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Quality of Life Research

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https://www.readbyqxmd.com/read/28730302/internal-resources-among-informal-caregivers-trajectories-and-associations-with-well-being
#1
Kristin Litzelman, Gina Tesauro, Rebecca Ferrer
PURPOSE: The experiences, skills, and internal resources that informal caregivers bring into their role may play a critical part in their mental health and well-being. This study examined how caregiver internal resources changed over a 10 year period, and how this was related to caregivers' well-being. METHODS: Data are from the Midlife in the United States (MIDUS) study, a national sample of adults, at two time points: 1995-1996 (T1) and 2004-2006 (T2). We identified subjects who reported being a caregiver at T2 and starting care after T1 (mean age = 56; 65% female)...
July 20, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28730301/biopsychosocial-factors-predict-quality-of-life-in-thoracolumbar-spine-surgery
#2
Dean A Tripp, Edward Abraham, Maude Lambert, Kate Wagg, Erin Bigney, Eden Daly, Phylicia Verreault, Neil Manson
PURPOSE: Surgical intervention is a treatment option for various spinal pathology but many patients report no improvement or even an exacerbation of symptoms like pain. This study examined the association of preoperative (pre-op) biopsychosocial risk factors with poor quality of life at 2 and 6 months using hierarchical models controlling demographic and medical variables. METHOD: Participants undergoing thoracolumbar spine surgery (N = 214) were provided with questionnaire packages to complete pre-op, at 2 and at 6-month postoperative clinical follow-ups (i...
July 20, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28730300/health-related-quality-of-life-in-paediatric-patients-with-congenital-heart-defects-association-with-the-type-of-heart-defect-and-the-surgical-technique
#3
A Heusch, H J Kahl, K O Hensel, G Calaminus
The aim of the study was to investigate the impact of a number of surgical interventions for a various congenital cardiac defects (CHDs) on self-reported HRQoL. METHODS: Patients who had received corrective surgery of several congenital heart defects (surgical VSD closure, Fallot, TGA after atrial or arterial switch or Fontan-type circulation for univentricular AV-connection) were interviewed in the office of their home peadiatric cardiologist. HRQoL in children along 7 dimensions was assessed using a standardised questionnaire (PEDQoL); information on the medical case history of each respondent was also collected...
July 20, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28721501/examining-transgender-health-through-the-international-classification-of-functioning-disability-and-health-s-icf-contextual-factors
#4
REVIEW
Melissa Jacob, Steven R Cox
PURPOSE: For many transgender individuals, medical intervention is necessary to live as their desired gender. However, little is known about Contextual Factors (i.e., Environmental and Personal) that may act as facilitators and barriers in the health of transgender individuals. Therefore, this paper sought to examine Contextual Factors of the World Health Organization's International Classification of Functioning, Disability, and Health that may facilitate or negatively impact the physical, psychological, and social functioning of transgender individuals...
July 18, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28712004/a-comparison-of-perceptions-of-quality-of-life-among-adults-with-spinal-cord-injury-in-the-united-states-versus-the-united-kingdom
#5
Alina Palimaru, William E Cunningham, Marcus Dillistone, Arturo Vargas-Bustamante, Honghu Liu, Ron D Hays
PURPOSE: To identify which aspects of life are most important to adults with spinal cord injury (SCI) and compare perspectives in the United States and the United Kingdom. METHODS: We conducted 20 in-depth interviews with adults with SCI (ten in the US and ten in the UK). Verbatim transcriptions were independently analyzed line-by-line by two coders using an inductive approach. Codes were grouped into themes about factors that constitute and affect quality of life (QOL)...
July 15, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28712003/association-between-chronic-conditions-and-health-related-quality-of-life-differences-by-level-of-urbanization-in-peru
#6
Alvaro Taype-Rondan, Elizabeth Sarah Abbs, Maria Lazo-Porras, William Checkley, Robert H Gilman, Liam Smeeth, J Jaime Miranda, Antonio Bernabe-Ortiz
PURPOSE: To evaluate the role of urbanization as an effect modifier for the association between specific chronic conditions and number of conditions with health-related quality of life (QOL). METHODS: We analyzed cross-sectional data from the CRONICAS Cohort Study conducted in Lima (highly urbanized), Tumbes (semi-urban), as well as rural and urban sites in Puno. Exposures of interest were chronic bronchitis, depressive mood, hypertension, type 2 diabetes, and a composite variable aggregating the number of chronic conditions (the four exposures plus heart disease and stroke)...
July 15, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28710673/ensuring-content-validity-of-patient-reported-outcomes-a-shadow-test-approach-to-their-adaptive-measurement
#7
Seung W Choi, Wim J van der Linden
PURPOSE: Most computerized adaptive testing (CAT) applications in patient-reported outcomes (PRO) measurement to date are reliability-centric, with a primary objective of maximizing measurement efficiency. A key concern and a potential threat to validity is that, when left unconstrained, individual CAT administrations could have items with systematically different attributes, e.g., sub-domain coverage. This paper aims to provide a solution to the problem from an optimal test design framework using the shadow-test approach to CAT...
