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Quality of Life Research

Rodolfo Castro, Raquel B De Boni, Paula M Luz, Luciane Velasque, Livia V Lopes, Antonieta Medina-Lara, Sandra W Cardoso, Marilia S De Oliveira, Ruth K Friedman, Beatriz Grinsztejn, Valdiléa G Veloso
PURPOSE: To assess health-related quality of life (HRQoL) and its associated factors among people living with HIV/AIDS (PLWHA) in Rio de Janeiro, Brazil. METHODS: A cross-sectional study including PLWHA receiving usual HIV-care at Instituto Nacional de Infectologia Evandro Chagas (INI/Fiocruz) was conducted between 2014 and 2016 in Rio de Janeiro, Brazil. The EQ-5D-3L assessed HRQoL; PHQ-2 and ASSIST were used for screening depression and substance use, respectively...
November 10, 2018: Quality of Life Research
Nigel P Stocks, David A González-Chica, Robyn L Woods, Jessica E Lockery, Rory S J Wolfe, Anne M Murray, Brenda Kirpach, Raj C Shah, Mark R Nelson, Christopher M Reid, Michael E Ernst, John J McNeil
PURPOSE: To explore the relationship between sociodemographic and lifestyle variables with health-related quality of life (HRQoL) of a large cohort of 'healthy' older individuals. METHODS: The sample included individuals aged 65+ years from Australia (N = 16,703) and the USA (N = 2411) enrolled in the ASPirin in Reducing Events in the Elderly (ASPREE) multicentre placebo-controlled trial study and free of cardiovascular disease, dementia, serious physical disabilities or 'fatal' illnesses...
November 8, 2018: Quality of Life Research
Johanna M H Nijsten, Ruslan Leontjevas, Martin Smalbrugge, Raymond T C M Koopmans, Debby L Gerritsen
PURPOSE: To explore the association between apathy and health-related quality of life (HRQoL) from resident and proxy perspectives and whether cognition and depression moderate this relationship. METHODS: Secondary analyses with baseline data from a cluster randomized trial on the effects of a care program for depression in Nursing Homes (NHs) were conducted. For HRQoL, the Visual Analogue Scale (VAS) and the Dutch version of the European Quality of Life (EQ-5D) were administered to 521 NH residents, and to professional caregivers reporting from the perspective of the NH resident (Resident-Proxy) and from their own perspective (Proxy-Proxy)...
November 7, 2018: Quality of Life Research
Marian Ådnanes, Jorid Kalseth, Solveig Osborg Ose, Torleif Ruud, Jorun Rugkåsa, Stephen Puntis
PURPOSE: Our study investigated quality of life (QoL) in patients with severe or non-severe mental illness diagnoses (SMI and non-SMI) and the association between QoL and service satisfaction measured as patients' perception of continuity of care (CoC), therapeutic relationship, and unmet service needs. METHODS: We conducted a national cross-sectional survey among 3836 mental health outpatients, of whom 1327 (34.6%) responded. We assessed QoL with the Manchester Short Assessment of Quality of Life (MANSA), CoC with the CONTINUUM, the therapeutic relationship with the Therapeutic Relationship in Community Mental Health Care (STAR-P) and developed a simple scale to measure unmet service needs...
November 3, 2018: Quality of Life Research
Scott D Barnett, Eric L Sarin, Linda Henry, Linda Halpin, Grace Pritchard, Alan M Speir
INTRODUCTION: The Minnesota Living with Heart Failure Questionnaire (MLHFQ) was designed to assess the impact of the adverse effects of heart failure (HF). Numerous reports suggest an additional third factor with the proposed third factor representing a social dimension. The purpose of this study was to use confirmatory factor analysis (CFA) to validate the factor structure of the MLWHFQ, and examine a proposed third factor structure. METHODS: Participants were 1290 individuals with open heart surgery for isolated valve repair or replacement between September 2005 and May 2016...
November 2, 2018: Quality of Life Research
George Kephart, Tanya L Packer, Åsa Audulv, Grace Warner
PURPOSE: Self-management ability is commonly assessed in chronic disease research and clinical practice. The purpose of this study was to assess the structural and convergent validity of three commonly used self-management outcome measures in a sample of persons with neurological conditions. METHODS: We used data from a Canadian survey of persons with neurological conditions, which included three commonly used self-management measures: the Partners in Health Scale (PIH), the Patient Activation Measure (PAM), and the Self-Efficacy for Managing a Chronic Disease Scale (SEMCD)...
