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Journal of Intellectual Disability Research: JIDR

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https://www.readbyqxmd.com/read/28224667/the-applicability-of-bright-light-therapy-in-adults-with-moderate-severe-or-profound-intellectual-disabilities-a-brief-report
#1
H Hermans, N Soerokromo, H Evenhuis
BACKGROUND: Bright light therapy (BLT) is effective in the treatment of depression in the general population. It may be a good treatment option for adults with intellectual disabilities (ID) too. However, its applicability and effectiveness are not studied in groups of adults with ID, yet. Our aim was to study the applicability of BLT in adults with ID. METHODS: Bright light therapy was offered for 2 weeks, using a 10 000 lux light box, to 14 adults with moderate, severe or profound ID...
February 22, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28198094/mainstream-health-professionals-stigmatising-attitudes-towards-people-with-intellectual-disabilities-a-systematic-review
#2
H A Pelleboer-Gunnink, W M W J Van Oorsouw, J Van Weeghel, P J C M Embregts
BACKGROUND: Equal access to mainstream healthcare services for people with intellectual disabilities (ID) still requires attention. Although recent studies suggest that health professionals hold positive attitudes towards people with ID, stigmatising attitudes may influence their efforts to serve people with ID in community healthcare practice. To stimulate inclusion in mainstream healthcare services, this systematic review focussed on barriers in attitudes of mainstream health professionals towards people with ID...
February 15, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28185338/distinguishing-subtypes-of-extrinsic-motivation-among-people-with-mild-to-borderline-intellectual-disability
#3
N Frielink, C Schuengel, P Embregts
BACKGROUND: According to self-determination theory, motivation is ordered in types, including amotivation, extrinsic motivation and intrinsic motivation. Self-determination theory defines four subtypes of extrinsic motivation: external motivation, introjected motivation, identified motivation and integrated motivation. Although it has been argued theoretically that the different types of motivation are universally applicable, Reid et al. () proposed a dichotomy of broad subtypes of extrinsic motivation for people with intellectual disability (ID) due to their cognitive limitations...
February 10, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28185328/where-is-the-subjective-straight-ahead-in-williams-syndrome
#4
A Saj, J Heiz, K Barisnikov
BACKGROUND: Individuals with Williams Syndrome (WS) are known to have particular difficulties when performing visuo-spatial tasks, which could be related to their difficulties in using a specific reference system to determine spatial relations. The aim of the present study was to assess the internal representation of the body's sagittal plane, which is an important benchmark for an egocentric frame of reference. METHOD: The results of 18 WS individuals (mean age = 20...
February 10, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28150394/the-nature-and-prevalence-of-catatonic-symptoms-in-young-people-with-autism
#5
J Breen, D J Hare
BACKGROUND: A proportion of young people with autism are reported to show catatonic-like symptoms in adolescence. The aetiology and prevalence of such presentations is unknown but include a set of behaviours that can best be described as attenuated. METHOD: The current study empirically investigated the presence and nature of such attenuated behaviours in children and adolescents with autism using a newly developed 34-item third party report measure, the Attenuated Behaviour Questionnaire...
February 1, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28124412/development-and-psychometric-properties-of-the-psychological-therapies-outcome-scale-intellectual-disabilities-ptos-id
#6
N Vlissides, N Beail, T Jackson, K Williams, L Golding
BACKGROUND: There are few valid and reliable psychological therapy outcome measures available for use with people with intellectual disabilities (ID). The current study involved the development of a new scale; the Psychological Therapies Outcome Scale - Intellectual Disabilities (PTOS-ID), and the examination of its validity and internal consistency. METHOD: The PTOS-ID was administered to 175 people who have ID accessing specialist ID services. The construct validity of the scale was investigated through exploratory factor analysis, concurrent validity through comparison with the Brief Symptom Inventory and internal reliability through internal consistency analysis...
January 26, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28124397/nidotherapy-compared-with-enhanced-care-programme-approach-training-for-adults-with-aggressive-challenging-behaviour-and-intellectual-disability-nidabid-cluster-randomised-controlled-trial
#7
P Tyrer, S A Tarabi, P Bassett, N Liedtka, R Hall, J Nagar, A Imrie, H Tyrer
BACKGROUND: Aggressive challenging behaviour is very common in care homes for people with intellectual disability, and better psychological treatments are needed. Nidotherapy aims to change the environment of people with mental illness and is an appropriate treatment for this group of disorders. METHOD: The design was a cluster randomised trial of 20 care homes in which the staff either received training in nidotherapy or the enhanced care programme approach (ECPA), with equivalent duration of treatment in each arm...
