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Family Practice

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https://www.readbyqxmd.com/read/28633339/will-electronic-health-record-data-become-the-standard-resource-for-clinical-research
#1
Jeffrey F Scherrer, Wilson D Pace
No abstract text is available yet for this article.
June 14, 2017: Family Practice
https://www.readbyqxmd.com/read/28586437/psychological-issues-and-cognitive-impairment-in-adults-with-familial-hypercholesterolemia
#2
Mariana Suárez Bagnasco
A literature review about depression, anxiety, illness perception and neurocognitive impairment in adults with familial hypercholesterolemia (FH) was performed. Through PubMed and PsycINFO published studies from 1980 until March 2017 were searched. Two papers assessed depression and anxiety. Four papers explored illness perception. Five studies assessed cognitive impairment. Mean depression and anxiety scores were within normal range. From the reviewed research, it can be concluded that deficits in executive functioning and memory appear in FH patients between 18 and 40 years old, and mild cognitive impairment in older than 50...
June 6, 2017: Family Practice
https://www.readbyqxmd.com/read/28586417/development-and-validation-study-of-a-non-alcoholic-fatty-liver-disease-risk-scoring-model-among-adults-in-china
#3
Qian Zhang, Carlos K H Wong, Kenny Kung, Joseph C Y Chan, Barre T W Sy, Marcus Lam, Xiang Gui Xu, Meng Feng Yang, Yang Yu, Xiu Ping Lin, Cindy L K Lam
Background.: Non-alcoholic fatty liver disease (NAFLD) is one of the most common liver diseases in China. It is usually asymptomatic and transabdominal ultrasound (USS) is the usual means for diagnosis, but it may not be feasible to have USS screening of the whole population. Objective.: To develop a risk scoring model for predicting the presence of NAFLD using parameters that can be easily obtain in clinical settings. Methods.: A retrospective study on the data of 672 adults who had general health check including a transabdominal ultrasound...
June 6, 2017: Family Practice
https://www.readbyqxmd.com/read/28586411/incidence-and-treatment-of-heavy-menstrual-bleeding-in-general-practice
#4
Marian J van den Brink, Anne Linde Saaltink, Feikje Groenhof, Boudewijn J Kollen, Marjolein Y Berger, Yvonne Lisman-van Leeuwen, Janny H Dekker
Background.: Heavy menstrual bleeding (HMB) is a common problem in women of reproductive age. In 2008, the Dutch guideline for general practitioners (GPs) was revised to recommend the levonorgestrel intrauterine system (LNG-IUS) as a first-choice treatment for HMB. However, GP prescribing practices have not been studied in depth. Objectives.: To investigate the incidence and initial treatment of HMB in general practice, and to identify if there were changes in prescribing practices after the revision of the national guideline in 2008...
June 6, 2017: Family Practice
https://www.readbyqxmd.com/read/28575275/erratum
#5
(no author information available yet)
No abstract text is available yet for this article.
June 2, 2017: Family Practice
https://www.readbyqxmd.com/read/28525925/quandaries-in-patient-and-community-engagement-in-research
#6
John M Westfall, Linda K Zittleman
No abstract text is available yet for this article.
June 1, 2017: Family Practice
https://www.readbyqxmd.com/read/28525924/institutional-review-board-training-when-patients-and-community-members-are-engaged-as-researchers
#7
John M Westfall, Linda Zittleman, Maret Felzien, Marc Ringel, Alison Lakin, Don Nease
Background.: Patient engagement efforts often rely on a participatory research approach, which means engaging patients and community members in all aspects of research. As research team members, they require familiarity with the principles of human subject protection, privacy, and institutional review boards (IRB). However, the time required for individual IRB training may be a barrier to engaging community members in participatory research. As more community members participated in research, the State Networks of Colorado Practices and Partners (SNOCAP) was faced with finding a balance between including community members as part of the research team and the significant time commitment and institutional requirements for human subjects research oversight...
June 1, 2017: Family Practice
https://www.readbyqxmd.com/read/28407144/the-north-american-primary-care-research-group-s-patient-and-clinician-engagement-program-pace-demystifying-patient-engagement-through-a-dyad-model
#8
Jessica Sand, Maret Felzien, Ray Haeme, Hazel Tapp, Diane Derkowski, John M Westfall
Background.: Community engagement in research is essential for translating the best evidence into community and clinical practice to improve the health and well-being of the population. Objective.: North American Primary Care Research Group's Patient and Clinician Engagement Program (PaCE) program aims to develop a robust community of patients and primary care providers with knowledge and understanding of the unique features of patient-centred outcomes research related to primary care in order to advocate for and engage in research...
