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Palliative Medicine

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https://www.readbyqxmd.com/read/28190381/guidance-on-conducting-and-reporting-delphi-studies-credes-in-palliative-care-recommendations-based-on-a-methodological-systematic-review
#1
Saskia Jünger, Sheila A Payne, Jenny Brine, Lukas Radbruch, Sarah G Brearley
BACKGROUND: The Delphi technique is widely used for the development of guidance in palliative care, having impact on decisions with relevance for patient care. AIM: To systematically examine the application of the Delphi technique for the development of best practice guidelines in palliative care. DESIGN: A methodological systematic review was undertaken using the databases PubMed, CINAHL, Web of Science, Academic Search Complete and EMBASE...
February 1, 2017: Palliative Medicine
https://www.readbyqxmd.com/read/28190375/trends-in-place-of-death-the-role-of-demographic-and-epidemiological-shifts-in-end-of-life-care-policy
#2
Jorid Kalseth, Ole Magnus Theisen
BACKGROUND: Surveys suggest that most people prefer to die at home. Trends in causes of mortality and age composition could limit the feasibility of home deaths. AIM: To examine the effect of changes in decedents' age, gender and cause of death on the pattern of place of death using data on all deaths in Norway for the period 1987-2011. DESIGN: Population-based observation study comparing raw, predicted, as well as standardised shares of place of death isolating the effect of demographic and epidemiological changes...
February 1, 2017: Palliative Medicine
https://www.readbyqxmd.com/read/28190370/variations-in-the-cost-of-formal-and-informal-health-care-for-patients-with-advanced-chronic-disease-and-refractory-breathlessness-a-cross-sectional-secondary-analysis
#3
Mendwas D Dzingina, Charles C Reilly, Claudia Bausewein, Caroline J Jolley, John Moxham, Paul McCrone, Irene J Higginson, Deokhee Yi
BACKGROUND: Refractory breathlessness in advanced chronic disease leads to high levels of disability, anxiety and social isolation. These result in high health-resource use, although this is not quantified. AIMS: To measure the cost of care for patients with advanced disease and refractory breathlessness and to identify factors associated with high costs. DESIGN: A cross-sectional secondary analysis of data from a randomised controlled trial...
February 1, 2017: Palliative Medicine
https://www.readbyqxmd.com/read/28156188/funding-models-in-palliative-care-lessons-from-international-experience
#4
E Iris Groeneveld, J Brian Cassel, Claudia Bausewein, Ágnes Csikós, Malgorzata Krajnik, Karen Ryan, Dagny Faksvåg Haugen, Steffen Eychmueller, Heike Gudat Keller, Simon Allan, Jeroen Hasselaar, Teresa García-Baquero Merino, Kate Swetenham, Kym Piper, Carl Johan Fürst, Fliss Em Murtagh
BACKGROUND: Funding models influence provision and development of palliative care services. As palliative care integrates into mainstream health care provision, opportunities to develop funding mechanisms arise. However, little has been reported on what funding models exist or how we can learn from them. AIM: To assess national models and methods for financing and reimbursing palliative care. DESIGN: Initial literature scoping yielded limited evidence on the subject as national policy documents are difficult to identify, access and interpret...
February 1, 2017: Palliative Medicine
https://www.readbyqxmd.com/read/28142397/effects-on-pain-of-a-stepwise-multidisciplinary-intervention-sta-op-that-targets-pain-and-behavior-in-advanced-dementia-a-cluster-randomized-controlled-trial
#5
Marjoleine Jc Pieper, Jenny T van der Steen, Anneke L Francke, Erik Ja Scherder, Jos Wr Twisk, Wilco P Achterberg
BACKGROUND: Pain in nursing home residents with advanced dementia remains a major challenge; it is difficult to detect and may be expressed as challenging behavior. STA OP! aims to identify physical and other needs as causes of behavioral changes and uses a stepwise approach for psychosocial and pharmacological management which was effective in improving challenging behavior. AIM: To assess whether implementation of the stepwise multidisciplinary intervention also reduces pain and improves pain management...
February 1, 2017: Palliative Medicine
https://www.readbyqxmd.com/read/28106516/rural-end-of-life-care-from-the-experiences-and-perspectives-of-patients-and-family-caregivers-a-systematic-literature-review
#6
Suzanne Rainsford, Roderick D MacLeod, Nicholas J Glasgow, Christine B Phillips, Robert B Wiles, Donna M Wilson
BACKGROUND: End-of-life care must be relevant to the dying person and their family caregiver regardless of where they live. Rural areas are distinct and need special consideration. Gaining end-of-life care experiences and perspectives of rural patients and their family caregivers is needed to ensure optimal rural care. AIMS: To describe end-of-life care experiences and perspectives of rural patients and their family caregivers, to identify facilitators and barriers to receiving end-of-life care in rural/remote settings and to describe the influence of rural place and culture on end-of-life care experiences...
