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Quality of Life Research

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https://www.readbyqxmd.com/read/27913986/establishing-clinical-meaning-and-defining-important-differences-for-patient-reported-outcomes-measurement-information-system-promis-%C3%A2-measures-in-juvenile-idiopathic-arthritis-using-standard-setting-with-patients-parents-and-providers
#1
Esi M Morgan, Constance A Mara, Bin Huang, Kimberly Barnett, Adam C Carle, Jennifer E Farrell, Karon F Cook
BACKGROUND: Patient-Reported Outcomes Measurement Information System (PROMIS) measures are used increasingly in clinical care. However, for juvenile idiopathic arthritis (JIA), scores lack a framework for interpretation of clinical severity, and minimally important differences (MID) have not been established, which are necessary to evaluate the importance of change. METHODS: We identified clinical severity thresholds for pediatric PROMIS measures of mobility, upper extremity function (UE), fatigue, and pain interference working with adolescents with JIA, parents of JIA patients, and clinicians, using a standard setting methodology modified from educational testing...
December 2, 2016: Quality of Life Research
https://www.readbyqxmd.com/read/27909853/impact-of-irt-item-misfit-on-score-estimates-and-severity-classifications-an-examination-of-promis-depression-and-pain-interference-item-banks
#2
Yue Zhao
PURPOSE: In patient-reported outcome research that utilizes item response theory (IRT), using statistical significance tests to detect misfit is usually the focus of IRT model-data fit evaluations. However, such evaluations rarely address the impact/consequence of using misfitting items on the intended clinical applications. This study was designed to evaluate the impact of IRT item misfit on score estimates and severity classifications and to demonstrate a recommended process of model-fit evaluation...
December 1, 2016: Quality of Life Research
https://www.readbyqxmd.com/read/27896711/using-eq-5d-3l-and-oab-5d-to-assess-changes-in-the-health-related-quality-of-life-of-men-with-lower-urinary-tract-symptoms-associated-with-benign-prostatic-hyperplasia
#3
Zalmai Hakimi, Mike Herdman, Marco Pavesi, Nancy Devlin, Jameel Nazir, Chris Hoyle, Isaac A O Odeyemi
OBJECTIVES: To assess changes in the health status of men with lower urinary tract symptoms associated with benign prostatic hyperplasia (LUTS/BPH) using the EQ-5D-3L and OAB-5D instruments and to evaluate the sensitivity of the instruments. METHODS: Data were available from a large randomised phase III trial of men with moderate-to-severe storage and voiding LUTS/BPH (NEPTUNE). Men received a fixed-dose combination of solifenacin 6 mg plus oral controlled absorption system (OCAS™) formulation of tamsulosin (TOCAS, 0...
November 28, 2016: Quality of Life Research
https://www.readbyqxmd.com/read/27888393/erratum-to-associations-between-adult-attachment-and-oral-health-related-quality-of-life-oral-health-behaviour-and-self-rated-oral-health
#4
Pamela Meredith, Jenny Strong, Pauline Ford, Grace Branjerdporn
No abstract text is available yet for this article.
November 25, 2016: Quality of Life Research
https://www.readbyqxmd.com/read/27888392/factors-associated-with-the-quality-of-life-of-mothers-of-preterm-infants-with-very-low-birth-weight-a-3-year-follow-up-study
#5
M R S Moura, C G A Araújo, M M Prado, H B M S Paro, R M C Pinto, V O S Abdallah, T M S Mendonça, C H M Silva
AIM: To analyze possible factors associated with the quality of life (QoL) of mothers of preterm infants with very low birth weight (VLBW) during the first 3 years after delivery. METHODS: The World Health Organization Quality of Life (WHOQOL)-bref scores were compared and correlated with maternal and infant-related sociodemographic and clinical variables at maternal discharge (T0) and at 6 (T1), 12 (T2), 24 (T3), and 36 (T4) months after delivery. Multiple linear regression models were fitted to investigate the effect of these variables on the mothers' QoL...
