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European Journal of Cancer Care

Tammy Corica, Christobel M Saunders, Max K Bulsara, Mandy Taylor, David J Joseph, Anna K Nowak
OBJECTIVE: TARGIT-A randomised women with early breast cancer to receive external beam radiotherapy (EBRT) or intraoperative radiotherapy (TARGIT-IORT). This study aimed to identify what extra risk of recurrence patients would accept for perceived benefits and risks of different radiotherapy treatments. METHODS: Patient preferences were determined by self-rated trade-off questionnaires in two studies: Stage (1) 209 TARGIT-A participants (TARGIT-IORTn = 108, EBRTn = 101); Stage (2) 123 non-trial patients yet to receive radiotherapy (pre-treatment group), with 85 also surveyed post-radiotherapy...
January 14, 2019: European Journal of Cancer Care
Annemarie Dencker, Scott A Murray, Bruce Mason, Bo Andreassen Rix, Per Bøge, Tine Tjørnhøj-Thomsen
OBJECTIVE: About 14% of cancer patients live with dependent children. Healthcare professionals are well placed to help patients support their children as part of a patient-centred practice. Children tend to appreciate open communication during the course of illness, but patients often find this difficult. However, research is unclear about patients' preferences and their willingness to talk with healthcare professionals about their dependent children. METHODS: We conducted 15 in-depth interviews with patients from haematological (N = 11) and gynaecological oncology (N = 4)...
January 10, 2019: European Journal of Cancer Care
Yuli Li, Yuanjing Qiao, Xiaorong Luan, Shaojie Li, Kefang Wang
Walsh's family resilience theory indicated that families could foster resilient outcomes among their members when they are facing changes or crises. However, little is known about family resilience and psychological well-being among Chinese breast cancer survivors and their caregivers. Therefore, this study aimed to examine the direct and indirect relationships between family resilience, breast cancer survivors' post-traumatic growth (PTG), quality of life (QOL), and their principal caregivers' caregiver burden...
January 10, 2019: European Journal of Cancer Care
Martina Preisler, Amy Rohrmoser, Ute Goerling, Friederike Kendel, Konrad Bär, Manuel Riemer, Silke Heuse, Anne Letsch
BACKGROUND: The supporting role of caregivers is crucial to cancer patients' care and well-being. Periods of inpatient hospital treatment are common in the cancer trajectory. There is insufficient systematic knowledge of caregivers' experiences and information needs in hospital context. AIM: Aim of this study is to identify information needs and factors contributing to unmet information needs of caregivers in hospital. DESIGN: A qualitative approach was used to identify major themes and specific types of information needs...
January 8, 2019: European Journal of Cancer Care
Jie Liu, Jing Gao, Chen-Xi Wu, Ding-Xi Bai, Xing Li, Xiao-Xiao Guo, Jing-Ya Yu, Qing-Qing Xiao, Xin-Ru Bao, Lian-Ci He, Yi-Zhu Zhong, Shi Chen
PURPOSE: The goal of our study was to evaluate the reliability, validity, responsiveness and acceptability of the Mandarin (simplified) Chinese version of the EORTC QLQ-OH45. METHODS: From October 2017 to February 2018, 393 cancer patients were enrolled from three different hospitals in China. A forward and backward translation was made to develop the Mandarin (simplified) Chinese version of EORTC QLQ-OH15. The QLQ-C30 and QLQ-OH15 questionnaires (which we have assembled and named QLQ-OH45 in this paper) were self-administered...
January 7, 2019: European Journal of Cancer Care
Olalekan Olasehinde, Olusegun I Alatise, Olukayode A Arowolo, Victoria L Mango, Olalere S Olajide, Adeleye D Omisore, Carla Boutin-Foster, Thomas P Kingham
Delayed presentation of breast cancer is a common theme in most low- and middle-income countries. This study evaluates barriers to mammography screening in two Nigerian communities with different geographic access to screening facilities. A 35 item questionnaire was administered to women, 40 years and older, 1,169 (52.6%) in Ife Central Local Government where mammography services are offered and 1,053 (47.4%) in Iwo Local Government where there are no mammography units. Information on breast cancer screening practices and barriers to mammography screening were compared between the two communities...
