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Journal of Psychosocial Oncology

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https://www.readbyqxmd.com/read/29064780/the-relationship-between-holding-back-from-communicating-about-breast-concerns-and-anxiety-in-the-year-following-breast-biopsy
#1
Caroline S Dorfman, Eneka Lamb, Alyssa Van Denburg, Anava A Wren, Mary Scott Soo, Kaylee Faircloth, Vicky Gandhi, Rebecca A Shelby
PURPOSE: Evidence suggests open communication about breast cancer concerns promotes psychological adjustment, while holding back can lead to negative outcomes. Little is known about the relationship between communication and distress following breast biopsy. Design/ Sample: Women (N = 128) were assessed at the time of breast biopsy and again one week and three, six, and 12 months post-result. METHODS: Linear mixed modeling examined relationships between holding back and anxiety for women with benign results (n = 94) or DCIS/invasive disease (n = 34) following breast biopsy...
October 24, 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/29064771/contralateral-prophylactic-mastectomy-a-qualitative-approach-to-exploring-the-decision-making-process
#2
Judith R Greener, Sarah Bauerle Bass, Stephen J Lepore
The proportion of women with unilateral breast cancer and no familial or genetic risk factors who elect contralateral prophylactic mastectomy (CPM) has grown dramatically, even in the absence of clear data demonstrating improved outcomes. To further extend the literature that addresses treatment decision-making, qualitative interviews were conducted with eleven women who considered CPM. A social ecological model of breast cancer treatment decision-making provided the conceptual framework, and grounded theory was used to identify the cognitive, psychosocial, and emotional influences motivating treatment choice...
October 24, 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28934074/routine-assessment-of-unmet-needs-in-individuals-with-advanced-cancer-and-their-caregivers-a-qualitative-study-of-the-palliative-care-needs-assessment-tool-pc-nat
#3
Sylvie Lambert, Afaf Girgis, Thomas Bellamy
PURPOSE: To examine (a) approaches used by oncologists to administer the Palliative Care Needs Assessment Tool (PC-NAT) in consultations with patients with advanced cancer and their caregivers, (b) potential of this tool to facilitate discussion of psychosocial issues, and (c) whether use of the tool alters the length of consultations. DESIGN: A qualitative analysis was undertaken of audiotaped, outpatient consultations. SAMPLE AND METHODS: 20 individuals with advanced cancer and their caregivers who participated in an interrupted time series study of the impact of the systematic utilisation of the Palliative Care Needs Assessment Tool (PC-NAT) had a total of 48 consultations audiotaped...
September 21, 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28934026/hope-distress-and-later-quality-of-life-among-adolescent-and-young-adults-with-cancer
#4
Abby R Rosenberg, Miranda C Bradford, Kira Bona, Michele L Shaffer, Joanne Wolfe, K Scott Baker, Nancy Lau, Joyce Yi-Frazier
We aimed to explore the predictive value of screening for distress alone, hope alone, or a combination of both. In a multicenter prospective study, 37 English-speaking adolescents and young adults with cancer and 40 parents completed validated instruments at diagnosis ("baseline") and 3-6 months later ("follow-up"). Correlated regression models described associations. Within each instrument, baseline and follow-up scores were associated. However, only a composite hope/distress score predicted all three patient-centered outcomes...
September 21, 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28922073/the-effects-of-individual-and-network-level-factors-on-discussion-of-cancer-experiences-survivors-of-childhood-cancer-in-korea
#5
Min Ah Kim, Jaehee Yi, Kort C Prince, Elizabeth Nagelhout, Yelena P Wu
This study aimed to identify young adult Korean cancer survivors' individual- (psychological distress, stigma, sociodemographic variables, and cancer-related variables) and network-level factors (relationship type, social support type) that influence discussion of their cancer experiences. Sixty-eight survivors of childhood cancer who were recruited using snowball sampling nominated 245 individuals from their networks, including family and intimate partners (40%) and friends and acquaintances (60%), as people with whom they most frequently interacted...
September 18, 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/29099671/lgbtq-inclusive-hospice-and-palliative-care-a-practical-guide-to-transforming-professional-practice
#6
Jennifer Currin-McCulloch, Jelena Todic
No abstract text is available yet for this article.
September 13, 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28902576/caring-for-patients-with-brain-tumors-compared-to-patients-with-non-brain-tumors-experiences-and-needs-of-informal-caregivers-in-home-care-settings
#7
Maria Heckel, Bettina Hoser, Stephanie Stiel
BACKGROUND/OBJECTIVE: Informal caregivers of patients with advanced cancer experience a challenging time, especially while caring for the patient at home. Aim of this study is to compare experiences, perceived burdens, and needs during home care of informal caregivers of brain tumor patients and informal caregivers of non-brain tumor patients. METHODS: 28 informal caregivers (17 brain tumor group, 11 non-brain tumor group) participated in this study. Semi-structured interviews were conducted to gather information retrospectively...
