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Quality of Life Research

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https://www.readbyqxmd.com/read/29785682/the-modified-memorial-symptom-assessment-scale-short-form-a-modified-response-format-and-rational-scoring-rules
#1
J L Sharp, K Gough, M C Pascoe, A Drosdowsky, V T Chang, P Schofield
PURPOSE: The Memorial Symptom Assessment Scale Short Form (MSAS-SF) is a widely used symptom assessment instrument. Patients who self-complete the MSAS-SF have difficulty following the two-part response format, resulting in incorrectly completed responses. We describe modifications to the response format to improve useability, and rational scoring rules for incorrectly completed items. METHODS: The modified MSAS-SF was completed by 311 women in our Peer and Nurse support Trial to Assist women in Gynaecological Oncology; the PeNTAGOn study...
May 21, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29785681/diabetes-symptoms-predictors-of-health-related-quality-of-life-in-adolescents-and-young-adults-with-type-1-or-type-2-diabetes
#2
James W Varni, Alan M Delamater, Korey K Hood, Jennifer K Raymond, Kimberly A Driscoll, Jenise C Wong, Saleh Adi, Joyce P Yi-Frazier, Ellen K Grishman, Melissa A Faith, Sarah D Corathers, Jessica C Kichler, Jennifer L Miller, Elena M Doskey, Vincent P Aguirre, Robert W Heffer, Don P Wilson
OBJECTIVES: The objective was to investigate the patient-reported diabetes symptoms predictors of generic health-related quality of life (HRQOL) in adolescents and young adults (AYA) with type 1 or type 2 diabetes. METHODS: The 15-item PedsQL™ 3.2 Diabetes Module Diabetes Symptoms Summary Score and PedsQL™ 4.0 Generic Core Scales were completed in a 10-site national field test study by 513 AYA ages 13-25 years with type 1 (n = 424) or type 2 (n = 89) diabetes...
May 21, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29779143/health-related-quality-of-life-in-coronary-heart-disease-a-systematic-review-and-meta-analysis-mapped-against-the-international-classification-of-functioning-disability-and-health
#3
REVIEW
Jana Le, Diana S Dorstyn, Elias Mpfou, Elise Prior, Phillip J Tully
BACKGROUND: Health-related quality of life (HRQoL) is an important outcome in coronary heart disease (CHD). However, variability in HRQoL indicators suggests a need to consider domain coverage. This review applies a globally accepted framework, the International Classification of Functioning, Disability and Health (ICF), to map HRQoL measures that are reliable and valid among people with CHD. METHODS: The Embase, Pubmed and PsycInfo databases were searched, with 10 observational studies comparing HRQOL among 4786 adults with CHD to 50949 controls identified...
May 19, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29777460/a-tale-of-two-countries-comparing-disability-weights-for-gambling-problems-in-new-zealand-and-australia
#4
Vijay Rawat, Matthew Browne, Maria Bellringer, Nancy Greer, Komathi Kolandai-Matchett, Matthew Rockloff, Erika Langham, Christine Hanley, Katie Palmer Du Preez, Max Abbott
PURPOSE: This study aimed to assess the impact of gambling problems on quality of life. Specifically, we generated disability weight estimates for gambling problems in New Zealand, and compared these results with (i) Australian figures (J Gambl Issues, 10.4309/jgi.v0i36.3978, 2017) and (ii) other health states (Lancet, 10.1016/S0140-6736(12)61680-8, 2013); such as anxiety and alcohol use disorders. METHOD: The 324 participants (48 experts and 276 general population members) evaluated a series of gambling harm vignettes...
May 17, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29777459/giving-voice-to-the-child-perspective-psychometrics-and-relative-precision-findings-for-the-child-health-questionnaire-self-report-short-form-chq-cf45
#5
Jeanne M Landgraf, Amy van Grieken, Hein Raat
PURPOSE: To derive and evaluate a shorter self-report Child Health Questionnaire (CHQ) legacy measure for use in research and clinical trials/care. METHODS: Stepwise regression, factor analysis, and item scaling principles were used to derive and guide item selection, using data from a large general sample in the Netherlands (n = 933). Feasibility was assessed in a school sample (n = 114) and item internal consistency, discriminant validity, floor, and ceiling effects were evaluated using an external larger validation sample in the US (n = 1468)...
