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Journal of Psychosocial Oncology

Anne Birgitte Hjuler Ammari, Carsten Hendriksen, Susan Rydahl-Hansen
We tested if a family-and-coping-oriented basic palliative homecare intervention (six visits within 15 weeks) could improve quality-of-life and reduce anxiety and depression of advanced cancer patients and their closest relative, and reduce acute hospital admissions of patients. Fifty-seven families were randomized, but patient enrollment was terminated before reaching target sample due to a low recruitment rate. We found no evidence of effect of the FamCope-intervention, but further investigation of effective methods to support how families cope with advanced cancer at home is needed as levels of distress is as high in relatives as it is in patients...
July 11, 2018: Journal of Psychosocial Oncology
Myriam Rudaz, Thomas Ledermann, Joseph G Grzywacz
PURPOSE: This study examined the moderating role of spiritual mindfulness on the association between spiritual coping and perceived growth in individuals with and without current treatment for cancer. DESIGN/SAMPLE: Adults with a cancer history (N = 534) from the Midlife in the United States study completed a telephone interview and self-administered questionnaires. METHODS/FINDINGS: Moderated regression analyses, controlled for age and educational attainment, showed that mindfulness moderated the effect of spiritual coping on personal growth and on positive reinterpretation...
June 5, 2018: Journal of Psychosocial Oncology
Lyndel K Shand, Joanne E Brooker, Sue Burney, Jane Fletcher, Lina A Ricciardelli
The study examined psychosocial factors (quality of life, depression, anxiety, optimism, coping, and social support) in relation to symptoms of posttraumatic stress disorder (PTSD) and posttraumatic growth (PTG) in 108 women diagnosed with ovarian cancer. Canonical correlational analysis showed that both PTSD and PTG were related to poorer quality of life, lack of social supports, and avoidant coping styles. However, higher PTG was also associated with the use of meaning and social support to cope with their experience...
June 4, 2018: Journal of Psychosocial Oncology
Allen C Sherman, Stephanie Simonton-Atchley, Cindy W Mikeal, Kendra M Anderson, Konstantinos Arnaoutakis, Laura F Hutchins, Issam Makhoul, Fade Mahmoud, Natasa Milojkovic, Sarah E Harrington, James Y Suen
PURPOSE: The extent to which patients feel prepared for end-of-life (EOL) may be associated with important clinical outcomes. Despite growing interest in the concept of "preparedness," however, there is insufficient information about what cancer patients actually need to feel prepared. Such information is foundational for patient-centered care, theory-building, and instrument development. DESIGN: This qualitative study examined patient perspectives regarding preparedness for EOL care...
June 4, 2018: Journal of Psychosocial Oncology
Allison Werner-Lin, Anne L Ersig, Rebecca Mueller, Jennifer L Young, Lindsey M Hoskins, Ria Desai, Mark H Greene
Deleterious mutations in BRCA1 or BRCA2 genes increase a woman's lifetime risk of breast and ovarian cancer. Risk management guidelines endorse early detection and prevention behaviors. Despite expressed intent, uptake of these measures remains low. This longitudinal, qualitative study integrated retrospective and prospective data to distinguish factors shaping intent to act from those that are catalysts to taking action to reduce cancer risk. Twelve BRCA1/2 mutation-positive women participating in the National Cancer Institute's Breast Imaging Study aged 18-35 completed two semi-structured interviews three years apart...
June 4, 2018: Journal of Psychosocial Oncology
M Tish Knobf, Diane Erdos, Sangchoon Jeon
There is strong evidence for the need to educate and empower women of color breast cancer survivors (WCBCS) to adopt healthy lifestyle behaviors. The purpose of this study was to explore feasibility and preliminary efficacy of a culturally grounded lifestyle intervention on functional ability, quality of life, and health behaviors. A community-based sample of WCBCS was recruited from two inner cities, with encouragement to invite a partner. There were 30 WCBCS and 10 partners who participated in the 6-week interactive intervention...
May 30, 2018: Journal of Psychosocial Oncology
Sue V Petzel, Rachel Isaksson Vogel, Julie Cragg, Molly McClellan, Daniel Chan, Julie A Jacko, François Sainfort, Melissa A Geller
A randomized controlled trial was conducted of a web-based intervention to improve advanced care planning in women with ovarian cancer. A secondary analysis of 35 randomized women focused on changes in distress and knowledge about ovarian cancer through distress monitoring and information tailored to patients' cognitive coping style (monitoring, blunting). Pre-/postresults indicated the Intervention group demonstrated lower distress (p = 0.06); blunting was associated with lower depression (p = 0.04); knowledge in both groups was unchanged...