July 14, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28707048/psychometric-evaluation-of-an-item-bank-for-computerized-adaptive-testing-of-the-eortc-qlq-c30-cognitive-functioning-dimension-in-cancer-patients
#8
Linda Dirven, Mogens Groenvold, Martin J B Taphoorn, Thierry Conroy, Krzysztof A Tomaszewski, Teresa Young, Morten Aa Petersen
BACKGROUND: The European Organisation of Research and Treatment of Cancer (EORTC) Quality of Life Group is developing computerized adaptive testing (CAT) versions of all EORTC Quality of Life Questionnaire (QLQ-C30) scales with the aim to enhance measurement precision. Here we present the results on the field-testing and psychometric evaluation of the item bank for cognitive functioning (CF). METHODS: In previous phases (I-III), 44 candidate items were developed measuring CF in cancer patients...
July 13, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28707047/the-quality-of-life-of-older-people-aging-in-place-a-literature-review
#9
REVIEW
Patricia Vanleerberghe, Nico De Witte, Claudia Claes, Robert L Schalock, Dominique Verté
PURPOSE: In order to cope with the challenges that are the result of an aging population, policies and services promote keeping elders in the community and letting them age in place rather than sending them to specialized institutions. Aging in place refers to the option where people can stay in their homes as they age. This policy option, however, poses various challenges and may also threaten the quality of life of the aging. A literature review was performed on the quality of life of older people aging in place to determine whether the actual assessment of quality of life can be used within aging in place...
July 13, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28707046/understanding-the-post-surgical-bariatric-experiences-of-patients-two-or-more-years-after-surgery
#10
Rebecca H Liu, Jennifer D Irwin
BACKGROUND: In Canada, one year after bariatric surgery follow-up appointments become less frequent and surgical recipients must cope with weight management more independently. Up to 50% of patients experience weight regain by two years post-surgery. Understanding the lived experiences of those who have gone through the bariatric process may shed light on what is needed to support others moving forward. Therefore, the purpose of the study was to gain an understanding of the physical, psychological, social, and clinic-related experiences of individuals who have undergone bariatric surgery at least two years prior...
July 13, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28702838/in-person-and-online-social-participation-and-emotional-health-in-individuals-with-multiple-sclerosis
#11
Alica Sparling, Lauren A Stutts, Haley Sanner, Marleen M Eijkholt
PURPOSE: Individuals with multiple sclerosis (MS) sometimes have barriers to social participation. The advent of the internet has created online support systems for social participation such as websites for individuals with MS. However, minimal research has been conducted about determinants of individuals' in-person and online social participation or how types of social participation contribute to emotional well-being. The present study aims are: (1) to assess the role of access to resources and other determinants as enabling in-person and online social participation, and (2) to analyze the association between social participation and emotional health of individuals with MS...
July 12, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28688085/fit-for-purpose-and-modern-validity-theory-in-clinical-outcomes-assessment
#12
Michael C Edwards, Ashley Slagle, Jonathan D Rubright, R J Wirth
PURPOSE: The US Food and Drug Administration (FDA), as part of its regulatory mission, is charged with determining whether a clinical outcome assessment (COA) is "fit for purpose" when used in clinical trials to support drug approval and product labeling. In this paper, we will provide a review (and some commentary) on the current state of affairs in COA development/evaluation/use with a focus on one aspect: How do you know you are measuring the right thing? In the psychometric literature, this concept is referred to broadly as validity and has itself evolved over many years of research and application...
July 7, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28685214/item-level-psychometrics-of-the-adl-instrument-of-the-korean-national-survey-on-persons-with-physical-disabilities
#13
Ickpyo Hong, Mi Jung Lee, Moon Young Kim, Hae Yean Park
PURPOSE: The aim of this study is to investigate the psychometrics of the 12 items of an instrument assessing activities of daily living (ADL) using an item response theory model. METHODS: A total of 648 adults with physical disabilities and having difficulties in ADLs were retrieved from the 2014 Korean National Survey on People with Disabilities. The psychometric testing included factor analysis, internal consistency, precision, and differential item functioning (DIF) across categories including sex, older age, marital status, and physical impairment area...
