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Quality of Life Research

Milea J M Timbergen, Lonneke V van de Poll-Franse, Dirk J Grünhagen, Winette T van der Graaf, Stefan Sleijfer, Cornelis Verhoef, Olga Husson
PURPOSE: Sporadic desmoid-type fibromatosis (DTF) is a rare, chronic, non-metastasising, disease of the soft tissues. It is characterised by local invasive and unpredictable growth behaviour and a high propensity of local recurrence after surgery thereby often having a great impact on health-related quality of life (HRQL). This study aims to review currently used HRQL measures and to asses HRQL issues among DTF patients. METHODS: A mixed methods methodology was used consisting of (1) a systematic literature review, according to the PRISMA guidelines (2009), using search terms related to sporadic DTF and HRQL in commonly used databases (e...
July 16, 2018: Quality of Life Research
Rebecca Mercieca-Bebber, Douglas Williams, Margaret-Ann Tait, Jessica Roydhouse, Lucy Busija, Chindhu Shunmuga Sundaram, Michelle Wilson, Ailsa Langford, Claudia Rutherford, Natasha Roberts, Madeleine King, Elisabeth Vodicka, Beth Devine
In the original publication of the article, the sentence "The ANZCTR is the fifth largest trial registry internationally, with 21,330 registered trials as at January 2018 [5]" in the Introduction section was published incorrectly.
July 16, 2018: Quality of Life Research
Samer A Kharroubi, Chaza Abou Daher
BACKGROUND: Conventionally, models used for health state valuation data have been parametric. Recently, a number of researchers have investigated the use of non-parametric Bayesian methods in this area. OBJECTIVES: In this paper, we present a non-parametric Bayesian model to estimate a preference-based index for a five-dimensional health state classification, namely EQ-5D. METHODS: A sample of 2997 members of the UK general population valued 43 health states selected from a total of 243 health states defined by the EQ-5D using time trade-off technique...
July 14, 2018: Quality of Life Research
Stefano Maratia, Sergio Cedillo, Javier Rejas
No abstract text is available yet for this article.
July 13, 2018: Quality of Life Research
Lidia Engel, Gang Chen, Jeffrey Richardson, Cathrine Mihalopoulos
PURPOSE: Wellbeing measures have been proposed for inclusion in economic evaluation to measure the effect of depression and compensate for shortcomings of existing multi-attribute utility instruments (MAUIs). The aims of this study were to identify dimensions of health-related quality of life (HRQoL) and wellbeing that are most affected by depression and to examine the extent to which these are captured by MAUIs. METHODS: Data were used from the Multi-Instrument Comparison study...
July 13, 2018: Quality of Life Research
Eng Joo Tan, Victoria Brown, Stavros Petrou, Mario D'Souza, Marjory L Moodie, Li Ming Wen, Louise A Baur, Chris Rissel, Alison J Hayes
PURPOSE: Few studies focus on the health-related quality of life (HRQoL) of preschool children with overweight or obesity. This is relevant for evaluation of obesity prevention trials using a quality-adjusted life year (QALY) framework. This study examined the association between weight status in the preschool years and HRQoL at age 5 years, using a preference-based instrument. METHODS: HRQoL [based on parent proxy version of the Health Utilities Index Mark 3 (HUI3)] and weight status were measured in children born in Australia between 2007 and 2009...
July 10, 2018: Quality of Life Research
Oscar Arrieta, Julissa Luvián-Morales, Jenny G Turcott, Luis F Oñate-Ocaña
PURPOSE: The cancer anorexia-cachexia syndrome (CACS) is highly prevalent in lung cancer (LC) patients (57-61%), and represents the direct cause of death in 20% of cases. Accurately quantifying CACS has been a challenging issue; consequently, this study presents the clinical validation of the Spanish version of the Functional Assessment of Anorexia-Cachexia Therapy (FAACT) scale in LC patients from Latin America. METHODS: The Spanish version of the FAACT and the Mexican-Spanish version of the EORTC-QLQ-C30 instruments were applied to a cohort of patients with LC at the National Cancer Institute of Mexico...
July 10, 2018: Quality of Life Research
Ting Zhou, Haijing Guan, Jiaqi Yao, Xiaomo Xiong, Aixia Ma
PURPOSE: Over the past decade, a changing spectrum of disease has turned chronic non-communicable diseases (CNCDs) into the leading cause of death worldwide. During the 2015 in China, there were more than 6.6 million deaths from NCDs, which was the highest rate around the world. In the present study, we performed a systematic review to analyze the health-related quality of life (HRQoL) according to EQ-5D-3L instrument in patients with different kinds of CNCDs in China. METHODS: We searched PubMed, Embase, Web of Science, Cochrane Library, VIP, WanFang Data, and CNKI databases up to April 12, 2018, to identify all relevant studies that reported on HRQoL assessed by EQ-5D-3L instrument in Chinese patients with CNCDs...