January 26, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28116807/primary-health-care-for-people-with-an-intellectual-disability-an-exploration-of-consultations-problems-identified-and-their-management-in-australia
#8
J Weise, A Pollack, H Britt, J N Trollor
BACKGROUND: People with an intellectual disability (ID) have more complex and different patterns of health care needs than the general population. They experience a greater burden of multi-morbidity, high levels of undetected and unmanaged health issues, and premature mortality than the general population. Primary care has a key role in the health care of people with an ID. Currently, very little is known about the consultation type and length, problems managed, and how general practitioners (GPs) manage these problems for people with an ID compared with the general population...
January 24, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28090738/changes-in-objectively-measured-physical-activity-in-adolescents-with-down-syndrome-the-up-down-longitudinal-study
#9
R Izquierdo-Gomez, D Martinez-Gómez, I Esteban-Cornejo, P C Hallal, L García-Cervantes, A Villagra, O L Veiga
BACKGROUND: It is a priority to understand that physical activity behaviour over time is a priority in Down syndrome population in order to design and promote succesfull interventions to maintain or increase levels of physical activity. We aimed to study 1 and 2-year changes in objectively measured physical activity among a relatively large sample of adolescents with Down syndrome. METHODS: This study comprised a total of 99 adolescents with Down syndrome (38 girls) aged from 11 to 20 years old at baseline...
January 16, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28090702/intellectual-disability-and-patient-activation-after-release-from-prison-a-prospective-cohort-study
#10
J T Young, C Cumming, K van Dooren, N G Lennox, R Alati, M J Spittal, L Brophy, D B Preen, S A Kinner
BACKGROUND: Intellectual disability and patient activation may be important drivers of inequities in health service access and health outcomes for people with intellectual disability transitioning from prison to the community. We assessed the association between intellectual disability and patient activation after prison release and examined whether this association varied, depending on whether intellectual disability was identified prior to prison release. METHODS: Overall, 936 prisoners were screened for intellectual disability by using the Hayes Ability Screening Index and completed the Patient Activation Measure (PAM) within 6 weeks of prison release and again at 1, 3 and 6 months post-release...
January 16, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28090701/the-nationwide-register-based-prevalence-of-intellectual-disability-during-childhood-and-adolescence
#11
H Westerinen, M Kaski, L J Virta, H Kautiainen, K H Pitkälä, M Iivanainen
BACKGROUND: Many studies have evaluated the prevalence of intellectual disability (ID) by focusing on different ages during childhood and adolescence. Although the prevalence of ID is higher in older age groups, how cumulative prevalence increases, and what level it reaches before adulthood, remains unclear. METHOD: We used Care Register for Health Care to retrieve information on individuals born in 1996-2007 with any of the inclusion diagnoses of ID (F7 group and/or aetiological diagnoses) for the period 1996 to 2013...
January 16, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28090700/the-mandarin-chinese-version-of-the-beach-centre-family-quality-of-life-scale-development-and-psychometric-properties-in-taiwanese-families-of-children-with-developmental-delay
#12
S-J Chiu, P-T Chen, Y-T Chou, L-Y Chien
BACKGROUND: Early intervention (EI) practitioners provide individualised family-centred services to enhance the quality of life (QOL) of families of children with developmental delay (DD). Family QOL (FQOL) could be an important outcome indictor for EI, but there is no measurement tool for FQOL in Mandarin Chinese. The purpose of this study was to translate the Beach Centre FQOL Scale (BCFQOL) into Mandarin Chinese and to examine the psychometric properties of the scale in families of children with DD...
January 16, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28090687/prevalence-of-psychotropic-medication-use-and-association-with-challenging-behaviour-in-adults-with-an-intellectual-disability-a-total-population-study
#13
D L Bowring, V Totsika, R P Hastings, S Toogood, M McMahon
BACKGROUND: There is a high prevalence of psychotropic medication use in adults with Intellectual Disabilities (ID), often in the absence of psychiatric disorder, also associated with challenging behaviour. Previous research has focused on specific sample frames or data from primary care providers. There is also a lack of consistency in the definition of challenging behaviour used. METHODS: We adopted a total population sampling method. Medication data on 265 adults with ID were classified according to the Anatomical Therapeutic Chemical classification system...
