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Journal of Intellectual Disability Research: JIDR

V Bradley, D Hiersteiner, D Rotholz, J Maloney, H Li, A Bonardi, J Bershadsky
BACKGROUND: For people with intellectual and developmental disabilities, self-injurious behaviour (SIB) can have serious negative effects on both health and quality of life. This descriptive analysis will provide information on the characteristics and outcomes of a subsample of individuals who are identified as needing some or extensive support for SIB in the National Core Indicators Adult Consumer Survey sample. METHODS: The data for this analysis come from states that participated in the 2015-2016 data collection cycle of National Core Indicators Adult Consumer Survey which is a face-to-face survey of adults receiving services through state developmental disability agencies...
July 18, 2018: Journal of Intellectual Disability Research: JIDR
A J Esbensen, E K Hoffman, R Shaffer, E Chen, L Patel, L Jacola
BACKGROUND: Behavioural problems are common among children with Down syndrome (DS). Tools to detect and evaluate maladaptive behaviours have been developed for typically developing children and have been evaluated for use among children with intellectual and developmental disabilities. However, these measures have not been evaluated for use specifically in children with DS. This psychometric evaluation is important given that some clinically observed behaviours are not addressed in currently available rating scales...
July 18, 2018: Journal of Intellectual Disability Research: JIDR
F H Boot, J Owuor, J Dinsmore, M MacLachlan
BACKGROUND: The World Health Organisation has launched a programme to promote Global Cooperation on Assistive Technology. Its aim is to increase access to high-quality affordable assistive products (AP) for everybody in need. People with intellectual disabilities (ID) are a specific group that could benefit from AP, but use less AP compared to their non-intellectual disabled peers. METHOD: A systematic literature search was carried out to identify barriers and potential facilitators for access to AP for people with ID globally...
July 10, 2018: Journal of Intellectual Disability Research: JIDR
P S Arango, A Aparicio, M Tenorio
BACKGROUND: Several studies show that socio-economic status (SES) is related to the developmental trajectories of children with typical development (TD). However, few studies have analysed this relationship regarding children with neurodevelopmental disorders such as Down syndrome (DS). In this paper, we analyse the impact of SES in the neurodevelopmental trajectories of children with DS in comparison with children with TD. METHOD: Cognitive, language, motor and socio-emotional development were assessed in 31 children with DS between the ages of 15 and 80 months from high to low SES backgrounds...
July 8, 2018: Journal of Intellectual Disability Research: JIDR
E Rombouts, B Maes, I Zink
BACKGROUND: Both individuals with intellectual disabilities (ID) and staff may be more inclined to use manual signs during formal than informal activities. In addition, the sign use of individuals with ID and staff is positively related. It is unclear if activity type and the sign use of staff interact as they shape the sign use of individuals with ID. METHODS: Through non-continuous partial interval coding, we observed frequency of manual sign usage in adults with ID during communicative activities, non-communicative activities and mealtimes in four special schools and 4-day centres...
July 3, 2018: Journal of Intellectual Disability Research: JIDR
M Shimoyama, K Iwasa, S Sonoyama
BACKGROUND: People with intellectual disabilities are more likely than people in the general population to experience life events associated with an increased risk of mental health problems. However, there has been little research in Japan on the prevalence of mental health problems in adults with intellectual disability (ID) or on associated factors and access to relevant services. METHODS: Informants completed the Japanese version of the Psychiatric Assessment Schedule for Adults with Developmental Disabilities Checklist, and questions on the use of mental health services, for 126 adults with ID living in Tokyo...
July 2, 2018: Journal of Intellectual Disability Research: JIDR
D Morin, P Valois, A G Crocker, C Robitaille, T Lopes
BACKGROUND: Few studies have examined attitudes that may promote the social inclusion of persons with an intellectual disability (ID) among health care providers (HCPs). Yet these attitudes could impact the accessibility and quality of services provided to this population, as well as the general attitudes of HCPs. The objectives of this study were to (1) examine HCPs' pro-inclusion attitudes toward people with ID, (2) compare these to the general population's attitudes and (3) examine how HCPs' attitudes vary as a function of their socio-demographic characteristics...
July 2, 2018: Journal of Intellectual Disability Research: JIDR
J Salavert, A Clarabuch, M J Fernández-Gómez, V Barrau, M P Giráldez, J Borràs
BACKGROUND: Few studies have looked at the prevalence of substance use disorders (SUD) in people with intellectual disability (ID). The results range between 1% and 6.4% and go up to 20% in people with ID and psychiatric disorders, probably underestimating real prevalence due to several limitations in these studies. ID confers risk for the development of SUD, which in turn will involve negative psychosocial and clinical consequences. We aimed to study the prevalence of SUD in a sample of patients with ID admitted to a brief hospitalisation psychiatric unit, describing them by type and severity and analysing their relationship with clinical, prognostic and access to treatment variables...
July 1, 2018: Journal of Intellectual Disability Research: JIDR
E Eisenbaum
BACKGROUND: People with intellectual and developmental disabilities (IDD) have been overlooked in tobacco use research although they are likely to experience tobacco-related health disparities. This study examined tobacco product use and smoking frequency and amount among a sample of US Special Olympics athletes with IDD. METHODS: Multiple regression analysis was used to test whether age, gender, body mass index, blood pressure, bone density, eating fruits and vegetables and family member tobacco use were correlated with the number of cigarettes smoked per day...
