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Child: Care, Health and Development

Xiaoyun Chai, Xiaoyan Li, Zhi Ye, Yuxuan Li, Danhua Lin
BACKGROUND: The plight of left-behind children affected by parental migration has aroused widespread public concern in China. However, limited research has been conducted on the positive aspects of the development (e.g., subjective well-being) among left-behind children. Recently, a new means to investigating the mechanisms of positive development in left-behind children emerged from the positive youth development (PYD) approach. Grounded in the framework of PYD, this study was designed to examine how ecological assets (i...
November 15, 2018: Child: Care, Health and Development
Elisabeth W Segers, Agnes van den Hoogen, Irene C van Eerden, Thora Hafsteinsdóttir, Marjolijn Ketelaar
BACKGROUND: Insight into parental empowerment is important to understanding the impact of healthcare policy and to supporting and strengthening parents in the care of their child. The Family Empowerment Scale (FES) is a valid 24-item instrument that measures parental empowerment. It was originally developed for parents of children with emotional disabilities. It has been translated from English into Dutch. Before using the translated FES in another context, the aim of this study was to assess the content validity of the Dutch FES in the context of children with a chronic condition in a children's hospital, according to parents and nurses...
November 13, 2018: Child: Care, Health and Development
Christine F Provvidenza, Laura R Hartman, Amy C McPherson
BACKGROUND: Healthcare professionals (HCPs) must communicate with children and families about weight management in a sensitive and non-stigmatizing manner. However, HCPs receive little training in weight-related communication and have requested resources, but these are scarce. This article details the development process of a Knowledge Translation Casebook, and outlines the proposed protocol for its implementation and evaluation. METHODS: Guided by the Knowledge-to-Action cycle, a KT Casebook aimed at HCPs integrated findings from a comprehensive scoping review with experiential and contextual evidence gathered through stakeholder workshops to provide guidance to HCPs communicating with children and families around weight-related issues...
October 30, 2018: Child: Care, Health and Development
G Currie, J Szabo
BACKGROUND: Parents of children with rare diseases face pervasive challenges in meeting medical and social care needs. Existing research on the parents' experience of caring for a child with a rare disease is limited. METHODS: An interpretive phenomenological approach was applied in this inquiry. Fifteen parents of children with rare diseases participated in semi structured interviews. RESULTS: Interpretive thematic analysis revealed that due to the rarity of the disease and an overall lack of knowledge of the disease, there is an increase in the burden on the family in relation to "rarity" in addition to "disability"...
October 29, 2018: Child: Care, Health and Development
M E Loades, K A Rimes, S Ali, K Lievesley, T Chalder
OBJECTIVES: Previous studies have found that parents of children with CFS are more fatigued, and mothers are more distressed than healthy controls. Managing the disabling symptoms of CFS can result in disruption and burden for the family. Most research has focused on mothers. This study sought to further explore the associations between adolescent fatigue and distress, and parental fatigue and distress, as well as family functioning, including both mothers and fathers. DESIGN: Cross-sectional study of a clinical cohort of consecutive attenders at a specialist chronic fatigue unit...
October 20, 2018: Child: Care, Health and Development
Naila Z Khan, Asma Begum Shilpi, Razia Sultana, Shaoli Sarker, Sultana Razia, Bipasha Roy, Abu Arif, Misbah Uddin Ahmed, Subas Chandra Saha, Helen McConachie
BACKGROUND: The 2017 political violence against the Rohingya people in the state of Rakhine resulted in a large influx of displaced populations into Bangladesh. Given harsh conditions and experiences in Myanmar, and the harrowing journey to the border, raised levels of child neurodevelopmental disorders (NDDs) and mental health problems were expected. METHODS: A team of child development professionals, physicians, psychologists, and developmental therapists screened 622 children in clinics within the refugee camps using the Developmental Screening Questionnaire (DSQ; 0-<2 years), and the Ten Questions Plus (TQP) for NDDs, and Strengths and Difficulties Questionnaire (SDQ; 2-16 years) for mental health problems...
October 18, 2018: Child: Care, Health and Development
Maha Sudki Nahal, Åsa B Axelsson, Asma Imam, Helena Wigert
BACKGROUND: Living with spina bifida in Palestine is a critical issue that might influence various aspects of the individual's life. It is a challenge for children, their families, and health care providers because it requires lifelong treatment and follow-up of care provision. However, little focus has been placed on these children's perceptions about their daily life experiences with spina bifida. PURPOSE: To illuminate the lived experience of children with spina bifida in the West Bank, Palestine...
October 18, 2018: Child: Care, Health and Development
Dianne Collis, Ann Kennedy-Behr, Lauren Kearney
BACKGROUND: Functional bladder and bowel problems are common in children and have a serious psychological as well as physical impact. The objective of this scoping review was to synthesise evidence on the impact of such conditions both on children's quality of life (QOL) and their parents. METHODS: The scoping review followed Arksey and O'Malley's framework. Relevant studies were identified by a comprehensive search of scientific databases. Inclusion criteria focused on children with bladder and bowel dysfunction, their QOL, and impact on parents...
October 16, 2018: Child: Care, Health and Development
Reshma Parvin Nuri, Heather Michelle Aldersey, Setareh Ghahari
PURPOSE: Families of children with disabilities often have needs related to the care of their child with a disability. Although there has been extensive exploration of family needs in high-income contexts, there is little known about this issue in low and middle-income countries like Bangladesh. In this study, we explored the needs of families of children with cerebral palsy in Bangladesh. Such understanding is important as it will help to improve services for children with disabilities and their families...