May 17, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29767329/validity-of-the-eq-5d-5l-and-reference-norms-for-the-spanish-population
#6
Gimena Hernandez, Olatz Garin, Yolanda Pardo, Gemma Vilagut, Àngels Pont, Mónica Suárez, Montse Neira, Luís Rajmil, Inigo Gorostiza, Yolanda Ramallo-Fariña, Juan Cabases, Jordi Alonso, Montse Ferrer
BACKGROUND AND OBJECTIVE: The EuroQol 5 dimensions 5 levels (EQ-5D-5L) is the new version of EQ-5D, developed to improve its discriminatory capacity. This study aims to evaluate the construct validity of the Spanish version and provide index and dimension population-based reference norms for the new EQ-5D-5L. METHODS: Data were obtained from the 2011/2012 Spanish National Health Survey, with a representative sample (n = 20,587) of non-institutionalized Spanish adults (≥ 18 years)...
May 16, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29766440/health-related-quality-of-life-of-maltreated-children-and-adolescents-who-attended-a-service-center-in-brazil
#7
Ivam Freire da Silva-Júnior, Andréia Drawanz Hartwig, Giulia Tarquinio Demarco, Vanessa Müller Stüermer, Gisele Scobernatti, Marília Leão Goettems, Marina Sousa Azevedo
PURPOSE: This study's aim was to evaluate the health-related quality of life (HRQoL) and associated factors of maltreated children and adolescents. METHODS: This cross-sectional study consisted of individuals between 8 and 17 years of age who were victims of maltreatment. The KIDSCREEN-52 was used to measure their HRQoL. Socioeconomic and demographic data were collected, as well as information about the type of abuse, type of perpetrator, and psychological support adherence...
May 15, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29766439/translation-and-cross-cultural-adaptation-of-eight-pediatric-promis%C3%A2-item-banks-into-spanish-and-german
#8
J Devine, F Klasen, J Moon, M Herdman, M P Hurtado, G Castillo, A C Haller, H Correia, C B Forrest, U Ravens-Sieberer
PURPOSE: The Patient-Reported Outcome Measurement Information System (PROMIS®) is a National Institutes of Health (NIH)-funded initiative to develop reliable, valid, and normed item banks to measure health. We describe the first large-scale translation and cross-cultural adaptation effort to German and Spanish of eight pediatric PROMIS item banks: Physical activity (PAC), subjective well-being (SWB), experiences of stress (EOS), and family relations (FAM). METHODS: We utilized methods outlined in the International Society for Pharmacoeconomics and Outcomes Research (ISPOR) PRO Translation Task Force recommendations...
May 15, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29761348/deprivation-is-associated-with-worse-physical-and-mental-health-beyond-income-poverty-a-population-based-household-survey-among-chinese-adults
#9
Roger Yat-Nork Chung, Gary Ka-Ki Chung, David Gordon, Samuel Yeung-Shan Wong, Dicken Chan, Maggie Ka-Wai Lau, Vera Mun-Yu Tang, Hung Wong
PURPOSE: In studying health inequality, poverty as measured by income is frequently used; however, this omits the aspects of non-monetary resources and social barriers to achieving improved living standard. Therefore, our study aimed to examine the associations of individual-level deprivation of material and social necessities with general physical and mental health beyond that of income poverty. METHODS: A territory-wide two-stage stratified random sample of 2282 community-dwelling Hong Kong adults was surveyed between 2014 and 2015...
