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Journal of Intellectual Disability Research: JIDR

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https://www.readbyqxmd.com/read/28444813/optimism-and-positive-and-negative-feelings-in-parents-of-young-children-with-developmental-delay
#1
E Kurtz-Nelson, L L McIntyre
BACKGROUND: Parents' positive and negative feelings about their young children influence both parenting behaviour and child problem behaviour. Research has not previously examined factors that contribute to positive and negative feelings in parents of young children with developmental delay (DD). METHOD: The present study sought to examine whether optimism, a known protective factor for parents of children with DD, was predictive of positive and negative feelings for these parents...
April 26, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28387067/clinical-and-genetic-aspects-of-the-15q11-2-bp1-bp2-microdeletion-disorder
#2
M G Butler
BACKGROUND: The 15q11.2 BP1-BP2 microdeletion (Burnside-Butler susceptibility locus) is an emerging condition with over 200 individuals reported in the literature. TUBGCP5, CFYIP1, NIPA1 and NIPA2 genes are located in this chromosome 15 region and when disturbed individually are known to cause neurological, cognitive or behavioural problems as well as playing a role in both Prader-Willi and Angelman syndromes. These syndromes were the first examples in humans of genomic imprinting and typically caused by a deletion but involving the distal chromosome 15q11-q13 breakpoint BP3 and proximally placed breakpoints BP1 or BP2 of different parental origin...
April 7, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28387017/a-randomised-controlled-trial-on-evaluation-of-the-clinical-efficacy-of-massage-therapy-in-a-multisensory-environment-for-residents-with-severe-and-profound-intellectual-disabilities-a-pilot-study
#3
J S L Chan, W T Chien
BACKGROUND: Recent literature has suggested that relaxation activities can reduce the challenging behaviours of people with intellectual disabilities, particularly in severe and profound grades, due to the counteractive effect of muscle relaxation on emotional frustration or psychological distress. Despite having inconclusive evidence, multisensory environment (MSE) and massage therapy (MT) are the commonly used approaches to relaxation among these people. However, these two approaches have not yet practised or tested in combination for reducing these people's challenging behaviours...
April 7, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28386983/investigating-the-factors-that-affect-the-communication-of-death-related-bad-news-to-people-with-intellectual-disabilities-by-staff-in-residential-and-supported-living-services-an-interview-study
#4
I Tuffrey-Wijne, T Rose
BACKGROUND: Most staff working in intellectual disability services will be confronted with people with intellectual disabilities who need support around death, dying and bereavement. Previous studies suggest that intellectual disability staff tend to protect clients from knowing about death and avoid communication about death. The aims of this study were to gain further insight into the individual, organisational and contextual factors that affect the communication of death-related bad news to people with intellectual disabilities by intellectual disability staff and to develop guidelines for services to enable appropriate communication with clients about death and dying...
April 7, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28378398/a-nationwide-cross-sectional-survey-on-unusual-sleep-postures-and-sleep-disordered-breathing-related-symptoms-in-people-with-down-syndrome
#5
H Kuroda, H Sawatari, S Ando, T Ohkusa, A Rahmawati, J Ono, M Nishizaka, N Hashiguchi, F Matsuoka, A Chishaki
BACKGROUND: People with Down syndrome (DS) often have sleep-disordered breathing (SDB). Unusual sleep postures, such as leaning forward and sitting, are observed in people with DS. This study aimed to clarify the prevalence of unusual sleep postures and their relationships with SDB-related symptoms (SDB-RSs), such as snoring, witnessed apnoea, nocturnal awakening and excessive daytime sleepiness. METHODS: A questionnaire, including demographic characteristics and the presence of unusual sleep postures, as well as SDB-RSs, was completed by 1149 parents of people with DS from Japan...
April 5, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28332245/parental-attributions-for-positive-behaviours-in-children-with-autism-spectrum-disorder
#6
P Bussanich, S L Hartley, D Bolt
BACKGROUND: The present study examined parental attributions for positive child behaviour in children with Autism Spectrum Disorder (ASD) and their association with parent outcomes. METHOD: In total, 175 couples who had a child with ASD (5-12 years) completed measures about the child's positive behaviour, ASD symptoms, functional skills and negative behaviour problems, and their own positive and negative affect and closeness in the parent-child relationship. A comparison group of 170 couples who had a child without a neurodevelopmental disability also completed measures...
