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Journal of Applied Research in Intellectual Disabilities: JARID

Darren Chadwick, Susan Buell, Juliet Goldbart
Communication assessment of people with profound intellectual and multiple disabilities (PIMD) has seldom been investigated. Here, we explore approaches and decision making in undertaking communication assessments in this group of people. A questionnaire was sent to UK practitioners. The questionnaire elicited information about assessment approaches used and rationales for assessment choices. Fifty-five speech and language therapists (SLTs) responded. Findings revealed that the Preverbal Communication Schedule, the Affective Communication Assessment and the Checklist of Communication Competence were the most frequently used published assessments...
November 14, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Zoe Hodges, Ruth Northway
BACKGROUND: People with intellectual disabilities are at increased risk of abuse which may not always be responded to appropriately. This study therefore sought to explore how nurses and social workers make decisions when safeguarding adults with intellectual disabilities. METHOD: A situational analysis grounded theory study. Semi-structured interviews were undertaken with social workers (n = 16) and community nurses (n = 9) working in Community Learning (Intellectual) Disability Teams in Wales...
November 8, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Sanne A H Giesbers, Lex Hendriks, Andrew Jahoda, Richard P Hastings, Petri J C M Embregts
BACKGROUND: To enhance social inclusion of people with intellectual disability, policy is aimed at increasing informal support networks. Nevertheless, staff continue to play a vital role in their support networks. METHOD: Six individuals with mild intellectual disability, living in community-based settings, were interviewed following a semi-structured format. In-depth accounts of participants' support experiences were established using Interpretative Phenomenological Analysis...
October 26, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Angela Dew, Susan Collings, Isabella Dillon Savage, Emma Gentle, Leanne Dowse
BACKGROUND: Self-determination involves autonomy, agency, choice and control. This study investigated how these aspects of self-determination relate to engaging people with intellectual disability and complex support needs in setting goals and making plans. METHOD: Body mapping was used to understand the planning experiences of 30 adults with intellectual disability and complex support needs. Each participant created two body maps using a guided group-based process...
October 24, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Janice Sandjojo, Aglaia M E E Zedlitz, Winifred A Gebhardt, Joop Hoekman, Jeanet A den Haan, Andrea W M Evers
BACKGROUND: To help people with intellectual disabilities lead a more independent life, it is important to promote their self-management. This study evaluated the effectiveness of a self-management training for people with intellectual disabilities directed at independent functioning in daily life. METHOD: In the training, 17 people with intellectual disabilities worked on personal self-management goals covering a wide range of everyday affairs. Primary outcome measures focused on goal attainment, independence and support needs...
October 23, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Laura Surley, Dave Dagnan
BACKGROUND: There is increasing evidence that cognitive behavioural therapy (CBT) can be effective for people with intellectual disabilities. The aim of this review was to report the nature and frequency of adaptations reported in studies of CBT for people with intellectual disabilities. METHOD: This review updated and extended a previous review by (Whitehouse et al. 2006, J Appl Res Intellect Disabil, 19, 55), which used a framework of adaptations developed by (Hurley et al...
October 23, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Stephania A Rodrigues, Bruno J B Fontanella, Lucimar R S de Avó, Carla M R Germano, Débora G Melo
BACKGROUND: This study investigated the psychocultural perspectives concerning family quality of life among Brazilian families with children who have severe or profound intellectual disability. METHODS: Individual in-depth semi-structured interviews conducted with 15 mothers, selected by convenience, were analysed using a categorical thematic analysis technique. The themes were examined to allow for an interpretative approach of the results. RESULTS: Mothers revealed that their children with disabilities had insufficient access to services and support related to health care, transportation and recreation...
October 23, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Marloes Heutmekers, Jenneken Naaldenberg, Sabine A Verheggen, Willem J J Assendelft, Henny M J van Schrojenstein Lantman-de Valk, Hilde Tobi, Geraline L Leusink
BACKGROUND: Little is known about the health needs of people with intellectual disabilities who access out-of-hours primary care services, raising concerns about accessibility and quality of care for this group. This study aims to identify commonly presented health problems of people with intellectual disabilities in this specific setting compared with the general population. METHOD: Cross-sectional study with routine data at two out-of-hours cooperatives with a total of 41,166 persons aged 20-65 requesting outof-hours primary care in 2014, of which 315 persons were identified as having an intellectual disability...
October 23, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Gunnel Janeslätt, Margareta Larsson, Maria Wickström, Lydia Springer, Berit Höglund
BACKGROUND: There is limited knowledge about how young people with intellectual disability can be facilitated in their process of deciding about parenthood. This study aimed to evaluate the feasibility of an upcoming trial to evaluate an intervention using the Toolkit "Children-what does it involve?" and the "Real-Care-Baby" (RCB) simulator among students with intellectual disability. METHODS: Six students with intellectual disability participated in an intervention with eight educational sessions and a 3-day caring session with the RCB simulator...
October 23, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Erin Louise Whittle, Karen Raewyn Fisher, Simone Reppermund, Julian Trollor
BACKGROUND: People with intellectual disability experience higher rates of mental health disorders than the rest of the population, and expert opinion holds that multiple barriers prevent people with intellectual disability from accessing appropriate services. METHODS: A qualitative study was designed to explore the lived experience of barriers and enablers to access to mental health services among people with intellectual disability. Interviews and focus groups were conducted with people with intellectual disability, carers and service providers...
