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Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses

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https://www.readbyqxmd.com/read/27920234/patient-family-education-as-translational-science-in-pediatric-oncology
#1
EDITORIAL
Marilyn Hockenberry, Wendy Landier
No abstract text is available yet for this article.
December 4, 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/27920233/pilot-evaluation-of-a-palliative-and-end-of-life-communication-intervention-for-parents-of-children-with-a-brain-tumor
#2
Verna L Hendricks-Ferguson, Kamnesh Pradhan, Chie-Schin Shih, Karen M Gauvain, Javier R Kane, Jingxia Liu, Joan E Haase
Providing timely palliative and end-of-life care (PC/EOL) information to parents of children with a serious illness is a national health care priority. The goals of this study were to determine feasibility, acceptability, and parent responses related to a PC/EOL communication intervention, titled "Communication Plan: Early through End of Life (COMPLETE)" to parents of children with a brain tumor. The study was a 2-site prospective, single-group pilot study targeting parents' stress and coping outcomes. The sample included 13 parents of 11 children (ie, 11 families)...
December 4, 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/27889691/development-of-a-culturally-competent-service-to-improve-academic-functioning-for-latino-survivors-of-acute-lymphoblastic-leukemia-methodological-considerations
#3
Laura Bava, Alexis Johns, David R Freyer, Kathleen Ruccione
Many survivors of childhood acute lymphoblastic leukemia (ALL) develop neurocognitive deficits that compromise academic functioning, especially in the presence of sociodemographic risk factors. The extent to which these risk factors coexist for Latino ALL survivors is not well described, but with shifts in U.S. demographics and improved survival in ALL, culturally competent interventions are needed. The Achieving Best Cognitive Successes after Cancer service was designed and implemented by a team representing nursing, medicine, psychology, and social work...
November 25, 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/27864566/using-practice-based-evidence-to-improve-supportive-care-practices-to-reduce-central-line-associated-bloodstream-infections-in-a-pediatric-oncology-unit
#4
Lauri A Linder, Cheryl Gerdy, Rouett Abouzelof, Andrew Wilson
Children with cancer are a subset of patients with central lines with distinct risk factors for infection including periods of prolonged neutropenia and compromised mucous membrane integrity. This article relates the implementation of principles of practice-based evidence to identify interventions in addition to best practice maintenance care bundles to reduce central line-associated bloodstream infections involving viridans group streptococci and coagulase-negative staphylococci on an inpatient pediatric oncology unit...
November 18, 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/27672019/developing-the-evidence-base-in-pediatric-oncology-nursing-practice-for-promoting-health-related-quality-of-life-in-pediatric-oncology-patients
#5
Mary Ann Cantrell, Teresa M Conte, Melissa M Hudson, Kathy Ruble, Kaye Herth, Aziza Shad, Alyssa Canino
Research has shown that self-esteem and hopefulness are positively related among female childhood cancer survivors (CCS) and contribute to their health-related quality of life (HRQOL). HRQOL remains a significant outcome of treatment for CCS. This study examined the relationships among self-esteem, hopefulness, and HRQOL in young adult female CCS to inform the development of evidence-based practice guidelines for pediatric oncology nursing practice. An online survey was conducted with a sample of young adult female CCS from 58 treatment centers across the United States at 4 time points: at baseline and at 6 weeks, 3 months, and 6 months after initial measurement time...
September 25, 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/26811326/benefit-finding-in-maternal-caregivers-of-pediatric-cancer-survivors-a-mixed-methods-approach
#6
Victoria W Willard, Sarah A Hostetter, Katherine C Hutchinson, Melanie J Bonner, Kristina K Hardy
OBJECTIVE: Benefit finding has been described as the identification of positive effects resulting from otherwise stressful experiences. In this mixed methods study, we examined the relations between qualitative themes related to benefit finding and quantitative measures of psychosocial adjustment and coping as reported by maternal caregivers of survivors of pediatric cancer. METHODS: Female caregivers of survivors of pediatric cancer (n = 40) completed a qualitative questionnaire about their experiences caring for their child, along with several quantitative measures...
September 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/26721694/increasing-activities-of-daily-living-is-as-easy-as-1-2-3
#7
Deanna Best, Erin Osterkamp, Kathleen Demmel, Shivonne Kiniyalocts, Shawn Mock, Kelly Mulligan, Angela Bell, Crystal Doughman, Miranda Flemming, Laura Flesch, Deanna Hawkins, Abigail Pate, Ashley Bedel, Lori Ann McKenna, Ashley Teusink, Sonata Jodele, Rajaram Nagarajan, John Perentesis, Stella M Davies, Christopher E Dandoy
BACKGROUND: Human flora are the most common cause of bacteremia in immunocompromised patients. Activities of daily living (ADL), including oral care and daily chlorhexidine gluconate bathing, can lower the risk of infection. METHODS: To address ADL compliance in our pediatric oncology and bone marrow transplant patients, we adopted the ADL 1-2-3 initiative: daily chlorhexidine gluconate bath and linen change, at least 2 activities per day, and oral care 3 times per day...
