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Journal of Intellectual Disability Research: JIDR

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https://www.readbyqxmd.com/read/28639298/prevalence-patterns-and-factors-associated-with-psychotropic-use-in-older-adults-with-intellectual-disabilities-in-ireland
#1
M O'Dwyer, J Peklar, N Mulryan, P McCallion, M McCarron, M C Henman
BACKGROUND: People with intellectual disability (ID) are at increased risk of exposure to psychotropic drugs and psychotropic polypharmacy because of the higher prevalence of mental health conditions present and more controversially, the use of these agents to treat challenging behaviours. Despite the fact that many adults with ID are exposed to psychotropic polypharmacy, few studies to date have focused on the patterns of use of multiple psychotropics, or factors associated with psychotropic polypharmacy, particularly in the older population...
June 21, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28612424/sleep-disordered-breathing-and-cognitive-functioning-in-preschool-children-with-and-without-down-syndrome
#2
A Joyce, D Dimitriou
BACKGROUND: Sleep affects children's cognitive development, preparedness for school and future academic outcomes. People with Down syndrome (DS) are particularly at risk for sleep-disordered breathing (SDB). To our knowledge, the association between SDB and cognition in preschoolers with DS is unknown. METHODS: We assessed sleep by using cardiorespiratory polygraphy in 22 typically developing (TD) preschoolers and 22 with DS. Cognition was assessed by using the Mullen Scales of Early Learning and behaviour by using the Strengths and Difficulties Questionnaire (SDQ)...
June 14, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28593714/autism-awareness-in-children-and-young-people-surveys-of-two-populations
#3
K Dillenburger, J-A Jordan, L McKerr, K Lloyd, D Schubotz
BACKGROUND: Increasingly, pupils on the autism spectrum are educated in inclusive mainstream classrooms. However, they often experience social isolation and bullying, and raising the awareness of autism in peers has been suggested as a remedy. METHODS: In order to assess autism awareness in peers, autism-related questions were included in two large-scale surveys: the Kids Life and Times survey for 11-year olds and the Young Life and Times survey for 16-year olds; a total of n = 3353 children and young people completed the surveys...
June 7, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28585394/wii-based-exercise-program-to-improve-physical-fitness-motor-proficiency-and-functional-mobility-in-adults-with-down-syndrome
#4
V Silva, C Campos, A Sá, M Cavadas, J Pinto, P Simões, S Machado, E Murillo-Rodríguez, N Barbosa-Rocha
BACKGROUND: People with Down syndrome (DS) usually display reduced physical fitness (aerobic capacity, muscle strength and abnormal body composition), motor proficiency impairments (balance and postural control) and physical functional limitations. Exergames can be an appealing alternative to enhance exercise engagement and compliance, whilst improving physical fitness and motor function. This study aims to analyse the effects of a Wii-based exercise program on physical fitness, functional mobility and motor proficiency of adults with DS...
June 6, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28573662/offenders-with-intellectual-disabilities-in-prison-what-happens-when-they-leave
#5
G H Murphy, P Chiu, P Triantafyllopoulou, M Barnoux, E Blake, J Cooke, R V E Forrester-Jones, N J Gore, J K Beecham
BACKGROUND: People with intellectual disabilities, if convicted of offences, may be sentenced to prison, but little is known about their life when they are released. METHOD: This study followed up men with intellectual disabilities who were leaving prisons in England. RESULTS: The men were hard to contact, but 38 men were interviewed, on average 10 weeks after leaving prison. The men were living in a variety of situations and often were very under-occupied, with limited social networks...
June 1, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28560761/physicians-reasons-not-to-discontinue-long-term-used-off-label-antipsychotic-drugs-in-people-with-intellectual-disability
#6
G M de Kuijper, P J Hoekstra
BACKGROUND: People with intellectual disability (ID) frequently use antipsychotic drugs on an off-label base, often for many years. Physicians' decisions to discontinue these drugs not only depend on patient characteristics, like the presence of mental or behavioural disorders, but also on environmental factors, such as inappropriate living circumstances, and on attitudes, knowledge and beliefs of staff, clients and their representatives towards the effects of antipsychotic drug use. In this study, we therefore investigated the influence of participant and setting-related factors on decisions of physicians not to discontinue off-label prescribed antipsychotics...
