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Child: Care, Health and Development

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https://www.readbyqxmd.com/read/29119577/enhancing-human-aspects-of-care-with-young-people-with-muscular-dystrophy-results-from-a-participatory-qualitative-study-with-clinicians
#1
J Setchell, P Thille, T Abrams, L C McAdam, B Mistry, B E Gibson
BACKGROUND: Most research into clinical care of Duchenne or Becker dystrophinopathies (MD) has focused on slowing progressive muscular weakness and extending lifespan. Scarce attention has been paid to the "human" aspects of care such as psychosocial health, living a fulfilling life, or dealing with disability stigma. This study partnered with clinicians to identify and address local and systemic barriers to these human aspects of care. METHODS: We employed a participatory qualitative design at a multidisciplinary MD clinic using 2 methods: (a) ethnographic observations over a 6-month period of clinic visits of children with MD and families, involving 12 clinicians, and (b) 3 "dialogues" (2-way discussions) with these clinicians to collaboratively analyze practices and co-produce recommendations for change...
November 8, 2017: Child: Care, Health and Development
https://www.readbyqxmd.com/read/29082537/the-internet-as-a-source-of-support-for-youth-with-chronic-conditions-a-qualitative-study
#2
S Ahola Kohut, C LeBlanc, K O'Leary, A C McPherson, E McCarthy, C Nguyen, J Stinson
BACKGROUND: Adolescents living with chronic conditions often portray themselves as "healthy" online, yet use the Internet as one of their top sources of health information and social communication. There is a need to develop online support programs specific to adolescents with chronic conditions in order to provide a private space to discuss concerns. This paper endeavors to increase our understanding of the online support needs and wants of these adolescents and their interest in and preferences for an online support program...
October 29, 2017: Child: Care, Health and Development
https://www.readbyqxmd.com/read/29082533/a-short-form-of-the-behavior-rating-inventory-of-executive-function-preschool-version-brief-p
#3
M Zhou, J Zhang
BACKGROUND: The Behavior Rating Inventory of Executive Function-Preschool Version (BRIEF-P) is the most widely used sale to measure preschoolers' manifestations of executive function. This study sought to develop a short form of the BRIEF-P. METHODS: Participants were 1,124 preschoolers from 40 kindergartens in 2 cities in South China. Their daily behaviours were evaluated by their teachers using the full version of BRIEF-P. RESULTS: The original version of BRIEF-P was shortened to a 25-item short version...
October 29, 2017: Child: Care, Health and Development
https://www.readbyqxmd.com/read/29082531/looking-back-to-move-forward-reflections-and-lessons-learned-about-transitions-to-adulthood-for-youth-with-disabilities
#4
T Nguyen, D Stewart, J W Gorter
BACKGROUND: Transition to adulthood is a significant development process experienced by all youth. Since the mid 1990s, researchers at the CanChild Centre for Childhood Disability Research have been studying this process to assist transitioning youth with disabilities and their families. The objective of this narrative review is to reflect on the work conducted by CanChild researchers, in collaboration with stakeholders, about transitions to adulthood for youth and young adults with disabilities since the publication of the best practice guidelines in 2009...
October 29, 2017: Child: Care, Health and Development
https://www.readbyqxmd.com/read/29047149/cognitive-and-physical-development-in-hiv-positive-children-in-south-africa-and-malawi-a-community-based-follow-up-comparison-study
#5
L Sherr, I S Hensels, M Tomlinson, S Skeen, A Macedo
BACKGROUND: Child development is negatively impacted by HIV with children that are infected and affected by HIV performing worse than their peers in cognitive assessments. METHODS: We conducted a descriptive follow-up comparison study (n=989) in South Africa and Malawi. We tracked child development in 135 HIV-positive children compared to 854 uninfected children aged 4-13 years attending community-based organizations at baseline and again 12-15 months later. RESULTS: Children with HIV were more often stunted (58...
October 19, 2017: Child: Care, Health and Development
https://www.readbyqxmd.com/read/29034499/early-interaction-in-autism-spectrum-disorder-mothers-and-children-s-behaviours-during-joint-engagement
#6
A Kaale, L Smith, A Nordahl-Hansen, M W Fargerland, C Kasari
BACKGROUND: More knowledge about the interaction between young children with autism spectrum disorder and their parents is one way to improve intervention. This study aims to investigate the behaviours of mothers and children with autism spectrum disorder during joint engagement, with a focus on pacing or rate (i.e., incidences per minute) of their behaviours when being in this state. METHOD: Video recordings of 10 min of free-play between 58 children (2-4 years) diagnosed with childhood autism and their mothers were used to examine rate of mothers' and children's behaviours (i...
October 15, 2017: Child: Care, Health and Development
https://www.readbyqxmd.com/read/29027739/erratum
#7
(no author information available yet)
No abstract text is available yet for this article.