November 2, 2018: Quality of Life Research
Edimansyah Abdin, Siow Ann Chong, Esmond Seow, Swapna Verma, Kelvin Bryan Tan, Mythily Subramaniam
OBJECTIVE: The current study aims to map the Positive and Negative Syndrome Scale (PANSS) onto the five-level EuroQol five-dimensional (EQ-5D-5L) and Short Form six-dimensional (SF-6D) utility scores for patients with schizophrenia. METHODS: A total of 239 participants with schizophrenia spectrum disorder were recruited from a tertiary psychiatric hospital in Singapore. Ordinary least squares (OLS), censored least absolute deviations and Tobit regression methods were employed to estimate utility scores from the EQ-5D-5L and SF-6D...
October 31, 2018: Quality of Life Research
M D Brundage, L Barbera, F McCallum, D M Howell
PURPOSE: To introduce the EPIC-CP symptom screening tool in routine ambulatory cancer care, and to evaluate its acceptability and perceived usefulness from the perspective of patients and clinicians. METHODS: Eligible prostate cancer patients from four cancer centres were recruited (November 2014-June 2015) from radiation or surgical oncology clinics. A physician and/or health care professional reviewed the EPIC-CP results as part of the clinical encounter. Patient experience with the tool was evaluated using a nine-item Patient Exit Survey (PES)...
October 31, 2018: Quality of Life Research
Max W de Graaf, Inge H F Reininga, Klaus W Wendt, Erik Heineman, Mostafa El Moumni
PURPOSE: The aim of this study was to assess whether injured patients have a different pre-injury health status compared to the Dutch population. METHODS: A broad range of injured patients (age ≥ 18 and ≤ 75 years) completed the condition-specific Short Musculoskeletal Function Assessment (SMFA-NL) and generic health-related quality of life questionnaire EuroQol-5D (EQ-5D), within 2 weeks after patients sustained an injury. Patients reported their health status of the week before their injury...
October 30, 2018: Quality of Life Research
Gang Chen, Fei Xu, Elisabeth Huynh, Zhiyong Wang, Katherine Stevens, Julie Ratcliffe
PURPOSE: To derive children and adolescents' preferences for health states defined by the Chinese version of Child Health Utility 9D (CHU9D-CHN) instrument in China that can be used to estimate quality-adjusted life years (QALYs) for economic evaluation. METHODS: A profile case best-worst scaling (BWS) and a time trade-off (TTO) method were combined to derive a Chinese-specific tariff for the CHU9D-CHN. The BWS survey recruited students from primary and high schools using a multi-stage random sampling method and was administered in a classroom setting, whilst the TTO survey adopted an interviewer-administrated conventional TTO task and was administered to a convenience sample of undergraduate students...
October 29, 2018: Quality of Life Research
Mingzhu Su, Xingxing Hua, Jialin Wang, Nengliang Yao, Deli Zhao, Weidong Liu, Yuewei Zou, Roger Anderson, Xiaojie Sun
PURPOSE: The purpose of the study was to examine health-related quality of life (HRQoL) about the most common cancers survivors (lung, stomach, colorectal, breast, and esophageal cancer) in rural China. METHODS: We administrated a cross-sectional study in three counties in Shandong province from August to September 2017. The five-level EuroQol-5-dimension (EQ-5D-5L) questionnaire was used to measure the HRQoL among cancer patients at least 8 months post-diagnosis...
October 29, 2018: Quality of Life Research
Christian König, Bastian Matt, Andreas Kortgen, Alison E Turnbull, Christiane S Hartog
PURPOSE: It is unknown how sepsis survivors conceptualize health-related quality of life (HRQL). We aimed to identify important HRQL domains for this population. METHODS: A literature search was performed to inform an interview guide. Open-ended interviews were held with 15 purposefully sampled sepsis survivors. Interview transcripts were analyzed by interpretative phenomenological analysis to allow themes to develop organically. Resulting codes were reviewed by an independent expert...
October 22, 2018: Quality of Life Research
Mohamed-Rachid Boulassel, Amira Al-Badi, Mohamed Elshinawy, Juhaina Al-Hinai, Muna Al-Saadoon, Zahra Al-Qarni, Hammad Khan, Rizwan Nabi Qureshi, Yasser Wali
PURPOSE: As treatment options for children with sickle cell anemia (SCA) continue to expand survival, evaluation of factors associated with health-related quality of life (HRQoL) is becoming an important aspect for further improving clinical management. Although the general features of SCA are similar, factors influencing HRQoL within a country may differ from those of other countries, therefore this study aimed to explore factors affecting HRQoL in children with SCA living in the Sultanate of Oman...
