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Bioethics

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https://www.readbyqxmd.com/read/28691236/response-to-vogelstein-how-the-2012-aap-task-force-on-circumcision-went-wrong
#1
Robert S Van Howe
Vogelstein cautions medical organizations against jumping into the fray of controversial issues, yet proffers the 2012 American Academy of Pediatrics' Task Force policy position on infant male circumcision as 'an appropriate use of position-statements.' Only a scratch below the surface of this policy statement uncovers the Task Force's failure to consider Vogelstein's many caveats. The Task Force supported the cultural practice by putting undeserved emphasis on questionable scientific data, while ignoring or underplaying the importance of valid contrary scientific data...
July 9, 2017: Bioethics
https://www.readbyqxmd.com/read/28614616/tying-oneself-to-the-mast-one-necessary-cost-to-morally-enhancing-oneself-biomedically
#2
Benedict Rumbold
In this article I seek to establish what, if anything, might be morally troubling about morally enhancing oneself through biomedical means. Building on arguments by Harris, while simultaneously acknowledging several valid counter-arguments that have been put forth by his critics, I argue that taking BMEs necessarily incurs at least one moral cost in the restrictions they impose on our freedom. This does not necessarily entail that the use of BMEs cannot be overall justified, nor that, in certain cases, their costs may not be forestalled...
June 14, 2017: Bioethics
https://www.readbyqxmd.com/read/28614604/-you-are-inferior-revisiting-the-expressivist-argument
#3
Bjørn Hofmann
According to the expressivist argument the choice to use biotechnologies to prevent the birth of individuals with specific disabilities is an expression of disvalue for existing people with this disability. The argument has stirred a lively debate and has recently received renewed attention. This article starts with presenting the expressivist argument and its core elements. It then goes on to present and examine the counter-arguments before it addresses some aspects that have gained surprisingly little attention...
June 14, 2017: Bioethics
https://www.readbyqxmd.com/read/28608972/new-frontiers-in-end-of-life-ethics-and-policy-scope-advance-directives-and-conscientious-objection
#4
EDITORIAL
Udo Schuklenk
No abstract text is available yet for this article.
July 2017: Bioethics
https://www.readbyqxmd.com/read/28608971/the-experiences-of-pregnant-women-in-an-interventional-clinical-trial-research-in-pregnancy-ethics-ripe-study
#5
Angela Ballantyne, Susan Pullon, Lindsay Macdonald, Christine Barthow, Kristen Wickens, Julian Crane
There is increasing global pressure to ensure that pregnant women are responsibly and safely included in clinical research in order to improve the evidence base that underpins healthcare delivery during pregnancy. One supposed barrier to inclusion is the assumption that pregnant women will be reluctant to participate in research. There is however very little empirical research investigating the views of pregnant women. Their perspective on the benefits, burdens and risks of research is a crucial component to ensuring effective recruitment...
July 2017: Bioethics
https://www.readbyqxmd.com/read/28503892/the-ethics-of-clinical-trials-research-in-severe-mood-disorders
#6
Allison C Nugent, Franklin G Miller, Ioline D Henter, Carlos A Zarate
Mood disorders, including major depressive disorder (MDD) and bipolar disorder (BD), are highly prevalent, frequently disabling, and sometimes deadly. Additional research and more effective medications are desperately needed, but clinical trials research in mood disorders is fraught with ethical issues. Although many authors have discussed these issues, most do so from a theoretical viewpoint. This manuscript uses available empirical data to inform a discussion of the primary ethical issues raised in mood disorders research...
July 2017: Bioethics
https://www.readbyqxmd.com/read/28419505/assisted-dying-disability
#7
Christopher A Riddle
This article explores at least two dominant critiques of assisted dying from a disability rights perspective. In spite of these critiques, I conclude that assisted dying ought to be permissible. I arrive at the conclusion that if we respect and value people with disabilities, we ought to permit assisted dying. I do so in the following manner. First, I examine recent changes in legislation that have occurred since the Royal Society of Canada Expert Panel on End-of-Life Decision-Making report, published in this journal...
