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Developmental Medicine and Child Neurology

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https://www.readbyqxmd.com/read/28318010/ataxia-telangiectasia-recommendations-for-multidisciplinary-treatment
#1
REVIEW
Nienke J H van Os, Charlotte A Haaxma, Michiel van der Flier, Peter J F M Merkus, Marcel van Deuren, Imelda J M de Groot, Jan Loeffen, Bart P C van de Warrenburg, Michèl A A P Willemsen
Ataxia-telangiectasia is a rare, neurodegenerative, and multisystem disease, characterized by cerebellar ataxia, oculocutaneous telangiectasia, immunodeficiency, progressive respiratory failure, and an increased risk of malignancies. It demands specialized care tailored to the individual patient's needs. Besides the classic ataxia-telangiectasia phenotype, a variant phenotype exists with partly overlapping but some distinctive disease characteristics. This guideline summarizes frequently encountered medical problems in the disease course of patients with classic and variant ataxia-telangiectasia, in the domains of neurology, immunology and infectious diseases, pulmonology, anaesthetic and perioperative risk, oncology, endocrinology, and nutrition...
March 20, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28318009/the-efficacy-of-interventions-to-increase-physical-activity-participation-of-children-with-cerebral-palsy-a-systematic-review-and-meta-analysis
#2
REVIEW
Sarah Reedman, Roslyn N Boyd, Leanne Sakzewski
AIM: To determine efficacy of therapy and behaviour change interventions to increase the level of participation in leisure-time physical activities (LTPAs) and habitual physical activity in children and young people with cerebral palsy. METHOD: Five databases were systematically searched. Included studies were randomized or comparison designs. Methodological quality was assessed with a modified Downs and Black Scale. Quantitative analysis was performed using RevMan 5...
March 20, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28304081/course-of-employment-in-adults-with-cerebral-palsy-over-a-14-year-period
#3
Joyce L Benner, Sander R Hilberink, Thessa Veenis, Wilma M A van der Slot, Marij E Roebroeck
AIM: To explore the course of employment in adults with cerebral palsy (CP) over 14 years, and to identify subgroups at risk for unemployment. METHOD: Sixty-five adults with CP (33 males, 32 females; baseline age 25y 8mo, standard deviation [SD] 3y 2mo; intellectual impairment 25%; bilateral CP 65%) participated in a prospective cohort study. Self-reports of employment and work hours per week in 1996, 2000, and 2010 were documented. The course of employment (including sheltered work) and work hours per week were analysed, using generalized estimating equations (GEE)...
March 17, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28295237/towards-a-comprehensive-profile-of-dyskinetic-cerebral-palsy
#4
Roser Pueyo
No abstract text is available yet for this article.
March 13, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28294300/a-life-course-approach-to-increase-physical-activity-in-individuals-with-rett-syndrome
#5
Patrick G Mcphee, Jan Willem Gorter
No abstract text is available yet for this article.
March 11, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28276586/the-eating-and-drinking-ability-classification-system-in-a-population-based-sample-of-preschool-children-with-cerebral-palsy
#6
Katherine A Benfer, Kelly A Weir, Kristie L Bell, Robert S Ware, Peter Sw Davies, Roslyn N Boyd
AIM: To determine (1) the reproducibility of the Eating and Drinking Ability Classification System (EDACS); (2) EDACS classification distribution in a population-based cohort with cerebral palsy (CP); and (3) the relationships between the EDACS and clinical mealtime assessment, other classifications, and health outcomes. METHOD: This was a cross-sectional population-based cohort study of 170 children with CP at 3 years to 5 years (mean 57.6mo, standard deviation [SD] 8...
March 9, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28272744/selective-voluntary-motor-control-measures-of-the-lower-extremity-in-children-with-upper-motor-neuron-lesions-a-systematic-review
#7
REVIEW
Julia Balzer, Marietta L van der Linden, Thomas H Mercer, Hubertus J A van Hedel
AIM: Recovery and trainability of impaired selective voluntary motor control (SVMC) of the lower extremity in children with upper motor neuron lesions has received little attention. To facilitate an evidence-based debate about this topic, this review evaluates the evidence level of the psychometric properties of SVMC measures. METHOD: MEDLINE, Embase, CINAHL, PsycINFO, Scopus, Cochrane and PEDro databases were systematically searched up to July 2016. Two independent raters scored the methodological quality in accordance to the COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) checklist...
March 8, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28272743/functional-outcomes-in-children-and-young-people-with-dyskinetic-cerebral-palsy
#8
Elegast Monbaliu, Mary-Grace De La Peña, Els Ortibus, Guy Molenaers, Jan Deklerck, Hilde Feys
AIM: This cross-sectional study aimed to map the functional profile of individuals with dyskinetic cerebral palsy (CP), to determine interrelationships between the functional classification systems, and to investigate the relationship of functional abilities with dystonia and choreoathetosis severity. METHODS: Fifty-five children (<15y) and young people (15-22y) (30 males, 25 females; mean age 14y 6mo, standard deviation 4y 1mo) with dyskinetic CP were assessed using the Gross Motor Function Classification System (GMFCS), Manual Ability Classification System (MACS), Communication Function Classification System (CFCS), Eating and Drinking Ability Classification System (EDACS), and Viking Speech Scale (VSS), as well as the Dyskinesia Impairment Scale...
March 8, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28272737/hand-arm-bimanual-intensive-therapy-a-new-direction
#9
Jeanne Charles
No abstract text is available yet for this article.
