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Quality of Life Research

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https://www.readbyqxmd.com/read/28634676/evaluation-of-the-psychometric-properties-of-the-eortc-chemotherapy-induced-peripheral-neuropathy-questionnaire-qlq-cipn20
#1
Jacobien M Kieffer, Tjeerd J Postma, Lonneke van de Poll-Franse, Floortje Mols, Jan J Heimans, Guido Cavaletti, Neil K Aaronson
PURPOSE: To investigate the scale structure and psychometrics of the EORTC chemotherapy-induced peripheral neuropathy module (QLQ-CIPN20). METHODS: Using confirmatory factor analyses (CFA), we tested two hypothesized scale structure models of the QLQ-CIPN20 in 473 patients with non-small cell lung cancer, 281 patients with heterogeneous cancer diagnoses, and 500 patients with colorectal cancer. We also modeled the two hypothesized models as bi-factor models. These included a general factor, in addition to the specific domain factors...
June 20, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28624902/screening-for-depression-in-arthritis-populations-an-assessment-of-differential-item-functioning-in-three-self-reported-questionnaires
#2
Jinxiang Hu, Michael M Ward
PURPOSE: To determine if persons with arthritis differ systematically from persons without arthritis in how they respond to questions on three depression questionnaires, which include somatic items such as fatigue and sleep disturbance. METHODS: We extracted data on the Centers for Epidemiological Studies Depression (CES-D) scale, the Patient Health Questionnaire-9 (PHQ-9), and the Kessler-6 (K-6) scale from three large population-based national surveys. We assessed items on these questionnaires for differential item functioning (DIF) between persons with and without self-reported physician-diagnosed arthritis using multiple indicator multiple cause models, which controlled for the underlying level of depression and important confounders...
June 17, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28624901/idio-scale-judgment-evaluation-of-a-new-method-for-estimating-responder-thresholds
#3
Karon F Cook, Michael A Kallen, Cheryl D Coon, David Victorson, Deborah M Miller
PURPOSE: To pilot the newly developed Idio Scale Judgment method for estimating the amount of score change that matters to patients (i.e., change thresholds). METHODS: An online panel of 500 participants diagnosed with multiple sclerosis (MS) responded to the Neuro-QoL fatigue scale and to demographic and clinical questions. Participants compared their own fatigue to that represented by seven short form summaries (SFSs) that were located relatively close to their own fatigue levels...
June 17, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28623442/counseling-interventions-delivered-in-women-with-breast-cancer-to-improve-health-related-quality-of-life-a-systematic-review
#4
REVIEW
V D'Egidio, C Sestili, M Mancino, I Sciarra, R Cocchiara, I Backhaus, A Mannocci, Alessandro De Luca, Federico Frusone, Massimo Monti, G La Torre
BACKGROUND: Higher survival rates for breast cancer patients have led to concerns in dealing with short- and long-term side effects. The most common complications are impairment of shoulder functions, pain, lymphedema, and dysesthesia of the injured arm; psychological consequences concern: emotional distress, anxiety, and depression, thereby, deeply impacting/affecting daily living activity, and health-related quality of life. OBJECTIVE: To perform a systematic review for assessing the efficacy or effectiveness of interventions aiming at improving health-related quality of life, return to daily activity, and correct lifestyles among breast cancer patients...
June 16, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28620875/predictors-of-health-related-quality-of-life-in-maltreated-children-and-adolescents
#5
Sabine Weber, Andreas Jud, Markus A Landolt, Lutz Goldbeck
PURPOSE: Research on the consequences of child maltreatment has primarily focused on behavior and mental health; the children's overall well-being has not received the same attention. A number of studies have investigated health-related quality of life (HRQoL) among victims of child maltreatment, but there is still a lack of knowledge about predictors of HRQoL in maltreated children and adolescents. This study seeks to bridge the gap by drawing data from the German multi-site study Child Abuse and Neglect Case-Management (CANMANAGE)...