March 22, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28295826/prevalence-types-and-associations-of-medically-unexplained-symptoms-and-signs-a-cross-sectional-study-of-1023-adults-with-intellectual-disabilities
#7
M Osugo, J Morrison, L Allan, D Kinnear, S-A Cooper
BACKGROUND: Medically unexplained symptoms and signs are common in the general population and can respond to appropriate managements. We aimed to quantify the types and prevalence of unexplained symptoms and signs experienced by adults with ID and to determine the associated factors. METHOD: In a population-based study, 1023 adults with ID aged 16 and over had a detailed health assessment, which systematically considered symptoms and signs. Descriptive data were generated on their symptoms and signs...
March 9, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28281320/measuring-choice-for-adults-with-an-intellectual-disability-a-factor-analysis-of-the-adapted-daily-choice-inventory-scale
#8
M-A O'Donovan, E Byrne, P McCallion, M McCarron
BACKGROUND: For most people, choice making is an everyday occurrence, but for adults with an intellectual disability (ID), such opportunities are often limited, if not, absent. Defining choice, and related opportunity capacity and supports continue to feature prominently in academic, practice and policy discourse within the field of ID as reflected in the range of measures available. This paper examines the factor analytic properties of an adapted 14-item choice inventory scale. METHOD: Presence and type of choice were recorded in wave 1 of the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing using a choice inventory scale adapted for the Irish context for 753 participants with ID over age 40 years...
March 9, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28276184/childhood-predictors-of-written-expression-in-late-adolescents-with-22q11-2-deletion-syndrome-a-longitudinal-study
#9
N Hamsho, K M Antshel, T L Eckert, W R Kates
BACKGROUND: 22q11.2 deletion syndrome (22q11DS) is the second most prevalent genetic syndrome and has a characteristic academic and behavioural phenotype. The primary objective of the current study was to examine the childhood predictors of written expression achievement in adolescents with 22q11DS. Written expression is an important skill that can impact an individual's overall academic performance, potentially resulting in increased levels of stress and exacerbation of psychiatric symptoms...
March 8, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28271572/problem-behaviour-and-psychosocial-functioning-in-young-children-with-williams-syndrome-parent-and-teacher-perspectives
#10
B P Klein-Tasman, K Lee
BACKGROUND: There is sparse literature about problem behaviour in young children with Williams syndrome (WS) and little consideration of the perspectives of multiple respondents. METHODS: Problem behaviour of 35 children with WS ages 2 to 6 was examined based on both parent and teacher report using the Achenbach preschool forms. RESULTS: The most prominent areas of difficulty based on both parent and teacher report were attention problems, pervasive developmental problems and emotion reactivity difficulties...
March 7, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28266087/rigidity-in-routines-and-the-development-of-resistance-to-change-in-individuals-with-prader-willi-syndrome
#11
E L Haig, K A Woodcock
BACKGROUND: Individuals with Prader-Willi syndrome (PWS) commonly show debilitating resistance to change, which has been linked to cognitive deficits in task switching. Anecdotal reports suggest that exposure to flexibility in routines during development may be beneficial for limiting subsequent resistance to change in people with PWS, which is consistent with a beneficial role of such exposure on the development of task switching, highlighted in typical children. Here, we aim to investigate the development of resistance to change in individuals with PWS and hypothesise that exposure to increased rigidity in routines will be associated with increased subsequent resistance to change...
March 6, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28261902/estimates-of-live-birth-prevalence-of-children-with-down-syndrome-in-the-period-1991-2015-in-the-netherlands
#12
G de Graaf, J J M Engelen, A C J Gijsbers, R Hochstenbach, M J V Hoffer, A J A Kooper, B Sikkema-Raddatz, M I Srebniak, A M F van der Kevie-Kersemaekers, L J C M van Zutven, E Voorhoeve
BACKGROUND: In Western countries, increasing maternal age has led to more pregnancies with a child with Down syndrome (DS). However, prenatal screening programs, diagnostic testing and termination of pregnancy influence the actual DS live birth (LB) prevalence as well. The aim of this study is to examine these factors in the Netherlands for the period 1991-2015. In our study, we establish a baseline for DS LB prevalence before non-invasive prenatal testing will be made available to all pregnant women in the Netherlands in 2017...
March 5, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28256017/the-outcomes-and-impact-scale-revised-the-psychometric-properties-of-a-scale-assessing-the-impact-of-service-provision
#13
S Koritsas, N Hagiliassis, C Cuzzillo
BACKGROUND: The Outcomes and Impact Scale - Revised (O&IS-R) was developed to measure the impact of service provision on adults with disability. The aim of this research was to explore the psychometric properties of the scale following a recent revision. METHOD: Adults with disability and/or their carers or support workers participated in the research. Participants were recruited across Australia using a range of strategies and completed the scale in relation to a service or support that they nominated...