January 1, 2017: Palliative Medicine
https://www.readbyqxmd.com/read/28094677/costs-of-formal-and-informal-care-in-the-last-year-of-life-for-patients-in-receipt-of-specialist-palliative-care
#7
Aoife Brick, Samantha Smith, Charles Normand, Sinéad O'Hara, Elsa Droog, Ella Tyrrell, Nathan Cunningham, Bridget Johnston
BACKGROUND: Economic evaluation of palliative care has been slow to develop and the evidence base remains small. AIM: This article estimates formal and informal care costs in the last year of life for a sample of patients who received specialist palliative care in three different areas in Ireland. DESIGN: Formal care costs are calculated for community, specialist palliative care, acute hospital and other services. Where possible, a bottom-up approach is used, multiplying service utilisation by unit cost...
January 1, 2017: Palliative Medicine
https://www.readbyqxmd.com/read/28056642/-end-of-life-could-be-on-any-ward-really-a-qualitative-study-of-hospital-volunteers-end-of-life-care-training-needs-and-learning-preferences
#8
Lisa Jane Brighton, Jonathan Koffman, Vicky Robinson, Shaheen A Khan, Rob George, Rachel Burman, Lucy Ellen Selman
BACKGROUND: Over half of all deaths in Europe occur in hospital, a location associated with many complaints. Initiatives to improve inpatient end-of-life care are therefore a priority. In England, over 78,000 volunteers provide a potentially cost-effective resource to hospitals. Many work with people who are dying and their families, yet little is known about their training in end-of-life care. AIMS: To explore hospital volunteers' end-of-life care training needs and learning preferences, and the acceptability of training evaluation methods...
January 1, 2017: Palliative Medicine
https://www.readbyqxmd.com/read/28056634/relating-cause-of-death-with-place-of-care-and-healthcare-costs-in-the-last-year-of-life-for-patients-who-died-from-cancer-chronic-obstructive-pulmonary-disease-heart-failure-and-dementia-a-descriptive-study-using-registry-data
#9
Annicka Gm van der Plas, Mariska G Oosterveld-Vlug, H Roeline W Pasman, Bregje D Onwuteaka-Philipsen
BACKGROUND: The four main diagnostic groups for palliative care provision are cancer, chronic obstructive pulmonary disease, heart failure and dementia. But comparisons of costs and care in the last year of life are mainly directed at cancer versus non-cancer or within cancer patients. AIM: Our aim is to compare the care and expenditures in their last year of life for Dutch patients with cancer, chronic obstructive pulmonary disease, heart failure or dementia. DESIGN: Data from insurance company Achmea (2009-2010) were linked to information on long-term care at home or in an institution, the National Hospital Registration and Causes of Death-Registry from Statistics Netherlands...
January 1, 2017: Palliative Medicine
https://www.readbyqxmd.com/read/28281407/an-economic-view-on-the-current-state-of-the-economics-of-palliative-and-end-of-life-care
#10
Nikki McCaffrey, J Brian Cassel, Joanna Coast
No abstract text is available yet for this article.
April 2017: Palliative Medicine
https://www.readbyqxmd.com/read/28281406/the-contributions-of-family-care-givers-at-end-of-life-a-national-post-bereavement-census-survey-of-cancer-carers-hours-of-care-and-expenditures
#11
Christine Rowland, Barbara Hanratty, Mark Pilling, Bernard van den Berg, Gunn Grande
BACKGROUND: Family members provide vital care at end of life, enabling patients to remain at home. Such informal care contributes significantly to the economy while supporting patients' preferences and government policy. However, the value of care-givers' contributions is often underestimated or overlooked in evaluations. Without information on the activities and expenditures involved in informal care-giving, it is impossible to provide an accurate assessment of carers' contribution to end-of-life care...
April 2017: Palliative Medicine
https://www.readbyqxmd.com/read/28281405/current-state-of-the-economics-of-palliative-and-end-of-life-care-a-clinical-view
#12
Peter May, R Sean Morrison, Fliss Em Murtagh
No abstract text is available yet for this article.
April 2017: Palliative Medicine
https://www.readbyqxmd.com/read/28281404/finding-evidence-about-the-costs-of-palliative-care-caresearch-s-suite-of-search-tools
#13
Sarah Hayman, Jennifer Tieman
No abstract text is available yet for this article.