September 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/26668212/building-bridges-from-hospital-to-home-understanding-the-transition-experience-for-the-newly-diagnosed-pediatric-oncology-patient
#8
Patricia A Branowicki, Judith A Vessey, Kendal L Jackson Temple, Amanda J Lulloff
Caregivers of pediatric oncology patients are expected to understand and adhere to a complex medical plan of care while at home; yet little is known about how to assess and evaluate the caregivers' abilities to adequately meet these demands. The purpose of this study was to describe the issues and daily challenges faced by caregivers as they transition from hospital to home after their child's cancer diagnosis. Patients and caregivers received a home visit by an expert pediatric oncology nurse within 72 hours postdischarge after initial diagnosis...
September 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/26668211/impact-of-caregiving-for-a-child-with-cancer-on-parental-health-behaviors-relationship-quality-and-spiritual-faith-do-lone-parents-fare-worse
#9
Lori Wiener, Adrienne Viola, Julia Kearney, Larry L Mullins, Sandra Sherman-Bien, Sima Zadeh, Andrea Farkas-Patenaude, Maryland Pao
Caregiving stress has been associated with changes in the psychological and physical health of parents of children with cancer, including both partnered and single parents. While parents who indicate "single" on a demographic checklist are typically designated as single parents, a parent can be legally single and still have considerable support caring for an ill child. Correspondingly, an individual can be married/partnered and feel alone when caring for a child with serious illness. In the current study, we report the results from our exploratory analyses of parent self-reports of behavior changes during their child's treatment...
September 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/26611755/hydroxyurea-in-pediatric-patients-with-sickle-cell-disease-what-nurses-need-to-know
#10
Allison L Rees
Sickle cell disease (SCD) is an inherited disorder in which sickled red blood cells occlude the small vessels of the body, reducing oxygen delivery to tissues and ultimately negatively affecting many of the body's major organs. Hydroxyurea has proven beneficial in the treatment of SCD and prevention of disease-related complications. The 2014 guidelines put forth by the National Heart, Lung, and Blood Institute recommend hydroxyurea treatment in infants 9 months and older, children, and adolescents with SCD-SS or SCD-Sβ(0) thalassemia regardless of clinical severity...
September 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/26611754/nurse-led-programs-to-facilitate-enrollment-to-children-s-oncology-group-cancer-control-trials
#11
REVIEW
Maureen Haugen, Katherine Patterson Kelly, Marcia Leonard, Denise Mills, Lillian Sung, Catriona Mowbray, Wendy Landier
The progress made over the past 50 years in disease-directed clinical trials has significantly increased cure rates for children and adolescents with cancer. The Children's Oncology Group (COG) is now conducting more studies that emphasize improving quality of life for young people with cancer. These types of clinical trials are classified as cancer control (CCL) studies by the National Cancer Institute and require different resources and approaches to facilitate adequate accrual and implementation at COG institutions...
September 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/26510645/from-chemo-to-college-the-college-experience-of-childhood-cancer-survivors
#12
MaryAnn Cantrell, Teresa M Conte
The purpose of this qualitative study was to explore how childhood cancer survivors experience college life. Five undergraduate students who are childhood cancer survivors, aged 19 to 22 years, participated in a 75-minute focus group interview. The survivors attended the same university located in the mid-Atlantic region of the United States. A transcript-based content analysis was used to analyze the data. Four themes and 2 subthemes were generated from the data analysis. Survivors described that the emotional growth they experienced from their cancer experience has provided them some psychological protection in managing the day-to-day challenges of college life and in making informed choices about engaging in high-risk behaviors...
September 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/26510642/development-and-evaluation-of-an-information-booklet-for-grandparents-of-children-with-cancer
#13
Claire Wakefield, Sixuan Lin, Donna Drew, Jordana McLoone, Emma Doolan, Alison Young, Joanna Fardell, Richard Cohn
The needs of grandparents of children with cancer are often overlooked. This study evaluated a new educational resource (booklet) targeted toward grandparents of children with cancer. A multidisciplinary committee developed a printed booklet targeting grandparents' information needs identified in a previous study. Seventy-nine grandparents of children with cancer (63% grandmothers, Mage = 66.04, SD = 7.0 years) read and evaluated the booklet. Quantitative responses were analyzed with SPSS, and qualitative responses were thematically coded using QSR NVivo 10...
September 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/27456981/dinutuximab-a-novel-immunotherapy-in-the-treatment-of-pediatric-patients-with-high-risk-neuroblastoma
#14
Joy Bartholomew, Tanea Washington, Sharon Bergeron, Danelle Nielson, Jennifer Saggio, Lindsay Quirk
Therapy combining dinutuximab with granulocyte macrophage colony stimulating factor, interleukin 2, and isotretinoin has significant side effects; however, these complications are generally predictable and can be managed proactively.
