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Quality of Life Research

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https://www.readbyqxmd.com/read/29235059/quality-of-life-after-hip-vertebral-and-distal-forearm-fragility-fractures-measured-using-the-eq-5d-3l-eq-vas-and-time-trade-off-results-from-the-icuros
#1
Axel Svedbom, Fredrik Borgström, Emma Hernlund, Oskar Ström, Vidmantas Alekna, Maria Luisa Bianchi, Patricia Clark, Manuel Díaz Curiel, Hans Peter Dimai, Mikk Jürisson, Anneli Uusküla, Margus Lember, Riina Kallikorm, Olga Lesnyak, Eugene McCloskey, Olga Ershova, Kerrie M Sanders, Stuart Silverman, Marija Tamulaitiene, Thierry Thomas, Anna N A Tosteson, Bengt Jönsson, John A Kanis
INTRODUCTION: The International Costs and Utilities Related to Osteoporotic fractures Study is a multinational observational study set up to describe the costs and quality of life (QoL) consequences of fragility fracture. This paper aims to estimate and compare QoL after hip, vertebral, and distal forearm fracture using time-trade-off (TTO), the EuroQol (EQ) Visual Analogue Scale (EQ-VAS), and the EQ-5D-3L valued using the hypothetical UK value set. METHODS: Data were collected at four time-points for five QoL point estimates: within 2 weeks after fracture (including pre-fracture recall), and at 4, 12, and 18 months after fracture...
December 12, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/29222609/evaluating-cognition-in-individuals-with-huntington-disease-neuro-qol-cognitive-functioning-measures
#2
Jin-Shei Lai, Siera Goodnight, Nancy R Downing, Rebecca E Ready, Jane S Paulsen, Anna L Kratz, Julie C Stout, Michael K McCormack, David Cella, Christopher Ross, Jenna Russell, Noelle E Carlozzi
PURPOSE: Cognitive functioning impacts health-related quality of life (HRQOL) for individuals with Huntington disease (HD). The Neuro-QoL includes two patient-reported outcome (PRO) measures of cognition-Executive Function (EF) and General Concerns (GC). These measures have not previously been validated for use in HD. The purpose of this analysis is to evaluate the reliability and validity of the Neuro-QoL Cognitive Function measures for use in HD. METHODS: Five hundred ten individuals with prodromal or manifest HD completed the Neuro-QoL Cognition measures, two other PRO measures of HRQOL (WHODAS 2...
December 8, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/29218507/clustering-based-on-unsupervised-binary-trees-to-define-subgroups-of-cancer-patients-according-to-symptom-severity-in-cancer
#3
Pierre Michel, Zeinab Hamidou, Karine Baumstarck, Badih Ghattas, Noémie Resseguier, Olivier Chinot, Fabrice Barlesi, Sébastien Salas, Laurent Boyer, Pascal Auquier
BACKGROUND: Studies have suggested that clinicians do not feel comfortable with the interpretation of symptom severity, functional status, and quality of life (QoL). Implementation strategies of these types of measurements in clinical practice imply that consensual norms and guidelines regarding data interpretation are available. The aim of this study was to define subgroups of patients according to the levels of symptom severity using a method of interpretable clustering that uses unsupervised binary trees...
December 8, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/29214414/understanding-the-need-for-assistance-with-survey-completion-in-people-with-huntington-disease
#4
Elizabeth A Hahn, Nancy R Downing, Julie C Stout, Jane S Paulsen, Becky Ready, Siera Goodnight, Jin-Shei Lai, Jennifer A Miner, Noelle E Carlozzi
PURPOSE: In Huntington disease (HD), motor, cognitive, and psychiatric changes can have a detrimental impact on health-related quality of life (HRQOL). The purpose of this paper is to describe the extent and type of assistance needed to complete online HRQOL surveys, and the impact of assistance on HRQOL scores. METHODS: A patient-reported outcome measurement system was developed for HD-specific HRQOL. Individuals across the prodromal and diagnosed disease severity spectrum (n = 532) completed surveys by computer, and reported the amount and type of assistance they received...
