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Journal of Palliative Medicine

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https://www.readbyqxmd.com/read/30418094/empower-seriously-ill-older-adults-to-formulate-their-goals-for-medical-care-in-the-emergency-department
#1
Kei Ouchi, Naomi George, Anna C Revette, Mohammad Adrian Hasdianda, Lauren Fellion, Audrey Reust, Lynda H Powell, Rebecca Sudore, Jeremiah D Schuur, Mara A Schonberg, Edward Bernstein, James A Tulsky, Susan D Block
BACKGROUND: Most seriously ill older adults visit the emergency department (ED) near the end of life, yet no feasible method exists to empower them to formulate their care goals in this setting. OBJECTIVE: To develop an intervention to empower seriously ill older adults to formulate their future care goals in the ED. DESIGN: Prospective intervention development study. SETTING: In a single, urban, academic ED, we refined the prototype intervention with ED clinicians and patient advisors...
November 12, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/30412446/beyond-right-or-wrong-attitudes-and-practices-of-physicians-nurses-psychologists-and-social-workers-regarding-attendance-at-patient-funerals
#2
Sofia C Zambrano, Anna Chur-Hansen, Gregory B Crawford
BACKGROUND: Health professionals' bereavement practices, including funeral attendance, have attracted relatively little attention from researchers. There may be a number of motivations and perceived benefits for health professionals to attend patient funerals. There are no published data comparing different groups of health professionals' perceptions of and practices in attending the funerals of their patients. OBJECTIVE: To understand the attitudes and practices of health professionals toward attendance at patient funerals...
November 9, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/30412005/what-psilocybin-taught-me-about-dying
#3
Anthony L Back
No abstract text is available yet for this article.
November 9, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/30411996/perceptions-of-reducing-tube-feeding-for-persons-with-advanced-dementia-among-various-professions-in-a-teaching-hospital
#4
Pey-Rong Chen, Sheng-Jean Huang, Lih-Chu Tien, Chien-Liang Liu, Yong-Pei Lin, Hui-Ping Chang, Yueh-Chuan Jao
BACKGROUND: Even though no evidence suggests tube feeding is beneficial for individuals with advanced dementia, many are still tube fed. OBJECTIVE: To assess perceptions of hospital staff regarding reducing tube feeding (RTF) of patients with advanced dementia. DESIGN: Cross-sectional survey. SETTING: A regional teaching hospital in Taipei, Taiwan. SUBJECTS: Hospital staff (n = 624), including physicians, nurses, dieticians, paramedical personnel, social workers, volunteers, attendants, and administrators...
November 9, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/30407108/the-experience-of-being-aware-of-disease-status-in-women-with-recurrent-ovarian-cancer-a-phenomenological-study
#5
Catherine Scott Finlayson, Mei R Fu, Allison Squires, Allison Applebaum, Janet Van Cleave, Roisin O'Cearbhaill, Antonio P DeRosa
BACKGROUND: Awareness of disease status has been identified as a factor in the treatment decision-making process. Women with recurrent ovarian cancer are facing the challenge of making treatment decisions throughout the disease trajectory. It is not understood how women with ovarian cancer perceive their disease and subsequently make treatment decisions. PURPOSE: The purpose of this phenomenological study was to understand the lived experience of women with recurrent ovarian cancer, how they understood their disease and made their treatment decisions...
November 8, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/30403556/providers-perspectives-on-palliative-care-in-a-neuromedicine-intensive-care-unit-end-of-life-expertise-and-barriers-to-referral
#6
Susan Bluck, Emily L Mroz, Jacqueline Baron-Lee
OBJECTIVE: This study identifies health care providers' perspectives on palliative care at end of life (EOL) in a neuromedicine-intensive care unit (Neuro-ICU) and barriers to providing palliative care. BACKGROUND: Provider's EOL expertise is crucial in making timely referrals to palliative care as expectation of patient death can be high. Barriers to referral need to be clearly identified so as to engage quality initiatives that improve EOL care delivery. DESIGN AND PARTICIPANTS: The study is a survey design using a mixed-methods approach...
November 7, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/30403554/cohabitation-status-influenced-admittance-to-specialized-palliative-care-for-cancer-patients-a-nationwide-study-from-the-danish-palliative-care-database
#7
Mathilde Adsersen, Lau Caspar Thygesen, Mette Asbjoern Neergaard, Anders Bonde Jensen, Per Sjøgren, Anette Damkier, Lars Michael Clausen, Mogens Groenvold
BACKGROUND: The utilization of the health care system varies in relation to cohabitation status, but conflicting results have been found in studies investigating the association in relation to specialized palliative care (SPC). OBJECTIVE: To investigate the association between cohabitation status and admittance to SPC; to establish whether this association differed between hospital-based palliative care team/units (mainly outpatient/home care) and hospice (mainly inpatient care)...