September 13, 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28857692/cultural-adaptation-of-a-supportive-care-needs-measure-for-hispanic-men-cancer-survivors
#8
Dinorah Martinez Tyson, Patricia Medina-Ramirez, Coralia Vázquez-Otero, Clement K Gwede, Margarita Bobonis, Susan C McMillan
OBJECTIVE: Research with ethnic minority populations requires instrumentation that is cultural and linguistically relevant. The aim of this study was to translate and culturally adapt the Cancer Survivor Unmet Needs measure into Spanish. METHODS: We describe the iterative, community-engaged consensus-building approaches used to adapt the instrument for Hispanic male cancer survivors. We used an exploratory sequential mixed method study design. Methods included translation and back-translation, focus groups with cancer survivors (n = 18) and providers (n = 5), use of cognitive interview techniques to evaluate the comprehension and acceptability of the adapted instrument with survivors (n = 12), ongoing input from the project's community advisory board, and preliminary psychometric analysis (n = 84)...
August 31, 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28614001/self-forgiveness-is-associated-with-reduced-psychological-distress-in-cancer-patients-and-unmatched-caregivers-hope-and-self-blame-as-mediating-mechanisms
#9
Loren Toussaint, Michael Barry, Drew Angus, Lynn Bornfriend, Maurie Markman
This study examined the association between self-forgiveness and psychological distress and tested whether self-blame and hope mediated these associations equally for both patients and caregivers. Participants were 38 patients and 44 unmatched caregivers receiving care at a national cancer hospital. Participants completed measures of self-forgiveness, self-blame, hope, and psychological distress. Self-forgiveness was inversely associated with self-blame and psychological distress and positively associated with hope...
September 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28609210/quality-of-life-in-patients-with-brain-tumors-in-the-course-of-alpha-therapy
#10
Marta Kamińska, Ewa Fersten, Henryk Koziara, Bartosz Królicki
The aim of the study was to assess subjective quality of life in patients receiving alpha therapy for malignant tumors (glioblastoma multiforme, GBM) of the brain. No significant differences in self-assessed quality of life were found between GBM patients in the course of α-therapy and healthy controls, the two groups differed only as regards somatic symptoms. Moreover, the stronger the respondents' sense of self-efficacy, the higher their subjective quality of life. The findings may have practical implications for clinical psychology, namely, it seems worthwhile to build up the patient's sense of control of his own health...
September 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28605311/changes-in-intimate-relationships-following-treatment-for-head-and-neck-cancer-a-qualitative-study
#11
Christina Stenhammar, Joakim Isaksson, Brith Granström, Göran Laurell, Ylva Tiblom Ehrsson
The aim of this study was to determine how patients with head and neck cancer experience changes within their intimate relationships at the end of treatment and detect detrimental and facilitating factors in the process of resuming intimate relationships. Interviews were conducted with 131 patients. A core category - "being open versus not sharing the cancer journey" - emerged from the patients' narratives and was based on the experiences of engagement/disengagement, openness/fear, and patronizing attitudes/sharing the burden...
September 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28511030/emotional-approach-coping-and-depressive-symptoms-in-colorectal-cancer-patients-the-role-of-the-intimate-relationship
#12
Jennifer Barsky Reese, Stephen J Lepore, Elizabeth A Handorf, Jennifer A Haythornthwaite
This study examined whether emotional approach coping was associated with lower depressive symptoms, and whether intimacy moderated this association, in 121 married/partnered colorectal cancer (CRC) outpatients. Prospective analyses of survey data on emotional approach coping, depressive symptoms, and intimacy measured at baseline and 6-month follow-up showed that depressive symptoms were inversely related to processing, expression, and intimacy. At baseline, the association between processing and depressive symptoms was moderated by intimacy: greater processing was associated with lower depressive symptoms only for those in relatively high-intimacy relationships...
September 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28414581/posttraumatic-growth-after-cancer-the-role-of-perceived-threat-and-cognitive-processing
#13
Jennifer M Caspari, Trisha L Raque-Bogdan, Cynthia McRae, Teresa L Simoneau, Susan Ash-Lee, Kristin Hultgren
This study examines the relation between perceived cognitive and physical threat after a cancer diagnosis and posttraumatic growth (PTG). In total, 169 breast, prostate, and colorectal cancer survivors completed questionnaires. Hierarchical regression models found after controlling for demographic and medical variables, depression, anxiety, and perceived threat account for 41.8% of the variance of positive cognitive processing, and these variables along with positive cognitive processing accounted for 42.7% of the variance of PTG...
September 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28368770/barriers-to-medical-help-seeking-among-older-men-with-prostate-cancer
#14
L Medina-Perucha, O Yousaf, M S Hunter, E A Grunfeld
OBJECTIVE: Men's disinclination to seek medical help has been linked to higher rates of morbidity and mortality compared to women. However, previous studies were conducted predominantly with healthy, young, and middle-aged men. We explored the perceived medical barriers to help-seeking in older men with prostate cancer. METHOD: 20 men with prostate cancer took part in semistructured interviews, which were analyzed using thematic analysis. RESULTS: Three themes were identified related to negative attitudes toward help-seeking: male gender role; fear of the health condition, medical and treatment procedures; and embarrassment as a consequence of medical examinations, communication with health (and nonhealth) professionals, and the disclosure of sexual-related symptoms...
