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Journal of Pain and Symptom Management

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https://www.readbyqxmd.com/read/28093312/palliative-medicine-and-preparedness-planning-for-patients-receiving-left-ventricular-assist-device-as-destination-therapy-challenges-to-measuring-impact-and-change-in-institutional-culture
#1
Brandon P Verdoorn, Angela J Luckhardt, Sara E Wordingham, Shannon M Dunlay, Keith M Swetz
CONTEXT: While left ventricular assist devices as destination therapy (DT-LVAD) can improve survival, quality of life, and functional capacity in well-selected patients with advanced heart failure, there remain unique challenges to providing quality end-of-life care in this population. Palliative care involvement is universally recommended, but how to best operationalize this care and measure success is unknown. OBJECTIVES: To characterize the process of preparedness planning (PP) for patients receiving DT-LVAD at our institution and better understand opportunities for quality improvement or procedural transferability...
January 13, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28065700/integrating-supportive-care-principles-into-dialysis-decision-making-a-primer-for-palliative-medicine-providers
#2
Alvin H Moss
Despite advances in pre-dialysis care and dialysis technology, patients with advanced chronic kidney disease and end-stage renal disease continue to experience multiple comorbidities, a high symptom burden, a shortened life expectancy and substantial physical, emotional, and spiritual suffering. Patients with acute kidney injury and end-stage renal disease, especially if they are older, often undergo prolonged hospitalizations, greater use of intensive medical treatment, and limited survival. Unfortunately, most nephrologists are not trained to conduct shared decision-making conversations to elicit patients' values, preferences, and goals for treatment and address their patients' multifactorial suffering...
January 5, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28063869/healing-touch-positively-sharing-energy-in-a-pediatric-hospital
#3
Meaghann Weaver
No abstract text is available yet for this article.
January 4, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28063868/distinct-wound-healing-and-quality-of-life-outcomes-in-subgroups-of-patients-with-venous-leg-ulcers-with-different-symptom-cluster-experiences
#4
Kathleen Finlayson, Christine Miaskowski, Kimberly Alexander, Wei-Hong Liu, Bradley Aouizerat, Christina Parker, Dianne Maresco-Pennisi, Helen Edwards
CONTEXT: Adults with venous leg ulcers frequently experience multiple symptoms which may influence quality of life (QOL). OBJECTIVES: To identify patient subgroups based on their experience with a pain-depression-fatigue-sleep disturbance (PDFS) symptom cluster and to identify differences in patient characteristics, as well as wound healing and quality of life outcomes between the subgroups. METHODS: Secondary data analysis from previous longitudinal studies of 247 patients with venous leg ulcers...
January 4, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28063867/-it-s-like-heart-failure-it-s-chronic%C3%A2-and-it-will-kill-you-a-qualitative-analysis-of-burnout-among-hospice-and-palliative-care-clinicians
#5
Dio Kavalieratos, Daniel E Siconolfi, Karen E Steinhauser, Janet Bull, Robert M Arnold, Keith M Swetz, Arif H Kamal
CONTEXT: Although prior surveys have identified rates of self-reported burnout among palliative care clinicians as high as 62%, limited data exist to elucidate the causes, ameliorators, and effects of this phenomenon. OBJECTIVES: We explored burnout among palliative care clinicians, specifically their experiences with burnout, their perceived sources of burnout, and potential individual, interpersonal, organizational, and policy-level solutions to address burnout...
January 4, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28063866/chemotherapy-induced-neuropathy-in-cancer-survivors
#6
Christine Miaskowski, Judy Mastick, Steven M Paul, Kimberly Topp, Betty Smoot, Gary Abrams, Lee-May Chen, Kord M Kober, Yvette P Conley, Margaret Chesney, Kay Bolla, Grace Mausisa, Melissa Mazor, Melisa Wong, Mark Schumacher, Jon D Levine
CONTEXT: Evidence suggests that chemotherapy-induced neuropathy (CIN) is a significant problem for cancer survivors. However, a detailed phenotypic characterization of CIN in cancer survivors is not available. OBJECTIVES: To evaluate between group differences in demographic and clinical characteristics, as well as in measures of sensation, function, and postural control, in a sample of cancer survivors who received a platinum and/or a taxane-based CTX regimen and did (n=426) and did not (n=197) develop CIN...
January 4, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28063865/evaluation-of-a-mastery-learning-intervention-on-hospitalists-code-status-discussion-skills
#7
Rashmi K Sharma, Eytan Szmuilowicz, Adeboye Ogunseitan, Sasha F Jones, Jessica A Montalvo, Kevin J O'Leary, Diane B Wayne
CONTEXT: Although code status discussions (CSD) occur frequently in the hospital setting, discussions often lack content necessary for informed decision making. Simulation-based mastery learning (SBML) has been used to improve clinical skills among resident physicians and may provide a novel way to improve hospitalists' CSD skills. OBJECTIVES: The objective of this pilot randomized controlled trial was to develop and evaluate a CSD SBML intervention for hospitalists...