November 7, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/30383467/development-and-validation-of-a-prognostic-tool-for-identifying-residents-at-increased-risk-of-death-in-long-term-care-facilities
#8
Hao Luo, Vivian W Q Lou, Yuekang Li, Iris Chi
BACKGROUND: To promote better care at the end stage of life in long-term care facilities, a culturally appropriate tool for identifying residents at the end of life is crucial. OBJECTIVE: This study aimed to develop and validate a prognostic tool, the increased risk of death (IRD) scale, based on the minimum data set (MDS). DESIGN: A retrospective study using data between 2005 and 2013 from six nursing homes in Hong Kong. SETTING/SUBJECTS: A total of 2380 individuals were randomly divided into two equal-sized subsamples: Sample 1 was used for the development of the IRD scale and Sample 2 for validation...
November 7, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/30394831/does-end-of-life-care-differ-for-anglophones-and-francophones-a-retrospective-cohort-study-of-decedents-in-ontario-canada
#9
Eva Guérin, Ricardo Batista, Amy T Hsu, Valérie Gratton, Mathieu Chalifoux, Denis Prud'homme, Peter Tanuseputro
BACKGROUND: Approximately half of decedents in Ontario, Canada, receive some palliative care, but little is known about the influence of language on the nature of these services. OBJECTIVE: To examine differences between English- and French-speaking residents of Ontario in end-of-life care and outcomes (e.g., health care costs and location of death). DESIGN: A retrospective cohort study using multiple linked databases. SETTING/SUBJECTS: A population-based cohort of decedents in Ontario (2010-2013) who were living in long-term care institutions (i...
November 3, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/30394821/assessing-the-impact-of-a-novel-integrated-palliative-care-and-medical-oncology-inpatient-service-on-health-care-utilization-before-hospice-enrollment
#10
Emily M Ray, Richard F Riedel, Thomas W LeBlanc, Christel N Rushing, Anthony N Galanos
BACKGROUND: Evidence increasingly supports the integration of specialist palliative care (PC) into routine cancer care. A novel, fully integrated PC and medical oncology inpatient service was developed at Duke University Hospital in 2011. OBJECTIVE: To assess the impact of PC integration on health care utilization among hospitalized cancer patients before hospice enrollment. METHODS: Retrospective cohort study. Patients in the solid tumor inpatient unit who were discharged to hospice between September 1, 2009, and June 30, 2010 (pre-PC integration), and September 1, 2011, to June 30, 2012 (postintegration)...
November 3, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/30388063/lasting-legacy-maternal-perspectives-of-perinatal-palliative-care
#11
Heidi J Kamrath, Erin Osterholm, Rachael Stover-Haney, Thomas George, Susan O'Connor-Von, Jennifer Needle
BACKGROUND: Many of the leading causes of infant mortality are diagnosed prenatally, presenting providers with the ability to present perinatal palliative care planning as an option. OBJECTIVE: Our study adds to the literature both by describing infant interaction with the health care system and by gaining deeper understanding of the maternal experience after being offered perinatal palliative care. METHODS: The study was conducted at a public university-based medical center in the Midwest...
November 2, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/30388060/stakeholder-perspectives-on-the-use-of-community-health-workers-to-improve-palliative-care-use-by-african-americans-with-cancer
#12
Fabian M Johnston, Joseph H Neiman, Lauren E Parmley, Alison Conca-Cheng, Karen M Freund, Thomas W Concannon, Thomas J Smith, Lisa A Cooper
BACKGROUND: African Americans in the United States have worse end-of-life care and cancer outcomes than whites. Palliative care may improve this disparity. Community Health Workers may provide a means to improve palliative care disparities. METHODS: Semistructured in-depth interviews (five) and stakeholder focus groups (four) were conducted with cancer patients, caregivers, health care administrators, oncologists, and community health workers (CHWs). Patients were recruited through snowball sampling...
November 2, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/30388057/comparing-health-care-provider-perceived-barriers-to-pediatric-palliative-care-fifteen-years-ago-and-today
#13
Jori F Bogetz, Maggie C Root, Lisa Purser, Christy Torkildson
OBJECTIVE: This study examines health care provider perspectives about barriers to pediatric palliative care for seriously ill children 15 years after an initial study within the same academic health system. METHODS: Anonymous validated surveys were sent electronically to inpatient nursing unit distribution lists (n = 1315). Reminders were sent through e-mail twice over a two-month data collection period. RESULTS: Response rate was 20...
November 2, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/30388050/breaking-barriers-prospective-study-of-a-cohort-of-advanced-chronic-obstructive-pulmonary-disease-patients-to-describe-their-survival-and-end-of-life-palliative-care-requirements
#14
Daniel Gainza-Miranda, Eva Maria Sanz-Peces, Alberto Alonso-Babarro, María Varela-Cerdeira, Concepción Prados-Sánchez, Guadalupe Vega-Aleman, Ricardo Rodriguez-Barrientos, Elena Polentinos-Castro
BACKGROUND AND AIM: Consensus has been reached on the need to integrate palliative care in the follow-up examinations of chronic obstructive pulmonary disease (COPD) patients. We analyzed the survival from the initiation of follow-up by a palliative home care team (PHCT) and described the needs and end-of-life process. SETTING AND DESIGN: This study was a prospective observational cohort study of advanced COPD patients referred to a PHCT. Sociodemographic variables, survival from the start date of follow-up using the Kaplan-Meier model, health resource consumption, perceived quality of life, main symptomatology, opioid use, and advanced care planning (ACP) were analyzed...