May 14, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29761347/negligible-impact-of-differential-item-functioning-between-black-and-white-dialysis-patients-on-the-kidney-disease-quality-of-life-36-item-short-form-survey-kdqol-tm-36
#10
John D Peipert, Peter Bentler, Kristi Klicko, Ron D Hays
PURPOSE: Black dialysis patients report better health-related quality of life (HRQOL) than White patients, which may be explained if Black and White patients respond systematically differently to HRQOL survey items. METHODS: We examined differential item functioning (DIF) of the Kidney Disease Quality of Life 36-item (KDQOLTM -36) Burden of Kidney Disease, Symptoms and Problems with Kidney Disease, and Effects of Kidney Disease scales between Black (n = 18,404) and White (n = 21,439) dialysis patients...
May 14, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29748824/cross-national-health-comparisons-using-the-rasch-model-findings-from-the-2012-us-health-and-retirement-study-and-the-2012-mexican-health-and-aging-study
#11
Ickpyo Hong, Timothy A Reistetter, Carlos Díaz-Venegas, Alejandra Michaels-Obregon, Rebeca Wong
PURPOSE: Cross-national comparisons of patterns of population aging have emerged as comparable national micro-data have become available. This study creates a metric using Rasch analysis and determines the health of American and Mexican older adult populations. METHODS: Secondary data analysis using representative samples aged 50 and older from 2012 U.S. Health and Retirement Study (n = 20,554); 2012 Mexican Health and Aging Study (n = 14,448). We developed a function measurement scale using Rasch analysis of 22 daily tasks and physical function questions...
May 10, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29748823/constant-murley-score-systematic-review-and-standardized-evaluation-in-different-shoulder-pathologies
#12
REVIEW
Kalliopi Vrotsou, Mónica Ávila, Mónica Machón, Maider Mateo-Abad, Yolanda Pardo, Olatz Garin, Carlos Zaror, Nerea González, Antonio Escobar, Ricardo Cuéllar
PURPOSE: The objective of this study was to evaluate the psychometric properties of the Constant-Murley Score (CMS) in various shoulder pathologies, based on a systematic review and expert standardized evaluations. METHODS: A systematic review was performed in MEDLINE and EMBASE databases. Titles and abstracts were reviewed and finally the included articles were grouped according to patients' pathologies. Two expert evaluators independently assessed the CMS properties of reliability, validity, responsiveness to change, interpretability and burden score in each group, using the EMPRO (Evaluating Measures of Patient Reported Outcomes) tool...
May 10, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29740784/diabetic-retinopathy-and-health-related-quality-of-life-among-chinese-with-known-type-2-diabetes-mellitus
#13
Chen-Wei Pan, Shan Wang, Pei Wang, Cai-Lian Xu, E Song
PURPOSE: We aim to describe the impact of diabetic retinopathy (DR) on health-related quality of life (HRQOL) among community-dwelling Chinese adults who had been previously diagnosed with type 2 diabetes mellitus (T2DM). METHODS: A community-based survey including 913 patients with T2DM was conducted in Suzhou, China. Retinopathy lesions were graded according to the Airlie House classification system of the Early Treatment Diabetic Retinopathy Study. The HRQOL was measured by the Chinese version of the EuroQol Group's five-level EuroQol five-dimensional questionnaire (EQ-5D-5L)...
May 8, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29740783/anxiety-in-the-orthopedic-patient-using-promis-to-assess-mental-health
#14
Casey M Beleckas, Heidi Prather, Jason Guattery, Melissa Wright, Michael Kelly, Ryan P Calfee
PURPOSE: This study explored the performance of the Patient-Reported Outcomes Measurement Information System (PROMIS) Anxiety assessment relative to the Depression assessment in orthopedic patients, the relationship between Anxiety with self-reported Physical Function and Pain Interference, and to determine if Anxiety levels varied according to the location of orthopedic conditions. METHODS: This cross-sectional evaluation analyzed 14,962 consecutive adult new-patient visits to a tertiary orthopedic practice between 4/1/2016 and 12/31/2016...
