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Quality of Life Research

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https://www.readbyqxmd.com/read/29052030/validation-of-a-chinese-version-of-the-stress-overload-scale-short-and-its-use-as-a-screening-tool-for-mental-health-status
#1
Wenjie Duan, Wenlong Mu
PURPOSE: Although stress emerges when environmental demands exceed personal resources, existing measurement methods for stress focus only on one aspect. The newly-developed Short Stress Overload Scale (SOS-S) assesses the extent of stress by assessing both event load (i.e., environmental demands) and personal vulnerability (i.e., personal resources). The present study was designed to evaluate the psychometric properties of the Chinese version of Stress Overload Scale-Short (SOS-SC), and further examine its roles in screening mental health status...
October 19, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/29027607/developing-a-patient-reported-outcome-measure-for-hiv-care-on-perceived-barriers-to-antiretroviral-adherence-assessing-the-needs-of-hiv-clinicians-through-qualitative-analysis
#2
Isabelle Toupin, Kim Engler, David Lessard, Leo Wong, Andràs Lènàrt, Bruno Spire, François Raffi, Bertrand Lebouché
PURPOSE: To identify HIV clinicians' needs for the clinical use of a new patient-reported outcome measure (PRO) on barriers to antiretroviral therapy (ART) adherence. METHODS: In 2015, five focus groups with 31 clinicians from France were transcribed, coded with Atlas.ti, and submitted to a typological analysis. RESULTS: The analysis identified seven patient profiles, each tied to distinct barriers to adherence and to specific needs for the PRO's content, data collection and transmission...
October 13, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/29027086/the-association-between-somatic-and-psychological-discomfort-and-health-related-quality-of-life-according-to-the-elderly-and-non-elderly
#3
Hyeon-Sook Lee, Siwoo Lee, Sohee Park, Younghwa Baek, Ji-Hye Youn, Dan Bee Cho, Jung-Hyun Jin, Aesun Shin, Sue K Park, Keon Wook Kang, Young-Khi Lim, Chul Hwan Kang, Keun-Young Yoo, Kwang-Pil Ko
PURPOSE: Symptoms and discomfort are common complaints in primary care settings. It has been postulated that the physical symptoms are informative index in estimating Health-related quality of life (HRQOL). Thus, we conducted a community-based cross-sectional study to assess the relationship between somatic and psychological discomfort and HRQOL in elderly and non-elderly people. METHODS: A total of 2467 participants were recruited in 2013 from a population of 17,066 rural residents aged 20 or older...
October 12, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/29027069/effects-of-perceived-autonomy-support-and-basic-need-satisfaction-on-quality-of-life-in-hemodialysis-patients
#4
Mei-Fang Chen, Ray-E Chang, Hung-Bin Tsai, Ying-Hui Hou
PURPOSE: Despite a growing understanding of health-related quality of life (HRQOL) and its determinants in hemodialysis (HD) patients, little is known about the effects and interrelationships concerning the perception of autonomy support and basic need satisfaction of HD patients on their HRQOL. Based on self-determination theory (SDT), this study examines whether HD patients' perceived autonomy support from health care practitioners (physicians and nurses) relates to the satisfaction of HD patients' basic needs and in turn influences their HRQOL...
October 12, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/29022138/associated-and-mediating-variables-related-to-quality-of-life-among-service-users-with-mental-disorders
#5
Marie-Josée Fleury, Guy Grenier, Jean-Marie Bamvita
PURPOSE: This study aimed to identify variables associated with quality of life (QoL) and mediating variables among 338 service users with mental disorders in Quebec (Canada). Data were collected using nine standardized questionnaires and participant medical records. METHODS: Quality of life was assessed with the Satisfaction with Life Domains Scale. Independent variables were organized into a six-block conceptual framework. Using structural equation modeling, associated and mediating variables related to QoL were identified...
October 11, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28983738/establishing-clinical-severity-for-promis-%C3%A2-measures-in-adult-patients-with-rheumatic-diseases
#6
Vivek Nagaraja, Constance Mara, Puja P Khanna, Rajaie Namas, Amber Young, David A Fox, Timothy Laing, William J McCune, Carol Dodge, Debra Rizzo, Maha Almackenzie, Dinesh Khanna
PURPOSE: Different patient-reported outcome (PRO) measures are used for rheumatic diseases (RD). The aims of this study are-(1) Identify PROMIS(®) domains most relevant to care of patients with RD, (2) Collect T-Score metrics in patients with RD, and (3) Identify clinically meaningful cut-points for these domains. METHODS: A convenience sample of RD patients was recruited consecutively during clinic visits, and asked to complete computer-adaptive tests on thirteen Patient-Reported Outcomes Measurement Information System (PROMIS(®)) instruments...