June 15, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28620874/moving-from-significance-to-real-world-meaning-methods-for-interpreting-change-in-clinical-outcome-assessment-scores
#6
Cheryl D Coon, Karon F Cook
PURPOSE: Clinical outcome assessments (COAs) require evidence not only of reliability, validity, and ability to detect change, but also a definition of what constitutes a meaningful change on the instrument. The responder definition specifies the amount of change on the COA that may be interpreted as a treatment benefit and is critical for interpreting what constitutes a meaningful change on the COA scores. However, the literature that describes methods for developing and applying responder definitions can be difficult to navigate...
June 15, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28616674/health-related-quality-of-life-of-a-very-special-population-monks-of-holy-mountain-athos-greece
#7
K Merakou, E Kyklou, E Antoniadou, D Theodoridis, E Doufexis, A Barbouni
PURPOSE: The investigation of Health-Related Quality of Life (HRQOL) of Orthodox Christian monks who live at the Holy Mount Athos in Greece, and its correlation with demographic characteristics and Sense of Coherence (SOC-13). METHODS: A cross-sectional study was designed. The seven monasteries and five scetes with the largest number of monk population were invited to participate. Two monasteries and 1 scete gave their permission for the study. The final monks sample was formed by 166 monks from 215 who participated to the study...
June 14, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28612308/comparison-of-good-days-and-sick-days-of-school-age-children-with-cancer-reflected-through-their-drawings
#8
Lauri A Linder, Heather Bratton, Anna Nguyen, Kori Parker, Susanna Phinney
PURPOSE: Childhood cancer disrupts children's daily life experiences. Eliciting children's perspectives regarding their life experiences during cancer treatment can be challenging. The purpose of this study was to characterize elementary school-age children's "good days" and "sick days" through their drawings. METHODS: This study used draw-and-tell interviews, a developmentally sensitive arts-based technique that supports children's recall and communication of information, facilitating a deeper understanding of children's personal interpretation and meaning of a given phenomenon of interest...
June 13, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28608152/recovering-from-chronic-myeloid-leukemia-the-patients-perspective-seen-through-the-lens-of-narrative-medicine
#9
G Graffigna, I Cecchini, M Breccia, E Capochiani, R Della Seta, S Galimberti, A Melosi, F Simonetti, M Pizzuti, S F Capalbo, F Falzetti, P Mazza, N Di Renzo, L Mastrullo, D Rapezzi, E Orlandi, T Intermesoli, A Iurlo, E Pungolino, M Pacilli
PURPOSE: The main objective of this study is to gain a deeper understanding of how patients suffering from chronic myeloid leukemia (CML) cope with their illness. The study aims to reconstruct the subjective meaning-making process related to CML in order to gain insights into the impact the disease has on patients' emotions and everyday lives, as well as to explore the psychological impact of their being presented with the chance to suspend their therapy and recover from the disease. METHODS: Data were gathered from a qualitative study conducted in Italy on 158 Italian CML patients...
June 12, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28608151/quality-of-life-among-survivors-of-early-stage-cervical-cancer-in-taiwan-an-exploration-of-treatment-modality-differences
#10
Chia-Chun Li, Ting-Chang Chang, Yun-Fang Tsai, Lynn Chen
PURPOSE: Women with early-stage cervical cancer may experience changes in their quality of life (QoL) due to treatment or to the effects of the cancer. In this study, we examined differences in QoL by treatment modality between women who underwent surgery only and those treated with concurrent chemoradiation (CCRT). METHODS: The sample of 290 women had been diagnosed with stage I-II cervical cancer. Data were collected on these women's demographic and disease characteristics, general QoL, and cancer-specific QoL using an author-designed demographic-disease survey, the European Organization for Research and Treatment of Cancer QoL questionnaire, and the Taiwanese-version Cervical Cancer Module 24 questionnaire, respectively...