March 3, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28247543/improving-diabetes-care-for-people-with-intellectual-disabilities-a-qualitative-study-exploring-the-perceptions-and-experiences-of-professionals-in-diabetes-and-intellectual-disability-services
#14
M Brown, L Taggart, T Karatzias, M Truesdale, R Walley, R Northway, S Macrae, M Carey, M Davies
BACKGROUND: Globally, diabetes is increasing with concerns about the impact on outcomes, including premature death and the costs associated with managing the condition. Research indicates that adults with intellectual disabilities (ID) are two to three times more likely to develop diabetes; however, there has been limited focus on diabetes service utilisation in this population. The aim of this study is to explore the perceptions and experiences of diabetes and ID practitioners. METHODS: A series of 1:1 semi-structured interviews were undertaken in one Scottish health service area...
February 28, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28224667/the-applicability-of-bright-light-therapy-in-adults-with-moderate-severe-or-profound-intellectual-disabilities-a-brief-report
#15
H Hermans, N Soerokromo, H Evenhuis
BACKGROUND: Bright light therapy (BLT) is effective in the treatment of depression in the general population. It may be a good treatment option for adults with intellectual disabilities (ID) too. However, its applicability and effectiveness are not studied in groups of adults with ID, yet. Our aim was to study the applicability of BLT in adults with ID. METHODS: Bright light therapy was offered for 2 weeks, using a 10 000 lux light box, to 14 adults with moderate, severe or profound ID...
February 22, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28198094/mainstream-health-professionals-stigmatising-attitudes-towards-people-with-intellectual-disabilities-a-systematic-review
#16
H A Pelleboer-Gunnink, W M W J Van Oorsouw, J Van Weeghel, P J C M Embregts
BACKGROUND: Equal access to mainstream healthcare services for people with intellectual disabilities (ID) still requires attention. Although recent studies suggest that health professionals hold positive attitudes towards people with ID, stigmatising attitudes may influence their efforts to serve people with ID in community healthcare practice. To stimulate inclusion in mainstream healthcare services, this systematic review focussed on barriers in attitudes of mainstream health professionals towards people with ID...
February 15, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28185338/distinguishing-subtypes-of-extrinsic-motivation-among-people-with-mild-to-borderline-intellectual-disability
#17
N Frielink, C Schuengel, P Embregts
BACKGROUND: According to self-determination theory, motivation is ordered in types, including amotivation, extrinsic motivation and intrinsic motivation. Self-determination theory defines four subtypes of extrinsic motivation: external motivation, introjected motivation, identified motivation and integrated motivation. Although it has been argued theoretically that the different types of motivation are universally applicable, Reid et al. () proposed a dichotomy of broad subtypes of extrinsic motivation for people with intellectual disability (ID) due to their cognitive limitations...
February 10, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28185328/where-is-the-subjective-straight-ahead-in-williams-syndrome
#18
A Saj, J Heiz, K Barisnikov
BACKGROUND: Individuals with Williams Syndrome (WS) are known to have particular difficulties when performing visuo-spatial tasks, which could be related to their difficulties in using a specific reference system to determine spatial relations. The aim of the present study was to assess the internal representation of the body's sagittal plane, which is an important benchmark for an egocentric frame of reference. METHOD: The results of 18 WS individuals (mean age = 20...
February 10, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28150394/the-nature-and-prevalence-of-catatonic-symptoms-in-young-people-with-autism
#19
J Breen, D J Hare
BACKGROUND: A proportion of young people with autism are reported to show catatonic-like symptoms in adolescence. The aetiology and prevalence of such presentations is unknown but include a set of behaviours that can best be described as attenuated. METHOD: The current study empirically investigated the presence and nature of such attenuated behaviours in children and adolescents with autism using a newly developed 34-item third party report measure, the Attenuated Behaviour Questionnaire...
February 1, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/27469584/reliability-of-parent-report-measures-of-sleep-in-children-with-down-syndrome
#20
A J Esbensen, E K Hoffman
BACKGROUND: Behavioural sleep disturbances are common among children with Down syndrome (DS). However, tools used to detect and evaluate behavioural sleep disturbances were developed for typically developing children and have not been evaluated for use among children with DS. The current study evaluates the psychometric properties of three measures of behavioural sleep disturbances that are currently being used with children with intellectual and developmental disabilities, including children with DS...
March 2017: Journal of Intellectual Disability Research: JIDR
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