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Scandinavian Journal of Caring Sciences

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https://www.readbyqxmd.com/read/28276143/experiences-and-needs-of-spouses-of-persons-with-young-onset-frontotemporal-lobe-dementia-during-the-progression-of-the-disease
#1
Aud Johannessen, Anne-Sofie Helvik, Knut Engedal, Kirsten Thorsen
BACKGROUND: Two of the most common types of young-onset dementia (<65 years old) are Alzheimer's disease and frontotemporal lobe dementia (FTLD). A limited amount of research that focuses on the needs of spouses of persons with young-onset FTLD (yo-FTLD) has been published. Thus, we have carried out a study aiming to examine the spouses of yo-FTLD experiences and needs for assistance in daily life. METHOD: Qualitative interviews with 16 informants (aged 51-69 years; nine wives, six husbands and one male cohabitant) were conducted in 2014 and 2015...
March 9, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28276132/profiles-of-alzheimer-s-caregivers-in-spain-social-educational-and-laboral-characteristics
#2
Manuel Ruiz-Adame Reina, María Carmen González-Camacho, José Enrique Romero-García, Luís María Sánchez-Reyes Fernández
BACKGROUND: A person suffering from dementia needs increasing help from another person, who, in most cases, is a female family member. Times are changing and this traditional role can no longer be maintained. AIM: The aim of this research was mainly centred on ascertaining the profile of caregivers and to find out how determinants such as age, sex and educational level and living conditions led people to assume that role. METHODS: A survey was designed and applied to 925 caregivers (778 of which were analysed) with the collaboration of the Alzheimer's Associations of Andalucía (Spain)...
March 9, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28239896/adolescents-evaluations-of-the-quality-of-lifestyle-counselling-in-school-based-health-care
#3
Laura Myllymäki, Heidi Ruotsalainen, Maria Kääriäinen
BACKGROUND: Adolescents need effective lifestyle counselling precisely because health problems are so common. Good-quality lifestyle counselling can prevent the problems from becoming worse and decrease the costs of health care. Nurse practitioners in schools are well positioned to promote adolescent health. AIM: This study describes adolescents' evaluations of the quality of lifestyle counselling and factors related to it in school-based health care. METHODS: The data were collected from seventh- to ninth-grade adolescents (n = 846) using the Counselling Quality Instrument, from two junior high schools in northern Finland...
February 26, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28239889/the-dark-corner-of-the-heart-understanding-and-embracing-suffering-as-portrayed-by-adults
#4
Jessica Hemberg
BACKGROUND: Suffering profoundly touches the human being's inner existence. The different faces of suffering may yet be unknown, and therefore, it is important to further explore suffering in order to reach a new and deeper understanding of it and its alleviation. THE AIM AND RESEARCH QUESTIONS: The aim of this study was to expand the understanding of suffering. The research questions are what is suffering as described by the human beings themselves and what initiates a movement in suffering towards its alleviation? RESEARCH DESIGN, PARTICIPANTS AND RESEARCH CONTEXT: The study uses a hermeneutical approach and hermeneutical reading...
February 26, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28239881/how-chronic-disease-affects-children-s-views-on-being-ill-and-healthy-a-comparative-study
#5
Lígia Lima, Vanessa Silva, Marina S Lemos
BACKGROUND: Understanding children's views of illness and health is vital to a child-centred approach in patient education and care. Paediatric healthcare providers should incorporate children's views of health and illness to enable children and their families to participate in self-management plans and achieve better health outcomes. However, there is limited scientific knowledge regarding the views of children with specific diseases. METHOD: This comparative study investigated whether and in what ways the experience of having different chronic diseases influenced children's views of being ill and healthy...
February 26, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28233372/cultural-and-communicative-competence-in-the-caring-relationship-with-patients-from-another-culture
#6
Jessica Anne Viveka Hemberg, Susann Vilander
BACKGROUND: The global and multicultural society of today creates challenges that require multicultural competence among individuals, especially within caring contexts. AIMS AND OBJECTIVES: This study assumes an intercultural perspective, and the aim is to uncover a new understanding of the caring community between nurses and patients when these do not speak the same language. The research question is: What is the significance of communication in a caring community when nurses and patients do not speak the same language? METHODOLOGICAL DESIGN AND METHOD: This qualitative study uses a hermeneutical approach...
