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Disability and Rehabilitation

Winke Pont, Iris Groeneveld, Henk Arwert, Jorit Meesters, Radha Rambaran Mishre, Thea Vliet Vlieland, Paulien Goossens
INTRODUCTION AND AIM: Many caregivers of stroke patients experience a high burden. This study aims to describe the course of burden in individual caregivers in the first year after stroke. METHODS: This study is part of the Stroke Cohort Outcomes of REhabilitation study, a multicentre, longitudinal cohort study including consecutive stroke patients admitted to two rehabilitation facilities. Caregivers were asked to complete the Caregiver Strain Index and questions on their sociodemographic characteristics 6 and 12 months post admission...
September 20, 2018: Disability and Rehabilitation
Alexia Charpentier, Sally Morgan, Celia Harding
PURPOSE: Many children with complex needs exhibit eating, drinking, and/or swallowing disorders (dysphagia). These children often have associated learning needs, and require assistance from carers for daily tasks such as eating and drinking. The aim of this study was to identify which strategies to manage dysphagia were challenging for family carers, and reasons for any non-adherence. METHOD: In this service evaluation researchers observed carers during mealtimes, and investigated carer opinions of strategies used to minimise the risks of dysphagia...
September 17, 2018: Disability and Rehabilitation
Sevgi Sevi Yeşilyaprak, Seher Özyürek, Murat Tomruk, Nursen İlçin, Didem Karadibak, Pembe Keskinoğlu, Sema Savcı
PURPOSE: Our aim was to cross culturally adapt the MedRisk instrument for measuring patient satisfaction with physical therapy care for Turkish-speaking inpatients, provide information about its measurement properties, and determine the socio-demographic factors influencing satisfaction of Turkish patients. METHOD: This was a cross-sectional, measurement-focused study. The MedRisk instrument for measuring patient satisfaction was translated and adapted into Turkish...
September 6, 2018: Disability and Rehabilitation
Julie Pryor, Sandra Lever
AIM: The purpose of this study was to provide insights into the nature of female sexuality from the perspective of one group of women following a stroke. METHOD: Nine female stroke survivors from metropolitan and surrounding districts of Sydney, Australia participated in face to face semi-structured interviews about sexuality after stroke. The age of stroke survivors ranged from 31 to 70 years. The majority of females identified as heterosexual (n = 8). Length of time between stroke and interview ranged from 1 year, 2 months to 15 years, 9 months...
September 6, 2018: Disability and Rehabilitation
Romi Haas, Lisa O'Brien, Kelly-Ann Bowles, Terry Haines
PURPOSE: To describe health professionals' perceptions of the role of allied health during the acute phase following elective lower limb joint replacement surgery to inform the development of efficient allied health service models. METHODS: This was a qualitative descriptive study conducted using semi-structured focus groups and thematic analysis. Participants were 25 medical, nursing, and allied health professionals working on two orthopaedic wards in a tertiary hospital in Victoria, Australia...
September 5, 2018: Disability and Rehabilitation
Fatima Fanna Mairami, Narelle Warren, Pascale A Allotey, Jun Shin Mak, Daniel D Reidpath
PURPOSE: Stroke is an abrupt event that often leaves survivors with long term disabilities, causing role changes, and financial strains on households. The profound impact of stroke on survivors may lead to a decline in quality of life due to the physical, psychological, and social difficulties they experience. Taking Malaysia as an example, this study aimed to explore the impact of stroke on survivors and how health services influence their recovery in low and middle-income countries (LMIC)...
September 5, 2018: Disability and Rehabilitation
Tuuli Pitkänen, Jonna M Levola, Javier de la Fuente, Maria Cabello
PURPOSE: Improvements in overall functioning and well-being are important goals in the treatment of substance use disorders. The aim of the current study was to evaluate the usefulness of the PARADISE24 instrument for studying the scope and severity of psychosocial difficulties by comparing the results with other measures in the context of substance use disorders. MATERIALS AND METHODS: This cross-sectional study included two independent inpatient samples. The first sample consisted of 80 interviews including the PARADISE24 and 10 other measures...
