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Sociology of Health & Illness

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https://www.readbyqxmd.com/read/29230815/topographies-of-care-pathways-and-healthscapes-reconsidering-the-multiple-journeys-of-people-with-a-brain-tumour
#1
Henry Llewellyn, Paul Higgs, Elizabeth L Sampson, Louise Jones, Lewis Thorne
People diagnosed with brain tumours enter new and unfamiliar worlds in which they must make complex and previously unimaginable decisions about care, treatment and how to live their lives. While decisions are increasingly based around care pathways, these are embedded in values that often fail to accord with those of patients. In this article, we examine the cases of people with a brain tumour and how they, their families and healthcare professionals navigate and intervene in the course of life-threatening disease...
December 12, 2017: Sociology of Health & Illness
https://www.readbyqxmd.com/read/29143343/secrets-and-disclosure-in-donor-conception
#2
Lucy Frith, Eric Blyth, Marilyn Crawshaw, Olga van den Akker
This article considers the disclosure, sharing and exchange of information on being donor conceived within families, drawing on data from a study undertaken with donor-conceived adults registered with UK Donor Link (a voluntary DNA-linking register). This paper considers the narratives of how respondents found out they were donor-conceived and what events triggered disclosure of this information. This paper then goes on to examine the role secrecy played in their family life and uses the concept of 'display' to explore how secrecy affected their relationships with their immediate and extended family...
November 16, 2017: Sociology of Health & Illness
https://www.readbyqxmd.com/read/29072329/disciplinary-power-and-the-process-of-training-informal-carers-on-stroke-units
#3
Euan Sadler, Rebecca Hawkins, David J Clarke, Mary Godfrey, Josie Dickerson, Christopher McKevitt
This article examines the process of training informal carers on stroke units using the lens of power. Care is usually assumed as a kinship obligation but the state has long had an interest in framing the carer and caring work. Training carers in healthcare settings raises questions about the power of the state and healthcare professionals as its agents to shape expectations and practices related to the caring role. Drawing on Foucault's notion of disciplinary power, we show how disciplinary forms of power exercised in interactions between healthcare professionals and carers shape the engagement and resistance of carers in the process of training...
October 26, 2017: Sociology of Health & Illness
https://www.readbyqxmd.com/read/29071731/telemedicine-and-the-senses-a-review
#4
Deborah Lupton, Sarah Maslen
Telemedicine technologies have been presented as solutions to the challenges of equitable, cost-effective and efficient health service provision for over two decades. The ways in which the sensory dimensions of medical care and the doctor-patient relationship are mediated via telemedicine can be important contributors to the success, failure or unintended consequences of telemedicine. In this article, we present a review of the relevant literature in social research that provides insights into the sensory dimensions of telemedicine...
October 25, 2017: Sociology of Health & Illness
https://www.readbyqxmd.com/read/29044572/understanding-lay-perspectives-on-socioeconomic-health-inequalities-in-britain-a-meta-ethnography
#5
Katherine E Smith, Rosemary Anderson
The links between socioeconomic circumstances and health have been extensively studied in Britain but surprisingly few studies consider lay perspectives. This is problematic given popular efforts to reduce health inequalities appear to be based on assumption that public understanding is limited (this is evident in efforts to raise awareness of both 'upstream' causes of health inequalities and health-damaging behaviours). The results of this meta-ethnography, involving 17 qualitative studies, fundamentally challenge this assumption...
October 17, 2017: Sociology of Health & Illness
https://www.readbyqxmd.com/read/29044627/managing-making-sense-of-and-finding-meaning-in-advanced-illness-a-qualitative-exploration-of-the-coping-and-wellbeing-experiences-of-patients-with-lung-cancer
#6
Emily Harrop, Simon Noble, Michelle Edwards, Stephanie Sivell, Barbara Moore, Annmarie Nelson
Coping plays an essential role in maintaining the wellbeing of patients with cancer. A number of different coping responses and strategies have been identified in the literature. The value and relevance of meaning based coping theory has also been emphasised, including Antonovosky's Sense of Coherence (SoC) theory. Ten patients with advanced lung cancer were interviewed up to three times. A total of twenty in depth interviews were carried out, fully transcribed and data were analysed following a methodology of Interpretative Phenomenological Analysis...