October 12, 2017: Child: Care, Health and Development
https://www.readbyqxmd.com/read/28983951/development-of-a-cerebral-palsy-follow-up-registry-in-jordan-cpup-jordan
#8
N A Almasri, M Saleh, S Abu-Dahab, S H Malkawi, E Nordmark
AIMS: This study aims to describe the development of a Cerebral Palsy Follow-up Registry in Jordan (CPUP-Jordan) and to provide a baseline child and parent demographic information, birth history of the child participants, and distribution of the participants based on topographical distribution of cerebral palsy (CP) and functional classification systems. METHODS: The CPUP-Jordan was developed using a similar framework of a follow-up surveillance programme for persons with CP in Sweden (CPUP)...
October 6, 2017: Child: Care, Health and Development
https://www.readbyqxmd.com/read/28983939/the-association-between-pediatric-injury-risks-and-parenting-behaviours
#9
M L Jaques, T L Weaver, N L Weaver, L Willoughby
BACKGROUND: Unintentional injuries are the leading cause of death in children ages 1-18 years. Many of these injuries to young children occur in their own homes. Although research has explored injury risk prevention strategies, historically, much of this research has focused on environmental changes and teaching safety practices. Currently, there appears to be a gap in current research exploring how parenting influences children's risk of injury. METHODS: Mothers (n = 119) of children 5 years and younger were recruited from a paediatric clinic as a part of a larger study and completed measures of parenting challenges, developmentally sensitive parenting, child neglect, parental efficacy, and risk of potential injury situations...
October 6, 2017: Child: Care, Health and Development
https://www.readbyqxmd.com/read/28980341/do-not-forget-the-parents-parents-concerns-during-transition-to-adult-care-for-adolescents-with-congenital-heart-disease
#10
E L Bratt, Å Burström, K Hanseus, A Rydberg, M Berghammer
BACKGROUND: Growing up with congenital heart disease (CHD) often means transfer to adult care and lifelong medical follow-up. An optimal transition process usually involves a multipart collaboration between the patient, their parents and other family members, and the healthcare providers. Taking an active role while knowing when it is time to step aside can be difficult for all the concerned parties, even the healthcare professionals. The aim of the present study therefore, was to explore parents' expectations and needs during their adolescent's transition to adult care...
October 5, 2017: Child: Care, Health and Development
https://www.readbyqxmd.com/read/28929582/the-effectiveness-of-a-psychoeducation-intervention-delivered-via-whatsapp-for-mothers-of-children-with-autism-spectrum-disorder-asd-in-the-kingdom-of-saudi-arabia-a-randomized-controlled-trial
#11
A Hemdi, D Daley
BACKGROUND: Mothers of children with autism spectrum disorder (ASD) report high levels of stress and lower levels of well-being than parents of typically developing children. Current interventions for ASD typically focus on working with the child rather than delivering strategies to help support parents. OBJECTIVE: To evaluate the effectiveness of a psychoeducation intervention developed to support mothers of children with ASD in Saudi Arabia. METHOD: Sixty-two mothers (23-52 years) of children (26-78 months) were recruited to a multisite randomized controlled trials of the intervention...
September 20, 2017: Child: Care, Health and Development
https://www.readbyqxmd.com/read/28929518/reliability-and-validity-of-the-korean-language-version-of-the-communication-function-classification-system-in-children-with-cerebral-palsy
#12
J Y Choi, E H Hwang, D Rha, E S Park
PURPOSE: The Communication Function Classification System (CFCS) and Viking Speech Scale (VSS) are useful systems for describing the broad communication function and speech intelligibility, respectively, of children with cerebral palsy (CP). The aims of this study were to determine the reliability and validity of the Korean version of the CFCS and also to investigate the association between the CFCS and the VSS and other functional classifications for children with CP. MATERIALS AND METHODS: Participants were 50 children with CP (33 males, 17 females; mean age 7...
September 20, 2017: Child: Care, Health and Development
https://www.readbyqxmd.com/read/28913967/the-variation-in-quality-and-content-of-patient-focused-health-information-on-the-internet-for-otitis-media
#13
A Joury, A Joraid, F Alqahtani, A Alghamdi, A Batwa, J M Pines
BACKGROUND: When symptoms of otitis media appear, parents and patients often access the Internet for health information. We study the content and quality of health information in parent-patient-focused websites for otitis media. METHODS: We searched the 3 search engines (Google, Yahoo, and Bing) using "otitis media" and "middle ear infection" then reviewed the top 30 hits for each search. We included sites that were focused on providing patient-patient information about otitis media...
September 14, 2017: Child: Care, Health and Development
https://www.readbyqxmd.com/read/28913834/which-children-and-young-people-are-excluded-from-school-findings-from-a-large-british-birth-cohort-study-the-avon-longitudinal-study-of-parents-and-children-alspac
#14
A Paget, C Parker, J Heron, S Logan, W Henley, A Emond, T Ford
BACKGROUND: Exclusion from school is increasingly recognized as pertinent to child health. National educational data reveal that boys, children who are looked-after, living in poverty, have special educational needs, or from certain ethnic minorities, are disproportionately excluded from school. As population-based data on the wider characteristics of excluded children are scarce, we aimed to describe predictors of school exclusion in the Avon Longitudinal Study of Parents and Children...