February 24, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28233331/knowledge-and-attitudes-of-women-regarding-gynaecological-cancer-prevention-in-an-urban-area-of-greece-in-financial-crisis
#7
Maria Saridi, Eleni Kapogeorgou, Maria Rekleiti, Maria Geitona, Kyriakos Souliotis
INTRODUCTION: Preventive gynaecological examinations (PGEs) are the main means of monitoring gynaecological cancers across the developed world. The purpose of this study was to investigate the perceptions and attitudes of women of a regional municipality of Greece, regarding preventive gynaecological examinations amid economic crisis. MATERIAL AND METHODS: The study included 360 women aged 20-70 years, who lived in an urban area of Greece. A specialised, valid and anonymous questionnaire that included questions about perceptions and attitudes regarding preventive gynaecological examinations was used...
February 24, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28205256/quality-of-life-coping-strategies-social-support-and-self-efficacy-in-women-after-acute-myocardial-infarction-a-mixed-methods-approach
#8
G Fuochi, C Foà
BACKGROUND: Quality of life, coping strategies, social support and self-efficacy are important psychosocial variables strongly affecting the experience of acute myocardial infarction (AMI) in women. AIMS: To gain a more in-depth understanding of how coping strategies, self-efficacy, quality of life and social support shape women's adjustment to AMI. DESIGN: Mixed methods study. Quantitative data were collected through a standardised questionnaire on coping strategies, self-efficacy, quality of life and social support...
February 15, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28156025/staff-experiences-of-appreciative-management-in-the-institutional-care-of-people-with-intellectual-and-developmental-disabilities-a-cross-sectional-study
#9
Lena Astala, Mervi Roos, Merja Harmoinen, Tarja Suominen
PURPOSE/DESIGN: This cross-sectional descriptive study describes staff experiences of appreciative management. METHODS: Data were collected by way of e-survey from staff (n = 87) working in the institutional care of people with intellectual and developmental disabilities. The Appreciative Management Scale (AMS 1.0) was used and data were analysed by statistical methods. FINDINGS: Overall, respondents experienced appreciative management as being well implemented, with equality as the best implemented dimension and systematic management the worst...
February 3, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28156024/a-systematic-review-of-adolescents-sense-of-coherence-and-health
#10
REVIEW
Helena Länsimies, Anna-Maija Pietilä, Soili Hietasola-Husu, Mari Kangasniemi
The aim of this systematic review was to describe the association between adolescent sense of coherence (SOC) and health and identify the future direction for research in this area. Systematic searches were conducted (2007-2014) in the PubMed, CINAHL, PsycINFO and Cochrane electronic databases and carried out manual searches in three scientific journals. A total of 827 original papers were found and 23 were selected. Based on the results, adolescents' sense of coherence (SOC) was related to health in terms of the adolescents' quality of life, health behaviour, mental health and family relationships by using 31 different health-related instruments...
February 3, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28156023/the-quality-of-information-received-by-parents-of-children-with-chronic-ill-health-attending-hospitals-as-indicated-by-measures-of-illness-uncertainty
#11
Nabeel Al-Yateem, Charles Docherty, Hanan Altawil, Muna Al-Tamimi, Alaa Ahmad
BACKGROUND: The effectiveness of communication can be defined in terms of one of its outcomes: the uncertainty that it eliminates. Clear unambiguous communication is important for the parents of children to help them understand problems, explore alternative solutions and help make decisions. Persistent uncertainty is known to produce anxiety, unpredictable responses, emotional distress and poor quality of life. The uncertainty experienced by parents is one indicator of quality in the healthcare system which could have diagnostic and predictive value...
February 3, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28156018/factors-facilitating-nurses-to-deliver-compassionate-care-a-qualitative-study
#12
Vahid Zamanzadeh, Leila Valizadeh, Azad Rahmani, Margreet van der Cingel, Mansour Ghafourifard
BACKGROUND: Compassion is an important ethical foundation of all healthcare professionals especially for nursing. However, there is little understanding of factors which could help and motivate nurses to deliver compassionate care in modern healthcare practices today. Moreover, a cultural context may affect the way compassionate care is delivered by healthcare professionals. AIMS AND OBJECTIVES: This study aimed to explore what facilitates compassionate care in daily practice from the unique perspective of Iranian nurses...
February 3, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28156015/a-second-chance-at-life-people-s-lived-experiences-of-surviving-out-of-hospital-cardiac-arrest
#13
Ann-Sofie Forslund, Jan-Håkan Jansson, Dan Lundblad, Siv Söderberg
BACKGROUND: There is more to illuminate about people's experiences of surviving out-of-hospital cardiac arrest (OHCA) and how such an event affects people's lives over time. AIMS: This study aimed to elucidate meanings of people's lived experiences and changes in everyday life during their first year after surviving OHCA. METHODS: A qualitative, longitudinal design was used. Eleven people surviving OHCA from northern Sweden agreed to participate and were interviewed 6 and 12 months after the event...
