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Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses

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https://www.readbyqxmd.com/read/28061552/the-role-of-nursing-professionals-in-the-management-of-patients-with-high-risk-neuroblastoma-receiving-dinutuximab-therapy
#1
Rita Secola, Araz Marachelian, Susan L Cohn, Bonnie Toy, Kathleen Neville, Meaghan Granger, Angela Brentlinger, Gina Martin
Neuroblastoma, an embryonic cancer of the sympathetic nervous system, is the most common extracranial solid tumor in childhood. Dinutuximab (formerly called ch14.18), a monoclonal antibody targeting the disialoganglioside GD2, has been shown to significantly improve survival rates in patients with high-risk neuroblastoma. However, the safe and effective use of dinutuximab therapy in these high-risk patients requires medical expertise in patient selection, treatment administration, and the monitoring and management of adverse events...
January 1, 2017: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/27920234/patient-family-education-as-translational-science-in-pediatric-oncology
#2
EDITORIAL
Marilyn Hockenberry, Wendy Landier
No abstract text is available yet for this article.
December 4, 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/27920233/pilot-evaluation-of-a-palliative-and-end-of-life-communication-intervention-for-parents-of-children-with-a-brain-tumor
#3
Verna L Hendricks-Ferguson, Kamnesh Pradhan, Chie-Schin Shih, Karen M Gauvain, Javier R Kane, Jingxia Liu, Joan E Haase
Providing timely palliative and end-of-life care (PC/EOL) information to parents of children with a serious illness is a national health care priority. The goals of this study were to determine feasibility, acceptability, and parent responses related to a PC/EOL communication intervention, titled "Communication Plan: Early through End of Life (COMPLETE)" to parents of children with a brain tumor. The study was a 2-site prospective, single-group pilot study targeting parents' stress and coping outcomes. The sample included 13 parents of 11 children (ie, 11 families)...
December 4, 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/28038498/risk-for-health-care-associated-bloodstream-infections-in-pediatric-oncology-patients-with-various-malignancies
#4
Cara B Thurman, Maura Abbott, Jinfang Liu, Elaine Larson
This was a retrospective cohort study to identify the rates, predictors, and outcomes of health care-associated bloodstream infections (HA-BSI) among children with solid tumors, lymphoma, lymphoid leukemia, and myeloid leukemia. The study population included 4500 children ≤18 years old at a pediatric hospital in New York City from 2006 to 2014. A total of 147 HA-BSI cases were identified; using multivariable logistic regression modeling, children with a hematologic diagnosis (lymphoma, lymphoid leukemia, myeloid leukemia) were at greater risk for HA-BSI than those with a solid tumor diagnosis (all P values <...
December 1, 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/27889691/development-of-a-culturally-competent-service-to-improve-academic-functioning-for-latino-survivors-of-acute-lymphoblastic-leukemia-methodological-considerations
#5
Laura Bava, Alexis Johns, David R Freyer, Kathleen Ruccione
Many survivors of childhood acute lymphoblastic leukemia (ALL) develop neurocognitive deficits that compromise academic functioning, especially in the presence of sociodemographic risk factors. The extent to which these risk factors coexist for Latino ALL survivors is not well described, but with shifts in U.S. demographics and improved survival in ALL, culturally competent interventions are needed. The Achieving Best Cognitive Successes after Cancer service was designed and implemented by a team representing nursing, medicine, psychology, and social work...
November 25, 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/27864566/using-practice-based-evidence-to-improve-supportive-care-practices-to-reduce-central-line-associated-bloodstream-infections-in-a-pediatric-oncology-unit
#6
Lauri A Linder, Cheryl Gerdy, Rouett Abouzelof, Andrew Wilson
Children with cancer are a subset of patients with central lines with distinct risk factors for infection including periods of prolonged neutropenia and compromised mucous membrane integrity. This article relates the implementation of principles of practice-based evidence to identify interventions in addition to best practice maintenance care bundles to reduce central line-associated bloodstream infections involving viridans group streptococci and coagulase-negative staphylococci on an inpatient pediatric oncology unit...
November 18, 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/28084182/corrigendum
#7
(no author information available yet)
Mahon, P., Holsti, L., Siden, H., Strahlendorf, C., Turnham, L, & Giaschi, D. (2015). Using colors to assess pain in toddlers: Validation of "the Rainbow Pain Scale"-A proof-of-principle study. Journal of Pediatric Oncology Nursing, 32(1), 40-46. doi: 10.1177/1043454214555197.
November 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/28084181/corrigendum
#8
(no author information available yet)
Conte, T., & Cantrell, M. A. (2016). From chemo to college: The college experience of childhood cancer survivors. Journal of Pediatric Oncology Nursing, 33(5), 329-338. doi: 10.1177/1043454215604816.
