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Patient Education and Counseling

Willem Eijzenga, Eveline de Geus, Cora M Aalfs, Fred H Menko, Rolf H Sijmons, Hanneke C J M de Haes, Ellen M A Smets
OBJECTIVE: In hereditary and familial cancer, counselees are requested to inform their at-risk relatives. We developed an intervention to support counselees in this task. METHODS: A randomized controlled trial was conducted aimed at improving cancer genetic counselees' i) knowledge, ii) motivation to disclose information, and ii) self-efficacy in this regard. Eligible participants were randomized to telephonic counseling (n = 148), or standard care (n = 157) and assessed at baseline, 1 week post-intervention, and 4 months after study enrolment...
May 8, 2018: Patient Education and Counseling
M H Brouwers, H Bor, R Laan, C van Weel, E van Weel-Baumgarten
OBJECTIVE: Breaking bad news (BBN) should be trained, preferably early and following a helical model with multiple sessions over time, including feedback on performance. It's unclear how medical students evaluate such an approach. METHODS: We gathered student opinions regarding a helical BBN training programme, the feedback and emotional support they received, and the applicability of the skills training immediately after BBN skills training (Q1) and after finishing their clinical clerkships (Q2)...
May 7, 2018: Patient Education and Counseling
Demi Krystallidou, Peter Pype
OBJECTIVE: To investigate i) how the patient's participation in interaction occurs in interpreter-mediated consultations (IMCs) when the doctor provides information to the patient or tries to elicit information from them; ii) how the interpreter's presence in the consultation influences the patient's participation. METHOD: We analyzed 20 authentic video-recorded IMCs using the A.R.T. framework, an analytical tool for the study of participation in video recorded interpreter-mediated interactions...
May 5, 2018: Patient Education and Counseling
Mollie A Ruben, Madeline Fullerton
OBJECTIVE: Patient-centered care emphasizes the need to form a therapeutic and trusting relationship between patients and providers in which patients feel comfortable disclosing health-relevant and personal information. It is still unknown how many patients disclose their sexual orientation to providers, under what circumstances and what it is related to in terms of outcomes. METHOD: The present meta-analysis and review sought to identify the overall proportion of sexual orientation disclosure to healthcare providers, facilitators and barriers of disclosure, patient populations less likely to disclose, and the relationship between disclosure and outcomes...
May 2, 2018: Patient Education and Counseling
Inge A Stortenbeker, Juul Houwen, Peter L B J Lucassen, Hugo W Stappers, Willem J J Assendelft, Sandra van Dulmen, Tim C Olde Hartman, Enny Das
OBJECTIVE: Positive communication is advocated for physicians during consultations with patients presenting medically unexplained symptoms (MUS), but studies generally focus on what is said rather than how it is said. This study quantified language use differences of general practitioners (GPs), and assessed their relation to patient anxiety. METHODS: Language use of 18 Dutch GPs during 82 consultations was compared for patients with MUS versus medically explained symptoms (MES)...
May 1, 2018: Patient Education and Counseling
Lindsay N Fuzzell, A Scott LaJoie, Kyle T Smith, Sydney E Philpott, Katherine M Jones, Mary C Politi
OBJECTIVE: To examine 1) parent-provider communication about pediatric health/safety guidelines, 2) trust in child's provider, 3) comfort discussing guidelines, 4) agreement with guideline advice, 5) self-efficacy following guidelines, and their impact on guideline adherence. METHOD: 256 parents of children ages 0-6 completed an online survey about sunscreen use, newborn Vitamin K injections, influenza vaccination, routine vaccination, car seats, infant safe sleep, furniture anchoring, large trampoline use, and firearm safety...
May 1, 2018: Patient Education and Counseling
Christy J W Ledford, Kerry P Sadler, Jeremy T Jackson, Jasmyne J Womack, Heather A Rider, Angela B Seehusen
OBJECTIVE: To demonstrate how the chronic care model can be applied in prenatal care. METHODS: This study was conducted through analysis of data generated in the women's health and family medicine departments of one community hospital and two medical centers across three states (Georgia, Nevada, and Virginia). 159 low-risk obstetric patients were monitored throughout their pregnancy for patient activation and biometric measures including: blood pressure at each appointment, baby's gestational age at birth, and mode of delivery...
