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Patient Education and Counseling

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https://www.readbyqxmd.com/read/28433408/don-t-need-help-don-t-want-help-can-t-get-help-how-patients-with-brain-tumors-account-for-not-using-rehabilitation-psychosocial-and-community-services
#1
Danette Langbecker, Stuart Ekberg, Patsy Yates
OBJECTIVE: To understand why some adults with primary brain tumors do not use support services despite indications of a need for help. METHODS: Nineteen adults recently diagnosed with primary brain tumors participated in semi-structured interviews. Thematic analysis was used to identify recurrent ways participants explained their non-use of support services. RESULTS: Some patients indicated that they did not use support services as they did not need help, in particular reporting positive experiences relative to their expectations or to others, that their needs were met, or difficulties recognizing their needs...
April 14, 2017: Patient Education and Counseling
https://www.readbyqxmd.com/read/28427889/lost-in-translation-cultural-divides-in-communication-skills-teaching-identified-in-the-icch-2016-student-symposium
#2
Heather K Schopper, Nasteha A Mohamed, Max Seegel, Kseniya Gorina, Jonathan Silverman, Marcy Rosenbaum
OBJECTIVE: To provide a platform for learners' voices at an international conference on communication in healthcare. METHODS: A group of medical students were invited to explore their experiences with communication skills learning at a symposium at the 2016 International Conference on Communication in Healthcare in Heidelberg, DE. RESULTS: Students from the US, Denmark, Germany, and Russia discussed their experiences with communication skills curriculum at their institutions...
April 12, 2017: Patient Education and Counseling
https://www.readbyqxmd.com/read/28408135/the-missing-person-the-outcome-of-the-rule-based-totalitarianism-of-too-much-contemporary-healthcare
#3
Iona Heath
OBJECTIVES: Medicine has an obsession with scientific progress and a misplaced belief in the perfectibility of the human body and mind and, as a result, there seems never to be time for the necessary backward glance. If we in healthcare are to learn any of the lessons of history, it seems important that we pay attention to those who have suffered at the sharp end of historical events. METHODS AND RESULTS: This paper invokes thinkers and writers who lived lives scarred by totalitarian politics...
April 3, 2017: Patient Education and Counseling
https://www.readbyqxmd.com/read/28392179/how-do-patients-experience-caring-scoping-review
#4
REVIEW
Hannah Gillespie, Martina Kelly, Sarah Duggan, Tim Dornan
OBJECTIVE: Summarise empirical research into patients' experiences of caring in order to promote this as a core condition for the work of health professionals. METHODS: A review team: carried out a scoping review with a phenomenological orientation that did not privilege any profession or context of care; comprehensively searched six databases from inception to the present, including all English language articles that report patients' lived experiences of caring; and identified and contrasted uncaring experiences...
March 31, 2017: Patient Education and Counseling
https://www.readbyqxmd.com/read/28396057/general-principles-to-consider-when-designing-a-clinical-communication-assessment-program
#5
Claudia Kiessling, Zoi Tsimtsiou, Geurt Essers, Marc van Nuland, Tor Anvik, Maria M Bujnowska-Fedak, Richard Hovey, Ragnar Joakimsen, Noëlle Junod Perron, Marcy Rosenbaum, Jonathan Silverman
OBJECTIVES: Assessment of clinical communication helps teachers in healthcare education determine whether their learners have acquired sufficient skills to meet the demands of clinical practice. The aim of this paper is to give input to educators when planning how to incorporate assessment into clinical communication teaching by building on the authors' experience and current literature. METHODS: A summary of the relevant literature within healthcare education is discussed, focusing on what and where to assess, how to implement assessment and how to choose appropriate methodology...
March 27, 2017: Patient Education and Counseling
https://www.readbyqxmd.com/read/28433407/patient-provider-communication-in-nephrology-care-for-adolescents-and-young-adults
#6
S S Coburn, M N Eakin, D Roter, C Pruette, T Brady, S Mendley, S Tuchman, B Fivush, K A Riekert
OBJECTIVE: To compare the relative quantity of talk between providers, caregivers, and adolescents and young adults (AYAs) with chronic kidney disease (CKD) and how communication differs by age. METHODS: During nephrology clinic visits, conversations between AYAs with CKD (N=99, ages 11-20, median=15), their caregivers, and providers (N=19) were audiotaped and coded using the Roter Interaction Analysis System. Linear mixed models tested AYA age differences in talk frequency by AYAs, caregivers, and providers...
March 24, 2017: Patient Education and Counseling
https://www.readbyqxmd.com/read/28359659/a-stakeholder-driven-approach-to-improve-the-informed-consent-process-for-palliative-chemotherapy
#7
Andrea C Enzinger, Jennifer K Wind, Elizabeth Frank, Nadine J McCleary, Laura Porter, Heather Cushing, Caroline Abbott, Christine Cronin, Peter C Enzinger, Neal J Meropol, Deborah Schrag
OBJECTIVE: Patients often anticipate cure from palliative chemotherapy. Better resources are needed to convey its risks and benefits. We describe the stakeholder-driven development and acceptability testing of a prototype video and companion booklet supporting informed consent (IC) for a common palliative chemotherapy regimen. METHODS: Our multidisciplinary team (researchers, advocates, clinicians) employed a multistep process of content development, production, critical evaluation, and iterative revisions...