May 8, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29740782/quality-of-life-problems-and-needs-of-disease-free-breast-cancer-survivors-5-years-after-diagnosis
#15
Martina E Schmidt, Joachim Wiskemann, Karen Steindorf
PURPOSE: After cancer treatment, it is desirable to maintain or regain a high quality of life (QoL) and the ability to accomplish everyday tasks well. Therefore, we substantiated the scarce knowledge regarding long-term QoL after breast cancer, burdensome problems, and unmet needs for more support. METHODS: Disease-free breast cancer survivors (n = 190) who had participated in two randomized controlled exercise trials during primary treatment were followed up to 5 years post-diagnosis...
May 8, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29737448/measuring-quality-of-life-in-patients-with-stress-urinary-incontinence-is-the-iciq-ui-sf-adequate
#16
Zuzanna Kurzawa, Jason M Sutherland, Trafford Crump, Guiping Liu
PURPOSE: The International Consultation on Incontinence Questionnaire Short Form (ICIQ-UI-SF) is a widely used four-item patient-reported outcome (PRO) measure. Evaluations of this instrument are limited, restraining user's confidence in the instrument. This study conducts a comprehensive evaluation of the ICIQ-UI-SF on a sample of urological surgery patients in Canada. METHODS: One hundred and seventy-seven surgical patients with stress urinary incontinence completed the ICIQ-UI-SF pre-operatively...
May 8, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29730851/psychometric-evaluation-of-the-chinese-version-of-the-child-health-utility-9d-chu9d-chn-a-school-based-study-in-china
#17
Peirong Yang, Gang Chen, Peng Wang, Kejian Zhang, Feng Deng, Haifeng Yang, Guihua Zhuang
PURPOSE: The Child Health Utility 9D (CHU9D), a new generic preference-based health-related quality of life (HRQoL) instrument, was developed specifically for the application in cost-effectiveness analyses of treatments and interventions for children and adolescents. The main objective of this study was to examine the psychometric property of the Chinese version of CHU9D (CHU9D-CHN) in a large school-based sample in China. METHODS: Data were collected using a multi-stage sampling method from third-to-ninth-grade students in Shaanxi Province, China...
May 5, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29730850/grooming-a-cat-customizing-cat-administration-rules-to-increase-response-efficiency-in-specific-research-and-clinical-settings
#18
Michael A Kallen, Karon F Cook, Dagmar Amtmann, Elizabeth Knowlton, Richard C Gershon
PURPOSE: To evaluate the degree to which applying alternative stopping rules would reduce response burden while maintaining score precision in the context of computer adaptive testing (CAT). DATA: Analyses were conducted on secondary data comprised of CATs administered in a clinical setting at multiple time points (baseline and up to two follow ups) to 417 study participants who had back pain (51.3%) and/or depression (47.0%). Participant mean age was 51.3 years (SD = 17...
May 5, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29725968/the-sensitivity-of-the-mos-sf-12-and-promis%C3%A2-global-summary-scores-to-adverse-health-events-in-an-older-cohort
#19
Joanne Allen, Fiona M Alpass, Christine V Stephens
PURPOSE: To compare the predictive validity of two self-reported outcome measures, the Patient-Reported Outcome Measurement Information System (PROMIS) Global Health measure and the 12-item Health Survey (SF-12). METHODS: Data were obtained from 1286 persons (55% female) aged 61-77 responding to a longitudinal survey. Inter-correlations of the SF-12 and PROMIS physical and mental summary scores were examined. ROC and AUC analyses were conducted to compare mental health score sensitivity to high levels of depression symptoms...
May 3, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29725967/prevalence-of-context-effects-testing-with-a-straightforward-question-of-yesterday-happiness
#20
Kitae Sohn
PURPOSE: Although contexts effects were found in responding to general happiness, it is little known how prevalent the effects can be in other measures of subjective wellbeing. If context effects are still found for a measure of subjective wellbeing that exhibits a host of features minimizing the effects, one can conclude that the effects can be quite prevalent. We aimed to assess this possibility. METHODS: We analyzed the Indonesian Family Life Survey by exploiting the random assignment of four versions of a list of 12 yesterday affects...
May 3, 2018: Quality of Life Research
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