODS: The manual was an adaptation of existing manuals based on Motivational Enhancement and Cognitive Behaviour Therapy and was used in a feasibility randomized controlled trial, the EBI-LD study. The sessions were recorded and scored using an adapted version of the Yale Adherence and Competence Scale (YACS II)...
September 5, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28869357/the-moderator-effect-of-commitment-on-the-relations-between-satisfaction-and-motivation-in-special-employment-centres
#5
Francisco J Pérez-Conesa, Marina Romeo, Montserrat Yepes-Baldó
BACKGROUND: Little is known about the relation between satisfaction, commitment and motivation among employees with mild intellectual disabilities. The present research analyses the moderated effect of commitment on the relation between satisfaction of employees with intellectual disabilities and their motivation. METHOD: Employees with legally recognized intellectual disabilities, following the Spanish law, answered a questionnaire. The present authors examined bivariate relations across all variables in the model...
September 4, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28869323/main-causes-of-hospitalization-in-people-with-angelman-syndrome
#6
M Felícitas Domínguez-Berjón, Ana Clara Zoni, María D Esteban-Vasallo, Juan Manuel Sendra-Gutiérrez, Jenaro Astray-Mochales
BACKGROUND: The objective was to describe the main causes of hospitalization in people with Angelman syndrome (AS). METHOD: Population-based cross-sectional study in the Community of Madrid (CM), Spain. The information source for AS cases was the information system for rare diseases in the CM. Variables related to hospitalization, for the period 2006-2014, were the following: number of episodes, outcome, main cause, length of stay and type of admission. Main causes of hospitalization were described by age group and sex...
September 4, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28851035/challenges-in-providing-end-of-life-care-for-people-with-intellectual-disability-health-services-access
#7
Stuart Wark, Rafat Hussain, Arne Müller, Peta Ryan, Trevor Parmenter
BACKGROUND: Increasing life expectancy for people with intellectual disability is resulting in greater need for end-of-life care services. However, limited knowledge is available regarding what barriers to accessing end-of-life care support are evident, particularly comparatively across rural and metropolitan locations. METHODS: Focus group interviews were undertaken with 35 direct-care staff from four rural and two metropolitan locations. A semistructured interview guide was used, with a focus on health service access...
August 29, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28836319/paediatric-palliative-care-and-intellectual-disability-a-unique-context
#8
Jacqueline K Duc, Anthony Robert Herbert, Helen S Heussler
BACKGROUND: Paediatric palliative care is a nuanced area of practice with additional complexities in the context of intellectual disability. There is currently minimal research to guide clinicians working in this challenging area of care. METHOD: This study describes the complex care of children with life-limiting conditions and intellectual disability by means of a literature synthesis and commentary with "best-practice" guide. RESULTS: As few articles concerning children with intellectual disability and palliative care needs were identified by formal systematic review, our expert consensus group has drawn from the paediatric palliative, oncology and adult intellectual disability literature to highlight common clinical challenges encountered in the day-to-day care of children with intellectual disability and life-limiting conditions...
August 23, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28834118/the-transition-to-adulthood-of-young-adults-with-idd-parents-joint-projects
#9
Richard A Young, Sheila K Marshall, Tim Stainton, Jessie M Wall, Deirdre Curle, Ma Zhu, David Munro, John Murray, Asmae El Bouhali, Filomena Parada, Anat Zaidman-Zait
INTRODUCTION: Parents have found the transition to adulthood for their sons or daughters with intellectual and/or developmental disabilities (IDD) particularly challenging. The literature has not examined how parents work together and with others in face of this transition nor has it highlighted parental goals in this process. This study used a perspective based on joint, goal-direct action to describe the projects that Canadian parents engaged in together and with others relative to this transition...
August 23, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28834015/healthy-lifestyle-behaviours-for-people-with-intellectual-disabilities-an-exploration-of-organizational-barriers-and-enablers
#10
Lisa O'Leary, Laurence Taggart, Wendy Cousins
BACKGROUND: The health-related behaviours of people with intellectual disabilities may be determined by organisational influences. This innovative study aimed to explore managers' and staffs' perspectives on organisational influences on the promotion of healthy behaviours for this population. METHOD: A qualitative methodology was employed. Four focus groups with staff and eleven telephone interviews with managers were undertaken across three residential services in one region (Northern Ireland) of the UK...
August 23, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28834006/self-and-proxy-rated-needs-in-adults-with-mild-to-moderate-intellectual-disabilities-perspective-matters
#11
Matthias Schützwohl, Elke Voß, Hans Joachim Salize, Maja Stiawa, Bernd Puschner, Andrea Koch
BACKGROUND: Adults with an intellectual disability should be supported according to their individual needs. The perception of need, however, is influenced by the values and expectations of the judging person. METHOD: Using the Camberwell Assessment of Need for Adults with Developmental and Intellectual Disabilities, self- and proxy-rated needs of n = 193 adults with mild to moderate intellectual disability were compared. RESULTS: Mean total needs and met needs, but not unmet needs, differed significantly between perspectives...
