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Qualitative Health Research

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https://www.readbyqxmd.com/read/30234430/-it-changed-our-outlook-on-how-we-want-to-live-cancer-as-a-transformative-health-experience-for-young-adult-survivors-and-their-family-members
#1
Katharine J Head, Nicholas T Iannarino
Although young adult cancer survivors (YACSs) and their families face unique psychosocial and health-related challenges related to cancer, little is known about how the illness experience of cancer may positively transform their mental, physical, and social well-being following primary treatment. We conducted individual qualitative interviews with 30 YACSs and 21 of their family members. Participants described positive transformations as (a) perspective shifts on health and risk, (b) behavior changes toward more proactive healthy living, and (c) opportunities for more open communication about wellness...
September 20, 2018: Qualitative Health Research
https://www.readbyqxmd.com/read/30234423/rethinking-end-of-life-care-and-palliative-care-learning-from-the-illness-trajectories-and-lived-experiences-of-terminally-ill-patients-and-their-family-carers
#2
Maria Sercu, Ilse Beyens, Marc Cosyns, Fien Mertens, Myriam Deveugele, Peter Pype
Lynn conceptualized end-of-life (EoL) care for patients with advanced chronic-progressive illnesses as a combination of life-preserving/palliative care, the palliative aspect gradually becoming the main focus as death approaches. We checked this concept by exploring the advanced-terminal illness trajectories of 50 patients. Strategies heralding active therapy exhaustion were the catalyst for a participant's awareness of terminality, but were not a decisive factor in the divergent EoL care pathways we detected...
September 20, 2018: Qualitative Health Research
https://www.readbyqxmd.com/read/30222044/unpacking-social-isolation-in-men-s-suicidality
#3
John L Oliffe, Alex Broom, Michaela Popa, Emily K Jenkins, Simon M Rice, Olivier Ferlatte, Emma Rossnagel
Social isolation has featured as a significant and oftentimes all-encompassing risk factor for male suicide, yet, as an explanatory mechanism, it has not been unpacked in terms of what it constitutes in everyday life. The current photovoice study explores the various dimensions of the lived experience of social isolation, as embedded in accounts of suicidality drawn from 35 Canadian men. Study participants narrated the following factors as underpinning their social isolation: (a) family dysfunction and estrangement, (b) marginality and feeling like misfits at school and work, (c) alienation and provisional acceptance of health care, (d) ineffectual and self-harming management, (e) intrusive dislocating thoughts, and (f) society's burdensome and immoral subjects...
September 15, 2018: Qualitative Health Research
https://www.readbyqxmd.com/read/30222038/social-resilience-and-mental-health-among-eritrean-asylum-seekers-in-switzerland
#4
Sabra Melamed, Afona Chernet, Niklaus D Labhardt, Nicole Probst-Hensch, Constanze Pfeiffer
Eritreans comprise the largest group of asylum-seekers in Switzerland. Gaining recognized refugee status can take up to 36 months, during which time asylum-seekers live in a state of legal limbo, intensifying threats to their well-being. Resilience and mental health among this population is poorly understood. We interviewed 10 asylum-seekers residing in Switzerland using qualitative, in-depth interviews. Data were analyzed using the Framework Method. Results indicated that mental health was understood as a binary state rather than a continuum and that trusted friends and family were responsible for recognizing and attempting to treat mental health problems...
September 15, 2018: Qualitative Health Research
https://www.readbyqxmd.com/read/30215572/wandering-as-a-sociomaterial-practice-extending-the-theorization-of-gps-tracking-in-cognitive-impairment
#5
Joseph Wherton, Trisha Greenhalgh, Rob Procter, Sara Shaw, James Shaw
Electronic tracking through global positioning systems (GPSs) is used to monitor people with cognitive impairment who "wander" outside the home. This ethnographic study explored how GPS-monitored wandering was experienced by individuals, lay carers, and professional staff. Seven in-depth case studies revealed that wandering was often an enjoyable and worthwhile activity and helped deal with uncertainty and threats to identity. In what were typically very complex care contexts, GPS devices were useful to the extent that they aligned with a wider sociomaterial care network that included lay carers, call centers, and health and social care professionals...