May 23, 2018: Journal of Psychosocial Oncology
Julia Seay, Darryl Mitteldorf, Alena Yankie, William F Pirl, Erin Kobetz, Matthew Schlumbrecht
OBJECTIVE: To better understand survivorship care needs among LGBT cancer survivors. DESIGN: We administered an anonymous online survey. SAMPLE: LGBT cancer survivors living in the United States. METHODS: Participants were recruited via the National LGBT Cancer Project. The survey measured sociodemographic characteristics, social support, posttraumatic stress, and survivorship care needs. RESULTS: Approximately 72% of our 114 participants were cisgender male and 87% were white...
May 23, 2018: Journal of Psychosocial Oncology
M Tish Knobf, Diane Erdos
The objective was to understand the breast cancer experience of African American (AA) women using a community-based participatory research framework. Qualitative data were collected from five focus groups with 29 participants in four urban cities. "Being Connected" was the major theme that explained the importance of people in their lives as they coped with the diagnosis, treatment, and life after therapy. Faith, talking, information, support, and living with changes were important factors in the process...
May 21, 2018: Journal of Psychosocial Oncology
Beth A Glenn, Ann S Hamilton, Narissa J Nonzee, Annette E Maxwell, Catherine M Crespi, A Blythe Ryerson, L Cindy Chang, Dennis Deapen, Roshan Bastani
PURPOSE: To assess weight status, physical activity, and dietary behaviors in an ethnically-diverse sample of breast and colorectal cancer survivors with early onset disease (≤ 50 years). METHODS: Breast and colorectal cancer survivors, diagnosed between 1999 and 2009 with early-stage cancer diagnosed by 50 years of age, were identified through a population-based cancer registry and surveyed. Descriptive and regression analyses were conducted to characterize the sample and identify correlates of lifestyle behaviors...
May 15, 2018: Journal of Psychosocial Oncology
Claire Rochette, Karine Baumstarck, Hélène Canoni-Zattara, Ahmad Esmaeel Abdullah, Dominique Figarella-Branger, Morgane Pertuit, Anne Barlier, Frédéric Castinetti, Karel Pacak, Philippe Metellus, David Taïeb
Von Hippel-Lindau (VHL) syndrome is a hereditary cancer syndrome characterized by a high risk of developing benign and malignant tumors, including central nervous system hemangioblastomas (CNS HBs). For an early diagnosis of VHL, before the occurrence of cancers (especially renal cell carcinoma), it is of huge importance to initiate VHL genetic testing in at-risk patients. The aim of the study was to assess the psychological impact of VHL genetic testing in patients previously diagnosed with a CNS HB. From 1999 until 2015, 55 patients underwent surgery for CNS HBs...
May 15, 2018: Journal of Psychosocial Oncology
Gemma Skaczkowski, Victoria White, Kate Thompson, Helen Bibby, Michael Coory, Lisa M Orme, Rachel Conyers, Marianne B Phillips, Michael Osborn, Rosemary Harrup, Antoinette Anazodo
PURPOSE: This study investigated the impact of fertility-related discussions on Adolescent and Young Adult (AYA) cancer patients' quality of life (QoL) and the factors influencing provision of these discussions. METHODS: Recruitment was conducted through population-based state cancer registries. Eligible AYAs were 15-24 years at diagnosis, 3-24 months postdiagnosis, with any cancer (except early stage melanoma). As part of a larger survey, AYAs were asked about their experiences of fertility-related discussions and QoL (FACT-G)...
May 15, 2018: Journal of Psychosocial Oncology
Marie Vander Haegen, Anne-Marie Etienne
PURPOSE: In a 3-month follow-up study, we assessed the intolerance of uncertainty in 61 parents of a childhood cancer survivor. The objective was to compare its prevalence over time. We tested these parents twice i.e., at treatment completion (time 1) and 3 months later (time 2). We hypothesized that this personality factor stayed stable and had aversive effects on cognitive processes. FINDINGS: Noticeable intolerance of uncertainty rates were found. At both assessments, results showed that this factor was central in the development of excessive worries, poor problem orientation, rumination, cognitive avoidance and positive beliefs about worry...