April 2017: Palliative Medicine
https://www.readbyqxmd.com/read/28190374/the-use-of-quality-adjusted-life-years-in-cost-effectiveness-analyses-in-palliative-care-mapping-the-debate-through-an-integrative-review
#14
Anne B Wichmann, Eddy Mm Adang, Peep Fm Stalmeier, Sinta Kristanti, Lieve Van den Block, Myrra Jfj Vernooij-Dassen, Yvonne Engels
BACKGROUND: In cost-effectiveness analyses in healthcare, Quality-Adjusted Life Years are often used as outcome measure of effectiveness. However, there is an ongoing debate concerning the appropriateness of its use for decision-making in palliative care. AIM: To systematically map pros and cons of using the Quality-Adjusted Life Year to inform decisions on resource allocation among palliative care interventions, as brought forward in the debate, and to discuss the Quality-Adjusted Life Year's value for palliative care...
April 2017: Palliative Medicine
https://www.readbyqxmd.com/read/28156192/cost-analysis-of-a-prospective-multi-site-cohort-study-of-palliative-care-consultation-teams-for-adults-with-advanced-cancer-where-do-cost-savings-come-from
#15
Peter May, Melissa M Garrido, J Brian Cassel, Amy S Kelley, Diane E Meier, Charles Normand, Thomas J Smith, R Sean Morrison
BACKGROUND: Studies report cost-savings from hospital-based palliative care consultation teams compared to usual care only, but drivers of observed differences are unclear. AIM: To analyse cost-differences associated with palliative care consultation teams using two research questions: (Q1) What is the association between early palliative care consultation team intervention, and intensity of services and length of stay, compared to usual care only? (Q2) What is the association between early palliative care consultation team intervention and day-to-day hospital costs, compared to a later intervention? DESIGN: Prospective multi-site cohort study (2007-2011)...
April 2017: Palliative Medicine
https://www.readbyqxmd.com/read/28218008/under-resourced-and-under-developed-family-centred-care-within-palliative-medicine
#16
David W Kissane
No abstract text is available yet for this article.
March 2017: Palliative Medicine
https://www.readbyqxmd.com/read/27495813/understanding-patterns-and-factors-associated-with-place-of-death-in-patients-with-end-stage-kidney-disease-a-retrospective-cohort-study
#17
Natasha Lovell, Chris Jones, Dawn Baynes, Sarah Dinning, Katie Vinen, Fliss Em Murtagh
BACKGROUND: Meeting place-of-death preferences is an important measure of the quality of end-of-life care. Systematic review shows that 42% of end-stage kidney disease patients prefer home death. Little research has been undertaken on place of death. AIM: To understand patterns of place of death in patients with end-stage kidney disease known in one UK renal unit. DESIGN: A retrospective cohort study of all patients with chronic kidney disease stage 4-5, age ⩾75 and known to one UK renal unit, who died between 2006 and 2012...
March 2017: Palliative Medicine
https://www.readbyqxmd.com/read/27492159/what-is-the-evidence-for-conducting-palliative-care-family-meetings-a-systematic-review
#18
Philippa J Cahill, Elizabeth A Lobb, Christine Sanderson, Jane L Phillips
BACKGROUND: Structured family meeting procedures and guidelines suggest that these forums enhance family-patient-team communication in the palliative care inpatient setting. However, the vulnerability of palliative patients and the resources required to implement family meetings in accordance with recommended guidelines make better understanding about the effectiveness of this type of intervention an important priority. Aim and design: This systematic review examines the evidence supporting family meetings as a strategy to address the needs of palliative patients and their families...
March 2017: Palliative Medicine
https://www.readbyqxmd.com/read/27492158/doctors-reports-about-palliative-systemic-treatment-a-medical-record-study
#19
Hilde M Buiting, Mirian Brink, Marleen N Wijnhoven, Martine E Lokker, Lydia Gm van der Geest, Wim E Terpstra, Gabe S Sonke
BACKGROUND: Decisions about palliative systemic treatment are key elements of palliative and end-of-life care. Such decisions must often be made in complex, clinical situations. AIM: To explore the content of medical records of patients with advanced non-small cell lung cancer and pancreatic cancer with specific emphasis on doctors' notes about decisions on palliative systemic treatment. DESIGN: Medical record review (2009-2012) of 147 cancer patients containing 276 notes about palliative systemic treatment...
March 2017: Palliative Medicine
https://www.readbyqxmd.com/read/27484674/parenting-while-living-with-advanced-cancer-a-qualitative-study
#20
Eliza M Park, Devon K Check, Mi-Kyung Song, Katherine E Reeder-Hayes, Laura C Hanson, Justin M Yopp, Donald L Rosenstein, Deborah K Mayer
BACKGROUND: Patients with advanced cancer who have dependent children are an important population with a life-limiting illness and high levels of psychological distress. Few studies have addressed the experience of being a parent with advanced cancer and their potential palliative needs. AIM: To describe the experience of living with advanced cancer as a parent, including illness experience, parental concerns, and treatment decision making and to explore whether these experiences differ by their functional status...
March 2017: Palliative Medicine
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