September 14, 2018: Qualitative Health Research
https://www.readbyqxmd.com/read/30198419/the-mindful-body-a-phenomenology-of-the-body-with-multiple-sclerosis
#6
Hanneke van der Meide, Truus Teunissen, Pascal Collard, Merel Visse, Leo H Visser
For people living with multiple sclerosis (MS), one's own body may no longer be taken for granted but may become instead an insistent presence. In this article, we describe how the body experience of people with MS can reflect an ongoing oscillation between four experiential dimensions: bodily uncertainty, having a precious body, being a different body, and the mindful body. People with MS can become engaged in a mode of permanent bodily alertness and may demonstrate adaptive responses to their ill body. In contrast to many studies on health and illness, our study shows that the presence of the body may not necessarily result in alienation or discomfort...
September 10, 2018: Qualitative Health Research
https://www.readbyqxmd.com/read/30196766/urban-waste-collectors-in-belo-horizonte-brazil-their-perceptions-of-occupational-health-risk
#7
Marcos Paulo Gomes Mol, Sandy Cairncross, Dirceu Bartolomeu Greco, Leo Heller
Frequent contact with hazardous materials makes waste collection a potentially unhealthy activity. This article assesses the perception of waste management workers regarding work-related accidents in domestic and health service contexts in Brazil. Six focus groups were performed between June 2014 and August 2015. The aims of this study were to apprehend different aspects of the participants' health, workers' experiences of work-related accidents and perception of risks. Cuts and puncture injuries were reported most frequently in the line of work and were often considered as irrelevant...
September 10, 2018: Qualitative Health Research
https://www.readbyqxmd.com/read/30196762/-we-don-t-want-to-live-like-this-the-lived-experience-of-dislocation-poor-health-and-homelessness-for-western-australian-aboriginal-people
#8
Robyn Martin, Christina Fernandes, Cheryl Taylor, Amanda Crow, Desmond Headland, Nicola Shaw, Simone Zammit
Many policy interventions have attempted to address the entrenched disadvantage of Aboriginal Australians1 ; however, sustained improvement in social, cultural, physical, and emotional well-being is not evident. This disadvantage is compounded by paternalistic practices which do not promote Aboriginal self-determination or empowerment. This article presents the lived experience and voice of Aboriginal Australians spending time in parks in Perth, Western Australia. A community-based participatory action research approach informed by critical Indigenous methodologies involving collaboration between Aboriginal and non-Aboriginal service providers was used...
September 10, 2018: Qualitative Health Research
https://www.readbyqxmd.com/read/30196750/broadcasting-war-trauma-an-exploratory-netnography-of-veterans-youtube-vlogs
#9
Donna L Schuman, Karen A Lawrence, Natalie Pope
This exploratory netnographic study is among the first to investigate military video blogs (milvlogs) posted by Iraq and Afghanistan veterans who self-published stories on military-related trauma to YouTube. Studies have shown that self-published milvlogs provide benefits such as education, social support, and self-management of chronic physical and psychological illness. The aim of this study was to explore combat veterans' milvlogs and to determine themes that emerged across the videos. We transcribed and analyzed content from 17 milvlogs...
September 10, 2018: Qualitative Health Research
https://www.readbyqxmd.com/read/30182811/balancing-needs-and-autonomy-the-involvement-of-pregnant-women-s-partners-in-decisions-about-cfdna
#10
Ruth M Farrell, MaryBeth Mercer, Patricia K Agatisa, Marissa B Coleridge
Cell-free fetal DNA (cfDNA) screening is used to identify the presence of fetal genetic variants early in pregnancy. Patients' informed decision-making is central to the success of this new screen in clinical practice. Although research has focused on pregnant women's decision-making, little is known about partners' role and preferences as a member of the decision-making dyad. Using a grounded theory approach, this study analyzed 23 in-depth interviews to examine partners' perspectives about cfDNA screening and preferences with respect to their role in the decision-making process...
