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Quality of Life Research

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https://www.readbyqxmd.com/read/29476312/some-recommendations-for-developing-multidimensional-computerized-adaptive-tests-for-patient-reported-outcomes
#1
Niels Smits, Muirne C S Paap, Jan R Böhnke
PURPOSE: Multidimensional item response theory and computerized adaptive testing (CAT) are increasingly used in mental health, quality of life (QoL), and patient-reported outcome measurement. Although multidimensional assessment techniques hold promises, they are more challenging in their application than unidimensional ones. The authors comment on minimal standards when developing multidimensional CATs. METHODS: Prompted by pioneering papers published in QLR, the authors reflect on existing guidance and discussions from different psychometric communities, including guidelines developed for unidimensional CATs in the PROMIS project...
February 23, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29468387/assessing-the-equivalence-of-web-based-and-paper-and-pencil-questionnaires-using-differential-item-and-test-functioning-dif-and-dtf-analysis-a-case-of-the-four-dimensional-symptom-questionnaire-4dsq
#2
Berend Terluin, Evelien P M Brouwers, Miquelle A G Marchand, Henrica C W de Vet
PURPOSE: Many paper-and-pencil (P&P) questionnaires have been migrated to electronic platforms. Differential item and test functioning (DIF and DTF) analysis constitutes a superior research design to assess measurement equivalence across modes of administration. The purpose of this study was to demonstrate an item response theory (IRT)-based DIF and DTF analysis to assess the measurement equivalence of a Web-based version and the original P&P format of the Four-Dimensional Symptom Questionnaire (4DSQ), measuring distress, depression, anxiety, and somatization...
February 21, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29464456/application-of-validity-theory-and-methodology-to-patient-reported-outcome-measures-proms-building-an-argument-for-validity
#3
Melanie Hawkins, Gerald R Elsworth, Richard H Osborne
BACKGROUND: Data from subjective patient-reported outcome measures (PROMs) are now being used in the health sector to make or support decisions about individuals, groups and populations. Contemporary validity theorists define validity not as a statistical property of the test but as the extent to which empirical evidence supports the interpretation of test scores for an intended use. However, validity testing theory and methodology are rarely evident in the PROM validation literature...
February 20, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29460201/patients-with-refractory-ascites-treated-with-alfapump%C3%A2-system-have-better-health-related-quality-of-life-as-compared-to-those-treated-with-large-volume-paracentesis-the-results-of-a-multicenter-randomized-controlled-study
#4
Maria Stepanova, Fatema Nader, Christophe Bureau, Danielle Adebayo, Laure Elkrief, Dominique Valla, Markus Peck-Radosavljevic, Anne McCune, Victor Vargas, Macarena Simon-Talero, Juan Cordoba, Paolo Angeli, Silvia Rossi, Stewart MacDonald, Jeroen Capel, Rajiv Jalan, Zobair M Younossi
BACKGROUND: Refractory ascites (RA) is a complication of cirrhosis which is treated with large volume paracentesis (LVP) as the standard of care. Alfapump® system is a fully implantable pump system which reduces the need for LVP. The aim was to assess health-related quality of life (HRQL) in patients treated with alfapump® versus LVP. METHODS: The data were collected in a multicenter open-label randomized controlled trial (clinicaltrials.gov #NCT01528410). Subjects with cirrhosis Child-Pugh class B or C accompanied by RA were randomized to receive alfapump® or LVP...
February 19, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29450856/hysterectomy-and-perceived-physical-function-in-middle-aged-australian-women-a-20-year-population-based-prospective-cohort-study
#5
Louise F Wilson, Nirmala Pandeya, Julie Byles, Gita D Mishra
PURPOSE: Hysterectomy is one of the most common gynaecological procedures worldwide. Changes in endocrine function may impact age-associated decline in physical function and these changes may be accelerated by hysterectomy. The aim of this study was to investigate associations between hysterectomy status and self-reported physical function limitations. METHODS: Our study sample (n = 8624) came from the mid-cohort (born 1945-1950) of the Australian Longitudinal Study on Women's Health (ALSWH)...