July 6, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28681336/a-comprehensive-questionnaire-for-the-assessment-of-health-related-quality-of-life-in-coeliac-disease-cdql
#14
Halfdan Skjerning, Jonathan Hourihane, Steffen Husby, Audrey DunnGalvin
Coeliac disease (CD) is a chronic immune-mediated disease in genetically susceptible individuals, induced by ingested gluten. The treatment for CD is a lifelong gluten-free diet (GFD). The GFD involves restrictions in diet that may impact on a person's Health-Related Quality of Life (HRQoL). AIM: The aim of the present study was to develop the Coeliac Disease Quality of Life questionnaire (CDQL): a comprehensive CD-specific HRQoL measure that can be completed by children, adolescents, and adults or by proxy...
July 5, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28681335/evaluating-measurement-invariance-across-assessment-modes-of-phone-interview-and-computer-self-administered-survey-for-the-promis-measures-in-a-population-based-cohort-of-localized-prostate-cancer-survivors
#15
Mian Wang, Ronald C Chen, Deborah S Usinger, Bryce B Reeve
PURPOSE: To evaluate measurement invariance (phone interview vs computer self-administered survey) of 15 PROMIS measures responded by a population-based cohort of localized prostate cancer survivors. METHODS: Participants were part of the North Carolina Prostate Cancer Comparative Effectiveness and Survivorship Study. Out of the 952 men who took the phone interview at 24 months post-treatment, 401 of them also completed the same survey online using a home computer...
July 5, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28677077/physical-activity-bowel-function-and-quality-of-life-among-rectal-cancer-survivors
#16
Robert S Krouse, Christopher S Wendel, David O Garcia, Marcia Grant, Larissa K F Temple, Scott B Going, Mark C Hornbrook, Joanna E Bulkley, Carmit K McMullen, Lisa J Herrinton
PURPOSE: Physical activity (PA) is positively associated with numerous health benefits among cancer survivors. This study examined insufficiently investigated relationships among PA, health-related quality of life (HRQOL), and bowel function (BF) in rectal cancer survivors. METHODS: RC survivors (n = 1063) ≥5 years from diagnosis in two Kaiser permanente regions were mailed a multidimensional survey to assess HRQOL and BF. PA was assessed by a modified Godin Leisure-Time Exercise Questionnaire...
July 4, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28677076/cross-cultural-adaptation-and-validation-of-the-danish-version-of-the-short-musculoskeletal-function-assessment-questionnaire-smfa
#17
Marianne Lindahl, Signe Andersen, Annette Joergensen, Christian Frandsen, Liselotte Jensen, Eirikur Benedikz
PURPOSE: The aim of this study was to translate and culturally adapt the Short Musculoskeletal Function Assessment (SMFA) into Danish (SMFA-DK) and assess the psychometric properties. METHODS: SMFA was translated and cross-culturally adapted according to a standardized procedure. Minor changes in the wording in three items were made to adapt to Danish conditions. Acute patients (n = 201) and rehabilitation patients (n = 231) with musculoskeletal problems aged 18-87 years were included...
July 4, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28674768/examining-gender-related-differential-item-functioning-of-the-veterans-rand-12-item-health-survey
#18
Jae Yung Kwon, Richard Sawatzky
PURPOSE: Previous research suggests that gender differences in patient-reported outcome measures (PROMs) may reflect measurement bias rather than true differences in underlying health status. The aim of this study is to examine whether the Veterans Rand 12-item Health Survey (VR-12) allows for unbiased comparisons of physical and mental health scores across gender. The VR-12 is a generic PROM consisting of 12 items with 3-6 response options for the measurement of mental and physical health...
July 3, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28674767/use-of-time-and-health-related-quality-of-life-in-10-to-13-year-old-children-not-all-screen-time-or-physical-activity-minutes-are-the-same
#19
Margarita D Tsiros, Michelle G Samaras, Alison M Coates, Timothy Olds
PURPOSE: To investigate associations between aspects of time use and health-related quality of life (HRQoL) in youth. METHODS: 239 obese and healthy-weight 10- to 13-year-old Australian children completed the Pediatric Quality of Life Inventory (PedsQL™) quantifying their health-related quality of life. Time use was evaluated over four days using the Multimedia Activity Recall for Children and Adolescents (MARCA), a validated 24 h recall tool. The average number of minutes/day spent in physical activity (divided into sport, active transport and play), screen time (divided into television, videogames and computer use), and sleep were calculated...
July 3, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28674766/reduction-of-quality-adjusted-life-years-qalys-in-patients-with-premenstrual-dysphoric-disorder-pmdd
#20
Kazuo Yamada, Eiichiro Kamagata
PURPOSE: Premenstrual dysphoric disorder (PMDD) refers to the depression that occurs during the premenstrual phase and remits soon after the onset of menses. It affects the quality of life (QOL) of patients with PMDD. Therefore, this preliminary survey from chart recordings aimed to understand the symptom appearance and QOL reduction patterns in patients with PMDD, and to examine the extent of the loss of their quality-adjusted life years (QALYs). METHODS: Participants were 66 untreated female patients with PMDD...
July 3, 2017: Quality of Life Research
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