August 23, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28833975/genetic-testing-in-intellectual-disability-psychiatry-opinions-and-practices-of-uk-child-and-intellectual-disability-psychiatrists
#12
Kate Wolfe, Kerstin Stueber, Andrew McQuillin, Fatima Jichi, Christine Patch, Frances Flinter, André Strydom, Nick Bass
BACKGROUND: An increasing number of genetic causes of intellectual disabilities (ID) are identifiable by clinical genetic testing, offering the prospect of bespoke patient management. However, little is known about the practices of psychiatrists and their views on genetic testing. METHOD: We undertook an online survey of 215 psychiatrists, who were contacted via the Royal College of Psychiatrist's Child and Adolescent and Intellectual Disability Psychiatry mailing lists...
August 23, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28833967/qualitative-evaluation-of-a-physical-activity-health-promotion-programme-for-people-with-intellectual-disabilities-in-a-group-home-setting
#13
A Dixon-Ibarra, S Driver, M Nery-Hurwit, H VanVolkenburg
BACKGROUND: There is a lack of health promotion programming designed to change the physical activity environment of the group home setting. The Menu-Choice programme assists staff in creating physical activity goals alongside residents with intellectual disabilities and provides strategies to incorporate activity into the group home schedule. The purpose of this study was to complete a process evaluation of Menu-Choice utilizing qualitative methods. METHODS: Twelve participants, who completed a 10-week pilot intervention (n = 7 staff, mean age 42; n = 5 residents, mean age 52), participated in face-to-face interviews...
August 23, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28833964/stress-in-caregivers-of-individuals-with-intellectual-or-developmental-disabilities-a-systematic-review-of-mindfulness-based-interventions
#14
REVIEW
Seán Ó Donnchadha
BACKGROUND: The efficacy of mindfulness-based interventions (MBIs) for stress and psychological distress in professional caregivers supporting individuals with intellectual or developmental disabilities (IDDs) is reviewed. METHODS: Eight studies met inclusion criteria and were systematically reviewed, including RCTs and single-group designs. RESULTS: As per Reichow, Volkmar, and Cicchetti (Journal of Autism and Developmental Disorders, 38, 2008), three studies were classified as "adequate quality" and five were classified as "weak...
August 23, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28815878/prediction-of-energy-expenditure-during-walking-in-adults-with-down-syndrome
#15
Stamatis Agiovlasitis, Goncalo V Mendonca, Jeffrey A McCubbin, Bo Fernhall
BACKGROUND: When developing walking programmes for improving health in adults with Down syndrome (DS), physical activity professionals are in need of an equation for predicting energy expenditure. We therefore developed and cross-validated an equation for predicting the rate of oxygen uptake (VO2 ; an index of energy expenditure) for adults with and without DS. METHOD: A total of 469 VO2 observations during walking across different speeds were available from 54 adults with DS and 61 adults without DS...
August 16, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28815870/how-to-facilitate-transition-to-adulthood-innovative-solutions-from-parents-of-young-adults-with-profound-intellectual-disability
#16
Camille Gauthier-Boudreault, Mélanie Couture, Frances Gallagher
BACKGROUND: At age 21, access to specialised services for youth with profound intellectual disability is reduced. Few studies have focused on parents' views concerning potential solutions to ease the transition to adulthood, and most existing solutions target young adults with less severe intellectual disability. The aim of this study is to propose realistic solutions to meet the needs of young adults with profound intellectual disability and their families during and after the transition to adulthood...
August 16, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28815814/supporting-end-of-life-decision-making-case-studies-of-relational-closeness-in-supported-decision-making-for-people-with-severe-or-profound-intellectual-disability
#17
Joanne Watson, Erin Wilson, Nick Hagiliassis
BACKGROUND: The United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) promotes the use of supported decision making in lieu of substitute decision making. To date, there has been a lack of focus on supported decision making for people with severe or profound intellectual disability, including for end of life decisions. METHODS: Five people with severe or profound intellectual disability's experiences of supported decision making were examined...
August 16, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28799696/identifying-conceptualizations-and-theories-of-change-embedded-in-interventions-to-facilitate-community-participation-for-people-with-intellectual-disability-a-scoping-review
#18
REVIEW
Christine Bigby, Sian Anderson, Nadine Cameron
BACKGROUND: Little progress has been made towards community participation of people with intellectual disability despite it being a policy aim since the 1980s. We aimed to identify the features of programmes designed to support community participation. METHOD: A scoping review was conducted of peer-reviewed literature between 2000 and 2015, about interventions to support community participation for adults with intellectual disability. RESULTS: A small body of evidence relates to the design and effectiveness of interventions to enhance community participation...
August 11, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28758356/end-of-life-and-people-with-intellectual-disability
#19
EDITORIAL
Roger J Stancliffe, Michele Y Wiese, Sue Read
No abstract text is available yet for this article.
July 31, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28758309/lifestyle-factors-and-alzheimer-s-disease-in-people-with-down-syndrome
#20
Athena V Kenshole, Deanna Gallichan, Sabine Pahl, John Clibbens
BACKGROUND: Lifestyle has previously been associated with the onset of Alzheimer's disease (AD) in the typically developing population, but research investigating this association in Down syndrome (DS) is limited. METHOD: Adults with DS and AD (n = 27) were compared to adults with DS without AD (n = 30) on physical activity, diet, weight, where participants currently lived, where participants had lived for the majority of their lives, educational attainment, occupational attainment and cognitive activity...
July 30, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
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