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Journal of Psychosocial Oncology

Dalnim Cho, Crystal L Park
We examined whether (a) fear of cancer recurrence was related to lower health-related quality of life and (b) perceived growth moderated the link between fear of recurrence and health-related quality of life. 292 adolescent and young adult cancer survivors (diagnosed with cancer at ages 15-34) completed a cross-sectional survey. Fear of recurrence was related to poorer physical and mental health-related quality of life. The negative association between fear of recurrence and mental health-related quality of life was moderated by perceived growth...
October 17, 2016: Journal of Psychosocial Oncology
Olga Husson, Johan Denollet, Nicole P M Ezendam, Floortje Mols
PURPOSE: There is a paucity of research into the relationship between personality and health behaviors among cancer survivors. The aim of this study was to investigate whether Type D personality and its two constituent components, negative affectivity (NA) and social inhibition (SI), are associated with health behaviors, quality of life (QoL) and mental distress among colorectal cancer (CRC) survivors. METHODS: Population-based study among 2620 CRC patients diagnosed between 2000-2009 who completed measures of personality (DS14), health behaviors, QoL (EORTC QLQ-C30) and mental distress (HADS)...
October 17, 2016: Journal of Psychosocial Oncology
Heidi Williamson, Nichola Rumsey
An altered appearance can impact on the psychosocial well-being of adolescent cancer patients, yet patient reports imply a dearth of appearance-related support. Using a two-phase qualitatively driven mixed methods design, 62 health professionals from a range of UK oncology care settings, provided data relating to their views of the impact of appearance changes on adolescent patients (aged 12-18 years), of delivering appearance-related care, and their training needs. Integrated findings were divided into two main outcomes...
October 13, 2016: Journal of Psychosocial Oncology
Karen la Cour, Loni Ledderer, Helle Ploug Hansen
Previous research on psychosocial support for cancer-related concerns has primarily focused on either patients or their relatives, although limited research is available on how patients and their relatives can be supported together. The aim of this article is to explore the use of storytelling as a part of a residential cancer rehabilitation intervention for patients together with their relatives, with a specific focus on their management of cancer-related concerns. Ten pairs participated in the intervention and data were generated through ethnographic fieldwork, including participant observations, informal conversations and follow-up interviews conducted one month after completing the intervention...
September 9, 2016: Journal of Psychosocial Oncology
Laura M Melton
This study examined the relationship among humor coping, optimism, neuroticism, and depression in a sample of breast cancer survivors and matched control participants. Breast cancer survivors reported marginally lower levels of depression than the controls. In both groups, humor coping was not related to depression, optimism, or neuroticism, but depression was correlated negatively with optimism and positively with neuroticism. In the breast cancer group, humor coping was correlated with the coping subscales of self-distraction, positive reframing, planning, and active coping...
September 9, 2016: Journal of Psychosocial Oncology
Esther Castermans, Marcel Coenders, Hendrik P Beerlage, Jolanda De Vries
We describe the Psychosocial Distress Questionnaire-Prostate Cancer (PDQ-PC), a psychosocial screening list developed and validated specifically for prostate cancer patients. An existing screening list, the Psychosocial Distress Questionnaire-Breast Cancer (PDQ-BC), was used as a starting point. Two focus groups were then implemented to investigate which items of the PDQ-BC were relevant for the PDQ-PC and which new items were needed. Validity and reliability of the questionnaire were assessed on 278 prostate cancer patients...
September 9, 2016: Journal of Psychosocial Oncology
Sarah Körver, April Kinghorn, Joel Negin, Marci Shea-Perry, Alexandra L C Martiniuk
OBJECTIVE: When a child is diagnosed with cancer, the entire family is affected by the demands of the illness and its treatment. This study aimed to provide a more nuanced understanding of the experience of parents of children with cancer when participating in therapeutic recreation programs (such as summer camp), and address the specific knowledge gap of the role that camp may play in providing social support for these families. In particular this study aimed to enroll mothers and fathers as the voice of fathers have previously been missing in research about cancer camps...