November 2, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/30383470/a-retrospective-analysis-of-pain-burden-in-hospitalized-young-adult-cancer-patients-compared-with-their-older-adult-counterpart
#15
Shannon M Devlin, James D Murphy, Heidi N Yeung
CONTEXT: Research shows an increased symptom burden in young adult (YA) cancer patients compared with their older adult counterpart. OBJECTIVES: The purpose of this study was to identify differences in clinical characteristics and related outcomes between YA and older adult cancer patients admitted for cancer-related pain. MATERIALS AND METHODS: We retrospectively identified 190 hospitalized patients in a single academic center with admissions for cancer-related pain...
November 1, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/30383468/facilitators-and-barriers-to-interdisciplinary-communication-between-providers-in-primary-care-and-palliative-care
#16
Nancy Dudley, Christine S Ritchie, Roberta S Rehm, Susan A Chapman, Margaret I Wallhagen
BACKGROUND: Community-based palliative care (CBPC) plays an integral role in addressing the complex care needs of older adults with serious chronic illnesses, but is premised on effective communication and collaboration between primary care providers (PCPs) and the providers of specialty palliative care (SPC). Optimal strategies to achieve the goal of coordinated care are ill-defined. OBJECTIVE: The objective of this study was to understand the facilitators and barriers to optimal, coordinated interdisciplinary provision of CBPC...
November 1, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/30376403/resurgence-of-eating-disorders-with-olanzapine
#17
Kelly L Wu, Amanda K Lorenz, Kelly J Christensen, Molly A Feely, Elise C Carey, Jacob J Strand
BACKGROUND: Olanzapine is commonly utilized in palliative care for the treatment of nausea, and a known side effect of olanzapine is increased appetite. Olanzapine is also known to cause re-emergence of eating disorders (EDs) in patients utilizing olanzapine for its antipsychotic effects. It is unclear to what extent this may also occur in patients with serious/life-limiting illness. METHODS AND RESULTS: We present a case of a 70-year-old female with recurrent ovarian cancer and a history of bulimia nervosa (BN) that developed resurgence of her BN after initiation of olanzapine for cancer-associated nausea...
October 27, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/30359204/communication-differences-between-oncologists-and-palliative-care-clinicians-a-qualitative-analysis-of-early-integrated-palliative-care-in-patients-with-advanced-cancer
#18
Teresa Hagan Thomas, Vicki A Jackson, Heather Carlson, Simone Rinaldi, Angela Sousa, Andrea Hansen, Mihir Kamdar, Juliet Jacobsen, Elyse R Park, William F Pirl, Jennifer S Temel, Joseph A Greer
BACKGROUND: Growing evidence demonstrates the benefits of early, integrated palliative care (PC) for patients with advanced cancer and their caregivers. Yet, data are lacking on the communication patterns within this model of care. OBJECTIVE: The goals of this study were to describe the content of patient-clinician discussions among patients receiving PC and to compare differences in discussion content between oncologists and PC clinicians. DESIGN: We conducted a qualitative observational analysis...
October 25, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/30359202/the-association-between-patient-characteristics-and-opioid-treatment-response-in-neuropathic-and-nociceptive-pain-due-to-cancer
#19
Johan Haumann, Sander M J van Kuijk, Elbert A Joosten, Marieke H J van den Beuken-van Everdingen
BACKGROUND: Cancer pain remains a difficult problem, for which opioids are often necessary. At present it is difficult to predict the effectiveness of opioid therapy. OBJECTIVES: We aim to assess the association between patient characteristics and opioid treatment response in cancer patients, and develop a model to predict probability of response. SUBJECTS: We used data from two previously published randomized clinical trials, in which patients with head and neck cancer were treated with fentanyl or methadone (total N = 134)...
October 25, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/30335569/advance-care-planning-experiences-and-preferences-among-people-with-cystic-fibrosis
#20
Rachel W Linnemann, Deborah Friedman, Lily L Altstein, Suhayla Islam, Kieu-Tram Bach, Anna M Georgiopoulos, Samuel M Moskowitz, Lael M Yonker
BACKGROUND: Advance care planning (ACP) is recommended for people with cystic fibrosis (CF), yet guidance for optimal implementation is lacking. OBJECTIVE: To assess ACP-related thoughts, comfort level, and preferences among people with CF to guide evidence-based routine implementation of ACP in the CF clinic. DESIGN: A cross-sectional survey assessed ACP-related experiences and preferences. SUBJECTS: Thirty-eight adolescents and adults with CF from an urban CF center...
October 18, 2018: Journal of Palliative Medicine
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