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Journal of Intellectual Disability Research: JIDR

F Bertapelli, J S Curtis, B Carlson, M Johnson, B Abadie, S Agiovlasitis
BACKGROUND: Accelerometers and pedometers have been used to monitor the number of steps. However, the evidence on the step-counting accuracy of these devices - especially accelerometers - is limited in persons with Down syndrome (DS). This study therefore examined the accuracy of accelerometers placed on the hip or wrist and of a pedometer with a uni-axial accelerometer mechanism in measuring steps in persons with DS and whether device error is associated with walking speed, height, weight, body mass index, waist circumference, leg length, age or sex...
September 21, 2018: Journal of Intellectual Disability Research: JIDR
A L Barrowcliff, S C Oathamshaw, C Evans
BACKGROUND: There is paucity in availability of valid and reliable measures of psychopathology that can be routinely applied with an intellectual disability (ID) population in clinical practice. The psychometric properties of the Clinical Outcome Routine Evaluation-Learning Disabilities 30-Item version (CORE-LD30) are examined. METHOD: The CORE-LD30 was administered to 271 sequential referrals to three National Health Service (NHS) ID services providing psychological support...
September 21, 2018: Journal of Intellectual Disability Research: JIDR
M Swanepoel, T Haw
BACKGROUND: Parenting a child who has an intellectual disability has been shown to increase the risk for developing depression. The purpose of this study was to screen for depression and to determine if there is an association between depressive symptoms and certain sociodemographic factors in mothers with a child diagnosed with Down syndrome in state health care facilities in Johannesburg. METHODS: The study included 30 biological mothers of children between 6 months and 3 years diagnosed with Down syndrome postnatally...
September 19, 2018: Journal of Intellectual Disability Research: JIDR
D Dagnan, I Jackson, L Eastlake
BACKGROUND: Anxiety disorders have high prevalence in people with intellectual disabilities. In populations without intellectual disabilities, cognitive behavioural therapy is a first line psychological therapy for these presentations. There is no existing review of the range of methods and outcomes from intervention studies in this area. METHOD: A systematic review was carried out following guidance in the Cochrane handbook for systematic reviews of interventions...
September 18, 2018: Journal of Intellectual Disability Research: JIDR
G Glover, R Williams, G Tompkins, J Oyinlola
INTRODUCTION: Providing safe, high-quality admitted-patient care for people with intellectual disabilities (IDs) requires consideration for their special needs particularly in relation to communication and consent. To make allowance for these special requirements, it would be helpful for hospitals to know how often they are likely to arise. This study set out to identify the amount and patterns of use of acute, non-psychiatric hospital admitted-patient care in England by people with ID...
September 16, 2018: Journal of Intellectual Disability Research: JIDR
S M Mensch, M A Echteld, R Lemmens, A Oppewal, H M Evenhuis, E A A Rameckers
BACKGROUND: This study aimed to determine the relationship between motor abilities and quality of life in children with severe multiple disabilities. METHODS: In this cross-sectional study, motor abilities of 29 children (mean age 9.8 years; 45% girls) with severe multiple disabilities [IQ < 25; Gross Motor Function Motor Classification System level V] were measured with the MOtor eVAluation in Kids with Intellectual and Complex disabilities (Movakic) questionnaire (completed by the child's physical therapist)...
September 2, 2018: Journal of Intellectual Disability Research: JIDR
D-L Lamptey
BACKGROUND: This paper explored the health beliefs and behaviours of families towards the health needs of children with intellectual and developmental disabilities (IDD) in Accra, Ghana. The aim was to inform health promotion strategies for the children and their families. METHOD: Twenty-two parents of children with IDD participated in this study. Semi-structured interviews were the primary means of data collection. The interviews were analysed using constant comparison...