January 4, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28063864/the-end-of-life-experience-of-pediatric-heart-transplant-recipients
#8
Seth A Hollander, John Dykes, Sharon Chen, Lynsey Barkoff, Barbara Sourkes, Harvey Cohen, David N Rosenthal, Daniel Bernstein, Beth D Kaufman
CONTEXT: Despite advances in therapies, many pediatric heart transplant (Htx) recipients will die prematurely. We characterized the circumstances surrounding death in this cohort, including location of death and interventions performed in the final 24 hours. METHODS: We reviewed all patients who underwent Htx at Lucile Packard Children's Hospital, Stanford, survived hospital discharge, and subsequently died between 7/19/2007-9/13/2015. The primary outcome studied was location of death, characterized as inpatient, outpatient, or emergency department (ED)...
January 4, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28063863/correlation-between-observational-scales-of-sedation-and-comfort-and-bispectral-index-scores-bis
#9
Michael Barbato, Greg Barclay, Jan Potter, Wilf Yeo, Joseph Chung
CONTEXT: When palliative care patients enter the phase of unconsciousness preceding death it is standard practice to initiate or continue a subcutaneous infusion of an opioid plus or minus a sedative. The doses are determined somewhat empirically and adjustments are based on clinical assessment and observational measures of sedation and comfort. Following reports that these observational measures could be misleading, this study assesses their validity by comparing them with an objective measure of sedation, the Bispectral Index score (BIS)...
January 4, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28063862/anxiety-after-diagnosis-predicts-lung-cancer-specific-and-overall-survival-in-patients-with-stage-iii-non-small-cell-lung-cancer-a-population-based-cohort-study
#10
Andrea Vodermaier, Sarah Lucas, Wolfgang Linden, Robert Olson
CONTEXT: The question as to whether anxiety and depression are related to mortality in patients with lung cancer is inconclusive. OBJECTIVE: Therefore, the present study is examining associations of anxiety and depression in a large representative sample of patients with stage III non-small cell lung cancer. METHODS: Patients (n=684) were routinely assessed for anxiety and depression with the PsychoSocial Screen for Cancer (PSSCAN) questionnaire after diagnosis of lung cancer and before treatment initiation between 2004 and 2010...
January 4, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28063861/common-and-distinct-characteristics-associated-with-trajectories-of-morning-and-evening-energy-in-oncology-patients-receiving-chemotherapy
#11
Hamza Abid, Kord M Kober, Betty Smoot, Steven M Paul, Marilyn Hammer, Jon D Levine, Kathryn Lee, Fay Wright, Bruce A Cooper, Yvette P Conley, Christine Miaskowski
CONTEXT: While energy conservation strategies are recommended in clinical practice guidelines, little is known about changes in energy levels in oncology patients undergoing cancer treatment. OBJECTIVES: To identify variations in the trajectories of morning and evening energy levels and to determine which characteristics predicted initial levels as well as the trajectories of morning and evening energy. METHODS: Outpatients receiving chemotherapy (CTX) completed demographic and symptom questionnaires six times over two CTX cycles...
January 4, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28063860/could-objective-tests-be-used-to-measure-fatigue-in-patients-with-advanced-cancer
#12
Gustavo Schvartsman, Minjeong Park, Diane D Liu, Sriram Yennu, Eduardo Bruera, David Hui
CONTEXT: Assessment of cancer-related fatigue is currently based on patient-reported outcomes. We asked whether objective assessments such as muscle strength and nutritional markers can be used as surrogate measures of cancer-related fatigue. OBJECTIVE: We examined the association among three fatigue scales, muscle strength, and nutritional markers in patients with advanced cancer. METHODS: In this prospective study, we enrolled hospitalized cancer patients who had been seen in palliative care consultation at MD Anderson Cancer Center...
January 4, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28063859/assessing-palliative-care-content-in-dementia-care-guidelines-a-systematic-review
#13
REVIEW
Pamela Durepos, Abigail Wickson-Griffiths, Afeez Abiola Hazzan, Sharon Kaasalainen, Vasilia Vastis, Lisa Battistella, Alexandra Papaioannou
CONTEXT: Families of persons with dementia continue to report unmet needs during end-of-life. Strategies to improve care and quality of life for persons with dementia include development of clinical practice guidelines (CPG) and an integrative palliative approach. OBJECTIVES: We aimed to assess palliative care content in dementia CPGs in order to identify the presence or limitations of recommendations and discussion pertaining to common issues or domains affected by illness as described by the Canadian Hospice Palliative Care 'Square of Care'...
January 4, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28063858/early-and-integrated-palliative-care-to-achieve-a-home-death-in-idiopathic-pulmonary-fibrosis
#14
Meena Kalluri, Janice Richman-Eisenstat
No abstract text is available yet for this article.