September 5, 2018: Qualitative Health Research
https://www.readbyqxmd.com/read/30182803/centralizing-temporality-in-adolescent-and-young-adult-cancer-survivorship
#11
Danielle Tindle, Carol Windsor, Patsy Yates
Drawing on Gadamer's hermeneutic philosophy, this article presents a key outcome of broader research into the phenomenon of adolescent and young adult cancer survivorship. Data were generated through semi-structured interviews with 45 participants from Australia, England, and the United States. The participants received a cancer diagnosis between the ages of 15 and 29 years and were aged 18 to 40 years at the time of interview. The key analytical finding depicts the concept of time as central to the experiences in survivorship...
September 5, 2018: Qualitative Health Research
https://www.readbyqxmd.com/read/30175660/a-framework-for-rigorous-qualitative-research-as-a-component-of-mixed-method-rapid-cycle-evaluation
#12
Megan Skillman, Caitlin Cross-Barnet, Rachel Friedman Singer, Christina Rotondo, Sarah Ruiz, Adil Moiduddin
As federal, state, and local governments continue to test innovative approaches to health care delivery, the ability to produce timely and reliable evidence of what works and why it works is crucial. There is limited literature on methodological approaches to rapid-cycle qualitative research. The purpose of this article is to describe the advantages and limitations of a broadly applicable framework for in-depth qualitative analysis placed within a larger rapid-cycle, multisite, mixed-method evaluation. This evaluation included multiple cycles of primary qualitative data collection and quarterly and annual reporting...
September 3, 2018: Qualitative Health Research
https://www.readbyqxmd.com/read/30175656/exploring-the-perceived-effectiveness-of-applied-theater-as-a-maternal-health-promotion-tool-in-rural-zambia
#13
Karlijn Massar, Cephas Sialubanje, Irene Maltagliati, Robert A C Ruiter
In the current study, we aimed (a) to extend the previous research conducted in Kalomo District on the psychosocial factors that influence women's intention to utilize maternal health care services (MHS) and (b) to explore community members' perceptions of the use of a theater-based health promotion program to positively influence these factors among pregnant women. Semistructured, in-depth interviews were conducted with 44 respondents, and confirmed the importance of knowledge, perceived behavioral control, attitudes, social norms, and risk perception as influences on women's health care utilization...
September 3, 2018: Qualitative Health Research
https://www.readbyqxmd.com/read/30175685/rebuttal-rejoinder-present-ipa-for-what-it-is-interpretative-psychological-analysis
#14
Max van Manen
I appreciate this opportunity to join Jonathan Smith in his rebuttal to my discussion of the meaning and method of his interpretative phenomenological analysis (IPA). Different forms of inquiry make unique contributions to our understanding of professional practices of psychology, education, pedagogy, nursing, medicine, and other health sciences. So, it should be worthwhile to understand the nature of these potential contributions and their methods. But what if some methods are misnamed, misconstrued, or misdirected? Does it matter? Perhaps or perhaps only academically...
September 2, 2018: Qualitative Health Research
https://www.readbyqxmd.com/read/30160202/the-impact-of-evidence-based-medicine-on-qualitative-metasynthesis-benefits-to-be-harvested-and-warnings-to-be-given
#15
Kirsti Malterud
Qualitative metasynthesis, developed as an interpretative and inductive methodology, is increasingly influenced by standards from evidence-based medicine, established as a strategy to support policy decisions and guidelines. Currently, principles and procedures from the format developed for systematic reviews are often applied for review and synthesis of all kinds of evidence, including results from qualitative studies. In this article, I substantiate these claims, discussing benefits to be harvested and warnings to be given when qualitative metasynthesis approaches the evidence-based medicine methodology...
