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Journal of Pain and Symptom Management

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https://www.readbyqxmd.com/read/30223015/walking-but-not-talking-laryngeal-separation-as-a-novel-approach-to-improve-quality-of-life-in-bulbar-amyotrophic-lateral-sclerosis
#1
LETTER
Julia L Agne, Kavitha P Norton
No abstract text is available yet for this article.
September 14, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/30223014/fidelity-and-feasibility-of-a-brief-emergency-department-intervention-to-empower-adults-with-serious-illness-to-initiate-advance-care-planning-conversations
#2
Richard E Leiter, Miryam Yusufov, Mohammad Adrian Hasdianda, Lauren A Fellion, Audrey C Reust, Susan D Block, James A Tulsky, Kei Ouchi
CONTEXT: Emergency Department (ED) visits provide opportunities to empower patients to discuss advance care planning (ACP) with their outpatient clinicians, but systematically developed, feasible interventions do not currently exist. Brief negotiated interview (BNI) interventions, which allow ED clinicians to efficiently motivate patients, have potential to meet this need. OBJECTIVES: We developed a BNI ED intervention to empower older adults with life-limiting illness to formulate and communicate medical care goals to their primary outpatient clinicians...
September 14, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/30223013/pain-and-emergency-department-use-in-the-last-month-of-life-among-older-adults-with-dementia
#3
Lauren J Hunt, Christine S Ritchie, Janine K Cataldo, Kanan Patel, Caroline E Stephens, Alexander K Smith
CONTEXT: Pain may be a potentially modifiable risk factor for expensive and burdensome Emergency Department (ED) visits near the end-of-life for older adults with dementia. OBJECTIVES: To assess the effect of pain and unmet need for pain management on ED visits in the last month of life in older adults with dementia. METHODS: Mortality follow-back study of older adults with dementia in the National Health and Aging Trends Study (NHATS) who died between 2012-2014, linked to Medicare claims...
September 14, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/30217417/managing-medicines-for-patients-dying-at-home-a-review-of-family-caregivers-experiences
#4
REVIEW
Eleanor Wilson, Glenys Caswell, Nicola Turner, Kristian Pollock
CONTEXT: Increased life expectancy, technical advances in treatment and symptom control, and the extension of palliative care in community settings not only lengthen life, but make it possible for many patients to be cared for, and to die, at home. Moreover, death increasingly occurs in late old age and after a prolonged period of co-morbidity and/or frailty. This has far reaching consequences for the way that professional services are resourced and organised, and for the informal carers who are often responsible for providing the greater part of patient care, including management of complex medication regimes...
September 11, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/30201487/spiritual-well-being-among-palliative-care-patients-with-different-religious-affiliations-a-multicenter-korean-study
#5
Seok Joon Yoon, Sang-Yeon Suh, Sun Hyun Kim, Jeanno Park, Yu Jung Kim, Beodeul Kang, Youngmin Park, Jung Hye Kwon, Kwonoh Park, Dong Wook Shin, Hyeon Jeong Kim, Hong-Yup Ahn, David Hui
CONTEXT: Spiritual well-being (SWB) is very important in palliative care patients. OBJECTIVES: The aim of this study is to investigate the SWB among palliative care patients in Korea with different religious affiliations, and to identify the correlates of SWB. METHODS: This study is a cross-sectional, multicenter study involving hospitalized patients seen by palliative care teams. We collected data on basic clinicodemographic characteristics, factors related to religion (meaningful religious events, religious activities such as attending worship, individual spiritual activities such as prayer), overall quality of life (QOL) and SWB...
September 7, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/30201486/breakthrough-medication-in-unresponsive-palliative-care-patients-indications-practice-and-efficacy
#6
Michael Barbato, Greg Barclay, Jan Potter, Wilf Yeo
CONTEXT: An unresponsive patient's need and their response to breakthrough medication is determined by clinical assessment and/or observational measures. How closely these methods match the patient's experience is unknown. OBJECTIVES: Determine the efficacy and effectiveness of breakthrough medication in unresponsive patients and the perception of patient comfort made by nurses and family. METHODS: A prospective study of breakthrough medication in unresponsive patients...
September 7, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/30201485/defining-core-competencies-for-generalist-level-palliative-social-work
#7
Myra Glajchen, Cathy Berkman, Shirley Otis-Green, Gary L Stein, Tom Sedgwick, Mercedes Bern-Klug, Grace Christ, Ellen Csikai, Deirdre Downes, Susan Gerbino, Barbara Head, Debra Parker-Oliver, Deborah Waldrop, Russell K Portenoy
CONTEXT: Care provided to seriously ill patients by front-line social workers is a component of generalist-level palliative care. The core competencies for high-quality generalist-level palliative social work are necessary to promote training curricula and best practices but have not yet been defined in the U.S. OBJECTIVE: To develop consensus-derived core competencies for generalist-level palliative social work. METHODS: Fifty-five proposed social work competencies were categorized by the eight domains of palliative care identified by the National Consensus Project for Quality Palliative Care...