January 4, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28062352/collusions-between-patients-and-clinicians-in-end-of-life-care-why-clarity-matters
#15
Friedrich Stiefel, Kenji Nakamura, Takeshi Terui, Kunihiko Ishitani
Collusion, an unconscious dynamic between patients and clinicians, may provoke strong emotions, un-reflected behaviours and a negative impact on care. Collusions, prevalent in the health care setting, are triggered by situations which signify an unresolved psychological issue relevant for both, patient and clinician. After an introductory definition of collusion, two archetypal situations of collusion - based on material from a regular supervision of a palliative care specialist by a liaison psychiatrist - and means of working through collusion are presented...
January 3, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28062351/training-the-workforce-description-of-a-longitudinal-interdisciplinary-education-and-mentoring-program-in-palliative-care
#16
Stacie Levine, Sean O'Mahony, Aliza Baron, Aziz Ansari, Catherine Deamant, Joel Frader, Ileana Leyva, Michael Marschke, Michael Preodor
CONTEXT: The rapid increase in demand for palliative care (PC) services has led to concerns regarding workforce shortages and threats to the resiliency of PC teams. OBJECTIVES: To describe the development, implementation, and evaluation of a regional interdisciplinary training program in PC. METHODS: Thirty nurse and physician "fellows" representing 22 health systems across the Chicago region participated in a two-year PC training program...
January 3, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28062350/discordance-of-patient-reported-and-clinician-ordered-resuscitation-status-in-patients-hospitalized-with-acute-decompensated-heart-failure
#17
Kathleen A Young, Sara E Wordingham, Jacob J Strand, Vėronique L Roger, Shannon M Dunlay
CONTEXT: Accurate documentation of preferences for cardiopulmonary resuscitation at hospital admission is critical to ensure that patients receive resuscitation or not in accordance with their wishes. OBJECTIVES: We sought to identify and characterize inconsistencies in patient-reported and clinician-ordered resuscitation status in patients hospitalized with acute decompensated heart failure (ADHF). METHODS: Southeastern Minnesota residents hospitalized with ADHF were prospectively enrolled into a study that included the administration of face-to-face questionnaires from January 2014 through February 2016...
January 3, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28062349/-best-case-worst-case-training-surgeons-to-use-a-novel-communication-tool-for-high-risk-acute-surgical-problems
#18
Jacqueline M Kruser, Lauren J Taylor, Toby C Campbell, Amy Zelenski, Sara K Johnson, Michael J Nabozny, Nicole M Steffens, Jennifer L Tucholka, Kris L Kwekkeboom, Margaret L Schwarze
CONTEXT: Older adults often have surgery in the months preceding death, which can initiate post-operative treatments inconsistent with end-of-life values. "Best Case/Worst Case" (BC/WC) is a communication tool designed to promote goal-concordant care during discussions about high-risk surgery. OBJECTIVE: To evaluate a structured training program designed to teach surgeons how to use BC/WC. METHODS: Twenty-five surgeons from one tertiary-care hospital completed a two-hour training session followed by individual coaching...
January 3, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28062348/compassion-satisfaction-compassion-fatigue-and-burnout-in-spain-and-brazil-proqol-validation-and-cross-cultural-diagnosis
#19
Laura Galiana, Fernanda Arena, Amparo Oliver, Noemí Sansó, Enric Benito
CONTEXT: Palliative care professionals' quality of life has emerged as a growing issue of interest in healthcare literature, centered on concerns about professionals' compassion within a context of work characterized by pain and death. OBJECTIVES: The aim of this study is threefold: (1) to study the psychometric properties of both the Spanish and the Portuguese versions of the ProQOL scale, by means of confirmatory factor analyses; (2) to offer a diagnosis of compassion satisfaction and compassion fatigue levels of Spanish and Brazilian palliative care professionals; and (3) to compare levels in ProQOL between countries...
January 3, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28062347/cognitive-interview-based-validation-of-the-patient-reported-outcomes-version-of-the-common-terminology-criteria-for-adverse-events-pro-ctcae-in-adolescents-with-cancer
#20
Bryce B Reeve, Molly McFatrich, Laura C Pinheiro, David R Freyer, Ethan M Basch, Justin N Baker, Janice S Withycombe, Lillian Sung, Jennifer W Mack, Mia K Waldron, Catriona Mowbray, Diana Palma, Pamela S Hinds
CONTEXT: The National Cancer Institute created the Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE) to allow direct input on symptomatic AEs from adult patients in oncology trials. OBJECTIVES: This study sought to determine the youngest age to complete the PRO-CTCAE, evaluated comprehension of PRO-CTCAE among adolescents, tested new items not currently in PRO-CTCAE, and tested a parent-proxy version. METHODS: From 7 pediatric cancer hospitals, 51 adolescents (13-20 years) receiving cancer treatment participated, along with 40 parent-proxies...
January 3, 2017: Journal of Pain and Symptom Management
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