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Journal of Intellectual Disability Research: JIDR

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https://www.readbyqxmd.com/read/28853219/numerical-activities-of-daily-living-in-adults-with-neurofibromatosis-type-1
#1
F Burgio, S Benavides-Varela, G Arcara, E Trevisson, D Frizziero, M Clementi, C Semenza
BACKGROUND: This study aimed to identify the mathematical domains affected in adults with neurofibromatosis 1 (NF1) and the impact of the numerical difficulties on the patients' activities of daily living. METHODS: We assessed 28 adult patients with NF1 and 28 healthy control participants. All participants completed the standardised battery of numerical activities of daily living along with clinical batteries of cognitive (Mini-Mental State Examination) and daily functioning (instrumental activities of daily living)...
August 29, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28836311/suspension-rates-of-students-with-autism-or-intellectual-disabilities-in-maryland-from-2004-to-2015
#2
M P Krezmien, J C Travers, K Camacho
BACKGROUND: Little research exists on suspension of students with autism or intellectual disabilities. We examined suspension rates of students with autism or intellectual disability in Maryland from 2004 to 2015 to understand whether race and disability status predicted the odds of being suspended. METHOD: We used school enrollment data and school suspension data in Maryland for analysis. Descriptive statistics by race and disability category were calculated. Logistic regression was used to examine differences in odds of suspension by race and by disability (ID and autism) each year...
August 24, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28833804/item-response-theory-analysis-applied-to-the-spanish-version-of-the-personal-outcomes-scale
#3
J Guàrdia-Olmos, M Carbó-Carreté, M Peró-Cebollero, C Giné
BACKGROUND: The study of measurements of quality of life (QoL) is one of the great challenges of modern psychology and psychometric approaches. This issue has greater importance when examining QoL in populations that were historically treated on the basis of their deficiency, and recently, the focus has shifted to what each person values and desires in their life, as in cases of people with intellectual disability (ID). Many studies of QoL scales applied in this area have attempted to improve the validity and reliability of their components by incorporating various sources of information to achieve consistency in the data obtained...
August 22, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28809068/false-belief-attribution-in-children-with-williams-syndrome-the-answer-is-in-the-emotion
#4
R Campos, P Martínez-Castilla, M Sotillo
BACKGROUND: Individuals with Williams syndrome (WS) show difficulties in attributing false beliefs, whereas they are better at attributing emotions. This study examines whether being asked about the emotion linked to a false belief, instead of explicitly about the belief, facilitates performance on theory of mind (ToM) tasks. METHOD: Thirty children with WS and 90 typically developing children, who were individually matched on mental age (50-112 months), were administered six explicit (i...
August 15, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28776780/the-construct-of-maternal-positivity-in-mothers-of-children-with-intellectual-disability
#5
M Jess, R P Hastings, V Totsika
BACKGROUND: Despite the elevated levels of stress, anxiety and depression reported by mothers of children with intellectual disabilities (ID), these mothers also experience positive well-being and describe positive perceptions of their child. To date, maternal positivity has been operationalised in different ways by using a variety of measures. In the present study, we tested whether a latent construct of maternal positivity could be derived from different measures of positivity. METHOD: One hundred and thirty-five mothers of 89 boys and 46 girls with ID between 3 and 18 years of age completed measures on parental self-efficacy, their satisfaction with life, family satisfaction, their positive affect and their positive perceptions of their child with ID...
August 3, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28748594/spanish-validation-of-the-pas-add-checklist-questionnaire-for-people-with-intellectual-disabilities-for-spanish-population
#6
A Martorell, M C González, P Gutiérrez, F Rincón, M H Núñez-Polo
BACKGROUND: The Psychiatric Assessment Schedule for Adult with Developmental Disability (PAS-ADD) is an international reference tool for the diagnosis and assessment of mental health problems and behavioural disorders among people with intellectual disabilities. Although the original PAS-ADD instrument has been validated in the Spanish language, the shorter PAS-ADD Checklist has yet not been validated. The aim of this study is to validate the PAS-ADD Checklist for the Spanish population...
