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Quality of Life Research

Jennifer Sánchez, Veronica Muller, Fong Chan, Jessica M Brooks, Kanako Iwanaga, Wei-Mo Tu, Emre Umucu, Mileidy Crespo-Jones
PURPOSE: To examine personal and environmental contextual factors as mediators of functional disability on quality of life (QOL) in a sample of individuals with serious mental illness (SMI). METHODS: A cross-sectional analysis of 194 individuals with SMI (major depressive disorder = 38.1%; bipolar disorder = 35.6%; schizophrenia spectrum disorder = 25.8%) recruited from four psychosocial rehabilitation clubhouses was undertaken to test a multiple regression model assuming that personal (i...
September 22, 2018: Quality of Life Research
A Kagee, B Coetzee, S Du Toit, M E Loades
PURPOSE: Minimal research has been conducted to understand how fatigue influences quality of life (QOL) among adolescents living with HIV. The purpose of the study was to examine the relationship between fatigue, sleep disturbance, depression, anxiety, pain and QOL among adolescents receiving antiretroviral therapy (ART). METHODS: Using a cross-sectional survey design, we studied 134 South African adolescents receiving an ART at community clinics. RESULTS: Participants in general reported low levels of fatigue, insomnia, distress and pain and non-problematic levels of QOL...
September 22, 2018: Quality of Life Research
Josianne Scerri, Therese Saliba, George Saliba, Christian A Scerri, Liberato Camilleri
PURPOSE: To examine the illness perceptions of informal carers of persons with depression, using the theoretical framework of Leventhal's Common-Sense Model (CSM) and to determine whether these illness perceptions are predictors of anxiety and depression, as measures of psychological well-being. METHODS: A cross-sectional survey was conducted with 94 Maltese individuals caring for a person with depression within a community setting. The informal carers completed the modified Illness Perception Questionnaire (IPQS-Relatives version) and the Hospital Anxiety and Depression Scale (HADS)...
September 22, 2018: Quality of Life Research
Leonardo Pellicciari, Marcella Ottonello, Andrea Giordano, Caterina Albensi, Franco Franchignoni
BACKGROUND: In multiple sclerosis (MS), the impact of spasticity on the patient's life is a key issue, and it is fundamental that existing tools measuring the patient's perspective undergo psychometric analysis and refinement to optimize confidence in their use in clinical practice and research. OBJECTIVE: We examined-by Rasch analysis (RA)-the main metric characteristics of the 88-item Multiple Sclerosis Spasticity Scale (MSSS-88) to: (i) further validate its Italian version (MSSS-88-IT), previously validated through classical test theory methods only and (ii) independently verify the measurement properties of the original scale...
September 20, 2018: Quality of Life Research
B Copsey, J Y Thompson, K Vadher, U Ali, S J Dutton, R Fitzpatrick, S E Lamb, J A Cook
PURPOSE: The Western Ontario and McMaster Universities Arthritis Index (WOMAC) is a commonly used outcome measure for osteoarthritis. There are different versions of the WOMAC (Likert, visual analogue or numeric scales). A previous review of trials published before 2010 found poor reporting and inconsistency in how the WOMAC was used. This review explores whether these problems persist. METHODS: This systematic review included randomised trials of hip and/or knee osteoarthritis published in 2016 that used the WOMAC...
September 18, 2018: Quality of Life Research
Jennifer E Flythe, Adeline Dorough, Julia H Narendra, Rebecca L Wingard, Lorien S Dalrymple, Darren A DeWalt
PURPOSE: To describe the process and preliminary qualitative development of a new symptom-based patient-reported outcome measure (PROM) intended to assess hemodialysis treatment-related physical symptoms. METHODS: Experienced interviewers conducted concept elicitation and cognitive debriefing interviews with individuals receiving in-center hemodialysis in the United States. Concept elicitation interviews involved eliciting spontaneous reports of symptom experiences and probing to further explore and confirm concepts...