September 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28358241/communication-between-oncologists-and-lymphoma-survivors-during-follow-up-consultations-a-qualitative-analysis
#15
RANDOMIZED CONTROLLED TRIAL
Kara Franco, Elyse Shuk, Errol Philip, Danielle Blanch-Hartigan, Patricia A Parker, Matthew Matasar, Steven Horwitz, David Kissane, Smita C Banerjee, Carma L Bylund
Cancer survivors often experience both short- and long-term challenges as a result of their cancer treatment. Many patients report feeling "lost in transition" following cancer treatment. The oncologist plays a key role in helping the patient to transition to survivorship. The purpose of this paper is to provide a descriptive understanding of the clinical care delivered during follow-up visits for lymphoma patients transitioning from active therapy into survivorship. We used thematic text analysis to identify themes in transcripts of audio recordings of 21 physicians and their patients in follow-up visits within 3 years of completing lymphoma treatment...
September 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28323578/anxiety-and-its-correlates-among-young-adults-with-a-history-of-parental-cancer
#16
Christina A Metcalf, Joanna J Arch, Joseph A Greer
PURPOSE: We assessed whether experiencing parental cancer during childhood was associated with anxiety levels during young adulthood-and whether parental survival status moderated anxiety or related psychosocial outcomes. METHODS: Young adults who experienced parental cancer during their childhood (n = 68) and those who did not (n = 298) completed measures of current anxiety and family functioning. The parental cancer group completed measures of social support and life changes during the parental cancer and posttraumatic growth...
September 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28816639/posttraumatic-growth-among-childhood-cancer-survivors-associations-with-ethnicity-acculturation-and-religious-service-attendance
#17
Jessica Tobin, Jon-Patrick Allem, Rhona Slaughter, Jennifer B Unger, Ann S Hamilton, Joel E Milam
This study assessed the association between ethnicity, religious service attendance (RSA), and acculturation with posttraumatic growth (PTG) in a diverse sample of 235 childhood cancer survivors (CCS). PTG scores were estimated for each ethnicity, and by level of RSA and acculturation. There was a significant curvilinear relationship (inverted U) between RSA and PTG, such that moderate levels of RSA were associated with highest PTG scores. Hispanics reported the highest PTG, and both Hispanic and Anglo cultural orientation were significantly positively associated with PTG...
August 17, 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28816636/the-distress-thermometer-predicts-subjective-but-not-objective-cognitive-complaints-six-months-after-treatment-initiation-in-cancer-patients-receiving-a-curative-cancer-treatment
#18
Michelle Lycke, Tessa Lefebvre, Lies Pottel, Hans Pottel, Lore Ketelaars, Karin Stellamans, Koen Van Eygen, Philippe Vergauwe, Patrick Werbrouck, Laurence Goethals, Patricia Schofield, Tom Boterberg, Philip R Debruyne
OBJECTIVES: Research has indicated that cancer-related cognitive impairments (CRCI) may be influenced by psychosocial factors such as distress, worry and fatigue. Therefore, we aimed to validate the distress thermometer (DT) as a screening tool to detect CRCI six months post treatment initiation in a group of general cancer patients. METHODS: Patients(18 years, n 125) with a histologically confirmed diagnosis of a solid cancer or haematological malignancy, scheduled for a curative treatment, were evaluated at baseline (T0) and six months post-treatment initiation (T1) for CRCI by a neuropsychological assessment including patient-reported outcome measures (PROMs)...
August 17, 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28786776/fear-of-cancer-and-older-people-s-beliefs-about-cancer-treatment-in-poland
#19
Małgorzata Synowiec-Piłat, Anna Pałęga
Throughout Europe and the US, more than 60% of all cancer incidents occur in older people. Therefore, the aim of this study was to understand the level of fear people have regarding cancer and older people's beliefs about cancer pain, cancer treatment, and the curability of cancer. We conducted a survey in 2012, in which the sample was comprised of 910 adult residents of Wroclaw, Poland, to ascertain the beliefs people have about cancer and the degree of fear people have with respect to cancer. The majority of the respondents reported having a high level of fear, and this level of fear increased with age...
August 8, 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28786762/unpacking-cancer-patients-preferences-for-information-about-their-care
#20
Erin M Ellis, Ashley Varner
OBJECTIVE: Patient-centered decision making requires cancer patients beactively involvedand feel sufficiently informed about their care, but patients'preferences for information are often unrecognizedor unmet by their oncologist, particularly for more distressing topics. This study examined cancer patients' preferences for information about three care-related topics: 1) diagnostic information, 2) treatment costs, and 3) prognosis. We tested whether factors known to influence information preferences (psychological distress, control preferences, and financial distress) were differently associated with information preferences for each topic...
August 8, 2017: Journal of Psychosocial Oncology
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