July 26, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28699168/intellectual-disability-in-children-aged-less-than-seven-years-born-moderately-and-late-preterm-compared-with-very-preterm-and-term-born-children-a-nationwide-birth-cohort-study
#7
M Hirvonen, R Ojala, P Korhonen, P Haataja, K Eriksson, K Rantanen, M Gissler, T Luukkaala, O Tammela
BACKGROUND: Prematurity has been shown to be associated with an increased risk of intellectual disability (ID). METHOD: The aim was to establish whether the prevalence of ID, defined as significant limitations in both intellectual (intelligence quotient below 70) and adaptive functioning among moderately preterm (MP; 32(+0) -33(+6)  weeks) and late preterm (LP; 34(+0) -36(+6)  weeks) infants, is increased compared with that in term infants (≥37(+0)  weeks)...
July 11, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28675574/prevalence-of-hypertension-and-prehypertension-in-children-and-adolescents-with-intellectual-disability-in-southeastern-poland
#8
J Wyszyńska, J Podgórska-Bednarz, J Leszczak, A Mazur
BACKGROUND: There is insufficient information on the prevalence of hypertension (HPT) among children and adolescents with ID. AIM: The aim of this study was to determine the prevalence of HPT in children and adolescents with ID in comparison with the control group, which accounted for children and adolescents without ID. METHODS: The study included 568 students with ID, aged from 7 to 18, attending special education institutions in southeastern Poland...
July 3, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28895262/physical-and-mental-health-of-young-people-with-and-without-intellectual-disabilities-cross-sectional-analysis-of-a-whole-country-population
#9
G Young-Southward, E Rydzewska, C Philo, S-A Cooper
BACKGROUND: Transition to adulthood may be a period of vulnerability for health for individuals with intellectual disabilities. No large-scale studies have compared the health of individuals with and without intellectual disabilities undergoing transition. The aims of this study were (1) to compare health during transition for individuals with and without intellectual disabilities across a whole country population and (2) to establish whether transition is associated with health in the population with intellectual disabilities...
October 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28895261/the-effects-of-optimism-religion-and-hope-on-mood-and-anxiety-disorders-in-women-with-the-fmr1-premutation
#10
E P Lowell, B L Tonnsen, D B Bailey, J E Roberts
BACKGROUND: The FMR1 premutation, caused by a CGG trinucleotide repeat expansion on the FMR1 gene, has been identified as a genetic risk factor for mood and anxiety disorders. Building on recent studies identifying increased risk for mood and affective disorders in this population, we examined effects of potential protective factors (optimism, religion, hope) on depression and anxiety diagnoses in a prospective, longitudinal cohort. METHODS: Eighty-three women with the FMR1 premutation participated in the Structured Clinical Interview for DSM-IV-TR Disorders at two-time points, 3 years apart...
October 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28833840/genetic-disorders-and-neurobehavioural-phenotypes
#11
EDITORIAL
S Huijbregts, A Jansen
No abstract text is available yet for this article.
September 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28833839/-at-the-end-of-the-day-it-is-more-important-that-he-stays-happy-an-interpretative-phenomenological-analysis-of-people-who-have-a-sibling-with-22q11-2-deletion-syndrome
#12
J Goodwin, S Alam, L E Campbell
BACKGROUND: 22q11.2 deletion syndrome (22q11.2DS) is the most common microdeletion syndrome. However, there is little research examining the effect of this multisystem disorder on the family, particularly siblings. The current study was a phenomenological exploration of sense-making in siblings of a person with 22q11.2DS. METHOD: Interpretative phenomenological analysis informed a detailed and open examination of being a sibling of a person with 22q11.2DS. Using in-depth semistructured interviews, five typically developing siblings (two men, three women) of people with 22q11...
September 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28833838/syndrome-specific-modules-to-enhance-the-stepping-stones-triple-p-public-health-intervention
#13
L A Bezzina, L J Rice, P Howlin, B J Tonge, S L Einfeld
BACKGROUND: Service responses to behaviour phenotypes include care by expert clinicians, syndrome-specific clinics, disability-specific mental health services and generic mental health services. While these services contribute to care, they are often of limited accessibility. METHODS: We describe a population-wide public health intervention aimed at increasing the accessibility of services to the target population. Stepping Stones Triple P (SSTP) is a public health intervention of known efficacy in reducing behaviour problems when delivered to parents of children aged 0-12 with mixed developmental disabilities...
September 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28833837/abstracts
#14
(no author information available yet)
No abstract text is available yet for this article.