January 16, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28054733/pain-underreporting-associated-with-profound-intellectual-disability-in-emergency-departments
#14
A Amor-Salamanca, J M Menchon
BACKGROUND: Little information is available regarding the visits made by persons with profound intellectual disability (PID) to general hospital emergency departments (ED). This study aims to know whether persons with PID who attend ED are given the same type of diagnoses as people with no such disability. METHODS: Over a period of 18 months, we gathered data from all non-scheduled visits to an ED by persons with PID to identify the reason for consultation (according to the classification used by the Spanish Society for Emergency Nursing) and the final diagnosis upon discharge...
January 5, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28054417/aboriginal-prisoners-and-cognitive-impairment-the-impact-of-dual-disadvantage-on-social-and-emotional-wellbeing
#15
S M Shepherd, J R P Ogloff, D Shea, J E Pfeifer, Y Paradies
BACKGROUND: Negligible information is available regarding the Social and Emotional Wellbeing (SEWB) needs of Aboriginal Australian individuals in custody with cognitive impairment. This is problematic given that Aboriginal people with cognitive impairment often experience dual disadvantage in the context of the justice system. This study sought to ascertain the relationship between cognitive impairment and mental health/cultural needs (SEWB) Aboriginal and Torres Strait Islander people in custody...
January 5, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/27933677/the-effect-of-slow-paced-breathing-on-stress-management-in-adolescents-with-intellectual-disability
#16
S Laborde, M S Allen, N Göhring, F Dosseville
BACKGROUND: Intellectual disabilities often create a state of chronic stress for both the person concerned and their significant others (family, caregivers). The development of stress management methods is therefore important for the reduction of stress in persons with intellectual disability. The aim of this experiment was to investigate the effect of slow-paced breathing on stress symptoms experienced by adolescents with intellectual disabilities during a cognitive task under time pressure...
December 9, 2016: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/27868264/profiles-of-children-with-down-syndrome-who-meet-screening-criteria-for-autism-spectrum-disorder-asd-a-comparison-with-children-diagnosed-with-asd-attending-specialist-schools
#17
G Warner, P Howlin, E Salomone, J Moss, T Charman
BACKGROUND: Recent research suggests that around 16% to 18% of children with Down syndrome (DS) also meet diagnostic criteria for autism spectrum disorder (ASD). However, there are indications that profiles of autism symptoms in this group may vary from those typically described in children with ASD. METHOD: Rates of autism symptoms and emotional and behavioural problems among children with DS who screened positive for ASD on the Social Communication Questionnaire (SCQ) (n = 183) were compared with a group of children with clinical diagnoses of ASD (n = 189) attending specialist schools in the UK...
January 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/27862519/accuracy-of-the-prediction-equation-for-the-determination-of-maximum-heart-rate-in-adults-with-down-syndrome
#18
P-H Boer
BACKGROUND: The purpose of the study was to determine if the regression formula developed for the prediction of maximum heart rate (HR) is valid for adults with Down syndrome (DS). METHODS: Thirty-six adults with DS (31.7 ± 6.8 years; 20 men, 16 women) completed a maximal aerobic test. Maximum HR and VO2 peak were measured directly on a motorised treadmill with a metabolic analyser. Predicted HR was estimated with the regression equation developed for individuals with DS (Fernhall et al...
January 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/27862508/a-matter-of-life-and-death-knowledge-about-the-body-and-concept-of-death-in-adults-with-intellectual-disabilities
#19
J McEvoy, B Treacy, J Quigley
BACKGROUND: An increased awareness of how people with intellectual disabilities (ID) understand death and dying is necessary in supporting life-long learning, post-bereavement support and planning end-of-life care. Previous research suggests that adults with ID have a limited or 'patchy' understanding of the basic biological components of death. However, the relationship between biological understanding of how the body works and conceptualisation of death remains unexplored in this population...
January 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/27489075/mortality-in-people-with-intellectual-disabilities-in-england
#20
G Glover, R Williams, P Heslop, J Oyinlola, J Grey
BACKGROUND: People with intellectual disabilities (IDs) die at younger ages than the general population, but nationally representative and internationally comparable mortality data about people with ID, quantifying the extent and pattern of the excess, have not previously been reported for England. METHOD: We used data from the Clinical Practice Research Datalink database for April 2010 to March 2014 (CPRD GOLD September 2015). This source covered several hundred participating general practices comprising roughly 5% of the population of England in the period studied...
January 2017: Journal of Intellectual Disability Research: JIDR
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