June 1, 2017: Family Practice
https://www.readbyqxmd.com/read/28407068/a-successful-model-for-longitudinal-community-engaged-health-research-the-2040-partners-for-health-student-program
#9
Romany M Redman, Magdalena C Reinsvold, Anireddy Reddy, Paige E Bennett, Janine M Hoerauf, Kristina M Puls, Alida R Ovrutsky, Alexandra R Ly, Gregory White, Owetta McNeil, Janet J Meredith
Introduction.: Community-based participatory research [CBPR] is an emerging approach to collaborative research aimed at creating locally effective and sustainable interventions. The 2040 Partners for Health student program was developed as a unique model of longitudinal CBPR. Analysis of this program and its components illuminates both the challenges and the opportunities inherent in community engagement. Methods.: The program rests on a foundation of a community-based, non-profit organization and a supportive academic university centre...
June 1, 2017: Family Practice
https://www.readbyqxmd.com/read/28387794/engaging-african-american-women-in-research-an-approach-to-eliminate-health-disparities-in-the-african-american-community
#10
Joedrecka S Brown Speights, Alexandra C H Nowakowski, Jessica De Leon, M Miaisha Mitchell, Ivana Simpson
Objective: To explore the success of community-based participatory research [CBPR] in engaging African American women to achieve health equity by elucidating community, trust, communication and impact. Recommendations helpful for researchers interested in engaging communities to achieve health equity in the USA are included. Inroduction: African American women experience health disparities of multifactorial etiology and are underrepresented in research. CBPR is a collaborative approach that incorporates perspectives, which address the intricate determinants of health and has been reported as an effective means to address health disparities...
June 1, 2017: Family Practice
https://www.readbyqxmd.com/read/28334802/engagement-strategies-that-foster-community-self-determination-in-participatory-research-insider-ownership-through-outsider-championship
#11
Jon Salsberg, Soultana Macridis, Enrique Garcia Bengoechea, Ann C Macaulay, Spencer Moore
Background.: In order to maximize the benefits of community-based participatory research, effective ownership over the research process must be at least equally in the hands of the community. A previous social network analysis documented that the participatory research process shifted ownership from academic to community partners, but did not show what actions and strategies fostered this shift. Objectives.: This study follows the trajectory of a community-academic partnership and asks, from the perspective of the project stakeholders, which actions and strategies over the lifespan of the research led to the observed shift in ownership and decision-making from the original external academics to the community stakeholders? Methods...
June 1, 2017: Family Practice
https://www.readbyqxmd.com/read/28334786/lessons-learned-from-community-based-participatory-research-establishing-a-partnership-to-support-lesbian-gay-bisexual-and-transgender-ageing-in-place
#12
Leslie A Wright, Diane K King, Jessica H Retrum, Kenneth Helander, Shari Wilkins, Jennifer M Boggs, Jennifer Dickman Portz, Kathryn Nearing, Wendolyn S Gozansky
Background.: Due to a history of oppression and lack of culturally competent services, lesbian, gay, bisexual and transgender (LGBT) seniors experience barriers to accessing social services. Tailoring an evidence-based ageing in place intervention to address the unique needs of LGBT seniors may decrease the isolation often faced by this population. Objective.: To describe practices used in the formation of a community-based participatory research (CBPR), partnership involving social workers, health services providers, researchers and community members who engaged to establish a LGBT ageing in place model called Seniors Using Supports To Age In Neighborhoods (SUSTAIN)...
June 1, 2017: Family Practice
https://www.readbyqxmd.com/read/28334775/early-assessment-of-the-10-step-patient-engagement-framework-for-patient-centred-outcomes-research-studies-the-first-three-steps
#13
Yewande Sofolahan-Oladeinde, Robin P Newhouse, Danielle C Lavallee, Jennifer C Huang, C Daniel Mullins
Background.: A key principle of patient-centred outcomes research (PCOR) is the engagement of patients and other stakeholders in the research process, but the evidence is still emerging on the impact patient engagement has on the research process. A 10-step framework has been developed to provide methodological guidance for patient engagement throughout the research process. However, the utility of the framework for patient engagement has not been tested in actual research studies. Objective...
June 1, 2017: Family Practice
https://www.readbyqxmd.com/read/28334748/the-shifting-dynamics-of-social-roles-and-project-ownership-over-the-lifecycle-of-a-community-based-participatory-research-project
#14
Jon Salsberg, Soultana Macridis, Enrique Garcia Bengoechea, Ann C Macaulay, Spencer Moore
Background: . Community based participatory research (CBPR) is often initiated by academic researchers, yet relies on meaningful community engagement and ownership to have lasting impact. Little is understood about how ownership shifts from academic to community partners. Objectives: . We examined a CBPR project over its life course and asked: what does the evolution of ownership look like from project initiation by an academic (non-community) champion (T1); to maturation-when the intervention is ready to be deployed (T2); to independence-the time when the original champion steps aside (T3); and finally, to its maintenance-when the community has had an opportunity to function independently of the original academic champion (T4)? Methods: ...