October 16, 2017: Sociology of Health & Illness
https://www.readbyqxmd.com/read/29034486/-everyone-assumes-a-man-to-be-quite-strong-men-masculinity-and-rheumatoid-arthritis-a-case-study-approach
#7
Caroline Flurey, Alan White, Karen Rodham, John Kirwan, Robert Noddings, Sarah Hewlett
Current literature has overlooked the impact of chronic illness on masculine identity. We therefore aimed to investigate the impact of rheumatoid arthritis (a long term condition, affecting more women than men) on masculine identity. Six focus groups with 22 men with rheumatoid arthritis (RA) (data reported elsewhere) followed by five one-to-one interviews with men (English, mean age: 59 years) sampled to reflect a heterogeneous experience of life with RA based on knowledge gained from the focus groups. Transcripts were analysed using thematic analysis and are presented as individual case studies...
October 15, 2017: Sociology of Health & Illness
https://www.readbyqxmd.com/read/29034477/hybrid-bodies-and-the-materiality-of-everyday-life-how-people-living-with-pacemakers-and-defibrillators-reinvent-everyday-routines-and-intimate-relations
#8
Nelly Oudshoorn
Technologies inside bodies pose new challenges in a technological culture. For people with pacemakers and defibrillators, activities such as passing security controls at airports, using electromagnetic machines, electrical domestic appliances and electronic devices, and even intimate contacts with their loved ones can turn into events where the proper functioning of their device may be at risk. Anticipation of potentially harmful events and situations thus becomes an important part of the choreography of everyday life...
October 15, 2017: Sociology of Health & Illness
https://www.readbyqxmd.com/read/29023919/causal-narratives-in-public-health-the-difference-between-mechanisms-of-aetiology-and-mechanisms-of-prevention-in-non-communicable-diseases
#9
Michael P Kelly, Federica Russo
Research in the health sciences has been highly successful in revealing the aetiologies of many morbidities, particularly those involving the microbiology of communicable disease. This success has helped form a narrative to be found in numerous public health documents, about interventions to reduce the burden of non-communicable diseases (e.g., obesity or alcohol related pathologies). These focus on tackling the purported pathogenic factors causing the diseases as a means of prevention. In this paper, we argue that this approach has been sub-optimal...
October 11, 2017: Sociology of Health & Illness
https://www.readbyqxmd.com/read/29023907/siblings-caring-roles-in-families-with-a-child-with-epilepsy
#10
Michelle Webster
Despite large amounts of care for chronic conditions being provided within the family, information regarding the extent to which siblings contribute to informal care practices in families where a child has a chronic condition is limited. This article draws on multiple perspective data from 24 families that had a child with epilepsy. In doing so, the article illustrates siblings' significant contribution to caring for their brother or sister and further develops the alert assistant concept. Two additional distinct caring roles that the siblings took on are also outlined - the substitute parent and parenting assistant roles...
October 11, 2017: Sociology of Health & Illness
https://www.readbyqxmd.com/read/29023822/the-context-of-coping-a-qualitative-exploration-of-underlying-inequalities-that-influence-health-services-support-for-people-living-with-long-term-conditions
#11
Caroline M Potter, Laura Kelly, Cheryl Hunter, Ray Fitzpatrick, Michele Peters
Coping with chronic illness encapsulates both practical and emotional aspects of living life in relation to one's long-term health condition(s). Dominant health psychology approaches for understanding coping, which underpin a more recent policy discourse on 'self-management', focus sharply on the person affected by illness and potentially mask the influence of overarching social structure. In this paper we draw on qualitative interviews with 48 people living with long-term conditions (LTCs), in order to highlight the role that structural configurations such as healthcare systems may play in either helping or hindering people's efforts to cope with chronic illness...
October 11, 2017: Sociology of Health & Illness
https://www.readbyqxmd.com/read/28994121/navigating-the-new-transplanted-self-how-recipients-manage-the-cognitive-risks-of-organ-transplantation
#12
Nicholas R Cormier, Selina R Gallo-Cruz, Renee L Beard
The physiological risks of organ transplantation are well documented, but more poorly understood are the sociological ways in which organ recipients redefine themselves in reaction to physiological risks and social changes accompanying transplantation. This article analyses transplantation as a procedure that is not only physiologically risky but also poses risk to the social identity of the recipient, and explores how transplant recipients cognitively navigate transplantation surgery from waiting for to recovering after a transplant...
October 10, 2017: Sociology of Health & Illness
https://www.readbyqxmd.com/read/28990198/exploring-parkrun-as-a-social-context-for-collective-health-practices-running-with-and-against-the-moral-imperatives-of-health-responsibilisation
#13
G R Wiltshire, Simone Fullagar, Clare Stevinson
Critiques of public health policies to reduce physical inactivity have led to calls for practice-led research and the need to reduce the individualising effects of health promotion discourse. The purpose of this paper is to examine how parkrun - an increasingly popular, regular, community-based 5 km running event - comes to be understood as a 'health practice' that allows individuals to enact contemporary desires for better health in a collective social context. Taking a reflexive analytical approach, we use interview data from a geographically diverse sample of previously inactive parkrun participants (N = 19) to explore two themes...