December 6, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/29210015/internet-use-social-networks-loneliness-and-quality-of-life-among-adults-aged-50-and-older-mediating-and-moderating-effects
#5
Rabia Khalaila, Adi Vitman-Schorr
BACKGROUND: The increase in longevity of people on one hand, and on the other hand the fact that the social networks in later life become increasingly narrower, highlights the importance of Internet use to enhance quality of life (QoL). However, whether Internet use increases or decreases social networks, loneliness, and quality of life is not clear-cut. PURPOSES: To explore the direct and/or indirect effects of Internet use on QoL, and to examine whether ethnicity and time the elderly spent with family moderate the mediation effect of Internet use on quality of life throughout loneliness...
December 5, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/29210014/scoping-review-of-response-shift-methods-current-reporting-practices-and-recommendations
#6
REVIEW
Tolulope T Sajobi, Ronak Brahmbatt, Lisa M Lix, Bruno D Zumbo, Richard Sawatzky
BACKGROUND: Response shift (RS) has been defined as a change in the meaning of an individual's self-evaluation of his/her health status and quality of life. Several statistical model- and design-based methods have been developed to test for RS in longitudinal data. We reviewed the uptake of these methods in patient-reported outcomes (PRO) literature. METHODS: CINHAHL, EMBASE, Medline, ProQuest, PsycINFO, and Web of Science were searched to identify English-language articles about RS published until 2016...
December 5, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/29204785/quality-of-life-of-french-canadian-parents-raising-a-child-with-autism-spectrum-disorder-and-effects-of-psychosocial-factors
#7
Émilie Cappe, Nathalie Poirier, Carol Sankey, Andréa Belzil, Carmen Dionne
PURPOSE: This study aimed to investigate the quality of life of parents of a child with autism spectrum disorder in Quebec. METHODS: Seventy-seven participants completed a questionnaire with socio-biographic information and five self-assessed scales, to measure perceived stress, social support and control, coping strategies, and quality of life. RESULTS: Perception of their child's autonomy level, of the severity of the disorder, of the family's income, as well as changes in their professional or familial organization influenced parents' quality of life...
December 4, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/29204784/long-term-quality-of-life-changes-after-primary-septorhinoplasty
#8
Olcay Cem Bulut, Frank Wallner, Dare Oladokun, Claire Kayser, Michaela Plath, Eric Schulz, Peter Karl Plinkert, Ingo Baumann
PURPOSE: Health-related quality of life measurements are gaining in importance in clinical medicine. Little is known about the long-term quality of life changes after septorhinoplasty. This study was designed to analyse the long-term quality of life impacts of septorhinoplasty, using disease-specific instruments-rhinoplasty outcome evaluation (ROE) and Functional Rhinoplasty Outcome Inventory-17 (FROI-17); as well as a generic instrument-Short-Form 36 Health Survey (SF-36). METHODS: Patients completed the FROI-17, the ROE and the SF-36 preoperatively and at 12 and 60 months postoperatively...
December 4, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/29204783/the-impact-of-rehabilitative-interventions-on-quality-of-life-a-qualitative-evidence-synthesis-of-personal-experiences-of-individuals-with-amyotrophic-lateral-sclerosis
#9
REVIEW
Ammarah Y Soofi, Vanina Dal Bello-Haas, Michelle E Kho, Lori Letts
BACKGROUND: The nature of amyotrophic lateral sclerosis (ALS) is progressive and degenerative, thus influencing individuals physically, emotionally, and socially. A broad review of qualitative studies that describe the personal experiences of people with ALS with physiotherapy, occupational therapy and speech and language pathology interventions, and how those affect QoL is warranted. PURPOSE: This study synthesizes qualitative research regarding the potential that rehabilitation interventions have to maintain and/or improve QoL from the perspective of people with ALS...
December 4, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/29204782/adjusting-for-cross-cultural-differences-in-computer-adaptive-tests-of-quality-of-life
#10
C J Gibbons, S M Skevington
PURPOSE: Previous studies using the WHOQOL measures have demonstrated that the relationship between individual items and the underlying quality of life (QoL) construct may differ between cultures. If unaccounted for, these differing relationships can lead to measurement bias which, in turn, can undermine the reliability of results. METHODS: We used item response theory (IRT) to assess differential item functioning (DIF) in WHOQOL data from diverse language versions collected in UK, Zimbabwe, Russia, and India (total N = 1332)...