November 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/28084180/processing-information-after-a-child-s-cancer-diagnosis-how-parents-learn
#9
Cheryl C Rodgers, Kristin Stegenga, Janice S Withycombe, Karen Sachse, Katherine Patterson Kelly
Parents of a child newly diagnosed with cancer must receive an extensive amount of information before their child's initial hospital discharge; however, little is known about best practices for providing this education. An interpretive descriptive study design was used to describe actual and preferred educational content, timing, and methods among parents of children newly diagnosed with cancer prior to their child's first hospital discharge. Twenty parents of children diagnosed with various malignancies participated in individual interviews 2 to 12 months after their child's diagnosis...
November 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/27450361/understanding-effective-delivery-of-patient-and-family-education-in-pediatric-oncologya-systematic-review-from-the-children-s-oncology-group-formula-see-text
#10
Cheryl C Rodgers, Catherine M Laing, Ruth Anne Herring, Nancy Tena, Adrianne Leonardelli, Marilyn Hockenberry, Verna Hendricks-Ferguson
A diagnosis of childhood cancer is a life-changing event for the entire family. Parents must not only deal with the cancer diagnosis but also acquire new knowledge and skills to care safely for their child at home. Best practices for delivery of patient/family education after a new diagnosis of childhood cancer are currently unknown. The purpose of this systematic review was to evaluate the existing body of evidence to determine the current state of knowledge regarding the delivery of education to newly diagnosed pediatric oncology patients and families...
November 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/27385664/patient-family-education-for-newly-diagnosed-pediatric-oncology-patients
#11
Wendy Landier, JoAnn Ahern, Lamia P Barakat, Smita Bhatia, Kristin M Bingen, Patricia G Bondurant, Susan L Cohn, Sarah K Dobrozsi, Maureen Haugen, Ruth Anne Herring, Mary C Hooke, Melissa Martin, Kathryn Murphy, Amy R Newman, Cheryl C Rodgers, Kathleen S Ruccione, Jeneane Sullivan, Marianne Weiss, Janice Withycombe, Lise Yasui, Marilyn Hockenberry
There is a paucity of data to support evidence-based practices in the provision of patient/family education in the context of a new childhood cancer diagnosis. Since the majority of children with cancer are treated on pediatric oncology clinical trials, lack of effective patient/family education has the potential to negatively affect both patient and clinical trial outcomes. The Children's Oncology Group Nursing Discipline convened an interprofessional expert panel from within and beyond pediatric oncology to review available and emerging evidence and develop expert consensus recommendations regarding harmonization of patient/family education practices for newly diagnosed pediatric oncology patients across institutions...
November 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/27283721/a-comprehensive-survey-of-institutional-patient-family-educational-practices-for-newly-diagnosed-pediatric-oncology-patients
#12
Janice S Withycombe, Rachel Andam-Mejia, Annie Dwyer, Abigail Slaven, Katherine Windt, Wendy Landier
Patient/family education is an important component of nursing practice and is essential to the care of children newly diagnosed with cancer. Practices regarding patient/family education in Children's Oncology Group (COG) treatment centers have not been well described. We used an Internet-based survey to determine current patient/family educational practices at COG institutions; participation rate was 90.5% (201/222). Patient/family education was delivered primarily by an individual (rather than a team) at 43% of institutions...
November 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/27268501/educating-families-of-children-newly-diagnosed-with-cancer
#13
Maureen S Haugen, Wendy Landier, Belinda N Mandrell, Jeneane Sullivan, Courtney Schwartz, Micah A Skeens, Marilyn Hockenberry
Parents/caregivers require specialized education in order to care for their child with a newly diagnosed cancer. Currently, no evidence-based guidelines exist to identify content essential for inclusion in patient/family education prior to a child's initial discharge home; this study used Delphi methodology to obtain multidisciplinary consensus regarding essential content amongst pediatric oncology experts from the Children's Oncology Group. Three questionnaire rounds were employed to identify essential content, evaluate the importance of the educational topics identified, and gain expert consensus regarding the final ranking of topics identified and whether or not each topic was considered mandatory for inclusion in education for newly diagnosed patients...
November 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/27672019/developing-the-evidence-base-in-pediatric-oncology-nursing-practice-for-promoting-health-related-quality-of-life-in-pediatric-oncology-patients
#14
Mary Ann Cantrell, Teresa M Conte, Melissa M Hudson, Kathy Ruble, Kaye Herth, Aziza Shad, Alyssa Canino
Research has shown that self-esteem and hopefulness are positively related among female childhood cancer survivors (CCS) and contribute to their health-related quality of life (HRQOL). HRQOL remains a significant outcome of treatment for CCS. This study examined the relationships among self-esteem, hopefulness, and HRQOL in young adult female CCS to inform the development of evidence-based practice guidelines for pediatric oncology nursing practice. An online survey was conducted with a sample of young adult female CCS from 58 treatment centers across the United States at 4 time points: at baseline and at 6 weeks, 3 months, and 6 months after initial measurement time...