August 30, 2018: Qualitative Health Research
https://www.readbyqxmd.com/read/30160198/peyakohewamak-needs-of-involved-nehiyaw-cree-fathers-supporting-their-partners-during-pregnancy-findings-from-the-enrich-study
#16
Richard T Oster, Grant Bruno, Maria J Mayan, Ellen L Toth, Rhonda C Bell
We sought to understand the needs of involved Nehiyaw (Cree) fathers who supported their partners during pregnancy. We used qualitative description and a community-based participatory research approach. We carried out in-depth semi-structured interviews with six Nehiyaw fathers. Four also participated in photovoice and follow-up interviews. All data were content analyzed qualitatively. Fathers felt they had to support their partners and overcome challenges resulting from intergenerational colonial impacts (residential schools particularly) by reclaiming their roles and acknowledging the pregnancy as a positive change...
August 30, 2018: Qualitative Health Research
https://www.readbyqxmd.com/read/30160197/-because-that-s-the-culture-providers-perspectives-on-the-mental-health-of-latino-immigrant-youth
#17
Katarzyna Olcoń, Lauren E Gulbas
Immigrant youth experience a combination of stressors, such as isolation and discrimination, that put them at a greater risk for negative mental health outcomes. Relying on interviews with 24 service providers who work with Latino immigrant youth, this article examines how they construct and intervene in the worlds of immigrant youth to improve youth's mental health outcomes. Inductive thematic analysis revealed providers' reliance on cultural interpretations of the psychosocial circumstances facing immigrant youth...
August 30, 2018: Qualitative Health Research
https://www.readbyqxmd.com/read/30132729/eating-according-to-one-s-genes-exploring-the-french-public-s-understanding-of-and-reactions-to-personalized-nutrition
#18
Tristan Fournier, Jean-Pierre Poulain
In this article, we analyze qualitatively the understanding of and reactions to personalized nutrition (PN) among the French public. Focus groups were conducted to identify the opinions and discourses about two applications of knowledge from nutritional (epi)genomics: a biotechnology (nutrigenetic testing) and a public awareness campaign (the "first thousand days of life" initiative). Our objective was to understand to what extent PN could lead to changes in eating practices as well as in the representations of food-health relationships within France, a country characterized by a strong commitment to commensality and a certain "nutritional relativism...
August 22, 2018: Qualitative Health Research
https://www.readbyqxmd.com/read/30132725/retrospective-accounts-of-the-process-of-using-and-discontinuing-psychiatric-medication
#19
Shimon Katz, Hadass Goldblatt, Ilanit Hasson-Ohayon, David Roe
Refusal to take psychiatric medication as prescribed is often considered negative, harmful, and even reflective of a sign of one's illness. However, recent research from diverse sources has challenged this axiom. The current study investigated the reasons, processes, experiences, and perceived impacts of medication discontinuation. The study was carried out using the narrative approach to life stories method. Participants were 12 women and 9 men who had discontinued their prescribed medication following psychiatric hospitalization...
August 22, 2018: Qualitative Health Research
https://www.readbyqxmd.com/read/30129874/improving-rehabilitative-care-of-methamphetamine-users-in-germany-the-expert-s-perspective
#20
Laura Hoffmann, Lisa Buchenauer, Nadine Schumann, Sara Lena Schröder, Olaf Martin, Matthias Richter
Methamphetamine is one of the most frequently used drugs worldwide. In Germany, methamphetamine use has greatly increased in recent years, presenting the rehabilitative treatment system with new challenges. In this study, we identified deficits and possibilities for optimization in the field of medical rehabilitation. A total of 39 interviews and two focus groups with experts along the treatment course of methamphetamine users were conducted. Our analyses indicate that methamphetamine users are more difficult to treat compared with patients who consume other drugs...
August 21, 2018: Qualitative Health Research
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