July 6, 2018: Quality of Life Research
Amaia Bilbao, Lidia García-Pérez, Juan Carlos Arenaza, Isidoro García, Gloria Ariza-Cardiel, Elisa Trujillo-Martín, Maria João Forjaz, Jesús Martín-Fernández
PURPOSE: To study the psychometric properties, including reliability, validity and responsiveness, of the Spanish EQ-5D-5L questionnaire for patients with hip or knee osteoarthritis (OA). METHODS: We included 758 patients with hip or knee OA who completed the EQ-5D-5L and Western Ontario and McMaster Universities Osteoarthritis Index (WOMAC) at baseline, of whom 644 also did 6 months later. The EQ-5D-5L contains five questions from which a utility index is derived...
July 5, 2018: Quality of Life Research
Thomas Patton, Hao Hu, Luan Luan, Keqin Yang, Shu-Chuen Li
OBJECTIVES: In order to address the current deficiency of health utility evidence relevant for economic evaluations involving treatments for rheumatoid arthritis (RA) in the Chinese setting, this study aims to develop a mapping algorithm linking the Health Assessment Questionnaire (HAQ) and EQ-5D-5L in a Chinese population of patients with RA. METHODS: An estimation sample was obtained from a cross-sectional study that collected HAQ, the pain Visual Analogue Scale, and EQ-5D-5L in RA patients in two tertiary referral hospitals in China...
July 4, 2018: Quality of Life Research
Larissa Zwar, Hans-Helmut König, André Hajek
PURPOSE: This study aims at extending current knowledge on consequences of informal caregiving by analyzing the influence of different caregiving types on mental, physical, and self-rated health longitudinally. METHODS: Data from wave 2008, 2011, and 2014 of the nationally representative German Ageing Survey were used, drawing on 16,412 observations aged 40-95 years in fixed effects (FE) regression analyses. Three informal caregiving types (helping around the house, looking after someone, nursing care services), which we used as explanatory variables and four health outcomes (depressive symptoms, self-rated health, pulmonary function, and morbidity), were assessed with structured interviews and written questionnaires...
June 28, 2018: Quality of Life Research
Anna Exner, Maria Kleinstäuber, Wolfgang Maier, Angela Fuchs, Juliana J Petersen, Ingmar Schäfer, Jochen Gensichen, Steffi G Riedel-Heller, Siegfried Weyerer, Horst Bickel, Hans-Helmut König, Birgitt Wiese, Gerhard Schön, Martin Scherer, Hendrik van den Bussche, Berend Terluin
PURPOSE: Psychosomatic symptoms and mental health problems are highly prevalent in multimorbid elderly people challenging general practitioners to differentiate between normal stress and psychopathological conditions. The 4DSQ is a Dutch questionnaire developed to detect anxiety, depression, somatization, and distress in primary care. This study aims to analyze measurement equivalence between a German version and the original Dutch instrument. METHODS: A Dutch and a German sample of multimorbid elderly people, matched by gender and age, were analyzed...
June 27, 2018: Quality of Life Research
Amandine Luquiens, Anis Ben Said, Haïm Sadik, Emilio Ferrer Sánchez Del Villar, Arthur Le Manach, Benjamin Ambrosino, Christophe Tzourio, Amine Benyamina, Henri-Jean Aubin
INTRODUCTION: The objective for this study was to combine drinking characteristics and two subjective measures, drinker identity and alcohol-related quality of life, i.e., negative impact of alcohol on quality of life, to determine relevant profiles for indicated prevention programs. In particular, we hypothesized that different profiles of students with high level of alcohol consumption exist when exploring subjectivity. METHODS: We performed an online survey among 16,930 students...
June 22, 2018: Quality of Life Research
Scott D Emerson, Louise C Mâsse, Tavinder K Ark, Kimberly A Schonert-Reichl, Martin Guhn
PURPOSE: The Satisfaction With Life Scale adapted for Children (SWLS-C) is a self-report measure of children's quality of life and has exhibited sound psychometric properties. In light of increasing ethno-cultural diversity, it is important to understand child life satisfaction across diverse subgroups. Employing children's language background as a proxy for cultural background among children in British Columbia, Canada, we examined (a) the cross-cultural measurement equivalence of the SWLS-C; and (b) cross-cultural relations of peer support and adult support with SWLS-C...
