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European Journal of Cancer Care

Annamária Szentes, Nikoletta Erős, Zoltán Kekecs, Zsuzsanna Jakab, Szabolcs Török, Dezső Schuler, Péter Hauser, Miklós Garami
Children with medulloblastoma (MB) are predisposed for negative cognitive sequela, which has been widely identified in this population. The purpose of the present study was to explore cognitive deficits and psychopathological symptoms and analyse their relation among MB survivors. The Wechsler Intelligence Scale for Children and the Mini International Neuropsychiatric Interview (MINI-KID) was administered to 34 MB survivors to measure cognitive functioning and psychopathological symptoms. The MB survivors had lower global IQ (86...
September 11, 2018: European Journal of Cancer Care
Lena Schnitzler, Sian K Smith, Heather L Shepherd, Joanne M Shaw, Skye Dong, Robin M Turner, Kristine Sørensen, Haryana M Dhillon
This study examined the content covered by radiation therapists (RTs) during education sessions; the frequency and types of questions asked by patients; and the relationship between patient characteristics and the number of questions asked. Fifty-eight education sessions were audio-recorded and transcribed verbatim. A coding scheme was developed to examine the frequency of topics covered. It comprised 16 topics under four themes: (a) treatment schedule, (b) procedural information, (c) treatment-related side effects and (d) who will be involved in treatment provision...
September 11, 2018: European Journal of Cancer Care
Diane A van der Biessen, Wendy H Oldenmenger, Peer G van der Helm, Dennis Klein, Esther Oomen-de Hoop, Ron H Mathijssen, Martijn P Lolkema, Maja J de Jonge
For advanced cancer patients deliberating early clinical trial participation, adequate information about expected effect on quality of life (HRQoL) and hope, may support decision making. The aim was to assess the potential relation of HRQoL to eligibility for phase-I trial participation, and to observe the variations in patient-reported outcomes. Patients completed questionnaires at preconsent (n = 124), baseline (n = 96), and after first evaluation of a phase-I trial (n = 76). The Mann-Whitney U test was used to test differences between eligible and ineligible patients...
September 4, 2018: European Journal of Cancer Care
Mette Senneseth, Atle Dyregrov, Stig B Matthiesen, Mariana Pereira, May A Hauken
Social support is an important predictor of the well-being of partners of cancer patients. Those who are caring for minors (well parents) may be in special need of such support. The aim of this study was to evaluate the 4-month impact of a psychoeducational social support intervention, named the Cancer-PEPSONE programme (CPP), on well parents' received and perceived social support, as well as on their psychological distress, quality of life (QOL) and parental capacity. The study was an open randomised controlled trial with a parallel-group design (N = 35; Intervention = 17, Controls = 18)...
September 4, 2018: European Journal of Cancer Care
Sietske J Tamminga, Merel de Jong, Monique H W Frings-Dresen, Angela G E M de Boer
To assess the responsiveness and interpretability of the Quality of Working Life Questionnaire for Cancer Survivors (QWLQ-CS). A cohort study was conducted in which 130 (self-)employed cancer survivors completed the QWLQ-CS at baseline and 107 at follow-up and six single-item external anchors to measure change. Cancer survivors were diagnosed between 3 months and 10 years previously. To measure responsiveness we assessed the Area Under the Curve (AUC) of Receiver Operation Characteristic (ROC). To assess interpretability we compared Minimal Important Change (MIC) to Smallest Detectable Change at group level (SDC_group)...
September 4, 2018: European Journal of Cancer Care
Maria G Cappelli, Francesca Fortunato, Silvio Tafuri, Sara Boccalini, Paolo Bonanni, Rosa Prato, Domenico Martinelli
We aimed to assess the cervical cancer burden and performance of screening programme over the last decade in Apulia, Italy. Data from Hospital Discharge, Causes of Death and of Outpatient Services registries were analysed to estimate the disease burden, and data collected by the screening information system were used to evaluate the performance of the programme. We computed annual hospitalisation, incidence and mortality rates and number of outpatient services prescriptions for the follow-up of preneoplastic/neoplastic lesions...
