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Journal of Palliative Care

Gabrielle Rocque, Ellen Miller-Sonnet, Alan Balch, Carrie Stricker, Josh Sideman, Susan Stiles, John Ruggerio, Nancy Paynter, Mark Lewis, Arif Kamal
Although recognized as best practice, regular integration of shared decision-making (SDM) approaches between patients and oncologists remains an elusive goal. It is clear that usable, feasible, and practical tools are needed to drive increased SDM in oncology. To address this goal, we convened a multidisciplinary collaborative inclusive of experts across the health-care delivery ecosystem to identify key principles in designing and testing processes to promote SDM in routine oncology practice. In this commentary, we describe 3 best practices for addressing challenges associated with implementing SDM that emerged from a multidisciplinary collaborative: (1) engagement of diverse stakeholders who have interest in SDM, (2) development and validation of an evidence-based SDM tool grounded within an established conceptual framework, and (3) development of the necessary roadmap and consideration of the infrastructure needed for engendering patient engagement in decision-making...
November 1, 2018: Journal of Palliative Care
Kimberly Schoonover, Andrew Herber, Sally Heusinkvelt, Hemang Yadav, M Caroline Burton
BACKGROUND: Little is known about how certain educational interventions may improve informed code status discussions by physician assistant (PA) and nurse practitioner students. METHODS: This is a prospective, prospective, single academic center pilot study utilizing a short case-based PowerPoint that reviewed the differences between code status choices and the likelihood of survival to hospital discharge of attempted resuscitation after a cardiac arrest. Training occurred between September 1, 2017, and May 31, 2018...
November 1, 2018: Journal of Palliative Care
Kathryn Tham, David J Kenner, Leeroy William
No abstract text is available yet for this article.
November 1, 2018: Journal of Palliative Care
Erin Relyea, Brooke MacDonald, Christina Cattaruzza, Denise Marshall
Schizophrenia is a serious chronic mental illness that results in marginalization and stigma for sufferers. It is the seventh leading cause for disability worldwide. The symptoms of the illness, including hallucinations, delusions, and extremely disordered thinking and behavior, may also introduce barriers to accessing treatment, education, housing, and employment. Little is known about end-of-life care for individuals with schizophrenia. To address this gap, a scoping review was conducted to enhance understanding of hospice and palliative care for patients with schizophrenia...
October 10, 2018: Journal of Palliative Care
Carolina Gustafson, Mark Lazenby
The objective of this review was to detail the experiences of Muslim oncology patients receiving palliative and end-of-life care and identify where gaps in the providing of culturally aware care occur. We also sought to examine ways in which providers could be better educated on the needs of Muslim patients at the end-of-life and identify barriers Muslims faced when being treated with hospice and palliative care models developed for non-Muslim populations. We conducted a search in April 2018 in the National Library of Medicine and CINAHL databases using the search terms "palliative care," "Muslim," and "cancer...
September 20, 2018: Journal of Palliative Care
Kimberly L Schoonover, Maria I Lapid
OBJECTIVES: Little is known about the hospice experience of centenarians. As the population of centenarians is projected to increase, understanding their unique end-of-life needs will be important to inform delivery of quality end-of-life care. Our objective was to characterize the hospice experience of centenarians. METHODS: A retrospective single-institution cohort study of centenarians enrolled in hospice from January 1, 2015, to December 31, 2017, was conducted to collect demographic and clinical information...
September 19, 2018: Journal of Palliative Care
Radka Bužgová, Radka Kozáková, Lubica Juríčková
AIM: The aim of our research was to explore the unfulfilled needs of patients with a progressive neurological disease in advanced stage of the illness within the current system of health and social care in the Czech Republic. DESIGN AND SETTING: Qualitative research (grounded theory) was used to conceptualize the patterns of unmet palliative care needs in Czech Republic. METHODS: The data collection method comprised individual, in-depth interviews (n = 19) and focus groups (n = 4) where a total of 52 respondents participated (patients with progressive neurological diseases [PNDs], family members, and professionals)...
September 19, 2018: Journal of Palliative Care
Muhammad Hassan Majeed, Ramsha Nadeem, Muhammad Abbas Khokhar, Muhammad Nawaz Qaisar
PURPOSE: Pain is highly prevalent in advanced cancer and requires aggressive management. However, pain management in cancer is minimally investigated in Pakistan. This cross-sectional study explores the adequacy of pain management in patients with advanced stage cancer in Pakistan. METHOD: From January 2017 to May 2017, a cross-sectional study was conducted at Mayo Hospital, Lahore, Pakistan. A total of 218 patients with cancers were interviewed, and 136 patients with pain ≥5 on a Numerical Rating Scale for pain were included in the study...
September 13, 2018: Journal of Palliative Care
Margaret I Liang, Bryce Erich, Charlotte Bailey, Mi-Yeoung Jo, Christine S Walsh, Arash Asher
PURPOSE: The objective of this pilot study is to evaluate the (1) applicability of a 15-hour attending-taught psychoeducational intervention in a retrospective cohort and (2) feasibility of a trainee-taught intervention in a prospective cohort of patients with gynecologic cancer to help manage cancer-related cognitive impairment (CRCI). METHODS: Adults with any stage gynecologic cancer who completed chemotherapy and reported cognitive complaints were eligible. Additionally, the screening criteria of Functional Assessment of Cancer Therapy-Cognition (FACT-Cog) perceived cognitive impairment (PCI) subscale score <59 was used in the prospective cohort...