September 14, 2017: Child: Care, Health and Development
https://www.readbyqxmd.com/read/28905445/the-meaning-of-play-for-children-and-young-people-with-physical-disabilities-a-systematic-thematic-synthesis
#15
REVIEW
N Graham, C Nye, A Mandy, C Clarke, C Morriss-Roberts
BACKGROUND: Children and young people with physical disabilities are often reported to play less than their typically developing peers. Few studies explore the meaning of play from the child's perspective; this study carried out a thematic synthesis of the findings of qualitative studies about the meaning of play following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. METHODS: A search of CINAHL, AHMED, PsycINFO, MEDLINE, EMBASE, and ERIC was undertaken between September 2015 and March 2016...
September 14, 2017: Child: Care, Health and Development
https://www.readbyqxmd.com/read/28895183/self-concept-in-institutionalized-children-with-disturbed-attachment-the-mediating-role-of-exploratory-behaviours
#16
V S Vacaru, P S Sterkenburg, C Schuengel
BACKGROUND: Self-concept is seen as both an outcome of sociocognitive and emotional development, and a factor in social and mental health outcomes. Although the contribution of attachment experiences to self-concept has been limited to quality of primary attachment relationships, little is known of the effects of disturbed attachment on self-concept in institutionalized children. Thus, the current study examined associations between disturbed attachment behaviours in institutionalized children and self-concept, testing limited exploration as an explanatory factor...
September 11, 2017: Child: Care, Health and Development
https://www.readbyqxmd.com/read/28891117/the-sleeping-patterns-of-head-start-children-and-the-influence-on-developmental-outcomes
#17
M Schlieber, J Han
BACKGROUND: Sleep has a significant influence on children's development. The objective of this study was to investigate Head Start children's sleeping patterns and the impact on cognitive and behavioural outcomes. METHODS: Using the 2009 cohort of the Head Start Family and Child Experiences Survey (N = 2,868), information on sleeping patterns was assessed through parent interviews. Cognitive outcomes were assessed using direct assessments (Peabody Picture Vocabulary Test-IV, the Expressive One-Word Picture Vocabulary Test, and Subtests of the Woodcock-Johnson III) in addition to teacher report...
September 11, 2017: Child: Care, Health and Development
https://www.readbyqxmd.com/read/28872218/adolescents-self-perceived-and-actual-weight-which-plays-a-dominant-role-in-weight-loss-behaviour-in-lebanon
#18
S Assaad, S Anouti, F Naja, L Nasreddine, N Hwalla, A M Sibai
BACKGROUND: The decision to lose weight among adolescents is complex and is guided by a number of body-related factors. This study examined the extent of agreement between actual weight, measured as body mass index, and self-perceived weight and assessed their relative importance in weight loss behaviour among Lebanese adolescents. METHODS: Data on 278 adolescents aged 13-17 years were drawn from the nationwide Nutrition and Non-Communicable Disease Risk Factor Survey (Lebanon, 2009)...
September 4, 2017: Child: Care, Health and Development
https://www.readbyqxmd.com/read/28871592/bangladeshi-school-age-children-s-experiences-and-perceptions-on-child-maltreatment-a-qualitative-interview-study
#19
M Atiqul Haque, S Janson, S Moniruzzaman, A K M F Rahman, S R Mashreky, U-B Eriksson
BACKGROUND: Child maltreatment (CM) is a public health problem and is recognized as a huge barrier for child development. Most of the research and definitions on CM are from the perspective of high-income western countries. Because no major studies have been conducted on CM in Bangladesh, the aim of the current study was to explore the experiences of and perceptions on CM in school-age children in rural and urban Bangladesh in order to understand maltreatment in a local context and from a child perspective...
September 4, 2017: Child: Care, Health and Development
https://www.readbyqxmd.com/read/28868634/effects-of-video-feedback-intervention-on-harmonious-parent-child-interaction-and-sensitive-discipline-of-parents-with-intellectual-disabilities-a-randomized-controlled-trial
#20
M W Hodes, M Meppelder, M de Moor, S Kef, C Schuengel
BACKGROUND: This study tested whether video-feedback intervention based on attachment and coercion theory increased harmonious parent-child interaction and sensitive discipline of parents with mild intellectual disabilities or borderline intellectual functioning. METHODS: Observer ratings of video-recorded structured interaction tasks at home formed pretest, post-test, and 3-month follow-up outcome data in a randomized controlled trial with 85 families. Repeated measures analyses of variance and covariance were conducted to test for the intervention effect and possible moderation by IQ and adaptive functioning...
September 3, 2017: Child: Care, Health and Development
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