February 15, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29450855/health-related-quality-of-life-among-us-military-personnel-injured-in-combat-findings-from-the-wounded-warrior-recovery-project
#6
Susan I Woodruff, Michael R Galarneau, Cameron T McCabe, Daniel I Sack, Mary C Clouser
PURPOSE: Little is known about the long-term, health-related quality of life (HRQOL) of those wounded in combat during Operations Enduring Freedom, Iraqi Freedom, and New Dawn. The present study described the overall HRQOL for a large group of US service members experiencing mild-to-severe combat-related injuries, and assessed the unique contribution of demographics, service- and injury-related characteristics, and mental health factors on long-term HRQOL. METHOD: The Wounded Warrior Recovery Project examines patient-reported outcomes in a cohort of US military personnel wounded in combat...
February 15, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29435802/measuring-health-related-quality-of-life-hrqol-in-community-and-facility-based-care-settings-with-the-interrai-assessment-instruments-development-of-a-crosswalk-to-hui3
#7
John P Hirdes, Julie Bernier, Rochelle Garner, Philippe Finès, Micaela Jantzi
BACKGROUND: Health-related quality of life (HRQoL) measures are of interest because they can be used to describe health of populations and represent a broader health outcome for population health analyses than mortality rates or life expectancy. The most widely used measure of HRQoL for deriving estimates of health-adjusted life expectancy is the Health Utilities Index Mark 3 (HUI3). The HUI3 is available in most national surveys administered by Statistics Canada, and has been used as part of a microsimulation model to examine the impact of neurological conditions over the life course...
February 12, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29435801/cosmin-guideline-for-systematic-reviews-of-patient-reported-outcome-measures
#8
C A C Prinsen, L B Mokkink, L M Bouter, J Alonso, D L Patrick, H C W de Vet, C B Terwee
PURPOSE: Systematic reviews of patient-reported outcome measures (PROMs) differ from reviews of interventions and diagnostic test accuracy studies and are complex. In fact, conducting a review of one or more PROMs comprises of multiple reviews (i.e., one review for each measurement property of each PROM). In the absence of guidance specifically designed for reviews on measurement properties, our aim was to develop a guideline for conducting systematic reviews of PROMs. METHODS: Based on literature reviews and expert opinions, and in concordance with existing guidelines, the COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) steering committee developed a guideline for systematic reviews of PROMs...
February 12, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29435800/the-new-normal-relativity-of-quality-of-life-judgments-in-individuals-with-bipolar-disorder-a-qualitative-study
#9
Emma Morton, Erin Michalak, Rachelle Hole, Simone Buzwell, Greg Murray
PURPOSE: Quality of life (QoL) is increasingly a target of interventions for bipolar disorders (BD). While the subjective experience of consumers is often elevated as central to the construct of QoL in BD, limited investigation in this area means subjective QoL remains poorly understood. The present qualitative study seeks to address this by investigating how people with BD appraise the quality of their lives in the context of a QoL self-management intervention. METHODS: Semi-structured interviews were conducted with 43 individuals who had participated in a self-management intervention for improving QoL in BD...
February 12, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29427216/measuring-health-related-quality-of-life-in-patients-with-advanced-cancer-a-systematic-review-of-self-administered-measurement-instruments
#10
REVIEW
Janneke van Roij, Heidi Fransen, Lonneke van de Poll-Franse, Myrte Zijlstra, Natasja Raijmakers
PURPOSE: Patient-reported outcome measures (PROMs) are becoming increasingly important in clinical practice. The implementation of PROMS in routine practice is challenging because information regarding psychometric quality of measurement instruments is fragmented and standardization is lacking. The aim of this study is to evaluate the quality of self-administered HRQoL measurement instruments for use in patients with advanced cancer in clinical practice. METHODS: A systematic literature search was performed in PubMed, Embase, PsycINFO, and CINAHL to identify studies concerning self-administered HRQoL measurement instruments in patients with advanced cancer between January 1990 and September 2016...