October 8, 2017: Sociology of Health & Illness
https://www.readbyqxmd.com/read/28980710/the-concept-of-chronicity-in-action-everyday-classification-practices-and-the-shaping-of-mental-health-care
#14
Milena D Bister
For almost half a century social scientists have explored the phenomenon of chronic illness. In this paper, I examine how the concept of chronicity participates in present-day mental health care settings. Using ethnomethodology and material-semiotic theory within science and technology studies, I investigate how the classification 'chronically mentally ill' interacts with the everyday socio-material shaping of public mental health care in the context of professional institutions. Drawing on ethnographic fieldwork in a psychiatric day hospital and in a community day care centre in Berlin, Germany, I demonstrate how the classification of chronicity acts as a tool of description (of people or their conditions), regulation (of therapy, health care or administration), and connection to infrastructures of care (practised technologies or standards of various kinds)...
October 5, 2017: Sociology of Health & Illness
https://www.readbyqxmd.com/read/28980337/from-loss-to-repair-a-study-of-body-narratives-in-patient-claims-for-medical-injury
#15
Myriam Winance, Janine Barbot, Isabelle Parizot
In this article we examine the body's status in the complaints that patients filed with a compensation agency. Taking a corpus of letters, we analyse the way in which the patients mobilise their bodily experience from the angle of the damage for which they demand compensation. To this end, we articulate an approach in terms of the sociology of complaint with an approach rooted in the sociology of medicine, health and illness. To analyse the body narratives, we use the notion of loss. We highlight the manner in which patients approach their losses as 'losses in practice'...
October 4, 2017: Sociology of Health & Illness
https://www.readbyqxmd.com/read/28980335/body-weight-perceived-weight-stigma-and-mental-health-among-women-at-the-intersection-of-race-ethnicity-and-socioeconomic-status-insights-from-the-modified-labelling-approach
#16
Gabriele Ciciurkaite, Brea L Perry
With increasing rates of obesity in the United States, attention to life chances and psychological consequences associated with weight stigma and weight-based discrimination has also intensified. While research has demonstrated the negative effects of weight-based discrimination on mental health, little is known about whether different social groups are disproportionately vulnerable to these experiences. Drawing on the modified labelling theory, the focus of this paper is to investigate the psychological correlates of body weight and self-perceived weight-based discrimination among American women at the intersection of race/ethnicity and socioeconomic status (SES)...
October 4, 2017: Sociology of Health & Illness
https://www.readbyqxmd.com/read/28921574/ideology-and-resistance-in-young-people-s-experiences-of-health-under-the-imperative-of-enjoyment
#17
Kathrine Vitus
This article explores upper secondary school students' understandings and experiences of health in Denmark, where public health promotions appeal to pleasure. Health promotion thereby taps into capitalist society's 'imperative of enjoyment', which reproduces ideological fantasies about the fulfilment of desires through the consumption of health. Based on qualitative empirical material produced through participatory and visual methods during fieldwork conducted in 2012, the analysis shows that relations between healthiness and pleasure are conflated and paradoxical: the students try to fit into society not only by being healthy, but also by enjoying healthiness; but if they fail pleasure, they fail healthiness and experience a loss of individual social value...
September 17, 2017: Sociology of Health & Illness
https://www.readbyqxmd.com/read/29148117/sociology-of-health-and-illness-mildred-blaxter-new-writer-prize
#18
(no author information available yet)
No abstract text is available yet for this article.
November 2017: Sociology of Health & Illness
https://www.readbyqxmd.com/read/29148116/call-for-proposals-for-twenty-seventh-monograph-of%C3%A2-sociology-of-health-illness
#19
(no author information available yet)
No abstract text is available yet for this article.
November 2017: Sociology of Health & Illness
https://www.readbyqxmd.com/read/29148115/the-actionability-of-exome-sequencing-testing-results
#20
Tanya Stivers, Stefan Timmermans
Genomic tests such as exome sequencing have recently become an option for diagnosing patients. The tests allow clinical geneticists to sequence the majority of patients' disease causing genetic variants. As a new technology, exome sequencing confronts the question of what the benefit is of this increased genetic information. Against a narrow perspective of clinical utility that emphasises tangible improvements in a patient's disease management, professional organisations have argued that genomic sequencing should be considered beneficial if it helps families and society...
November 2017: Sociology of Health & Illness
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