May 14, 2018: Journal of Psychosocial Oncology
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No abstract text is available yet for this article.
May 2018: Journal of Psychosocial Oncology
Erin E Kent, Amy Davidoff, Janet S de Moor, Timothy S McNeel, Katherine S Virgo, Diarmuid Coughlan, Xuesong Han, Donatus U Ekwueme, Gery P Guy, Matthew P Banegas, Catherine M Alfano, Emily C Dowling, K Robin Yabroff
BACKGROUND: We examined the longitudinal association between sociodemographic factors and an expanded definition of underemployment among those with and without cancer history in the United States. METHODS: Medical Expenditure Panel Survey data (2007-2013) were used in multivariable regression analyses to compare employment status between baseline and two-year follow-up among adults aged 25-62 years at baseline (n = 1,614 with and n = 39,324 without cancer). Underemployment was defined as becoming/staying unemployed, changing from full to part-time, or reducing part-time work significantly...
May 2018: Journal of Psychosocial Oncology
Julie Berrett-Abebe, Tamara Cadet, Joan Vitello, Peter Maramaldi
BACKGROUND: Growing numbers of cancer survivors are receiving healthcare through primary care practitioners, who often lack cancer-specific expertise to effectively treat survivors' concerns. Addressing that gap, this study aimed to develop content for a training on fear of cancer recurrence (FCR), a common concern in survivorship. METHODS: Grounded in naturalistic inquiry, 42 key-informant interviews were conducted, transcribed, and analyzed for themes. Participants were healthcare professionals, researchers, and cancer survivors Results: Results included themes ranging from: rich conceptualizations of FCR, opportunities and challenges for addressing FCR in healthcare settings, interventions to address FCR, and important information to include in a training on FCR...
May 2018: Journal of Psychosocial Oncology
Cláudia Melo, Ana Fonseca, Mariana Moura-Ramos, Teresa Almeida-Santos, Maria Cristina Canavarro
PURPOSE: To assess female cancer patients' perceptions of the fertility preservation decision-making process and to examine the effect of clinicians' support on the decision quality. METHODS: A total of 71 patients participated in this longitudinal study with two assessment time points (before cancer therapy, after cancer therapy). Self-report measures assessed the decision-making process, the decision quality and the clinicians' support. RESULTS: A less positive experience in the decision-making process was associated with higher decisional regret and lower decisional satisfaction...
May 2018: Journal of Psychosocial Oncology
Nafiseh Damreihani, Sareh Behzadipour, Sezaneh Haghpanh, Mohammadreza Bordbar
The aim of this study was to promote emotional well-being, hope, life satisfaction, and meaning to mothers of children with cancer utilizing a positive psychology intervention. The study population included 50 mothers who had children with cancer attending an outpatient oncology clinic. The participants (experimental and control groups) completed Ryff's Psychological Well-being Scale (PWBS), Satisfaction with Life Scale (SWLS), Snyder's Hope Scale (HS), and Meaning in Life Questionnaire (MLQ) before and after the intervention and also one month after the end of intervention...
May 2018: Journal of Psychosocial Oncology
Nuria Rossell, Carmen Salaverria, Angelica Hernandez, Soad Alabi, Roberto Vasquez, Miguel Bonilla, Catherine G Lam, Raul Ribeiro, Ria Reis
OBJECTIVE: In order to reduce nonadherence and treatment abandonment of children with cancer in El Salvador, institutions located nearby the patients' homes were involved to provide support. Methodological approach: Health clinics and municipality offices in the patients' communities were asked to assist families who were not promptly located after missing hospital appointments, or those whose financial limitations were likely to impede continuation of treatment. Data was collected about the number of contacted institutions, the nature of help provided, staff's time investments, and parents' perceptions about the intervention...
May 2018: Journal of Psychosocial Oncology
Fiona Schulte, Amanda Wurz, K Brooke Russell, Kathleen Reynolds, Douglas Strother, Deborah Dewey
PURPOSE: The aim of the study was to explore the relationship between repressive adaptive style and self-reports of social adjustment in survivors of pediatric cancer compared to their siblings. We hypothesized that there would be a greater proportion of repressors among survivors of pediatric cancer compared to siblings, and that repressive adaptive style would be significantly associated with more positive self-reports of social adjustment. METHODS: We utilized a cross-sectional approach...
May 2018: Journal of Psychosocial Oncology
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