September 4, 2018: European Journal of Cancer Care
Leontien Jansen, Stephanie Dauphin, Marjan van den Akker, Tine De Burghgraeve, Birgitte Schoenmakers, Frank Buntinx
Despite the abundance of studies concerning caring for patients with cancer, less is known about caring for an older cancer survivor (≥65 years). We aimed to systematically gather literature about the psychosocial well-being of caregivers of older cancer survivors and to identify possible risk factors for developing psychosocial problems. Fourteen articles met the following inclusion criteria: articles about (a) cancer, (b) informal caregivers, (c) older survivors and a (d) curative setting. After critical appraisal, nearly all were considered to be of moderate-to-strong quality...
August 31, 2018: European Journal of Cancer Care
Anne-Sophie Baudry, Amélie Anota, Franck Bonnetain, Christophe Mariette, Veronique Christophe
The objective of this study was to assess the psychometric properties of the French version of the Supportive Care Needs Survey for Partners and Caregivers (SCNS-P&C-F). The SCNS-P&C-F, the Hospital Anxiety and Depression Scale (HADS) and the CareGiver Oncology Quality of Life questionnaire (CarGOQoL) were completed by 327 caregivers at the baseline. The SCNS-P&C-F was completed a second time by 121 participants within 30 days. Four factors were retained with a good explanation of variance (82...
August 31, 2018: European Journal of Cancer Care
Siwar Makhoul Khoury, Hasida Ben-Zur, Myriam Ben-Arush
The study explored the adjustment of Arab mothers of children diagnosed with cancer, as shown by the mothers' distress and quality of life. The aim was twofold: to examine the associations between educational level, psychosocial resources and adjustment indices and to assess the moderating effects of psychosocial resources on the education and adjustment association. The sample consisted of 100 Arab mothers who completed questionnaires assessing demographic and illness variables, mastery, social support, psychological distress and quality of life...
August 24, 2018: European Journal of Cancer Care
Wanbing Huang, Lijuan Zhang, Jun Yan
The aim of this study was to modify and test the Chinese version of the Revised Illness Perception Questionnaire to measure the illness perception of breast cancer-related lymphedema among breast cancer survivors. Before the investigation, identity and causal subscales were modified and the wording of the remaining scales was also adjusted. The psychometric properties of this instrument was evaluated using the technique of explore and confirmatory factor analysis. Data from 203 breast cancer survivors was entered into factor analysis...
August 24, 2018: European Journal of Cancer Care
Mariken E Stegmann, Jiska M Meijer, Janine Nuver, Klaas Havenga, Thijo J N Hiltermann, John H Maduro, Jan Schuling, Annette J Berendsen
Cancer care is complex and involves many different healthcare providers, especially during diagnosis and initial treatment, and it has been reported that both general practitioners and oncology specialists experience difficulties with interdisciplinary communication. The aim of this qualitative study was to explore information sharing between primary and secondary care for patients with lung, breast or colorectal cancer. A qualitative content analysis of 50 medical files (419 documents) was performed, which identified 70 correspondence-related items...
August 23, 2018: European Journal of Cancer Care
Victoria White, Ashley Farrelly, Meron Pitcher, David Hill
To assess the effectiveness of a purpose-built information-based website to reduce distress among young women with breast cancer. A total of 337 participants (Intervention Group [IG] n = 202; Usual Care Group [UCG] n = 177) returned the completed baseline questionnaires (T1). Details regarding accessing the website were provided to IG participants. Follow-up questionnaires were completed: (a) 3 months (T2) and (b) 6 months after baseline (T3). Outcomes included anxiety and depression (primary outcomes), quality of life (QoL) and unmet information needs...
August 23, 2018: European Journal of Cancer Care
Tobias Wagner, Matthias Augustin, Christine Blome, Andrea Forschner, Claus Garbe, Ralf Gutzmer, Axel Hauschild, Lucie Heinzerling, Elisabeth Livingstone, Carmen Loquai, Dirk Schadendorf, Patrick Terheyden, Tina Mueller-Brenne, Katharina C Kähler
We aimed to determine the prevalence and importance of fear of cancer progression (FoP) in melanoma patients with stage IA tumours to assess psychosocial and demographic factors associated with severity of FoP and to determine the relationship of FoP and quality of life (QoL). One hundred and thirty-six patients with stage IA melanoma completed the short version of the Fear of Progression Questionnaire (FoP-Q-SF), the Hospital Anxiety and Depression Scale (HADS) and the EORTC-QLQ-C30. We found a mean FoP-Q-SF sum score of 30...