September 18, 2018: Quality of Life Research
Fanni Rencz, Peter L Lakatos, László Gulácsi, Valentin Brodszky, Zsuzsanna Kürti, Szilvia Lovas, János Banai, László Herszényi, Tamás Cserni, Tamás Molnár, Márta Péntek, Károly Palatka
PURPOSE: The EuroQol five-dimension questionnaire (EQ-5D) is the most commonly used instrument to obtain utility values for cost-effectiveness analyses of treatments for Crohn's disease (CD). We aimed to compare the measurement properties of the two adult versions of EQ-5D (EQ-5D-3L and EQ-5D-5L) in patients with CD. METHODS: Between 2016 and 2017, a multicentre cross-sectional survey was carried out. Consecutive outpatients with CD completed the 3L, 5L and EQ visual analogue scale (VAS)...
September 17, 2018: Quality of Life Research
A M Buchanan-Hughes, M Buti, K Hanman, B Langford, M Wright, L A Eddowes
PURPOSE: Chronic hepatitis C infection and its treatment can considerably affect patients' health-related quality-of-life (HRQoL). This study aimed to identify and summarise the current evidence base for health state utility values (HSUVs) in patients with chronic hepatitis C infection, generated using the EuroQol 5-dimensions (EQ-5D) questionnaire. METHODS: MEDLINE, Embase, the Cochrane Library and EconLit were searched from database inception through 31 August 2017...
September 17, 2018: Quality of Life Research
Maria Landén Ludvigsson, Gunnel Peterson, Anneli Peolsson
PURPOSE: The aim was to evaluate whether neck-specific exercise, with (NSEB) or without (NSE) a behavioural approach, improves health-related quality of life (HRQoL) compared to physical activity prescription (PPA) in chronic whiplash-associated disorders (WAD) grades 2 and 3. A secondary aim was to identify factors associated with HRQoL and HRQoL improvement following exercise interventions. METHODS: This is a secondary analysis of a multicentre randomized clinical trial...
September 17, 2018: Quality of Life Research
Katherine B Curtin, Yao I Cheng, Jichuan Wang, Rachel K Scott, Leah Squires, Debra A Benator, Maureen E Lyon
PURPOSE: Physicians and caregivers rate patient quality of life (QOL) lower than patients rate their own QOL. This study investigated discrepancies between self-assessments of patient QOL by adults with HIV and their surrogate decision-makers. METHODS: We collected baseline data from 223 adult dyads in the FAmily-CEntered (FACE) Advance Care Planning (ACP) clinical trial, consisting of HIV positive patients and their chosen surrogates. Participants independently completed the Medical Outcome Study-HIV Survey (MOS-HIV) and the Palliative care Outcome Scale (POS)...
September 15, 2018: Quality of Life Research
Shalvaree Vaidya, Stefan Boes
In the original publication of the article, the co-author name "Stefan Boes" has been mistakenly missed out. This has been updated in this correction.
September 14, 2018: Quality of Life Research
M Ward, C A McGarrigle, R A Kenny
PURPOSE: To test whether ill-health is associated with a decrease in quality of life (QoL) over time and if positive social circumstances are beneficial to QoL, using the shorter form CASP-12 in a sample drawn from a nationally representative cohort of older adults. To do so, the association between factors from a number of life domains and QoL was investigated. METHODS: Data were from the first three waves of The Irish Longitudinal Study on Ageing, a prospective nationally representative study of community dwelling older adults in the Republic of Ireland...
September 12, 2018: Quality of Life Research
Wenjing Huang, Adam J Rose, Elizabeth Bayliss, Lesley Baseman, Emily Butcher, Rosa-Elena Garcia, Maria Orlando Edelen
PURPOSE: The patient-reported outcomes measurement information system 29-item profile (PROMIS-29 v2.0) is a widely used health-related quality of life (HRQoL) measure. Summary scores for physical and mental HRQoL have recently been developed for the PROMIS-29 using a general population. Our purpose was to adapt these summary scores to a population of older adults with multiple chronic conditions. METHODS: We collected the PROMIS-29 v2.0 for 1359 primary care patients age 65+ with at least 2 of 13 chronic conditions...
September 12, 2018: Quality of Life Research
Farideh Quick, Sakineh Mohammad-Alizadeh-Charandabi, Mojgan Mirghafourvand
PURPOSE: The majority of studies on quality of life (QoL) of women with menstrual disturbances have not taken menstrual cycle phase into account. We aimed to determine the size of changes in QoL score during perimenstrual week compared to those during late follicular phase in women suffering from dysmenorrhea with or without premenstrual syndrome (PMS) and also to compare the two groups. METHODS: In this observational analytical study, participants were selected purposively from among single students aged 18-30 years, who were residing at university dormitories in Tabriz, Iran, and had moderate or severe dysmenorrhea...