December 4, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/29198045/physical-and-mental-health-status-and-their-correlations-among-older-wheelchair-users-with-dementia-in-long-term-care-facilities
#11
Chu-Lin Chang, Kuei-Min Chen
PURPOSE: To investigate the physical health (daily functioning and functional fitness) and mental health (depression and behavioral dysfunction) of older wheelchair users with dementia in long-term care facilities, examine the correlations between physical and mental health, and identify the independent variables of their daily functioning. METHODS: A descriptive correlational method was adopted, which was conducted in six long-term care facilities in three cities, south Taiwan...
December 2, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/29198044/lifestyle-factors-and-social-ties-associated-with-the-frequency-of-laughter-after-the-great-east-japan-earthquake-fukushima-health-management-survey
#12
Mayumi Hirosaki, Tetsuya Ohira, Seiji Yasumura, Masaharu Maeda, Hirooki Yabe, Mayumi Harigane, Hideto Takahashi, Michio Murakami, Yuriko Suzuki, Hironori Nakano, Wen Zhang, Mayu Uemura, Masafumi Abe, Kenji Kamiya
PURPOSE: Although mental health problems such as depression after disasters have been reported, positive psychological factors after disasters have not been examined. Recently, the importance of positive affect to our health has been recognised. We therefore investigated the frequency of laughter and its related factors among residents of evacuation zones after the Great East Japan Earthquake of 2011. METHODS: In a cross-sectional study on 52,320 participants aged 20 years and older who were included in the Fukushima Health Management Survey in Japan's fiscal year 2012, associations of the frequency of laughter with changes in lifestyle after the disaster, such as a changed work situation, the number of family members, and the number of address changes, and other sociodemographic, psychological, and lifestyle factors were examined using logistic regression analysis...
December 2, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/29196842/involvement-in-care-in-pediatric-cancer-patients-implications-for-treatment-compliance-mental-health-and-health-related-quality-of-life
#13
Anat Shoshani, Yaniv Kanat-Maymon
PURPOSE: The present study developed a new measure of involvement in care of pediatric oncology patients termed the Child Involvement in Care Scale (CICS), and empirically examined the mental health consequences of involvement in care for children with cancer. METHOD: The CICS was administered to 236 children with cancer aged 8-12 who were recruited from three large hospitals in Israel. The children also completed questionnaires on their mental-health symptoms and emotional well-being...
December 1, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/29189988/predictors-of-self-reported-health-related-quality-of-life-according-to-the-eq-5d-y-in-chronically-ill-children-and-adolescents-with-asthma-diabetes-and-juvenile-arthritis-longitudinal-results
#14
Christiane Otto, Dana Barthel, Fionna Klasen, Sandra Nolte, Matthias Rose, Ann-Katrin Meyrose, Marcus Klein, Ute Thyen, Ulrike Ravens-Sieberer
PURPOSE: Health-related quality of life (HRQoL) is an important patient-reported outcome in clinical and health research. The EQ-5D-Y assesses child and adolescent HRQoL by five items on mobility, self-care, usual activities, pain/discomfort, and anxiety/depression as well as a visual analogue scale (VAS) on the current health state. This study investigates predictors of self-reported HRQoL according to the EQ-5D-Y in chronically ill children and adolescents using longitudinal data. METHODS: Data from the German Kids-CAT study on children and adolescents with asthma, diabetes, and juvenile arthritis gathered over a period of six months were analyzed (n = 310; 7-17 years old; 48% female)...
November 30, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/29188485/prospective-associations-of-social-isolation-and-loneliness-with-poor-sleep-quality-in-older-adults
#15
Bin Yu, Andrew Steptoe, Kaijun Niu, Po-Wen Ku, Li-Jung Chen
PURPOSE: There is evidence for negative associations between social isolation and loneliness and sleep quality in older adults. However, it is unclear to what extent these two factors independently affect sleep quality. This study examined the simultaneous associations of social isolation and loneliness with sleep quality in a longitudinal study of older adults. METHODS: Data were analyzed from the Social Environment and Biomarkers of Aging Study in Taiwan collected in 2000 and 2006, involving a cohort of 639 participants (mean age = 66...
