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Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses

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https://www.readbyqxmd.com/read/30191753/the-social-determinants-of-nursing-retention-in-a-pediatric-hematology-oncology-unit
#1
Paula R Mahon
Pediatric hematology/oncology units (PHOUs) are highly paced, stressful environments and can be difficult areas to work. Thus, these units can present issues when it comes to both recruiting and retaining health care professionals (HCPs). There is scant research addressing how the environment of a PHOU contribute to a HCP's desire to stay or leave this environment. To conduct this project, a critical ethnographic approach was used. The researcher conducted semistructured interviews ( n = 29), which included nurses ( n = 21), physicians ( n = 4), and allied health care staff ( n = 4)...
September 7, 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/30168367/social-media-use-among-parents-and-caregivers-of-children-with-cancer
#2
Elizabeth S Nagelhout, Lauri A Linder, Tara Austin, Bridget Grahmann Parsons, Brantley Scott, Emmie Gardner, Holly Spraker-Perlman, Anupam Verma, Mark N Fluchel, Yelena P Wu
Social media as an effective source of information and support among parents and other caregivers of children with cancer has not been explored. The purpose of this cross-sectional study was to describe caregivers' reasons for using social media, social media sites used, and predictors of social media usage. This study sample included 215 caregivers (96% parents) of children with cancer receiving cancer-related care at a tertiary children's hospital in the Intermountain West. Most of caregivers (74%) reported using social media in relation to their child's cancer and reported using social media to provide and receive support and information about their child's diagnosis or treatment...
August 31, 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/30146923/the-balancing-act-mothers-experiences-of-providing-care-to-their-children-with-cancer
#3
Monica L Molinaro, Paula C Fletcher
The effect of pediatric cancer and its treatment are overwhelming-these effects are multifaceted and felt by the entire family unit throughout the diagnosis and treatment process. Children experience a plethora of effects as a result of the treatment process; however, it is imperative to remember that a pediatric cancer diagnosis affects parents physically, emotionally, and psychologically as well. While much of the pediatric cancer treatment occurs at the hospital or in clinics, parents are often faced with additional caregiving responsibilities at home, and in many cases, it is mothers who provide care to their children, while also attempting to care for the siblings of their ill children...
August 27, 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/30027810/from-patient-to-provider-the-lived-experience-of-pediatric-oncology-survivors-who-work-as-pediatric-oncology-nurses
#4
Teresa M Conte
There is little known about the experiences of former pediatric oncology patients that are currently working as pediatric oncology nurses. Literature reviews yielded no direct research studies involving this group of nurses. The purpose of this phenomenological study was to describe the experiences of these former oncology patients that are now oncology nurses. Eleven pediatric oncology nurses were interviewed for this study, and the following themes emerged: Awe and Awkwardness, Guilt and Gratitude, Sharing My Story, Wanting to Remember/Wanting to Forget, and Past Treatment/Current Challenges...
July 1, 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/29871527/through-their-eyes-parental-perceptions-on-hospital-admissions-for-febrile-neutropenia-in-children-with-cancer
#5
Katrina J Anderson, Natalie K Bradford, Julia E Clark
Febrile neutropenia requires prompt assessment and antibiotic administration and is the most common reason for unexpected hospital admission in pediatric oncology. Parents are expected to be vigilant and "drop everything" to take their child to their nearest hospital for assessment if fever occurs. Delays in antibiotic administration are associated with poorer outcomes; however, delays are common. Our aim was to understand and describe the lived experience of parents of children with cancer who received treatment for fever with confirmed/suspected neutropenia...
September 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/29848164/usability-testing-of-an-interactive-communication-tool-to-help-children-express-their-cancer-symptoms
#6
Argerie Tsimicalis, Janet Rennick, Jennifer Stinson, Sylvie Le May, Julie Louli, Anne Choquette, Stephanie Treherne, Sarah Berube, Sunmoo Yoon, Cornelia Ruland
OBJECTIVE: Sisom is an interactive computer software program that allows children to rate the severity of their cancer symptoms. The study objectives were to describe the usability of Sisom in terms of ease of use, usefulness, and aesthetics and to offer suggestions for improvement. METHOD: A multisite, descriptive study was conducted to describe the usability of Sisom. A purposive sample of children, ages 6 to 12 years, being treated for cancer was recruited. English- and French-speaking children completed the eight tasks in Sisom recorded using Morae software and provided input via an audiotaped interview...
September 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/29658377/the-use-of-the-newest-vital-sign-health-literacy-instrument-in-adolescents-with-sickle-cell-disease
#7
Elizabeth Perry Caldwell, Patricia Carter, Heather Becker, Michael Mackert
The purpose of this article is to discuss the use of the Newest Vital Sign (NVS) health literacy instrument in adolescents with sickle cell disease. The NVS evaluates both literacy and numeracy (the ability to understand and work with numbers) as well as the ability to locate and apply information. It is important to validate the NVS for use in adolescents, as the only currently validated instrument, the Rapid Estimate of Adolescent Literacy in Medicine-Teen (REALM-Teen), does not measure numeracy or the ability to locate or apply information...