March 8, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28262923/outcomes-after-scoliosis-surgery-for-children-with-cerebral-palsy-a-systematic-review
#10
REVIEW
Rachel Toovey, Adrienne Harvey, Michael Johnson, Louise Baker, Katrina Williams
AIM: This study aims (1) to evaluate and synthesize the evidence for the postoperative outcomes after scoliosis surgery for children with cerebral palsy (CP), and (2) to identify preoperative risk factors for adverse outcomes after surgery. METHOD: Medline, EMBASE, CINAHL, and PubMed were searched for relevant literature. Included studies were assessed for risk of bias using the Cochrane Effective Practice and Organisation of Care tool. Quality of evidence for overall function, quality of life (QoL), gross motor function, caregiver outcomes, deformity correction, and postoperative complications were assessed using GRADE (Grades of Recommendation, Assessment, Development and Evaluation)...
March 6, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28247406/the-cost-effectiveness-of-a-web-based-multimodal-therapy-for-unilateral-cerebral-palsy-the-mitii-randomized-controlled-trial
#11
Tracy Comans, Gabor Mihala, Leanne Sakzewski, Roslyn N Boyd, Paul Scuffham
AIM: To estimate the cost-effectiveness of the Mitii training system for improvements in upper limb function for children with unilateral cerebral palsy (CP). Mitii is a web-based programme delivered at home with set-up and monitoring by therapists. METHOD: A randomized controlled trial was conducted comparing the Mitii training programme to usual care. The Assessment of Motor and Process Skills (AMPS) and Canadian Occupational Performance Measure (COPM) were collected for each child at baseline and 20 weeks...
March 1, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28244591/self-concept-research-in-cerebral-palsy-development-of-a-population-specific-measure
#12
Janice Causgrove Dunn
No abstract text is available yet for this article.
February 28, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28229490/fidgety-movements-cerebral-palsy-and-cognitive-ability
#13
Luba Zuk
No abstract text is available yet for this article.
February 23, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28229458/life-course-health-development-of-individuals-with-neurodevelopmental-conditions
#14
REVIEW
Robert J Palisano, Briano Di Rezze, Debra Stewart, Peter L Rosenbaum, Oksana Hlyva, Matthew Freeman, Tram Nguyen, Jan Willem Gorter
The life course health development (LCHD) model by Halfon et al. conceptualizes health development occurring through person-environment transactions that enable well-being and participation in desired social roles throughout life, areas that have not received adequate attention in healthcare. The aim of this 'perspectives' paper is to apply the six core tenets of the LCHD model and the concept of health development trajectories to individuals with lifelong neurodevelopmental conditions. We share the perspective that modifiable aspects of the environment often restrict health development; we then advocate that children, beginning at a young age, should engage in 'real-world' experiences that prepare them for current and future social roles...
February 23, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28224617/clinical-trials-in-childhood-stroke-from-consensus-to-reality
#15
Mitchell S V Elkind
No abstract text is available yet for this article.
February 22, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28224614/neurobehavioural-vulnerability-and-autistic-traits-in-rasopathies
#16
Yves Sznajer
No abstract text is available yet for this article.
February 22, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28224608/inter-and-intrarater-clinician-agreement-on-joint-motion-patterns-during-gait-in-children-with-cerebral-palsy
#17
Angela Nieuwenhuys, Eirini Papageorgiou, Guy Molenaers, Davide Monari, Tinne de Laet, Kaat Desloovere
AIM: This study aimed to quantify the inter- and intrarater clinician agreement on joint motion patterns in children with spastic cerebral palsy (CP), which were recently specified by a Delphi consensus study. It also examined whether experience with three-dimensional gait analysis (3DGA) is a prerequisite for using the patterns. METHOD: The experimental group consisted of 82 patients with CP (57 males, 25 females; uni-/bilateral CP [n=27/55]; Gross Motor Function Classification System levels I to III; mean age 9y 5mo [range 4y-18y])...
February 22, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28224606/single-subject-research-designs-in-pediatric-rehabilitation-a-valuable-step-towards-knowledge-translation
#18
REVIEW
Lynne Romeiser-Logan, Rebecca Slaughter, Robbin Hickman
Knowledge translation may be particularly challenging in pediatric rehabilitation, where study findings are often ambiguous owing to low statistical power or inconsistent responses to intervention. Disconnection between research protocols and clinical practicality, as well as variability of responsiveness in heterogeneous pediatric populations, may further impede integration of research findings into everyday practice. Use of single-subject research designs (SSRDs) may bridge the gap between research and practice, with robust design options that better identify and preserve patterns of responsiveness to specific interventions and offer protocols that are more readily implemented in practice settings than can be done in traditional randomized controlled trials...
February 22, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28206668/the-gross-motor-function-classification-system-20-years-on
#19
Anna Mccormick
No abstract text is available yet for this article.
February 16, 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28164278/quantification-of-walking-based-physical-activity-and-sedentary-time-in-individuals-with-rett-syndrome
#20
Jenny Downs, Helen Leonard, Kingsley Wong, Nikki Newton, Kylie Hill
AIM: To quantify, in individuals with Rett syndrome with the capacity to walk, walking-based activity and sedentary time, and to analyse the influences of age, walking ability, scoliosis, and the severity of epilepsy. METHOD: Sixty-four participants with a mean age of 17 years and 7 months (standard deviation [SD] 9y) were recruited from the Australian Rett Syndrome Database for this cross-sectional study. Each participant wore a StepWatch Activity Monitor for at least 4 days...
February 6, 2017: Developmental Medicine and Child Neurology
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