August 31, 2018: Journal of Intellectual Disability Research: JIDR
R E Nevill, B A Benson
BACKGROUND: This study explored the role of demographic, psychosocial, stress and life event-related risk factors for psychopathology and challenging behaviour in a clinical sample of adults with Down syndrome. METHOD: A convenience sample of adults with Down syndrome seen through a specialised clinic was assessed through interviews and questionnaires specifically designed for use in people with intellectual disabilities. RESULTS: Recent negative life events and stressors were significantly correlated with mental and behavioural health, and significantly predicted irritability, lethargy and depressed mood...
August 19, 2018: Journal of Intellectual Disability Research: JIDR
G W Rooker, N L Hausman, A B Fisher, M K Gregory, J L Lawell, L P Hagopian
BACKGROUND: Limited research has examined how the functions of self-injurious behaviour (SIB) relate to the production of injuries and the location, type or severity of those injuries. METHODS: Clinical and medical records were coded for 64 individuals hospitalised for SIB. When injuries were present, the physical properties of SIB and injuries were assessed across groups of individuals with automatically and socially maintained SIB. RESULTS: Injuries were observed for 35 of the individuals who engaged in SIB...
July 25, 2018: Journal of Intellectual Disability Research: JIDR
A M Muehlmann, S L Wolfman, D P Devine
BACKGROUND: Self-injurious behaviour is a debilitating characteristic that is commonly expressed in people with autism and other neurodevelopmental disorders, but the neurobiological basis of this maladaptive behaviour is not understood. Abnormal dopaminergic and glutamatergic neurotransmission has been implicated, especially in relation to basal ganglia and mesocorticolimbic circuits. As neurotensin is an important modulator of dopamine and glutamate in these circuits, we investigated its potential role in vulnerability for self-injury, using the pemoline model in rats...
July 23, 2018: Journal of Intellectual Disability Research: JIDR
V Bradley, D Hiersteiner, D Rotholz, J Maloney, H Li, A Bonardi, J Bershadsky
BACKGROUND: For people with intellectual and developmental disabilities, self-injurious behaviour (SIB) can have serious negative effects on both health and quality of life. This descriptive analysis will provide information on the characteristics and outcomes of a subsample of individuals who are identified as needing some or extensive support for SIB in the National Core Indicators Adult Consumer Survey sample. METHODS: The data for this analysis come from states that participated in the 2015-2016 data collection cycle of National Core Indicators Adult Consumer Survey which is a face-to-face survey of adults receiving services through state developmental disability agencies...
July 18, 2018: Journal of Intellectual Disability Research: JIDR
F H Boot, J Owuor, J Dinsmore, M MacLachlan
BACKGROUND: The World Health Organisation has launched a programme to promote Global Cooperation on Assistive Technology. Its aim is to increase access to high-quality affordable assistive products (AP) for everybody in need. People with intellectual disabilities (ID) are a specific group that could benefit from AP, but use less AP compared to their non-intellectual disabled peers. METHOD: A systematic literature search was carried out to identify barriers and potential facilitators for access to AP for people with ID globally...
July 10, 2018: Journal of Intellectual Disability Research: JIDR
M Shimoyama, K Iwasa, S Sonoyama
BACKGROUND: People with intellectual disabilities are more likely than people in the general population to experience life events associated with an increased risk of mental health problems. However, there has been little research in Japan on the prevalence of mental health problems in adults with intellectual disability (ID) or on associated factors and access to relevant services. METHODS: Informants completed the Japanese version of the Psychiatric Assessment Schedule for Adults with Developmental Disabilities Checklist, and questions on the use of mental health services, for 126 adults with ID living in Tokyo...