June 20, 2018: Quality of Life Research
Hangchuan Shi, Han Yu, Joaquim Bellmunt, Jeffrey J Leow, Xuanyu Chen, Changcheng Guo, Hongmei Yang, Xiaoping Zhang
PURPOSE: The question of whether orthotopic neobladder (ONB) reconstruction is superior to ileal conduit diversion (ICD) with respect to health-related quality of life (HRQoL) remains controversial. The goal of this study is to perform a meta-analysis to compare post-ICD and post-ONB HRQoL in patients with bladder cancer. METHODS: A systematic search of Medline, Embase, the Cochrane Central Register of Controlled Trials, and the annual congress abstracts of the European Association of Urology (EAU), the American Urological Association (AUA) and the Société Internationale d'Urologie (SIU) up to June 2017 was conducted to identify all relevant clinical trials using validated questionnaires to assess HRQoL...
June 20, 2018: Quality of Life Research
John M Salsman, Crystal L Park, Elizabeth A Hahn, Mallory A Snyder, Login S George, Michael F Steger, Thomas Merluzzi, David Cella
PURPOSE: The Patient-Reported Outcomes Measurement Information System (PROMIS) is a National Institutes of Health initiative designed to improve patient-reported outcomes using state-of-the-art psychometric methods. The aim of this study is to describe qualitative efforts to identify and refine items from psychological well-being subdomains for future testing, psychometric evaluation, and inclusion within PROMIS. METHOD: Seventy-two items from eight existing measures of positive affect, life satisfaction, meaning & purpose, and general self-efficacy were reviewed, and 48 new items were identified or written where content was lacking...
June 20, 2018: Quality of Life Research
Francesca Floris, Federica Comitini, GiovanBattista Leoni, Paolo Moi, Maddalena Morittu, Valeria Orecchia, Maria Perra, Maria Paola Pilia, Antonietta Zappu, Maria Rosaria Casini, Raffaella Origa
PURPOSE: The aim of this study has been to evaluate the physical, psychological, and social well-being in a large group of Sardinian adult patients with transfusion-dependent beta-Thalassemia when compared with a group of healthy subjects of the same age and geographical extraction. METHODS: Male or female patients ≥ 18 years of age with Thalassemia major on regular transfusion at Thalassemia Center in Cagliari (Italy) were requested to complete the World Health Organization Quality of life-BREF (WHOQOL-BREF) questionnaire...
June 19, 2018: Quality of Life Research
G Bali, S Kárpáti, M Sárdy, V Brodszky, B Hidvégi, F Rencz
BACKGROUND: Morphea can lead to considerable cosmetic or functional impairment; nevertheless, health-related quality of life (HRQoL) is rarely documented in adult morphea patients. OBJECTIVE: To investigate the impact of morphea on HRQoL and to identify determinants of impaired HRQoL. METHODS: A cross-sectional study has been carried out among adult morphea patients. HRQoL was evaluated by the Dermatology Life Quality Index (DLQI). The modified Localised Scleroderma Skin Severity Index (mLoSSI) and the Localised Scleroderma Damage Index (LoSDI) were applied to evaluate disease activity and damage, respectively...
June 19, 2018: Quality of Life Research
Gabriel Gijon-Nogueron, Laura Ramos-Petersen, Ana Belen Ortega-Avila, Jose Miguel Morales-Asencio, Silvia Garcia-Mayor
BACKGROUND: Epidemiological studies consistently report a 90% prevalence of foot pain. Mechanical and other non-pharmacological interventions such as orthoses and footwear can play an important role in managing foot pathology in patients whose systemic disease is controlled. The effectiveness of treatment with insoles has been examined in various randomised controlled trials, which have reported immediate clinical improvements, with reduced foot pain and disability and enhanced functionality...
June 19, 2018: Quality of Life Research
Mark Wilberforce, David Challis, Linda Davies, Michael P Kelly, Chris Roberts
PURPOSE: Researchers investigating person-centredness in older people's long-term community care are hindered by the lack of appropriate measures. Studies have tended to rely on proxy indicators or generic instruments, risking invalid results. This new research aimed to develop and psychometrically test a person-centredness scale for use in older people's community services. METHODS: Questionnaire items were sourced from groups of older people and mapped to a conceptual framework of person-centredness...
June 19, 2018: Quality of Life Research
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