April 30, 2018: Patient Education and Counseling
Nicola Rosaasen, Rahul Mainra, Azaad Kukha-Bryson, Victoria Nhin, Paraag Trivedi, Ahmed Shoker, Jay Wilson, Raj Padmanabh, Holly Mansell
BACKGROUND: Inadequate patient knowledge about transplantation can result in low patient satisfaction and contribute to poor clinical outcomes. The purpose of this patient-oriented research project was to develop an educational intervention for patients awaiting kidney transplantation. METHODS: An educational intervention was developed by patients and health care providers, experts in medication adherence, video education, motivational psychology, and cultural education...
April 26, 2018: Patient Education and Counseling
D Feldman-Stewart, C Tong, M D Brundage
BACKGROUND: The effectiveness of patient decision aids (PtDA) is rarely evaluated in the "real world" where patients vary in their preferences related to decision support. PURPOSE: To determine how Canadian patients use and evaluate our widely available PtDA for early-stage prostate cancer treatment with its 8 components. METHODS: Google Analytics and online tracking provided usage information. A Usability Assessment (UA) following the PtDA provided evaluation data; main outcomes [scale: 1 (strongly disagree) to 5 (strongly agree)] were (a) the aid was helpful, and (b) I would recommend it to other patients...
April 24, 2018: Patient Education and Counseling
Emilio Márquez-Contreras, Lourdes de López García-Ramos, Nieves Martell-Claros, Vicente F Gil-Guillen, Sara Márquez-Rivero, Elena Pérez-López, Maria Angeles Garrido-Lopez, Celia Farauste, Adriana López-Pineda, José Joaquin Casado-Martinez, Domingo Orozco-Beltran, Jose A Quesada, Concepción Carratalá-Munuera
OBJECTIVE: To validate electronic prescriptions (e-prescriptions) as a method for measuring treatment adherence in patients with hypertension. METHODS: This prospective study initially included 120 patients treated for hypertension in primary care centers. Adherence was measured using the gold standard, the medication event monitoring system (MEMS), versus the index test, the e-prescription program, at baseline and at 6, 12, 18 and 24 months. We calculated the adherence rate using the MEMS and the medication possession ratio (MPR) for the e-prescriptions...
April 23, 2018: Patient Education and Counseling
Vincent Kalumire Cubaka, Michael Schriver, Peter Vedsted, Gregory Makoul, Per Kallestrup
OBJECTIVE: To identify, adapt and validate a measure for providers' communication and interpersonal skills in Rwanda. METHODS: After selection, translation and piloting of the measure, structural validity, test-retest reliability, and differential item functioning were assessed. RESULTS: Identification and adaptation: The 14-item Communication Assessment Tool (CAT) was selected and adapted. VALIDITY AND RELIABILITY TESTING: Content validation found all items highly relevant in the local context except two, which were retained upon understanding the reasoning applied by patients...
April 23, 2018: Patient Education and Counseling
Aaron T Seaman, Kimberly Dukes, Richard M Hoffman, Alan J Christensen, Nicholas Kendell, Andrew L Sussman, Miriam Veléz-Bermúdez, Robert J Volk, Nitin A Pagedar
OBJECTIVE: Shared decision making (SDM) is recommended when offering lung cancer screening (LCS)-which presents challenges with tobacco-related cancer survivors because they were excluded from clinical trials. Our objective was to characterize head and neck cancer (HNC) survivors' knowledge, attitudes, and beliefs toward LCS and SDM. METHODS: Between November 2017 and June 2018, we conducted semi-structured qualitative interviews with 19 HNC survivors, focusing on patients' cancer and smoking history, receptivity to and perceptions of LCS, and decision-making preferences RESULTS: Participants were receptive to LCS, referencing their successful HNC outcomes...