March 22, 2017: Patient Education and Counseling
https://www.readbyqxmd.com/read/28400071/using-interpreters-in-medical-consultations-what-is-said-and-what-is-translated-a-descriptive-analysis-using-rias
#8
Marina Sleptsova, Heidemarie Weber, Andrea C Schöpf, Matthias Nübling, Naser Morina, Gertrud Hofer, Wolf Langewitz
OBJECTIVE: To analyse the concordance of original utterances by healthcare providers (HCP) and patients with the corresponding translations by interpreters using the Roter Interaction Analysis System (RIAS). METHODS: Video recordings of interpreted consultations were transcribed. Transcription was performed by professional interpreters, who first transcribed consultations in both languages, then provided a translation of what was said in the foreign language. Based on the translations, the videos were coded and analysed using RIAS...
March 19, 2017: Patient Education and Counseling
https://www.readbyqxmd.com/read/28372897/audiologist-patient-communication-profiles-in-hearing-rehabilitation-appointments
#9
Carly Meyer, Caitlin Barr, Asaduzzaman Khan, Louise Hickson
OBJECTIVE: To profile the communication between audiologists and patients in initial appointments on a biomedical-psychosocial continuum; and explore the associations between these profiles and 1) characteristics of the appointment and 2) patients' decisions to pursue hearing aids. METHODS: Sixty-three initial hearing assessment appointments were filmed and audiologist-patient communication was coded using the Roter Interaction Analysis System. A hierarchical cluster analysis was conducted to profile audiologist-patient communication, after which regression modelling and Chi-squared analyses were conducted...
March 18, 2017: Patient Education and Counseling
https://www.readbyqxmd.com/read/28359660/clinician-patient-communication-measures-drilling-down-into-assumptions-approaches-and-analyses
#10
Richard L Street, Kathleen M Mazor
OBJECTIVE: To critically examine properties of clinician-patient communication measures and offer suggestions for selecting measures appropriate to the purposes of research or clinical practice assessment. METHODS: We analyzed different types of communication measures by focusing on their ontological properties. We describe their relative advantages and disadvantages with respect to different types of research questions. RESULTS: Communication measures vary along dimensions of reporter (observer vs...
March 18, 2017: Patient Education and Counseling
https://www.readbyqxmd.com/read/28330715/does-patient-activation-level-affect-the-cancer-patient-journey
#11
Judith H Hibbard, Eldon Mahoney, Ellen Sonet
OBJECTIVES: We assess how patient activation is associated with behaviors and experiences of people with cancer, including: understanding risks; making treatment decisions; communicating with providers; coping with symptoms; and adhering to regimens. METHODS: The study utilizes survey data from six surveys each including 500 cancer survivors. Multivariate analyses are presented. RESULTS: Higher activated patients are more than 9 times more likely to feel their treatment plans reflect their values, 4...
March 16, 2017: Patient Education and Counseling
https://www.readbyqxmd.com/read/28363358/an-educational-video-program-to-increase-aging-services-technology-awareness-among-older-adults
#12
Joyce W Tam, Catherine Van Son, Dennis Dyck, Maureen Schmitter-Edgecombe
OBJECTIVE: Aging services technologies (ASTs), health technology that meets the needs of seniors, are being underutilized due to a lack of awareness. This study evaluated a video-based educational program to increase AST awareness. METHODS: Two hundred and thirty-one older adults completed AST measures pre- and post-program. RESULTS: Participants endorsed significantly improved AST knowledge and attitude and a lower level of perceived stigma post-program...
March 15, 2017: Patient Education and Counseling
https://www.readbyqxmd.com/read/28363359/the-most-important-needs-and-preferences-of-patients-for-support-from-health-care-professionals-a-reflective-practice-on-transitional-care-for-young-adults-with-juvenile-idiopathic-arthritis
#13
Judy W Ammerlaan, Harmieke van Os-Medendorp, Nienke C de Boer-Nijhof, Berent Prakken, Johannes W J Bijlsma, Aike A Kruize
In this manuscript, presented as a Reflective Practice, the learning experiences and reflections of a healthcare team on redeveloping the transitional care for young adults with a juvenile rheumatic disease are described. In this process of redeveloping care, the healthcare team experienced that small step, driven by patient stories and involvement of patients in all phases from development to evaluation, led to meaningful results. The eHealth interventions, developed to support the transition and to increase self-management were found to be feasible and evaluated positively by the young adult group...
March 12, 2017: Patient Education and Counseling
https://www.readbyqxmd.com/read/28381330/perceived-organizational-affiliation-and-its-effects-on-patient-trust-role-modeling-with-embodied-conversational-agents
#14
Zhe Zhang, Timothy W Bickmore, Michael K Paasche-Orlow
OBJECTIVE: Verbal and non-verbal behaviors, which are known as "relational contextualization cues", relay information about relationships and how they are structured. We developed a computer-simulated provider conducting an informed consent process for clinical research to investigate the effects of a provider's alignment of interests with a patient, the research team, or a neutral party on patient trust in the provider. METHODS: Participants (N=43) interacted with a simulated provider for a research informed consent process in a three-arm, counterbalanced, within-subjects experiment...