November 25, 2016: Quality of Life Research
https://www.readbyqxmd.com/read/27885548/health-related-quality-of-life-in-long-term-survivors-of-acute-lymphoblastic-leukemia-in-childhood-and-adolescence
#6
T Nayiager, L Anderson, A Cranston, U Athale, R D Barr
PURPOSE: Children with acute lymphoblastic leukemia (ALL), the commonest form of cancer in this age group, suffer considerable morbidity during treatment, with the majority returning to good health soon after therapy has been completed, as reflected in health-related quality of life (HRQL). However, survivors are at risk of many adverse health outcomes later, including obesity, measured by body mass index (BMI), that is compounded by limited physical activity. This study examined the HRQL of long-term survivors of ALL and its relationship to BMI and physical activity...
November 24, 2016: Quality of Life Research
https://www.readbyqxmd.com/read/27878427/development-of-the-forensic-inpatient-quality-of-life-questionnaire-short-version-fql-sv
#7
S H H Schel, Y H A Bouman, E C W Vorstenbosch, B H Bulten
PURPOSE: Aim of this study was to develop a brief version of the Forensic inpatient Quality of Life questionnaire (FQL). METHODS: Data from a longitudinal study of quality of life (QoL) among long-term forensic psychiatric care (LFPC) patients (N = 130) were used. Per domain, the FQL item that correlated most highly with the mean domain score and Overall QoL was selected. Internal consistency was investigated by calculating Cronbach's alpha. Construct validity was examined by investigating the relationship with the WHOQOL-Bref and EssenCES...
November 22, 2016: Quality of Life Research
https://www.readbyqxmd.com/read/27866315/does-the-eq-5d-capture-the-effects-of-physical-and-mental-health-status-on-life-satisfaction-among-older-people-a-path-analysis-approach
#8
Eithne Sexton, Kathleen Bennett, Tom Fahey, Caitriona Cahir
PURPOSE: To examine the extent to which EQ-5D utility scores capture the effect of mental and physical health status on life satisfaction (LS) in older adults. METHODS: Retrospective cohort study of 884 patients aged ≥70 years from 15 general practices in Ireland, including medical records, pharmacy claims, and self-completion questionnaire. Path analysis was used to evaluate the direct and indirect effects of: (1) chronic disease burden (based on medications data); (2) activity limitation (basic and instrumental activities of daily living); (3) anxiety symptoms and; (4) depressive symptoms (Hospital Anxiety and Depression Scale) on LS (Life Satisfaction Index Z), via a utility score based on responses to the EQ-5D scale...
November 19, 2016: Quality of Life Research
https://www.readbyqxmd.com/read/27866314/factors-associated-with-health-related-quality-of-life-hrqol-in-adults-with-short-stature-skeletal-dysplasias
#9
Nitasha Dhiman, Alia Albaghdadi, Cheryl K Zogg, Meesha Sharma, Julie E Hoover-Fong, Michael C Ain, Adil H Haider
INTRODUCTION: Numerous factors associate with health disparities. The extent to which such factors influence health-related quality of life (HRQOL) among adults with short stature skeletal dysplasias (SD) is unknown. In an effort to update and clarify knowledge about the HRQOL of adults with SD, this study aimed to quantify HRQOL scores relative to the American average and assess whether specific indicators are associated with lower scores. METHODS: Members (>18 years) of Little People of America were invited to complete an online survey assessing HRQOL using the SF-12 supplemented with indicator-specific questions...
November 19, 2016: Quality of Life Research
https://www.readbyqxmd.com/read/27864742/a-review-of-the-application-feasibility-and-the-psychometric-properties-of-the-individualized-measures-in-cancer
#10
REVIEW
Ala' S Aburub, Nancy E Mayo
PURPOSE: To identify from the published literature the feasibility and the application of the individualized measures [Patient Generated Index (PGI), Schedule for the Evaluation of Individual Quality of Life (SEIQOL), and the short form of it (the direct weighting SEIQOL-DW)] in the context of cancer and to summarize the evidence on the psychometric properties of these measures. METHODS: Ovid Medline, PubMed, Embase, and CINAHL were searched up to April 2016. All studies were included if they reported information about the psychometric properties of the individualized measures and included patients diagnosed with any type of cancer at any age...