September 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/29652214/staff-perceptions-of-symptoms-approaches-to-assessment-and-challenges-to-assessment-among-children-with-cancer
#8
Lauri A Linder, Sarah E Wawrzynski
Nurses are often the first to recognize and respond to children's symptoms. This descriptive, exploratory study characterized how pediatric oncology health care providers characterize and assess children's cancer-related symptoms. The study also explored challenges associated with symptom assessment and information perceived as helpful in planning interventions. The setting was a Children's Oncology Group-affiliated hospital in the Intermountain West of the United States. Twenty-two pediatric oncology health care providers (95% female; 68% nurses) participated in one of four focus group sessions...
September 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/29649925/validity-and-reliability-of-the-turkish-version-of-the-adapted-rhodes-index-of-nausea-and-vomiting-for-pediatrics-by-child-arinvc-and-by-parent-arinvp
#9
Nurdan Akçay Didişen, Betül Yavuz, Figen Yardimci, D Zümrüt Basbakkal
The study was conducted methodologically to adapt the Adapted Rhodes Index of Nausea and Vomiting for Pediatrics by Child (ARINVc) and Adapted Rhodes Index of Nausea and Vomiting for Pediatrics by Parent (ARINVp) into Turkish. The scales are administered to children who receive chemotherapy and to their parents, respectively. The study sample consisted of 8- to 18-year-old children who were hospitalized in the pediatric oncology and hematology clinics of a university hospital, met the sampling criteria, and agreed to participate in the research...
September 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/29633659/road-to-home-program-a-performance-improvement-initiative-to-increase-family-and-nurse-satisfaction-with-the-discharge-education-process-for-newly-diagnosed-pediatric-oncology-patients-formula-see-text
#10
Marsha Gail Wilson Smith, Karen Sachse, Margaret T Perry
Families of children, adolescents, and young adults with a new oncology diagnosis must absorb knowledge and skills needed to care for their child at home during a period of emergent hospitalizations and intense medical interventions. Effective nurse-led teaching and discharge planning begun at diagnosis can prepare families to safely care for their child following discharge, and be a source of satisfaction. The objective of this performance improvement initiative was to increase family and nurse satisfaction with new diagnosis education and discharge...
September 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/29633658/development-of-electronic-chemotherapy-roadmaps-for-pediatric-oncology-patients
#11
Steven W Allen, Robert J Hayashi, Sally J Jones, Mandy H Drozda, Robert L Brown, Ian T Lackey, Andrea M Price, John M Newland, Deborah L Robinson, Christina J Carey, E Scott Rich, Frederick S Huang
A chemotherapy roadmap is a summary of the chemotherapy plan for a pediatric oncology patient. Chemotherapy roadmaps exist as paper documents for most, if not all, pediatric oncology programs. Paper chemotherapy roadmaps are associated with risks that can negatively affect the safety of the chemotherapy process. This institution explored the feasibility of converting paper chemotherapy roadmaps into an electronic form. The pediatric information systems team developed an innovative computer application that can generate electronic chemotherapy roadmaps, and the pediatric oncology program established a novel workflow that can operationalize them...
September 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/29616598/knowledge-beliefs-and-behaviors-related-to-palliative-care-delivery-among-pediatric-oncology-health-care-providers
#12
Jessica L Spruit, Cynthia J Bell, Valerie B Toly, Maryjo Prince-Paul
The care of pediatric patients with cancer and their families is complex and rapidly evolving. Despite significant advances in outcomes, symptoms of the disease and complications of therapy continue to cause suffering that may improve with the involvement of pediatric palliative care (PPC) services. This descriptive study responds to the observation of great variability in PPC utilization within pediatric oncology. Data collected from 156 health care professionals (nurses, advanced practice professionals, and physicians) from a statewide hematology alliance evaluates the knowledge, beliefs, and perceived barriers to PPC involvement...
July 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/29600747/the-effectiveness-of-a-hospital-based-school-liaison-program-a-comparative-study-of-parental-perception-of-school-supports-for-children-with-pediatric-cancer-and-neurofibromatosis-type-1
#13
Lisa Northman, Marybeth Morris, Caitlyn Loucas, Sarah Ross, Anna C Muriel, Dongjing Guo, Wendy B London, Peter Manley, Nicole J Ullrich
Childhood survivors of central nervous system (CNS) cancers (defined as cancers whose diagnosis or treatment affect the CNS) are at increased risk for educational related difficulties, as are children affected by neurofibromatosis type 1. This study evaluated the effectiveness of and satisfaction with a model of psychoeducation, consultation, and advocacy provided by a School Liaison Program (SLP) for families and schools of children with CNS-involved cancers compared with a control group of parents of children with a diagnosis of neurofibromatosis type 1 who did not receive school-based services...
July 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/29600746/-hopefully-this-will-all-make-sense-at-some-point-meaning-and-performance-in-illness-blogs
#14
Catherine McGeehin Heilferty
AIMS: To analyze the narratives of illness blogs created by parents of children with cancer. BACKGROUND: The profound effects of the childhood cancer experience on family members and the turn to the Internet by parents for help in the process are gaining research attention. DESIGN: The qualitative study design involved secondary narrative analysis of 14 illness blogs: 9 by the parents of children with neuroblastoma and 5 by the parents of children with leukemia...