January 6, 2019: European Journal of Cancer Care
Andreas Ihrig, Theresa Renner, Tanja Muck, Philipp Maatz, Angelika Borkowetz, Bastian Keck, Imad Maatouk, Manfred P Wirth, Johannes Huber
A prostate cancer diagnosis affects not only the patients but also their family and friends. We performed a secondary analysis of a survey of users of the largest German online support group (OSG) for prostate cancer. We collected socio-demographic, psychological and disease-related data over a three-month period in 2013. Among 769 participants with a complete questionnaire, 686 were patients, and 83 were family members and friends of other patients. The family and friends group comprised 33% spouses, 31% children and 36% people with other relationships to the patient ("others")...
December 20, 2018: European Journal of Cancer Care
Elizabeth Palmer Kelly, Julia L Agne, Madison Hyer, Alexa Meara, Griffin Olsen, Timothy M Pawlik
INTRODUCTION: The patient-physician relationship is a critical component of patient-centred health care. The patient-oncologist relationship is particularly important due to the uncertainties that surround treatment of cancer. The goal of the current review was to summarise current methodological approaches to studying the relationship between cancer patients and oncologists. METHODS: A systematic review using PsychInfo, Ebsco, PubMed and Google Scholar was performed using combinations and variations of the MESH terms: "relationship," "doctor-patient," and "oncology...
December 18, 2018: European Journal of Cancer Care
Olufikayo O Bamidele, Helen E McGarvey, Briege M Lagan, Frank Chinegwundoh, Nasreen Ali, Eilis McCaughan
Access and recruitment barriers may have contributed to the underrepresentation of Black African/Caribbean men and their partners in current psychosocial research related to prostate cancer survivors. Whilst some studies have explored recruitment barriers and facilitators from participants' perspectives, little is known from researchers' point of view. This paper aimed to address this gap in the literature. Recruitment strategies included the following: cancer support groups, researchers' networks, media advertisement, religious organisations, National Health Service hospitals and snowball sampling...
December 12, 2018: European Journal of Cancer Care
Carla Fornaro, Maria Piubeni, Valeria Tovazzi, Deborah Cosentini, Maria Gelmi, Gabriella Rota, Barbara Berta, Wilma Barucco, Eleonora Lombardi, Luisa Moles, Tiziana Faustini, Tiziana Fettolini, Paolo Motta, Vittorio D Ferrari, Alfredo Berruti, Elisabetta Conti
Port-a-cath (PAC) system is one of the most frequently employed venous accesses for administration of chemotherapy and supportive care. To prevent late complications, the latest guidelines recommend flushing/locking procedures every four weeks. In this retrospective study, we evaluate the frequencies of late complications with a eight-week flushing/locking procedure compared to the standard one. This study retrospectively compares the frequency of complications occurred using standard versus delayed flushing schedules...
December 10, 2018: European Journal of Cancer Care
Shu-Yi Hsu, Wen-Shih Huang, Shu-Hui Lee, Tsui-Ping Chu, Yung-Chang Lin, Chang-Hsien Lu, Randal D Beaton, Sui-Whi Jane
The purpose of this study was to evaluate the longitudinal incidence, severity, pattern of changes or predictors of oxaliplatin-induced peripheral neuropathy (OXAIPN) in Taiwanese patients with colorectal cancer. A longitudinal repeated measures study design was employed, and 77 participants were recruited from the colorectal and oncology departments of two teaching medical centres in Taiwan. Physical examinations were performed, and self-reports regarding adverse impacts of OXAIPN and quality of life were obtained at five time points throughout 12 cycles of chemotherapy (C/T)...
December 10, 2018: European Journal of Cancer Care
Jacquie Kidd, Deborah Raphael, Shemana Cassim, Stella Black, Rawiri Blundell, Richard Egan
Indigenous populations around the world have a higher burden of cancer incidence, severity and mortality. This integrative review aims to identify and appraise the evidence of health providers' responses to the issue of indigenous peoples with cancer. A surprisingly small number of studies were found (n = 9) that reported on programmes and interventions for indigenous people with cancer, the majority of which were from the USA. Our review shows that a service delivery approach that is focused on the indigenous population and includes culturally appropriate activities, resources and environments resulted in an increase in cancer knowledge, reduction in treatment interruption, improved access to cancer care and enrolment in clinical cancer trials, and increased satisfaction with health care...
December 9, 2018: European Journal of Cancer Care
Michael Friedrich, Markus Zenger, Andreas Hinz
Measurements of quality of life (QoL) can be distorted by respondents adapting to new situations between measurement points and consequently having a changed frame of reference. To investigate this bias in breast cancer survivors, we compare their QoL with that of the general population and use two complementary methods for detecting this bias. Breast cancer survivors (n = 308, response rate: 91%) were tested with the QoL questionnaire European Organization for Research and Treatment of Cancer Quality of Life Questionnaire Core 30...