July 2, 2018: Journal of Intellectual Disability Research: JIDR
J Salavert, A Clarabuch, M J Fernández-Gómez, V Barrau, M P Giráldez, J Borràs
BACKGROUND: Few studies have looked at the prevalence of substance use disorders (SUD) in people with intellectual disability (ID). The results range between 1% and 6.4% and go up to 20% in people with ID and psychiatric disorders, probably underestimating real prevalence due to several limitations in these studies. ID confers risk for the development of SUD, which in turn will involve negative psychosocial and clinical consequences. We aimed to study the prevalence of SUD in a sample of patients with ID admitted to a brief hospitalisation psychiatric unit, describing them by type and severity and analysing their relationship with clinical, prognostic and access to treatment variables...
July 1, 2018: Journal of Intellectual Disability Research: JIDR
E Gardiner, A R Miller, L M Lach
BACKGROUND: The aim of the current study was to identify functional predictors of perceived impact of childhood disability among families of children with neurodevelopmental disorders and disabilities. We first examined the relationship between sub-domains of adaptive and problematic behaviour and perceived family impact. Second, we examined whether the same sub-domains would emerge as significant after controlling for the impact of child diagnosis, including autism spectrum disorder, cerebral palsy and intellectual disability...
October 2018: Journal of Intellectual Disability Research: JIDR
A M Brewe, D L Reisinger, S M Adlof, J E Roberts
BACKGROUND: Impairment in initiating joint attention (IJA) is associated with autism spectrum disorder (ASD) in children, although it is unclear when impairments arise. Due to the early development of IJA use and late diagnosis of ASD, groups at high-risk of ASD, such as infants with an older sibling with ASD (ASIBs) and infants with fragile X syndrome (FXS), provide opportunities to study early IJA behaviours for children who are later diagnosed with ASD. This study analysed these two groups to determine if IJA use differed compared with typically developing (TD) peers at 12 months and whether IJA was associated with later ASD outcomes...
October 2018: Journal of Intellectual Disability Research: JIDR
A Finkelstein, Y G Bachner, C Greenberger, R Brooks, A Tenenbaum
BACKGROUND: Although burnout has been recognised as an important stress-related problem among staff working with people with intellectual and developmental disabilities (IDD), literature on the subject is limited yet emerging. The aim of this study is twofold: (1) to evaluate the level of burnout within different professions working with IDD; (2) to examine the association between socio-demographic, professional and organisational characteristics and burnout. METHOD: One hundred ninety-nine professionals working with people with IDD were enrolled in the study (66% response rate)...
October 2018: Journal of Intellectual Disability Research: JIDR
D McCausland, P McCallion, D Brennan, M McCarron
BACKGROUND: The UN Convention on the Rights of Persons with Disabilities (CRPD) provides the benchmark for assessing human rights and citizenship for people with disabilities. This emphasises autonomy, choice, independence, equality and participation for individuals as its fundamental guiding principles. METHODS: This paper explores the exercise of human rights and citizenship for older adults with intellectual disabilities (ID) in Ireland, including choice-making, advocacy and political participation...
October 2018: Journal of Intellectual Disability Research: JIDR
E Bould, C Bigby, P C Bennett, T J Howell
BACKGROUND: Research has shown Australian group homes, and supported living options, fail to support people with intellectual disabilities (IDs) to develop social connections. This pilot study evaluates the effectiveness of a visiting dog walking program to facilitate encounters with other community members. METHOD: Sixteen adults with IDs were assigned to one of two groups, matched on key characteristics. Group 1 had 14, 1-hour outings in the community with a dog and their handler; Group 2 had 14 outings with a handler alone, followed by an additional five outings with a handler and a dog...
October 2018: Journal of Intellectual Disability Research: JIDR
A F Santoro, S M Shear, A Haber
BACKGROUND: Associations between childhood adversity and negative health outcomes are well documented within the general population; however, this relationship has yet to be confirmed in adults with intellectual and developmental disabilities (I/DD). Bridging the gap between public health and I/DD research is critical in order to better understand the ways in which the health of people with I/DD are compromised by adversity and social disadvantage and to develop preventative care frameworks and health-promoting practices specifically for adults with I/DD...
October 2018: Journal of Intellectual Disability Research: JIDR
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