July 25, 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/27450361/understanding-effective-delivery-of-patient-and-family-education-in-pediatric-oncology-a-systematic-review-from-the-children-s-oncology-group
#15
Cheryl C Rodgers, Catherine M Laing, Ruth Anne Herring, Nancy Tena, Adrianne Leonardelli, Marilyn Hockenberry, Verna Hendricks-Ferguson
A diagnosis of childhood cancer is a life-changing event for the entire family. Parents must not only deal with the cancer diagnosis but also acquire new knowledge and skills to care safely for their child at home. Best practices for delivery of patient/family education after a new diagnosis of childhood cancer are currently unknown. The purpose of this systematic review was to evaluate the existing body of evidence to determine the current state of knowledge regarding the delivery of education to newly diagnosed pediatric oncology patients and families...
July 22, 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/27385664/patient-family-education-for-newly-diagnosed-pediatric-oncology-patients-consensus-recommendations-from-a-children-s-oncology-group-expert-panel
#16
Wendy Landier, JoAnn Ahern, Lamia P Barakat, Smita Bhatia, Kristin M Bingen, Patricia G Bondurant, Susan L Cohn, Sarah K Dobrozsi, Maureen Haugen, Ruth Anne Herring, Mary C Hooke, Melissa Martin, Kathryn Murphy, Amy R Newman, Cheryl C Rodgers, Kathleen S Ruccione, Jeneane Sullivan, Marianne Weiss, Janice Withycombe, Lise Yasui, Marilyn Hockenberry
There is a paucity of data to support evidence-based practices in the provision of patient/family education in the context of a new childhood cancer diagnosis. Since the majority of children with cancer are treated on pediatric oncology clinical trials, lack of effective patient/family education has the potential to negatively affect both patient and clinical trial outcomes. The Children's Oncology Group Nursing Discipline convened an interprofessional expert panel from within and beyond pediatric oncology to review available and emerging evidence and develop expert consensus recommendations regarding harmonization of patient/family education practices for newly diagnosed pediatric oncology patients across institutions...
July 5, 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/26721695/health-care-providers-perceptions-of-nutrition-support-in-pediatric-oncology-and-hematopoietic-stem-cell-transplant-patients
#17
Kathleen Montgomery, Meghan Belongia, Christina Schulta, Mollie Haddigan Mulberry, Melodee L Nugent, Pippa M Simpson
One of the most common side effects of medical treatment for patients with an oncologic diagnosis is malnutrition. There is limited research that broadly assesses the perceptions of health care providers (HCPs) regarding nutrition support in the pediatric population. The purpose of this study was to describe the perceptions of nutrition support among pediatric oncology and hematopoietic stem cell transplant HCPs. The study used a cross-sectional descriptive design using a 31-item survey. Results of the survey indicated that nurses were more likely to initiate conversations about nutrition support during the first month of diagnosis, while midlevel providers and physicians initiated discussions in response to a change in nutritional status evidenced by decreased oral intake or weight loss...
July 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/26669875/bereaved-siblings-advice-to-health-care-professionals-working-with-children-with-cancer-and-their-families
#18
Malin Lövgren, Tove Bylund-Grenklo, Li Jalmsell, Alexandra Eilegård Wallin, Ulrika Kreicbergs
INTRODUCTION: Siblings of children with cancer experience psychosocial distress during the illness and after bereavement, but often stand outside the spotlight of attention and care. This study explored bereaved siblings' advice to health care professionals (HCPs) working with children with cancer and their families. MATERIALS AND METHODS: In a nationwide Swedish survey of bereaved siblings, 174/240 (73%) participated. Of these, 108 answered an open-ended question about what advice they would give to HCPs working with children with cancer and their families...
July 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/26589357/reconsidering-physical-activity-restrictions-for-mononephric-survivors-of-childhood-cancer-a-report-from-the-children-s-oncology-group
#19
REVIEW
Maki Okada, Marilyn J Hockenberry, Chester J Koh, Kathleen A Meeske, Kasey E Rangan, Cheryl Rodgers, Yael Rosenthal, Kathleen S Ruccione, David R Freyer
Although traditional recommendations for mononephric childhood cancer survivors are to avoid contact sports in order to protect the remaining kidney, review of available evidence suggests that the majority of renal loss is caused by accidents not involving sports. An interdisciplinary team performed a review of the English literature published from 1999 to 2012 within the PubMed, Cochrane, Google Scholar, and National Guidelines Clearinghouse databases. The level of evidence and proposed recommendations were graded according to an established rubric and GRADE criteria...
July 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/26589356/animal-assisted-activities-results-from-a-survey-of-top-ranked-pediatric-oncology-hospitals
#20
Jessica Chubak, Rene Hawkes
Animal-assisted activities (AAA) are increasingly common, yet little is known about practices in pediatric oncology. To address this gap, we surveyed the top 20 pediatric oncology hospitals in the United States in May and June of 2014. Questionnaires were sent via e-mail and generally returned by e-mail or postal mail. Among the 19 responding hospitals, the 18 that offered AAA to pediatric patients formed the basis of our analysis. All sites had written AAA policies. Most programs were restricted to dogs. At 11 hospitals, children with cancer could participate in AAA activities...
July 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
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