July 2017: Bioethics
https://www.readbyqxmd.com/read/28374428/ethical-considerations-of-triage-following-natural-disasters-the-idf-experience-in-haiti-as-a-case-study
#8
Efrat Ram-Tiktin
Natural disasters in populated areas may result in massive casualties and extensive destruction of infrastructure. Humanitarian aid delegations may have to cope with the complicated issue of patient prioritization under conditions of severe resource scarcity. A triage model, consisting of five principles, is proposed for the prioritization of patients, and it is argued that rational and reasonable agents would agree upon them. The Israel Defense Force's humanitarian mission to Haiti following the 2010 earthquake serves as a case study for the various considerations taken into account when designing the ethical-clinical policy of field hospitals...
July 2017: Bioethics
https://www.readbyqxmd.com/read/28240791/is-consent-based-on-trust-morally-inferior-to-consent-based-on-information
#9
Nana Cecilie Halmsted Kongsholm, Klemens Kappel
Informed consent is considered by many to be a moral imperative in medical research. However, it is increasingly acknowledged that in many actual instances of consent to participation in medical research, participants do not employ the provided information in their decision to consent, but rather consent based on the trust they hold in the researcher or research enterprise. In this article we explore whether trust-based consent is morally inferior to information-based consent. We analyse the moral values essential to valid consent - autonomy, voluntariness, non-manipulation, and non-exploitation - and assess whether these values are less protected and promoted by consent based on trust than they are by consent based on information...
July 2017: Bioethics
https://www.readbyqxmd.com/read/28503835/neuroethics-neuroscience-s-contributions-to-bioethics
#10
EDITORIAL
Veljko Dubljević, Ralf J Jox, Eric Racine
No abstract text is available yet for this article.
June 2017: Bioethics
https://www.readbyqxmd.com/read/28503834/respect-for-autonomy-in-light-of-neuropsychiatry
#11
Sabine Müller
Bioethics needs an elaborated concept of autonomy based on empirical knowledge about the prerequisites of the capacity of autonomy. Whereas Beauchamp and Childress, and many other bioethicists have discussed social influences on the capacity of autonomy in depth, neurobiological influences have received less attention. A comprehensive concept of autonomy should consider both social and biological factors that can diminish the capacity of autonomy. This article focuses on neurobiological influences that can reduce the capacity of autonomy...
June 2017: Bioethics
https://www.readbyqxmd.com/read/28503833/moral-enhancement-meets-normative-and-empirical-reality-assessing-the-practical-feasibility-of-moral-enhancement-neurotechnologies
#12
Veljko Dubljević, Eric Racine
Moral enhancement refers to the possibility of making individuals and societies better from a moral standpoint. A fierce debate has emerged about the ethical aspects of moral enhancement, notably because steering moral enhancement in a particular direction involves choosing amongst a wide array of competing options, and these options entail deciding which moral theory or attributes of the moral agent would benefit from enhancement. Furthermore, the ability and effectiveness of different neurotechnologies to enhance morality have not been carefully examined...
June 2017: Bioethics
https://www.readbyqxmd.com/read/28503832/the-voluntary-nature-of-decision-making-in-addiction-static-metaphysical-views-versus-epistemologically-dynamic-views
#13
Eric Racine, Simon Rousseau-Lesage
The degree of autonomy present in the choices made by individuals with an addiction, notably in the context of research, is unclear and debated. Some have argued that addiction, as it is commonly understood, prevents people from having sufficient decision-making capacity or self-control to engage in choices involving substances to which they have an addiction. Others have criticized this position for being too radical and have counter-argued in favour of the full autonomy of people with an addiction. Aligning ourselves with middle-ground positions between these two extremes, we flesh out an account of voluntary action that makes room for finer-grained analyses than the proposed all-or-nothing stances, which rely on a rather static metaphysical understanding of the nature of the voluntariness of action...
June 2017: Bioethics
https://www.readbyqxmd.com/read/28503831/can-neuroscience-contribute-to-practical-ethics-a-critical-review-and-discussion-of-the-methodological-and-translational-challenges-of-the-neuroscience-of-ethics
#14
Eric Racine, Veljko Dubljević, Ralf J Jox, Bernard Baertschi, Julia F Christensen, Michele Farisco, Fabrice Jotterand, Guy Kahane, Sabine Müller
Neuroethics is an interdisciplinary field that arose in response to novel ethical challenges posed by advances in neuroscience. Historically, neuroethics has provided an opportunity to synergize different disciplines, notably proposing a two-way dialogue between an 'ethics of neuroscience' and a 'neuroscience of ethics'. However, questions surface as to whether a 'neuroscience of ethics' is a useful and unified branch of research and whether it can actually inform or lead to theoretical insights and transferable practical knowledge to help resolve ethical questions...