April 22, 2018: Patient Education and Counseling
Lorraine M Noble, Wesley Scott-Smith, Bernadette O'Neill, Helen Salisbury
OBJECTIVES: Clinical communication is a core component of undergraduate medical training. A consensus statement on the essential elements of the communication curriculum was co-produced in 2008 by the communication leads of UK medical schools. This paper discusses the relational, contextual and technological changes which have affected clinical communication since then and presents an updated curriculum for communication in undergraduate medicine. METHOD: The consensus was developed through an iterative consultation process with the communication leads who represent their medical schools on the UK Council of Clinical Communication in Undergraduate Medical Education...
April 22, 2018: Patient Education and Counseling
Johanna Granhagen Jungner, Elisabet Tiselius, Marika Wenemark, Klas Blomgren, Kim Lützén, Pernilla Pergert
OBJECTIVE: To develop a valid and reliable questionnaire addressing the experiences of healthcare personnel of communicating over language barriers and using interpreters in paediatric healthcare. METHODS: A multiple- methods approach to develop and evaluate the questionnaire, including focus groups, cognitive interviews, a pilot test and test-retest. The methods were chosen in accordance with questionnaire development methodology to ensure validity and reliability...
April 22, 2018: Patient Education and Counseling
Anita Amundsen, Svein Bergvik, Phyllis Butow, Martin H N Tattersall, Tore Sørlie, Tone Nordøy
OBJECTIVE: To document the effect of a cancer specific question prompt list (QPL) on patients question asking and shared decision-making (SDM), and to evaluate the combined effect of the QPL and consultation audio recording (CAR) on patient outcomes. METHOD: This exploratory study compared two groups of patients receiving either a QPL or combined QPL/CAR, to a control group. Measurements included number/types of questions asked, and physician SDM behavior (OPTION score)...
April 22, 2018: Patient Education and Counseling
Moriah E Ellen, Ruth Shach, Ran D Balicer
Patients often feel lost when navigating the health care system, and poor care coordination leads to negative patient outcomes, consumes resources and makes diseases more difficult to treat. Patients and citizens have become eager to take health care decision making into their own hands. To this end, solutions have been proposed which assist patients by providing them with more information and enabling them to take a more active role in their care. These include enlisting a patient navigator, consumer engagement, process mapping, decision aids, and clinical pathways...
April 14, 2018: Patient Education and Counseling
Orit Karnieli-Miller, Keren Michael, Shmuel Eidelman, Dafna Meitar
OBJECTIVES: To examine how medical students notice issues in a vignette and construct their meaning, and how this construction influences their plan to communicate with the patient. METHODS: Following a breaking bad news course for 112 senior medical students, we qualitatively analyzed the participants' written descriptions of the issues they noticed as requiring special attention, using an Immersion/Crystallization iterative consensus process. RESULTS: Different students noticed different issues, but no-one noticed all 19 planted issues (Mean of issues noticed by students = 6...
April 10, 2018: Patient Education and Counseling
Justin Jek-Kahn Koh
No abstract text is available yet for this article.
April 10, 2018: Patient Education and Counseling
Christina C Wieczorek, Peter Nowak, Susan B Frampton, Jürgen M Pelikan
OBJECTIVE: Present and discuss the development and basic structure of a multilevel approach to strengthen patient and family engaged care, "The New Haven Recommendations on partnering with patients, families and citizens to enhance performance and quality in health promoting hospitals and health services". METHODS: A generic literature review was conducted followed by a Delphi procedure to prepare the New Haven Recommendations. From systems theory perspective, three conceptual levels are used to map action areas to enhance patient and family engaged care...
April 10, 2018: Patient Education and Counseling
Elizabeth J Siembida, Nina S Kadan-Lottick, Kerry Moss, Keith M Bellizzi
OBJECTIVES: A lack of focus on variation in engagement among cancer populations of differing developmental stages led us to examine the associations between patient engagement, the patient-provider relationship, cognitive development, readiness to transition to adulthood (transitional readiness) and perceived quality of care. METHODS: A sample of 101 adolescent cancer patients (diagnosed 10-20 years) completed survey items concerning patient engagement, dimensions of the patient-provider relationship, cognitive development, transitional readiness, and demographic characteristics using an iPad/tablet during a routine clinic visit...
April 10, 2018: Patient Education and Counseling
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