October 5, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28965282/factors-affecting-the-quality-of-life-before-and-after-surgery-in-patients-with-chronic-thromboembolic-pulmonary-hypertension
#7
Oksana Kamenskaya, Asya Klinkova, Irina Loginova, Alexander Chernyavskiy, Vladimir V Lomivorotov, Alexander Karaskov
PURPOSE: To test the hypothesis that quality of life (QoL) parameters before surgery in patients with chronic thromboembolic pulmonary hypertension (CTEPH) are influenced by clinical determinants related to the underlying disease and to examine QoL parameters affected in the long-term after the operation by complications presenting in the early postoperative period. METHODS: This prospective cohort study included 128 patients who presented with CTEPH before and after pulmonary thromboendarterectomy (PTE; 1-year follow-up)...
September 30, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28965191/physical-activity-and-health-related-quality-of-life-among-schoolchildren-from-disadvantaged-neighbourhoods-in-port-elizabeth-south-africa
#8
Marina Salvini, Stefanie Gall, Ivan Müller, Cheryl Walter, Rosa du Randt, Peter Steinmann, Jürg Utzinger, Uwe Pühse, Markus Gerber
PURPOSE: The relationship between health-related quality of life (HRQoL), physical activity (PA), and cardiorespiratory fitness (CRF) among disadvantaged communities in low- and middle-income countries is poorly understood. In South Africa, children from socioeconomically deprived households are at an elevated risk of sedentary lifestyles and poor HRQoL. We examined whether higher self-reported PA and higher CRF levels are associated with better HRQoL in South African schoolchildren from disadvantaged neighbourhoods...
September 30, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28921407/combat-exposure-emotional-and-physical-role-limitations-and-substance-use-among-male-united-states-army-reserve-and-national-guard-soldiers
#9
R A Hoopsick, B M Vest, D L Homish, G G Homish
PURPOSE: Combat-exposed soldiers are at an increased risk for health problems that diminish quality of life (QOL) and substance use. We explored the cross-sectional associations between combat exposure and two measures of QOL, and the effect of substance use on those associations. METHODS: Data are from the baseline wave of Operation: SAFETY, an ongoing survey-based study of United States Army Reserve/National Guard (USAR/NG) soldiers and their partners. Our sample consisted of male USAR/NG soldiers with a history of deployment (N = 248)...
September 18, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28917029/health-related-quality-of-life-and-its-determinants-in-patients-with-metastatic-renal-cell-carcinoma
#10
S de Groot, W K Redekop, M M Versteegh, S Sleijfer, E Oosterwijk, L A L M Kiemeney, C A Uyl-de Groot
PURPOSE: Based on improvements of progression-free survival (PFS), new agents for metastatic renal cell carcinoma (mRCC) have been approved. It is assumed that one of the benefits is a delay in health-related quality of life (HRQoL) deterioration as a result of a delay in progression of disease. However, little data are available supporting this relationship. This study aims to provide insight into the most important determinants of HRQoL (including progression of disease) of patients with mRCC...
September 15, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28900889/24th-annual-conference-of-the-international-society-for-quality-of-life-research
#11
(no author information available yet)
No abstract text is available yet for this article.
September 12, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28900828/everyday-life-following-hematopoietic-stem-cell-transplantation-decline-in-physical-symptoms-within-the-first-month-and-change-related-predictors
#12
Aleksandra Kroemeke, Małgorzata Sobczyk-Kruszelnicka, Zuzanna Kwissa-Gajewska
PURPOSE: Lower quality of life, especially in the physical domain (Physical-QOL), is common in patients after hematopoietic stem cell transplantation (HSCT). However, few studies explore changes in the Physical-QOL, i.e., physical symptoms, in everyday life of patients following HSCT. The present study addresses this gap by examining patient daily physical symptoms and their predictors in terms of demographic and clinical characteristics. METHODS: Physical symptoms were reported by 188 patients (56...
September 12, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28900823/health-related-quality-of-life-developmental-milestones-and-self-esteem-in-young-adults-with-bleeding-disorders
#13
P F Limperg, L Haverman, H Maurice-Stam, M Coppens, C Valk, M J H A Kruip, J Eikenboom, M Peters, M A Grootenhuis
BACKGROUND: The treatment of bleeding disorders improved in the last decades. However, the effect of growing up with bleeding disorders on developmental, emotional, and social aspects is understudied. Therefore, this study assesses HRQOL, developmental milestones, and self-esteem in Dutch young adults (YA) with bleeding disorders compared to peers. METHODS: Ninety-five YA (18-30 years) with bleeding disorders (78 men; mean 24.7 years, SD 3.5) and 17 women (mean 25...
September 12, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28887749/perceived-medication-adherence-barriers-mediating-effects-between-gastrointestinal-symptoms-and-health-related-quality-of-life-in-pediatric-inflammatory-bowel-disease
#14
James W Varni, Robert J Shulman, Mariella M Self, Shehzad A Saeed, George M Zacur, Ashish S Patel, Samuel Nurko, Deborah A Neigut, James P Franciosi, Miguel Saps, Jolanda M Denham, Chelsea Vaughan Dark, Cristiane B Bendo, John F Pohl
OBJECTIVES: The primary objective was to investigate the mediating effects of patient-perceived medication adherence barriers in the relationship between gastrointestinal symptoms and generic health-related quality of life (HRQOL) in adolescents with inflammatory bowel disease (IBD). The secondary objective explored patient health communication and gastrointestinal worry as additional mediators with medication adherence barriers in a serial multiple mediator model. METHODS: The Pediatric Quality of Life Inventory™ Gastrointestinal Symptoms, Medicines, Communication, Gastrointestinal Worry, and Generic Core Scales were completed in a 9-site study by 172 adolescents with IBD...