June 12, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28601958/mapping-of-the-dlqi-scores-to-eq-5d-utility-values-using-ordinal-logistic-regression
#11
Faraz Mahmood Ali, Richard Kay, Andrew Y Finlay, Vincent Piguet, Joerg Kupfer, Florence Dalgard, M Sam Salek
PURPOSE: The Dermatology Life Quality Index (DLQI) and the European Quality of Life-5 Dimension (EQ-5D) are separate measures that may be used to gather health-related quality of life (HRQoL) information from patients. The EQ-5D is a generic measure from which health utility estimates can be derived, whereas the DLQI is a specialty-specific measure to assess HRQoL. To reduce the burden of multiple measures being administered and to enable a more disease-specific calculation of health utility estimates, we explored an established mathematical technique known as ordinal logistic regression (OLR) to develop an appropriate model to map DLQI data to EQ-5D-based health utility estimates...
June 10, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28601957/examining-the-effect-of-peer-helping-in-a-coping-skills-intervention-a-randomized-controlled-trial-for-advanced-gastrointestinal-cancer-patients-and-their-family-caregivers
#12
Catherine E Mosher, Ekin Secinti, Shelley A Johns, Bert H O'Neil, Paul R Helft, Safi Shahda, Shadia I Jalal, Victoria L Champion
PURPOSE: At the end of life, spiritual well-being is a central aspect of quality of life for many patients and their family caregivers. A prevalent spiritual value in advanced cancer patients is the need to actively give. To address this need, the current randomized trial examined whether adding a peer helping component to a coping skills intervention leads to improved meaning in life and peace for advanced gastrointestinal cancer patients and their caregivers. Feasibility and acceptability outcomes were also assessed...
June 10, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28597110/acculturation-matters-in-the-relation-between-ambivalence-over-emotional-expressions-and-well-being-among-chinese-american-breast-cancer-survivors
#13
William Tsai, Qian Lu
PURPOSE: Ambivalence over emotional expression (AEE) is the inner conflict of desiring emotion expression and fearing consequence of emotion expression. Few studies to date have examined the effects of AEE within an ethnic group that prioritizes emotional self-control. The present study examined the associations between AEE and well-being (viz., quality of life and depressive symptoms) as a function of acculturation among a sample of Chinese American breast cancer survivors. METHODS: Ninety-six Chinese breast cancer survivors (M age = 54...
June 8, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28597109/race-specific-associations-between-health-related-quality-of-life-and-cellular-aging-among-adults-in-the-united-states-evidence-from-the-national-health-and-nutrition-examination-survey
#14
Rumana J Khan, Samson Y Gebreab, Pia R Crespo, Ruihua Xu, Amadou Gaye, Sharon K Davis
PURPOSE: Poor health-related quality of life (HRQOL) could lead to higher morbidity and mortality through telomere attrition or accelerated cellular aging. We conducted a cross-sectional analysis to examine the relationship between four dimensions of HRQOL and leukocyte telomere length (LTL) among a nationally representative sample of 3547 US adults (≥20 years) using the data from the 2001-2002 National Health and Nutrition Examination Survey. METHOD: We used HRQOL survey information collected on individuals' self-rated general health, recent physical health, recent mental health, and recent activity limitation...
June 8, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28593532/establishing-benchmark-eq-5d-3l-population-health-state-utilities-and-identifying-their-correlates-in-gansu-province-china
#15
Lei Si, Lei Shi, Mingsheng Chen, Andrew J Palmer
PURPOSES: Despite a flurry of cost utility analyses conducted in the Chinese population in recent years, a standard set of health state utilities (HSUs) for the Chinese population is lacking. The aims of this study were to (1) determine benchmark age- and sex-specific HSUs for a Chinese population, and (2) assess key correlates of HSUs in this population. METHODS: Quality-of-life was evaluated using the validated EQ-5D-3L questionnaire. HSUs were calculated using data collected from Gansu Province (n = 9833)...