September 5, 2018: Disability and Rehabilitation
R Lee Kirby, Sonja de Groot, Rachel E Cowan
PURPOSE: Although both wheelchair skills and fitness are important and probably inter-related, the extent and nature of the relationship between them are not well understood. The objective of this study was to test the hypothesis that there are significant relationships between wheelchair skills scores and the peak exercise capacity of community-dwelling manual wheelchair users with spinal cord injury. MATERIALS AND METHODS: We studied 26 participants, recording Wheelchair Skills Test Questionnaire scores and peak power output from graded aerobic wheelchair exercise testing on a motorized treadmill...
September 5, 2018: Disability and Rehabilitation
Priscilla G Wittkopf, Donna M Lloyd, Mark I Johnson
PURPOSE: The aim of this systematic review was to assess the effect of virtual representation of body parts on pain perception in patients with pain and in pain-free participants exposed to experimentally induced pain. METHODS: Databases searched: Medline, PsycInfo, CINAHL, and Web of Science. Studies investigating participants with clinical pain or those who were pain free and exposed to experimentally induced pain were analysed separately. RESULTS: Eighteen clinical studies and seven experimental studies were included...
September 5, 2018: Disability and Rehabilitation
Nathan T Kearns, Mark B Powers, Warren T Jackson, Timothy R Elliott, Tiffany Ryan
PURPOSE: Examining the relationship between posttraumatic stress disorder and posttraumatic stress disorder symptom clusters (re-experiencing, avoidance, hyperarousal, emotional numbing) on three substance use measures among individuals with upper limb amputation due to traumatic injury - an understudied population with high rates of posttraumatic stress disorder. METHODS: Multi-site, cross-sectional design. Participants (N = 236) were recruited from seven prosthetic rehabilitation centres across the USA and completed measures of PTSD, alcohol use, prescription medication overuse, and illicit drug use...
September 5, 2018: Disability and Rehabilitation
Heather Batten, Suzanne Kuys, Steven McPhail, Paulose Varghese, Allison Mandrusiak
PURPOSE: What are the characteristics of people with lower limb amputation at admission to, and discharge from, subacute rehabilitation? Have these characteristics changed over time? METHODS: A total of 425 lower limb amputation inpatient rehabilitation admissions (335 individuals) from 2005 to 2011 were examined. Admission characteristics, including aetiology, gender, age, amputation level, cognition (Mini-Mental State Examination (MMSE)), indoor mobility aid, motor function (Functional Independence Measure motor subscale) and number and type of comorbidities, and discharge characteristics, including prosthetic prescription, motor function, discharge mobility aid, and destination were compared by admission date and year...
September 5, 2018: Disability and Rehabilitation
Lilly Tran, Ryan Caldwell, Matthew Quigley, Stefania Fatone
PURPOSE: To gather ideas from lower-limb prosthesis users and certified prosthetists regarding possible residual limb monitoring system features and data presentation. We also gathered information on the type of residual limb problems typically encountered, how they currently manage those problems, and their ideas for methods to better manage them. MATERIALS AND METHODS: Two focus groups were held; one with certified prosthetists and another with lower-limb prosthesis users...
September 5, 2018: Disability and Rehabilitation
Andrea Stennett, Lorraine De Souza, Meriel Norris
PURPOSE: This study explored the meanings community dwelling people with multiple sclerosis ascribe to exercise and physical activity. METHOD: Using a qualitative approach, 16 face-to-face, semi-structured interviews were conducted. Data were analysed using Framework Analysis and emerging themes developed. RESULTS: Five themes were identified: "A Type of Movement", "The Impact of Exercise and Physical Activity", "It Changes", "Sense of Loss" and "Coping with Multiple Sclerosis"...