September 9, 2016: Journal of Psychosocial Oncology
Jared Weiss, Hojin Yang, Sara Weiss, Maureen Rigney, Amy Copeland, Jennifer C King, Allison M Deal
OBJECTIVE: We sought to understand the experiences of patients with lung cancer and to see if attitudes varied by demographic factors. METHODS: We administered a 63-question survey by phone or online to 174 patients with lung cancer. Factor analysis was employed to identify two groups of questions with conceptual relationship and high Cronbach's alphas, titled stigma and satisfaction with care. We employed multivariable analysis to identify predictors of self-blame and these factors...
September 8, 2016: Journal of Psychosocial Oncology
Casey Walsh
No abstract text is available yet for this article.
August 30, 2016: Journal of Psychosocial Oncology
Gary T Deimling, Casey Albitz, Kara Monnin, Holly T Renzhofer Pappada, Elizabeth Nalepa, Melinda Laroco Boehm, Claire Mitchell
This research examines a model of how personality (Five-Factor Model) is related to adjustment to cancer in later life in terms of the presence of continuing cancer-related worry and depression among older adult, long-term cancer survivors. Data from an NCI-funded study with 275 older adult (age 60+), long-term (5+ years) survivors of breast, prostate, and colorectal cancer were examined. Regression analyses identified neuroticism as the strongest predictor of cancer-related worry along with continuing cancer-related symptoms...
August 19, 2016: Journal of Psychosocial Oncology
Cori Liptak, Tara Brinkman, Amanda Bronson, Brian Delaney, Christine Chordas, Sarah Brand, Andrea Farkas Patenaude, Anna C Muriel, Peter Manley
Survivors of pediatric brain tumors experience several medical and psychosocial late effects including deficits in social competence. This mixed methods study investigated the experience of 19 adolescent and young adult survivors of pediatric brain tumors and 17 parents who participated in a social support program. Qualitative results demonstrated a significant social isolation that was compounded by medical late effects. Survivors perceived social support and acceptance from interactions with peers who have similar medical backgrounds as a key aspect of the group experience...
August 19, 2016: Journal of Psychosocial Oncology
Jianlin Liu, Konstadina Griva, Haikel A Lim, Joyce Y S Tan, Rathi Mahendran
Body image distress is well documented in patients with cancer, but little is known about the course of body image distress over time and the role of psychosocial resources such as hope. This prospective study thus sought to explore the dynamics between trajectories of body image distress and hope across time. Cancer patients receiving outpatient treatment at a cancer center completed self-reported measures of body image distress (Body Image Scale) and hope (Adult Hope Scale) at baseline (within three months of their cancer diagnosis) and follow-up (six months post-baseline) (N = 111)...
August 19, 2016: Journal of Psychosocial Oncology
Susan M Hannum, Katherine Clegg Smith, Kisha Coa, Ann C Klassen
This paper evaluates how older cancer patients describe cancer survivorship and incorporate the cancer experience into long-term evaluations of health. From a series of 53 qualitative interviews with adults with histories of breast and prostate cancers and non-Hodgkin lymphoma, we analyze age-related discussions among those 65 and older (n = 21). Emergent themes revealed the: 1) Historical conceptualization of cancer, (2) Changed perspective following diagnosis, (3) Cancer in the context of a long biography, (4) Cancer in the context of the aging body and decline, and (5) Meaning of time remaining and quality of life...
August 11, 2016: Journal of Psychosocial Oncology
Cindy Davis, Kathleen Darby, Matthew Moore, Tamara Cadet, Gwendolynn Brown
Traditional health promotion models often do not take into account the importance of shared cultural backgrounds, beliefs, and experiences unique to underserved African American women when designing community-based cancer screening and prevention programs. Thus, the purpose of this study was the development, implementation, and evaluation of a community-based participatory research (CBPR) program designed to increase breast cancer screening awareness in an underserved African American population by providing culturally appropriate social support and information...