February 3, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28156013/group-supervision-for-healthcare-professionals-within-primary-care-for-patients-with-psychosomatic-health-problems-a-pilot-intervention-study
#14
Jennifer Bullington, Agneta Cronqvist
BACKGROUND: In primary health care, efficacious treatment strategies are lacking for these patients, although the most prominent symptoms accounting for consultation in primary care often cannot be related to any biological causes. AIM: The aim was to explore whether group supervision from a specific phenomenological theory of psychosomatics could provide healthcare professionals treating patients with psychosomatic health issues within primary care a deeper understanding of these conditions and stimulate profession-specific treatment strategies...
February 3, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28156012/-i-need-complete-trust-in-nurses-home-mechanical-ventilated-patients-perceptions-of-safety
#15
Christiane Schaepe, Michael Ewers
BACKGROUND: Although home care has advanced over the last few decades, little research on patient safety has been carried out in this setting. Furthermore, it is unclear how patients perceive their situation and safety. The insiders' views might be especially relevant for technology-dependent individuals, such as users of home mechanical ventilation (HMV). AIM: The aim of this study was to examine how HMV patients perceive their situation and what makes them feel safe or unsafe...
February 3, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28145104/lasting-impact-of-an-implemented-self-management-programme-for-people-with-type-2-diabetes-referred-from-primary-care-a-one-group-before-after-design
#16
Mari Fløde, Marjolein M Iversen, Morten Aarflot, Johannes Haltbakk
BACKGROUND: Research interventions in uniform clinical settings and in patients fulfilling well-defined inclusion criteria might show a more pronounced effect than implementing the same intervention in existing practice. Diabetes Self-Management Education (DSME) is complex, and should be assessed in existing practice as it is an intervention widely implemented. OBJECTIVES: To examine the impact of an established group-based DSME in unselected people with type 2 diabetes referred from primary care...
January 31, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28145002/cohabitants-perspective-on-housing-adaptations-a-piece-of-the-puzzle
#17
Marianne Granbom, Afsaneh Taei, Lisa Ekstam
As part of the Swedish state-funded healthcare system, housing adaptations are used to promote safe and independent living for disabled people in ordinary housing through the elimination of physical environmental barriers in the home. The aim of this study was to describe the cohabitants' expectations and experiences of how a housing adaptation, intended for the partner, would impact their everyday life. In-depth interviews were conducted with cohabitants of nine people applying for a housing adaptation, initially at the time of the application and then again 3 months after the housing adaptation was installed...
January 31, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28144992/facilitating-and-inhibiting-factors-in-transition-to-parenthood-ways-in-which-health-professionals-can-support-parents
#18
Mia Barimani, Anna Vikström, Michael Rosander, Karin Forslund Frykedal, Anita Berlin
BACKGROUND: The transition to parenthood is an overwhelming life event. From a theoretical perspective, transition to parenthood is a developmental transition that contains certain phases and patterns. AIM: This study aim was twofold (i) discover, describe and comprehend transitional conditions that parents perceive as facilitating and inhibiting during transition to parenthood and to (ii) use that knowledge to develop recommendations for professional interventions that support and facilitate transition to parenthood...
January 31, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28144974/thinking-about-the-patient-s-wishes-practical-wisdom-of-discharge-planning-nurses-in-assisting-surrogate-decision-making
#19
Yoko Kageyama, Midori Asano
BACKGROUND: The accelerating trend towards shorter hospital stays in Japan has made modes of decision-making essential for effective patient transition from the hospital to recuperation in the regional community, and the ageing of the population has brought a rise in surrogate decision-making by the families of patients lacking decision-making ('self-decision') capacity. AIM: To verbalise and elucidate the practical wisdom of discharge planning nurses by focusing on the perceptions and judgements, they apply in practice and describing their methodology in concrete terms...
January 31, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28144972/views-of-patient-healthcare-professionals-and-administrative-staff-on-flow-of-information-and-collaboration-in-a-regional-health-information-exchange-a-qualitative-study
#20
Tiina Mäenpää, Paula Asikainen, Tarja Suominen
BACKGROUND: Nowadays, patients can be more involved in developing healthcare services with their healthcare professionals. Patient-centred information is a key part of improving regional health information exchange (HIE), giving patients an active role in care management. AIM: The aim was to get a deeper understanding of the flow of information and collaboration in one hospital district area from the viewpoint of patients, healthcare professionals and administrative staff...
January 31, 2017: Scandinavian Journal of Caring Sciences
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