October 22, 2018: Quality of Life Research
Lysbert Meijer-Schaap, Anthony E J Dubois, Boudewijn J Kollen, Jet Tijmens-van der Hulst, Bertine M J Flokstra-de Blok, Elianne J L E Vrijlandt
PURPOSE: Children with bronchopulmonary dysplasia often develop complications that affect them well into adult life. Very little is known about how this affects their quality of life, since no sensitive instrument is available to measure health-related quality of life in this population. In this study, a Dutch parent-proxy instrument was developed for this purpose. METHODS: A list of items was generated after literature search and interviews with both parents of patients and clinical experts...
October 22, 2018: Quality of Life Research
Dhurata Ivziku, Marco Clari, Michela Piredda, Maria Grazia De Marinis, Maria Matarese
PURPOSE: We aimed to assess the influence of anxiety and depression on the physical and mental quality of life (QoL) in patient with chronic obstructive pulmonary disease (COPD) and caregiver dyads, detect the simultaneous effect of anxiety and depression of each partner on the other's QoL and determine the dyadic patterns. METHODS: A cross-sectional descriptive design was used. The actor-partner interdependence model estimated by structural equation modeling was used for the dyadic analysis...
October 19, 2018: Quality of Life Research
Lindsay O Neto, Elizabeth S Gromisch, Jessica Sloan, Tuula Tyry, Frederick W Foley
PURPOSE: Multiple sclerosis (MS) is a complex, chronic disease that can have debilitating effects on daily activities and well-being, compromising health-related quality of life. One underlying determinant of quality of life (QOL) is perceived illness intrusiveness, which examines the disruptiveness of the condition and/or its related treatment on engagement in interest and activities, in turn affecting psychological functioning. There is evidence that persons with MS (PwMS) have higher level of illness intrusiveness compared to those with other chronic conditions; however, limited research exists on differences by sex...
October 17, 2018: Quality of Life Research
Irina I Oltean, Mark A Ferro
PURPOSE: The purpose of the study was to test whether elevated levels of depressive and anxiety symptoms affect parent-proxy reports of health-related quality of life (HRQL) of children with mental disorder. METHODS: A sample of 114 children, who screened positive for mental disorder using the Mini International Neuropsychiatric Interview were studied. Parents' depressive symptoms were measured using the Center for Epidemiological Studies Depression Scale (CES-D) and anxiety symptoms using the State Trait Anxiety Inventory (STAI)...
October 16, 2018: Quality of Life Research
Ana Isabel Cobo-Cuenca, Noelia María Martín-Espinosa, María Aurora Rodríguez-Borrego, Juan Manuel Carmona-Torres
PURPOSE: To determine satisfaction with life (LISAT) and self-esteem in women with breast cancer and the relation between sociodemographic and clinical variables with LISAT and self-esteem. METHODS: Cross-sectional study with 514 Spanish women with breast cancer. Data were collected using an online questionnaire that included the Satisfaction with Life Questionnaire (LISAT-8) and the Rosenberg self-esteem scale. Variables are age, education, occupation, marital status, surgical treatment, breast reconstruction, adjuvant treatment, time since diagnosis, the self-esteem scale, and the LISAT...
October 15, 2018: Quality of Life Research
Thomas Perneger, Anne Lübbeke
PURPOSE: Self-rated health is a commonly used patient-reported outcome, but its responsiveness to is not well documented. We examined the ability of self-rated health to capture health changes attributable to a highly effective surgical intervention. METHODS: Prospective study of patients with severe osteoarthritis of the hip (N = 990) or knee (N = 907) who underwent total hip replacement (THA) or total knee replacement (TKA). Self-rated health was assessed pre-operatively and 1 year after surgery on a scale between "excellent" and "poor," along with other health items (other 11 items of the SF12 questionnaire) and multi-item Pain and Function scales...
October 15, 2018: Quality of Life Research
Asrul Akmal Shafie, Annushiah Vasan Thakumar, Ching Jou Lim, Nan Luo
PURPOSE: To determine the psychometric properties and performance of Malay and English versions of the EQ-5D-5L descriptive instrument in the general Malaysian population. METHODS: 1137 members of the Malaysian general public were sampled in this national study. Respondents were recruited by quota sampling of urbanicity, gender, age, and ethnicity. In face-to-face interviews, respondents first answered the EQ-5D-5L questionnaire administered using the EQ-Valuation Technology software, and then completed the EQ-5D-3L questionnaire on paper...
October 13, 2018: Quality of Life Research
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