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Journal of Psychosocial Oncology

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https://www.readbyqxmd.com/read/28922073/the-effects-of-individual-and-network-level-factors-on-discussion-of-cancer-experiences-survivors-of-childhood-cancer-in-korea
#1
Min Ah Kim, Jaehee Yi, Kort C Prince, Elizabeth Nagelhout, Yelena Wu
This study aimed to identify young adult Korean cancer survivors' individual- (psychological distress, stigma, sociodemographic variables, and cancer-related variables) and network-level factors (relationship type, social support type) that influence discussion of their cancer experiences. Sixty-eight survivors of childhood cancer who were recruited using snowball sampling nominated 245 individuals from their networks, including family and intimate partners (40%) and friends and acquaintances (60%), as people with whom they most frequently interacted...
September 18, 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28902576/caring-for-patients-with-brain-tumors-compared-to-patients-with-non-brain-tumors-experiences-and-needs-of-informal-caregivers-in-home-care-settings
#2
Maria Heckel, Bettina Hoser, Stephanie Stiel
BACKGROUND/OBJECTIVE: Informal caregivers of patients with advanced cancer experience a challenging time, especially while caring for the patient at home. Aim of this study is to compare experiences, perceived burdens, and needs during home care of informal caregivers of brain tumor patients and informal caregivers of non-brain tumor patients. METHODS: 28 informal caregivers (17 brain tumor group, 11 non-brain tumor group) participated in this study. Semi-structured interviews were conducted to gather information retrospectively...
September 13, 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28901835/book-review-of-lgbtq-inclusive-hospice-and-palliative-care-a-practical-guide-to-transforming-professional-practice
#3
Jennifer Currin-McCulloch, Jelena Todic
No abstract text is available yet for this article.
September 13, 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28857692/cultural-adaptation-of-a-supportive-care-needs-measure-for-hispanic-men-cancer-survivors
#4
Dinorah Martinez Tyson, Patricia Medina-Ramirez, Coralia Vázquez-Otero, Clement K Gwede, Margarita Bobonis, Susan C McMillan
OBJECTIVE: Research with ethnic minority populations requires instrumentation that is cultural and linguistically relevant. The aim of this study was to translate and culturally adapt the Cancer Survivor Unmet Needs (CaSUN) measure, into Spanish. METHODS: We describe the iterative, community-engaged consensus-building approaches used to adapt the instrument for Hispanic male cancer survivors. We used an exploratory sequential mixed method study design. Methods included: translation and back-translation, focus groups with cancer survivors (n = 18) and providers (n = 5), use of cognitive interview techniques to evaluate the comprehension and acceptability of the adapted instrument with survivors (n = 12), ongoing input from the project's community advisory board, and preliminary psychometric analysis (n = 84)...
August 31, 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28816639/posttraumatic-growth-among-childhood-cancer-survivors-associations-with-ethnicity-acculturation-and-religious-service-attendance
#5
Jessica Tobin, Jon-Patrick Allem, Rhona Slaughter, Jennifer B Unger, Ann S Hamilton, Joel E Milam
This study assessed the association between ethnicity, religious service attendance (RSA), and acculturation with posttraumatic growth (PTG) in a diverse sample of 235 childhood cancer survivors (CCS). PTG scores were estimated for each ethnicity, and by level of RSA and acculturation. There was a significant curvilinear relationship (inverted U) between RSA and PTG, such that moderate levels of RSA were associated with highest PTG scores. Hispanics reported the highest PTG, and both Hispanic and Anglo cultural orientation were significantly positively associated with PTG...
August 17, 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28816636/the-distress-thermometer-predicts-subjective-but-not-objective-cognitive-complaints-six-months-after-treatment-initiation-in-cancer-patients-receiving-a-curative-cancer-treatment
#6
Michelle Lycke, Tessa Lefebvre, Lies Pottel, Hans Pottel, Lore Ketelaars, Karin Stellamans, Koen Van Eygen, Philippe Vergauwe, Patrick Werbrouck, Laurence Goethals, Patricia Schofield, Tom Boterberg, Philip R Debruyne
OBJECTIVES: Research has indicated that cancer-related cognitive impairments (CRCI) may be influenced by psychosocial factors such as distress, worry and fatigue. Therefore, we aimed to validate the distress thermometer (DT) as a screening tool to detect CRCI six months post treatment initiation in a group of general cancer patients. METHODS: Patients(18 years, n 125) with a histologically confirmed diagnosis of a solid cancer or haematological malignancy, scheduled for a curative treatment, were evaluated at baseline (T0) and six months post-treatment initiation (T1) for CRCI by a neuropsychological assessment including patient-reported outcome measures (PROMs)...
