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Developmental Medicine and Child Neurology

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https://www.readbyqxmd.com/read/28650077/considerations-on-the-assessment-of-developmental-coordination-disorder-and-the-elaboration-of-related-contextual-pathways
#1
Matthias Wagner
No abstract text is available yet for this article.
June 26, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28650072/cognitive-interviews-in-patient-reported-outcome-measures-of-function-for-young-people-with-neurodisabilities
#2
Linda Eddy
No abstract text is available yet for this article.
June 26, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28627071/oral-health-status-of-children-and-adolescents-with-intellectual-disabilities-a-systematic-review-and-meta-analysis
#3
REVIEW
Ni Zhou, Hai Ming Wong, Yi Feng Wen, Colman Mcgrath
AIM: To compare the oral health status of children and adolescents affected by intellectual disabilities with their unaffected counterparts. METHOD: Citations published in English were searched from electronic databases (PubMed, Embase, Web of Science, and Scopus) from their start dates to March 2017. The whole process was conducted following PRISMA (Preferred Reporting Items for Systematic reviews and Meta-Analyses) guidelines. The PICO (population, intervention/interest, comparator, outcome) principle was used to formulate the topic...
June 19, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28617943/long-term-impact-of-childhood-selective-dorsal-rhizotomy-on-pain-fatigue-and-function-a-case-control-study
#4
Alecia K Daunter, Anna L Kratz, Edward A Hurvitz
AIM: Selective dorsal rhizotomy (SDR) is a surgical treatment for spasticity in children with cerebral palsy (CP). Studies suggest long-lasting effects of SDR on spasticity; long-term effects on symptoms and function are not clear. This study tested whether adults with CP (average 22y after SDR) report less pain, fatigue, and functional decline than a retrospectively assessed non-surgical comparison group. METHOD: This was a case-control study. Eighty-eight adults with CP (mean age 27y; SDR=38 male/female/missing=20/16/2; non-surgical [comparison]=50, male/female=19/31) recruited from a tertiary care center and the community completed a battery of self-reported outcome measures...
June 15, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28612973/survivors-of-childhood-brain-tumors-and-their-caregivers-transition-to-adulthood
#5
Lamia P Barakat, Wendy Hobbie, Jane Minturn, Janet Deatrick
No abstract text is available yet for this article.
June 14, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28612955/estimating-numbers-of-children-with-cerebral-palsy-a-call-to-action
#6
Rachael Wood
No abstract text is available yet for this article.
June 14, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28586178/outcomes-in-duchenne-muscular-dystrophy-nature-nurture-culture-or-all-three
#7
Thorsten Langer, Janbernd Kirschner
No abstract text is available yet for this article.
June 6, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28586084/the-iterative-process-in-the-development-of-a-parent-reported-questionnaire-for-children-with-unilateral-paresis
#8
Katrijn Klingels
No abstract text is available yet for this article.
June 6, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28580682/decoding-the-association-between-herpes-simplex-virus-and-antibody-mediated-encephalitis
#9
Mark A Ellul, Michael J Griffiths
No abstract text is available yet for this article.
June 5, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28580593/refining-the-pediatric-evaluation-of-disability-inventory-patient-reported-outcome-pedi-pro-item-candidates-interpretation-of-a-self-reported-outcome-measure-of-functional-performance-by-young-people-with-neurodevelopmental-disabilities
#10
Jessica M Kramer, Ariel Schwartz
AIM: This study examined the item interpretability and rating scale use of the Pediatric Evaluation of Disability Inventory-Patient-Reported Outcome (PEDI-PRO) by young people with developmental disabilities. The PEDI-PRO assesses the functional performance of discrete functional tasks in the context of everyday life situations. METHOD: A two-phase cognitive interview design was implemented with a convenience sample of 37 young people (mean age 19y, SD 2y 5mo; 13 males and 24 females; 68% with intellectual disability) with developmental disabilities...
June 5, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28574172/prevention-of-hip-displacement-in-children-with-cerebral-palsy-a-systematic-review
#11
REVIEW
Stacey D Miller, Maria Juricic, Kim Hesketh, Lynore Mclean, Sonja Magnuson, Sherylin Gasior, Emily Schaeffer, Maureen O'donnell, Kishore Mulpuri
AIM: To conduct a systematic review and evaluate the quality of evidence for interventions to prevent hip displacement in children with cerebral palsy (CP). METHOD: A systematic review was performed using American Academy of Cerebral Palsy and Developmental Medicine (AACPDM) and Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) methodology. Searches were completed in seven electronic databases. Studies were included if participants had CP and the effectiveness of the intervention was reported using a radiological measure...
June 2, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28574167/predicting-the-prevalence-of-cerebral-palsy-by-severity-level-in-children-aged-3-to-15-years-across-england-and-wales-by-2020
#12
Svetlana V Glinianaia, Kate E Best, Raghu Lingam, Judith Rankin
AIM: To estimate the number of children living with cerebral palsy (CP) in England and Wales in 2013 by severity, and to extrapolate this figure to 2020. METHOD: Data from the North of England Collaborative Cerebral Palsy Survey for births during the period 1991 to 2000 were restricted to individuals aged at or above 3 years to estimate the prevalence of CP and to calculate 15-year survival by severity according to the number of severe impairments and lifestyle assessment score...