June 19, 2018: Journal of Intellectual Disability Research: JIDR
S Mason-Roberts, A Bradley, T Karatzias, M Brown, D Paterson, R Walley, M Truesdale, L Taggart, C Sirisena
BACKGROUND: Individuals with intellectual disability (ID) are at greater risk of exposure to traumatic life events compared with the non-ID population. Yet no study to date has examined the role of multiple traumatisation and subsequent psychopathology in people with ID. The aim of this study was to explore the association between multiple traumatisation and subsequent mental health. METHODS: A preliminary cross-sectional study involving 33 participants with DSM-5 post-traumatic stress disorder completed self-report questionnaires on exposure to traumatic life events and post-traumatic stress disorder symptoms, anxiety, depression and general distress...
June 1, 2018: Journal of Intellectual Disability Research: JIDR
P C M Hamers, D A M Festen, H Hermans
BACKGROUND: Although high rates of depression symptoms are reported in adults with intellectual disabilities (IDs), there is a lack of knowledge about non-pharmacological treatment options for depression in this population. The first research question of this paper is: Which non-pharmacological interventions have been studied in adults with ID and depression? The second research question is: What were the results of these non-pharmacological interventions? METHOD: Systematic review of the literature with an electronic search in six databases has been completed with hand searches...
May 25, 2018: Journal of Intellectual Disability Research: JIDR
H Crawford, J Moss, C Stinton, G Singla, C Oliver
BACKGROUND: Hyperactivity and repetitive behaviour are characteristic features of fragile X syndrome (FXS). However, little is known about the influence of autism symptomatology on how these characteristics develop over time. We investigate the profiles and developmental trajectories of overactivity, impulsivity and repetitive behaviour, in males with FXS over three time points spanning 8 years. METHOD: Participants formed two subgroups, those who displayed elevated symptoms of autism at Time 1 (n = 37; Mage  = 16...
May 3, 2018: Journal of Intellectual Disability Research: JIDR
A Gulsrud, C E Lin, M N Park, G Hellemann, J McCracken
BACKGROUND: Self-injurious behaviours (SIB) are concerning, maladaptive behaviours that commonly occur in people with neurodevelopmental conditions and delays but seem to be particularly prevalent in children and adults with autism spectrum disorder (ASD). There has been increasing research examining the risk markers associated with the presence of SIB in people with ASD. Some of the factors associated with SIB have included cognitive abilities, adaptive functioning deficits and behaviour regulation impairments (e...
April 25, 2018: Journal of Intellectual Disability Research: JIDR
S S Hall, K M Hustyi, R P Barnett
BACKGROUND: Individuals with fragile X syndrome (FXS), the most common known inherited form of intellectual disability, are at increased risk for showing specific forms of self-injurious behaviour (SIB) such as hand biting and head hitting, suggesting that biological factors associated with the syndrome confers increased risk for SIB. Few studies, however, have examined the extent to which social-environmental variables can influence the occurrence of these behaviours in this population...
April 25, 2018: Journal of Intellectual Disability Research: JIDR
D Adams, H Heussler, K M Gray
No abstract text is available yet for this article.
August 2018: Journal of Intellectual Disability Research: JIDR
D Perez-Cruzado, A I Cuesta-Vargas
BACKGROUND: There are different instruments to measure energy expenditure in general population, but we do not know whether these instruments can be used in people with intellectual disability. METHODS: A sample of 33 participants was invited to wear a triaxial accelerometer during seven consecutive days. Energy expenditure was measured with the International Physical Activity Questionnaire Short Version (IPAQ-S) to gather data regarding the participant's descriptions of the physical activity performed...
August 2018: Journal of Intellectual Disability Research: JIDR
W F M Aertssen, B Steenbergen, B C M Smits-Engelsman
BACKGROUND: There is lack of valid and reliable field-based tests for assessing functional strength in young children with mild intellectual disabilities (IDs). AIM: The aim of this study was to investigate the test-retest reliability and construct validity of the Functional Strength Measurement in children with ID (FSM-ID). METHOD: Fifty-two children with mild ID (40 boys and 12 girls, mean age 8.48 years, SD = 1.48) were tested with the FSM...
August 2018: Journal of Intellectual Disability Research: JIDR
C Rattaz, C Michelon, K Munir, A Baghdadli
BACKGROUND: Challenging behaviours are highly prevalent in children and adolescents with autism spectrum disorders (ASD), but little is known about the prevalence and course of these behaviours during adulthood. The aims of this study were to describe the topography of challenging behaviours in a cohort of 106 young adults with ASD and to identify the risk factors for challenging behaviours. Our secondary objective was to study the changes in challenging behaviours from adolescence to early adult years...
July 2018: Journal of Intellectual Disability Research: JIDR
J Paynter, D Trembath, A Lane
BACKGROUND: The finding of positive outcomes at the group level for children with autism spectrum disorder (ASD) who complete comprehensive early intervention programmes often masks considerable individual variability. We therefore aimed to identify subgroups of children based on their response to intervention and to compare outcome variables between groups at two points in time. METHOD: We used model-based cluster analysis to explore response to intervention using a longitudinal design for 210 children with ASD who had completed an early intervention programme...
July 2018: Journal of Intellectual Disability Research: JIDR
M McCarron, P McCallion, A Coppus, J Fortea, S Stemp, M Janicki, K Wtachman
BACKGROUND: The International Summit on Intellectual Disability and Dementia (Glasgow, Scotland; October 2016) noted that advanced dementia can be categorised as that stage of dementia progression characterised by significant losses in cognitive and physical function, including a high probability of further deterioration and leading to death. METHOD: The question before the Summit was whether there were similarities and differences in expressions of advanced dementia between adults with intellectual disability (ID) and adults in the general population...
July 2018: Journal of Intellectual Disability Research: JIDR
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