September 12, 2018: Quality of Life Research
Yunxiang Huang, Dan Luo, Xi Chen, Dexing Zhang, Min Wang, Yangyang Qiu, Ying Liu, Bihua Peng, Lu Niu, Shuiyuan Xiao
PURPOSE: This study aimed to investigate changes in health-related quality of life (HRQoL) among people newly diagnosed with HIV and to identify factors associated with HRQoL. METHODS: Newly diagnosed HIV-positive individuals were consecutively recruited and assessed at baseline and 1-year follow-up after diagnosis. HRQoL was measured through the physical health summary score (PHS) and mental health summary score (MHS) derived from the Medical Outcomes Study HIV Health Survey...
September 11, 2018: Quality of Life Research
Sara Higueras-Fresnillo, Verónica Cabanas-Sánchez, Esther García-Esquinas, Fernando Rodríguez-Artalejo, David Martinez-Gomez
PURPOSE: To examine the separate and joint associations of physical activity and levels of physical, mental, and social health with long-term all-cause and cardiovascular disease (CVD) mortality in older adults. METHODS: A cohort of 4008 individuals representative of the non-institutionalized population of Spain aged 60 years and older was analyzed. Information on physical activity was self-reported. Physical and mental health were assessed with the SF-36 questionnaire, and social health with a 4-item score on network structure and social engagement...
September 11, 2018: Quality of Life Research
Yi Xiao, Xiaoyan Huang, Danrong Jing, Yuzhou Huang, Xingyu Zhang, Zhihao Shu, Zhijun Huang, Juan Su, Jie Li, Jianglin Zhang, Mingliang Chen, Xiang Chen, Minxue Shen
PURPOSE: The psychometric property of the Dermatology Life Quality Index (DLQI) is underappreciated in public health settings. Our study aimed to assess the reliability, validity, and measurement invariance of DLQI in a homogeneous population with arsenic-related skin lesions and symptoms. METHODS: A cross-sectional study was conducted in communities under lifetime arsenic exposure. The DLQI was measured through a face-to-face interview. Skin examinations were performed by certificated dermatologists...
September 10, 2018: Quality of Life Research
C B Terwee, M H P Crins, M Boers, H C W de Vet, L D Roorda
BACKGROUND: The Patient-Reported Outcomes Measurement Information System (PROMIS) item banks 'Ability to Participate in Social Roles and Activities' (35 items) and 'Satisfaction with Social Roles and Activities' (44 items) were developed to measure (satisfaction with) participation more efficiently and precisely than current instruments, by using Computerized Adaptive Testing (CAT). We validated these item banks in a Dutch general population. METHODS: Participants in an internet panel completed both item banks...
September 10, 2018: Quality of Life Research
Hairil Rizal Abdullah, Niresh Ranjakunalan, William Yeo, Mann Hong Tan, Ruban Poopalalingam, Yilin Eileen Sim
PURPOSE: Preoperative anaemia affects up to one-third of patients undergoing total knee arthroplasty (TKA) and is associated with increased blood transfusion and prolonged hospitalisation. Prior studies have associated preoperative anaemia with poorer functional recovery after total hip arthroplasty. However, the association between preoperative anaemia and functional outcomes following TKA is unknown. We aim to determine whether preoperative anaemia and perioperative blood transfusion affect health-related quality of life (HRQoL) and functional outcomes following TKA...
September 10, 2018: Quality of Life Research
Mimmi Åström, Carina Persson, Margareta Lindén-Boström, Ola Rolfson, Kristina Burström
PURPOSE: The EQ-5D-Y-3L is a generic health-related quality of life (HRQoL) measure developed for youth from 8 years old. The aim of this study is to present population health status, based on the EQ-5D-Y-3L, among adolescents in Sweden, by sex, age, self-reported comorbidity and parents' occupational status. METHODS: Data were obtained from a cross-sectional total survey among students, aged 13-18 years, in a Swedish County year 2014. The survey included EQ-5D-Y-3L, questions regarding self-reported health, disease, functional impairment and mental distress...
September 8, 2018: Quality of Life Research
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