August 20, 2018: Disability and Rehabilitation
Mara Cañedo-Ayala, Danielle B Rice, Brooke Levis, Marie-Eve Carrier, Julie Cumin, Vanessa L Malcarne, Mariët Hagedoorn, Brett D Thombs
PURPOSE: Our study aimed to identify caregiver characteristics (gender, age, occupational status, educational attainment, relation to care recipient), care recipient characteristics (age, disease subtype), and caregiving factors (hours of care, perceived caregiving burden) associated with symptoms of depression among informal caregivers of persons with systemic sclerosis (also known scleroderma). as Materials and methods: A questionnaire was developed and administered online from December 2016 to June 2017 to informal caregivers of people with scleroderma, including the Patient Health Questionnaire-9 to assess depressive symptoms...
August 19, 2018: Disability and Rehabilitation
Judy Clegg, Rachael Black, Antoin Smith, Shelagh Brumfitt
PURPOSE: Intensive interaction is used to increase communication in people at a pre-verbal stage of communication development. The aim of the study was to evaluate a city-wide implementation of intensive interaction training to care staff by investigating how staff use intensive interaction with adults with profound and multiple learning disability, and their perceived impact of intensive interaction on these service users. METHOD: In phase 1, a survey investigated the outcomes of intensive interaction training on the work practices of staff supporting people with profound and multiple learning disability...
August 17, 2018: Disability and Rehabilitation
Sigmund Ø Gismervik, Marius S Fimland, Egil A Fors, Roar Johnsen, Marit B Rise
AIMS: The aim of this study was to examine whether and how intended processes of behavioural change were reflected in participants' experiences after an inpatient occupational rehabilitation programme. The programme was transdiagnostic, lasted 3½ weeks and was based on the acceptance and commitment therapy model. METHODS: Twenty-two participants (17 women and 5 men) took part in five qualitative focus group interviews after the programme. Analysis was data-driven, categorising participants' experiences using an initial explorative phenomenological approach...
August 16, 2018: Disability and Rehabilitation
Niek Koenders, Roel van Oorsouw, Joost P H Seeger, Maria W G Nijhuis-van der Sanden, Irene van de Glind, Thomas J Hoogeboom
PURPOSE: To understand beliefs, thoughts, attitudes, and experiences related to physical activity during hospital stay in patients and health care providers. METHODS: A qualitative, interpretive, phenomenological study examined the common meaning and lived experiences of patients and health care providers related to inpatient physical activity. Data from semi-structured interviews were analysed using qualitative content analysis. RESULTS: A total of 42 participants (18 patients and 24 health care providers) were interviewed...
August 9, 2018: Disability and Rehabilitation
Inge H Bruun, Thomas Maribo, Birgitte Norgaard, Berit Schiottz-Christensen, Morten G B Jessen, Christian B Mogensen
AIMS: We hypothesised that a systematic functional assessment in a short stay unit at an emergency department (ED) and/or immediate rehabilitation after discharge will result in sustained or improved physical performance in comparison to a regimen in which neither of these interventions is offered. METHODS: A two-way factorial randomised clinical trial was completed in an ED and the primary sector. We enrolled 336 nonsurgical patients of 65 years or older, scoring eight or less in the 30-s chair stand test...
July 27, 2018: Disability and Rehabilitation
Chathuranga Ranasinghe, Neil A King, Ross Arena, Andrew P Hills
INTRODUCTION: Exercise rehabilitation/training is integral in the prevention and management of chronic, lifestyle-related diseases. Poor long-term adherence to exercise by patients is a challenging problem for health professionals. Despite the evidence of appropriate supervision with improved exercise adherence, the supervision process is not adequately described in the literature. Further, the co-existing Technical and Cognitive Behavioral components of exercise supervision are commonly described separately...
July 27, 2018: Disability and Rehabilitation
Alix G Sleight, Kathleen Doyle Lyons, Cheryl Vigen, Heather Macdonald, Florence Clark
PURPOSE: Determine correlations between health-related quality of life (HRQOL), supportive care need, and sociodemographic factors in low-income Latina breast cancer survivors. METHODS: A descriptive, survey-based, cross-sectional study was completed with 102 low-income Latina breast cancer survivors at a major public safety net hospital. Correlation coefficients were calculated between number of unmet supportive care needs (per Supportive Care Needs Survey), HRQOL (per SF-36), and sociodemographic variables...
July 27, 2018: Disability and Rehabilitation
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