November 30, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/29188484/an-evaluation-of-the-structural-validity-of-the-shoulder-pain-and-disability-index-spadi-using-the-rasch-model
#16
Christina Jerosch-Herold, Rachel Chester, Lee Shepstone, Joshua I Vincent, Joy C MacDermid
PURPOSE: The shoulder pain and disability index (SPADI) has been extensively evaluated for its psychometric properties using classical test theory (CTT). The purpose of this study was to evaluate its structural validity using Rasch model analysis. METHODS: Responses to the SPADI from 1030 patients referred for physiotherapy with shoulder pain and enrolled in a prospective cohort study were available for Rasch model analysis. Overall fit, individual person and item fit, response format, dependence, unidimensionality, targeting, reliability and differential item functioning (DIF) were examined...
November 29, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/29188483/minimal-clinically-important-differences-in-the-eortc-qlq-c30-and-brief-pain-inventory-in-patients-undergoing-re-irradiation-for-painful-bone-metastases
#17
Srinivas Raman, Keyue Ding, Edward Chow, Ralph M Meyer, Yvette M van der Linden, Daniel Roos, William F Hartsell, Peter Hoskin, Jackson S Y Wu, Abdenour Nabid, Rick Haas, Ruud Wiggenraad, Scott Babington, William F Demas, Carolyn F Wilson, Rebecca K S Wong, Liting Zhu, Michael Brundage
PURPOSE: The EORTC QLQ-C30 and the Brief Pain Inventory (BPI) are validated tools for measuring quality of life (QOL) and the impact of pain in patients with advanced cancer. Interpretation of these instrument scores can be challenging and it is difficult to know what numerical changes translate to clinically significant impact in patients' lives. To address this issue, our study sought to establish the minimal clinically important differences (MCID) for these two instruments in a prospective cohort of patients with advanced cancer and painful bone metastases...
November 29, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/29188482/the-association-of-alcohol-use-and-quality-of-life-in-depressed-and-non-depressed-individuals-a-cross-sectional-general-population-study
#18
Jonna Levola, Tuuli Pitkänen, Olli Kampman, Mauri Aalto
PURPOSE: To compare the associations of alcohol-related variables with Quality of Life (QoL) in depressed and non-depressed individuals of the general population. METHODS: This cross-sectional study utilized data from the FINRISK 2007 general population survey. A subsample (n = 4020) was invited to participate in an interview concerning alcohol use. Of them, 2215 (1028 men, 1187 women; response rate 55.1%) were included in the analyses. Bivariate associations between mean weekly alcohol consumption, frequency of binge drinking, Alcohol Use Disorders Identification Test (AUDIT)-score and QoL were analysed according to categorization into depressed and non-depressed using the Beck Depression Inventory, Short Form...
November 29, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/29188481/using-case-management-in-a-universal-health-coverage-system-to-improve-quality-of-life-of-frequent-emergency-department-users-a-randomized-controlled-trial
#19
Katia Iglesias, Stéphanie Baggio, Karine Moschetti, Jean-Blaise Wasserfallen, Olivier Hugli, Jean-Bernard Daeppen, Bernard Burnand, Patrick Bodenmann
PURPOSE: Frequent Emergency Department users are likely to experience poor quality of life (QOL). Case management interventions are efficient in responding to the complex needs of this population, but their effects on QOL have not been tested yet. Therefore, the aim of our study was to examine to what extent a case management intervention improved frequent Emergency Department users' QOL in a universal health coverage system. METHODS: Data were part of a randomized controlled trial designed to improve frequent Emergency Department users' QOL at the Lausanne University Hospital, Switzerland...
November 29, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/29177566/introduction-to-special-section-measuring-what-matters
#20
EDITORIAL
Steven I Blum, Sara Ahmed, Emuella Flood, Frans J Oort, Carolyn E Schwartz
No abstract text is available yet for this article.
November 25, 2017: Quality of Life Research
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