June 7, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28593531/distinguishing-appraisal-and-personality-influences-on-quality-of-life-in-chronic-illness-introducing-the-quality-of-life-appraisal-profile-version-2
#16
Bruce D Rapkin, Iliana Garcia, Wesley Michael, Jie Zhang, Carolyn E Schwartz
BACKGROUND: Cognitive appraisal of quality of life (QOL) differs across individuals in ways that explain otherwise paradoxical findings, such as similar QOL ratings among individuals in highly divergent health states. Although warranted by a growing body of evidence, routine assessment of appraisal in QOL research has been impeded by measurement challenges. This study describes the QOL Appraisal Profile-version 2 (QOLAPv2), a new measure that addresses these challenges. METHODS: A heterogeneous, on-line cohort of chronic disease patients and caregivers completed the QOLAPv2, along with demographics, PROMIS10 and Brief NEO Personality Inventory (NEO-PI)...
June 7, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28584892/coping-profiles-and-subjective-well-being-among-people-living-with-hiv-less-intensive-coping-corresponds-with-better-well-being
#17
Marcin Rzeszutek, Ewa Gruszczyńska, Ewa Firląg-Burkacka
PURPOSE: The aim of this study was to investigate the relationship between coping strategies and subjective well-being (SWB) among people living with HIV (PLWH) using the latent profile analysis (LPA) with control for socio-medical covariates. METHODS: The sample comprised five hundred and thirty people (N = 530) with a confirmed diagnosis of HIV+. The study was cross-sectional with SWB operationalized by satisfaction with life (Satisfaction with Life Scale) and positive and negative affect (PANAS-X)...
June 5, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28584891/gratitude-mediates-quality-of-life-differences%C3%A2-between-fibromyalgia-patients-and-healthy-controls
#18
Loren Toussaint, Fuschia Sirois, Jameson Hirsch, Annemarie Weber, Christian Vajda, Jorg Schelling, Niko Kohls, Martin Offenbacher
PURPOSE: Despite a growing literature on the benefits of gratitude for adjustment to chronic illness, little is known about gratitude in medical populations compared to healthy populations, or the degree to which potential deficits in gratitude might impact quality of life. The purpose of the present study was to (1) examine levels of gratitude and quality of life in fibromyalgia patients and healthy controls and (2) consider the role of gratitude in explaining quality of life differences between fibromyalgia patients and healthy controls...
June 5, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28580495/factors-associated-with-sexual-quality-of-life-among-midlife-women-in-serbia
#19
Tatjana Gazibara, Selmina Nurkovic, Nikolina Kovacevic, Ilma Kurtagic, Biljana Rancic, Sanja Radovanovic, Branislav Milosevic, Milan Terzic, Jelena Dotlic
PURPOSE: To assess factors associated with better sexual quality of life (QOL) in midlife period among women who are and are not sexually active. METHODS: Participants were 500 women aged 40-65 years from Belgrade, Serbia. Data were collected through general questionnaire (regarding socio-demographic characteristics, lifestyle habits, general medical, and gynecological history) in which one item investigated having partnered sexual activity (heterosexual intercourses)...
June 3, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28573454/quality-of-life-among-adolescents-living-in-residential-youth-care-do-domain-specific-self-esteem-and-psychopathology-contribute
#20
Thomas Jozefiak, Nanna S Kayed, Ingunn Ranøyen, Hanne K Greger, Jan L Wallander, Lars Wichstrøm
PURPOSE: Many adolescents living in residential youth care (RYC) institutions perceive their quality of life (QoL) to be low. Enhancing QoL is thus important, but little is known about the potential contributors to their QoL. Early interpersonal trauma and subsequent removal from home and repeated relocations to new placements are expected to affect mental health and self-esteem. We therefore investigated if domain-specific self-esteem contributed to QoL among adolescents living in RYC institutions over and beyond their levels of psychopathology...
June 1, 2017: Quality of Life Research
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