Deanna Allred, Tracy M Frech, Cynthia McComber, Kathryn Peterson, Gloria Ortiz, Constance McNeill, Linsey Broadbent, Nancy Elorreaga, Thomas Miller, Mary Beth Scholand
Value in healthcare must focus on accessibility, quality, and affordability. This article describes how a healthcare team provides value by meeting the needs of a rare disease patient and underscores the importance of a chronic multiorgan rare disease home. A nurse practitioner can ensure that barriers to evaluation are removed and communication is prioritized in order to provide accessible and affordable care to a patient with rare disease without jeopardizing quality of care.
2017: Journal of Medical Practice Management: MPM