March 11, 2017: Patient Education and Counseling
https://www.readbyqxmd.com/read/28342674/mindfulness-predicts-student-nurses-communication-self-efficacy-a-cross-national-comparative-study
#15
Vibeke Sundling, Annelie J Sundler, Inger K Holmström, Dorte Vesterager Kristensen, Hilde Eide
OBJECTIVES: The aim of this study was to compare student nurses' communication self-efficacy, empathy, and mindfulness across two countries, and to analyse the relationship between these qualities. METHODS: The study had a cross-sectional design. Data was collected from final year student nurses in Norway and Sweden. Communication self-efficacy, empathy, and mindfulness were reported by questionnaires; Clear-cut communication with patients, Jefferson Scale of Empathy, and Langer 14 items mindfulness scale...
March 11, 2017: Patient Education and Counseling
https://www.readbyqxmd.com/read/28385363/-when-information-is-not-enough-a-model-for-understanding-brca-positive-previvors-information-needs-regarding-hereditary-breast-and-ovarian-cancer-risk
#16
Marleah Dean, Courtney L Scherr, Meredith Clements, Rachel Koruo, Jennifer Martinez, Amy Ross
OBJECTIVE: To investigate BRCA-positive, unaffected patients' - referred to as previvors - information needs after testing positive for a deleterious BRCA genetic mutation. METHODS: 25 qualitative interviews were conducted with previvors. Data were analyzed using the constant comparison method of grounded theory. RESULTS: Analysis revealed a theoretical model of previvors' information needs related to the stage of their health journey. Specifically, a four-stage model was developed based on the data: (1) pre-testing information needs, (2) post-testing information needs, (3) pre-management information needs, and (4) post-management information needs...
March 10, 2017: Patient Education and Counseling
https://www.readbyqxmd.com/read/28342675/the-digital-heart-manual-a-pilot-study-of-an-innovative-cardiac-rehabilitation-programme-developed-for-and-with-users
#17
C Deighan, L Michalova, C Pagliari, J Elliott, L Taylor, H Ranaldi
OBJECTIVE: Patients are seeking greater choice and flexibility in how they engage with self-management programmes. While digital innovations offer opportunities to deliver supportive interventions to patients undergoing cardiac rehabilitation little is known about how accessible, useful and acceptable they are for this group. This project developed a digital version of a leading evidenced cardiac rehabilitation programme, the Heart Manual (HM). The prototype was developed and evaluated iteratively in collaboration with end users...
March 10, 2017: Patient Education and Counseling
https://www.readbyqxmd.com/read/28318844/the-association-between-parent-reported-provider-communication-quality-and-child-obesity-status-variation-by-parent-obesity-and-child-race-ethnicity
#18
Michelle S Wong, Nakiya N Showell, Sara N Bleich, Kimberly A Gudzune, Kitty S Chan
OBJECTIVE: To examine the association between healthcare provider communication quality and child obesity status, and the role of parent obesity and child race/ethnicity regarding this association. METHODS: We conducted a cross-sectional secondary data analysis with the 2011-2013 Medical Expenditures Panel Survey of parents with children ages 6-12 (n=5390). We used multivariable logistic regression to examine the association of parent-reported healthcare provider communication quality (explaining well, listening carefully, showing respect, and spending enough time) with child obesity status, and effect modification by parent obesity and child race/ethnicity...
March 9, 2017: Patient Education and Counseling
https://www.readbyqxmd.com/read/28320559/assessing-the-significance-of-health-information-seeking-in-chronic-condition-management
#19
Caress A Dean, Christian J Geneus, Shahida Rice, Marquisha Johns, Delores Quasie-Woode, Kevin Broom, Keith Elder
OBJECTIVE: To examine the relationship between health information seeking and confidence in performing self-management activities, and to assess the influence of predisposing, enabling, and perceive need factors on confidence to perform self-management activities among adults with chronic conditions. METHODS: The sample included 6724 adults from the 2007 Health Tracking Household Survey who were ≥18 years with a chronic condition. Binary logistic regression examined the relationship between health information seeking, predisposing, enabling, and perceive need factors and confidence in performing three self-management activities; prevent symptoms, tell doctor concerns, and know when to get medical care...
March 7, 2017: Patient Education and Counseling
https://www.readbyqxmd.com/read/28302341/communication-behaviors-and-patient-autonomy-in-hospital-care-a-qualitative-study
#20
Zackary D Berger, Emily F Boss, Mary Catherine Beach
BACKGROUND: Little is known about how hospitalized patients share decisions with physicians. METHODS: We conducted an observational study of patient-doctor communication on an inpatient medicine service among 18 hospitalized patients and 9 physicians. A research assistant (RA) approached newly hospitalized patients and their physicians before morning rounds and obtained consent. The RA audio recorded morning rounds, and then separately interviewed both patient and physician...
March 7, 2017: Patient Education and Counseling
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