October 10, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Sara Cortés-Amador, Juan J Carrasco, Núria Sempere-Rubio, Celedonia Igual-Camacho, Luis A Villaplana-Torres, Sofía Pérez-Alenda
BACKGROUND: Balance alterations are one of the main problems in people with intellectual disabilities (ID), increasing their risk of falls and impacting their life. AIMS: To describe a vestibular rehabilitation programme (VRP) and evaluate its effects on the ability to maintain balance and risk of suffering a fall. METHODS: Forty-seven adults with mild to moderate ID were randomly assigned to two groups: a control group (CG, N = 24), which performed a general physical exercise only, and an experimental group (EG, N = 23) which also completed a VRP...
October 10, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Gerda M de Kuijper, Pieter J Hoekstra
BACKGROUND: Results of discontinuation of antipsychotics in people with intellectual disability are variable and may depend on staff factors. METHOD: We attempted to taper off antipsychotics in 14 weeks after which participants were free to restart. We investigated the influence of support professionals' feelings towards challenging behaviour, their knowledge of psychotropic drugs and clinicians' judgements of participants' behavioural functioning on whether or not antipsychotics were completely discontinued after 16, 28 and 40 weeks...
September 28, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Katie Scott, Chris Hatton, Rosie Knight, Kevanne Singer, Dawn Knowles, Dave Dagnan, Richard P Hastings, Kim Appleton, Sally-Ann Cooper, Craig Melville, Rob Jones, Chris Williams, Andrew Jahoda
BACKGROUND: Clinicians recommend including carers or others in a supporting role in the therapy as an important adaptation of psychological therapies for people with intellectual disabilities. This nested qualitative study from a larger trial explored supporters' experiences of supporting people with intellectual disabilities receiving behavioural activation or guided self-help therapies for depression. METHOD: Twenty-one purposively sampled supporters were interviewed...
September 28, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Adrienne Perry, Meisha Charles, Busi Ncube, Jonathan Weiss
BACKGROUND: School experience is an important part of the life of children with developmental disabilities (DD) and their families. Research suggests that parents of children vary in their level of satisfaction with their child's school, but methodology and results have varied and no consistent reliable measure of school satisfaction exists. This paper presents a new brief measure of school satisfaction along with preliminary information on its psychometric properties. METHOD: Parents (n = 185) of children with moderate to severe DD completed a longer questionnaire that included the 9-item GO4KIDDS School Satisfaction Scale...
September 17, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Petri J C M Embregts, Annemarieke Negenman, Jolanda M Habraken, Marike E de Boer, Brenda J M Frederiks, Cees M P M Hertogh
BACKGROUND: Due to incompatibilities in communication, it is key that family members and support staff can take the perspective of people with moderate to profound intellectual disabilities (ID) whilst putting aside their own perspectives. METHOD: Ten vignettes describing types of restraint interventions (RIs) were presented to 20 unique pairs of support staff and family members related to individuals with moderate to profound ID. RESULTS: In taking their own perspective, more than half of the support staff and family members perceived all RIs as involuntary and severe...
September 7, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Emma M Williams, John Rose
BACKGROUND: Research exploring nonpharmacological interventions for individuals with intellectual disability and personality disorder was reviewed. This should prove valuable to services and professionals contemplating how to offer interventions for these individuals. METHOD: A systematic search of electronic databases was conducted. Articles were considered for inclusion according to criteria based on the PICOS model. The quality of the research was assessed utilizing the evaluative method for determining evidence-based practice...
September 4, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Janet Finlayson, Leyla De Amicis, Stephen Gallacher, Robin Munro, Jennifer Crockett, Jon Godwin, Wendy Feeney, Dawn A Skelton
BACKGROUND: People with intellectual disabilities are a high risk population for developing osteoporosis and fragility fractures, yet they experience barriers to accessing dual-energy x-ray absorptiometry (DXA) bone mineral density (BMD) screening and fracture assessment. Reasonable adjustments are a statutory requirement in the UK, but there is a paucity of evidence-based examples to assist their identification, implementation and evaluation. METHOD: Thirty adults with intellectual disabilities underwent DXA BMD screening and fracture risk assessment...
September 2, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Víctor B Arias, Benito Arias, G Leonard Burns, Mateu Servera
BACKGROUND: Although attention deficit hyperactivity disorder (ADHD) is considered a valid diagnosis for children with intellectual disability, no studies have evaluated the invariance of ADHD symptom ratings across children with and without intellectual disability. METHOD: Parents completed ratings on the ADHD symptoms for 189 children with intellectual disability and for 474 children without intellectual disability. Differential item functioning analysis was used to determine the equivalence of the ADHD symptoms across the two groups...
August 29, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Karen Goldrich Eskow, Jean Ann Summers
BACKGROUND: An important mechanism that provides support and services for families with a child/youth with autism spectrum disorder is the home- and community-based services (HCBS) Waiver authorized by Section 1915(c) of the Social Security Act or Medicaid. METHODS: This study used qualitative research methods to explore parent perspectives about the impact of HCBS Waiver services on the child/youth with autism and their family. In-depth interviews focused on aspects of the programme they valued, identification of barriers and general issues they experienced...
August 27, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Eva Vicente, Verónica Marina Guillén, Laura Elisabet Gómez, Alba Ibáñez, Sergio Sánchez
BACKGROUND: Advances in international studies on self-determination point out the need for continuous efforts to deepen its understanding and implications. The aim of this study is to obtain a comprehensive pool of items to operationalize the self-determination construct that serves as a starting point towards a valid instrument based on the reports of others. METHOD: We conducted a Delphi study of three rounds involving three panels of experts: ten professionals, five people with intellectual disability and six relatives of people with intellectual disability...
August 21, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
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