September 8, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28887596/cross-cultural-adaptation-and-measurement-properties-of-generic-and-cancer-related-patient-reported-outcome-measures-proms-for-use-with-cancer-patients-in-brazil-a-systematic-review
#15
REVIEW
Carlos Augusto Albach, Richard Wagland, Katherine J Hunt
PURPOSE: This systematic review (1) identifies the current generic and cancer-related patient-reported outcome measures (PROMs) that have been cross-culturally adapted to Brazilian Portuguese and applied to cancer patients and (2) critically evaluates their cross-cultural adaptation (CCA) and measurement properties. METHODS: Seven databases were searched for articles regarding the translation and evaluation of measurement properties of generic and cancer-related PROMs cross-culturally adapted to Brazilian Portuguese that are applied in adult (≥18 years old) cancer patients...
September 8, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28884454/prevalence-of-patient-reported-gastrointestinal-symptoms-and-agreement-with-clinician-toxicity-assessments-in-radiation-therapy-for-anal-cancer
#16
Ashlyn Tom, Antonia V Bennett, Diana Rothenstein, Ethel Law, Karyn A Goodman
PURPOSE: Gastrointestinal (GI) symptoms pose a significant burden to patients receiving chemoradiation therapy (CRT) for anal cancer; however, the impact of symptoms from the patient perspective has not been quantified. This retrospective study examined and compared patient and clinician reports of acute GI toxicity during CRT. MATERIALS AND METHODS: Patients treated with definitive RT using intensity-modulated radiation therapy for anal cancer between 9/09 and 11/12 were reviewed...
September 7, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28884421/assessing-responsiveness-over-time-of-the-promis-%C3%A2-pediatric-symptom-and-function-measures-in-cancer-nephrotic-syndrome-and-sickle-cell-disease
#17
Bryce B Reeve, Lloyd J Edwards, Byron C Jaeger, Pamela S Hinds, Carlton Dampier, Debbie S Gipson, David T Selewski, Jonathan P Troost, David Thissen, Vaughn Barry, Heather E Gross, Darren A DeWalt
PURPOSE: Previous studies provided evidence for the validity of the PROMIS Pediatric measures in cross-sectional studies. This study evaluated the ability of the PROMIS Pediatric measures to detect change over time in children and adolescents with cancer, nephrotic syndrome (NS), or sickle cell disease (SCD). METHODS: Participants (8-17 years) completed measures of fatigue, pain interference, anger, anxiety, depressive symptoms, mobility, upper extremity, and peer relationships at three or four time points (T1-T4)...
September 7, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28884326/one-question-might-be-capable-of-replacing-the-shoulder-pain-and-disability-index-spadi-when-measuring-disability-a-prospective-cohort-study
#18
Marloes Thoomes-de Graaf, Wendy Scholten-Peeters, Yasmaine Karel, Annemieke Verwoerd, Bart Koes, Arianne Verhagen
QUESTIONS: Is it possible to replace the Shoulder Pain and Disability Index (SPADI) with a single substitute question for people with shoulder pain, when measuring disability and how well does this substitute question perform as a predictor for recovery. DESIGN: A prospective cohort study. PARTICIPANTS: A total of 356 patients with shoulder pain in primary care. ANALYSES: Convergent, divergent, and "known" groups validity were assessed by using hypotheses testing...
September 7, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28884265/how-is-weight-stigma-related-to-children-s-health-related-quality-of-life-a-model-comparison-approach
#19
Veronica Guardabassi, Alberto Mirisola, Carlo Tomasetto
PURPOSE: Obesity is a highly stigmatizing condition for both adults and children, and both obesity and stigma experiences are negatively related with health-related quality of life (HRQoL). However, the relations among these constructs have been modeled in different and sometimes inconsistent terms in past research, and have been the object of surprisingly few studies in pediatric populations. The present study addresses this gap by comparing, in a sample of preadolescent children, four competing models (i...
September 7, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28879537/assessing-reserve-building-pursuits-and-person-characteristics-psychometric-validation-of-the-reserve-building-measure
#20
Carolyn E Schwartz, Wesley Michael, Jie Zhang, Bruce D Rapkin, Mirjam A G Sprangers
AIMS: A growing body of research suggests that regularly engaging in stimulating activities across multiple domains-physical, cultural, intellectual, communal, and spiritual-builds resilience. This project investigated the psychometric characteristics of the DeltaQuest Reserve-Building Measure for use in prospective research. METHODS: The study included Rare Patient Voice panel participants. The web-based survey included the Reserve-Building Measure with one-week re-test, measures of quality of life (QOL) and well-being (PROMIS General Health; NeuroQOL Cognitive Function and Positive Affect & Well-Being short-forms; Ryff Environmental Mastery subscale); and the Big Five Inventory-10 personality measure...
September 6, 2017: Quality of Life Research
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