June 2, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28574146/niemann-pick-type-c-as-a-cause-of-progressive-intellectual-and-neurological-deterioration-in-childhood
#13
Anne Marie Winstone, Lesley Ann Stellitano, Christopher Michael Verity
AIM: To describe the cases of Niemann-Pick type C (NP-C) disease in a United Kingdom epidemiological study of progressive intellectual and neurological deterioration in childhood. METHOD: Paediatricians notified cases via the British Paediatric Surveillance Unit between 1997 and 2015. RESULTS: Fifty-three NP-C patients were identified: 29 females, 24 males. Fifteen cases had a systemic presentation (neonatal jaundice and/or hepatosplenomegaly)...
June 2, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28556907/challenges-describing-motor-profiles-in-alternating-hemiplegia-of-childhood
#14
Lucy Alderson
No abstract text is available yet for this article.
May 30, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28556060/the-value-of-a-comprehensive-natural-history-in-late-infantile-cln5-disease
#15
Sara E Mole
No abstract text is available yet for this article.
May 29, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28555892/pain-in-cerebral-palsy-a-neglected-comorbidity
#16
Darcy Fehlings
No abstract text is available yet for this article.
May 29, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28555780/development-and-psychometric-properties-of-the-hand-use-at-home-questionnaire-to-assess-amount-of-affected-hand-use-in-children-with-unilateral-paresis
#17
Yvonne Geerdink, Pauline Aarts, Menno Van Der Holst, Robert Lindeboom, Jan Van Der Burg, Bert Steenbergen, Alexander C Geurts
AIM: To describe the development of the parent-rated Hand-Use-at-Home questionnaire (HUH) assessing the amount of spontaneous use of the affected hand in children with unilateral paresis, and to test its internal structure, unidimensionality, and validity. METHOD: Parents of children with unilateral cerebral palsy (CP) and professionals participated in the development of the HUH. To examine internal validity, data of 322 children (158 males, 164 females; mean age 6y 7mo, standard deviation [SD] 2y 1mo) with unilateral CP (n=131) or neonatal brachial plexus palsy (NBPP) (n=191) were collected...
May 29, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28555755/reliability-of-the-assisting-hand-assessment-in-adolescents
#18
Annoek Louwers, Lena Krumlinde-Sundholm, Karin Boeschoten, Anita Beelen
AIM: To investigate the interrater and test-retest reliability of the Assisting Hand Assessment in adolescents (Ad-AHA) with cerebral palsy (CP) and to evaluate the alternate-form reliability of different test activities. METHOD: Participants were 112 adolescents with unilateral CP (60 males, 52 females; mean age 14y 5mo [standard deviation {SD} 2y 8mo], Manual Ability Classification System levels I-III). Reliability was evaluated using intraclass correlation coefficients (ICC), smallest detectable change (SDC), and Bland-Altman plots...
May 29, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28543714/motor-function-domains-in-alternating-hemiplegia-of-childhood
#19
Melanie Masoud, Kelly Gordon, Amanda Hall, Joan Jasien, Kara Lardinois, Julie Uchitel, Melissa Mclean, Lyndsey Prange, Jeffrey Wuchich, Mohamad A Mikati
AIM: To characterize motor function profiles in alternating hemiplegia of childhood, and to investigate interrelationships between these domains and with age. METHOD: We studied a cohort of 23 patients (9 males, 14 females; mean age 9y 4mo, range 4mo-43y) who underwent standardized tests to assess gross motor, upper extremity motor control, motor speech, and dysphagia functions. RESULTS: Gross Motor Function Classification System (GMFCS), Gross Motor Function Measure-88 (GMFM-88), Manual Ability Classification System (MACS), and Revised Melbourne Assessment (MA2) scales manifested predominantly mild impairments; motor speech, moderate to severe; Modified Dysphagia Outcome and Severity Scale (M-DOSS), mild-to moderate deficits...
May 25, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28543354/genotype-phenotype-relationship-in-mucopolysaccharidosis-ii-predictive-power-of-ids-variants-for-the-neuronopathic-phenotype
#20
Audrey A M Vollebregt, Marianne Hoogeveen-Westerveld, Marian A Kroos, Esmee Oussoren, Iris Plug, George J Ruijter, Ans T van der Ploeg, W W M Pim Pijnappel
AIM: Mucopolysaccharidosis type II (MPS II) is caused by variants in the iduronate-2-sulphatase gene (IDS). Patients can be either neuronopathic with intellectual disability, or non-neuronopathic. Few studies have reported on the IDS genotype-phenotype relationship and on the molecular effects involved. We addressed this in a cohort study of Dutch patients with MPS II. METHOD: Intellectual performance was assessed for school performance, behaviour, and intelligence...
May 25, 2017: Developmental Medicine and Child Neurology
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