November 18, 2016: Quality of Life Research
https://www.readbyqxmd.com/read/27853963/evaluating-and-establishing-national-norms-for-mental-wellbeing-using-the-short-warwick-edinburgh-mental-well-being-scale-swemwbs-findings-from-the-health-survey-for-england
#11
Linda Ng Fat, Shaun Scholes, Sadie Boniface, Jennifer Mindell, Sarah Stewart-Brown
PURPOSE: The Warwick-Edinburgh Mental Well-being Scale (WEMWBS), 14 positively worded statements, is a validated instrument to measure mental wellbeing on a population level. Less is known about the population distribution of the shorter seven-item version (SWEMWBS) or its performance as an instrument to measure wellbeing. METHODS: Using the Health Survey for England 2010-2013 (n = 27,169 adults aged 16+, nationally representative of the population), age- and sex-specific norms were estimated using means and percentiles...
November 16, 2016: Quality of Life Research
https://www.readbyqxmd.com/read/27848130/erratum-to-development-of-a-short-form-of-the-spanish-schedule-of-attitudes-toward-hastened-death-in-a-palliative-care-population
#12
Cristina Monforte-Royo, Luis González-de Paz, Joaquín Tomás-Sábado, Barry Rosenfeld, Julia Strupp, Raymond Voltz, Albert Balaguer
No abstract text is available yet for this article.
November 15, 2016: Quality of Life Research
https://www.readbyqxmd.com/read/27848129/neonatal-risk-mortality-scores-as-predictors-for-health-related-quality-of-life-of-infants-treated-in-nicu-a-prospective-cross-sectional-study
#13
K Lah Tomulic, J Mestrovic, M Zuvic, K Rubelj, B Peter, I Bilic Cace, A Verbic
PURPOSE: To determine the relationship of Apgar scores, gestational age and neonatal risk mortality scores to health-related quality of life (HRQoL) for infants at the age of 8 months treated after birth in neonatal intensive care unit (NICU). METHODS: All surviving infants treated in two-third level NICUs in Rijeka, Croatia (from August 2013 to August 2014) were included in this prospective, cross-sectional study. For all neonates, the Score for Neonatal Acute Physiology (SNAP), SNAP with Perinatal Extension (SNAP-PE) and their simplified modifications (SNAP II and SNAP-PE II) were calculated...
November 15, 2016: Quality of Life Research
https://www.readbyqxmd.com/read/27837383/exploring-measurement-invariance-by-gender-in-the-profile-of-mood-states-depression-subscale-among-cancer-survivors
#14
Jihye Kim, Tenbroeck Smith
PURPOSE: The Profile of Mood States-Short Form (POMS-SF) is a well-validated tool commonly used in medical/clinical research. Less attention has been paid to the measurement invariance of the POMS-the degree to which the structure and items behave similarly for different groups (e.g., women and men). This study investigated the measurement invariance of the POMS Depression subscale across gender groups in a sample of cancer survivors. METHODS: The POMS Depression subscale has 8 items (Unhappy, Sad, Blue, Hopeless, Discouraged, Miserable, Helpless, and Worthless)...
November 11, 2016: Quality of Life Research
https://www.readbyqxmd.com/read/27837382/objectively-measured-sedentary-behavior-and-moderate-to-vigorous-physical-activity-on-the-health-related-quality-of-life-in-us-adults-the-national-health-and-nutrition-examination-survey-2003-2006
#15
Junghoon Kim, Jeong-Soo Im, Yoon-Hyeong Choi
BACKGROUND: Health-related quality of life (HRQOL) represents an individual's perception of physical, mental, and social well-being and is a strong predictor of health status. Few studies have examined associations of sedentary behavior (SB) and moderate-to-vigorous physical activity (MVPA) with HRQOL in the general population. PURPOSE: This study aimed to determine combined associations of objectively measured SB and MVPA on the risk of poor HRQOL in the general US population, after controlling for potential confounding factors...