September 7, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/30201484/advance-care-planning-needs-in-patients-with-glioblastoma-undergoing-radiotherapy
#8
LETTER
Erqi Pollom, Katherine Sborov, Scott G Soltys, Steven M Asch, Rebecca Sudore, Rebecca A Aslakson
No abstract text is available yet for this article.
September 7, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/30176284/measuring-the-symptom-experience-of-patients-with-cancer-in-indonesia-cross-cultural-adaptation-and-validation-of-the-memorial-symptom-assessment-scale-indonesian-version
#9
Haryani, Yu-Yun Hsu, Sri Warsini, Shan-Tair Wang
CONTEXT: Little is known about cancer-related symptoms in terms of prevalence, severity, and distress among patients with cancer in Indonesia due to a lack of a valid and reliable scale. OBJECTIVE: to translate and validate the Memorial Symptom Assessment Scale (MSAS) among cancer patients in Indonesia. METHODS: Two procedures consisting of forward-backward translation and validation were conducted. The validation process including pre-testing involved 34 cancer patients, and the psychometric testing of the Indonesian Version of MSAS (MSAS-I) involved 207 cancer patients...
August 31, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/30172864/hyoscine-butylbromide-for-the-management-of-death-rattle-sooner-rather-than-later
#10
Sebastiano Mercadante, Franco Marinangeli, Francesco Masedu, Marco Valenti, Domenico Russo, Laura Ursini, Alessia Massici, Federica Aielli
AIM: Death rattle is a dramatic sign in the dying patient. Existing studies with anticholinergic agents are controversial. The aim of this study was to assess the efficacy of hyoscine butylbromide (HB), given prophylactically in comparsion with HB administered once death rattle occurs. METHODS: Dying patients having a score ≥3 in the Richmond Agitation-Sedation Scale - Palliative version (RASS-PAL) were included in the study. HB 60 mg/day was given when death rattle occurred (group 1), or as pre-emptive treatment (group 2)...
August 30, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/30172061/phenotypic-characterization-of-paclitaxel-induced-peripheral-neuropathy-in-cancer-survivors
#11
Kord M Kober, Melissa Mazor, Gary Abrams, Adam Olshen, Yvette P Conley, Marilyn Hammer, Mark Schumacher, Margaret Chesney, Betty Smoot, Judy Mastick, Steven M Paul, Jon D Levine, Christine Miaskowski
CONTEXT: While paclitaxel is one of the most commonly used drugs to treat breast, ovarian, and lung cancers, little is known about the impact of paclitaxel-induced peripheral neuropathy (PIPN) on cancer survivors. OBJECTIVES: The purposes of this study were to evaluate for differences in demographic and clinical characteristics, as well as measures of sensation, balance, upper extremity function, perceived stress, symptom burden, and quality of life (QOL) between survivors who received paclitaxel and did (n=153) and did not (n=58) develop PIPN...
August 29, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/30165124/a-systematic-assessment-and-monitoring-intervention-to-improve-pain-management-and-quality-reporting-among-home-hospice-patients
#12
J Cameron Muir, Malene S Davis, Stephen Connor, Emily A Kuhl, Perry G Fine
BACKGROUND: Validated and reproducible means to systematically improve pain documentation and outcomes in home-based hospice populations are generally lacking. This paper describes a novel, electronic medical record (EMR)-embedded pain monitoring and management program for home-based hospice patients. MEASURES: Pain relief was measured by patients' self-defined pain within 48 hours of initiating care, recorded on a 0-10 pain scale. INTERVENTION: The Pain Continuous Quality Improvement Program (PCQIP) consisted of EMR enhancements, staff engagement and training, and incentivizing techniques...
August 27, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/30165123/improving-value-of-care-for-older-adults-with-advanced-medical-illness-and-functional-decline-cost-analyses-of-a-home-based-palliative-care-program
#13
Christina Y Chen, James M Naessens, Paul Y Takahashi, Rozalina G McCoy, Bijan J Borah, Lynn S Borkenhagen, Ashley K Kimeu, Ricardo L Rojas, Matt G Johnson, Sue L Visscher, Stephen S Cha, Bjorg Thorsteinsdottir, Gregory J Hanson
CONTEXT: Identifying high-value health care delivery for patients with clinically complex and high-cost conditions is important for future reimbursement models. OBJECTIVES: To assess the Medicare reimbursement savings of an established palliative care homebound program. METHODS: This is a retrospective cohort study involving 50 participants enrolled in a palliative care homebound program and 95 propensity-matched control patients at Mayo Clinic in Rochester, Minnesota, between September 1, 2012, and March 31, 2013...
August 27, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/30149059/patient-caregiver-and-taxpayer-knowledge-of-palliative-care-and-views-on-a-model-of-community-based-palliative-care
#14
Nathan A Boucher, Janet H Bull, Sarah H Cross, Christine Kirby, J Kelly Davis, Donald H Taylor
CONTEXT: Palliative care model delivered by two large hospices and palliative care providers. OBJECTIVES: To understand study participants' knowledge of palliative care and acceptability of a new community-based palliative care model. METHODS: Semi-structured interview with patients and caregivers; focus groups with taxpayers. Descriptive content analysis with an inductive approach. RESULTS: Across 10 interviews and 4 focus groups (n=4 to 10 per group) there was varying knowledge of palliative care...