July 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/29600745/consult-negotiate-and-involve-evaluation-of-an-advanced-communication-skills-program-for-health-care-professionals
#15
Jane Coad, Joanna Smith, David Pontin, Faith Gibson
Effective communication is central to children, young people, and their families' experiences of health care. Most patient complaints in developed health care systems result from ineffective communication, including inadequate information provision, not feeling listened to, failure to value patients concerns, and patients not feeling involved in care decisions. Advanced communication skills training is now embedded within cancer care policy in the United Kingdom and now features prominently within cancer education in many countries...
July 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/29589818/a-standardized-education-checklist-for-parents-of-children-newly-diagnosed-with-cancer-a-report-from-the-children-s-oncology-group
#16
Cheryl Rodgers, Vanessa Bertini, Mary Ashe Conway, Ashley Crosty, Angela Filice, Ruth Anne Herring, Julie Isbell, E Anne Lown DrPH, Kristina Miller, Margaret Perry, Paula Sanborn, Nicole Spreen, Nancy Tena, Cindi Winkle, Joan Darling, Abigail Slaven, Jeneane Sullivan, Kathryn M Tomlinson, Kate Windt, Marilyn Hockenberry, Wendy Landier
Parents of children newly diagnosed with cancer must acquire new knowledge and skills in order to safely care for their child at home. Institutional variation exists in the methods and content used by nurses in providing the initial education. The goal of this project was to develop a checklist, standardized across institutions, to guide nursing education provided to parents of children newly diagnosed with cancer. A team of 21 members (19 nurses and 2 parent advocates) used current hospital educational checklists, expert consensus recommendations, and a series of iterative activities and discussions to develop one standardized checklist...
July 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/29566596/assessment-tools-for-peripheral-neuropathy-in-pediatric-oncology-a-systematic-review-from-the-children-s-oncology-group
#17
Suzanne Smolik, Lesley Arland, Mary Ann Hensley, Debra Schissel, Barbara Shepperd, Kristin Thomas, Cheryl Rodgers
Peripheral neuropathy is a known side effect of several chemotherapy agents, including vinca alkaloids and platinum-based chemotherapy. Early recognition and monitoring of this side effect is an important role of the pediatric oncology nurse. There are a variety of peripheral neuropathy assessment tools currently in use, but the usefulness of these tools in identifying and grading neuropathy in children varies, and there is currently no standardized tool in place to evaluate peripheral neuropathy in pediatric oncology...
July 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/29560764/mucormycosis-early-identification-of-a-deadly-fungus-formula-see-text
#18
Ariel M Brettholz, Sabrina Opiola Mccauley
Mucormycosis is a rare invasive fungal infection that affects immunocompromised patients and is fatal when not identified and treated early. Diagnosis is often delayed as the symptoms are nonspecific and frequently mimic other common diseases. Pediatric patients with cancer are at risk for the infection; however, there is limited research that applies directly to the pediatric population. An understanding of the risk factors and clinical presentation of mucormycosis is crucial for the pediatric oncology provider to initiate the workup and provide prompt treatment...
July 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/29950139/usability-testing-of-an-interactive-virtual-reality-distraction-intervention-to-reduce-procedural-pain-in-children-and-adolescents-with-cancer
#19
Kathryn A Birnie, Yalinie Kulandaivelu, Lindsay Jibb, Petra Hroch, Karyn Positano, Simon Robertson, Fiona Campbell, Oussama Abla, Jennifer Stinson
PURPOSE: Needle procedures are among the most distressing aspects of pediatric cancer-related treatment. Virtual reality (VR) distraction offers promise for needle-related pain and distress given its highly immersive and interactive virtual environment. This study assessed the usability (ease of use and understanding, acceptability) of a custom VR intervention for children with cancer undergoing implantable venous access device (IVAD) needle insertion. METHOD: Three iterative cycles of mixed-method usability testing with semistructured interviews were undertaken to refine the VR...
June 1, 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/29947285/the-use-of-aromatherapy-to-reduce-chemotherapy-induced-nausea-in-children-with-cancer-a-randomized-double-blind-placebo-controlled-trial
#20
Anna Evans, Jemily Malvar, Cassie Garretson, Eliza Pedroja Kolovos, Mary Baron Nelson
INTRODUCTION: Chemotherapy-induced nausea can be distressing and difficult to manage in children with cancer. The purpose of this study was to investigate the utility of ginger aromatherapy in relieving chemotherapy-induced nausea in children with cancer. METHOD: This randomized, double-blind, placebo-controlled study of 49 children with cancer explored whether inhalation of the aroma of essential oil of ginger during chemotherapy decreased nausea compared with a placebo (water) or control (Johnson's baby shampoo) measured by prechemotherapy and postchemotherapy assessment with the Pediatric Nausea Assessment Tool (PeNAT)...
June 1, 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
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