June 1, 2017: Family Practice
https://www.readbyqxmd.com/read/28158524/reconciling-research-and-community-priorities-in-participatory-trials-application-to-padres-informados-jovenes-preparados
#15
Michele L Allen, Diego Garcia-Huidobro, Tiana Bastian, G Ali Hurtado, Roxana Linares, María Veronica Svetaz
Background.: Participatory research (PR) trials aim to achieve the dual, and at times competing, demands of producing an intervention and research process that address community perspectives and priorities, while establishing intervention effectiveness. Objective.: To identify research and community priorities that must be reconciled in the areas of collaborative processes, study design and aim and study implementation quality in order to successfully conduct a participatory trial...
June 1, 2017: Family Practice
https://www.readbyqxmd.com/read/28122848/developing-a-patient-and-family-research-advisory-panel-to-include-people-with-significant-disease-multimorbidity-and-advanced-age
#16
Laura B Portalupi, Carmen L Lewis, Carl D Miller, Kerry L Whiteman-Jones, Kay A Sather, Donald E Nease, Daniel D Matlock
Background.: People who have experienced illness due to significant disease, multimorbidity and/or advanced age are high utilizers of the health care system. Yet this population has had little formal opportunity to participate in guiding the health care research agenda, and few mechanisms exist for researchers to engage this population in an efficient way. Objective.: We describe the process of developing a standing patient and family advisory panel to incorporate this population's voice into research in the USA...
June 1, 2017: Family Practice
https://www.readbyqxmd.com/read/28122843/patient-centred-outcomes-research-brave-new-world-meets-old-institutional-policies
#17
Jessica S Chung, Henry N Young, Megan A Moreno, Harald Kliems, Elizabeth D Cox
Background.: Engaging patients across the research trajectory supports research that is generalizable, high quality, timely and actionable. However, this approach comes with challenges and opportunities as investigators and engaged patient stakeholders encounter institutional policies around patient engagement, privacy and research participant protection. Objective.: To describe the resolution and impact of quandaries arising when patient stakeholders' values and preferences conflicted with institutional policies...
June 1, 2017: Family Practice
https://www.readbyqxmd.com/read/28043961/stakeholder-engagement-in-diabetes-self-management-patient-preference-for-peer-support-and-other-insights
#18
Bethany M Kwan, Bonnie Jortberg, Meredith K Warman, Ilima Kane, Robyn Wearner, Romona Koren, Thomas Carrigan, Vincent Martinez, Donald E Nease
Background.: Self-management support (SMS) for patients with diabetes can improve adherence to treatment, mitigate disease-related distress, and improve health outcomes. Translating this evidence into real-world practice is needed, as it is not clear which SMS models are acceptable to patients, and feasible and sustainable for primary care practices. Objective.: To use the Boot Camp Translation (BCT) method to engage patient, practice, community resource and research stakeholders in translation of evidence about SMS and diabetes distress into mutually acceptable care models and to inform patient-centred outcomes research (PCOR)...
June 1, 2017: Family Practice
https://www.readbyqxmd.com/read/28034918/patient-perspectives-on-engagement-in-shared-decision-making-for-asthma-care
#19
Hazel Tapp, Diane Derkowski, Melissa Calvert, Madelyn Welch, Sara Spencer
Introduction.: Engagement of patient and advocacy group stakeholders is increasingly considered essential to meaningful outcomes research. Patient-centred research benefits from partnership formation between patients, clinicians and research team members. Here, we describe the rationale for engaging patients on a research team and a case study of patient engagement on an asthma shared decision-making study. Methods.: Here, we describe a case study of patient engagement in outcomes research and examine the variety of roles patients are engaged in and the associated impact on the study...
June 1, 2017: Family Practice
https://www.readbyqxmd.com/read/28034916/engaging-patients-in-primary-care-practice-transformation-theory-evidence-and-practice
#20
Anjana E Sharma, Kevin Grumbach
Patient engagement is a fundamental strategy for achieving patient centred care and is receiving increasing attention in primary care reform efforts such as the patient-centred medical home and related care models. Much of the prior published theory and evidence supporting patient engagement has focused on improving engagement in individual care. Much less is understood about engaging patients as partners in practice improvement at the primary care clinic or practice level. We review the historical and policy context for the growing interest in the USA and UK in patient engagement at the primary care practice level, highlight findings from systematic reviews of the research evidence on practice-level patient engagement and discuss practical considerations for implementing patient engagement...
June 1, 2017: Family Practice
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20111
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