August 17, 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28786776/fear-of-cancer-and-older-people-s-beliefs-about-cancer-treatment-in-poland
#7
Małgorzata Synowiec-Piłat, Anna Pałęga
Throughout Europe and the US, more than 60% of all cancer incidents occur in older people. Therefore, the aim of this study was to understand the level of fear people have regarding cancer and older people's beliefs about cancer pain, cancer treatment, and the curability of cancer. We conducted a survey in 2012, in which the sample was comprised of 910 adult residents of Wroclaw, Poland, to ascertain the beliefs people have about cancer and the degree of fear people have with respect to cancer. The majority of the respondents reported having a high level of fear, and this level of fear increased with age...
August 8, 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28786762/unpacking-cancer-patients-preferences-for-information-about-their-care
#8
Erin M Ellis, Ashley Varner
OBJECTIVE: Patient-centered decision making requires cancer patients beactively involvedand feel sufficiently informed about their care, but patients'preferences for information are often unrecognizedor unmet by their oncologist, particularly for more distressing topics. This study examined cancer patients' preferences for information about three care-related topics: 1) diagnostic information, 2) treatment costs, and 3) prognosis. We tested whether factors known to influence information preferences (psychological distress, control preferences, and financial distress) were differently associated with information preferences for each topic...
August 8, 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28414629/effects-of-chemotherapy-on-the-health-related-quality-of-life-of-japanese-lower-rectal-cancer-patients-after-sphincter-saving-surgery
#9
Yumiko Kinoshita, Tomoko Ohkusa, Rieko Izukura, Akiko Chishaki, Ryuichi Mibu
We examined the effects of adjuvant chemotherapy on the health-related quality of life (HRQOL) of lower rectal cancer patients receiving sphincter-saving surgery (SSS). In all, 109 patients completed a questionnaire before surgery and 1, 6, and 12 months afterwards. In the chemotherapy group, physical and social functioning scores were significantly lower 12 months after surgery compared with the nonchemotherapy group. These effects of adjuvant chemotherapy suggest that a different clinical approach might more effectively improve physical and social functioning in lower-rectal cancer patients undergoing chemotherapy...
July 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28398149/african-american-prostate-cancer-survivorship-exploring-the-role-of-social-support-in-quality-of-life-after-radical-prostatectomy
#10
Kellie R Imm, Faustine Williams, Ashley J Housten, Graham A Colditz, Bettina F Drake, Keon L Gilbert, Lin Yang
PURPOSE: The aim of this study was to explore the African American prostate cancer survivorship experience following radical prostatectomy and factors contributing to quality of life during survival. DESIGN: African American men who were part of a larger prostate cancer cohort were invited to participate in a focus group. Eighteen open-ended questions were designed by the study team and an experienced moderator to elicit participants' survivorship experiences. RESULTS: Twelve men consented to participate in the study...
July 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28332951/-cancer-was-a-speed-bump-in-my-path-to-enlightenment-a-qualitative-analysis-of-situational-coping-experiences-among-young-adult-survivors-of-childhood-cancer
#11
Rebecca H Foster, Amanda M Brouwer, Robyn Dillon, Matthew J Bitsko, Kamar Godder, Marilyn Stern
Young adult survivors of childhood cancer (N = 47) completed essays exploring situational coping within a mixed methods study. Data were qualitatively analyzed using consensual qualitative research-modified methodology. Five themes emerged: (1) initial reactions to cancer, (2) adjustment/coping with cancer diagnosis and treatment, (3) provisions of social support, (4) perceived effects of cancer experience, and (5) reflections on the cancer experience. Perceptions of childhood cancer experiences appear generally positive, with the majority of negative reactions emerging immediately following diagnosis...
July 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28332946/ethnic-differences-in-psychosocial-service-use-among-non-latina-white-and-latina-breast-cancer-survivors
#12
Rosario Costas-Muñiz, Migda Hunter-Hernández, Olga Garduño-Ortega, Jennifer Morales-Cruz, Francesca Gany
BACKGROUND: This study examined the use of psychosocial services (i.e., social work, psychiatric, psychological, and spiritual/pastoral services) among Latina and Non-Latina white breast cancer survivors. METHODS: Survivors who received treatment in a Comprehensive Cancer Center in New York completed a mailed questionnaire about interest in help for distress, and psychosocial service use. Descriptive and non-parametric statistics were used to explore ethnic differences in use of, and interest in, psychosocial services...
July 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28332940/longitudinal-cancer-risk-management-trajectories-of-brca1-2-mutation-positive-reproductive-age-women
#13
Jennifer Louise Young, Allison Werner-Lin, Rebecca Mueller, Lindsey Hoskins, Norman Epstein, Mark H Greene
Young women with BRCA1/2 mutations face difficult health-care decisions regarding family formation, fertility, breastfeeding, and whether/when to undergo cancer risk-reducing surgery. This longitudinal qualitative study investigated these life choices during the reproductive years. We conducted two semistructured interviews over three years with 12 reproductive-age BRCA1/2-positive women. Researchers coded transcripts to examine the evolution of risk perceptions, risk management, and family planning decisions...