August 31, 2018: Journal of Palliative Care
Kirsty-Leah Goymour, Maria Heaton, Sandra Coombs, Norm Kelk, Kylie Estreich, Sara Sarraf, Susan Trethewie, Tiina Jaaniste
Caring for a child in hospital who is approaching death, in the terminal phase, requires a focus on caring for the physical, emotional, and spiritual needs of the child and family. Health professionals caring for these children and families may need to shift their focus from a treatment-focused approach aimed at cure or maintaining life to a comfort-focused approach. The Comfort Care Case (CCC) is a collection of resources designed for use in hospital to ease suffering and facilitate comfort within a pediatric end-of-life (EOL) context...
August 31, 2018: Journal of Palliative Care
Rebekah Fenton
Doctor-patient communication is a quintessential part of medical care. Yet, several factors challenge its effectiveness. The author, a third year Pediatrics resident, explores the ways medical education creates distance between doctors' and patients' ability to achieve mutual understanding in the clinical setting and how she tries to overcome this barrier.
August 24, 2018: Journal of Palliative Care
Frank Brennan
Respect for the human body is a fundamental principle of health care. This article examines a selection of the work of three Polish poets who lived through the agonies of World War II. The author reflects on the lessons that can be drawn from their work for clinical care, including Palliative Care, the dignity of the human person and the nature of suffering.
October 2018: Journal of Palliative Care
Xavier Gómez-Batiste, Carles Blay, Marc Antoni Broggi, Cristina Lasmarias, Laura Vila, Jordi Amblàs, Joan Espaulella, Xavier Costa, Marisa Martínez-Muñoz, Bernabé Robles, Salvador Quintana, Joan Bertran, Francesc Torralba, Carmen Benito, Nuria Terribas, Josep Maria Busquets, Carles Constante
Palliative care must be early applied to all types of advanced chronic and life limited prognosis patients, present in all health and social services. Patients' early identification and registry allows introducing palliative care gradually concomitant with other measures. Patients undergo a systematic and integrated care process, meant to improve their life quality, which includes multidimensional assessment of their needs, recognition of their values and preferences for advance care planning purposes, treatments review, family care, and case management...
October 2018: Journal of Palliative Care
Samantha E Opitz, Randy S Hebert
As the population ages, the corresponding rise in people living with life-limiting illnesses will lead to a greater need for clinician experts in palliative medicine. There are not enough physicians available to care for the growing number of patients, however. We believe that nurse practitioners are well positioned to meet this demand. In this paper, we will use the concept of disruptive innovations to provide support for our belief that nurse practitioners can, and should, take a larger role in palliative medicine...
October 2018: Journal of Palliative Care
Rushad Patell, Alejandra Gutierrez, Natalie Lee, Kathleen Neuendorf
OBJECTIVE: To assess the impact of a 1-hour communication skills workshop highlighting the "ask more and summarize technique" (AMST) to teach residents an effective way to respond to emotionally charged questions. METHODS: From December 2015 to January 2017, residents on an inpatient oncology or palliative medicine rotation attended a mandatory 1-hour workshop on AMST involving a short introduction to the technique followed by skills practice. A survey (S1) was administered to the residents during the first session to assess their self-reported attitudes and practices...
October 2018: Journal of Palliative Care
Constance Dahlin, Patrick Coyne, Jaime Goldberg, Leigh Vaughan
Palliative care is one of the newer health specialties and continues to mature. While there has been remarkable progression of clinical skills and education, there has been a lack of focus on palliative care interdisciplinary leadership or development of leadership skills. This article highlights the importance of interdisciplinary palliative leadership within the 5 realms of clinical practice, research, education, policy/advocacy, and administration. A definition of leadership is offered and discussion of successful leadership skills is described...
August 16, 2018: Journal of Palliative Care
Simone Stenekes, Jamie L Penner, Michael Harlos, Marie-Claude Proulx, Erin Shepherd, Stephen Liben, Genevieve Thompson, Grace MacConnell, Marie-Claude Grégoire, Harold Hal Siden
Perinatal palliative care is an emerging area of health care. To date, no published tools assess health-care provider's knowledge and level of comfort in providing such care. A 2-phase study was undertaken to develop and implement a survey to evaluate the self-assessed competency, attitudes, and knowledge of health-care providers working in perinatal palliative care. Phase 1 included a review of the literature and appraisal of palliative and death-related instruments to inform the initial draft of the Perinatal Palliative Care Survey (PPCS)...
July 31, 2018: Journal of Palliative Care
Anand S Iyer, Roberto P Benzo, Marie A Bakitas
No abstract text is available yet for this article.
July 2018: Journal of Palliative Care
Osayande Osagiede, Dorin T Colibaseanu, Aaron C Spaulding, Ryan D Frank, Amit Merchea, Scott R Kelley, Ryan J Uitti, Sikander Ailawadhi
BACKGROUND: Palliative care has been increasingly recognized as an important part of cancer care but remains underutilized in patients with solid cancers. There is a current gap in knowledge regarding why palliative care is underutilized nationwide. OBJECTIVE: To identify the factors associated with palliative care use among deceased patients with solid cancer tumors. METHODS: Using the 2016 National Cancer Data Base, we identified deceased patients (2004-2013) with breast, colon, lung, melanoma, and prostate cancer...
July 2018: Journal of Palliative Care
Jay J Shen, Eunjeong Ko, Pearl Kim, Sun Jung Kim, Yong-Jae Lee, Jae-Hoon Lee, Ji Won Yoo
AIM: Little is known regarding the extent to which dying patients with chronic obstructive pulmonary disease (COPD) receive life-sustaining procedures and palliative care in US hospitals. We examined temporal trends and the impact of palliative care on the use of life-sustaining procedures in this population. MATERIALS AND METHODS: A retrospective nationwide cohort analysis was performed using weighted National Inpatient Sample (NIS) data obtained from 2010 to 2014...
July 2018: Journal of Palliative Care
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