May 30, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28544066/type-2-diabetes-and-glucose-intolerance-in-a-population-with-intellectual-disabilities-the-stop-diabetes-cross-sectional-screening-study
#7
A J Dunkley, F Tyrer, L J Gray, S Bhaumik, R Spong, Y Chudasama, S-A Cooper, S Ganghadaran, M Davies, K Khunti
BACKGROUND: Adults with intellectual disabilities (ID) may be at increased risk of developing type 2 diabetes and cardiovascular disease, due to lifestyle factors, medications and other diagnosed conditions. Currently, there is lack of evidence on prevalence and prevention in this population. The aim of this study was to conduct a diabetes screening programme to determine prevalence of previously undiagnosed type 2 diabetes and impaired glucose regulation in people with ID. METHODS: Screening was conducted in a variety of community settings in Leicestershire, UK...
May 21, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28497469/prognostic-models-for-identifying-adults-with-intellectual-disabilities-and-mealtime-support-needs-who-are-at-greatest-risk-of-respiratory-infection-and-emergency-hospitalisation
#8
C M Perez, A P Wagner, S L Ball, S R White, I C H Clare, A J Holland, M Redley
BACKGROUND: Among adults with intellectual disabilities (ID), problems with eating, drinking and swallowing (EDS), and an associated need for mealtime support, are common, with an estimated 15% of adults known to specialist ID services requiring mealtime support. We set out to identify which adults with ID who receive mealtime support are at an increased risk of respiratory infections and emergency hospitalisation related to EDS problems. METHOD: An exploratory, prospective cohort study was undertaken in the East of England...
May 11, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28444813/optimism-and-positive-and-negative-feelings-in-parents-of-young-children-with-developmental-delay
#9
E Kurtz-Nelson, L L McIntyre
BACKGROUND: Parents' positive and negative feelings about their young children influence both parenting behaviour and child problem behaviour. Research has not previously examined factors that contribute to positive and negative feelings in parents of young children with developmental delay (DD). METHOD: The present study sought to examine whether optimism, a known protective factor for parents of children with DD, was predictive of positive and negative feelings for these parents...
April 26, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28387017/a-randomised-controlled-trial-on-evaluation-of-the-clinical-efficacy-of-massage-therapy-in-a-multisensory-environment-for-residents-with-severe-and-profound-intellectual-disabilities-a-pilot-study
#10
J S L Chan, W T Chien
BACKGROUND: Recent literature has suggested that relaxation activities can reduce the challenging behaviours of people with intellectual disabilities, particularly in severe and profound grades, due to the counteractive effect of muscle relaxation on emotional frustration or psychological distress. Despite having inconclusive evidence, multisensory environment (MSE) and massage therapy (MT) are the commonly used approaches to relaxation among these people. However, these two approaches have not yet practised or tested in combination for reducing these people's challenging behaviours...
April 7, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28386983/investigating-the-factors-that-affect-the-communication-of-death-related-bad-news-to-people-with-intellectual-disabilities-by-staff-in-residential-and-supported-living-services-an-interview-study
#11
I Tuffrey-Wijne, T Rose
BACKGROUND: Most staff working in intellectual disability services will be confronted with people with intellectual disabilities who need support around death, dying and bereavement. Previous studies suggest that intellectual disability staff tend to protect clients from knowing about death and avoid communication about death. The aims of this study were to gain further insight into the individual, organisational and contextual factors that affect the communication of death-related bad news to people with intellectual disabilities by intellectual disability staff and to develop guidelines for services to enable appropriate communication with clients about death and dying...
April 7, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28378398/a-nationwide-cross-sectional-survey-on-unusual-sleep-postures-and-sleep-disordered-breathing-related-symptoms-in-people-with-down-syndrome
#12
H Kuroda, H Sawatari, S Ando, T Ohkusa, A Rahmawati, J Ono, M Nishizaka, N Hashiguchi, F Matsuoka, A Chishaki
BACKGROUND: People with Down syndrome (DS) often have sleep-disordered breathing (SDB). Unusual sleep postures, such as leaning forward and sitting, are observed in people with DS. This study aimed to clarify the prevalence of unusual sleep postures and their relationships with SDB-related symptoms (SDB-RSs), such as snoring, witnessed apnoea, nocturnal awakening and excessive daytime sleepiness. METHODS: A questionnaire, including demographic characteristics and the presence of unusual sleep postures, as well as SDB-RSs, was completed by 1149 parents of people with DS from Japan...
April 5, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28612476/association-between-speech-language-general-cognitive-functioning-and-behaviour-problems-in-individuals-with-williams-syndrome
#13
N F Rossi, C M Giacheti
BACKGROUND: Williams syndrome (WS) phenotype is described as unique and intriguing. The aim of this study was to investigate the associations between speech-language abilities, general cognitive functioning and behavioural problems in individuals with WS, considering age effects and speech-language characteristics of WS sub-groups. METHODS: The study's participants were 26 individuals with WS and their parents. General cognitive functioning was assessed with the Wechsler Intelligence Scale...
