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Palliative Medicine

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https://www.readbyqxmd.com/read/27884948/enteral-feeding-in-motor-neurone-disease-patients-perspectives-and-impact-on-quality-of-life
#1
LETTER
Suresh Kumar Chhetri, Belinda Fay Bradley, Tahir Majeed, Robert William Lea
No abstract text is available yet for this article.
November 24, 2016: Palliative Medicine
https://www.readbyqxmd.com/read/27881828/-hope-for-the-best-prepare-for-the-worst-a-qualitative-interview-study-on-parents-needs-and-fears-in-pediatric-advance-care-planning
#2
Julia Desiree Lotz, Marion Daxer, Ralf J Jox, Gian Domenico Borasio, Monika Führer
BACKGROUND: Pediatric advance care planning is advocated by healthcare providers because it may increase the chance that patient and/or parent wishes are respected and thus improve end-of-life care. However, since end-of-life decisions for children are particularly difficult and charged with emotions, physicians are often afraid of addressing pediatric advance care planning. AIM: We aimed to investigate parents' views and needs regarding pediatric advance care planning...
November 23, 2016: Palliative Medicine
https://www.readbyqxmd.com/read/27881827/limitations-in-interpreting-assessment-of-depression-in-patients-with-advanced-cancer
#3
LETTER
Elisabeth Brenne
No abstract text is available yet for this article.
November 23, 2016: Palliative Medicine
https://www.readbyqxmd.com/read/27836943/identifying-professionals-needs-in-integrating-electronic-pain-monitoring-in-community-palliative-care-services-an-interview-study
#4
Sally Taylor, Matthew J Allsop, Hilary L Bekker, Michael I Bennett, Bridgette M Bewick
BACKGROUND: Poor pain assessment is a barrier to effective pain control. There is growing interest internationally in the development and implementation of remote monitoring technologies to enhance assessment in cancer and chronic disease contexts. Findings describe the development and testing of pain monitoring systems, but research identifying the needs of health professionals to implement routine monitoring systems within clinical practice is limited. AIM: To inform the development and implementation strategy of an electronic pain monitoring system, PainCheck, by understanding palliative care professionals' needs when integrating PainCheck into routine clinical practice...
November 11, 2016: Palliative Medicine
https://www.readbyqxmd.com/read/27815556/utility-of-the-necpal-ccoms-ico%C3%A2-tool-and-the-surprise-question-as-screening-tools-for-early-palliative-care-and-to-predict-mortality-in-patients-with-advanced-chronic-conditions-a-cohort-study
#5
Xavier Gómez-Batiste, Marisa Martínez-Muñoz, Carles Blay, Jordi Amblàs, Laura Vila, Xavier Costa, Joan Espaulella, Alicia Villanueva, Ramon Oller, Joan Carles Martori, Carles Constante
BACKGROUND: The Surprise Question (SQ) identifies patients with palliative care needs. The NECPAL CCOMS-ICO(©) (NECPAL) tool combines the Surprise Question with additional clinical parameters for a more comprehensive assessment. The capacity of these screening tools to predict mortality is still unknown. AIM: To explore the predictive validity of the NECPAL and SQ to determine 12- to 24-month mortality. DESIGN: Longitudinal, prospective and observational cohort study...
November 4, 2016: Palliative Medicine
https://www.readbyqxmd.com/read/27815555/family-caregivers-conceptualisation-of-quality-end-of-life-care-for-people-with-dementia-a-qualitative-study
#6
Nathan Davies, Greta Rait, Laura Maio, Steve Iliffe
BACKGROUND: People with dementia have been described as the 'disadvantaged dying' with poor end-of-life care. Towards the end of life, people with dementia cannot report on the care they receive. It is therefore important to talk to caregivers; however, few have explored the views about end-of-life care from the caregivers' perspective. The majority of research on family caregivers has focussed on the burden and psychological impact of caring for a relative with dementia. AIM: This study aimed to explore the views of family caregivers about quality end-of-life care for people with dementia...
October 25, 2016: Palliative Medicine
https://www.readbyqxmd.com/read/27777376/issues-using-linkage-of-hospital-records-and-death-certificate-data-to-determine-the-size-of-a-potential-palliative-care-population
#7
Kate Brameld, Katrina Spilsbury, Lorna Rosenwax, Kevin Murray, James Semmens
BACKGROUND: Studies aiming to identify palliative care populations have used data from death certificates and in some cases hospital records. The size and characteristics of the identified populations can show considerable variation depending on the data sources used. It is important that service planners and researchers are aware of this. AIM: To illustrate the differences in the size and characteristics of a potential palliative care population depending on the differential use of linked hospital records and death certificate data...