November 11, 2016: Quality of Life Research
https://www.readbyqxmd.com/read/27832475/recovery-support-mediates-the-relationship-between-parental-warmth-and-quality-of-life-among-women-with-substance-use-disorders
#16
Suzanne Brown, Bryan Victor, Laurel M Hicks, Elizabeth M Tracy
PURPOSE: Historically, recovery from substance use disorders (SUD) has focused exclusively on the use or non-use of the addictive substance(s). More recently, SAMSHA [1] has defined recovery in a more holistic way, using quality of life (QoL) as a measure of recovery for individuals with substance use and mental health disorders. However, little is known about the myriad experiences that inform and affect QoL for individuals with substance use disorders. Using an attachment informed stress-buffering framework, the purpose of this study was to examine the contribution of parental warmth and recovery support to QoL among women in substance abuse treatment...
November 10, 2016: Quality of Life Research
https://www.readbyqxmd.com/read/27830513/condition-specific-or-generic-preference-based-measures-in-oncology-a-comparison-of-the-eortc-8d-and-the-eq-5d-3l
#17
Paula K Lorgelly, Brett Doble, Donna Rowen, John Brazier
PURPOSE: It has been argued that generic health-related quality of life measures are not sensitive to certain disease-specific improvements; condition-specific preference-based measures may offer a better alternative. This paper assesses the validity, responsiveness and sensitivity of a cancer-specific preference-based measure, the EORTC-8D, relative to the EQ-5D-3L. METHODS: A longitudinal prospective population-based cancer genomic cohort, Cancer 2015, was utilised in the analysis...
November 9, 2016: Quality of Life Research
https://www.readbyqxmd.com/read/27830512/the-validation-of-a-computer-adaptive-test-cat-for-assessing-health-related-quality-of-life-in-children-and-adolescents-in-a-clinical-sample-study-design-methods-and-first-results-of-the-kids-cat-study
#18
D Barthel, C Otto, S Nolte, A-K Meyrose, F Fischer, J Devine, O Walter, A Mierke, K I Fischer, U Thyen, M Klein, T Ankermann, M Rose, U Ravens-Sieberer
PURPOSE: Recently, we developed a computer-adaptive test (CAT) for assessing health-related quality of life (HRQoL) in children and adolescents: the Kids-CAT. It measures five generic HRQoL dimensions. The aims of this article were (1) to present the study design and (2) to investigate its psychometric properties in a clinical setting. METHODS: The Kids-CAT study is a longitudinal prospective study with eight measurements over one year at two University Medical Centers in Germany...
November 9, 2016: Quality of Life Research
https://www.readbyqxmd.com/read/27822609/contextual-and-individual-determinants-of-oral-health-related-quality-of-life-in-older-brazilians
#19
João Gabriel Silva Souza, Bárbara Emanoele Costa Oliveira, Andrea Maria Eleutério De Barros Lima Martins
PURPOSE: This cross-sectional, population-based study evaluated contextual and individual determinants on the oral health-related quality of life in older Brazilians. MATERIALS AND METHODS: Data from the National Survey of Oral Health were used. The sample was selected by multi-stage probability cluster sampling, with probability proportional to size. The Oral Impacts on Daily Performance (OIDP) was used to evaluate oral health-related quality of life (OHRQoL). Contextual variables of municipalities and individual variables of older people were included...
November 7, 2016: Quality of Life Research
https://www.readbyqxmd.com/read/27817103/the-impact-of-living-arrangements-on-quality-of-life-among-korean-elderly-findings-from-the-korean-longitudinal-study-of-aging-2006-2012
#20
Juyeong Kim, Young Choi, Sohee Park, Kyoung Hee Cho, Yeong Jun Ju, Eun-Cheol Park
PURPOSE: To investigate the impact of different living arrangements on quality of life (QoL) and health-related quality of life (HRQoL) in the elderly. METHODS: We used data from the first to fourth wave of the Korean Longitudinal Study of Aging. Using the first wave as a baseline, the data included 5050 individuals aged 60 years and older with at least one living child. QoL and HRQoL were measured using a visual analogue scale developed by the Korean Labor Institute that bears similarity to the EQ-VAS...
November 5, 2016: Quality of Life Research
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