February 10, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29427215/systematic-review-of-quality-of-life-in-turner-syndrome
#11
REVIEW
Carolina Trombeta Reis, Maíra Seabra de Assumpção, Gil Guerra-Junior, Sofia Helena Valente de Lemos-Marini
PURPOSE: This study aimed to systematically review the available literature on "quality of life" (QoL) or "health-related quality of life" (HRQoL) in Turner syndrome (TS) patients and to analyze the relations among height, puberty, and the use of growth hormone (GH) and the QoL of TS patients. METHODS: An electronic bibliographic search was conducted through the PubMed, Embase, Bireme, Scopus, and Web of Science databases. The main terms were "Quality of Life" and "Turner syndrome...
February 9, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29423757/comparing-the-validity-and-responsiveness-of-the-eq-5d-5l-to-the-oxford-hip-and-knee-scores-and-sf-12-in-osteoarthritis-patients-1-year-following-total-joint-replacement
#12
Barbara L Conner-Spady, Deborah A Marshall, Eric Bohm, Michael J Dunbar, Tom W Noseworthy
PURPOSE: (1) To assess responsiveness of the EQ-5D-5L compared to Oxford hip and knee scores and the SF-12 in osteoarthritis patients undergoing total hip (THR) or knee (TKR) replacement surgery; (2) to compare distribution and anchor-based methods of assessing responsiveness. METHODS: Questionnaires were mailed to consecutive patients following surgeon referral for primary THR or TKR and 1 year post-surgery. We assessed effect size (ES), standardized response mean (SRM), and standard error of measurement (SEM)...
February 8, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29423756/scale-development-with-small-samples-a-new-application-of-longitudinal-item-response-theory
#13
Carrie R Houts, Robert Morlock, Steven I Blum, Michael C Edwards, R J Wirth
PURPOSE: Measurement development in hard-to-reach populations can pose methodological challenges. Item response theory (IRT) is a useful statistical tool, but often requires large samples. We describe the use of longitudinal IRT models as a pragmatic approach to instrument development when large samples are not feasible. METHODS: The statistical foundations and practical benefits of longitudinal IRT models are briefly described. Results from a simulation study are reported to demonstrate the model's ability to recover the generating measurement structure and parameters using a range of sample sizes, number of items, and number of time points...
February 8, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29423755/promis-depression-measures-perform-similarly-to-legacy-measures-relative-to-a-structured-diagnostic-interview-for-depression-in-cancer-patients
#14
Kerrie Clover, Sylvie D Lambert, Christopher Oldmeadow, Benjamin Britton, Madeleine T King, Alex J Mitchell, Gregory Carter
PURPOSE: To assess the convergent validity of the Patient-Reported Outcomes Measurement Information System (PROMIS) depression measures relative to legacy measures and criterion validity against a structured diagnostic interview for depression in an oncology sample. METHODS: 132 oncology/haematology outpatients completed the PROMIS Depression Computer Adaptive Test (PROMIS-D-CAT) and PROMIS Depression Short Form (PROMIS-D-SF) along with seven legacy measures: Beck Depression Inventory (BDI); Centre for Epidemiological Studies Depression (CES-D); Depression, Anxiety and Stress Scale; Hospital Anxiety and Depression Scale; Patient Health Questionnaire; Distress Thermometer and PSYCH-6...
February 8, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29417427/computer-assistive-technology-and-associations-with-quality-of-life-for-individuals-with-spinal-cord-injury-a-systematic-review
#15
REVIEW
Valéria Baldassin, Helena Eri Shimizu, Emerson Fachin-Martins
STUDY DESIGN: Systematic review. OBJECTIVE: The purpose of the study was to identify and organize evidence regarding quality of life influenced by assistive technology related to computers for people with traumatic and non-traumatic spinal cord injury (SCI). SETTING: Distrito Federal, Brazil. METHODS: A search strategy was conducted on the PubMed, PEDro, LILACS, PsycINFO, and SCIELO. All types of study designs considering assistive technology to improve quality of life for individuals with SCI were included...