July 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28612475/how-hiv-affects-health-and-service-use-for-adults-with-intellectual-and-developmental-disabilities
#14
A Durbin, H K Brown, S Bansal, T Antoniou, J K H Jung, Y Lunsky
OBJECTIVE(S): Although rates of human immunodeficiency virus (HIV) are similar for individuals with and without intellectual and developmental disabilities (IDD), very little is known about the health needs and service use of those with IDD and HIV. Among a population with IDD, we compared the physical and mental health profiles, as well as general and mental health service use for those with and without HIV. DESIGN: Retrospective cohort study in Ontario, Canada using linked administrative health and social service databases...
July 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28612474/inter-rater-reliability-of-professional-caregiver-reported-life-events-in-adults-with-intellectual-disabilities
#15
O Hove, J Assmus, K Braatveit, O E Havik
BACKGROUND: The inter-rater reliability (IRR) of the measure of life events in adults with intellectual disabilities was investigated. METHOD: Two staff members for each of 79 adults with intellectual disabilities (ID) living in group homes used a checklist to report the adults' exposure to and intensity of life events over the previous 12 months. The IRR was estimated with intraclass correlation analysis (ICC). The factors of the level of ID, number of years the rater knew the rated person and quality of community care were investigated for possible associations with level of reliability...
July 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28497508/new-horizons-for-mental-health-research-in-intellectual-disabilities
#16
EDITORIAL
André Strydom, Craig Melville
No abstract text is available yet for this article.
June 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28387067/clinical-and-genetic-aspects-of-the-15q11-2-bp1-bp2-microdeletion-disorder
#17
M G Butler
BACKGROUND: The 15q11.2 BP1-BP2 microdeletion (Burnside-Butler susceptibility locus) is an emerging condition with over 200 individuals reported in the literature. TUBGCP5, CFYIP1, NIPA1 and NIPA2 genes are located in this chromosome 15 region and when disturbed individually are known to cause neurological, cognitive or behavioural problems as well as playing a role in both Prader-Willi and Angelman syndromes. These syndromes were the first examples in humans of genomic imprinting and typically caused by a deletion but involving the distal chromosome 15q11-q13 breakpoint BP3 and proximally placed breakpoints BP1 or BP2 of different parental origin...
June 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/27862512/age-and-gender-related-differences-in-emotional-and-behavioural-problems-and-autistic-features-in-children-and-adolescents-with-down-syndrome-a-survey-based-study-of-674-individuals
#18
T Naerland, K A Bakke, S Storvik, G Warner, P Howlin
BACKGROUND: Recent studies have indicated an increased risk of autism, behavioural and emotional problems and attention-deficit/hyperactivity disorder in individuals with Down syndrome. METHOD: In a large-scale survey-based study, we examined the rates of these problems and their relationship to age and gender, in a sample of 674 individuals (4-18 years) with Down syndrome. The relationship with IQ level was also explored in a subsample (n = 175). The Strengths and Difficulties Questionnaire and the Social Communication Questionnaire were used to assess behavioural and emotional problems and autism traits...
June 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28276184/childhood-predictors-of-written-expression-in-late-adolescents-with-22q11-2-deletion-syndrome-a-longitudinal-study
#19
N Hamsho, K M Antshel, T L Eckert, W R Kates
BACKGROUND: 22q11.2 deletion syndrome (22q11DS) is the second most prevalent genetic syndrome and has a characteristic academic and behavioural phenotype. The primary objective of the current study was to examine the childhood predictors of written expression achievement in adolescents with 22q11DS. Written expression is an important skill that can impact an individual's overall academic performance, potentially resulting in increased levels of stress and exacerbation of psychiatric symptoms...
May 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28332245/parental-attributions-for-positive-behaviours-in-children-with-autism-spectrum-disorder
#20
P Bussanich, S L Hartley, D Bolt
BACKGROUND: The present study examined parental attributions for positive child behaviour in children with Autism Spectrum Disorder (ASD) and their association with parent outcomes. METHOD: In total, 175 couples who had a child with ASD (5-12 years) completed measures about the child's positive behaviour, ASD symptoms, functional skills and negative behaviour problems, and their own positive and negative affect and closeness in the parent-child relationship. A comparison group of 170 couples who had a child without a neurodevelopmental disability also completed measures...
March 22, 2017: Journal of Intellectual Disability Research: JIDR
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