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Journal of Applied Research in Intellectual Disabilities: JARID

Adrienne Perry, Meisha Charles, Busi Ncube, Jonathan Weiss
BACKGROUND: School experience is an important part of the life of children with developmental disabilities (DD) and their families. Research suggests that parents of children vary in their level of satisfaction with their child's school, but methodology and results have varied and no consistent reliable measure of school satisfaction exists. This paper presents a new brief measure of school satisfaction along with preliminary information on its psychometric properties. METHOD: Parents (n = 185) of children with moderate to severe DD completed a longer questionnaire that included the 9-item GO4KIDDS School Satisfaction Scale...
September 17, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Petri J C M Embregts, Annemarieke Negenman, Jolanda M Habraken, Marike E de Boer, Brenda J M Frederiks, Cees M P M Hertogh
BACKGROUND: Due to incompatibilities in communication, it is key that family members and support staff can take the perspective of people with moderate to profound intellectual disabilities (ID) whilst putting aside their own perspectives. METHOD: Ten vignettes describing types of restraint interventions (RIs) were presented to 20 unique pairs of support staff and family members related to individuals with moderate to profound ID. RESULTS: In taking their own perspective, more than half of the support staff and family members perceived all RIs as involuntary and severe...
September 7, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Emma M Williams, John Rose
BACKGROUND: Research exploring nonpharmacological interventions for individuals with intellectual disability and personality disorder was reviewed. This should prove valuable to services and professionals contemplating how to offer interventions for these individuals. METHOD: A systematic search of electronic databases was conducted. Articles were considered for inclusion according to criteria based on the PICOS model. The quality of the research was assessed utilizing the evaluative method for determining evidence-based practice...
September 4, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Janet Finlayson, Leyla De Amicis, Stephen Gallacher, Robin Munro, Jennifer Crockett, Jon Godwin, Wendy Feeney, Dawn A Skelton
BACKGROUND: People with intellectual disabilities are a high risk population for developing osteoporosis and fragility fractures, yet they experience barriers to accessing dual-energy x-ray absorptiometry (DXA) bone mineral density (BMD) screening and fracture assessment. Reasonable adjustments are a statutory requirement in the UK, but there is a paucity of evidence-based examples to assist their identification, implementation and evaluation. METHOD: Thirty adults with intellectual disabilities underwent DXA BMD screening and fracture risk assessment...
September 2, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Víctor B Arias, Benito Arias, G Leonard Burns, Mateu Servera
BACKGROUND: Although attention deficit hyperactivity disorder (ADHD) is considered a valid diagnosis for children with intellectual disability, no studies have evaluated the invariance of ADHD symptom ratings across children with and without intellectual disability. METHOD: Parents completed ratings on the ADHD symptoms for 189 children with intellectual disability and for 474 children without intellectual disability. Differential item functioning analysis was used to determine the equivalence of the ADHD symptoms across the two groups...
August 29, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Karen Goldrich Eskow, Jean Ann Summers
BACKGROUND: An important mechanism that provides support and services for families with a child/youth with autism spectrum disorder is the home- and community-based services (HCBS) Waiver authorized by Section 1915(c) of the Social Security Act or Medicaid. METHODS: This study used qualitative research methods to explore parent perspectives about the impact of HCBS Waiver services on the child/youth with autism and their family. In-depth interviews focused on aspects of the programme they valued, identification of barriers and general issues they experienced...
August 27, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Eva Vicente, Verónica Marina Guillén, Laura Elisabet Gómez, Alba Ibáñez, Sergio Sánchez
BACKGROUND: Advances in international studies on self-determination point out the need for continuous efforts to deepen its understanding and implications. The aim of this study is to obtain a comprehensive pool of items to operationalize the self-determination construct that serves as a starting point towards a valid instrument based on the reports of others. METHOD: We conducted a Delphi study of three rounds involving three panels of experts: ten professionals, five people with intellectual disability and six relatives of people with intellectual disability...
August 21, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Xinyu Pan, Vasiliki Totsika, Gemma Nicholls, Andreas Paris
BACKGROUND: Adaptive skills measures tend to be lengthy. The GO4KIDDS (Great Outcomes for Kids Impacted by Severe Developmental Disabilities; (Journal of Applied Research in Intellectual Disabilities, 58, 2015 and 594)) Brief Adaptive Behaviour Scale was developed to provide a brief assessment of adaptive skills. Our study aimed to examine the psychometric properties of G04KIDDS Brief Adaptive Scale in a large sample of children in special education. METHODS: Teachers reported on 361 students with severe to profound intellectual disability...
August 17, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Joyce Man, Maria Kangas
BACKGROUND: Carer mental health literacy and help seeking are areas that are not well researched in the intellectual disability field. This study aimed to explore the above including service utilization experiences of Australian parents with an offspring with an intellectual disability and a comorbid psychiatric disorder. METHOD: Forty-one parents took part in an online survey assessing satisfaction and helpfulness ratings of received services. Twenty-six parents also completed items to assess mental health literacy and attitudinal barriers to help seeking...
August 13, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Chung Eun Lee, Meghan M Burke, Catherine K Arnold, Aleksa Owen
BACKGROUND: Parents often face many barriers when taking care of their offspring with disabilities. In childhood, support needs vary with families of children with Down syndrome often reporting less caregiving challenges. However, it is unclear whether support needs vary in adulthood. This study compared parents of adults with Down syndrome (DS), autism spectrum disorder (ASD) and cerebral palsy (CP) regarding support needs of their offspring with intellectual and developmental disabilities (IDD) and their families...