September 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28745018/a-comparison-between-linguistic-skills-and-socio-communicative-abilities-in-williams-syndrome
#15
P Alfieri, D Menghini, L Marotta, L De Peppo, L Ravà, F Salvaguardia, C Varuzza, S Vicari
BACKGROUND: Individuals with Williams syndrome (WS) show a disharmonic linguistic profile with a clear pattern of strengths and weaknesses. Despite their sociable nature, atypical socio-communicative abilities and deficits in communication and relationship with others have been found. AIM: The aim of the present study was to investigate whether linguistic skills (LS) were in line with the pragmatic and social use of language and the cognitive development of 32 individuals with WS (18 boys and 14 girls) with a mean chronological age of 12...
September 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28726285/a-cross-sectional-analysis-of-executive-function-in-down-syndrome-from-2-to-35%C3%A2-years
#16
S J Loveall, F A Conners, A S Tungate, L J Hahn, T D Osso
BACKGROUND: Previous research has indicated a unique profile of executive function (EF) in children and adolescents with Down syndrome (DS). However, there is a paucity of research on EF in adults with DS. This study aimed to gain a broader understanding of strengths and weaknesses in EF in DS from 2 to 35 years. METHOD: Parents of 112 individuals with DS between 2 and 35 years participated in this study. Parents either completed the Behaviour Rating Inventory of Executive Function - for individuals 6+ years - or the Behaviour Rating Inventory of Executive Function Preschool Version - for children 2-5 years...
September 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28664561/a-prospective-20-year-longitudinal-follow-up-of-dementia-in-persons-with-down-syndrome
#17
M McCarron, P McCallion, E Reilly, P Dunne, R Carroll, N Mulryan
GOAL: To examine dementia characteristics, age at onset and associated co-morbidities in persons with Down syndrome. METHOD: A total of 77 people with Down syndrome aged 35 years and older were followed up from 1996 to 2015. The diagnosis of dementia was established using the modified ICD 10 Criteria and a combination of objective and informant-based tests. Cognitive tests included the Test for Severe Impairment and the Down Syndrome Mental Status Examination; adaptive behaviour was measured using the Daily Living Skills Questionnaire, and data from the Dementia Questionnaire for People with Intellectual Disabilities have been available since 2005...
September 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28271572/problem-behaviour-and-psychosocial-functioning-in-young-children-with-williams-syndrome-parent-and-teacher-perspectives
#18
B P Klein-Tasman, K Lee
BACKGROUND: There is sparse literature about problem behaviour in young children with Williams syndrome (WS) and little consideration of the perspectives of multiple respondents. METHODS: Problem behaviour of 35 children with WS ages 2 to 6 was examined based on both parent and teacher report using the Achenbach preschool forms. RESULTS: The most prominent areas of difficulty based on both parent and teacher report were attention problems, pervasive developmental problems and emotion reactivity difficulties...
September 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28707360/reciprocity-in-autistic-and-typically-developing-children-and-adolescents-with-and-without-mild-intellectual-disabilities
#19
T Backer van Ommeren, H M Koot, S Begeer
The assessment of autism in individuals with mild intellectual disabilities (MID) is complicated because of the overlap between autistic traits and intellectual limitations. Impaired social emotional reciprocity is a core diagnostic criterion for autism. However, it is unknown whether reciprocal behaviour differs between MID individuals with or without an autism spectrum disorder (ASD). This study explored differences in reciprocal behaviour of 35 children and adolescents with MID (intelligence quotient 50-85): 15 with ASD (ASD-MID) and 20 with typical development (TD-MID) using the Interactive Drawing Test (IDT)...
August 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28707359/the-feasibility-of-using-pedometers-for-self-report-of-steps-and-accelerometers-for-measuring-physical-activity-in-adults-with-intellectual-and-developmental-disabilities-across-an-18-month-intervention
#20
L T Ptomey, E A Willis, J Lee, R A Washburn, C A Gibson, J J Honas, J E Donnelly
BACKGROUND: Improving physical activity in adults with intellectual and developmental disabilities (IDDs) is recommended to improve weight loss and general health. However, in order to determine the success of physical activity interventions, identification of feasible methods for assessment of physical activities is necessary. The purpose of this study is to assess the feasibility of adults with IDD to track daily steps and wear an accelerometer. METHODS: Overweight/obese adults with mild to moderate IDD followed a diet and physical activity program for 18 months...
August 2017: Journal of Intellectual Disability Research: JIDR
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