June 2017: Bioethics
https://www.readbyqxmd.com/read/28182296/ways-out-of-the-patenting-prohibition-human-parthenogenetic-and-induced-pluripotent-stem-cells
#15
Hannah Schickl, Matthias Braun, Peter Dabrock
According to the judgement of the European Court of Justice in 2014, human parthenogenetic stem cells are excluded from the patenting prohibition of procedures based on hESC by the European Biopatent Directive, because human parthenotes are not human embryos. This article is based on the thesis that in light of the technological advances in the field of stem cell research, the attribution of the term 'human embryo' to certain entities on a descriptive level as well as the attribution of a normative protection status to certain entities based on the criterion of totipotency, are becoming increasingly unclear...
June 2017: Bioethics
https://www.readbyqxmd.com/read/28182288/the-place-of-crowdfunding-in-the-discovery-of-scientific-and-social-value-of-medical-research
#16
Lorenzo Del Savio
Crowdfunding is increasingly common in medical research. Some critics are concerned that by adopting crowdfunding, some researchers may sidestep the established systems of review of the social and scientific value of studies (e.g. impact on disease burden, issues of justice), especially mechanisms of expert-based review. I argue firstly that such concerns are based on a misleading picture of how research value is assessed and secondly that crowdfunding may turn out to be an useful complement of extant funding systems...
June 2017: Bioethics
https://www.readbyqxmd.com/read/28417521/evaluating-the-quality-of-the-deliberation-in-moral-case-deliberations-a-coding-scheme
#17
Hylke Jellema, Swanny Kremer, Anne-Ruth Mackor, Bert Molewijk
Moral Case Deliberation (MCD) is an up and coming form of ethics support wherein clinical professionals deliberate about moral questions they face in their work. So far, it has been unclear what quality of deliberation in MCD is entailed and how to evaluate this quality. This article proposes a coding scheme that fits the theoretical background of MCD and allows researchers to evaluate the quality of the deliberation in MCDs. We consider deliberation in MCD to be of good quality when participants enrich their own understanding of a case by being exposed to the viewpoints of others...
May 2017: Bioethics
https://www.readbyqxmd.com/read/28417520/integrating-theory-and-data-in-evaluating-clinical-ethics-support-still-a-long-way-to-go
#18
EDITORIAL
Bert Molewijk, Jan Schildmann, Anne Slowther
No abstract text is available yet for this article.
May 2017: Bioethics
https://www.readbyqxmd.com/read/28417519/methodological-reflections-on-the-contribution-of-qualitative-research-to-the-evaluation-of-clinical-ethics-support-services
#19
Sebastian Wäscher, Sabine Salloch, Peter Ritter, Jochen Vollmann, Jan Schildmann
This article describes a process of developing, implementing and evaluating a clinical ethics support service intervention with the goal of building up a context-sensitive structure of minimal clinical-ethics in an oncology department without prior clinical ethics structure. Scholars from different disciplines have called for an improvement in the evaluation of clinical ethics support services (CESS) for different reasons over several decades. However, while a lot has been said about the concepts and methodological challenges of evaluating CESS up to the present time, relatively few empirical studies have been carried out...
May 2017: Bioethics
https://www.readbyqxmd.com/read/28417518/what-outcomes-do-dutch-healthcare-professionals-perceive-as-important-before-participation-in-moral-case-deliberation
#20
Janine de Snoo-Trimp, Guy Widdershoven, Mia Svantesson, Riekie de Vet, Bert Molewijk
BACKGROUND: There has been little attention paid to research on the outcomes of clinical ethics support (CES) or critical reflection on what constitutes a good CES outcome. Understanding how CES users perceive the importance of CES outcomes can contribute to a better understanding, use of and normative reflection on CES outcomes. OBJECTIVE: To describe the perceptions of Dutch healthcare professionals on important outcomes of moral case deliberation (MCD), prior to MCD participation, and to compare results between respondents...
May 2017: Bioethics
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