August 12, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
George Murray, Karen McKenzie, Aja Murray, Kathryn Whelan, Jill Cossar, Kara Murray, Jennifer Scotland
BACKGROUND: Research suggests that having relevant contextual information can help increase the accuracy of emotion recognition in typically developing (TD) individuals and adults with an intellectual disability. The impact of context on the emotion recognition of children with intellectual disability is unknown. METHOD: Emotion recognition tasks, which varied in terms of contextual information, were completed by 102 children (45 with and 57 without intellectual disability)...
July 16, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Annabel Folch, Rafael Martínez-Leal, Paloma Vicens, Marcia Irazábal, Silvia Muñoz, Luis Salvador-Carulla, Lluís Rovira, Carmen Orejuela, Maria José Cortés
BACKGROUND: People with intellectual developmental disorders have significant health disparities and a lack of proper attention to their health needs. They have been underrepresented in scientific research, and very few studies have been carried out using a representative randomized sample. The aim of this study was to describe the methods used in the POMONA-ESP project to recruit a representative and randomized sample of participants with intellectual developmental disorders. METHODS: The POMONA-ESP project is an observational cross-sectional study...
July 15, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Sanne A H Giesbers, Tess Tournier, Lex Hendriks, Richard P Hastings, Andrew Jahoda, Petri J C M Embregts
BACKGROUND: Informal supportive networks of individuals with intellectual disability have become increasingly important. The aim of this paper is to describe how the Family Network Method - Intellectual Disability (FNM-ID) offers a way to gather the perspective of people with mild intellectual disability on their family support. METHOD: The FNM is designed to explore how individuals define their family contexts, and more specifically how they perceive existing supportive relationships in these contexts...
July 13, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Lena Talman, Jenny Wilder, Jonas Stier, Christine Gustafsson
BACKGROUND: Participation is a central aspect of quality of life, and it is indicative of high-quality outcomes for people with intellectual disabilities. However, participation is difficult to achieve for adults with profound intellectual and multiple disabilities. AIM: To describe staff members' perceptions of what participation means for adults with profound intellectual and multiple disabilities. METHOD: Using a phenomenographic approach, 27 interviews were analysed resulting in variations in the conditions for participation...
July 11, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Sien Vandesande, Guy Bosmans, Carlo Schuengel, Bea Maes
BACKGROUND: The hallmark of attachment is that contact, proximity and relief from stress are sought from specific individuals, laying important groundwork for healthy socioemotional functioning. This study investigated the extent to which differentiated attachment behaviour can be observed in young children with significant developmental delay (DD). METHOD: Video-taped observations of the parent-child and stranger-child interaction were conducted at home and complemented with questionnaires in 20 families with a child with significant DD (age 2-7 years with an average DD of 49 months)...
July 11, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Marieke Wouters, Heleen M Evenhuis, Thessa I M Hilgenkamp
BACKGROUND: Regular participation of children and adolescents with intellectual disabilites in physical activity is important to maintain good health and to acquire motor skills. The aim of this study was to investigate the habitual physical activity in these children. METHODS: Sixty-eight children and adolescents (2-18 years) with a moderate-to-severe intellectual disability were included in the analyses. They wore an accelerometer on eight consecutive days. Data was analysed by use of descriptive statistics and multiple linear regression analyses...
July 11, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Lily Kpobi, Leslie Swartz
BACKGROUND: The use of traditional/alternative medicine for health care in Africa has been examined for various conditions. However, there is limited research about traditional/alternative health care for intellectual disability. The present authors explored the explanatory models (EMs) of intellectual disability held by traditional/faith healers in Ghana. METHODS: Using a case vignette, the present authors conducted semi-structured interviews with 36 traditional/faith healers in Accra, Ghana...
July 11, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Marian Okon, Angela Henderson, Deborah Kinnear, Sally-Ann Cooper
BACKGROUND: Following the global financial crisis in 2007/08, the UK implemented an austerity programme which may impact on services. Scotland comprises both densely populated urban conurbations and highly dispersed remote rural and island communities. METHOD: Expenditure data were extracted from Scottish Government statistics. Per capita expenditure was calculated using adjusted Scotland's 2011 census data. RESULTS: There was a 3.41% decrease in real term expenditure on adult intellectual disabilities services between 2012/13 and 2014/15 (>£32 million)...
July 11, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Michelle McCarthy, Claire Bates, Paraskevi Triantafyllopoulou, Siobhan Hunt, Karen Milne Skillman
BACKGROUND: Little is known about the attitudes and practices of key personnel towards the domestic violence experienced by women with intellectual disabilities. METHOD: An online survey was conducted of Police officers and health and social care professionals. A total of 717 Police and other professionals across a wide variety of UK sites responded. Research questions were focussed on direct experience, attitudes and responses. RESULTS: Approximately half of all respondents had direct experience of working with a woman with intellectual disabilities who had been through domestic violence...
July 10, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
Tessa Overmars-Marx, Fleur Thomése, Herman Meininger
BACKGROUND: Earlier studies show that to gain more understanding of the concept of social inclusion, the views and experiences of people with intellectual disabilities are needed. The aim of this study was to investigate their perspective on neighbourhood social inclusion from an ecological point of view. METHOD: We carried out a photovoice study with 18 people with intellectual disabilities in three neighbourhoods in the Netherlands. Participants took photographs in their neighbourhood they considered relevant, and these photographs were discussed during an interview...
July 5, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
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