July 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28323560/experiences-of-men-who-commit-to-romantic-relationships-with-younger-breast-cancer-survivors-a-qualitative-study
#14
Rachel A Freidus
This phenomenological study examined the experiences of men who committed to romantic relationships with women under 50, post-breast cancer diagnosis and treatment. Twelve men from throughout the United States, who were dating their partner for at least 6 months, participated in semistructured interviews. Findings focused on initial disclosure timing, previous experience/knowledge about the cancer, reacting with acceptance despite concerns, focusing on love/connection, respecting and admiring the survivor, and the ongoing impact of cancer on the relationship...
July 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28318448/psychological-resilience-aspects-that-mediate-the-depressive-effects-of-urinary-incontinence-in-prostate-cancer-survivors-10%C3%A2-years-after-treatment-with-radiation-and-hormone-ablation
#15
RANDOMIZED CONTROLLED TRIAL
Christopher F Sharpley, Vicki Bitsika, David R H Christie, Rosemary Bradford, Allison Steigler, James W Denham
Repeated surveys of prostate cancer (PCa) patients indicate that their prevalence of depression is well above that for their non-PCa peers. Although standard first-line treatments for depression are only about 35% effective, some recent comments have suggested that a focus upon the possible correlates (factors that aggravate or mediate depression) might help improve treatment efficacy. To investigate this issue, 144 10 year PCa survivors were asked about the frequency of urinary incontinence, a common side effect of some PCa treatments...
July 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28318419/preparing-youth-with-cancer-for-amputation-a-systematic-review
#16
REVIEW
Caitlyn A Loucas, Sarah R Brand, Sima Zadeh Bedoya, Anna C Muriel, Lori Wiener
Children and adolescents who require limb amputation as part of cancer treatment face many physical and emotional challenges. Preparatory interventions may serve to facilitate positive coping and improve long-term adjustment during pediatric cancer treatment, including decreasing anxiety and postoperative distress. This review aimed to examine and identify the type and degree of psychosocial preparation provided to the child with cancer and family prior to amputation. Electronic databases including Embase, PubMed, and PsycINFO were searched for relevant research articles...
July 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28318410/the-influence-of-stigma-on-the-quality-of-life-for-prostate-cancer-survivors
#17
Andrew W Wood, Sejal Barden, Mitchell Terk, Jamie Cesaretti
The purpose of the present study was to investigate the influence of stigma on prostate cancer (PCa) survivors' quality of life. Stigma for lung cancer survivors has been the focus of considerable research (Else-Quest & Jackson, 2014); however, gaps remain in understanding the experience of PCa stigma. A cross-sectional correlational study was designed to assess the incidence of PCa stigma and its influence on the quality of life of survivors. Eighty-five PCa survivors were administered survey packets consisting of a stigma measure, a PCa-specific quality of life measure, and a demographic survey during treatment of their disease...
July 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28614001/self-forgiveness-is-associated-with-reduced-psychological-distress-in-cancer-patients-and-unmatched-caregivers-hope-and-self-blame-as-mediating-mechanisms
#18
Loren Toussaint, Michael Barry, Drew Angus, Lynn Bornfriend, Maurie Markman
This study examined the association between self-forgiveness and psychological distress and tested whether self-blame and hope mediated these associations equally for both patients and caregivers. Participants were 38 patients and 44 unmatched caregivers receiving care at a national cancer hospital. Participants completed measures of self-forgiveness, self-blame, hope, and psychological distress. Self-forgiveness was inversely associated with self-blame and psychological distress and positively associated with hope...
June 14, 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28613997/psychological-distress-and-lifestyle-disruption-in-low-risk-prostate-cancer-patients-comparison-between-active-surveillance-and-radical-prostatectomy
#19
Andrew Glenday Matthew, Orit Raz, Kristen L Currie, Alyssa S Louis, Haiyan Jiang, Tal Davidson, Neil E Fleshner, Antonio Finelli, John Trachtenberg
OBJECTIVE: To quantify distress in men treated with radical prostatectomy (RP) or active surveillance (AS). METHODS: In a retrospective cross-sectional design, we assessed men via questionnaire and investigator-designed questions. RESULTS: RP patients worried more about cancer spread than AS patients. RP patients were influenced by friends for treatment decision, whereas AS patients were influenced by urologists. RP group report declines in intimacy and instrumental...
June 14, 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28613996/personal-resilience-resources-predict-post-stem-cell-transplant-cancer-survivors-psychological-outcomes-through-reductions-in-depressive-symptoms-and-meaning-making
#20
Rebecca A Campo, Lisa M Wu, Jane Austin, Heiddis Valdimarsdottir, Christine Rini
This longitudinal study examined whether post-transplant cancer survivors (N = 254, 9 months to 3 years after stem cell transplant treatment) with greater personal resilience resources demonstrated better psychological outcomes and whether this could be attributed to reductions in depressive symptoms and/or four meaning-making processes (searching for and finding reasons for one's illness; searching for and finding benefit from illness). Hierarchical linear regression analyses examined associations of survivors' baseline personal resilience resources (composite variable of self-esteem, mastery, and optimism), which occurred an average of 1...
June 14, 2017: Journal of Psychosocial Oncology
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