October 24, 2016: Palliative Medicine
https://www.readbyqxmd.com/read/27707955/palliative-long-term-abdominal-drains-in-refractory-ascites-due-to-end-stage-liver-disease-a-case-series
#8
Lucia Macken, Deepak Joshi, Jenny Messenger, Mark Austin, Jeremy Tibble, Louise Mason, Sumita Verma
BACKGROUND: Ascites, the commonest complication of cirrhosis, leads to frequent hospitalisations. Refractory ascites confers a median survival of 6 months without liver transplantation. In many, the management remains palliative (large-volume paracentesis). Despite calls for improvement, palliative and end-of-life care is not yet integrated into end-stage liver disease. Long-term abdominal drains are a palliative strategy in malignant ascites, but not end-stage liver disease. CASE PRESENTATION: A retrospective, single centre, case series review was performed of patients undergoing long-term abdominal drain placement for refractory ascites secondary to end-stage liver disease at a large teaching hospital between August 2011 and March 2013...
October 5, 2016: Palliative Medicine
https://www.readbyqxmd.com/read/27697830/erratum
#9
(no author information available yet)
Philip J Larkin, Fliss Murtagh, Heather Richardson, Myra Bluebond Langner and Sheila Payne (2016) Collaboration: Securing a future for palliative care research. Palliative Medicine, September 2016 30:8 709-710, doi: 10.1177/0269216316661970.
October 3, 2016: Palliative Medicine
https://www.readbyqxmd.com/read/27683476/palliative-care-for-parkinson-s-disease-patient-and-carer-s-perspectives-explored-through-qualitative-interview
#10
Siobhan Fox, Alison Cashell, W George Kernohan, Marie Lynch, Ciara McGlade, Tony O'Brien, Sean S O'Sullivan, Mary J Foley, Suzanne Timmons
BACKGROUND: Palliative care is recommended for non-malignant illnesses, including Parkinson's disease. However, past research with healthcare workers highlights unmet palliative needs in this population and referral rates to Specialist Palliative Care are low. Some healthcare workers perceive a 'fear' in their patients about introducing palliative care. However, less is known about the views of people with Parkinson's disease and their carers about palliative care. AIM: (1) To explore the palliative care and related issues most affecting people with Parkinson's disease and their families and (2) to examine perceptions about/understanding of palliative care...
September 28, 2016: Palliative Medicine
https://www.readbyqxmd.com/read/27683475/estimating-the-need-for-palliative-care-at-the-population-level-a-cross-national-study-in-12-countries
#11
Lucas Morin, Régis Aubry, Luisa Frova, Roderick MacLeod, Donna M Wilson, Martin Loucka, Agnes Csikos, Miguel Ruiz-Ramos, Marylou Cardenas-Turanzas, YongJoo Rhee, Joan Teno, Joakim Öhlén, Luc Deliens, Dirk Houttekier, Joachim Cohen
BACKGROUND: To implement the appropriate services and develop adequate interventions, detailed estimates of the needs for palliative care in the population are needed. AIM: To estimate the proportion of decedents potentially in need of palliative care across 12 European and non-European countries. DESIGN: This is a cross-sectional study using death certificate data. SETTING/PARTICIPANTS: All adults (⩾18 years) who died in 2008 in Belgium, Czech Republic, France, Hungary, Italy, Spain (Andalusia, 2010), Sweden, Canada, the United States (2007), Korea, Mexico, and New Zealand (N = 4,908,114)...
September 28, 2016: Palliative Medicine
https://www.readbyqxmd.com/read/27670418/what-cost-components-are-relevant-for-economic-evaluations-of-palliative-care-and-what-approaches-are-used-to-measure-these-costs-a-systematic-review
#12
Clare Gardiner, Christine Ingleton, Tony Ryan, Sue Ward, Merryn Gott
BACKGROUND: It is important to understand the costs of palliative and end-of-life care in order to inform decisions regarding cost allocation. However, economic research in palliative care is very limited and little is known about the range and extent of the costs that are involved in palliative care provision. AIM: To undertake a systematic review of the health and social care literature to determine the range of financial costs related to a palliative care approach and explore approaches used to measure these costs...
