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Journal of Pain and Symptom Management

Andie Bernard
No abstract text is available yet for this article.
January 10, 2018: Journal of Pain and Symptom Management
EMayumi Ishida, Hideki Onishi, Tatsuya Morita, Yosuke Uchitomi, Megumi Shimizu, Satoru Tsuneto, Yasuo Shima, Mitsunori Miyashita
CONTEXT: The importance of communication between the cancer bereaved and others has been emphasized, but little is known about the more problematic aspects of this communication such as "unhelpful communication". OBJECTIVES: The aim of this study was to establish which types of communication are perceived by the bereaved to be unhelpful. METHODS: We conducted a cross-sectional, anonymous, nationwide survey at 103 certified hospice facilities/palliative care units in Japan...
January 9, 2018: Journal of Pain and Symptom Management
Kannan Sridharan
No abstract text is available yet for this article.
January 9, 2018: Journal of Pain and Symptom Management
Nicholas E Burr, Alexander C Ford
No abstract text is available yet for this article.
January 6, 2018: Journal of Pain and Symptom Management
Dimitrios Papadopoulos, Apostolos Papadoudis, Maria Kiagia, Konstantinos Syrigos
CONTEXT: Lung cancer patients suffer from higher levels of sleep disturbances compared to other cancer patients and this leads to greater distress, poorer function and lower quality of life. Nonpharmacologic interventions have demonstrated improvements in the context of breast cancer but their efficacy in the lung cancer population is unclear. OBJECTIVES: The aim of this review was to determine the effects of any nonpharmacologic intervention on sleep quality of lung cancer patients...
January 5, 2018: Journal of Pain and Symptom Management
Say Salomon, Hilary Frankel, Elizabeth Chuang, Serife Eti, Peter Selwyn
CONTEXT: Left-ventricular assist devices (LVADs) are increasingly used to improve quality of life for end-stage heart failure patients. The Joint Commission now requires pre-implantation palliative care assessment, however many palliative care teams have little experience providing this service. OBJECTIVE: To describe the integration of palliative services at one Center of Excellence for Heart and Vascular Care. METHODS: This is a retrospective chart review of all patients receiving LVADs at a single urban academic medical center from 1/2015 to 9/2016...
January 4, 2018: Journal of Pain and Symptom Management
Maryellen Potts, Kathleen B Cartmell, Lynne Nemeth, Gautam Bhattacharjee, Suparna Qanungo
CONTEXT: To meet the growing need for palliative care in low-resource countries, palliative care programs should be evidence-based and contextually appropriate. This study was conducted to synthesize the current evidence to guide future programmatic and research efforts. OBJECTIVES: This systematic review evaluated palliative care outcome measures, outcomes, and interventions in low resource countries. METHODS: Following title searches, abstracts and full text articles were screened for inclusion...
January 2, 2018: Journal of Pain and Symptom Management
Sofia Andersson, Kristofer Årestedt, Olav Lindqvist, Carl-Johan Fürst, Margareta Brännström
BACKGROUND: Residential care homes (RCHs) are a common place of death. Previous studies have reported a high prevalence of symptoms such as pain and shortness of breath among residents in the last week of life. AIM: To explore the presence of symptoms and symptom relief, and identify factors associated with symptom relief of pain, nausea, anxiety, and shortness of breath among RCH residents in end-of-life care. METHOD: The data consisted of all expected deaths at RCHs registered in the Swedish Register of Palliative Care (n=22 855)...
January 2, 2018: Journal of Pain and Symptom Management
Juliet Jacobsen, Craig Blinderman, Corinne Alexander, Vicki Jackson
Patients and families facing serious illness often want and need their clinicians to help guide medical decision making by offering a recommendation. Yet clinicians worry that recommendations are not compatible with shared decision making, and feel reluctant to offer them. We describe an expert approach to formulating a recommendation using a shared decision making framework. We offer three steps to formulating a recommendation: (1) evaluate the prognosis and treatment options; (2) understand the range of priorities that are important to your patient given the prognosis; and (3) base your recommendation on the patient's priorities most compatible with the likely prognosis and available treatment options...
January 2, 2018: Journal of Pain and Symptom Management
Daniel S J Costa, Vanessa Loh, Damian P Birney, Haryana H Dhillon, Joanna E Fardell, Danielle Gessler, Janette L Vardy
CONTEXT: The FACT-Cog version 3 questionnaire is designed to assess perceived cognitive function and impact on quality of life in cancer patients. OBJECTIVES: We examined the factor structure of the FACT-Cog v3, in samples of cancer patients, older adults, and students. METHODS: Data from three populations were sourced. Cancer patient data (N=158) came from two studies, one evaluating a web-based cognitive training program, the other evaluating symptoms in patients receiving chemotherapy...