October 10, 2018: Child: Care, Health and Development
Dana R Anaby, Wenonah N Campbell, Cheryl Missiuna, Steven R Shaw, Sheila Bennett, Sitara Khan, Stephanie Tremblay, Jean-Claude Kalubi-Lukusa, Chantal Camden
BACKGROUND: Inclusive educational environments can have a positive effect on the general health and well-being of children with disabilities. However, their level of academic success and participation remains limited. Considering scarce resources and high needs, identifying efficient methods for providing interdisciplinary services is critical. This scoping review, therefore, aims to (a) synthesize current evidence about principles for organizing and delivering interdisciplinary school-based support services for students with disabilities and (b) ascertain useful strategies for implementation of principles in the school setting...
September 27, 2018: Child: Care, Health and Development
Maria Zuurmond, Gifty Nyante, Marjolein Baltussen, Janet Seeley, Jedidia Abanga, Tom Shakespeare, Martine Collumbien, Sarah Bernays
BACKGROUND: Four fifths of the estimated 150 million children with disability in the world live in resource poor settings where the role of the family is crucial in ensuring that these children survive and thrive. Despite their critical role, evidence is lacking on how to provide optimal support to these families. This study explores the impact of a participatory training programme for caregivers delivered through a local support group, with a focus on understanding caregiver wellbeing...
September 27, 2018: Child: Care, Health and Development
Christopher McKevitt, Marta Topor, Anna Panton, Andrew A Mallick, Vijeya Ganesan, Elizabeth Wraige, Anne Gordon
No abstract text is available yet for this article.
September 26, 2018: Child: Care, Health and Development
Mary C Sullivan, Suzy Barcelos Winchester, Michael E Msall
BACKGROUND: Theories of early stress exposure and allostatic load offer a lifespan perspective to adult health after prematurity based on these early stressors affecting endocrine and metabolic systems. In this study, we examine cardiovascular and metabolic risk by comparing two groups of preterm infants who experienced a full spectrum of neonatal illness and a term-born group at age 23. METHODS: Of the 215 infants recruited at birth, 84% participated at age 23...
September 21, 2018: Child: Care, Health and Development
Stefanie Witt, Michaela Dellenmark-Blom, Sofie Flieder, Jens Dingemann, Kate Abrahamsson, Linus Jönsson, Vladimir Gatzinsky, John Eric Chaplin, Benno Ure, Carmen Dingemann, Monika Bullinger, Rachel Sommer, Julia Hannah Quitmann
BACKGROUND: Esophageal atresia (EA) is a rare malformation of the esophagus, which needs surgical treatment. Survival rates have reached 95%, but esophageal and respiratory morbidity during childhood is frequent. Child and parent perspectives and cultural and age-specific approaches are fundamental in understanding children's health-related quality of life (HRQoL) and when developing a pediatric HRQoL questionnaire. We aimed to increase the conceptual and cross-cultural understanding of condition-specific HRQoL experiences among EA children from Sweden and Germany and investigate content validity for an EA-specific HRQoL questionnaire...
September 16, 2018: Child: Care, Health and Development
Martie P Thompson, J B Kingree, Dorian Lamis
BACKGROUND: Suicide is a leading cause of death among adolescents and young adults. The current study extends the research linking adverse childhood experiences (ACEs) to suicidal behaviors by testing these associations using a nationally representative sample, assessing for suicide ideation and attempts in adulthood, controlling for established risk factors for suicidality, and measuring a broad array of ACEs. METHODS: The sample included 9,421 participants from the National Longitudinal Study of Adolescent Health who participated in four waves of assessments spanning 13 years...
September 2, 2018: Child: Care, Health and Development
R W McCreery, E A Walker, J B Tomblin, J J Oleson, S A Ambrose, M P Moeller
No abstract text is available yet for this article.
November 2018: Child: Care, Health and Development
Peter Carew, Fiona K Mensah, Gary Rance, Traci Flynn, Zeffie Poulakis, Melissa Wake
No abstract text is available yet for this article.
November 2018: Child: Care, Health and Development
F Babette Diepeveen, Paula van Dommelen, Anne Marie Oudesluys-Murphy, Paul H Verkerk
BACKGROUND: Delayed language development without an obvious cause is considered an isolated developmental disorder and is called specific language impairment (SLI). SLI is probably the most prevalent developmental disorder in childhood with a generally cited prevalence of 7%. This study aimed to investigate whether SLI is always an isolated disorder or if children with SLI also have delayed motor development. METHODS: We used data of an earlier study with a prospective nested case-control design in which developmental data were collected from child health care files...
November 2018: Child: Care, Health and Development
Alisha Gulenc, Emma Butler, Anna Sarkadi, Harriet Hiscock
BACKGROUND: Child behaviour problems are common and can lead to later mental health problems. Poor maternal mental health and adverse parenting practices are known risk factors for child behaviour problems. Less is known about the association between paternal mental health and parenting, and child behaviour. We aimed to explore the association between paternal psychological distress and parenting (harsh discipline, low warmth, unreasonable expectations, and overinvolved/protectiveness) with children's internalising and externalising behaviour at 3 years of age...
November 2018: Child: Care, Health and Development
Virginia Chaidez, Erik Fernandez Y Garcia, Lulu W Wang, Kathleen Angkustsiri, Paula Krakowiak, Irva Hertz-Picciotto, Robin L Hansen
BACKGROUND: This study aimed to describe parental perceptions of the causes of autism spectrum disorder (ASD) in an ethnically diverse sample and explore whether these perceptions relate to treatment choices. METHODS: The sample consisted of White (n = 224), Hispanic (n = 85), and Asian (n = 21) mothers of a child with ASD. A mixed methods approach was used in this secondary analysis focusing on parental perceptions about the causes of ASD and the relationship of these to utilization of services and treatment...
November 2018: Child: Care, Health and Development
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