September 26, 2016: Palliative Medicine
https://www.readbyqxmd.com/read/27670417/-the-horse-has-bolted-i-suspect-a-qualitative-study-of-clinicians-attitudes-and-perceptions-regarding-palliative-rehabilitation
#13
Fiona Runacres, Heidi Gregory, Anna Ugalde
BACKGROUND: Palliative care patients have numerous rehabilitation needs that increase with disease progression. Palliative rehabilitation practices and perceptions of palliative medicine physicians towards the role of rehabilitation are largely unstudied. AIM: To explore palliative medicine physicians' attitudes and perceptions towards rehabilitation delivered within inpatient palliative care units. DESIGN: Qualitative study utilizing semi-structured interviews...
September 26, 2016: Palliative Medicine
https://www.readbyqxmd.com/read/27670416/-it-s-not-all-just-about-the-dying-kaum%C3%A4-tua-m%C3%A4-ori-attitudes-towards-physician-aid-in-dying-a-narrative-enquiry
#14
Phillipa J Malpas, Anneka Anderson, Pio Jacobs, Takawai Jacobs, Danielle Luinstra, Dolly Paul, Jim Rauwhero, Julie Wade, David Wharemate
AIM: To explore kaumātua attitudes towards physician aid-in dying, to gain a clear understanding of how such attitudes may influence and shape their expectations of medical care at the end of life and to assist health professionals in Aotearoa/New Zealand to address the healthcare needs of older Māori near the end of life. DESIGN: A kaupapa Māori consistent approach was undertaken. A systematic narrative technique was employed for the qualitative data analysis...
September 26, 2016: Palliative Medicine
https://www.readbyqxmd.com/read/27864503/thanks-to-referees
#15
(no author information available yet)
No abstract text is available yet for this article.
December 2016: Palliative Medicine
https://www.readbyqxmd.com/read/27864502/call-for-papers
#16
(no author information available yet)
No abstract text is available yet for this article.
December 2016: Palliative Medicine
https://www.readbyqxmd.com/read/27864501/editorial-for-palliative-medicine
#17
EDITORIAL
Julia Downing
No abstract text is available yet for this article.
December 2016: Palliative Medicine
https://www.readbyqxmd.com/read/27247087/health-related-quality-of-life-outcome-measures-in-paediatric-palliative-care-a-systematic-review-of-psychometric-properties-and-feasibility-of-use
#18
REVIEW
Lucy H Coombes, Theresa Wiseman, Grace Lucas, Amrit Sangha, Fliss Em Murtagh
BACKGROUND: The number of children worldwide requiring palliative care services is increasing due to advances in medical care and technology. The use of outcome measures is important to improve the quality and effectiveness of care. AIM: To systematically identify health-related quality-of-life outcome measures that could be used in paediatric palliative care and examine their feasibility of use and psychometric properties. DESIGN: A systematic literature review and analysis of psychometric properties...
December 2016: Palliative Medicine
https://www.readbyqxmd.com/read/27178539/a-call-for-increased-paediatric-palliative-care-research-identifying-barriers
#19
LETTER
Emma Beecham, Briony F Hudson, Linda Oostendorp, Bridget Candy, Louise Jones, Vickey Vickerstaff, Monica Lakhanpaul, Paddy Stone, Lizzie Chambers, Doug Hall, Kate Hall, Thines Ganeshamoorthy, Margaret Comac, Myra Bluebond-Langner
No abstract text is available yet for this article.
December 2016: Palliative Medicine
https://www.readbyqxmd.com/read/27160700/current-understanding-of-decision-making-in-adolescents-with-cancer-a-narrative-systematic-review
#20
REVIEW
Emma Day, Louise Jones, Richard Langner, Myra Bluebond-Langner
BACKGROUND: Policy guidance and bioethical literature urge the involvement of adolescents in decisions about their healthcare. It is uncertain how roles and expectations of adolescents, parents and healthcare professionals influence decision-making and to what extent this is considered in guidance. AIMS: To identify recent empirical research on decision-making regarding care and treatment in adolescent cancer: (1) to synthesise evidence to define the role of adolescents, parents and healthcare professionals in the decision-making process and (2) to identify gaps in research...
December 2016: Palliative Medicine
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