August 24, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/30145215/dyspnea-in-amyotrophic-lateral-sclerosis-als-rasch-based-development-and-validation-of-a-patient-reported-outcome-dals-15
#15
Susanne Vogt, Susanne Petri, Reinhard Dengler, Hans-Jochen Heinze, Stefan Vielhaber
CONTEXT: Dyspnea is a cardinal but often underestimated symptom in amyotrophic lateral sclerosis (ALS). The lack of a satisfying assessment tool leads to diagnostic uncertainty and bears the risk that established life-prolonging and symptom relieving therapeutic options will not be adequately applied. OBJECTIVES: The objective of this study was to develop and validate a German language disease-specific patient-reported outcome measure to assess dyspnea in ALS by combination of a qualitative and quantitative approach using Rasch analysis...
August 23, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/30145214/caregivers-experiences-with-medical-aid-in-dying-in-vermont-a-qualitative-study
#16
Mara Buchbinder, Enioluwafe Ojo, Laila Knio, Elizabeth R Brassfield
CONTEXT: Eight jurisdictions in the United States currently permit medical aid-in-dying (AID), yet little is known about the direct experience of caregivers in supporting a loved one through the process. OBJECTIVES: To explore the experiences of lay caregivers involved with AID in the United States, focusing on the day of death. METHODS: Semi-structured in-depth interviews were conducted with caregivers of terminally ill patients who pursued AID under Vermont's 2013 "Patient Choice and Control at End of Life" Act...
August 23, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/30145213/effects-of-shared-decision-making-on-distress-and-healthcare-utilization-among-patients-with-lung-cancer-a-systematic-review
#17
REVIEW
O P Geerse, M E Stegmann, H A M Kerstjens, T J N Hiltermann, M Bakitas, C Zimmermann, A M Deal, D Brandenbarg, M Y Berger, A J Berendsen
CONTEXT: Lung cancer is associated with significant distress, poor quality of life, and a median prognosis of less than one year. Benefits of shared decision making (SDM) have been described for multiple diseases, either by the use of decisions aids or as part of supportive care interventions. OBJECTIVES: To summarize the effects of interventions facilitating SDM on distress and healthcare utilization among patients with lung cancer. METHODS: We performed a systematic literature search in the CINAHL, Cochrane, EMBASE, MEDLINE, and PsychINFO databases...
August 23, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/30145212/development-of-a-standard-for-hospital-based-palliative-care-consultation-teams-in-japan-using-a-modified-delphi-method
#18
Akihiro Sakashita, Yoshiyuki Kizawa, Masashi Kato, Nobuya Akizuki, Yoko Nakazawa, Mikiko Kaizu, Kazumi Yano, Tetsumi Sato, Akihiro Tokoro
CONTEXT: Hospital-based palliative care consultation teams (PCCTs) are rapidly being disseminated throughout Japan. The roles of PCCTs have changed over the past decade, particularly with the introduction of a modified national cancer care act to promote early palliative care and integrated oncology and palliative care. OBJECTIVES: This study aimed to develop a consultation team standard for hospital-based palliative care in Japan. METHODS/DESIGN: We developed a provisional standard based on literature review, and used a modified questionnaire-based Delphi method...
August 23, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/30144537/third-year-medical-students-reactions-to-surgical-patients-in-pain-doubt-distress-and-depersonalization
#19
Kimberly E Kopecky, Tiffany J Zens, Pasithorn A Suwanabol, Margaret L Schwarze
CONTEXT: Medical students have limited instruction about how to manage the interpersonal relationships required to care for patients in pain. OBJECTIVE: To characterize the experiences of medical students as they encounter pain, suffering, and the emotional experiences of doctoring. METHODS: We used qualitative analysis to explore the content of 341 essays written by third year medical students who described their experiences with surgical patients in pain...
August 22, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/30144536/characteristics-associated-with-physical-function-trajectories-in-older-adults-with-cancer-during-chemotherapy
#20
Melisa L Wong, Steven M Paul, Judy Mastick, Christine Ritchie, Michael A Steinman, Louise C Walter, Christine Miaskowski
CONTEXT: Studies on physical function trajectories in older adults during chemotherapy remain limited. OBJECTIVES: Determine demographic, clinical, and symptom characteristics associated with initial levels as well as trajectories of physical function over two cycles of chemotherapy in adults age >65 with breast, gastrointestinal, gynecological, or lung cancer. METHODS: Older adults with cancer (n=363) who had received chemotherapy within the preceding four weeks were assessed six times over two cycles of chemotherapy using the Short Form-12 Physical Component Summary (PCS) score...
August 22, 2018: Journal of Pain and Symptom Management
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