December 6, 2018: European Journal of Cancer Care
Meritxell Casanovas Blanco
INTRODUCTION: Recent worldwide advances in cancer therapies have resulted in an increased number of people receiving chemotherapy in ambulatory care settings. In Spain, emergency departments are the single point of entry to acute inpatient services and they play a pivotal role in the management of chemotherapy complications. Little research exists in patterns of emergency department utilisation by oncology patients with chemotherapy-related complications. However, it is important for the oncology patients and the healthcare system to gain understanding in the disease pathway and the organisational factors influencing the quality of care...
December 5, 2018: European Journal of Cancer Care
Varun Monga, Seth M Maliske, Hassan Kaleem, Sarah L Mott, Gideon K D Zamba, Mohammed Milhem
OBJECTIVE/BACKGROUND: Discussion of treatment goals between oncologists and patients is challenging. Patients frequently misunderstand goals of therapy. There are several methods to document goals of chemotherapy, however, and are frequently not incorporated into patient charts. METHODS/DESIGN: Cancer patients receiving their first cycle of chemotherapy were interviewed. Patients' recall of discussions with their oncologist regarding therapy intent was assessed and compared to documentation...
December 3, 2018: European Journal of Cancer Care
Jessica Bate, Jane Wingrove, Alexandra Donkin, Rachel Taylor, Jeremy Whelan
Multidisciplinary team meetings (MDTM) provide a regular forum for cancer teams to convene and discuss the diagnostic and treatment aspects of patient care. For some rare cancers, MDTMs may also occur at national level to pool expertise and to ensure more consistent decision-making. One such national MDTM exists in the UK for patients with a diagnosis of Ewing's sarcoma of the bone-the National Ewing's MDT (NEMDT). This study explored the patient perspective of this rare cancer national MDTM using focus group and survey methodology...
December 3, 2018: European Journal of Cancer Care
Shunping Li, Min Wang, Liu Liu, Gang Chen
Accurately measuring health state utilities is crucial for health economic evaluation. This study empirically investigated both indirect approaches (including using the latest version of five-level EQ-5D questionnaire, EQ-5D-5L and the popular SF-6D), as well as a direct approach (the time trade-off, TTO) for eliciting utilities in breast cancer patients. A valid sample of 608 breast cancer patients (48% TNM Stages III/IV) in mainland China was analysed. Mean utilities elicited from the TTO, EQ-5D-5L and SF-6D were 0...
November 30, 2018: European Journal of Cancer Care
Marian Andrei Stanciu, Caroline Morris, Matt Makin, Eila Watson, Jenna Bulger, Richard Evans, Julia Hiscock, Zoë Hoare, Rhiannon Tudor Edwards, Richard D Neal, Seow Tien Yeo, Clare Wilkinson
OBJECTIVE: The present parallel randomised control trial evaluated the feasibility of a nurse-led psycho-educational intervention aimed at improving the self-management of prostate cancer survivors. METHODS: We identified 305 eligible patients from a district general hospital, diagnosed 9-48 months previously, who completed radical treatment, or were monitored clinically (ineligible for treatment). Ninety-five patients were recruited by blinded selection and randomised to Intervention (N = 48) and Control (N = 47) groups...
November 26, 2018: European Journal of Cancer Care
Yuan Han, Ying Zhou, Jing Wang, Alix Hall, Qian Zhao, Huiying Qin, Yuying Fan, Yalan Song, Shuzhong Cui
OBJECTIVE: Psychometrically rigorous and comprehensive needs assessment measures for Chinese general cancer caregivers are relatively scarce. We described the development and psychometric evaluation of the Chinese version of the Cancer Support Person's Unmet Needs Survey-Short Form (SPUNS-SFC). METHODS: A forward-backward translation method was utilised to develop the SPUNS-SFC. The construct validity, internal consistency, convergent validity and discriminant validity of the SPUNS-SFC were evaluated...
November 25, 2018: European Journal of Cancer Care
Marie Rask, Katarina Swahnberg, Marie Oscarsson
This study aims to assess whether notification of an abnormal Pap smear result via a phone call, delivered by a trained healthcare provider, has an effect on women's HRQoL, coping and awareness of HPV. For this intervention study, women were consecutively recruited from a women's health clinic in Sweden. Women in the intervention group (n = 113) were notified of their Pap smear result via a phone call by a trained healthcare provider, while those in the comparison group (n = 122) were notified via a standard letter...
November 20, 2018: European Journal of Cancer Care
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