December 29, 2017: Journal of Pain and Symptom Management
Siew Tzuh Tang, Chen Hsiu Chen, Fur-Hsing Wen, Jen-Shi Chen, Wen-Cheng Chang, Chia-Hsun Hsieh, Wen-Chi Chou, Ming-Mo Hou
BACKGROUND: Terminally ill cancer patients do not engage in end-of-life (EOL)-care discussions or do so only when death is imminent, despite guidelines for EOL-care discussions early in their disease trajectory. Most studies on patient-reported EOL-care discussions are cross-sectional without exploring the evolution of EOL-care discussions as death approaches. Cross-sectional studies cannot determine the direction of association between EOL-care discussions and patients' prognostic awareness, psychological well-being, and quality of life (QOL)...
December 28, 2017: Journal of Pain and Symptom Management
S Maingi, A Bagabag, S O'Mahony
No abstract text is available yet for this article.
December 27, 2017: Journal of Pain and Symptom Management
Natalie C Ernecoff, Kathryn L Wessell, Stacey Gabriel, Timothy S Carey, Laura C Hanson
CONTEXT: Investigators need novel methods for timely identification of patients with serious illness to test or implement new palliative care models. OBJECTIVE: The study aim was to develop an electronic health record (EHR) phenotype to identify patients with late-stage dementia for a clinical trial of palliative care consultation. METHODS: We developed a computerized method to identify patients with dementia on hospital admission. Within a data warehouse derived from the hospital's EHR, we used search terms of age, admission date, and ICD-9 and ICD-10 diagnosis codes to create a EHR dementia phenotype, followed by brief medical record review to confirm late-stage dementia...
December 27, 2017: Journal of Pain and Symptom Management
Tomasz Gradalski
INTRODUCTION: The extremity edema of advanced disease is a common, multifactorial feature, which impairs patient activities and quality of life. The most frequently chosen management is based on combined decongestive physiotherapy or pharmacotherapy (with diuretics or steroids). Subcutaneous lymphatic drainage in refractory edema may decrease the swelling, prevent spontaneous lymphorrhoea but also increase the risk of infection. Safe and effective conservative management in diuretics resistant edemas is lacking...
December 27, 2017: Journal of Pain and Symptom Management
James P Donnelly, Kim Downing, Jason Cloen, Patricia Fragen, Alyssa W Gupton, Jen Misasi, Kelly Michelson
CONTEXT: Pediatric palliative care has no evidence-based needs assessment measure. The Parent and Child Needs Survey (PCNeeds) is a new instrument designed to assess the needs of children in palliative care, including children receiving end-of-life care, and their families. OBJECTIVES: This study examines the psychometrics of and respondents' perceptions about the PCNeeds. METHODS: Parents of children in four outpatient pediatric palliative care programs completed the PCNeeds and the World Health Organization Quality of Life-Brief tool (WHOQOL-BREF)...
December 27, 2017: Journal of Pain and Symptom Management
Rachel A Hadler, William E Rosa
Providing care to cancer patients in resource-poor settings often demands complex trade-offs regarding resource allocation. It is estimated that over 60% of all cancer deaths worldwide occur in low- and middle-income countries (LMICs), where channels to care and appropriate symptom management interventions are overstressed or obsolete. Concepts of distributive justice underlie much of global health policy. As appetites for expanding global palliative care services increase so do questions of fair and culturally appropriate distribution...
December 27, 2017: Journal of Pain and Symptom Management
C Gamondi, M Pott, N Preston, S Payne
BACKGROUND: Thousands of family members worldwide are annually involved in assisted dying. Family participation in assisted dying has rarely been investigated and families' needs typically are not considered in assisted dying legislation and clinical guidelines. OBJECTIVE: To explore family caregivers' reflections on experiences of assisted suicide in Switzerland. DESIGN: A cross-sectional qualitative interview study. Interpretation and analysis were performed using qualitative content analysis...
December 27, 2017: Journal of Pain and Symptom Management
Ana Soto-Rubio, Shane Sinclair
No abstract text is available yet for this article.
December 21, 2017: Journal of Pain and Symptom Management
Marvin Omar Delgado-Guay
What a privilege it is to be able to touch those sacred spaces in the soul of each person that we encounter every day. Patients with life-threatening illnesses can struggle with physical, emotional, and existential and spiritual concerns and the suffering of caregivers. A key goal of our supportive and palliative care teams is to alleviate patient and caregiver suffering. When caring for patients with advanced and terminal illness the spirituality of each member of the palliative care team becomes a single collective spirituality or soul with common goals, values, and belonging, with a main goal of providing the best care for patients and caregivers in the alleviation of suffering...
December 15, 2017: Journal of Pain and Symptom Management
Yuki Sumazaki Watanabe, Tomofumi Miura, Ayumi Okizaki, Keita Tagami, Yoshihisa Matsumoto, Maiko Fujimori, Tatsuya Morita, Hiroya Kinoshita
CONTEXT: The achievement of a personalized pain goal (PPG) is advocated as an individualized pain relief indicator. OBJECTIVES: Pain relief indicators, including PPG, pain intensity (PI), and interference with daily activities (Interference), were compared herein. METHODS: This was a single-center cross-sectional study. Adult cancer patients with opioid medications who visited the outpatient clinic at the National Cancer Center Hospital East between March and September 2015 were consecutively enrolled...
December 14, 2017: Journal of Pain and Symptom Management
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