September 25, 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/26811326/benefit-finding-in-maternal-caregivers-of-pediatric-cancer-survivors-a-mixed-methods-approach
#15
Victoria W Willard, Sarah A Hostetter, Katherine C Hutchinson, Melanie J Bonner, Kristina K Hardy
OBJECTIVE: Benefit finding has been described as the identification of positive effects resulting from otherwise stressful experiences. In this mixed methods study, we examined the relations between qualitative themes related to benefit finding and quantitative measures of psychosocial adjustment and coping as reported by maternal caregivers of survivors of pediatric cancer. METHODS: Female caregivers of survivors of pediatric cancer (n = 40) completed a qualitative questionnaire about their experiences caring for their child, along with several quantitative measures...
September 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/26721694/increasing-activities-of-daily-living-is-as-easy-as-1-2-3
#16
Deanna Best, Erin Osterkamp, Kathleen Demmel, Shivonne Kiniyalocts, Shawn Mock, Kelly Mulligan, Angela Bell, Crystal Doughman, Miranda Flemming, Laura Flesch, Deanna Hawkins, Abigail Pate, Ashley Bedel, Lori Ann McKenna, Ashley Teusink, Sonata Jodele, Rajaram Nagarajan, John Perentesis, Stella M Davies, Christopher E Dandoy
BACKGROUND: Human flora are the most common cause of bacteremia in immunocompromised patients. Activities of daily living (ADL), including oral care and daily chlorhexidine gluconate bathing, can lower the risk of infection. METHODS: To address ADL compliance in our pediatric oncology and bone marrow transplant patients, we adopted the ADL 1-2-3 initiative: daily chlorhexidine gluconate bath and linen change, at least 2 activities per day, and oral care 3 times per day...
September 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/26668212/building-bridges-from-hospital-to-home-understanding-the-transition-experience-for-the-newly-diagnosed-pediatric-oncology-patient
#17
Patricia A Branowicki, Judith A Vessey, Kendal L Jackson Temple, Amanda J Lulloff
Caregivers of pediatric oncology patients are expected to understand and adhere to a complex medical plan of care while at home; yet little is known about how to assess and evaluate the caregivers' abilities to adequately meet these demands. The purpose of this study was to describe the issues and daily challenges faced by caregivers as they transition from hospital to home after their child's cancer diagnosis. Patients and caregivers received a home visit by an expert pediatric oncology nurse within 72 hours postdischarge after initial diagnosis...
September 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/26668211/impact-of-caregiving-for-a-child-with-cancer-on-parental-health-behaviors-relationship-quality-and-spiritual-faith-do-lone-parents-fare-worse
#18
Lori Wiener, Adrienne Viola, Julia Kearney, Larry L Mullins, Sandra Sherman-Bien, Sima Zadeh, Andrea Farkas-Patenaude, Maryland Pao
Caregiving stress has been associated with changes in the psychological and physical health of parents of children with cancer, including both partnered and single parents. While parents who indicate "single" on a demographic checklist are typically designated as single parents, a parent can be legally single and still have considerable support caring for an ill child. Correspondingly, an individual can be married/partnered and feel alone when caring for a child with serious illness. In the current study, we report the results from our exploratory analyses of parent self-reports of behavior changes during their child's treatment...
September 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/26611755/hydroxyurea-in-pediatric-patients-with-sickle-cell-disease-what-nurses-need-to-know
#19
Allison L Rees
Sickle cell disease (SCD) is an inherited disorder in which sickled red blood cells occlude the small vessels of the body, reducing oxygen delivery to tissues and ultimately negatively affecting many of the body's major organs. Hydroxyurea has proven beneficial in the treatment of SCD and prevention of disease-related complications. The 2014 guidelines put forth by the National Heart, Lung, and Blood Institute recommend hydroxyurea treatment in infants 9 months and older, children, and adolescents with SCD-SS or SCD-Sβ(0) thalassemia regardless of clinical severity...
September 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/26611754/nurse-led-programs-to-facilitate-enrollment-to-children-s-oncology-group-cancer-control-trials
#20
REVIEW
Maureen Haugen, Katherine Patterson Kelly, Marcia Leonard, Denise Mills, Lillian Sung, Catriona Mowbray, Wendy Landier
The progress made over the past 50 years in disease-directed clinical trials has significantly increased cure rates for children and adolescents with cancer. The Children's Oncology Group (COG) is now conducting more studies that emphasize improving quality of life for young people with cancer. These types of clinical trials are classified as cancer control (CCL) studies by the National Cancer Institute and require different resources and approaches to facilitate adequate accrual and implementation at COG institutions...
September 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
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