August 20, 2018: European Journal of Cancer Care
Margaret M Haigh, Siddhartha Baxi, Marilyn Lyford, Shelley Cheetham, Sandra C Thompson
This paper examines the supportive care in place to meet the needs of patients receiving radiotherapy at a regional oncology service in Bunbury, Western Australia. Semi-structured in-depth interviews with 21 service providers and 17 adults diagnosed with cancer who underwent radiotherapy at the Service were recorded, transcribed and analysed thematically. Key themes relevant were co-operation and collaboration of interdisciplinary team members; support from organisations to assist with accommodation, transport, emotional support and provision of practical assistance, as well as barriers to accessing support...
August 7, 2018: European Journal of Cancer Care
Marta Tremolada, Sabrina Bonichini, Livia Taverna, Giuseppe Basso, Marta Pillon
This study was aimed at comparing adolescent and young adult (AYA) Hematopoietic Stem Cell Transplantation (HSCT) paediatric cancer survivors and a control group of healthy peers in terms of Health-Related Quality of Life (HRQOL) and frequency of posttraumatic stress symptoms (PTSS). The participants were 32 AYA HSCT survivors and 28 matched healthy peers. The survivors were, on average, 19.4 years old (SD = 3.8), with an average age of 8.1 years (SD = 4.3) at diagnosis, and with a mean time, since treatment was completed, of 8...
July 31, 2018: European Journal of Cancer Care
Salome Christen, Esther Weishaupt, Janine Vetsch, Corina S Rueegg, Luzius Mader, Silvia Dehler, Gisela Michel
Knowledge on former diagnosis, treatment and survivorship is important for adolescent and young adult cancer survivors (AYACS) to make informed healthcare decisions. We aimed to (a) describe the information AYACS reported to have received, (b) identify current information needs and survivors' preferred format of communication, and (c) examine associations between information needs and cancer-related/socio-demographic characteristics, psychological distress and health-related quality of life (HRQoL). We identified AYACS (16-25 years at diagnosis; ≥5 years since diagnosis) through the Cancer Registry Zurich and Zug...
July 27, 2018: European Journal of Cancer Care
Claire Jeans, Elizabeth C Ward, Bena Cartmill, Anne E Vertigan, Amanda E Pigott, Jodie L Nixon, Chris Wratten
Head and neck lymphoedema (HNL) is common following head and neck cancer (HNC) treatment, and may contribute to numerous physical, functional and psychological symptoms. However, its impact on swallowing, voice and speech is less well understood. The aim of this study was to use interpretive description to explore patient perceptions relating to the impact of HNL on swallowing, voice and speech. Twelve participants, >3 months post HNC treatment and experiencing some form of HNL, participated in individual, semi-structured interviews...
July 25, 2018: European Journal of Cancer Care
Conny Robbeson, Willemijn Hugenholtz-Wamsteker, Mira Meeus, Nele Devoogdt, Jo Nijs, An De Groef
Several studies support the validity and psychometric properties of the DT&PL for measuring psychosocial distress in breast cancer survivors (BCSs). However, next to psychosocial problems, it is equally important to identify distress caused by limitations in physical functioning. Validity of the DT&PL for the identification of physical problems in BCSs has not yet been investigated. Therefore, the purpose of the present study is to investigate the concurrent validity and psychometric properties of the Dutch DT&PL in BCSs for the identification of physical problems...
July 24, 2018: European Journal of Cancer Care
Semiha Akin, Canan Kas Guner
To explore the relationship between fatigue and self-efficacy, and quality of life (QoL) during chemotherapy of patients with breast, lung or gastrointestinal cancers. This study is a descriptive-correlational research. The study population comprised of patients with breast, lung and gastrointestinal cancer treated at the outpatient chemotherapy unit. Patients' self-efficacy and QoL were assessed using Functional Assessment of Chronic Illness Therapy-Fatigue scale and Strategies Used by Patients to Promote Health scale...
July 24, 2018: European Journal of Cancer Care
Michael Rost, Tenzin Wangmo, Milenko Rakic, Elaine Acheson, Johannes Rischewski, Heinz Hengartner, Thomas Kühne, Bernice S Elger
Lived experiences of childhood cancer patients and their families have been described as interrupted and as a loss of normal life. Apart from symptoms due to the cancer disease, families continuously experience burden of treatment. Since coping capacities are unique to each individual, we captured variables that offer objective measures of treatment burden, with a particular focus on the disruptive effects of treatment on families' lives. Our sample was comprised by 193 children that died of cancer. Medical records were extracted retrospectively...
July 24, 2018: European Journal of Cancer Care
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