February 7, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29417426/association-of-midlife-value-priorities-with-health-related-quality-of-life-frailty-and-mortality-among-older-men-a-26-year-follow-up-of-the-helsinki-businessmen-study-hbs
#16
Annele Urtamo, Hannu Kautiainen, Kaisu H Pitkälä, Timo E Strandberg
PURPOSE: Personal values influence behavior and decision making, but their long-term associations with health-related quality of life (HRQoL), frailty, and mortality are less clear. We studied these associations from midlife to old age in a 26-year follow-up of the Helsinki Businessmen Study (HBS) cohort. METHODS: In 1974, 1320 clinically healthy men (born 1919-1934) reported in a 12-item questionnaire their personal values. In 2000, a mailed questionnaire, including assessment of HRQoL with RAND-36 (SF-36) instrument, was sent to survivors, and 1025 men responded...
February 7, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29417425/the-association-between-post-diagnosis-health-behaviors-and-long-term-quality-of-life-in-survivors-of-ductal-carcinoma-in-situ-a-population-based-longitudinal-cohort-study
#17
Vicki Hart, Amy Trentham-Dietz, Amy Berkman, Mayo Fujii, Christopher Veal, John Hampton, Ronald E Gangnon, Polly A Newcomb, Susan C Gilchrist, Brian L Sprague
PURPOSE: Women diagnosed with ductal carcinoma in situ (DCIS) often experience adverse changes in health-related behaviors following diagnosis. The impact of health behaviors on long-term quality of life (QoL) in DCIS survivors has not been investigated. METHODS: We examined the association of post-diagnosis body mass index (BMI), physical activity, alcohol, and smoking with QoL among 1448 DCIS survivors aged 20-74 enrolled in the population-based Wisconsin in situ Cohort from 1997 to 2006...
February 7, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29411224/association-of-generic-health-related-quality-of-life-eq-5d-dimensions-and-inactivity-with-lung-function-in-lung-healthy-german-adults-results-from-the-kora-studies-f4l-and-age
#18
Agnes Luzak, Stefan Karrasch, Margarethe Wacker, Barbara Thorand, Dennis Nowak, Annette Peters, Holger Schulz
PURPOSE: Among patients with lung disease, decreased lung function is associated with lower health-related quality of life. However, whether this association is detectable within the physiological variability of respiratory function in lung-healthy populations is unknown. We analyzed the association of each EQ-5D-3L dimension (mobility, self-care, usual activities, pain/discomfort, anxiety/depression) and self-reported physical inactivity with spirometric indices in lung-healthy adults...
February 6, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29404925/how-does-age-affect-the-relationship-between-weight-and-health-utility-during-the-middle-years-of-childhood
#19
Katie Eminson, Alastair Canaway, Peymané Adab, Emma Lancashire, Miranda Pallan, Emma Frew
PURPOSE: The limited literature examining weight status and preference-based health-related quality of life (HRQL) in young children is equivocal. This study aims to examine how the association between weight status and preference-based HRQL changes as children develop between the ages of 6 and 10 years old. METHODS: The Child Health Utility 9D (CHU-9D) was used to determine preference-based HRQL. Height and weight data were also collected and used to calculate z-BMI adjusted for age and gender...
February 5, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29404924/quality-of-life-in-older-adults-with-sensory-impairments-a-systematic-review
#20
REVIEW
Ya-Chuan Tseng, Sara Hsin-Yi Liu, Meei-Fang Lou, Guey-Shiun Huang
PURPOSE: Sensory impairments are common in older adults. Hearing and visual impairments affect their physical and mental health and quality of life adversely. However, systematic reviews of the relationship between hearing impairment, visual impairment, dual sensory impairment, and quality of life are scarce. The purpose of this systematic review was to determine the relationship between hearing impairment, visual impairment, dual sensory impairment, and quality of life. METHODS: Searches of EMBASE, PubMed, CINAHL, MEDLINE, Cochrane Library, and Airiti Library were conducted between January 2006 and December 2017 using the keywords "quality of life," "life satisfaction," "well-being," "hearing impairment," and "visual impairment...
February 5, 2018: Quality of Life Research
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