August 11, 2016: Journal of Psychosocial Oncology
Yelena P Wu, Jessica McPhail, Ryan Mooney, Alexandra Martiniuk, Michael D Amylon
Summer camps for pediatric cancer patients and their families are ubiquitous. However, there is relatively little research, particularly studies including more than one camp, documenting outcomes associated with children's participation in summer camp. The current cross-sectional study used a standardized measure to examine the role of demographic, illness, and camp factors in predicting children's oncology camp-related outcomes. In total, 2,114 children at 19 camps participated. Campers were asked to complete the Pediatric Camp Outcome Measure, which assesses camp-specific self-esteem, emotional, physical, and social functioning...
August 5, 2016: Journal of Psychosocial Oncology
M Graça Pereira, Vânia Baia, José C Machado
This study examined the relationships between coping style, body image, psychological morbidity, and quality of life. A total of 58 patients who were diagnosed with skin tumors, had been submitted to surgery, and were in the follow-up phase answered the following instruments: dermatology life quality index (DLQI), hospital anxiety and depression scales (HADS), body image scale (BIS), and the mini mental adjustment to cancer scale (Mini-MAC). The results showed that patients with a higher use of the coping styles of helplessness/hopelessness, anxious preoccupation, and cognitive avoidance reported a worse quality of life...
September 2016: Journal of Psychosocial Oncology
Ceilidh Eaton Russell, Eric Bouffet, John Beaton, Susan Lollis
Psychosocial research about childhood brain tumors is limited because of varied abilities and prognoses, with children's voices largely absent. Research has focused on the impacts on families and their reactions; this qualitative study used constructivist grounded theory methods to explore experiences of childhood brain tumors from the perspectives of 12 children and 12 parents using semistructured interviews. Their stories illustrated efforts to maintain positivity and normalcy as they faced grief and uncertainty...
September 2016: Journal of Psychosocial Oncology
Maria C McCarthy, Claire E Wakefield, Sharon DeGraves, Madeleine Bowden, Deborah Eyles, Lauren K Williams
This study examined the feasibility of implementing the Psychosocial Assessment Tool (PAT2.0) from the perspectives of families and health-care providers (HCPs). PAT2.0 data were collected from 104 families. Individual and focus group interviews were conducted with HCPs. Parents reported that the PAT2.0 was brief and easy to complete. HCPs' perspectives on the utility of the PAT2.0 were mixed and varied according to clinical roles. A major perceived benefit was the PAT2.0 as a communication tool. Barriers included timing and an increased workload for social workers...
September 2016: Journal of Psychosocial Oncology
Roslyn Corney, Shuby Puthussery, Jane Swinglehurst
This article examines the facilitators and the barriers to couple relationships in families in the UK with dependent children after a diagnosis of maternal breast cancer. Qualitative data were collected through in-depth semi-structured interviews with 23 participants, including 10 couples and three women whose partners did not take part. Recorded interviews were analyzed using a thematic approach identifying themes and patterns in the interview transcripts and categorizing them using a framework. Key individual and contextual factors perceived as barriers or facilitators to couple relationships included: being a "young" family with young children, frustration and resentment from male partners, women's reactions to the illness, individual communication styles, differing needs for "personal space," body image concerns, and social support...
September 2016: Journal of Psychosocial Oncology
Olamijulo A Fatiregun, Andrew T Olagunju, Adebayo R Erinfolami, Omolara A Fatiregun, Olubunmi A Arogunmati, Joseph D Adeyemi
The coexistence of anxiety disorders among women with breast cancer has been linked with delay in diagnosis, treatment abandonment, and poor quality of life. This study investigated anxiety disorders with their determinants among 200 participants with histological diagnosis of breast cancer. A questionnaire was designed to elicit sociodemographic and clinical factors, while the schedule for clinical assessment in neuropsychiatry (SCAN) was used to ascertain the presence of anxiety disorders. The mean age of participants was 49...
September 2016: Journal of Psychosocial Oncology
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